Kidney Matters - Issue 16 Spring 2022
Kidney Matters is our free quarterly magazine for everyone affected by kidney disease. This issue includes features on delayed graft function, the impact of CKD on families, friends and care-partners, improving organ donation, a husband's perspective on the challenges faced from caring for someone with CKD, and an article all about a family's journey from dialysis to transplant and all the things in between. As well as this, the Kidney Kitchen features a warming pear and blackberry crumble, perfect for Valentine's Day! We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it. Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
Kidney Matters is our free quarterly magazine for everyone affected by kidney disease.
This issue includes features on delayed graft function, the impact of CKD on families, friends and care-partners, improving organ donation, a husband's perspective on the challenges faced from caring for someone with CKD, and an article all about a family's journey from dialysis to transplant and all the things in between.
As well as this, the Kidney Kitchen features a warming pear and blackberry crumble, perfect for Valentine's Day!
We know that being a kidney patient can be tough at times and that accessing the right help at the right time isn’t always easy. We’ve spent a great deal of time talking and listening to kidney patients about what we can do to address this at every stage of kidney disease. The response was overwhelmingly ‘improved communication’ on what is going on in the kidney world, how other patients manage their life with kidney disease and what is available to them in terms of support and how to access it.
Kidney Matters has been developed to tackle this as well as the many other issues kidney patients face in day-to-day life. Along with shared patient experiences, Kidney Matters provides information on how to access emotional and practical support, financial assistance through our grant schemes, advice from leading kidney specialists and tips on how to keep as well as possible by eating a healthy diet whilst on dialysis.
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In this Spring issue
Features
6
Understanding delayed graft
function (or a sleepy kidney, posttransplant)
An interview with Mr Michael Stephens,
Consultant Transplant and Dialysis Access
surgeon, Cardiff Transplant Unit
8
Bump-starting
Spud – my sleepy
kidney
Bow Harrison shares her transplant
experience with a sleepy kidney
10
Partners in care: who’s supporting
the supporters
The impact of CKD on families, friends, and
care-partners
12
14
Time to listen
A husband’s perspective on the challenges
faced from caring for someone with CKD
I Will Dance
How music and faith helped Francis cope
with life-changing challenges
28
The arrival of our light
A family’s journey from dialysis to
transplant and all the things in between
On your side
4
Improving
Medical
24
32
Page
14
organ donation – a new
initiative from the NHS
The new initiative of identifying and
overcoming barriers to organ
transplantation
Clear water? UTIs after a kidney
transplant
Exploring the reasons for and treatments
of UTIs following a transplant
Transforming the treatment
of chronic kidney disease
Important changes to NICE chronic kidney
disease (CKD) guidance
Page
28
Food, glorious food
20
Pear and blackberry crumble
A warming pudding for Valentine’s Day
Page
20
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