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Kidney Matters - Issue 17 Summer 2022

Your Summer 2022 Kidney Matters magazine is out now! In this issue: • Chronic kidney disease and the cost of living crisis • Navigating nephrotic syndrome as a family • Kidney clinic: coping with brain fog • Celebrating Ramadan when you're living with CKD • Kidney Kitchen's fresh-tasting Salad Niçoise – perfect for summer! We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it. Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.

Your Summer 2022 Kidney Matters magazine is out now! In this issue:

• Chronic kidney disease and the cost of living crisis
• Navigating nephrotic syndrome as a family
• Kidney clinic: coping with brain fog
• Celebrating Ramadan when you're living with CKD
• Kidney Kitchen's fresh-tasting Salad Niçoise – perfect for summer!

We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it.

Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.

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C O N T I N U E D

Table 3: Self-help for brain fog

If you smoke, stop

Healthy eating

Keep active

Get a good night’s sleep

Reduce stress in your life

Keep your brain active

Pace yourself

Simplify your life

Smoking increases blood pressure and damages small blood vessels throughout

the body

Maintain a healthy weight with good nutrition; minimise salt intake; adhere to any

fluid allowance

Exercise if you can to improve blood pressure and wellbeing

Practise good sleep hygiene: turn off computers and other devices two hours before

bedtime; avoid exercise, caffeine, tobacco, or alcohol close to bedtime; try not to

nap during the day

Try relaxation techniques

Don’t be afraid to ask for help to resolve any worries

Maintain social life with family and friends

Try a new hobby or other activity that you enjoy

Do things that need a clear head (such as paying bills) at your best time of day. If you

can, take regular breaks

Make lists or use Post-it notes. Do only one thing at a time and keep distractions to a

minimum.

brain. And there are other advantages including a freer

diet and fluid allowance, better phosphate balance,

and fewer blood pressure medicines,” he adds.

Does transplantation lift brain fog?

Transplantation is currently by far the best way of

treating advanced CKD. It has also been shown to

improve cognitive function, albeit in rather small

studies.

Paddy explains: “We found that people who happened

to get a transplant during our study did not have

progressive decline in some aspects of cognitive

function, and brain integrity seemed better preserved

on MRI scanning. However, people who received

a transplant were likely to have been younger and

without the health problems that meant other people

remained on dialysis. So, while I cannot say that a

kidney transplant reverses brain fog, it does seem to

be associated with better outcomes.”

Other studies have shown improvements in some

cognitive domains after kidney transplantation.

However, researchers also report that some kidney

transplant recipients continue to score worse than

healthy people when tested on executive functioning,

verbal fluency and language.

“Even if kidney function is restored to normal—and it

does not happen with every transplant—it may also

take time to remove all the toxins that affect brain

function, and it is possible that the brain may not fully

recover. So, a transplant may not offer a ‘reset’ for

everyone but imagine the impact if you had stayed on

dialysis with the recurrent swings in brain blood flow,”

adds Paddy.

Conclusion

“If you are on haemodialysis, be reassured that brain

fog after a session is part of recovery. However, it

would be wise to arrange for someone to go home

with you if you think that your driving may be affected.

Similarly, if you have important topics like transplant

listing to discuss with your doctor or nurse, schedule a

visit when you are not on dialysis so that you can really

concentrate on the discussion.

“Finally, everyone with CKD should be aware that

many aspects of kidney disease may affect cognitive

function. As kidney doctors, we can work with you

to address these risk factors as far as we can,” he

concludes.

Article by Sue Lyon

Freelance Medical Writer &

Editor, London

To find out more about dealing with

brain fog and kidney disease, visit

www.kidneycareuk.org/learn-more

LEARN MORE

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