20.05.2021 Views

Spring Issue 2021

Helping Individuals with Disabilities & their Families Achieve & Celebrate Events & Milestones in their Lives

Helping Individuals with Disabilities & their Families Achieve & Celebrate Events & Milestones in their Lives

SHOW MORE
SHOW LESS

You also want an ePaper? Increase the reach of your titles

YUMPU automatically turns print PDFs into web optimized ePapers that Google loves.

eyond disabilities<br />

<strong>Spring</strong> <strong>Issue</strong> <strong>2021</strong><br />

Let’s Get Cooking<br />

Planning to Succeed<br />

School and Home<br />

I Need a Lawyer?


contents<br />

spring <strong>2021</strong><br />

03 Planning to Succeed<br />

07 Let’s Get Cooking<br />

09 I Need a Lawyer?<br />

13 School and Home<br />

16 Play for Life<br />

19 Exceptional Sports<br />

21 Carving out a Job<br />

23 Happy Trails<br />

Publisher<br />

Susie Redfern, is the parent of a special<br />

needs child who recently “aged out”<br />

of the public-school system.<br />

She developed Milestones Magazine<br />

to help individuals with disabilities<br />

and their families achieve and celebrate<br />

events and milestones in their lives.<br />

info@milestonesmagazine.com<br />

1<br />

MilestonesMagazine.net


PLANNING TO SUCCEED<br />

Back in my college days I was taking a required<br />

Biology class. One day, the professor was<br />

giving a lecture on the process of photosynthesis,<br />

which is how plants get energy from light<br />

(or something like that). The process of<br />

photosynthesis has several steps, which the<br />

So, WHAT is<br />

Executive Functioning?<br />

You may hear this term often and we hope<br />

the following clarifies your understanding.<br />

professor was going through. Unfortunately,<br />

he wasn’t very organized. He would go through<br />

Executive function skills are critical for all of us;<br />

the steps out of order, which was exceedingly<br />

frustrating to this then-college student trying<br />

they are a group of skills that we use every day to<br />

to take notes about the whole darn thing.<br />

learn, manage and accomplish things and<br />

This anecdote demonstrates the importance of<br />

executive functioning (and no, I’m not referring<br />

generally get what we want out of life.<br />

to executive as a noun, in the company CEO<br />

sense). I am pleased to introduce Caryl<br />

Frankenberger, Ed.M., Executive Director of<br />

Frankenberger Associates, who has written the<br />

Executive functioning (EF) skills include<br />

but are not limited to:<br />

article below on this very topic.<br />

3


Planning and Prioritizing<br />

In order to complete a task, you begin with<br />

the larger goal in mind. Once the goal is<br />

solidified, you lay a plan of action, prioritizing<br />

mental math requires one to make calculations<br />

in mind. Working memory is a very important<br />

EF skill and one that is often a weakness in our<br />

learning disabled and ADHD populations.<br />

what is most important. Students have to plan<br />

and prioritize many aspects of their lives,<br />

especially their short- and long-term<br />

school assignments.<br />

Self-Monitoring<br />

Completing a task or an assignment, socializing<br />

and just about everything we do requires<br />

one to monitor their performance. We have<br />

Organization<br />

Once you have a plan you have to organize<br />

to think about what we are doing, how we are<br />

the parts into the whole. This requires sorting<br />

through and arranging information into a<br />

system that works for you. Our children have<br />

multiple organizational demands made on<br />

them every day, from rising in the morning,<br />

organizing and locating their belongings,<br />

getting out the door, navigating multiple<br />

classes, returning home to homework and<br />

then heading to bed, and much more.<br />

Flexible Thinking<br />

When working through a task one needs to<br />

think flexibly. If you are rigid in your thinking,<br />

then it is unlikely that you will apply different<br />

approaches when problem solving. Often,<br />

one has to revise a plan of action or obtain new<br />

information, especially if a mistake has been<br />

accomplishing the task and, in the end, asking<br />

ourselves how did I do? This requires one<br />

to monitor their performance and actions by<br />

stopping and reflecting, an important skill that<br />

takes time and practice to acquire.<br />

SKILLS for LIFE<br />

made. We all need to think flexibly and be<br />

ready to change our course of action.<br />

Attention<br />

Attention plays a role in everything we do. To<br />

accomplish a goal, you must focus on the task<br />

at hand. Once you are focused you have to<br />

sustain attention and recognize when your<br />

attention shifts. If it has waxed and waned,<br />

you must bring your focus back to the activity<br />

and maintain focus until the task is completed.<br />

Many students have attentional weaknesses<br />

that hamper their ability to complete tasks.<br />

Working Memory<br />

Working memory is the ability to hold and<br />

manipulate information in mind. When you<br />

read you have to hold and comprehend<br />

information from the beginning to the end<br />

of the page or chapter; listening to directions<br />

requires the same skill, holding and remembering<br />

several pieces of information. Taking notes<br />

in class demands listening, comprehension<br />

and writing simultaneously, and performing<br />

4


Impulse Control<br />

The old adage, “think before you act” applies to the EF skill<br />

