Kidney Matters - Issue 17 Summer 2022
Your Summer 2022 Kidney Matters magazine is out now! In this issue: • Chronic kidney disease and the cost of living crisis • Navigating nephrotic syndrome as a family • Kidney clinic: coping with brain fog • Celebrating Ramadan when you're living with CKD • Kidney Kitchen's fresh-tasting Salad Niçoise – perfect for summer! We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it. Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
Your Summer 2022 Kidney Matters magazine is out now! In this issue:
• Chronic kidney disease and the cost of living crisis
• Navigating nephrotic syndrome as a family
• Kidney clinic: coping with brain fog
• Celebrating Ramadan when you're living with CKD
• Kidney Kitchen's fresh-tasting Salad Niçoise – perfect for summer!
We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it.
Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
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In this Summer issue
Features
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8
14
16
It’s costing me more and more
just to stay alive
Phoenix Halliwell, a home haemodialysis
patient, explains the financial dilemma he
and his family face
Look for the rainbow
Catherine Moran on how she has learnt to
cope with the challenges of being a carer to
her father
Orla, our beautiful five-year-old
daughter
When their healthy little girl was suddenly
diagnosed with nephrotic syndrome, Orla’s
family had to adapt to a new life managing
her condition
Enhanced Recovery After Surgery
(ERAS) programme
How a generous grant from Kidney Care UK
has helped shape the award-winning ERAS
programme
Medical
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34
Page
16
Kidney Clinic: ‘Kidney brain’:
cutting through the fog
Brain fog in people with chronic kidney
disease why does it happen? And
how can it be improved?
From PatientView to Patients
Know Best
What does the switch from PatientView to
Patients Know Best mean for kidney
patients?
18
My recovery bible
Alison Brown on how the ERAS programme
empowered her through her recovery
Page
20
Food, glorious food
22
Cooking in the Kidney Kitchen -
Salad niçoise
Page
22
Front cover photograph by Jessica Sommerville www.jessicasommerville.co.uk
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