Kidney Matters - Issue 9 Summer 2020
Kidney Matters is our free quarterly magazine for everyone affected by kidney disease.
This issue includes some advice on keeping busy during lockdown, tips on managing your diet and weight, insight into the life of a carer, and an interview with the fabulous 'Marilyn' (front cover). As well as this the we have some delicious kidney-friendly cherry filo pastry tarts in the Kidney Kitchen and our Kidney Clinic discusses the advantages and disadvantages of prednisolone.
Kidney Matters is our free quarterly magazine for everyone affected by kidney disease.
This issue includes some advice on keeping busy during lockdown, tips on managing your diet and weight, insight into the life of a carer, and an interview with the fabulous 'Marilyn' (front cover). As well as this the we have some delicious kidney-friendly cherry filo pastry tarts in the Kidney Kitchen and our Kidney Clinic discusses the advantages and disadvantages of prednisolone.
10C O N T I N U E DDiary of a KidneyWarrior: do or dieMy renal consultant told me I was six months awayfrom dialysis. My immediate response to this was, “Ohno, I’m not.” I was defiant and I wasn’t going acceptthis as my fate. He then told me that my BMI was toohigh for me to be placed on the transplant list and I satthere and thought, “God forbid I ever do need one; I’mtoo overweight to even be given the chance.”I left my appointment and experienced all sorts ofemotions: anger, fear, dread and then despair. I wentto see my health coach and she said something thattransformed my thinking, “You have to choose to live.”I sat there and repeated the words, “I choose to live,”over and over again until my spirit was recharged andthe defiance came back. I was determined that theweight that stood in the way of my options had to go, andI would fight to get myself as healthy as I could be. Thereality for me was that I couldn’t afford to do nothing. Ihad to do everything in my power to combat dialysis andfight for my own life. It was literally ‘do or die’.I started slowly by exercising once a week and startedsharing my weight loss journey online and encouragingothers to train too. I started to eat healthier foods andbegan to think that everything I ate could either takeme towards, or away from my goals. It was worth all ofthe sacrifice. I slowly built up to training four times aweek and over the Christmas period I completed myfirst 10-day challenge, where I exercised 10 times in 10days. I have lost nearly 13kg (2st) so far... and I’m not ondialysis!Why not join me on my journey?Read my Blog at:https://www.kidneycareuk.org/kidney-warriorjourneyor follow me at:Instagram: @diaryofakidneywarriorFacebook: www.facebook.com/diaryofakidneywarriorTwitter: @diaryofakidneyw“I was determined that theweight that stood in the wayof my options had to go, andI would fight to get myself ashealthy as I could be“Article by Dee Moorekidneycareuk.org
LEARN MORE11Survivors: Life Unfiltered - ChronicKidney Disease exhibitionSurvivors: Life Unfiltered is a creative project betweenRichard Booth, award-winning photographer andCreative Director, and Maddy Warren aka ‘Queen ofDialysis’, long-term dialysis patient and advocate.They both share a passion to raise awareness of howlearning to live with chronic kidney disease (CKD) andexperiencing life-saving dialysis or a transplant, canchange a person’s world forever. The stories of survivalare powerful, devastating and life affirming; yet theyremain relatively hidden from the public eye whereawareness and understanding are still low.Fez AwanTara BashfordOver 35 individual people and families, aged fromtwo to 78, have been filmed, photographed andinterviewed for the exhibition. Images and filmsgraphically illustrate the diversity of those affectedby kidney disease, and shines a light on many of thechallenges we all encounter, by contrasting the face,the ‘us’ we portray to the outside, with some of therealities of this often invisible condition. The exhibitionhopes to travel around the UK in the future and willbe showcasing at a venue near you. Take a look at thewebsite for details of dates and venues.“The stories of survival arepowerful, devastating and lifeaffirming; yet they remainrelatively hidden from the publiceye where awareness and understandingare still low“For further information on thisexhibition, go to:The Andrews FamilyRichard and Maddy are grateful to their sponsors: QuantaDialysis Technologies, Kidney Research UK and Kidney Care UK.All images and text copyright © Richard Booth 2020www.survivorslifeunfiltered.co.ukInstagram: @survivorslifeunfilteredFacebook page:Survivors Life Unfiltered - kidneydisease exhibitionIssue 9 | Summer 2020
- Page 1 and 2: Summer 2020Issue 09Drag queensand d
- Page 3 and 4: 3Welcome toKidney MattersCoronaviru
- Page 5 and 6: 5And for the budding chefs, now rea
- Page 7 and 8: 7So, does a high BMI number really
- Page 9: 9were set at a pace I could realist
- Page 13 and 14: 13“If someone like myself, who le
- Page 15 and 16: 15step is to check that you are tak
- Page 17 and 18: LEARN MORE17the first week of the t
- Page 19 and 20: 19Cook along with Chef Ripley onlin
- Page 21 and 22: 21Through these three elements - qu
- Page 23 and 24: 23the day, began to get to me. One
- Page 25 and 26: Members of the Kidney Care UK teamr
- Page 27 and 28: LEARN MORE27Kidney Matters helps us
- Page 29 and 30: 29It’s never too late...When 83 y
- Page 31 and 32: 31Today I feel amazing, and that’
- Page 33 and 34: 33We have never met anyone outside
- Page 35 and 36: 06 35Become a#KidneyWarriorChalleng
- Page 37 and 38: Us enjoying a nice cup of tea37
- Page 39 and 40: Sign up foryour freecopyWhether you
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11
Survivors: Life Unfiltered - Chronic
Kidney Disease exhibition
Survivors: Life Unfiltered is a creative project between
Richard Booth, award-winning photographer and
Creative Director, and Maddy Warren aka ‘Queen of
Dialysis’, long-term dialysis patient and advocate.
They both share a passion to raise awareness of how
learning to live with chronic kidney disease (CKD) and
experiencing life-saving dialysis or a transplant, can
change a person’s world forever. The stories of survival
are powerful, devastating and life affirming; yet they
remain relatively hidden from the public eye where
awareness and understanding are still low.
Fez Awan
Tara Bashford
Over 35 individual people and families, aged from
two to 78, have been filmed, photographed and
interviewed for the exhibition. Images and films
graphically illustrate the diversity of those affected
by kidney disease, and shines a light on many of the
challenges we all encounter, by contrasting the face,
the ‘us’ we portray to the outside, with some of the
realities of this often invisible condition. The exhibition
hopes to travel around the UK in the future and will
be showcasing at a venue near you. Take a look at the
website for details of dates and venues.
“The stories of survival are
powerful, devastating and life
affirming; yet they remain
relatively hidden from the public
eye where awareness and understanding
are still low“
For further information on this
exhibition, go to:
The Andrews Family
Richard and Maddy are grateful to their sponsors: Quanta
Dialysis Technologies, Kidney Research UK and Kidney Care UK.
All images and text copyright © Richard Booth 2020
www.survivorslifeunfiltered.co.uk
Instagram: @survivorslifeunfiltered
Facebook page:
Survivors Life Unfiltered - kidney
disease exhibition
Issue 9 | Summer 2020
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