impulse control. It really means to control your impulses, to<br />

resist saying or doing something, to stop one’s self. In addition<br />

to controlling our impulses, we have to consider how our<br />

behavior impacts others. This is an important skill for all<br />

students to master.<br />

Emotional Control<br />

Much like attentional and impulse control, emotional control<br />

is the ability to manage your thoughts and emotions so that<br />

you can achieve your goals. Emotions take many forms and,<br />

for example, in the classroom a student has to control their<br />

frustration, annoyance at others, anger at something that did<br />

not go their way. Understanding and managing emotions is<br />

critical to the successful completion of tasks, especially<br />

group work and social relations.<br />

Goal Directed Persistence<br />

Persistence is essential for completing tasks. Many students<br />

struggle to complete tasks because of distractions or because<br />

inevitable setbacks become insurmountable roadblocks. It is<br />

important to maintain a focus on the task at hand and to be<br />

able to summon the grit necessary to push through inevitable<br />

“<br />

Executive<br />

Functioning<br />

is a broad set of<br />

self-directed<br />

SKILLS<br />

that IMPACT<br />

all aspects<br />

of our lives.<br />

challenges with the overall goal in mind.<br />

It is important to<br />

Executive functioning is a broad set of self-directed skills<br />

that impact all aspects of our lives.<br />

Executive function challenges are often seen at home, in the<br />

classroom and at work. Executive functioning difficulties can<br />

arise from weaknesses in any of the aforementioned skills,<br />

which impact goal directed behavior. It is important to<br />

understanding and address these deficits early so that they<br />

do not become roadblocks to success.<br />

Caryl Frankenberger, Ed.M.<br />

Frankenberger Associates, Branford CT<br />

understanding and address<br />

these deficits early so<br />

that they do not become<br />

roadblocks to success.<br />

“<br />

www.frankenbergerassociates.com<br />

M<br />

5


6


Let’s Get<br />

Cooking<br />

Many kids love to mess around in<br />

the kitchen. For some of them, the<br />

messing around may actually<br />

involve helping to prepare meals<br />

with their mom or dad.<br />

Some of those budding chefs may be<br />

children with sensory or cognitive<br />

challenges that complicate the steps<br />

involved in preparing a recipe or a<br />

meal. That’s where people such as<br />

Terri Jordan come in. She came up<br />

with a system to benefit her own<br />

son, which is where a number of<br />

parents start who create products,<br />

services, or businesses that help<br />

empower and support people<br />

with disabilities.<br />

I am pleased to introduce<br />

Terri Jordan and her creation,<br />

The Color-Coded Chef.<br />

7


The Idea Behind the Kit<br />

Like all parents, I wanted my son to acquire basic life skills. So,<br />

at age 16, we decided to try cooking. I quickly realized he did not<br />

understand things like “1/4 cup” or “2 tablespoons” — the<br />

measurements kept him from being able to follow traditional<br />

recipes. But he did understand color. This was The Aha Moment<br />

when the idea behind The Color-Coded Chef was born!<br />

Therapy Opportunities<br />

The more you practice, the better you<br />

become at: Gross and Fine Motor Skills,<br />

Speech, Socialization, Teamwork and<br />

Behavior. Plus, when you make your own<br />

food, you tend to try more types of food.<br />

You open yourself up to new possibilities<br />

After many hours of trial and effort, the idea of this cooking kit<br />

became a hands-on reality. And its ultimate goal? To spend<br />

and you elevate your quality of life!<br />

quality time together while teaching life skills<br />

that build self-esteem and independence.<br />

WOW!! What a wonderful way to foster<br />

pride and self-worth in a loved one as they<br />

accomplish an everyday task!<br />

How Does It Work?<br />

The Color-Coded Chef Kit is a collection of<br />

recipes with detailed step-by-step instructions<br />

and simple illustrations that make the recipe<br />

easy to follow and understand. The Ingredients<br />

page can be used as a grocery list at the store,<br />

then used as a checklist when you begin to<br />

cook. The kit comes with a dry-erase marker so<br />

you can easily check off lists on the laminated<br />

cards. Wipe off and reuse! In addition to these<br />

user-friendly recipes and instructions, the kit includes color-coded<br />

measuring cups and spoons and a collection of safe, easy-to-use<br />

common kitchen utensils.<br />

What is Happening Now?<br />

Over the last several years, we have come<br />

so far — as a family and as a company.<br />

And today, I am proud to say my son<br />

Visit TheColorCodedChef.com for a sample Chocolate Chip<br />

Cookie recipe!<br />

assembles The Color-Coded Chef kits<br />

for shipment!<br />

The Benefits of This Kit<br />

The wonderful thing about The Color-Coded Chef Kit is that there<br />

are so many more benefits beyond just learning the practical life<br />

skill of cooking. With each recipe, you are incorporating: Decision<br />

Making, Teamwork, Social Skills, Sequencing, Directions,<br />

Terri Jordan can be reached by:<br />

636-422-1515<br />

Facebook.com/thecolorcodedchef<br />

TheColorCodedChef.com<br />

M<br />

Health and Hygiene Self-Discipline, Safety, and Patience.<br />

8


I Need a<br />

