2023 Head & Neck Cancer Conference Guide Book
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OFFICIAL <strong>2023</strong> DELEGATE<br />
<strong>Guide</strong> <strong>Book</strong><br />
GRAND HOTEL, TORQUAY // UNITED KINGDOM<br />
8TH & 9TH NOVEMBER <strong>2023</strong><br />
#HNCCONF<strong>2023</strong>
SWALLOWS SUPPORT GROUP LOCATIONS<br />
We have a range of in person<br />
and online support groups<br />
located around the UK. Most<br />
meetings are held on the second<br />
Wednesday of every month.<br />
Patients, caregivers and health<br />
professionals are all welcome.<br />
PLAY YOUR PART<br />
Blackpool /<br />
Preston / Lakes<br />
Fundraising is a key part of our annual funding and our volunteers often to go<br />
extreme lengths to raise valuable money for our charity. From bag packs to 28km<br />
swims in the Lake District and even cycling coast to coast across the UK, we are<br />
truly thankful for all their efforts! Luckily we’ve made it much easier to support The<br />
Swallows - you can simply scan the QR code with your smart phone to donate. We<br />
are extremely grateful for any donation, no matter how small or big!<br />
£100 TO US IS LIKE WINNING THE<br />
LOTTERY, SO PLEASE REMEMBER...<br />
PRESTON<br />
Cornwall/<br />
South Devon<br />
MILTON KEYNES<br />
IPSWICH<br />
‘EVERY POUND COUNTS!’<br />
ONLINE GROUPS<br />
TORBAY<br />
OPEN YOUR PHONE CAMERA AND<br />
SCAN THE QR CODE TO DONATE<br />
Blackburn/Preston/Lakes CAREGIVERS grimsby lincolnshire<br />
LONDON YOUNG PERSONS PLYMOUTH ROYAL DEVON & EXETER<br />
SOUTHAMPTON WORCESTER INTERNATIONAL MEETING<br />
NORTHAMPTON<br />
justgiving.com/campaign/<br />
SwallowsCharity<br />
2 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
CLATTERBRIDGE CANCER CENTRE<br />
BATH (FROM FEB '24)<br />
TO FIND YOUR LOCAL GROUP HEAD ONLINE<br />
WWW.THESWALLOWS.ORG.UK OR EMAIL INFO@THESWALLOWS.ORG.UK<br />
#HNCCONF<strong>2023</strong> 3
<strong>2023</strong> HEADLINE SPONSORS<br />
We will explore potential ways of enabling all of us<br />
to think differently about how we learn and what we<br />
can achieve.<br />
The programme will deliver an exciting mix of<br />
keynote speakers and panel discussions, exhibitions<br />
themed around the strands of 'Living With and<br />
Beyond <strong>Cancer</strong>’ and will invite delegates to 'Think<br />
Differently' as a result.<br />
WELCOME<br />
After a very successful 2022 conference,<br />
at the Stadium of Light in Sunderland,<br />
this year we are very pleased to be in<br />
the English Riviera. We anticipate that<br />
the <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong> <strong>Conference</strong><br />
<strong>2023</strong> will be an inspiring and memorable<br />
experience for everyone who attends.<br />
The conference will pose questions about<br />
‘Living With and Beyond <strong>Cancer</strong>’. Inspired<br />
by leading national and international<br />
thinkers, the conference will explore<br />
how, by introducing greater passion and<br />
understanding into the patient’s journey,<br />
caregivers and the people who work<br />
with them will make informed choices,<br />
continue learning and aspire to worldclass<br />
performance.<br />
This year we are proud to thank a<br />
truly international line-up of speakers<br />
who give up their time to speak at<br />
the conference. We will welcome two<br />
celebrities: Tommy Walsh, H&N cancer<br />
survivor and TV Celebrity, and Michael<br />
Caines, TV chef.<br />
At a time when health professionals<br />
are under ever more severe pressures,<br />
the conference will examine the<br />
opportunities for everyone involved to<br />
help improve the Quality of Life.<br />
Speakers and panels will be invited to build their<br />
presentation around this triple-pronged approach<br />
or to concentrate on one aspect. Anecdotal and<br />
personal experience will be encouraged. Wherever<br />
possible, speakers have been grouped to explore<br />
counter or complementary positions within a strand<br />
to further engage the audience. The participation<br />
of patients and caregivers in all aspects will form an<br />
integral part of the conference.<br />
We all hope you get involved and enjoy the<br />
experience. Please use #HNCCONF<strong>2023</strong> when<br />
posting your thoughts on social media.<br />
CHRIS CURTIS<br />
Chief Executive Officer<br />
& 12-year H&N <strong>Cancer</strong> Survivor<br />
chris@theswallows.org.uk<br />
4 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 5
RESIDENT<br />
Fahida Rehman, Clinical Nurse Specialist<br />
and Samantha Gregory, Speech and<br />
Language Therapist being honoured<br />
with the accolade of becoming Swallows<br />
charity patrons, giving them the privilege<br />
of supporting and championing the<br />
charity’s incredible work and continuing<br />
to make a meaningful difference in the<br />
lives of those we serve.<br />
Welcome<br />
to Torbaydos<br />
Welcome to the English Riviera and this<br />
year’s Swallows <strong>Head</strong> and <strong>Neck</strong> cancer<br />
conference here in Torbaydos. It is a<br />
fantastic honour to host this conference<br />
and we will do our very best to live up to<br />
it. South Devon is a fantastic place to live,<br />
work and play.<br />
I started my consultant job here in<br />
Torbay in 2007 and started my family<br />
shortly after and have no regrets about<br />
either. I said a moment earlier that “we<br />
will do our very best to live up to it”,<br />
because it is so important to recognise<br />
that “we” are a team. It is undoubtably<br />
a tough job but rewarding beyond<br />
compare. The colleagues I work with<br />
are some of the most wonderful people<br />
I know and it as honour to have them<br />
not just as colleagues but as friends. I<br />
would hope that all those here know<br />
what a multidisciplinary team (MDT) is<br />
and the pride and trust we have in ours,<br />
I believe, means that it is rewarding and<br />
when the going gets tough we are able<br />
to support each other. I am also very<br />
much aware that the MDT is not just<br />
clinical staff and I am incredibly lucky to<br />
have such amazing administrative and<br />
management colleagues as well, who go<br />
the extra mile on a daily basis.<br />
I also believe that as a functioning caring<br />
and thoughtful team we can provide the<br />
best, most up to date, successful and<br />
kind service for all those who need us.<br />
We are also very much aware that not<br />
only do we learn from each other, but<br />
we learn from our head and neck cancer<br />
patients, their care givers, friends and<br />
relatives. Essentially every day is a school<br />
day and I am not sure if the next couple<br />
of days are lessons, revision, exams or<br />
parents evening! Whatever way you look<br />
at it I am sure the conference will be<br />
both fun and informative<br />
As you are here today, I can only presume<br />
you know what the Swallows Charity is<br />
about and as a head and neck surgeon it<br />
seems to encompass the vast majority of<br />
my job! It is about helping those affected<br />
by head and neck cancer along a long,<br />
hard and quite often brutal journey. I<br />
don’t need to tell you how tough the<br />
journey is. For some it takes a few years,<br />
for many it is for the rest of their lives.<br />
As a result of our collaborative work<br />
with the Swallows Charity our head and<br />
neck cancer patients in Torbay benefit<br />
from the south west’s first patient-led<br />
Swallows support group. Stemming<br />
from this initiative we developed a<br />
partnership and direct linking with<br />
Lowell General Hospital in Boston,<br />
USA; the first NHS trust in the UK to do<br />
so. The aim is to twin and refine best<br />
practice for both head and neck cancer<br />
service departments. This also led to<br />
Our patients in Torbay also now have the<br />
opportunity to receive a revolutionary<br />
form of radiotherapy, as we have recently<br />
opened a clinical research trial called<br />
ToRPEdo, where our patients benefit<br />
from proton beam therapy, giving them<br />
an excellent opportunity to have access<br />
to world class treatment. This is co-led<br />
by The Christie NHS Foundation Trust<br />
based in Manchester and The Institute<br />
of <strong>Cancer</strong> Research in London. The trial<br />
will determine whether the use of proton<br />
beam therapy reduces long-term side<br />
effects and improves quality of life for<br />
people treated with radiotherapy for<br />
oropharyngeal cancer.<br />
Added to this drive in providing<br />
advancing treatment in head and neck<br />
cancer, our patients in Torbay are also<br />
benefiting from our 14-day Pathway<br />
from Decision to Treat to Radiotherapy.<br />
Since implementing the new pathway<br />
in October 2017 our findings have shown<br />
that for most patients the pathway is<br />
achievable and maintainable despite the<br />
significant pressures within the NHS. In<br />
view of the success and potential benefit,<br />
we would strongly encourage other<br />
centres to consider adopting a similar<br />
approach in their departments.<br />
This conference will bring together<br />
experts, researchers, healthcare<br />
professionals, and individuals passionate<br />
about head and neck cancer care. Our<br />
aim is to create a platform for sharing<br />
knowledge, fostering collaboration, and<br />
advancing the field of head and neck<br />
cancer and research. Throughout the<br />
conference, you will have the opportunity<br />
to hear from inspirational international<br />
speakers, leading experts in the field.<br />
They will be sharing the latest research<br />
findings, treatment strategies, and<br />
advancements diagnostic techniques.<br />
We encourage you to actively participate<br />
in discussions, ask questions, and<br />
exchange your ideas with fellow<br />
attendees.<br />
We want to express our gratitude to<br />
our sponsors, exhibitors and all the<br />
individuals who have contributed to<br />
making this conference possible. Your<br />
support plays a crucial role in advancing<br />
the fight again head and neck cancer.<br />
We hope you find this event enriching<br />
and inspiring. Together we can make<br />
significant strides in improving the<br />
lives of those affected. Thank you once<br />
again for being part of this important<br />
event. Let’s make the most of our time<br />
in Torquay and work towards a brighter<br />
future in head and neck cancer care.<br />
PHILIP REECE<br />
ENT / <strong>Head</strong> & <strong>Neck</strong> Consultant<br />
& <strong>2023</strong> <strong>Conference</strong> President<br />
6 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 7
Day 1 >> Wednesday 8th November<br />
Day 2 >> Thursday 9th November<br />
9.00 - 9.30<br />
<strong>2023</strong> <strong>Conference</strong> and Day 1 Welcome<br />
Chris Curtis<br />
Philip Reece<br />
9.00 - 9.05<br />
Day 2 Welcome<br />
Chris Curtis<br />
Philip Reece<br />
9.30 - 10.15<br />
SESSION: Pathologists, with you from the first step of your journey<br />
Professor Ali Khurram<br />
Dr Paul Hankinson<br />
9.05 - 9.50<br />
SESSION: Look, Listen and Observe for Mouth <strong>Cancer</strong> in the elderly<br />
Emma Riley<br />
10.20 - 11.05<br />
SESSION: Alternative medicine<br />
Simon Erridge<br />
Derek Lewthwaite<br />
9.55 - 10.40<br />
SESSION: Looking Beyond H&N <strong>Cancer</strong><br />
Shyam Singam<br />
Tamsin Longley<br />
11.05 - 11.35 Morning coffee break<br />
10.40 - 11.10 Morning coffee break<br />
11.35 - 12.20<br />
SESSION: <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong>s latest technology<br />
Richard Cave<br />
Vladimír Vondráček<br />
11.10 - 11.55<br />
SESSION: Acute & Late Effects of Radiotherapy Treatment<br />
Emma Hallam<br />
Nicola Freeman<br />
12.25 - 13.10<br />
13.10 - 14.20 Lunch break<br />
14.20 - 15.05<br />
15.10 - 16.00<br />
16.05 - 17.15<br />
SESSION: The unseen discrimination of cancer<br />
Chris Lewis<br />
SESSION: What we eat “An apple a day keeps the doctor away”<br />
Sarah Pearce<br />
SESSION: My Personal Experience of Throat <strong>Cancer</strong><br />
Tommy Walsh<br />
SESSION: Latest research in <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong><br />
Emma Kinloch Alexandra Langstaff<br />
Michael J Passineau<br />
12.00 - 12.40<br />
12.40 - 13.50 Lunch break<br />
13.50 - 14.40<br />
14.45 - 15.25<br />
15.30 - 16.10<br />
SESSION: Collaboration outcomes<br />
Dr Naomi Cole Arthur M. Lauretano<br />
Fahida Rehman Samantha Gregory<br />
SESSION: Nutrition doesn’t need to look boring<br />
Michael Caines<br />
SESSION: Laryngectomy my voice<br />
Jon Organ Peter Cousens<br />
Richard Andrews<br />
SESSION: A patients journey<br />
Sid Platt<br />
Denise Rudgley<br />
17.15 - 17.20 Day 1 wrap up<br />
HEADLINE SPONSORS<br />
16.10 - 16.30<br />
Day 2 wrap up, 2024 location<br />
announcement and close<br />
8 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 9
YOU ARE NOT ALONE.<br />
Patients, caregivers, and<br />
family members all welcome<br />
JOIN US AT OUR Patient &<br />
Caregiver MONTHLY MEETINGS<br />
THE SWALLOWS HEAD & NECK CANCER CHARITY<br />
Support for PATIENTS & Caregivers<br />
affected by HEAD & NECK CANCER<br />
Our main activities:<br />
• Provide a wide range of patient & caregiver information books<br />
• Offer a unique & dedicated 24/7 support phone line<br />
• Distribute Our patient and caregiver Support Boxes<br />
• USE OUR website and social media platforms TO help educate patients & caregivers<br />
• A range of supportive and awareness material for <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong><br />
