Kidney Matters - Issue 17 Summer 2022
Your Summer 2022 Kidney Matters magazine is out now! In this issue: • Chronic kidney disease and the cost of living crisis • Navigating nephrotic syndrome as a family • Kidney clinic: coping with brain fog • Celebrating Ramadan when you're living with CKD • Kidney Kitchen's fresh-tasting Salad Niçoise – perfect for summer! We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it. Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
Your Summer 2022 Kidney Matters magazine is out now! In this issue:
• Chronic kidney disease and the cost of living crisis
• Navigating nephrotic syndrome as a family
• Kidney clinic: coping with brain fog
• Celebrating Ramadan when you're living with CKD
• Kidney Kitchen's fresh-tasting Salad Niçoise – perfect for summer!
We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it.
Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
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20
Celebrating my way – Ramadan
FEATURE ARTICLE
Ramadan is the ninth month of the Islamic calendar and is celebrated by Muslims all
over the world. Often known as a month of mercy, Ramadan is not only about abstaining
from food and drink, but also as a month of self-reflection, spiritual growth, and charity.
And although patients with chronic kidney disease (CKD) are exempt from fasting, how
does it really feel to not take part in one of the blessed months of the year? For some,
it feels as if part of them has been taken away while for others it’s easier to accept and
gain whatever they can from this month
Zak Khan - transplant recipient
Things have changed for me in Ramadan. Eager to take
part in this month, I started fasting from an early age. I
started with fasting for half days, building myself up to
full. Little did I know that this would be short-lived.
When I was diagnosed with chronic kidney disease
(CKD) several years ago, I was only 17. At first, it felt
that CKD was taking away so much of me, of who I
was and my identity. I could no longer go swimming,
play contact sports such as boxing, or do things
other teenagers my age would do. And fasting was yet
another part of my identity I couldn’t embrace, no
matter how much I wanted to.
“At first it felt that CKD was
taking away so much of me, of who
I was and my identity. I could no
longer go swimming, play contact
sport, such as boxing, or do things
other teenagers my age would do.
And fasting was yet another part of
my identity I couldn’t embrace, no
matter how much I wanted to“
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