Sala Riunione Giovanni Paolo II Piazza Sant'Onofrio, 4
Sala Riunione Giovanni Paolo II Piazza Sant'Onofrio, 4
Sala Riunione Giovanni Paolo II Piazza Sant'Onofrio, 4
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PRESENTATION OF THE MEETING<br />
This course will be held in the context of a European project focused<br />
on the management of genodermatoses, "Together Against<br />
Genodermatoses" Genodermatoses (TAG). The goal of the event is to define the best<br />
available strategy for the nursing care of the patients.<br />
This course will focus on the daily nursing management of the<br />
lesions in EB patients at different age. In addition it will give the<br />
opportunity to acquire skills during the surgical procedures in<br />
order d ttopreventtth theonsettoff new llesions. i<br />
GENERAL INFORMATION<br />
CONTINUING MEDICAL EDUCATION(CME): ( )<br />
Italian CME credits have been requested to the Ministry of Health for Physicians and Nurses<br />
REGISTRATION:<br />
No registration fee is required.<br />
Registration form should be sent to the Organizing Secretariat by fax (+39 06 68592443),<br />
Registrations are limited up p to 25 participants<br />
LOCAL ORGANIZING SECRETARIAT<br />
Ufficio Organizzazione Eventi<br />
Coordinamento Missioni Internazionali ed Eventi (CMIE) ( )<br />
Ospedale Pediatrico Bambino Gesù<br />
<strong>Piazza</strong> S. Onofrio, 4 – 00165 Roma<br />
Tel: +39.066859.2290/2294/2411/3768 Fax:+39.066859.2443<br />
E‐mail: congressi@opbg.net<br />
www.ospedalebambinogesu.it<br />
Istituto Dermopatico<br />
dell’Immacolata<br />
Istituto di Ricovero e Cura<br />
a Carattere Scientifico<br />
FONDATION<br />
RENE TOURAINE<br />
Corso teorico‐pratico internazionale<br />
Gestione infermieristica dei pazienti con Epidermolisi Bollosa<br />
International Theoretical‐practical course<br />
Nursing of patients with Epidermolysis bullosa<br />
Rome, 16 november, 2011<br />
<strong>Sala</strong> <strong>Riunione</strong> <strong>Giovanni</strong> <strong>Paolo</strong> <strong>II</strong><br />
<strong>Piazza</strong> Sant’Onofrio, 4
HONORARY COMMITTEE<br />
Giuseppe pp PROFITI, , President<br />
Bruno DALLAPICCOLA, Scientific Director<br />
Massimiliano RAPONI, Chief Medical Director<br />
Bambino Gesù Children’s Hospital<br />
LOCAL ORGANIZERS<br />
May EL HACHEM<br />
Giovanna ZAMBRUNO<br />
SCIENTIFIC COMMITTEE<br />
Giovanna Carta<br />
Luisa Cirulli<br />
Emanuela Tiozzo<br />
Angela Ranati<br />
CHAIRMEN AND SPEAKERS<br />
Laura Carlesi<br />
Giovanna Carta<br />
Carla Cervoni<br />
Aannalisa Ciasulli<br />
Luisa Cirulli<br />
May El Hachem<br />
Lesley Foster<br />
Anna Martinez<br />
Jemina Mellerio<br />
Fabrizio Pontarelli<br />
Angela Ranati<br />
Massimiliano Raponi<br />
Laura Serafini<br />
Wednesday, november 16<br />
SCIENTIFIC PROGRAMME<br />
14,00 Iscrizione ‐ Registration<br />
14,30 Saluto ai partecipanti e apertura lavori ‐ Welcome<br />
Dott. M. Raponi, Dr. M. El Hachem<br />
14,45 Apertura lavori ‐ Opening<br />
M M. El Hachem<br />
15,00‐16,30 I° Sessione: Epidermolisi Bollose (EB): Approccio clinico<br />
I° Session: Epidermolysis Bullosa (EB): Clinical approach<br />
Chairmen: G. Carta, M. El Hachem, M. Raponi<br />
15,00 Epidermolisi Bollose (EB): aspetti clinici<br />
Epidermolysis Bullosa (EB): Clinical Aspects<br />
J. Mellerio<br />
15,20 Approccio multidisciplinare ai pazienti con EB<br />
Multidisciplinary approach of EB patients<br />
A. Martinez<br />
15 15,40 40 Centralità della famiglia<br />
Family’s centred<br />
E. Tiozzo<br />
16,00‐18,30 <strong>II</strong>° Sessione: Presa in carico infermieristica del paziente con EB<br />
<strong>II</strong>° Session: Nursing care of EB patients<br />
Chairmen: L. Carlesi, L. Cirulli, L. Serafini<br />
16,00 Relazione d’aiuto<br />
Relation of help<br />
L. Cirulli<br />
16,15 Percorso assistenziale in OPBG<br />
Care paths in OPBG<br />
A. Ranati, F. Pontarelli<br />
16,30 Percorso assistenziale in UK<br />
Care paths in UK<br />
L. Foster<br />
16,45 Esercitazione Pratica della Gestione Infermieristica:<br />
Practical Session on Nursing Management<br />
al neonato<br />
to neonate<br />
al bambino<br />
to child<br />
nel comparto operatorio<br />
in the thearter room<br />
L. Foster, C. Cervoni<br />
18,30 Valutazione e Chiusura lavori ‐ Evaluation and Closing Remarks
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