• DEVELOP OUR Patient Mobile Phone App TO sharE ideas & tips<br />
• GET involved with health professionals at all HEALTHCARE levels<br />
• HOST OUR Regular monthly patient & caregiver meetingS<br />
Our 24/7 PATIENT & CAREGIVER<br />
support line service is<br />
answered by a real person<br />
WWW.THESWALLOWS.ORG.UK<br />
theswallowscancersupport<br />
(+44) 07504 725 059 info@theswallows.org.uk<br />
@swallowsgroup<br />
Come and meet like-minded people in a relaxed atmosphere.<br />
There’s no need to book, just turn up on the<br />
evening. Visit our website to find your local meeting.<br />
FUNDRAISING IS VITAL TO OUR<br />
CHARITY. OPEN YOUR PHONE<br />
CAMERA AND SCAN THE<br />
QR CODE TO DONATE.<br />
PLEASE TALK TO ANY OF THE<br />
SWALLOWS VOLUNTEERS AT<br />
THE CONFERENCE FOR MORE<br />
INFORMATION ABOUT ANY SERVICES.<br />
Chris Curtis<br />
Chief Executive Officer,<br />
<strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong> Survivor,<br />
The Swallows H&N <strong>Cancer</strong> Support Charity<br />
chris@theswallows.org.uk<br />
<strong>Head</strong> and <strong>Neck</strong> <strong>Cancer</strong><br />
Support<br />
Patient &<br />
Caregiver<br />
Mobile App<br />
Find lots of tips and articles to<br />
help with your journey, join our<br />
community plus much more.<br />
DOWNLOAD TODAY<br />
SEARCH FOR<br />
‘THE SWALLOWS’<br />
10 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 11
<strong>2023</strong> Speakers<br />
The International <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong> <strong>Conference</strong> is delighted to welcome a range of<br />
health professionals, patients and carers from around the world to take part in seminars and<br />
keynote sessions to dive into the latest and most interesting topics from the last 12 months.<br />
Tommy Walsh<br />
TV Presenter/DIY Expert<br />
DAY 1<br />
Philip Reece<br />
MBBS, FRCS (ORL-HNS), BSc<br />
DAY 1 & DAY 2<br />
Tommy is best known for his presenting role in Ground Force alongside Charlie and Alan.<br />
Educated at Parmiter’s School, then a grammar school in Bethnal Green, Walsh became a builder<br />
and first came to public attention after appearing in the BBC television gardening programme<br />
Ground Force. He stayed with the show for the rest of its run, from 1997 to 2005.<br />
ENT/<strong>Head</strong> & <strong>Neck</strong> Consultant<br />
& <strong>2023</strong> <strong>Conference</strong> President<br />
After leaving school Philip studied medicine at University College London, qualifying in 1992. In the<br />
middle of this he undertook an intercalated BSc in Cellular pathology. Philip was attracted to ENT<br />
Surgery while a medical student and his postgraduate training involved jobs at the Royal Marsden,<br />
Great Ormond Street, Royal Throat, Noise and Ear, St Mary’s and Addenbrookes Hospitals. The bulk<br />
of Philip’s senior surgical training was at the Radcliffe Infirmary in Oxford. At the end of his training<br />
he spent time in Tanzania and then completed a Fellowship in <strong>Head</strong> and <strong>Neck</strong> Surgery at the<br />
Royal Brisbane Hospital in Australia.<br />
In 2007 he returned to the United Kingdom to take up his post as ENT/<strong>Head</strong> & <strong>Neck</strong> Consultant<br />
at Torbay Hospital in South Devon. Philip has been active in training surgeons of the future as an<br />
Assigned Educational Supervisor for the Royal College of Surgeons, and he is the South Devon<br />
“Ambassador” for the National Confidential Enquiry into Patient Outcome and Death (NCEPOD)<br />
and the <strong>Head</strong> and <strong>Neck</strong> <strong>Cancer</strong> Lead for South Devon. Philip and his team were the first surgeons<br />
in the UK to perform Trans Oral Robotic Surgery (TORS) for cancer and today continue to innovate<br />
cancer treatment including laser and advanced airway surgery. On a personal level his wife and<br />
Philip are raising four children and umpteen animals. He would like to list all his hobbies, but he<br />
has four children and umpteen animals!<br />
Fahida Rehman<br />
Lead <strong>Head</strong> & <strong>Neck</strong>/Thyroid <strong>Cancer</strong> Clinical<br />
Nurse Specialist Swallows <strong>Head</strong> & <strong>Neck</strong><br />
<strong>Cancer</strong> Charity Patron<br />
DAY 2<br />
Fahida is the Lead H&N <strong>Cancer</strong> Specialist Nurse at Torbay and South Devon NHS Foundation Trust,<br />
providing holistic care for cancer patients undergoing investigation and treatment throughout their<br />
entire patient pathway, maintaining a high standard of person-centred care through clinical expertise.<br />
As a result of collaborative work with The Swallows Charity, she was instrumental in pioneering the<br />
region’s first patient-led support group in the South-West, as well as developing a partnership and<br />
direct linking with the Lowell General Hospital in Boston, USA. The aim being to twin and refine<br />
best practice for both head and neck cancer service departments; this successfully resulted in the<br />
continuing development of an equivalent role there.<br />
She also has a passion for health inequalities, committed and dedicated to improving outcomes<br />
for patients who are most vulnerable to cancer and its associated health disparities; most recently<br />
reflected in being a member of the advisory panel for the Macmillan Torbay Equity Project, which<br />
aims bridge the gap in cancer care and promote equitable access to treatment.<br />
His hard landscaping and building knowledge and skills led him to go onto film Fix It Yourself” for<br />
Discovery Real Time in 2010 and his series, “Fix Your House for Free” made in 2009 for Discovery<br />
Real Time was another successful series. In 2007 Tommy and his team pushed their talent and<br />
dexterity right to the edge, going beyond anything he has previously attempted on TV, with the<br />
task of building a new home in 60 days for £60K. It was built in the most eco and cost-friendly<br />
manner as possible, with construction materials which take into account eco benefits, cost,<br />
availability and ease of use. Recently Tommy Walsh was back on our screens presenting “Homes<br />
Under the Hammer” and “Clean It Fix It”.<br />
His book DIY Survival on publication made it into the UK’s bestsellers list and he subsequently<br />
published 4 project books; Kitchen DIY, Bathroom DIY, Outdoor DIY and Living Spaces DIY.<br />
Tommy had a small acting role in the film “One”. He is Patron of the “Stairway to Heaven Memorial<br />
Trust”, and is the subject of the song “Tommy Walsh’s Eco House” on the 2011 album 90 Bisodol<br />
(Crimond) by the band Half Man Half Biscuit. He has also appeared on Lily Savage’s Blankety Blank<br />
amongst other TV guest appearances.<br />
Clinical instructor in otology and laryngology, Harvard Medical School<br />
Assistant clinical professor in otolaryngology, Boston University School of Medicine<br />
Board Certified – American Academy of Otolaryngology and <strong>Head</strong> and <strong>Neck</strong> Surgery<br />
Board Certified – American Academy of Preventive Medicine<br />
Dr. Lauretano is a head and neck cancer surgical oncologist from Boston Massachusetts. A<br />
graduate of the Boston University Six-year Accelerated Medical Program, he trained at Harvard<br />
Medical School/Massachusetts Eye and Ear Infirmary.<br />
He was a full-time academic surgeon at Harvard Medical School, including the Dana Farber<br />
<strong>Cancer</strong> Institute, and then moved his cancer practice to the urban area of Lowell, Massachusetts.<br />
There he established the Multidisciplinary <strong>Head</strong> and <strong>Neck</strong> <strong>Cancer</strong> Center, which sees patients<br />
from throughout the United States. Arthur is a proud International Patron of The Swallows.<br />
Join the conversation<br />
Use the <strong>2023</strong> hashtag on social media<br />
Arthur M. Lauretano<br />
MD, MS, FACS<br />
DAY 2<br />
Medical Director, Lowell General Hospital<br />
Multidisciplinary <strong>Head</strong> and <strong>Neck</strong> <strong>Cancer</strong> Center<br />
#HNCCONF<strong>2023</strong><br />
12 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 13
Catherine Holborn<br />
MSc; BSc (Hons); PGCert<br />
<strong>Head</strong> and <strong>Neck</strong> Medical Oncologist<br />
DAY 2<br />
Tamsin Longley<br />
Senior Occupational Therapist,<br />
The Royal Marsden Hospital<br />
DAY 2<br />
Catherine is professionally registered as a Therapeutic Radiographer and worked clinically, within<br />
Radiotherapy, between 1998 and 2003. In 2003, she joined Sheffield Hallam University as a senior<br />
lecturer within their Radiotherapy & Oncology team. The majority of Catherine’s workload is in the<br />
post-registration/ post-graduate setting, delivering education to qualified practitioners, from a<br />
range of professional backgrounds, working within the cancer setting. The focus of her education<br />
predominantly focuses on topics related to cancer survivorship and personalised cancer care.<br />
She is passionate about using education to promote best practice in this field. She has a particular<br />
interest in strategies that help people to manage, and cope with, the long-term impact of cancer<br />
and its treatment. In 2022, Catherine also took on the role of Training & Education Lead at Sheffield<br />
Hallam’s Advanced Wellbeing Research Centre (AWRC) where work is undertaken to develop<br />
innovations that help people to move and improve their quality of life.<br />
Tamsin Longley is a Senior Occupational Therapist The Royal Marsden Hospital Foundation<br />
trust (RMH). She works as a clinical member of the Occupational Therapy department and is<br />
also committed to quality improvement and patient-centred care. In 2018, she was awarded the<br />
Churchill Fellowship in order to gain a better understanding into the research and therapeutic<br />
interventions available for individuals experiencing cancer related cognitive impairment (CRCI)<br />
following cancer and cancer treatment.<br />
As a result since 2021 and with support from the Royal Marsden cancer charity, Tamsin has now<br />
been running an adapted UK version of the ‘Emerging from the HazeTM’ programme for patient’s<br />
experiencing CRCI, initially built by Dr Arash Asher at Cedars-Sinai Medical Center, with promising<br />
results so far.<br />
Peter Cousens<br />
<strong>Head</strong> and <strong>Neck</strong> <strong>Cancer</strong> Survivor<br />
DAY 2<br />
Emma Kinloch<br />
Director, Salivary Gland <strong>Cancer</strong> UK<br />
DAY 2<br />
Peter was born in South West London in 1946, and attended Battersea County School. He has<br />
spent most of my working life in the dairy industry, first in London managing a Distributive Retail<br />
Depot in Shepherds Bush, then after meeting Chris and moving to Devon in 1979, he worked for St<br />
Ivel/Daws dairy as a Territory Manager covering Devon and Cornwall. Peter took early retirement<br />
in 2001. He owned an old 1951 London Bus and decided to go part time bus driving, which he did<br />
until he was made a member of this club in 2013.<br />
Peter was diagnosed with cancer of the larynx in November 2011 and was given laser and<br />
radiotherapy over Christmas and the New year of 2011/12, but unfortunately the cancer returned in<br />
July 2013 after which he had a full laryngectomee.<br />
Emma Kinloch is the founder of Salivary Gland <strong>Cancer</strong> UK (SGC UK), a unique collaboration<br />
between a patient advocate and medical oncologist. SGC UK is focussed on building a network<br />
of those affected by, treating and researching rare salivary gland cancers in the UK and beyond,<br />
pushing forwards research and providing reliable information.<br />
Internationally Emma represents salivary gland cancers as a Patient Advisor to the EURACAN rare<br />
head and neck cancer domain, a member of the International Rare <strong>Cancer</strong> Initiative (IRCI) and a<br />
Non-Executive Director of a US based Research Foundation. In all these roles she is focussed on<br />
collaboration, co-production and ensuring the patient/public voice is fully integrated into research<br />
from strategy and priority setting, through delivery, to output, evaluation, and dissemination<br />
Emma studied Experimental Psychology at Corpus Christi Oxford, holds an MSc in Criminology<br />
and Masters in Organisational Psychology.<br />
Simon Erridge<br />
MBBS BSc (Hons)<br />
<strong>Head</strong> of Research & Access, Sapphire Clinic<br />
DAY 1<br />
Sid Platt<br />
Former <strong>Head</strong> and <strong>Neck</strong><br />
<strong>Cancer</strong> Patient<br />
DAY 2<br />
Simon is a medical doctor, based in London, who leads on the conduct and development of<br />
research on medical cannabis at Sapphire Medical Clinics. He combines this with a role at Imperial<br />
College London, where he also studies the effects of components from the cannabis plant on<br />
pancreatic cancer cells in pre-clinical models.<br />
Sid is a 75 year young East Ender - former (un)civil servant, public sector Trade Union bureaucrat<br />
(Nalgo/Unison), Midlands TUC Chair, and Local authorities chief executive (West Midlands Local<br />
Government Association WMLGA). His future careers are behind him as his work avoidance<br />
programme is proceeding well! (with the exception of my commitment to the Swallows cancer<br />
recovery groups). Sid is now living in Cornwall on grandparenting duties, boating, travelling and<br />
playing golf enthusiastically (and often referred to as “Lazarus” when he wins!).<br />