Lawyer?<br />

Many parents with children receiving special education services,<br />

have issues with the school system for one reason or another.<br />

Perhaps their child is in what they regard as an inappropriate<br />

setting (placement concern). Maybe the child isn’t making<br />

expected progress in one or more subject areas. There are many<br />

possible areas of concern.<br />

For some (perhaps even most) instances of conflict, parents are<br />

able to work through the problems directly with the school;<br />

whether on their own or with the help of an IEP (Individualized<br />

Education Plan) Advocate. The IEP Advocate is typically there to<br />

provide support/guidance and mediation, if necessary, for the<br />

parents, but is not a legal representative.<br />

There are situations where, despite the efforts of everyone<br />

involved, an impasse comes about and parents are left wondering<br />

whether legal representation is their only option. I am pleased to<br />

invite Christine Lai, Executive Director of the Special Education<br />

Legal Fund, to address this question. Christine Lai wrote<br />

A Parents Guide to Connecticut Special Education Attorneys,<br />

and much of the information in the guide is helpful for parents<br />

regardless of where they live in the United States.<br />

9


“Many parents struggle through the special education process<br />

with their child’s school district. For some, retaining a special<br />

education attorney is the only way to overcome the obstacle or<br />

hurdles in their child’s way to receiving a free and appropriate<br />

public education. But what is a special education attorney, and<br />

how can I as a parent find the right one for me?<br />

A special education attorney is an attorney who practices law<br />

on behalf of children and young adults to help secure necessary<br />

educational services as required under the law (generally the<br />

A special<br />

education<br />

attorney<br />

is an attorney<br />

who practices law on<br />

behalf of children<br />

and young adults<br />

Individuals with Disabilities Education Act or IDEA). Special<br />

education attorneys can practice on behalf of parents and<br />

families as part of the private bar association or as part of an<br />

agency like Legal Aid, or on behalf of schools, school districts<br />

and boards of education. A special education attorney generally<br />

has undergone training that includes college, a law degree, and<br />

some type of either coursework or practical experience that<br />

addresses the specific needs of special education students. The<br />

last piece, coursework or practical experience, is particularly<br />

important to consider when a parent is embarking on the process<br />

of seeking out and hiring an attorney to represent their child in<br />

a special education matter. Special education is a particular<br />

specialty of the law and IDEA is a very specific and voluminous<br />

piece of legislation with complex timelines and requirements.<br />

Hiring an attorney who practices, for example, family law, will<br />

to help<br />

not get you where you need to be in terms of representation by<br />

a lawyer who understands the myriad and complex issues of<br />

secure necessary<br />

educational<br />

services<br />

as required<br />

under the law.<br />

special education. For the same reason that you wouldn’t hire<br />

an attorney who practices patent law to defend you in a criminal<br />

trial, you shouldn’t hire an attorney with any other specialty than<br />

special education or disability rights law to represent your child<br />

and family in a special education matter.<br />

The other reason to hire a special education attorney to<br />

represent your child’s specific issues in the special education<br />

realm is because special education law in most states is a<br />

relatively small and tight knit community. In Connecticut, the<br />

private special education bar is well known to one another; most<br />

of the attorneys know each other well and have often worked side<br />

by side for many years advancing the rights of students in special<br />

education. In addition, the parent-representing attorneys are<br />

familiar with the school districts – with the administrators,<br />

special education coordinators, in house attorneys, and outside<br />

counsel that represent schools, school districts, and boards of<br />

education in special education matters. When you as a parent<br />

hire an attorney to represent your child’s special education case,<br />

the school district will also have legal resources to draw upon.<br />

10


In the complex process that follows, having an attorney that knows<br />

the players is an invaluable asset for a family. In addition, a good<br />

special education attorney also knows the other players that matter<br />

in the special education community, and will know what clinicians<br />

write the best reports and who performs best on the stand in a due<br />

process hearing should it come to that.<br />

So how do I find the right special education attorney for my<br />

family? First and foremost, interview more than one attorney to<br />

figure out who you feel most comfortable with. Since you are<br />

going to be spending an inordinate amount of very stressful time<br />

with this person, make sure you communicate well and have a good<br />

level of trust with your legal professional. Word of mouth<br />

recommendations are important, but remember that each<br />

student is different, and each student’s case is different. Just<br />

At the end of the day,<br />

