Kidney Matters - Issue 17 Summer 2022
Your Summer 2022 Kidney Matters magazine is out now! In this issue: • Chronic kidney disease and the cost of living crisis • Navigating nephrotic syndrome as a family • Kidney clinic: coping with brain fog • Celebrating Ramadan when you're living with CKD • Kidney Kitchen's fresh-tasting Salad Niçoise – perfect for summer! We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it. Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
Your Summer 2022 Kidney Matters magazine is out now! In this issue:
• Chronic kidney disease and the cost of living crisis
• Navigating nephrotic syndrome as a family
• Kidney clinic: coping with brain fog
• Celebrating Ramadan when you're living with CKD
• Kidney Kitchen's fresh-tasting Salad Niçoise – perfect for summer!
We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it.
Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
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The communication was great. I was
self-medicating with supervision,
they checked my medications,
observations, and urine output. I felt
like part of the team.
I understood my care. If something
didn’t happen according to the
booklet, or my ‘recovery bible’ as
I called it, I felt confident to ask
questions.
The physiotherapists were also
brilliant. They were very knowledgeable and
made sure I didn’t feel pressured. Every target
I met was a small victory and one step closer
to home.
“The ERAS booklet provided a
coping mechanism, a focus, and
an action plan. Some of the tools
in it I will use for life“
I was discharged to go home on day five. I felt
strong and confident and mentally ready to
continue my recovery at home using the tools
I had been given by the ERAS team.
The ERAS process is by far the best advance
in hospital care I have seen. It is patient
focused, and as a patient, it gave me back
some control over my mind and my body.
The ERAS booklet provided a coping
mechanism, a focus, and an action plan.
Some of the tools in it I will use for life. I
believe that health and recovery are partly
due to your state of mind and this new
process revolutionises the relationship
between medical staff and patients. It is
brilliant and I believe it has saved me weeks,
maybe months of recovery time.
After a failed transplant, dialysis and many
surgeries and illnesses along the way, I often
felt out of control and defeated, even useless
sometimes. The ERAS programme motivated
me to do my bit to make sure I was giving this
kidney the best possible chance.
I no longer feel defeated, I feel proud to
have played a part in my recovery. I now look
forward to exciting times, new memories, more
free time, and most importantly good health.
“The ERAS process is by far the best
advance in hospital care I have seen.
It is patient focussed, and as a pa-
tient, it gave me back some control
over my mind and my body“
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