14 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 15
Emma Hallam<br />
BSc MSc PGCertNMP<br />
DAY 2<br />
Vladimír Vondráček<br />
MSc.<br />
DAY 1<br />
Macmillan Consultant Therapeutic Radiographer<br />
Medical Physicist<br />
In 2013 Emma, a Macmillan Consultant Therapeutic Radiographer at The Nottingham<br />
Radiotherapy Centre developed and now leads the award winning Macmillan Nottingham<br />
Radiotherapy Late Effects Clinic. This bespoke service, the first if its kind within the UK helps<br />
patients with any physical or psychological late effects that patients may have as a consequence<br />
from their treatment.<br />
In 2019 she developed the service further to include the follow up of head and neck radiotherapy<br />
patients using patient reported outcome measures and digital technology and it is here where<br />
Emma helps to provide rehabilitation, identify early lymphoedema and other late effects with the<br />
intention of providing help and support before these consequences have a negative impact on<br />
the patient’s quality of life. Emma is also an Associate Lecturer at Sheffield University providing<br />
education and expert clinical guidance on personalised care and living with and beyond cancer.<br />
Offering a holistic approach, helping patients live well with and beyond cancer and education on<br />
late effects to both patients and health professionals is Emma’s key focus and area if interest.<br />
Vladimír has been a medical physicist in Thomayer´s Memorial Hospital since 1997, and since 2005<br />
head of medical physics department. He was head of medical physics department in University<br />
hospital Na Bulovce, Institute of radiation oncology between 2003-2012. Vladimír has held the<br />
position of <strong>Head</strong> of medical physics department in Proton Therapy Center in Prague since 2012,<br />
with special accreditation for radiation protection in proton therapy facility and accreditation for<br />
commissioning of proton beam for clinical treatment.<br />
He’s worked on a project on collaboration with the Joint Institute for Nuclear Research, Dubna,<br />
Russia, since 2004 in using proton beams and/or hadron beams for treatment. He was also a<br />
teacher at Institute for Postgradual Education in Medicine, 2006-2022, Faculty of medical physics<br />
and has participated in research projects with Institute of Radiation Dosimetry, Czech Academy of<br />
Science (RBE measurement of proton beam, LET measurement) and Czech Metrological Institute<br />
(measurement of unwanted doses during radiation therapy).<br />
Shyam Singam<br />
MBBS, DLO, FRCSI (ENT)<br />
ENT Surgeon<br />
Shyam completed his Undergraduate and ENT Postgraduate training (Coimbatore and Madras<br />
medical Colleges respectively) in India. He then trained in the Republic of Ireland and got his<br />
ENT Fellowship. Subsequently, after a stint of freelancing around the UK, he’ll be catching the<br />
Hogwart’s Express, to Torbay!<br />
DAY 2<br />
His special interests include BAHA, Obstructive Sleep Disordered Breathing, Coblation surgery and<br />
Acupuncture. The Acupuncture Clinic for Post Radiotherapy Xerostomia, was set up back in 2003<br />
with Julie Hewitt. Outside of work, he enjoys a little golf, gardening (including hard labour in an<br />
allotment that churns out Rhubarb gin and Cherry vodka!) and cooking, keeping him busy!<br />
Emma Riley<br />
Emma has many years’ experience in dental nursing and oral health care, having qualified from<br />
Manchester Dental School. She was at one point the only Sponsored McMillian Oral Health<br />
practitioner working for the Pennine Trust and supported patients at all stages of their treatment<br />
of oral cancers. Emma led nurse led clinics and was the DCP member of UKOMIC. Her work has<br />
seen her present and write both nationally and internationally and allowed her to present at the<br />
Mouth <strong>Cancer</strong> Awareness event in Parliament.<br />
Emma is also a clinical advisor for MCF. She has throughout the pandemic worked closely with<br />
care homes and was proud to contribute to the COP26 event which put oral care for the older<br />
person under the spot light.<br />
DAY 2<br />
Dental Nurse and Oral Health Practitioner,<br />
Patron of The Society of British Dental Nurses<br />
Dr Naomi Cole<br />
MB BcH MRCP FRCR<br />
<strong>Head</strong> and <strong>Neck</strong> Oncologist<br />
DAY 2<br />
Naomi completed her Oncology training in South Wales, and became a consultant, treating <strong>Head</strong><br />
and <strong>Neck</strong> and Skull base tumours, in 2013. In 2017 Naomi moved down to the South West and<br />
she started working in Torbay Hospital treating people with <strong>Head</strong> and <strong>Neck</strong> cancer and with lung<br />
SABR. Naomi works with a fantastic team in Torbay and who continually aim to provide great care<br />
for their patients.<br />
Richard Cave<br />
Speech and Language Therapist<br />
DAY 1<br />
Richard Cave is a Speech and Language Therapist (SLT) based in the UK, PhD candidate at<br />
UCL, national adviser to Royal College of Speech and Language Therapists for voice banking,<br />
Ambassador to the Mouth <strong>Cancer</strong> Foundation and recipient of the 2022 Allied Professional award<br />
from the International Alliance of ALS/MND Associations. Richard works with Google, providing<br />
specialist SLT consultancy to the Relate, Euphonia, Look to Speak, Activate projects. He also<br />
works with the MND Association, providing training and practical support for voice banking and<br />
communication technology. Prior to qualification as a SLT, he worked in the IT industry for 18 years.<br />
16 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 17
Jon Organ<br />
DAY 2<br />
Michael Caines<br />
MBE DL<br />
DAY 2<br />
Laryngectomee<br />
Chef Owner Michael Caines Collection<br />
My name is Jon Organ I am 57 and I am a Laryngectomee. I have been married to Nicky for 34<br />
years and have 4 children and 11 grandchildren. Up until November last year life was ticking<br />
along very nicely, and cares were few and far between. I ran my own building company, as well as<br />
consulting on Health and Safety in the construction industry (I still do).<br />
A two week rule visit to ENT at hospital after many months of a hoarse voice, found cancer of the<br />
voice box. Initially staged at 3, soon after stage 4. The cancer had grown through the thyroid. An<br />
urgent total laryngectomy, plus removal of thyroid gland and 84 lymph nodes followed.<br />
Shortly after 6 weeks of radiotherapy, at the Royal Marsden hospital London and two doses of<br />
chemotherapy. I am now classed as NED, No evidence of disease at a recent PET scan. During my<br />
short but intense journey, the one thing I have learnt is that people out there feel alone just as I<br />
did. Nobody should feel alone, and everybody should be helped wherever they can. If possible, I<br />
would like to help make a painful situation a little less painful.<br />
Michael Caines MBE, chef patron of Lympstone Manor, is known as one of Britain’s most<br />
celebrated and acclaimed Michelinstarred chefs. Having grown up in the South West of England,<br />
Michael has earned a global reputation for his distinctive modern cuisine, which champions the<br />
finest local produce and suppliers, combined with influences from his global travels.<br />
In 2006 Michael was awarded an MBE for contributions and services to the hospitality industry and<br />
made a Freeman of the City of Exeter for his work impassioning the hospitality industry in the local<br />
area. Michael also created the Michael Caines Academy at Exeter College – of which he is alumnus –<br />
as well as The Michael Caines Foundation which supports numerous charities including Families for<br />
Children, Farms for City Children, The Exeter Foundation, One for the Boys, WESC and Devon Wildlife<br />
Trust.<br />
Michael is a familiar face on television, appearing regularly on BBC’s Saturday Kitchen, Great British<br />
Menu and MasterChef and has authored a cookbook, Michael Caines at Home.<br />
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Professor<br />
Ali Khurram<br />
DAY 1 & DAY 2<br />
Consultant Pathologist<br />
Michael J Passineau<br />
PhD<br />
Vice President and <strong>Head</strong> of Salivary Gland<br />
Therapeutics MeiraGTx<br />
DAY 1<br />
2021- Present, Vice President and <strong>Head</strong> of Salivary Gland Therapeutics, MeiraGTx (NASDAQ:MGTX).<br />
MeiraGTx is a global gene therapy company with corporate headquarters in New York City,<br />
and primary manufacturing facilities in London and Shannon, Ireland. MeiraGTx develops and<br />
manufacturers and develops gene therapy vectors in inherited retinal diseases (partnership with<br />
Janssen), central nervous system disorders and salivary gland dysfunction.<br />
My role encompasses oversight of clinical drug development and research for the company’s lead<br />
candidate, AAV2-hAQP1, a gene therapy agent intended to treat radiation-induced xerostomia and<br />
Sjogren’s disease, as well as other undisclosed therapeutic candidates. AAV2-hAQP1 completed a<br />
Phase 1 clinical trial in March <strong>2023</strong>, and the company has begun dosing a Phase 2 trial in June, <strong>2023</strong>.<br />
Formerly 13 years at Allegheny Health Network, Drexel University College of Medicine, Pittsburgh<br />
Campus (Allegheny General Hospital). Retired as full Professor, Drexel University CoM, in 2021.<br />
Ali Khurram is a Professor and Consultant Pathologist at the University of Sheffield and Sheffield<br />
Teaching Hospitals NHS Foundation Trust, UK. He is passionate about raising the profile of<br />
Pathology as a specialty and raising awareness of head and neck cancers. He is a Patron for The<br />
Swallows <strong>Head</strong> and <strong>Neck</strong> <strong>Cancer</strong> Charity.<br />
Professor Khurram has a number of local, regional and national leadership roles including Clinical<br />
lead for the local/regional Diagnostic Oral and Maxillofacial Pathology Service, Secretary of the<br />
British Society for Oral and Maxillofacial Pathology (BSOMP), Digital Advisor for the Pathological<br />
Society of Great Britain & Ireland and Deputy Chair of the NCRI’s Salivary Gland working group. He<br />
is also the Training Programme Director for the specialty in Yorkshire and was awarded the 2022<br />
Golden Microscope Medal for his contribution to pathology training and education.<br />
Professor Khurram is actively involved in research with numerous ongoing projects investigating<br />
head and neck cancer and pre-cancer as well as the use of Artificial Intelligence in diagnosis and<br />
prediction of prognosis.<br />
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Nicola Freeman<br />
BSc (HONS) Radiotherapy & Oncology,<br />
MSc Advanced Clinical Practice<br />
Radiotherapy & Oncology<br />
H&N Consultant Radiographer<br />
DAY 2<br />
Nicola qualified as a therapeutic radiographer in 2003, and progressed up to superintendent<br />
radiographer in 2015 incorporating H&N specialist duties as part of her role. This involved supporting<br />
service users and their families throughout, and beyond their treatment journey providing specialist<br />
advice and care.<br />
Throughout this time, she has acquired knowledge and skills to further her expertise and developed<br />
networking skills with the wider multidisciplinary team to ensure their service users receive the best<br />
possible holistic care appropriate to their individual needs. In 2021 Nicola completed her masters<br />
degree, with her dissertation focussing on prehabillitation for HNCa, following a service user<br />
evaluation about their needs and the service provisions.<br />
Following on from this, Nicola was fortunate to be appointed to H&N consultant radiographer,<br />
and for the past year and a half has been working to reduce the oncologist time, and improve<br />
efficiency of the pathway throughout our service. Nicola is passionate about enabling service<br />
users to optimise their health and well-being pre-, and during treatment, and highly motivated to<br />
facilitate a better quality of life post-treatment.<br />
Alexandra Langstaff<br />
BSc, BNurs, Msc, NMP<br />
Ward Manager for <strong>Head</strong> and <strong>Neck</strong>,<br />
Brachytherapy and Molecular Radiation<br />
at The Christie NHS Foundation Trust<br />
DAY 1<br />
Alexandra trained for BNurs Adult Nursing and MSc Specialist Practice <strong>Cancer</strong> at The University<br />
of Manchester and is current ward manager for <strong>Head</strong> and <strong>Neck</strong>, Brachytherapy and Molecular<br />
Radiation at The Christie NHS Foundation Trust. She’s held previous roles within the same unit as a<br />
Registered nurse and Sister.<br />
Alexandra’s symptom control and end of life care interest led to previous role as a Clinical Nurse<br />
Specialist in Supportive and Palliative Care. Attempting to regularly alleviate symptoms for a<br />
variety of disease groups, ongoing issues with patients experiencing severe mucositis as a result of<br />
head and neck radical radiation were noted leading to completion of research project during 2022.<br />
Her clinical innovation research completed on alleviation of radiation induced mucositis for head<br />
and neck patients via use of Photobiomodulation Therapy (PBM). A Green Team Award was<br />
received in January <strong>2023</strong> from the Centre for Sustainable Healthcare. She has a strong passion for<br />
staff mental health and wellbeing and her MSc research project focused on the impact of end of<br />