whatever attorney<br />

you decide to hire,<br />

make sure that<br />

1. they have specific<br />

because your neighbor’s attorney was successful with your district<br />

school doesn’t necessarily mean that the same will be true for you<br />

and your child. Ask around – the local bar association will likely<br />

have a list of special education attorneys, and private schools you<br />

are interested in or professionals who have worked with your child<br />

may also have recommendations of attorneys. A great resource<br />

for special education attorneys is the directory of the Council<br />

of Parent Attorneys and Advocates, or COPAA. COPAA is a<br />

national nonprofit organization dedicated to advancing the rights<br />

of students and their families in matters of special education and<br />

disability rights; they maintain a directory of member attorneys<br />

which can be useful for families beginning the special education<br />

experience in special<br />

education law<br />

2. they have experience<br />

representing students with<br />

your child’s learning profile<br />

as well as the outcome you<br />

are attempting to achieve<br />

legal process. (www.copaa.org).<br />

for your student<br />

3. they have experience with<br />

your school district<br />

4. you understand how they<br />

are charging you for their<br />

services.<br />

Special education attorneys come to this field of law for many<br />

reasons, but in my experience, many of those reasons are personal.<br />

So many of the attorneys that I’ve met in Connecticut who<br />

represent parents in special education matters do so because they<br />

have personal experience as a parent of a child with an IEP. Their<br />

experience advocating for their own child in the special education<br />

system in many cases has acted as inspiration for their professional<br />

legal careers. Other special education attorneys have backgrounds<br />

as special education teachers, administrators, school psychologists,<br />

social workers. An increasing number of special education<br />

attorneys are entering this field of law because of experience they<br />

have had in the special education system themselves. As selfadvocates<br />

and special education attorneys, their experiences both<br />

inside the system and advocating for students within the system<br />

can be particularly compelling.<br />

11


Many a family has seen an attorney-client relationship run<br />

aground over a misunderstanding or lack of clarity around<br />

legal fees. While all attorneys are different and fee arrangements<br />

vary widely among attorneys and across regions and states, you<br />

should always have a clear understanding of how your attorney<br />

is charging you for his or her services. In Connecticut, attorneys<br />

can charge on a hourly basis or according to a flat fee retainer,<br />

and the way in which an attorney bills may be a factor in the<br />

attorney you select to represent your family. You should ask your<br />

prospective attorney clear questions about the billing process –<br />

now is not the time to be shy about money! Having everything<br />

up front from the beginning will go a long way to eliminating any<br />

future miscommunications or misunderstandings about fees or<br />

fee structures. Finally, you should always ask your attorney for<br />

an estimate of what he or she believes your case will take in terms<br />

of time, and therefore money. While some things are not controllable<br />

(the response of the school district in the process is the<br />

biggest unknown), all attorneys should be able<br />

to give you a ballpark estimate of what your case<br />

will cost you in terms of hours and dollars, with<br />

certain caveats in mind.<br />

Finally, very often parents reach out to a special<br />

education attorney because they’ve reached an<br />

impasse or an obstacle in their child’s<br />

educational journey, and they cannot move<br />

forward without support. But what can you do<br />

if you can’t afford the thousands of dollars in<br />

retainer fees that most attorneys charge to let<br />

you walk in the door? Special Education Legal<br />

Fund was founded on this premise: that all<br />

families deserve equal access to full advocacy<br />

efforts for their children. By providing over<br />

$350,000 in grants since 2018 to families in<br />

35+ Connecticut & Westchester County,<br />

New York school districts, S.E.L.F. has<br />

endeavored to level the playing field for all families in special<br />

education regardless of income or background. For more<br />

information about S.E.L.F. or to inquire about S.E.L.F. grants,<br />

please visit spedlegalfund.org.”<br />

M<br />

DISCLAIMER: This article contains material previously published online at<br />

spedlegalfund.org. The guide(s) referred to in this article was written by a parent<br />

for parents. This article is intended as a resource for families who are navigating the<br />

special education system in Connecticut or Westchester, New York and is meant to<br />

provide a basic understanding of special education attorneys in those regions from a<br />

parent’s perspective, with an emphasis on attorneys who practice on behalf of<br />

children and families. This article is not intended to provide legal support, advice,<br />

or assistance, nor is it intended to replace the advice of a qualified special education<br />

attorney. Families in need of legal advice, support, and assistance should contact a<br />

special education attorney licensed to practice in Connecticut, New York, or their<br />

