Kidney Matters - Issue 17 Summer 2022
Your Summer 2022 Kidney Matters magazine is out now! In this issue: • Chronic kidney disease and the cost of living crisis • Navigating nephrotic syndrome as a family • Kidney clinic: coping with brain fog • Celebrating Ramadan when you're living with CKD • Kidney Kitchen's fresh-tasting Salad Niçoise – perfect for summer! We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it. Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
Your Summer 2022 Kidney Matters magazine is out now! In this issue:
• Chronic kidney disease and the cost of living crisis
• Navigating nephrotic syndrome as a family
• Kidney clinic: coping with brain fog
• Celebrating Ramadan when you're living with CKD
• Kidney Kitchen's fresh-tasting Salad Niçoise – perfect for summer!
We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it.
Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
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6
Are you struggling to cope with the
rising cost of living?
The recent steep rises in the cost of fuel, utility bills and food affects everyone. But
if you live on a fixed low income or on benefits, the struggle to make ends meet has
become overwhelming. Do not suffer in silence. We can help.
Here at Kidney Care UK, we have developed an online
resource tailored to meet the very specific needs of
kidney patients. We know that people with chronic
kidney disease will feel the cold more than other
people, just like Phoenix explains, so need to keep their
home well heated, and will also need to eat a healthy
diet in order to stay well. These are unavoidable costs
associated with our kidney disease which have to be
managed in addition to the pressure of managing a
chronic health condition. Nobody should be faced
with the choice of whether to eat or heat their home.
We also know that worrying about how to pay for
everything is not good for our mental health.
How we can help you
We understand this struggle and have come up with
an extensive range of practical ways to help you
through these worrying times. For more advice and
information, please visit our information hub at
www.kidneycareuk.org/get-support/cost-living-hub/
The many
ways our free
Kidney Care
UK advocacy,
counselling and
benefits-check
services can
help
Applying for a
Kidney Care UK
individual grant
10 ways to lower
your utility bills
Ways to
maximise
your income,
including –
making better
financial
decisions and
ensuring you are
receiving all the
benefits you are
entitled to
Shopping for a
kidney-friendly
diet on a budget
Building your
emotional
resilience
Checking that
you are not
overpaying for
electricity, gas
and water
Taking action by
contacting
your MP
www.kidneycareuk.org
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