life care on nurses within the oncology setting. Alexandra also holds the additional role of clinical<br />
supervisor within her current NHS trust.<br />
Samantha Gregory<br />
DAY 2<br />
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Macmillan Speech<br />
and Language Therapist<br />
Samantha graduated in 2007 with a BSc (Hons) degree in Speech and Language Therapy. Since<br />
qualifying she has always had a passion for working with people with <strong>Head</strong> and <strong>Neck</strong> <strong>Cancer</strong><br />
and their caregivers. She has been the clinical lead for the <strong>Head</strong> and <strong>Neck</strong> <strong>Cancer</strong> Speech and<br />
Language Therapy service at Torbay Hospital in South Devon since 2018.<br />
Samantha’s role is to provide assessment and rehabilitation of communication and / or swallowing<br />
difficulties associated with head and neck cancers and their treatment. She specialises in surgical<br />
voice restoration in laryngectomy rehabilitation and specialist instrumental swallow assessments<br />
including videofluoroscopy and fibreoptic endoscopic evaluation of swallowing (FEES).<br />
Sarah Pearce<br />
Director of Services and Operations,<br />
Fifth Sense<br />
DAY 1<br />
Samantha is honoured to have taken part in a transatlantic collaboration with The Swallows<br />
<strong>Head</strong> and <strong>Neck</strong> <strong>Cancer</strong> Support Group and the head and neck cancer team at the Lowell General<br />
Hospital in Boston, USA. The aim is to twin the two hospital trusts and continue to develop their<br />
overseas partnerships. She is proud to support The Swallows <strong>Head</strong> and <strong>Neck</strong> <strong>Cancer</strong> Support<br />
Group in Torbay and has been recently given the honour of patron for which she is truly grateful<br />
and humbled.<br />
Originally trained as a nurse, Sarah later studied in her spare time to acquire the qualifications<br />
to study full time as an undergraduate Law student, before going on to successfully complete<br />
a master’s degree in law. She then commenced employment within the third sector, including<br />
setting up a citizens advocacy charity in Kent for people with learning disabilities and their families.<br />
Following on from this, Sarah commenced working in various roles for physical and mental health<br />
charities. These were both large and small, established, and new.<br />
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Her roles over the years have included national senior management, advocacy and writing policy<br />
documents for a government minister on advocacy for adults with learning disabilities. She has<br />
worked for Fifth Sense, the smell and taste charity, for over a year and enjoys working in an area<br />
which, prior to joining the organisation, was something of which she had very little experience<br />
except with her late father, when he had mouth cancer and lost his sense of taste.<br />
20 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 21
Chris Lewis<br />
DAY 1<br />
Denise Rudgley<br />
Retired RGN, RHV, MSc in Public Health<br />
DAY 2<br />
CEO of Chris’s <strong>Cancer</strong> Community<br />
and COO of SimPal<br />
Ex Intensive Care Nurse<br />
Chris was a self-employed Business Consultant for many years until being diagnosed in 2007,<br />
with a stage IV Mantle Cell Lymphoma, with a 6-month prognosis. He received a donor stemcell<br />
transplant but was unable to work regularly afterwards, due to frequent bouts of differing<br />
GvHD. He decided to spend the rest of his life empowering people going through what he had<br />
experienced. Chris is now one of the most influential cancer patients in the world.<br />
Having seen the many challenges for people living with cancer, Chris works with numerous<br />
global organisations to aid better collaboration in the sector. He runs his own very successful<br />
website (www.chris-cancercommunity.com) and his innovative charity, (www.yoursimpal.com)<br />
Enabling people in the UK affected by cancer, long term health issues, and poverty, to stay digitally<br />
connected for free.<br />
Successful collaboration is key to this work, and Chris is a frequent keynote speaker and writer<br />
across the world. He also has a powerful presence on Twitter @christheeagle1<br />
Denise qualified in 1975 from the Royal Air Force as a State Registered Nurse and went on to<br />
specialise in Intensive Care Nursing for approximately 20 years around the UK and in the Middle<br />
East (Sultanate of Oman). She was also Matron of a military hospital for head and spinal injuries<br />
and a practising Health Visitor for approximately 10 years, which included running a Health Visiting<br />
Service in the Middle East for 3 of those.<br />
On return to the UK, Denise was professional lead/advisor to other agencies in respect of health<br />
and homeless issues and was seconded to the UK Public Health Association for 1 year to coordinate<br />
the ‘Health Visiting Matters’ national project. After gaining her MSc in Public Health,<br />
Denise has been involved in a variety of research and evaluation projects, including a collaboration<br />
with Plymouth and Exeter Universities as a visiting lecturer for the Specialist Community Public<br />
Health Nurse Courses, and Southwest Public Health Trainee programme.<br />
Alongside her working life she has also been Mayor and Chair of the local Town Council. Denise is<br />
happily married to Andy whom she met over the bonnet of a rally car which continued to fuel a<br />
lifelong love of motorsport!<br />
Richard Andrews<br />
DAY 2<br />
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Stage 2 Throat <strong>Cancer</strong> Survivor<br />
and Total Laryngectomee<br />
Having suffered with a sore throat and squeaky voice for 6 months, Richard diagnosed with<br />
stage 2 throat cancer in August 2018 and was prescribed 30 radiotherapy sessions. Following<br />
radiotherapy he began to exercise in order to help with recovery – he entered and completed a<br />
Duathlon and a 10k race, but unfortunately began getting breathless and suffering severe earache.<br />
In the June Richard was re-diagnosed and told a total laryngectomy with a radical neck dissection<br />
was required.<br />
Post surgery Richard began to run and cycle to get fit and assist with his recovery and three<br />
months after the operation he ran the Cardiff half marathon, followed by a 50k ultra 3 months<br />
later. Then came Covid, and he started getting interested in bigger challenges 100k ultra and<br />
Duathlons.<br />
He then heard about the special snorkel provided by Clare at the The Royal Devon which peaked<br />
his interest in becoming the first Laryngectomee to complete a triathlon(swim 400mtrs; cycle 12<br />
miles; run 5km) and half Ironman( swim 1.2 miles; cycle 50 miles and run 13 miles). Richard has now<br />
completed 3 triathlons and a half Ironman ( although he didn’t quite finish due to hypothermia).<br />
Dr Paul Hankinson<br />
MSc; BSc (Hons); PGCert<br />
Academic clinical fellow in oral and maxillofacial<br />
pathology<br />
I am an academic clinical fellow in oral and maxillofacial pathology with research interests in<br />
discovering saliva tests for head and neck cancers and precancers.<br />
DAY 2<br />
I graduated from the University of Sheffield in 2017 before working in a general dental practice for<br />
one year followed by two years in an oral and maxillofacial (head and neck) surgery team. During<br />
that time, I assisted in theatre and managed patients with head and neck cancers on the ward<br />
and in clinics after discharge.<br />
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I am now in training in pathology, the specialists who look at patients tissue (for example from a<br />
biopsy) to diagnose head and neck diseases. I lead a clinical study recruiting patients to see if we<br />
can develop a saliva-based test for head and neck cancers and pre-cancers. As well as my clinical<br />
and research roles I teach dental students, postgraduate dental/medical trainees and general<br />
dentists about head and neck cancer.<br />
22 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
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HEALTH PROFESSIONALS<br />
Request your <strong>2023</strong><br />
certificate of attendance<br />
Prevent and Treat<br />
Oral Mucositis<br />
Over 90% of head and neck cancer patients treated with<br />
both chemo and radiotherapy develop oral mucositis. 1<br />
Photobiomodulation reduces incidence, severity, and<br />
duration of oral mucositis. Treatment is quick, easy, well<br />
tolerated by patients, and has no known side effects.<br />
Come talk to us<br />
1<br />
Pulito, C., Cristaudo, A., Porta, C.L. et al. Oral mucositis: the hidden side of cancer therapy. J Exp<br />
Clin <strong>Cancer</strong> Res 39, 210 (2020). https://doi.org/10.1186/s13046-020-01715-7<br />
CERTIFICATE<br />
CERTIFICATE OF EDUCATION<br />
for the <strong>2023</strong><br />
International <strong>Head</strong> &<br />
<strong>Neck</strong> <strong>Cancer</strong> <strong>Conference</strong><br />
GRAND HOTEL, TORQUAY // UNITED KINGDOM<br />
8TH & 9TH NOVEMBER <strong>2023</strong><br />
Thank you for attending<br />
8th & 9th November <strong>2023</strong><br />
World <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong><br />
Patient Ambassador<br />
HEADLINE SPONSORS<br />
Email: sharon@ccconsultant.co.uk<br />
24 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
Paul Burns | paul.burns@thormedical.com | 07974 631 335<br />
#HNCCONF<strong>2023</strong> 25
‘Paul, I have to admit,<br />
I’m impressed...’<br />
Now, let me be upfront about this – nobody has<br />
ever said these words to me before. Picture any<br />
scenario you wish to (go on, picture it), and I can<br />
assure you that these words have never been<br />
uttered in my direction in my 42 years.<br />
How then, did we get here?<br />
I suppose in some sense I have to rewind almost<br />
13 years, to the first time I met The King of the<br />
Dad Joke, the man who has brought us all here<br />
today, esteemed Chair of The Swallows, Chris<br />
Curtis. Because it was upon meeting Chris that<br />
my life changed. At the time I was working with<br />
a wound dressing that, to this day, I will gladly<br />
bore on about at length. Some of you might<br />
know it – it’s pink, it’s foamy, it’s amazing. A new<br />
window of opportunity had opened with this<br />
dressing thanks to some work that had been<br />
done by a team of clinicians in Leeds, whereby it<br />
had become apparent that patients undergoing<br />
radiotherapy who were at risk of radiation<br />
dermatitis (radiotherapy burns, to you and me)<br />
could benefit enormously from having these<br />
dressings applied. Enter into the scene, Chris<br />
Curtis, stage left.<br />
Chris was not the first head and neck cancer<br />
patient I had met. In 2004, my grandad on my<br />
dad’s side, (another person who had the most<br />
profound of impacts on my life thanks to his<br />
Bootle upbringing and his rampant romancing<br />
of Ian St. John) passed away from throat cancer.<br />
I was asked to speak at his funeral (and I bottled<br />
it by the way, there was no way I was going to<br />
be able to keep it together, and trust me, as a<br />
man who has cried during all of the best man<br />
speeches he has given, it was for the best).<br />
So I had been touched by this insidious disease<br />
and meeting Chris on that day in Preston back<br />
in 2011 gave me the opportunity to start to learn<br />
so much more about it, and to stop looking<br />
at windows of opportunity for the company I<br />
was working for, but for the patients we were<br />
ultimately here to serve.<br />
Fast forward ten years and the Covid 19<br />
pandemic (remember that??) had brought<br />
me to a crossroads. And Chris told me about<br />
something. And my reaction to that something<br />
was:<br />
‘Hogwash. What kind of black-magic mumbo<br />
jumbo are you talking about? What witchcraft,<br />
what sorcery is this?’<br />
How, I thought, could shining a light on<br />
something (and I mean that quite literally – the<br />
simple shining of a light) possibly have the<br />
profound effect on the life of a patient that was<br />
being described?<br />
Turns out that in 2018, NICE (The National<br />
Institute for Health & Care Excellence) had<br />
issued what’s known as an Interventional<br />
Procedure Overview which examined a therapy<br />
called Photobiomodulation (PBM) in the<br />
prevention and treatment of radiotherapy and<br />
chemotherapy induced oral mucositis, and Chris<br />
had got very excited about this. You see, Chris<br />
didn’t need telling what oral mucositis was, it<br />
was one of the many t-shirts he had been there<br />
and worn as a cancer patient. If you’re reading<br />
this, you don’t need telling what oral mucositis<br />
is either, and nor do you need telling about the<br />
debilitating effect it can have on the life of a<br />
patient.<br />
My interest suitably piqued, I dived into the<br />
evidence and the history of this, on the face of it,<br />
somewhat peculiar therapy.<br />
I have to admit, I was impressed.<br />
Laser bio-stimulation was discovered by Endre<br />
Mester in 1967, though lasers, as it turned out,<br />
would be a problem with regards delivering<br />
PBM to the people who needed it here in the<br />
United Kingdom. Prior to my joining THOR, a<br />
trial had been run in the National Health Service<br />
which was named LiTEFORM, and it had proved<br />
that delivering PBM in order to prevent oral<br />
mucositis by using lasers was a cumbersome,<br />
time consuming, uncomfortable, and laborious<br />