specific state to discuss the specific needs of their individual student.<br />

12


ScHooL and HomE<br />

The pandemic has upended virtually<br />

every aspect of life; including work,<br />

recreation, and school. For many of<br />

us, everything (or at least most things)<br />

home-school their children and follow<br />

the guidelines from the state related to<br />

home-schools (which are considered<br />

private schools).<br />

are now done at, or from, home. And<br />

for our children, that includes school,<br />

so many parents are, for the timebeing,<br />

in effect, home-schooling.<br />

Home-schooling families are not just<br />

left on their own (unless they want<br />

to be, of course). There are people,<br />

organizations and resources that can<br />

However, parents whose children<br />

are enrolled in their district’s public<br />

schools and are doing remote<br />

learning because that’s the only<br />

option their district currently<br />

offers are not home-schooling per se.<br />

Home-schooling families are those<br />

who have made a voluntary choice to<br />

help them set up and operate their<br />

home-school and join with other<br />

home-schooling families. One such<br />

person is Fiona Sifontes, Owner/CEO<br />

of NYAdvocates4Kids. In addition to<br />

her Educational Advocacy work, she<br />

has been involved in home-schooling<br />

for her own child.<br />

13


HomEScHooLiNg<br />

One may think of homeschooling,<br />

where students remain at home and<br />

learn online and/ or parents provide<br />

the curriculum. Yes, that may be true<br />

in some households but not all.<br />

Homeschooling has come such a<br />

long way, with diversity, homeschool<br />

co-op’s, social gatherings, class trips,<br />

classes at museums, galleries, and<br />

even private art/ music studios,<br />

family programs, concerts,<br />

architecture, and parks and playgrounds.<br />

Homeschooling is legal<br />

in the United States, and each state<br />

sets its policies and procedures for<br />

homeschooling. Some states have<br />

no requirements, while others want<br />

parents to submit certain forms and<br />

follow specific procedures. Please<br />

check with your state before initiating<br />

Homeschooling to prevent any legal<br />

actions against you, the parent. Your<br />

student can get the attention they<br />

need with co-op classes with low<br />

student-to-instructor ratios. Plus,<br />

meet friends who may be your<br />

friends for years or even family.<br />

There are tons of activities for<br />

students in New York who opt to<br />

homeschool. Due to this unprecedented<br />

time we are all facing, Homeschooling<br />

has become an integral<br />

part of learning. But to call virtual<br />

learning homeschooling is a stretch.<br />

I’ve homeschooled my son way<br />

before this pandemic and continued<br />

through high school. Without joining<br />

a homeschool co-op, I would’ve been<br />

lost and my son wouldn’t have the<br />

friends he has throughout the years of<br />

his homeschool learning experience.<br />

Yes, this experience can be daunting<br />

in deciding whether to homeschool<br />

or not, and dealing with the administrative<br />

and bureaucratic requirements<br />

of the New York Department of<br />

Education (NYDOE) may be<br />

overwhelming, but not giving it a<br />

chance, one can’t speak on what<br />

Homeschooling endures.<br />

14


There’s an abundance of programs for<br />

homeschoolers in New York, and let’s not<br />

forget Homeschoolers can get IDs as well<br />

from organizations like Homeschool Buyers<br />

Co-op, Zazzle, or HSLDA, to name a few.<br />

If you want your student to receive a State<br />

ID and who lives in NYC, one can get an<br />

NYC ID at the youngest age of 10. NYC<br />

ID gives you offers from free to discounted<br />

events, such as museums and cultural<br />

institutions, theaters, libraries, and<br />

educational programs, etc.<br />

Below are Homeschool Resources in<br />

New York:<br />

NYC DOE for Homeschoolers:<br />

333 Seventh Ave, Floor 7, New York, NY<br />

10001, 917-339-1793<br />

Fearless Homeschooling:<br />

339 West 47th St, Third Floor,<br />

New York, NY 10036, 917-816-1070<br />

Different Directions:<br />

339 West 47th St, Third Floor,<br />

New York, NY 10036, 917-816-1070<br />

The ROC Network for Learning:<br />

2nd Ave & East 2nd St, New York,<br />

NY 10003, 646-854-4762<br />

M<br />

Publishers Note: This article is one of a series of articles<br />

Milestones Magazine is working on about Home-Schooling.<br />

The article included in the previous edition of Milestones<br />

Magazine focused on home-schooling resources in Illinois.<br />

Planning<br />

Licensed to practice in<br />

California and Colorado<br />

for a Child with<br />

Special Needs?<br />

Learn about the<br />

Special Needs Trust<br />

for Free<br />

Email for your free<br />

Family Asset Protection<br />

Survival Guide or call for<br />

your free consultation<br />

with Diedre Braverman,<br />

Special Needs<br />

Planning Attorney.<br />

melanie@braverman-law.com<br />

303-800-1588


PLAY<br />

LIFE<br />

for<br />

One old saying, drilled into the minds of many teachers and<br />

parents, is that “children learn through play”. And despite the<br />

prevalence of computers, smartphones, and other “devices”,<br />

children still need to play: at home, at school, and at day care.<br />

However, for children who have physical, sensory, cognitive,<br />

or motor difficulties, playing itself provides significant, if not<br />

insurmountable challenges. A child may not know how to play<br />

with other children. He or she may have physical difficulties<br />

preventing him or her from reaching or accessing toys or<br />

play equipment.<br />

There are well-known types of therapy (occupational and<br />

physical, for example) that address some of these issues for<br />

children. Less well-known, perhaps, are therapies such as play.<br />

And one type I wasn’t aware of is called Recreational Therapy.<br />

I am pleased to introduce Jeanne Hastings, who is in private<br />

practice as a Recreational Therapist, and has developed a free<br />

tool on her website to help people find certified and licensed<br />

recreational therapists. Jeanne will let us know what recreational<br />

therapy is, and how it can develop and enhance play and social<br />

skills in children with and without disabilities.<br />

16


“Recreational Therapy is probably the best kept secret in<br />

healthcare. In fact, most likely the first time someone would<br />

have contact with a Recreational Therapist would be in an<br />

institutional rehabilitative setting. I first heard about<br />

Recreational Therapy and Therapeutic Recreation when I was<br />

PLAY<br />

for<br />

a junior in High School. That was 1975. I always knew at the<br />

time that I wanted to work with people with disabilities and<br />

disorders, but I was not sure what profession would best<br />

