Dossier de Presse - Bienvenue sur les sites des coordinations ...

AFTERNOON
Diseases
Evaluation of the neuromuscular patient
1.45 pm - 2.30 pm ‹Late Breaking News XAuditorium
Chairpersons > Thomas Voit and Serge Braun
2.30 pm - 4.00 pm Plenary lectures XAuditorium
Chairpersons > Michelle Eagle and Carole Bérard
2.30 am-3.15 am Eugenio Mercuri, Italy
> Overview of functional scales and muscle measurements
3.15 am-4.00 am Diana Escolar, USA
> Activity monitoring of neuromuscular disease
4.00 pm-4.30 pm Break
4.30 pm-5.30 pm Symposium
‹Scales for assessment of neuromuscular diseases XAuditorium
Chairperson > Nadine Pellegrini
Carole Bérard, France
> The Motor Function Measure to assess the Duchenne Muscular Dystrophy’s motor deterioration
Richard Finkel, USA
> Scales for assessment of neuromuscular diseases, spinal muscular atrophy
Michelle Eagle, UK
> The North Star Ambulatory Assessment
5.30 pm-6.30 pm Parallel Symposia
‹Evaluation of the quality of life XAuditorium
Chairperson > Kate Bushby
Michael Rose, UK
> Measuring and understanding quality of life in adult muscle disease
Jes Rahbek, Denmark
> Experiences with Quality of Life measurements in Denmark
François Boyer, France
> Conceptual approaches of the quality of life measurements used in medicine
(neuromuscular patients reported outcomes)
‹Other aspects of muscle function assessment XAmphitheatre Callelongue
Chairperson > Michel Toussaint
Birgit Steffensen, Denmark
> The “Egen Klassifikation” (EK) revisited
Vincent Gautheron, France
> Functional Independence Measure (MIF TM )
Pierre-Yves Jeannet/Anisoara Ionescu, Switzerland
> Objective quantification of daily physical activity pattern in children with DMD and BMD
Programme > Friday, May 30
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