process.<br />
Back to the drawing board? In a sense, yes. What<br />
was needed was a mechanism of delivering<br />
intra-oral light using LEDs, to remove the<br />
associated problems of the laser light that had<br />
been established by LiTEFORM. And THOR had it.<br />
They had it in the form of a lollipop. And as we’ve<br />
discussed, Chris was very excited about it.<br />
On the face of it, when I was brought into the<br />
company my task was simple. Here was an easy<br />
to deliver (I have a video I can show you of an<br />
infant treating themselves), a quick to deliver<br />
(it takes five minutes), safe to deliver (there are<br />
no more lasers), NICE assessed (see above), and<br />
remarkably cost effective solution to a problem<br />
that causes untold pain and suffering to millions<br />
of incredibly unfortunate people (Chris once<br />
described getting a cancer of the head or neck to<br />
me as, ‘The lottery you don’t want to win’).<br />
Those of us who have worked in, and for, and<br />
with the NHS know that these things are never<br />
quite that simple, and yet for all the immediate<br />
obstacles that presented themselves, I carried<br />
Chris and the hundreds of patients I have met<br />
whilst being an advocate for The Swallows<br />
these last 12 years with me, both literally and<br />
figuratively, keeping in mind that whatever it<br />
was I was doing, I was doing it to make sure that<br />
the people who needed this therapy could get<br />
this therapy.<br />
In those heady 2021 days, ‘the people who<br />
needed this therapy’, were the patients who<br />
would in all likelihood be suffering from oral<br />
mucositis as a result of their treatment for their<br />
cancer. Time (and an awful lot of work!) has<br />
shown that we are finally starting to make a<br />
difference to patients’ lives, as the NHS slowly<br />
starts to adopt PBM and introduce it to their<br />
patients, and it gives me the most enormous<br />
thrill that you’ll get to hear more about this<br />
from Alex Langstaff (a Royal College of Nursing<br />
awards finalist no less!) from The Christie at this<br />
conference, as well as hearing all about how<br />
her colleague Angela Hayes gave me a ‘Eureka!’<br />
moment in her office. Lucky me, having my life<br />
changed yet again.<br />
Remember how I mentioned windows of<br />
opportunity earlier? Well, there was another<br />
clinician whom I knew from my frothy pink dressing<br />
days, and having looked at the body of evidence<br />
supporting the use of PBM in areas beyond oral<br />
mucositis, she decided that she was going to have a<br />
little look at it in her Late Effects clinic.<br />
And she had to admit, she was impressed.<br />
For those of you who don’t know Emma, she<br />
is Macmillan Consultant Radiographer in<br />
Post Treatment & Late Effects at Nottingham<br />
University Hospitals, and without wishing to<br />
sound too grandiose about this, she has changed<br />
your author’s life, just like Chris, Alex & Angela<br />
before her, because without Emma, it wouldn’t<br />
have become my privilege to become so<br />
intwined around one of Chris’s oldest adages<br />
– ‘Survivorship is not survivorship without<br />
quality of life’.<br />
The lives that matter are those that<br />
belong to the patients. Let’s sit together<br />
for a moment, and have a look at the kind<br />
of difference Emma has made to those lives,<br />
straight from the mouth of one:<br />
I cannot put in words how grateful I am to the<br />
team for the CARE I have been shown. It has<br />
literally saved my life. Previously I was existing<br />
in spite of how I had been left post treatment<br />
and felt terribly isolated. I had felt grateful to be<br />
alive but wasn’t actually doing anything with<br />
my life. I felt I couldn’t complain. Emma has<br />
encouraged me to enquire and not feel bad<br />
about doing so. She is always so honest in the<br />
most compassionate of ways and it’s clear the<br />
team work closely together and with a shared<br />
ethos. I feel I am only just beginning to recognise<br />
what I’ve been through and getting some<br />
control back in my life. This is all because of the<br />
incredible support I’ve had from Emma and the<br />
team. Her passion for what she does is obvious<br />
and infectious. I was fortunate enough to have<br />
experienced the red light therapy and could tell<br />
within a couple of sessions it was helping. I feel<br />
extremely grateful.<br />
The ’red light therapy’ in question is the<br />
aforementioned black-magic mumbo jumbo,<br />
and I can also show you something that a<br />
Christie patient gave to Alex as a thank you that<br />
will make your heart melt. If you fancy coming to<br />
have a chat about the impact it can have upon<br />
the quality of a patient’s life then please do come<br />
and speak to me on our stand.<br />
You never know, you might be impressed.<br />
Paul | UK Oncology Manager<br />
26 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 27
Why caring for<br />
a dry mouth<br />
is important<br />
for oral cancer<br />
patients<br />
Radiotherapy or chemotherapy<br />
treatments to the head and neck can<br />
often affect the salivary glands, which<br />
may result in your mouth becoming dry.<br />
After treatment you might find your dry<br />
mouth disappears as the salivary glands<br />
recover, but your saliva might be thicker and stickier than before.<br />
For some patients dry mouth becomes a permanent problem.<br />
Why is saliva important?<br />
Saliva plays an important role in both keeping your mouth moist<br />
and comfortable, as well as keeping the mouth healthy.<br />
Whilst saliva is 99% water, the remaining 1% [which includes<br />
proteins, enzymes and immunoglobulins] is responsible for<br />
numerous functions, such as talking, eating and digesting food,<br />
which we often take for granted.<br />
Saliva helps wash away food debris, restore the natural pH of<br />
the mouth to protect dental hard tissues [such as enamel] and<br />
protect against tooth decay.<br />
A lack of saliva<br />
A lack of saliva, or change in its texture, might make chewing<br />
and swallowing food, or even talking more difficult. It can also<br />
increase the risk of dental problems, such as tooth decay and<br />
gum disease.<br />
So it’s vital to maintain your oral hygiene to minimise the risk<br />
of oral disease especially for those that may be nil by mouth or<br />
PEG fed. Regular dental visits, as well as brushing your teeth<br />
twice a day with an appropriate fluoride toothpaste is important.<br />
Ask your dentist or hygienist for advice on toothpastes as some<br />
contain foaming agents [commonly sodium lauryl sulphate –<br />
SLS], which can dry your mouth further.<br />
Managing a dry mouth<br />
You might also find artificial saliva products, such as Oralieve Moisturising Mouth<br />
Spray or Gel, can help moisten your mouth and throat, making speaking, eating and<br />
swallowing more comfortable.<br />
The Oralieve range of products is specially designed for people suffering from dry or<br />
sensitive mouths to help provide relief throughout the day and night. Formulated<br />
with bioactive ingredients and enzymes which help supplement the natural systems<br />
in saliva, Oralieve works to restore the natural balance of the mouth, whilst providing<br />
effective relief.<br />
Some products can be prescribed, such as Oralieve Mouth Spray and Gel, or can be<br />
purchased from pharmacies or online.<br />
Day or night, Oralieve has you covered<br />
If you are experiencing difficulty in swallowing food, why not try applying Oralieve<br />
Moisturising Mouth Gel. Simply take a pea-sized<br />
amount of the gel and massage into the cheeks,<br />
tongue and gums 20 minutes before eating.<br />
When you are out and about Oralieve<br />
Moisturising Mouth Spray is a simple and<br />
discreet option for use during the day. Simply<br />
spray into the cheeks to instantly refresh your<br />
mouth and provide effective relief from a dry<br />
mouth.<br />
Night-time can be a real challenge for dry<br />
mouth sufferers as the mouth naturally<br />
produces less saliva. Sipping water can often<br />
lead to interrupted sleep and increased visits to<br />
the toilet.<br />
Applying Oralieve Moisturising Mouth Gel 20<br />
minutes before bed, and supplementing with<br />
Oralieve Moisturising Mouth Spray can help<br />
keep your mouth feeling moist and comfortable,<br />
aiding restful sleep.<br />
Find out what works best for you<br />
Every mouth is different, so it is important to try<br />
different types of artificial saliva product to find<br />
out which work best for you.<br />
Ask your dental professional for advice as they<br />
may be able to give you samples to try. For<br />
samples of Oralieve products visit www.oralieve.<br />
co.uk or email hello@oralieve.co.uk.<br />
To find out more visit www.oralieve.co.uk<br />
28 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 29
Oral Mucositis<br />
An acute inflammatory and ulcerative<br />
complication of the mucosal membrane that<br />
commonly occurs during cancer therapy.<br />
The primary symptom of OM is intense<br />
pain, which is usually associated with<br />
ulcers in the mouth. It can also make it hard<br />
to talk, eat and swallow (Dysphagia).<br />
The inflammation in OM can range from erythema to<br />
severe ulceration and is typically associated with pain and<br />
discomfort. OM can cause profound psychological distress<br />
and impairment of quality of life for cancer patients, due to<br />
the pain and inability to eat solid foods. This can lead to the<br />
use of nasogastric tube placement or total parenteral nutrition<br />
use. OM is one of the more significant side-effects of cancer<br />
treatment and can result from systemic chemotherapy,<br />
radiation therapy, or a combination of the two.<br />
Prevalence of OM:<br />
It’s estimated that 40% of people receiving<br />
chemotherapy will develop some degree of<br />
mucositis.<br />
Up to 97% of people who have radiotherapy<br />
for head and neck cancer will develop some<br />
form of mucositis, which can include OM.<br />
Up to 90% of paediatric oncology patients<br />
may suffer from cancer treatment-induced<br />
oral complications.<br />
The oral mucosa is made up of epithelial cells that<br />
regenerate every 7-14 days, making them easily damaged<br />
by chemotherapy and radiation therapy. When unable to<br />
regenerate properly, the oral mucosa becomes thinner and<br />
ulceration can occur, allowing bacteria and other microbes<br />
entry into the body. Chemotherapy-induced OM is regarded<br />
as an acute condition, with ulceration normally occurring 1-2<br />
weeks after first treatment, and resolving within 3 weeks of<br />
treatment.<br />
Radiotherapy-induced OM normally occurs around 2 weeks<br />
into a 7-week treatment cycle, and resolves 3-4 weeks after<br />
treatment has ended. <strong>Cancer</strong> therapy induced-OM can have<br />
a significant economic impact due to increased healthcare<br />
costs such as hospitalisation and anti-infective treatment.<br />
Signs and symptoms of OM include:<br />
• Red, shiny, or swollen mouth and gums<br />
• Blood in the mouth<br />
• Sores in the mouth or on the gums or tongue<br />
• Soreness or pain in the mouth or throat<br />
• Difficulty swallowing or talking<br />
• Feeling of dryness, mild burning, or pain when eating<br />
• Soft, whitish patches or pus, in the mouth/tongue<br />
• Increased mucus production or thicker saliva in<br />
the mouth<br />
SUPPORT<br />
BOXES<br />
Thanks to the Friends of the Swallows we are<br />
sending Support Boxes to <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong> Patients<br />
to help them with the side effects of treatment<br />
To order your box please email<br />
info@theswallows.org.uk<br />
with your full name, address,<br />
telephone number and hospital details<br />
AVERAGE POSTAL<br />
COST PER BOX<br />
£10<br />
PLEASE HELP BY DONATING<br />
For people undergoing radiotherapy and chemotherapy<br />
SCAN THE QR CODE WITH YOUR PHONE CAMERA<br />
Factors that increase the likelihood of developing OM<br />
Patients with compromised oral mucous membranes<br />
secondary to alcoholism and/or excessive smoking exhibit<br />
the most severe mucosal lesions.<br />
• Low body mass index<br />
• Previous cancer treatment<br />
• Impaired immune status (e.g. diabetes, HIV/AIDS)<br />
Furthermore, there are additional factors that can make it<br />
worse if it does occur, include:<br />
• Poor oral hygiene and pre-existing mouth damage<br />
• Smoking or chewing tobacco and drinking alcohol<br />
• Gender (females appear to be more likely than<br />
males to develop OM)<br />
• Dehydration<br />
Younger patients tend to be more likely to develop OM<br />
than older patients. This appears to be due to the more<br />
rapid rate of basal cell turnover noted in children.<br />
Further information on Oral Mucositis is available<br />
through The Swallows. Our brochure on Mucosamin at<br />
the back of this book also contains some tips for dealing<br />
with Oral Mucositis.<br />
10104611274 v1 Aug 21<br />
Treating the painful symptoms of oral<br />
mucositis, helping to protect lesions<br />
and promote healing.<br />
For the management of radiotherapy<br />
and chemotherapy skin lesions<br />
supporting the reduction of skin<br />
inflammation and associated pain.<br />
Sponsored by<br />
For more information please visit our stand on 8-9th November or email jalosome@mediuk.co.uk<br />
30 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
jalosome@mediuk.co.uk<br />
medi. I feel better.