fit my own personal talents and interests.<br />

That is when I heard that our local Community College had a<br />

curriculum called Therapeutic Recreation. After two years at the<br />

community college, I was hooked. I discovered a profession that<br />

was centered on improving the quality of life of people through<br />

play. Upon graduation I continued my studies in Therapeutic<br />

Recreation at SUNY Brockport graduating in 1981 as a<br />

Certified Therapeutic Recreation Specialist, CTRS. Later I<br />

earned my Master of Science degree in Therapeutic Recreation<br />

from the University of Tennessee and have enjoyed a career as<br />

a Recreational Therapist for 40 years.<br />

LIFE<br />

Recreation, play, and leisure have always been taken for granted.<br />

It’s a given that anyone can enjoy play and participate in sports<br />

and recreation. The mind set has always been if you want to try<br />

new things all you need do is go and do it. You want to ride a<br />

bike? Go do it. You want to ski or go out to a social event; you<br />

just go and do it. If we told our parents that we were bored we<br />

were told to “go out and play” Now let’s say you are involved in<br />

a tragic accident or you are crippled with social anxieties, mental<br />

illness, or physical barriers. Going out to “play” takes on a whole<br />

new challenge. That’s where a recreational therapist can help.<br />

All throughout my career the one question that I have been<br />

asked most frequently is, “What is a Recreational Therapist?”<br />

This question was usually followed by do you play “BINGO<br />

and go out on trips”? The answer is, yes. We play BINGO<br />

and go out on trips but there is so much more to it than that.<br />

The clinical answer to that question is best stated by the<br />

American Therapeutic Recreation Association, ATRA,<br />

(ATRA-online.com).<br />

ATRA states, “Recreation Therapy, also known as therapeutic<br />

recreation, is a systematic process that utilizes recreation and<br />

other activity-based interventions to address the assessed needs<br />

of individuals with illnesses and /or disabling conditions, as<br />

a means to psychological and physical health, recovery and<br />

wellbeing. Recreational Therapy means a treatment service<br />

designed to restore, remediate, and rehabilitate a person’s<br />

level of functioning and independence in life activities, to<br />

17


promote health and wellness, as well as reduce or eliminate the<br />

activity limitations and restrictions to participation in life<br />

situations caused by an illness or disabling condition.”<br />

(ATRA May 2015).<br />

We, as professionals, work in rehabilitation as well as<br />

habilitative services. Habilitative by helping people keep, learn,<br />

or improve skills and functioning for daily living and also<br />

rehabilitative services that help a person keep, get back, or<br />

improve skills and functioning for daily living that have been<br />

lost or impaired because of being sick, hurt or disabled. We<br />

work basically the same as any rehabilitative service such as<br />

physical therapy, or occupational therapy but the biggest<br />

difference is our interventions.<br />

We utilize the clients recreational and leisure interests to bring<br />

about the desired positive changes. We are one of the first<br />

professions to provide person centered care with the goal<br />

PLAY<br />

for<br />

always to improve the quality of life of the individual. One way<br />

to improve the quality of life is through play, recreation, and fun.<br />

Although we all work to improve the physical well-being of the<br />

individual, recreational therapy also focuses on the emotional,<br />

mental, and social health of that person.<br />

Throughout my 40-year career as a recreational therapist I have<br />

had the opportunity to work with so many wonderful, gifted<br />

people in all types of treatment settings. The one treatment<br />

LIFE<br />

setting that I found to be lacking access to recreational<br />

therapy was in home health. Not only were our services<br />

unavailable but there was no easy way to find a Recreational<br />

Therapist in the community.<br />

That is why I created My Recreation Therapist LLC. My<br />

Recreation Therapist (myrecreationtherapist.com) is a FREE<br />

tool that anyone can use to find and hire their own Licensed or<br />

Certified Recreational Therapist. All a person needs do is sign<br />

up, create a profile, and describe the “job” you would like to fill.<br />

Once joined the person will have access to thousands of CTRS<br />

and LRT’s all-over North America. With a Recreational<br />

Therapist joining your treatment team you will have the most<br />

qualified professional to address quality of life issues through<br />

play, recreation, and leisure to help reach the individuals highest<br />

level of life satisfaction while improving their physical, mental,<br />

emotional and social health. Play is medicine.<br />

If you would like more information about this life changing<br />

profession, please feel free to visit our site at<br />

www.myrecreationtherapist.com.”<br />

M<br />

18


EXCEPTIONAL SPORTS<br />

When parents are looking for a<br />

recreational/sports program for their<br />

child, they don’t always find the right<br />

fit. This can be true for typically developing<br />

children, but perhaps even more so<br />

for children with challenges. Park<br />

districts typically offer accommodations,<br />

and special recreation associations<br />

and/or Special Olympics may fit the bill<br />

for some families, but other families go<br />

their own way.<br />

weeks. The program has served 50-80<br />

athletes weekly. Its initiatives include<br />

a bowling program that has met 3<br />

Saturdays monthly at a local alley<br />

called Bowlero. The program charges<br />

a nominal fee to bowlers and is<br />

otherwise supported with (generally)<br />

tax deductible donations. The program<br />

was named the Murrieta Chamber of<br />

Commerce Non-Profit of the Year for<br />

2019. The mission of the program is<br />

social interaction through recreation (in<br />

One such family founded Exceptional<br />

other words, fun and conversation).<br />

Sports, based in the southern California<br />

wine country town of Murrietta.<br />

This program, like just about everything<br />

we have taken for granted, was<br />

Exceptional Sports started about 10<br />

years ago, to fill a gap created when<br />

Special Olympics cut its program<br />

suspended due to COVID-19. The<br />

organizers hope to start up again<br />

soon. For more information visit their<br />

locally down from year-round to 10<br />

Facebook page.<br />

M<br />

The founder of Exceptional Sports is Jeffrey Nickerson,<br />

19<br />

a “special needs” parent and lawyer specialized in estate planning and special<br />

needs trusts. He and his wife run the Exceptional Sports program together.


