AJGH Nexus - Volume 17 2023

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References 1. The Australian Resuscitation Council Guidelines [online]. East Melbourne (AU). The Australian Resuscitation Council. ANZCOR Guideline 6 – Compressions; [2021 April; cited 2023 April 24]. Available at: https://resus.org.au/the-arc-guidelines/ 2. Moosajee US, Saleem SG, Iftikhar S, Samad L. Outcomes following cardiopulmonary resuscitation in an emergency department of a low- and middle-income country. Int J Emerg Med. 2018;11(1):40. Published 2018 Oct 1. doi:10.1186/s12245-018-0200-0 3. Countries and Economies [online]. The World Bank Data. World Bank Group. [2023; cited 2023 July 19]. Available at: https://data.worldbank.org/country 4. Bray J, Howell S, Ball S, et al. The epidemiology of out-of-hospital cardiac arrest in Australia and New Zealand: A binational report from the Australasian Resuscitation Outcomes Consortium (Aus-ROC). Resuscitation. 2022;172:74-83. doi:10.1016/j.resuscitation.2022.01.011 5. Wik L, Steen PA, Bircher NG. Quality of bystander cardiopulmonary resuscitation influences outcome after prehospital cardiac arrest. Resuscitation. 1994;28(3):195-203. doi:10.1016/0300-9572(94)90064-7 6. Gross A. In developing countries, does the implementation of basic cardio-pulmonary resuscitation education in the community improve patient outcomes? [online]. Minneapolis (USA). Augsburg University Idun: Theses and Graduate Projects; [2017; cited 2023 April 20]. Available at: https://idun.augsburg.edu/etd/385? utm_source=idun.augsburg.edu%2Fetd%2F385&utm_medium=PDF&utm_campaign=P DFCoverPages 7. Kironji AG, Hodkinson P, de Ramirez SS, et al. Identifying barriers for out of hospital emergency care in low and low-middle income countries: a systematic review. BMC Health Serv Res. 2018;18(1):291. Published 2018 Apr 19. doi:10.1186/s12913-018-3091-0 8. Friesen J, Patterson D, Munjal K. Cardiopulmonary Resuscitation in Resource-limited Health Systems-Considerations for Training and Delivery. Prehosp Disaster Med. 2015;30(1):97-101. doi:10.1017/S1049023X14001265 9. Philips Foundation Team. Restarting hearts in Africa [online]. The Netherlands. Philips Foundation; [2020 February; cited 2023 April 26]. Available at: https://www.philips-foundation.com/a-w/articles/philips-foundation-restartinghearts-in-africa.html
AMSA Healthy Communities Article Competition 2023 On the Outskirts By Lim Yun Fei, Louis Rare diseases (RDs) encompass diverse conditions, each affecting a small subset of individuals.[1] Despite their rarity, the collective number of individuals “living rare” is equivalent to the population of the third largest country.[2] The limited healthcare accessibility for this marginalised group is a significant concern as it has adverse health, psychosocial, and economic impacts on patients, their families, and carers.[1] Major contributing factors include the lack of awareness, education and professional training about RDs.[3] Furthermore, even when treatments are available, the costs can be exorbitant. Due to such challenges, RD patients often undergo long diagnostic journeys, with an average period of 4–5 years.[1] In some cases, it can take over a decade. Despite their extensive and expensive journeys, RD patients often remain undiagnosed or even misdiagnosed, which further adds emotional distress to them and their families.[4] In 2019, the United Nations pledged to alleviate the burden of RDs as part of achieving universal health coverage. Subsequently, they adopted a resolution in 2021 to recognise the needs and challenges of RD patients and their families, including healthcare access.[5] This resolution highlights the increasing global awareness of the unique challenges faced by the RD community and the importance of equitable healthcare for this marginalised population. Today, I challenge you to start learning about RDs and to join in creating a more inclusive and compassionate healthcare system. References 1. Chung CCY; Hong Kong Genome Project, Chu ATW, Chung BHY. Rare disease emerging as a global public health priority. Front Public Health. 2022;10:1028545. Published 2022 Oct 18. doi:10.3389/fpubh.2022.1028545 10, 1028545. https://doi.org/10.3389/fpubh.2022.1028545 2. EURORDIS. (2021, May). #Resolution4Rare: Global campaign for the first UN Resolution on Persons Living with a Rare Disease. Retrieved from: https://www.eurordis.org/resolution4rare-globalcampaign-for-the-first-un-resolution- on-personsliving-with-a-rare-disease/ 3. Bhattacharya K, Millis N, Jaffe A, Zurynski Y. Rare diseases research and policy in Australia: On the journey to equitable care. J Paediatr Child Health. 2021;57(6):778- 781. doi:10.1111/jpc.15507 4. Marwaha S, Knowles JW, Ashley EA. A guide for the diagnosis of rare and undiagnosed disease: beyond the exome. Genome Med. 2022;14(1):23. doi:10.1186/s13073-022- 01026-w 5. Adachi T, El-Hattab AW, Jain R, et al. Enhancing Equitable Access to Rare Disease Diagnosis and Treatment around the World: A Review of Evidence, Policies, and Challenges. Int J Environ Res Public Health. 2023;20(6):4732. doi:10.3390/ijerph20064732 Appendix: RD - Rare disease, RDs - Rare diseases, UN - United Nations
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AJGH Nexus - Volume 17 2023

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