Liquid biopsies – can they help us improve head<br />
and neck cancer care? You can help us.<br />
By Ben O’Leary, The Institute of <strong>Cancer</strong> Research and The Royal<br />
Marsden Hospital, London, UK | ben.oleary@icr.ac.uk<br />
One question we get asked a lot in the head and neck oncology clinic after patients<br />
complete their radiotherapy is ‘how do we know if it’s going to come back’? It’s one of<br />
the most important questions for people who have been through radiotherapy, but the<br />
honest answer is that for any given individual we don’t know. It’s because we don’t know<br />
that we see people so regularly even after they have completed their treatment, aiming to<br />
catch any cancer recurrences as quickly as we can.<br />
Those of us who work in<br />
cancer research are trying<br />
to find more accurate and<br />
effective ways of detecting<br />
cancer recurrence. One<br />
promising technology has<br />
been called ‘liquid biopsy’.<br />
All of use have some of our<br />
DNA floating in our blood,<br />
which can we detected when<br />
a blood sample is taken. A<br />
relatively recent discovery is<br />
that in people with cancer, a<br />
small proportion of the DNA<br />
in the blood can be found to<br />
have originated form the<br />
person’s cancer.<br />
Liquid biopsies – Using blood tests to detect cancer.<br />
Created with biorender.com<br />
This means that it might be possible to develop a blood test designed to detect cancer<br />
recurrence. The available evidence suggests that this could indeed be possible, although<br />
at present difficult and expensive to do. We could potentially use a test like this to help<br />
improve cancer detection in people who we have treated with radiotherapy.<br />
Even though it is possible to develop liquid biopsy tests like this, what is not clear currently<br />
is whether they are useful and provide benefit for patients. Detecting cancer recurrences<br />
early could allow earlier treatment, which might improve how people feel or how long<br />
they live. However, we don’t know this is the case, and it may be that such a test just<br />
introduces additional burdens for patients in terms of inconvenience and anxiety, without<br />
helping them feel better or live longer. It often feels logical that more medical testing<br />
should produce better results for patients, but research has shown this is often not the<br />
case. Given the expense and the complexity of these liquid biopsies, it is important to<br />
properly understand if they can really help people before we start using them routinely.<br />
The Swallows charity, working with colleagues in Edinburgh, has previously sent round a<br />
survey asking people how they feel about some of these issues. Broadly, people liked the<br />
idea of such a test, but felt it was important that the test be done with some treatment<br />
in mind – not just to find out about recurrence, but to find out and then do something<br />
about it.<br />
We are now developing a clinical trial to see if using liquid biopsies can improve treatment<br />
for people with head and neck cancer. We want to take blood tests for liquid biopsies<br />
32 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
from people after they have finished their radiotherapy for head and neck cancer and<br />
test them for cancer recurrence, giving them treatment based on the result, rather than<br />
waiting for the patient or their doctors to notice the cancer coming back.<br />
An important part of clinical trials is comparison. If you want to try something new you<br />
need to compare it to what you would have done normally to see if it is better. Without a<br />
proper comparison you will never really know. The best way to get a fair comparison is to<br />
randomly decide whether people get the usual treatment or the trial treatment – doctors<br />
or patients can’t choose.<br />
For our trial, this means randomly deciding whether patients and their doctors get the<br />
liquid biopsy tests, or whether they don’t. At the end of the trial, we will see whether people<br />
who, along with their doctors, were given the liquid biopsy information felt better and lived<br />
longer, or whether they were just more inconvenienced and anxious, without living longer.<br />
Communicating these ideas, along with the possible risks and benefits is hard to do well,<br />
but so important to connect with people for whom this really matters – patients with head<br />
and neck cancer and their families, friends, and carers. We would like your help so we can<br />
do this better.<br />
We work with an expert group of patients who we ask to help us with our research plans. They<br />
flagged the following issues as important which I have tried to explain a bit about already:<br />
1. Explaining why it was necessary to randomly decide whether a patient and their<br />
team was informed or not of the liquid biopsy results.<br />
2. Being clear that the trial would mean extra tests, which could be more<br />
inconvenient and lead to worry about results.<br />
3. If the trial showed the liquid biopsy test made a difference, being able to share<br />
results with the people who had been randomly allocated the usual treatment.<br />
We believe it is really important to get as many views on this trial as possible and we would<br />
be very grateful for your help with this. It is harder than ever to get research funding for<br />
clinical trials, and showing that a trial is supported by patients can make a real difference.<br />
If you have any views on this trial, supportive or not, we would very much like to hear from<br />
you, even if just to say you are supportive, or would be interested in hearing more. You can<br />
email me on ben.oleary@icr.ac.uk.<br />
Clinical trial design – People in the trial all have blood tests after they complete<br />
their radiotherapy for head and neck cancer. Half of patients have their blood tests<br />
analysed for cancer DNA and the patients and their doctors are told the results –<br />
this is decided randomly. The other half have follow up as normal with their blood<br />
tests only analysed when the trial finishes. Created with biorender.com.<br />
#HNCCONF<strong>2023</strong> 33<br />
>
<strong>Head</strong> and <strong>Neck</strong><br />
<strong>Cancer</strong> charities<br />
come together to create one<br />
voice in the fight against <strong>Head</strong><br />
& <strong>Neck</strong> <strong>Cancer</strong> in the UK.<br />
The coalition will ensure that there is a more cohesive and<br />
collaborative approach by members to; Patient Support, Research,<br />
Education and Policy Advocacy for <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong> in the UK.<br />
The coalition aims are to include <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong> charities,<br />
clinicians, surgeons, other members of the <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong><br />
multi- disciplinary teams, and key industry partners.<br />
12k<br />
people will be<br />
diagnosed with<br />
<strong>Head</strong> & <strong>Neck</strong><br />
<strong>Cancer</strong> every year<br />
Symptoms<br />
<strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong><br />
Make sure you know the dangers<br />
theHPV Virus<br />
is linked to some<br />
<strong>Head</strong> & <strong>Neck</strong><br />
<strong>Cancer</strong>s<br />
Sinuses and<br />
nasal cavity<br />
Earache<br />
Lips, tongue<br />
and mouth<br />
Salivary glands<br />
Throat<br />
Chris Curtis<br />
CEO, The Swallows H&N <strong>Cancer</strong> Charity<br />
e: chris@theswallows.org.uk<br />
Coalition Members<br />
www.theswallows.org.uk<br />
Initial Co-Leaders<br />
Tamara Kahn<br />
CEO, Oracle <strong>Cancer</strong> Trust<br />
e: tamara@oraclecancertrust.org<br />
www.oraclecancertrust.org<br />
• Sore in the mouth<br />
that won’t heal<br />
• Sore throat<br />
• Lumps or patches in<br />
your mouth<br />
• Trouble swallowing<br />
• Changes in voice<br />
• Lump in neck<br />
• Prolonged earache<br />
4%<br />
<strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong>s account<br />
for around 4% of all UK <strong>Cancer</strong>s<br />
Smokers are<br />
15x<br />
more likely to develop<br />
<strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong><br />
than non-smokers<br />
Voice box and<br />
thyroid gland<br />
Reduce<br />
your risk...<br />
75% of <strong>Head</strong> & <strong>Neck</strong><br />
<strong>Cancer</strong>s are caused<br />
by alcohol & tobacco<br />
#HNCCONF<strong>2023</strong> 35
Meet the future artists<br />
honing their skills...<br />
Tucked away in beautiful Devon, England lies the creative hub of University Centre South<br />
Devon (UCSD). As part of South Devon College, UCSD upholds rigorous academic standards<br />
while fostering an environment, where students can thrive and develop their unique creative<br />
talents. This institution prides itself on offering a diverse range of arts programmes that equip<br />
graduates with the skills to excel in their chosen creative fields.<br />
This November, UCSD is thrilled to showcase its students'<br />
talents at the International <strong>Head</strong> and <strong>Neck</strong> <strong>Cancer</strong><br />
<strong>Conference</strong> <strong>2023</strong> at the Grand Hotel in Torquay.<br />
Contemporary Arts students will exhibit paintings and mixed media work<br />
reflecting on their process of artistically interpreting patients' experiences.<br />
Illustration students will use the conference as inspiration for powerful live figure<br />
drawing and portraiture. Media Production students will document the events<br />
through video, interviews and photography. By contributing their creativity to this<br />
international conference, UCSD's arts students will spread awareness and hope to<br />
attendees from around the globe.<br />
Within the halls of UCSD, one will find future artists honing their skills in the Fine Art studios,<br />
illustrators carefully etching in the printmaking rooms, and actors bringing stories to life. The<br />
university’s state-of-the-art facilities, including photography darkrooms, MAC suites, and dance<br />
studios, enable students to learn specialised techniques and put theory into practice.<br />
The renowned FdA Contemporary Arts Practice course allows artists to explore everything<br />
from illustration to graphic design, sculpture to textiles, as they shape their own creative<br />
identities. Through access to expert faculty, exhibition opportunities, and hands-on workshops,<br />
students gain real-world skills to turn their artistic passions into professions after graduation.<br />
Beeke<br />
Gundermann<br />
Samuel<br />
Buscombe<br />
Lily<br />
Osborne<br />
Ela<br />
Seiflow<br />
UCSD takes immense pride in seeing its<br />
graduates succeed as professional artists,<br />
performers, writers, and content creators.<br />
The university is dedicated to nurturing<br />
creative talent, sparking imaginative<br />
thinking, and preparing students<br />
for careers doing what they<br />
love. With guidance from<br />
passionate faculty and<br />
access to world-class<br />
facilities, UCSD empowers<br />
its students to push artistic<br />
boundaries and shape<br />
the creative landscape of<br />
tomorrow.<br />
Jacob<br />
Moan<br />
Sam<br />
Gilbert<br />
Mei<br />
Wilcock<br />
Marie<br />
Mustard<br />
Jessica<br />
Jones<br />
Susan Norton<br />
Turner<br />
Bradley<br />
Ellis<br />
Siobhan<br />
Price<br />
Kerry<br />
Green<br />
36 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 37
Not all<br />
disabilities<br />
are visible<br />
Tackling Inequalities<br />
in <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong><br />
>>> Educational<br />
Awareness<br />
>>> Mission Statement<br />
“To ensure everyone, whatever their ethnicity is aware<br />
of <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong>, the signs to look for, how and<br />
where to seek diagnoses and where to go for support<br />
and help. Creating awareness for early diagnosis in all<br />
societies could save lives and go a long way in helping<br />
the NHS reach point 4 of the Core20Plus5 target of 75%<br />
of <strong>Cancer</strong> cases diagnosed at stage 1 or 2 by 2028.”<br />
Can YOU spot the cancer patient?<br />
It’s not always possible to see the emotional or physical<br />
affects of cancer on patients, families and caregivers.<br />
Everyone’s cancer journey is different.<br />
‘Survivorship is not Survivorship<br />
without Quality of Life.’<br />
We offer support for <strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong> patients and their caregivers:<br />
24/7 Patient and Caregiver support line service: 07504 725 059<br />
e: info@theswallows.org.uk | theswallows.org.uk | Blackpool & Fylde, Blackburn & Darwen<br />
www.theswallows.org.uk<br />
theswallowscancersupport<br />
@swallowsgroup
EVERY DONATION<br />
MAKES AN IMPACT<br />
Leaving a gift in your will to support The Swallows <strong>Head</strong> &<br />
<strong>Neck</strong> <strong>Cancer</strong> Support Charity will help us to support cancer<br />
patients, caregivers, family and friends into the future.<br />
When you are told you have cancer it is devastating and<br />
support is needed from like-minded people who understand<br />
what you are going through, so leaving a gift helps us to<br />
continue our important work.<br />
HELP TOMORROW'S<br />
HEAD & NECK CANCER PATIENTS<br />
PLEDGE A GIFT<br />
IN YOUR WILL<br />
TO THE SWALLOWS CHARITY<br />
PLEASE CALL OR EMAIL FOR MORE INFORMATION<br />
www.theswallows.org.uk<br />
01253 428 940 | info@theswallows.org.uk<br />
How does it work?<br />
It is a very simple and easy process. All you need to do is<br />
decide on your gift amount and add the following words in<br />
your will:<br />
I give to THE SWALLOWS HEAD & NECK CANCER SUPPORT<br />
CHARITY of Lancaster House, Amy Johnson Way, Blackpool,<br />
Lancashire, FY4 2RP - registered charity number 1149794<br />
the sum of [specify words and figures] free of tax for it’s<br />
general charitable purposes and I declare that the receipt of<br />
the Legacy Administration Manager or other proper officer at<br />
The Swallows Charity for the time being shall be a sufficient<br />
discharge to my executor(s).<br />
Thank you<br />
40<br />
Registered charity number: HEAD 1149794 & | NECK 68-70 Waterloo CANCER Road, CONFERENCE South Shore, Blackpool, 2022 SUNDERLAND<br />
FY41SP<br />
#HNCCONF<strong>2023</strong> 41
The mission of the <strong>Head</strong> and <strong>Neck</strong> <strong>Cancer</strong> Alliance<br />
is to advance prevention, detection, treatment<br />
and rehabilitation of oral, head and neck cancer<br />
through public awareness, research, advocacy<br />
and survivorship.<br />
Programs include peer-to-peer support,<br />
educational webinars, Survivorship Symposium,<br />