Carving<br />

out a<br />

JOB<br />

Finding/keeping a job, especially the first job, can<br />

be a struggle for anyone. That old “Catch-22”, “you<br />

can’t get experience without a job; you can’t get a<br />

job without experience” can be an obstacle for<br />

anyone. This can be especially true for people with<br />

challenges; my younger son being a case in point.<br />

He has autism and some cognitive impairment. His<br />

only real work experience is as “team member” at a<br />

greenhouse whose mission is to provide job training<br />

for people with disabilities.<br />

We Grow Dreams remains my son’s only job experience to date.<br />

He has been declared “not work-ready” by the Division of Rehab<br />

Services (twice, in fact). It’s a real struggle. His story is not unique;<br />

it’s shared by many thousands locally, regionally, and nationally.<br />

disabilities, and increased workforce<br />

On that note, I am pleased to introduce Garret Rosiek, HR<br />

engagement at Bazaar Inc.<br />

Generalist at Bazaar Inc. This company sponsors an initiative to<br />

increase the percentage of people with disabilities in the workforce.<br />

I’ll turn it over to him to write all about it.<br />

How have we been able to succeed<br />

with this disability and inclusion<br />

initiative during the COVID-19<br />

Disability Inclusion at The Bazaar Inc<br />

At The Bazaar, Inc., our long-term goals involve hiring 50% of the<br />

workforce with people with disabilities.<br />

Pandemic? There were many<br />

variables, but the main components<br />

contributing to this change initiative<br />

include top-down support, job<br />

What is the motivation behind this? Besides giving individuals of<br />

diverse backgrounds an opportunity to step into a career and work<br />

carving roles, and altering the<br />

human resources department.<br />

environment, the data collected from our current workforce has<br />

shown positive long-term benefits of having a more significant<br />

percentage of the workforce people with disabilities.<br />

Top-Down Support: This diversity and<br />

inclusion initiative started with our<br />

CEO Bradley Nardick. At The Bazaar,<br />

At The Bazaar Inc, we have 22% of our workforce with disabilities,<br />

which translates to 28 individuals in the company. This includes<br />

individuals with disabilities, veterans, second-chance employees,<br />

and people who have experienced homelessness. The employee<br />

turnover is only 32% for individuals with diverse backgrounds<br />

than 76% turnover for individuals without disabilities.<br />

Inc. we are fortunate to have the<br />

company’s CEO be as passionate<br />

about diversity and inclusion as<br />

Bradley Nardick is. The company<br />

has been able to allocate resources,<br />

energy, and money to grow our<br />

diversity and inclusion initiative.<br />

There have been notable improvements among our employees since<br />

implementing the following strategies company-wide. Changes<br />

internally have created increased communication and collaboration<br />

There have also been significant<br />

changes in the company’s strategic<br />

planning over the past five years.<br />

with managers and staff, higher success rates for those with<br />

21


The changes include investing in disability inclusion consultants,<br />

building community support partners, and altering many different<br />

standard operating procedures to create a universal design with the<br />

workplace that better supports people from all different types of<br />

diverse backgrounds.<br />

Job Carving Roles: The purpose of job carving is to take one job<br />

and simplify it into multiple roles. The various functions are then<br />

further analyzed, and task fluency is developed from one task to the<br />

next. This creates more job opportunities with particular positions,<br />

which can be very beneficial for an individual with a disability or<br />

someone entering a new workplace environment. At The Bazaar,<br />

Inc. we perform job carving by assessing our daily operations and<br />

identifying areas that need improvement. After we find areas that<br />

needed improvement, we can job carve out multiple roles for<br />

Helping people<br />

with disabilities<br />

veterans<br />

second chance<br />

employees<br />

and people who have<br />

experienced<br />

homelessness<br />

certain positions. This process has helped our company create more<br />

