Kidney Matters - Issue 9 Summer 2020

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In this Summer issueFeatures4Keeping6It’s12it together – whilststaying apartMaintaining mental and physical healthduring extended periods at homea weighting gameThe place of weight management in thetransplant assessment work-upLife, loves, cross-dressing, andfishing on the AvonBrian Bennet on long-term dialysis andmaking the very best of itSports update3032My Fit-mums class and trainingfor the 2020 London marathonKevin Wilkie on training and setting goalsOliver’s 2019 Transplant GamesOliver and his family’s voyage of discoveryat the GamesPage122226Who cares for the carer?Understanding the impact of our chronickidney disease on those around usThere’s no place like homeLooking at the Welsh study exploringdialysis in the communityMedical14Prednisolone: hero or villain?Why we still use corticosteroids-steroidsas part of immune-suppressing therapyIn the Kidney Kitchen18Cherry filo tartsBake a perfect pudding in the KidneyKitchen with Chef RipleyWish you were here36Page5Enjoying HampshireGraham and Maureen Norman spend timeat St Anne’s in HavantPage6
3Welcome toKidney MattersCoronavirus (COVID-19)update from Paul Bristow,Chief ExecutiveHelloA lot has changed since the last edition of KidneyMatters, and we find ourselves living through turbulenttimes. Patients and their families are naturallyconcerned about the impacts of Coronavirus ontheir health and wellbeing. Here at Kidney Care UKeveryone is working as hard as they can to provide theadvice and support that patients need.It’s hard to know what the landscape will look like bythe time you’re reading this message. Because of thiswe’ve not included specific advice about Coronavirusin this edition of Kidney Matters and are asking forpeople to instead refer to our website(www.kidneycareuk.org/coronavirus) where we areupdating advice as it is received here.These are unchartered waters, and we’re all learninghow to navigate them together. What I have learnedin my time at Kidney Care UK, is that when things aredifficult the whole kidney community pulls together tosupport each other. At Kidney Care UK, we will do ourbit to make sure no one feels alone.Please look after yourself and stay safe.Paul Bristow,Chief Executive, Kidney Care UK©Kidney Care UK 2016 is the operating name of the British KidneyPatient Association. A charitable company limited by guarantee.Registered in England and Wales (1228114). A charity registeredin England and Wales (270288), and Scotland (SCO48198).Kidney Kitchen is a registered trademark of the British KidneyPatient Association.Who’s whoMessagefrom theeditorWelcome to the summer issue of Kidney Matters.We are all affected by recent events and apartfrom doing everything in our power to keep safe(and sane) in the coming weeks, many of the majorevents in our kidney-world calendar have beenpostponed. So, for a while we have to get used to anew norm, ‘social-isolation’. An unnatural state forthose of us who like company, that’s for sure. Here’sto a massive hug-athon later in the year!If you’re one of the wonderful NHS staff or supportworkers looking after us, thank you, from the bottomof our heart.We here in the Kidney Matters team don’t have amagic wand to make it all disappear, but what we cando is bring a little joy into your day by sharing someof the great contributions you have sent in to us.We hope you love our front-page star, ‘Marilyn’ (akaBrian Bennet). We also offer some hints on how tokeep busy through extended periods at home, lookat the place of weight in chronic kidney disease, andbake up a tasty treat in the Kidney Kitchen.Whatever your personal circumstances, keep well,remain positive, get in touch if you need our helpand know that YOU are part of this big kidney-patientfamily of ours. We’re all in this together.Take careDeborah DuvalEditor...............................................Deborah DuvalDeputy Editor............................................Sue LyonDesigner ...............idmedia (contact jd@idmedia.uk.com)Photographs ................Beth Druce www.bethdruce.comPrinting, Packing & Posting..........www.pollardsprint.co.ukGet in touchVisit: www.kidneycareuk.org E: info@kidneycareuk.orgCall us on: 01420 541424Kidney Care UK, 3 The Windmills, St Mary’s Close,Turk Street, Alton, GU34 1EFIssue 9 | Summer 2020
Page 1: Summer 2020Issue 09Drag queensand d
Page 5 and 6: 5And for the budding chefs, now rea
Page 7 and 8: 7So, does a high BMI number really
Page 9 and 10: 9were set at a pace I could realist
Page 11 and 12: LEARN MORE11Survivors: Life Unfilte
Page 13 and 14: 13“If someone like myself, who le
Page 15 and 16: 15step is to check that you are tak
Page 17 and 18: LEARN MORE17the first week of the t
Page 19 and 20: 19Cook along with Chef Ripley onlin
Page 21 and 22: 21Through these three elements - qu
Page 23 and 24: 23the day, began to get to me. One
Page 25 and 26: Members of the Kidney Care UK teamr
Page 27 and 28: LEARN MORE27Kidney Matters helps us
Page 29 and 30: 29It’s never too late...When 83 y
Page 31 and 32: 31Today I feel amazing, and that’
Page 33 and 34: 33We have never met anyone outside
Page 35 and 36: 06 35Become a#KidneyWarriorChalleng
Page 37 and 38: Us enjoying a nice cup of tea37
Page 39 and 40: Sign up foryour freecopyWhether you

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