transportation assistance, Awareness Month, the<br />
Move-a-Thon, and more.<br />
For more information, please contact<br />
info@headandneck.org<br />
#HNCCONF<strong>2023</strong><br />
DON’T<br />
MISS<br />
Relieve the symptoms of<br />
dry mouth with Oralieve<br />
Radiotherapy or chemotherapy to the head and neck can<br />
damage the salivary glands, causing a dry mouth. Salivary<br />
glands may gradually recover but it can take 6 months or<br />
even longer to start noticing an improvement.<br />
Oralieve’s unique combination of bioactive ingredients and<br />
enzymes supplement natural saliva, helping to bring you relief<br />
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Patient &<br />
Caregiver<br />
Mobile App<br />
For Patients,<br />
Caregivers & Health<br />
Professionals<br />
SEARCH FOR<br />
‘THE SWALLOWS’<br />
Follow the instructions to set up<br />
>>PATIENTS: Select your hospital<br />
>> HEALTH PROFESSIONALS:<br />
Register as yourself as a Health Professional,<br />
do not select a hospital<br />
<strong>Conference</strong><br />
Community Platform<br />
Scan the QR code and register to<br />
join in during the conference<br />
Or you can access the platform<br />
via the Mobile App<br />
Specially designed and tested with dry mouth sufferers<br />
to replicate the same natural enzyme system as saliva<br />
Formulated with gentle flavours, no alcohol and no SLS<br />
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Live polls Latest news Meet other delegates<br />
Forum<br />
Meet the sponsors<br />
Visit the Oralieve stand<br />
for more information<br />
To view the full Oralieve range, visit<br />
www.oralieve.co.uk or scan the QR code.<br />
For more information,<br />
please email hello@oralieve.co.uk<br />
LIVE FROM TORQUAY<br />
Wednesday 8th & Thursday 9th November <strong>2023</strong><br />
#HNCCONF<strong>2023</strong>
A MOUTH CANCER<br />
SELF EXAM IS EASY...<br />
3 TONGUE<br />
1 LIPS<br />
Pull down your lips and<br />
look inside for any sores or<br />
change in colour. Use your<br />
thumb and forefIngers to<br />
check for any lumps, bumps<br />
or changes in texture.<br />
2 CHEEKS<br />
Pull out your cheek<br />
to look on the inside.<br />
Look for any red or<br />
white patches. Use your<br />
thumb and forefInger<br />
to squeeze and roll<br />
the cheek to check<br />
for ulcers, lumps or<br />
tenderness. Repeat on<br />
the other cheek.<br />
Stick your tongue out and look at the<br />
surface for any changes in colour and<br />
texture. Gently pull out your tongue and<br />
look at one side FIRST, AND THEN THE OTHER.<br />
Look for any swelling, ulcer or change<br />
in colour. Examine the underside of your<br />
tongue by lifting the tip of your tongue to<br />
the roof of your mouth.<br />
4 ROOF<br />
OF MOUTH<br />
Tilt back your head and open<br />
your mouth wide to check the<br />
roof of your mouth. Look to see<br />
if there are changes in colour<br />
or ulcers. Check for changes in<br />
texture with your fINGER.<br />
5 FLOOR<br />
OF MOUTH<br />
LOOK AT THE FLOOR OF YOUR MOUTH FOR ANY<br />
COLOUR CHANGES THAT ARE UNUSUAL. GENTLY<br />
PRESS YOUR FINGER ALONG THE FLOOR OF YOUR<br />
MOUTH AND UNDERSIDE YOUR TONGUE TO FEEL<br />
FOR ANY LUMPS, SWELLINGS OR ULCERS.<br />
If you have any concerns,<br />
go to your dentist or<br />
doctor to see if you need<br />
SPECIALIST advice<br />
This illustration is derived from<br />
Let’s Talk About Mouth <strong>Cancer</strong> (SC045100)<br />
Scottish Charitable Incorporated Organisation
Thank you to all our friends<br />
for your ongoing support<br />
FRIENDS OF<br />
THE SWALLOWS<br />
46 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 47
Caregivers<br />
Go through more than they will tell you.<br />
They give up a lot and rarely have a social life.<br />
They can become sick and emotionally worn out.<br />
It's a lot for one person.<br />
We never really know until we walk in<br />
the path of a caregiver ourself.<br />
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24/7 patient and caregiver support line service:<br />
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www.theswallows.org.uk<br />
48 theswallowscancersupport HEAD & NECK @swallowsgroup<br />
CANCER CONFERENCE <strong>2023</strong><br />
2. Censabella S, Claes S, Orlandini M et al (2017) Efficacy of a hydroactive colloid gel versus historical<br />
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#HNCCONF<strong>2023</strong> 49
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50 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
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#HNCCONF<strong>2023</strong> 51
Can you help? We are seeking volunteers who<br />
had radiotherapy for head and neck cancer while<br />
lying down<br />
The Study<br />
Sheffield Hallam University and Leo <strong>Cancer</strong> Care are<br />
seeking volunteers to participate in a research study<br />
that considers a novel radiotherapy system where<br />
patients are treated in an upright position on a special<br />
chair rather than lying flat on a couch.<br />
You are eligible to participate if you:<br />
ü Had radiotherapy for head and neck cancer<br />
ü Were treated lying flat on a couch<br />
ü Can raise and lower yourself into a seated position<br />
ü Have no major mobility issues<br />
Involvement will require around 20 minutes of your time at the Swallows<br />
conference, where you will:<br />
• Read a participant information sheet and sign a consent form (5 mins)<br />
• Experience sitting in the upright treatment chair for around 5 mins (you will<br />
not be asked to wear a radiotherapy mask)<br />
• Be given a questionnaire to complete at your leisure & return it to us (10 mins)<br />
We would really appreciate your help as we assess patient views on this new form of<br />
radiotherapy. As a small thank you, participants will receive a £15 One4All gift card,<br />
covering a wide range of shops and restaurants.<br />
There will also be an invitation to sign-up for a further online focus group exploring<br />
patient experiences of head and neck radiotherapy.<br />
If interested in taking part, please talk to the research team at your earliest<br />
convenience, we will be based on the exhibition stage at the Swallows conference.<br />
Or for further information, please email tracy.underwood@leocancercare.com<br />
52 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 53
HEAD & NECK<br />
CANCER<br />
Patient &<br />
Caregiver<br />
Mobile App<br />
HEALTH PROFESSIONAL<br />
DASHBOARD<br />
LINKED DIRECTLY TO THE SWALLOWS PATIENT MOBILE APP<br />
DESIGNED DIRECTLY FOR<br />
PATIENTS AND CAREGIVERS<br />
» Real Time Messaging<br />
» CREATE A personal record of<br />
YOUR symptoms<br />
» H&N CANCER Signposting<br />
» Community Forum<br />
» FAVOURITE Recipes<br />
» Related Articles<br />
» Suggested Tips<br />
PLUS, LINK DIRECTLY<br />
WITH YOUR CAREGIVER &<br />
Health professional team<br />
REMOVING BARRIERS TO CARE<br />
IN HEAD & NECK CANCER<br />
YOUR HEALTH PROFESSIONAL DASHBOARD GIVES YOU:<br />
» Live feedback from your registered patients<br />
» Priority callback list<br />
» Patient Symptom Severity breakdown<br />
» Patient ProFIle and reporting<br />
» Access to the Community Forum<br />
» Links to Friends of the Swallows<br />
SEARCH FOR THE SWALLOWS<br />
54 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
REGISTER YOUR INTEREST: info@theswallows.org.uk<br />
#HNCCONF<strong>2023</strong> 55
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Who is eligible?<br />
Who is not eligible?<br />
VERSATILE-002<br />
A PDS Biotechnology Trial in <strong>Head</strong> and <strong>Neck</strong><br />
Squamous Carcinoma <strong>Cancer</strong><br />
VERSATILE-002 is a clinical study for patients whose head and neck cancer has<br />
returned or spread. Patients who enroll in VERSATILE-002 will receive two drugs:<br />
PDS0101 and KEYTRUDA ® .<br />
KEYTRUDA ® is an approved drug for patients whose head and neck cancer has<br />
returned or spread. PDS0101 is an investigational medicine targeting human<br />
papillomavirus (HPV). PDS0101 has been shown to attack HPV-related cancer.<br />
VERSATILE-002 will study if combining PDS0101 with KEYTRUDA ® is more effective<br />
than using KEYTRUDA ® alone. In this study, all patients who choose to enroll will<br />
receive both drugs. There is no placebo.<br />
Many head and neck cancers are caused by HPV infection. Most HPV-related head<br />
and neck cancers are caused by HPV16. PDS0101 has been shown to stimulate high<br />
levels of HPV16-specific killer T-cells that target and kill head and neck cancers that<br />
are caused by HPV infection.<br />
Lauren V. Wood, MD.<br />
Chief Medical Director<br />
www.pdsbiotech.com<br />
You may be able to enroll in the VERSATILE-002<br />
study if you:<br />
• Are an adult who has HPV16 positive head &<br />
neck cancer that has come back or spread<br />
• Have recovered from complications from<br />
previous major surgeries or radiation therapy<br />
• Are in good overall health (determined by an<br />
exam and blood work)<br />
• The head and neck cancer tests positive for<br />
HPV and PD-L1<br />
Interested patients should talk to their doctor to see if they qualify.<br />
What will happen during the study?<br />
If you qualify for and decide to participate in the VERSATILE-002 study:<br />
You may be excluded from enrolling in<br />
the VERSATILE-002 study if you:<br />
• Are pregnant<br />
• Have active cancer that has spread<br />
to the brain<br />
• Have HIV infection<br />
• Developed complications from<br />
prior anti-cancer therapy<br />
• You will undergo screening tests<br />
• You will receive KEYTRUDA ® treatment every 3 weeks for up to 35 treatments (~2 years)<br />
• PDS0101 will be given in combination with KEYTRUDA ® during the first four cycles of treatment<br />
and again during cycle 12<br />
• Both medicines are given by injection<br />
• You will have blood work done before each treatment<br />
• You will have imaging studies every 9 weeks for the first year to evaluate the status of your<br />
cancer; after the first year, you will be checked every 12 weeks<br />
• You will receive treatment until either the cancer worsens, or you’ve received 35 treatments (the<br />
maximum number given in the study)<br />
An Introduction to PDS0101<br />
PDS Biotech has developed Versamune ® , a proprietary T-cell activating platform technology designed to<br />
train the immune system to target a specific type of cancer with minimal side effects and is delivered by a<br />
simple injection. All PDS Biotech products pair Versamune® with a target to attack specific cancers.<br />
PDS0101 targets cancers associated with the human papillomavirus (HPV). PDS0101 combines the utility<br />
of the Versamune ® platform with a proprietary mix of HPV16 antigens, the most virulent high-risk HPV<br />
type and by far the most prevalent in patients with HPV-associated cancers.<br />
Approximately 43,000 patients are diagnosed with HPV-associated cancers each year, a number unlikely<br />
to be impacted in the next decade by the increased use of HPV preventive vaccines – given that the time<br />
from initial HPV infection to cancer diagnosis is often measured in decades. Nearly all of the HPV-related<br />
cancer patients that PDS0101 might treat in the coming years are already infected with HPV16.<br />
Men and women are both impacted by HPV-associated cancers, but in strikingly different ways. In<br />
women, HPV infection most often leads to cervical, anal or vulvar cancer. While most men who develop<br />
HPV-associated cancer are diagnosed with oropharynx cancer, which affects the head and neck.<br />
58 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 59
<strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong><br />
The Symptoms<br />
Look out for<br />
the warning signs<br />
EARLY DIAGNOSIS CAN<br />
SAVE YOUR LIFE<br />
Sore tongue,<br />
non-healing mouth<br />
ulcers and/or red<br />
or white patches in<br />
the mouth<br />
Pain in the<br />
throat<br />
Persistent<br />
hoarseness<br />
Persistent<br />
sore throat<br />
Foul breath<br />
Hoarseness or<br />
voice changes<br />
Swelling of<br />
throat<br />
Painful and/<br />
or difficulty<br />
swallowing<br />
Lump in the<br />
neck<br />
Blocked nose<br />
on one side<br />
and/or bloody<br />
discharge from<br />
the nose<br />
WEEK 1 WEEK 2 WEEK 3<br />
Lump, bump or<br />
mass without pain<br />
White or red<br />
patch<br />
Persistent nasal<br />
obstructions or congestions<br />
Ask your dentist about<br />
oral screening at your<br />
next appointment<br />
SEEK MEDICAL ADVICE<br />
CALL YOUR GP TODAY<br />
Any one of these symptoms in the head and neck area could indicate<br />
<strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong>, contact your GP immediately<br />
Any one of these symptoms in the head and neck area could indicate<br />
<strong>Head</strong> & <strong>Neck</strong> <strong>Cancer</strong>, contact your GP immediately<br />
60 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
#HNCCONF<strong>2023</strong> 61
The only integrated care and distribution<br />
service for people with a laryngectomy and<br />
tracheostomy in the UK<br />
Best start<br />
• Enhanced support for your first six<br />
months with CQC Registered Nurses<br />
on the phone<br />
• Regular liaison with clinicians for<br />
joined up care<br />
Connection hub<br />
• A dedicated Customer Care<br />
Representative<br />
• CQC Registered Nurses to<br />
support you at home<br />
• Educational and community<br />
events<br />
Care delivered<br />
Community Life<br />
with Atos Care<br />
Did you know that as well as providing<br />
laryngectomy and tracheostomy<br />
supplies across the UK, Atos and<br />
the Atos Care service also organise<br />
a variety of events and activities.<br />
Want to set up<br />
a group in your<br />
local area?<br />
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Contact us to start the<br />
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• Easy and convenient ordering<br />
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Communities play a vital<br />
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These groups provide a<br />
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to come together to share<br />
experiences, discuss any<br />
concerns or just have a<br />
relaxing chat over a cup of<br />
tea.<br />
This year, we’ve had a busy<br />
event schedule and one of<br />
the highlights has been the<br />
film screening in Glasgow,<br />
Cambridge and London<br />
of the award-winning<br />
documentary, ‘Can you<br />
hear my voice?’, produced<br />
and directed by filmmaker<br />
Bill Brummel. We invited<br />
patients and clinicians to<br />
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of opportunity for socialising<br />