roles for people with disabilities across a broader spectrum<br />

and give more opportunities for success within<br />

our organization.<br />

Alternating Human Resources:<br />

The Bazaar, Inc. altered their human<br />

resources department and brought in an<br />

employee with previous experience in<br />

applied behavior analysis and had<br />

worked with individuals with<br />

disabilities across a wide spectrum.<br />

This employee, Garret Rosiek, also<br />

has education in organizational and<br />

industrial psychology and has used<br />

his areas of expertise to create performance<br />

reviews, company-wide<br />

training and development,<br />

specialized onboarding, and has<br />

been able to train other staff how to<br />

work with individuals with various<br />

disabilities. Due to the changes made<br />

in the HR department, those working at<br />

this organization are now better supported<br />

within the organization and there have been<br />

notable improvements with collaboration among<br />

employees from all backgrounds.<br />

communication and collaboration<br />

The Bazaar Inc is dedicated and determined to have at least<br />

50% of the workforce include people from diverse backgrounds.<br />

This includes people with disabilities, veterans, second chance<br />

employees, and people who have experienced homelessness. We<br />

believe everyone should have an opportunity to work if they<br />

desire that opportunity and we are driven to progress the<br />

workplace with our diversity and inclusion initiative. At The Bazaar<br />

Publisher Note:<br />

Garret Rosiek can be reached at<br />

1900 5th Ave, River Grove IL 60171<br />

267-265-8172<br />

grosiek@thebazaarinc.com<br />

Facebook<br />

thebazaarinc.com<br />

Inc our vision is one of hope and inclusion as we move towards a<br />

more progressive and diverse culture for the future of our company.<br />

We hope to see you there soon!<br />

22


23<br />

Happy Trails


Many children, with a variety of conditions, such as Cerebral Palsy<br />

and Autism, have physical and coordination difficulties that require<br />

occupational therapy. The therapy often involves working with toys,<br />

feeding utensils, and other devices to improve a child’s skills in<br />

various areas.<br />

They use both hippotherapy (use<br />

of the movement of the horse) and<br />

equine interactions and the equine<br />

environment (use of the<br />

horse’s environment).<br />

However, there are some therapy practices that take a bit more unusual,<br />

albeit evidence-based, approach. One such organization is Brandywine<br />

Occupational Therapy, LLC, which use horses extensively in their<br />

practice and may add hippotherapy to their clients’ plan of care.<br />

Their practice treats folks of all ages<br />

with a variety of diagnoses, including<br />

Multiple Sclerosis, Stroke, Autism,<br />

Traumatic Brain Injury, Sensory<br />

Processions Disorder, Low Muscle<br />

The following information comes straight from the horse’s mouth (o.k.,<br />

actually from the website of Lauren Janusz, operator of Brandywine<br />

Occupational Therapy). It has been edited and summarized.<br />

Tone, Down Syndrome, Cerebral<br />

Palsy, Developmental Delays, Spina<br />

Bifida, and Chromosomal Disorders.<br />

“Brandywine Occupational Therapy, LLC provides occupational<br />

Happy Trails to you!<br />

therapy with the help of a horse!”<br />

24


Helping Individuals with Disabilities & their Families<br />

Achieve & Celebrate Events & Milestones in their Lives<br />

Connections child care<br />

Child Care Connections links families to child<br />

care suited to children with challenges.<br />

Child Care Connections also provides informational<br />

articles (referencing North Carolina University<br />

Extension Service) about adapting child care<br />

Features a registry that both parents and providers<br />

can Sign-Up for when they are looking for, or offering,<br />

care for children with various challenges, such as<br />

programs to children with special needs. Once you<br />

sign-up you’ll receive the article Adapting the Child<br />

Care Environment for Children with Special Needs.<br />

developmental disability, autism, hearing impairment,<br />

vision impairment, and more!<br />

Check out our website: milestonesmagazine.net<br />

21

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!