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Winter 2020

Susie Redfern developed Milestones Magazine to help individuals with disabilities and their families achieve and celebrate events and milestones in their lives.

Susie Redfern developed Milestones Magazine to help individuals with disabilities and their families achieve and celebrate events and milestones in their lives.

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sitting in the audiologist’s office<br />

and her giving us the diagnosis. Our<br />

daughter had severe to profound<br />

hearing loss. The severity and<br />

magnitude of those words didn’t<br />

quite register with me.<br />

“Are you saying she’s deaf?” I had to ask<br />

her. The audiologist responded, “You<br />

could say that, yes.”<br />

I was devastated. I felt as though life, as<br />

I knew it, was over. What would raising<br />

a child with additional needs look like?<br />

Would she be okay? What would happen<br />

to my career? What would people think<br />

of her? Of me? Did I do something to<br />

cause her hearing loss? How would my<br />

older daughter cope with all of this?<br />

I was spiraling, but I knew that somehow,<br />

I had to bounce back and be strong<br />

for Ellie and my family. I had to push<br />

the negativity aside and get through<br />

the fear and uncertainty. The following<br />

principles helped me find my bearings<br />

and get back on track. I’m sharing them<br />

for anyone who’s in a difficult place and<br />

needs a little help finding their way.<br />

Helplessness Gives Way to Courage.<br />

After Ellie’s diagnosis, every<br />

insecurity I had about myself seemed<br />

to fall away. I didn’t have time to<br />

over-analyze my weaknesses<br />

anymore. At once, I was completely<br />

vulnerable, but as I became her<br />

advocate, my strength, fortitude,<br />

and resilience grew.<br />

When the shelter-in-place order<br />

began, I started teaching kids yoga<br />

classes online because I wanted to<br />

provide a way for parents and kids to<br />

connect and stay active. Ellie also had a<br />

positive response to yoga acting<br />

out different animal sounds and<br />

combining language with movement.<br />

This inspired me to use it as a tool to<br />

teach her and other kids with similar<br />

diagnoses. What started out as a<br />

fulfilling passion blossomed into my own<br />

business, Hop Along Yogi Kids Yoga,<br />

something I never dreamed<br />

of or even considered doing, but<br />

overcoming my fears associated<br />

with Ellie’s diagnosis gave me the<br />

confidence and courage to tackle<br />

any challenge thrown my way. I kept<br />

reminding myself that it’s not about<br />

where I’ve been but where I’m<br />

about to go.<br />

Tiny Victories<br />

Create Big Momentum.<br />

When your child has a health issue,<br />

you become hyper aware and hyper<br />

consumed by their progress. Along the<br />

journey, you value mini-milestones,<br />

even more than the great, big milestones.<br />

With Ellie, her first word was<br />

so amazing but the initial babbles, the<br />

learning-to-listen sounds (moo, shhh,<br />

ahhahh) created an even greater sense<br />

of pride because I knew we were on the<br />

right path. We celebrated (and will<br />

continue to celebrate) every tiny victory<br />

because each mini-milestone is the<br />

catalyst to an even greater achievement.<br />

5

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