after the screening with<br />
nibbles and drinks.<br />
Our Customer Care team<br />
maintain regular contact<br />
with thousands of customers<br />
each month and also<br />
immerse themselves in<br />
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around the country.<br />
To register for our services visit www.atos-care.co.uk or call 0800 783 1659<br />
Clinical enquires info@atos-care.co.uk<br />
62 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
Tel 0800 783 1659<br />
info@atos-care.co.uk<br />
www.atos-care.co.uk<br />
Text 07537 417 928<br />
#HNCCONF<strong>2023</strong> 63
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64 HEAD & NECK CANCER CONFERENCE <strong>2023</strong> #HNCCONF<strong>2023</strong> Find out more at: www.cancerproducts.co.uk<br />
65
Salivary Gland <strong>Cancer</strong>s are rare.<br />
Over 23 distinct types account for only c.0.3% of cancer<br />
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Salivary Gland <strong>Cancer</strong> UK was set up in 2019 to address<br />
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treatments, and support patients and carers.<br />
Join us? Join Our Network - Salivary Gland <strong>Cancer</strong> UK<br />
WANTED<br />
HELP US KEEP HEAD & NECK CANCER<br />
PATIENTS CONNECTED<br />
hello@salivaryglandcancer.uk<br />
@SG<strong>Cancer</strong>UK<br />
IN COLLABORATION WITH SIMPAL WE ARE ASKING FOR DONATIONS OF<br />
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WITH FAMILY, FRIENDS AND THE WORLD AROUND THEM.<br />
www.salivaryglandcancer.uk<br />
66 HEAD & NECK CANCER CONFERENCE <strong>2023</strong><br />
For more information email: info@theswallows.org.uk<br />
#HNCCONF<strong>2023</strong> 67
Oncology<br />
Professional<br />
Care<br />
21 - 22 May 2024<br />
ExCeL London<br />
World-class CPD<br />
accredited learning<br />
Leading product, service<br />
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1,500+ like-minded peers<br />
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<strong>Neck</strong> <strong>Cancer</strong><br />
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I O N A L S<br />
Oncology Professional Care returns<br />
to ExCeL London on 21-22 May 2024<br />
Delivering free CPD-certified learning for<br />
the entire oncology community, Oncology<br />
Professional Care is the must-attend, multidisciplinary<br />
event with carefully curated content<br />
focusing on the whole patient pathway.<br />
With a two-day conference programme and<br />
50+ leading suppliers on the exhibition floor,<br />
delegates will hear real-world expertise and<br />
will connect with those shaping the future of<br />
oncology care.<br />
The <strong>2023</strong> edition brought together a record<br />
number of 1,300+ healthcare professionals<br />
to discover cutting-edge developments in<br />
cancer treatment from world-class speakers<br />
and hear directly from patients on their<br />
cancer journeys. A wide range of professionals,<br />
including oncologists, consultants, radiologists,<br />
pharmacists, clinical nurse specialists and AHPs,<br />
attended the conference and exhibition along<br />
with clinical leads from across the UK.<br />
Representatives from Macmillan <strong>Cancer</strong><br />
Support, <strong>Cancer</strong> Research UK, UKONS, BASO ~<br />
The Association for <strong>Cancer</strong> Surgery, and BOPA<br />
were also in attendance following their support<br />
in the development of the programme and<br />
speaker faculty.<br />
Lucy Clarke, Event Manager, said: “We are<br />
absolutely delighted with this year’s Oncology<br />
Professional Care. We achieved 24% more<br />
attendees than last year, and the feedback<br />
we are getting from exhibitors, sponsors<br />
and delegates has been incredible. It really is<br />
the place to meet for the entire spectrum of<br />
oncology professionals involved in each stage of<br />
the patient care pathway.”<br />
Jo McNamara, Registered Therapeutic<br />
Radiographer and Senior Lecturer at Sheffield<br />
Hallam University, said: “Oncology Professional<br />
Care provides an amazing opportunity to<br />
connect with professionals and patients from<br />
across oncology. I love that the patient voice is<br />
at the heart of this event, whilst also having the<br />
latest scientific developments in oncology.”<br />
Dr Anthony Cunliffe, National Lead GP Adviser<br />
of Macmillan <strong>Cancer</strong> Support, said: “I had such<br />
a great experience chairing and attending<br />
sessions, it was even better than last year. What<br />
an amazing opportunity to hear from such a<br />
high calibre of speakers from across oncology<br />
professions and get some great insight from<br />
the exhibitors regarding advances in oncology<br />
care. Already looking forward to Oncology<br />
Professional Care 2024.”<br />
Highlights on day one included an opening<br />
keynote from Holly Roberts, Founder of Larsen’s<br />
Pride, and Patient Advocates Victoria Gaston<br />
and Ellie Waters as they shared their personal<br />
experiences of cancer care. A panel discussion<br />
including NHS England’s Anna Rarity (<strong>Cancer</strong><br />
Experience of Care Programme Manager, NHS<br />
<strong>Cancer</strong> Programme), Emily Corser (Project<br />
Manager (Living With and Beyond <strong>Cancer</strong>), and<br />
Amelia Randle (Clinical Chair SWAG <strong>Cancer</strong><br />
Alliance) focused on mental health and addressing<br />
health inequalities. Author and <strong>Cancer</strong> Educator,<br />
Elaine Vickers, explored the prospects for CAR<br />
T cell therapy in solid tumours in the Advanced<br />
<strong>Cancer</strong> Treatments Theatre, whilst Emma Hallam,<br />
Macmillan Consultant Radiographer in Post<br />
Treatment & Late Effects at Nottingham University<br />
Hospitals NHS Trust, discussed the late effects of<br />
non-surgical cancer treatment in the Living With<br />
and Beyond <strong>Cancer</strong> Theatre.<br />
Highlights from day two included Mary Oladele,<br />
CEO and Founder of <strong>Cancer</strong> Education UK,<br />
speaking on tackling health inequalities. Chris<br />
Curtis, CEO of The Swallows <strong>Head</strong> and <strong>Neck</strong><br />
Charity, and Abdul Ahmed, Consultant OMFS/<br />
<strong>Head</strong> & <strong>Neck</strong>/Reconstructive/Robotic Surgeon of<br />
Queen Mary University of London, also discussed<br />
oral screening in the fight against head and<br />
neck cancer.<br />
The next edition of Oncology Professional<br />
Care is taking place on 21-22 May 2024 at<br />
ExCeL London. To join us next year, please<br />
register your interest by visiting the website:<br />
oncologyprofessionalcare.co.uk/registerinterest-2024<br />
For delegate enquiries, please contact the team on opc@closerstillmedia.com<br />
For sponsorship, exhibition or speaking enquiries, please contact Lucy,<br />
Event Manager, on l.clarke@closerstillmedia.com<br />
#HNCCONF<strong>2023</strong> 69
The quality<br />
of life you<br />
deserve.<br />
<strong>Head</strong> and neck tumours represent diagnoses where the benefit of proton therapy is very high.<br />
Proton therapy enables us to treat patients with tumours that were previously difficult to manage,<br />
found near healthy tissues such as the optic nerve, the retina or the spinal cord. Proton therapy<br />
considerably reduces the risk of developing undesirable side effects of radiation and it<br />
also reduces the risk of secondary tumours. The benefit of proton therapy can be seen early<br />
during treatment, as the vast majority of patients manage the therapy without hospitalisation and<br />
various invasive interventions, such as the insertion of a gastric tube in the stomach to provide<br />
nutrition. In the long term, proton therapy reduces the risk of damage to the vision, hearing,<br />
intellectual functions, the risk swallowing and breathing problems, and dry mouth.<br />
The Benefits<br />
In addition to increasing curability, the aim is<br />
to reduce late side effects and maintain the<br />
quality of life of the patients.<br />
Significant dose reduction of undesirable<br />
radiation to the brain, preventing the risk<br />
of developing memory impairment.<br />
Significant dose reduction of undesirable<br />
radiation to the spinal cord by up to<br />
80%, preventing the development of<br />
myelopathy accompanied by movement<br />
impairment or even paralysis.<br />
Significant dose reduction to all optic<br />
structures (macula, cornea, retina,<br />
optic nerve), mitigating the risk of visual<br />
impairment or loss.<br />
Lower risk of hearing impairment or<br />
loss, namely at high frequencies.<br />
Our Clinic<br />
The Proton Therapy Center located in<br />
Prague, Czech Republic, offers the most<br />
advanced and accurate form of<br />
radiotherapy currently available. Proton<br />
beam therapy, using pencil beam scanning,<br />
allows for a precise dose to be delivered to<br />
highly complicated target volumes while<br />
sparing nearby critical organs and healthy<br />
tissue.<br />
We know fighting cancer is one of the hardest<br />
battles you will ever face, but you don’t have<br />
to face it alone.<br />
FREE Case Assessment<br />
Call us<br />
+44 (0) 1268 919 046<br />
UK’s leading <strong>Head</strong> and <strong>Neck</strong> cancers<br />
charity dedicated to raising awareness<br />
and discovering newer and kinder<br />
treatments.<br />
<strong>Head</strong> and <strong>Neck</strong> cancers are now the 4th<br />
most common type of cancer in men, and<br />
the 8th overall yet awareness of the signs<br />
and symptoms is low and access to the<br />
latest treatments varies throughout the UK.<br />
IMPACT SNAPSHOT<br />
12,400<br />
new <strong>Head</strong> and <strong>Neck</strong><br />
cancer cases a year<br />
50+<br />
research projects<br />
supported<br />
Oracle <strong>Cancer</strong> Trust are committed to<br />
funding world-class research, raising<br />
awareness of the signs and<br />
symptoms and leading on service<br />
delivery innovation - transforming the<br />
lives of those affected by <strong>Head</strong> and<br />
<strong>Neck</strong> cancers.<br />
£8m<br />
awarded for research<br />
into better and kinder<br />
treatment options<br />
Significant dose reduction to the<br />
structure of swallowing pathways,<br />
decreasing the probability of swallowing<br />
difficulties, saliva production disorder,<br />
and need for the insertion of a nutrition<br />
feeding tube into the stomach (PEG).<br />
For more information on how<br />
Proton Therapy Center can give you<br />
the quality of life you deserve:<br />
info@ukprotontherapy.co.uk<br />
ukprotontherapy.co.uk<br />
info@oraclecancertrust.org<br />
oraclecancertrust.org<br />
0203 475 3471<br />
Oracle <strong>Cancer</strong> Trust is a registered charity in England and Wales (1142037). A company limited by guarantee. Registered<br />
company in England and Wales (7125497).
The RACE to overcome the crisis in<br />
<strong>Head</strong> and <strong>Neck</strong> cancers<br />
Oracle <strong>Cancer</strong> Trust<br />
Since Oracle was founded, we have funded over<br />
£8million of research projects. Our research<br />
focus is to provide support and funding for<br />
projects that result in better understanding,<br />
data and improved patient outcomes for those<br />
affected by <strong>Head</strong> and <strong>Neck</strong> cancers.<br />
<strong>Head</strong> and <strong>Neck</strong> cancers are the 4th most<br />
common cancer in men in the UK and the 7th<br />
overall. Around 12,400 people are diagnosed with<br />
a <strong>Head</strong> and <strong>Neck</strong> cancer each year with growing<br />
levels of late-stage diagnoses, low public<br />
awareness and poor rates of mortality.<br />
Patients are often left with debilitating<br />
appearance, speech, eating, swallowing and/or<br />
respiratory problems as well as psychological<br />
effects of loss of function and change in body<br />
image.<br />
Oracle <strong>Cancer</strong> Trust is the UK’s leading <strong>Head</strong> and<br />
<strong>Neck</strong> <strong>Cancer</strong> charity. Our mission is to improve<br />
<strong>Head</strong><br />
and <strong>Neck</strong> <strong>Cancer</strong> patient quality of life<br />
and outcomes in the UK.<br />
Our charity’s purpose and activities are all<br />
aimed at improving quality of life<br />
outcomes for <strong>Head</strong> and <strong>Neck</strong> cancer<br />
patients. To this end, Oracle <strong>Cancer</strong> Trust<br />
supports and runs 4 types of projects:<br />
Research projects: Oracle <strong>Cancer</strong> Trust<br />
supports research projects that<br />
demonstrate potential to deliver and<br />
drive greater understanding about <strong>Head</strong><br />
and <strong>Neck</strong> cancers, how best to treat<br />
them and where the greatest unmet<br />
needs are. This includes 1) lab-based<br />
medical research projects, 2) data<br />
gathering and analysis of disease and<br />
patient trends, and 3) qualitative and<br />
behavioural research projects.<br />
Awareness campaigns: Oracle <strong>Cancer</strong><br />
Trust drives, delivers and supports<br />
awareness campaigns focused on <strong>Head</strong><br />
and <strong>Neck</strong> cancers<br />
Collaboration programmes: Oracle<br />
<strong>Cancer</strong> Trust promotes and supports<br />
collaboration and creates key<br />
opportunities for knowledge sharing and<br />
agreeing best practice within <strong>Head</strong> and<br />
<strong>Neck</strong> cancers<br />
Experience of patients: Oracle <strong>Cancer</strong><br />
Trust will support, promote and<br />
encourage more focus and<br />
understanding on the patient experience<br />
within <strong>Head</strong> and <strong>Neck</strong> cancers.<br />
Oracle jointly funded a new study that suggests<br />
robotic surgery has high cure rates for some<br />
<strong>Head</strong> and <strong>Neck</strong> cancer patients. Published in<br />
the Journal of the National <strong>Cancer</strong> Institute,<br />
results from the RECUT study reveal that,<br />
following transoral robotic surgery (TORS), the<br />
two-year overall survival rate for recurrent head<br />
and neck cancer patients whose recurrence has<br />
been detected at an early stage is nearly three<br />
quarters (72%). This improves on other<br />
treatments currently available to this patient<br />
group, which often includes further<br />
radiotherapy or open surgery, in combination or<br />
alone, or chemotherapy and/or immunotherapy<br />
with palliative intent.<br />
Professor Vin Paleri, Project Lead<br />
RECUT study<br />
Get in touch<br />
oraclecancertrust.org<br />
+44 (0) 203 475 3471<br />
info@oraclecancertrust.org<br />
Support Oracle now, donate<br />
today!<br />
Scan here to donate:
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