Information for Parents and Carers of Children with - Dundee City ...
Information for Parents and Carers of Children with - Dundee City ... Information for Parents and Carers of Children with - Dundee City ...
Looking after your child - get information about your child’s condition through organisations like Contact a Family or Parent to Parent. - explore the benefits system, don’t be embarrassed to ask, it's your right as a parent. - other parents can offer good advice and helpful information gained through their own experiences. - don’t be afraid to teach your child to be as independent as possible. It will make your life easier in the future. - and last, remember your child’s day doesn’t have to be filled with something educational every minute, do things which you both will enjoy. Talking to professionals - write things down when talking to professionals. - get a notebook and a diary. - use your information pack to store information / leaflets. - keep notes of telephone calls and letters you send and receive. - if going to appointments try to take someone with you for support. - don’t be afraid to ask questions and, especially if you don’t understand the words which are being used, ask for an explanation – its your child who is being discussed and you should understand what’s being said. - let people know in writing or phoning if things are starting to go wrong, don’t wait until you are at crisis. - have faith in your own experience as a parent – you know your child better than anyone. Information Pack – Children’s Services 4
WHAT DO YOU NEED TO KNOW AND FROM WHOM? SOME QUESTIONS YOU MIGHT LIKE TO ASK The questions in this leaflet have been designed to assist you in getting as much information as possible from your specialists. He / she can often provide this information although limitations do exist and finding answers is not always possible. If your specialist cannot answer your question ask to be referred to someone who may know the answer. Here is a list of questions which may help you find the answers that you need. The following may point you in the right direction when forming questions of your own. What is the diagnosis and what does it mean? What is the prognosis? Is there a cure for this condition? Will my other children be affected? How accurate is the diagnosis? What can I expect my child to achieve? What is the treatment for this condition? Will my child require medication? What other specialists will my child need to see? What kind of help will my child need? What can I do to help my child? Are there any benefits I can claim for my child? What services is my child likely to need? Is there a support group for this condition? Where can I find out more information about the condition? Will my child need additional help at school? I understand that there are pre-school home visiting teachers at what stage will they become involved? Please remember though that if they can't tell you what the future holds, that is probably because it isn't possible at this time in your child's development. Information Pack – Children’s Services 5
- Page 1 and 2: INFORMATION FOR PARENTS AND CARERS
- Page 3: Think of yourself TOP TIPS - don’
- Page 7 and 8: A CHILD I KNOW HAS ADDITIONAL NEEDS
- Page 9 and 10: • Worrying about future planning
- Page 11 and 12: WHAT CAN FRIENDS DO TO HELP? The ex
- Page 13 and 14: • Teasing or bullying about a bro
- Page 15 and 16: PEOPLE SOME USEFUL DEFINITIONS Audi
- Page 17 and 18: ABBREVIATIONS EXPLAINED Conditions
- Page 19 and 20: Early Years and Childcare Services
- Page 21 and 22: DUNDEE EDUCATIONAL PSYCHOLOGY SERVI
- Page 23 and 24: SOCIAL WORK The Children with Disab
- Page 25 and 26: SPEECH AND LANGUAGE THERAPY DEPARTM
- Page 27 and 28: OCCUPATIONAL THERAPY DEPARTMENT DUN
- Page 29 and 30: DEPARTMENT OF NUTRITION & DIETETICS
- Page 31 and 32: HEALTH VISITORS/ PUBLIC HEALTH NURS
- Page 33 and 34: DUNDEE INFORMATION SHEET THE ROLE O
- Page 35 and 36: Given that it is suggested that 80%
- Page 37 and 38: Children's Rights A Children's Righ
- Page 39 and 40: Homestart 3rd Floor, 30 Whitehall S
- Page 41 and 42: RESPITE CARE PROVISION IN DUNDEE Wh
- Page 43 and 44: RESPITE CARE FOR CHILDREN & YOUNG P
- Page 45 and 46: What happens after the assessment?
- Page 47 and 48: DUNDEE DIRECT PAYMENTS SUPPORT SERV
- Page 49 and 50: therapy/massage, etc. If feeding ta
- Page 51 and 52: SOCIAL FUND If you get Income Suppo
- Page 53 and 54: So who qualifies? There is no age l
WHAT DO YOU NEED TO KNOW AND FROM WHOM?<br />
SOME QUESTIONS YOU MIGHT LIKE TO ASK<br />
The questions in this leaflet have been designed to assist you in getting as much in<strong>for</strong>mation<br />
as possible from your specialists. He / she can <strong>of</strong>ten provide this in<strong>for</strong>mation although<br />
limitations do exist <strong>and</strong> finding answers is not always possible.<br />
If your specialist cannot answer your question ask to be referred to someone who may know<br />
the answer.<br />
Here is a list <strong>of</strong> questions which may help you find the answers that<br />
you need. The following may point you in the right direction when<br />
<strong>for</strong>ming questions <strong>of</strong> your own.<br />
What is the diagnosis <strong>and</strong> what does it mean?<br />
What is the prognosis?<br />
Is there a cure <strong>for</strong> this condition?<br />
Will my other children be affected?<br />
How accurate is the diagnosis?<br />
What can I expect my child to achieve?<br />
What is the treatment <strong>for</strong> this condition?<br />
Will my child require medication?<br />
What other specialists will my child need to see?<br />
What kind <strong>of</strong> help will my child need?<br />
What can I do to help my child?<br />
Are there any benefits I can claim <strong>for</strong> my child?<br />
What services is my child likely to need?<br />
Is there a support group <strong>for</strong> this condition?<br />
Where can I find out more in<strong>for</strong>mation about the condition?<br />
Will my child need additional help at school?<br />
I underst<strong>and</strong> that there are pre-school home visiting teachers at what stage will they<br />
become involved?<br />
Please remember though that if they can't tell you what the future holds, that is probably<br />
because it isn't possible at this time in your child's development.<br />
<strong>In<strong>for</strong>mation</strong> Pack – <strong>Children</strong>’s Services 5