KIDNEY CITIZEN Issue 11
The Kidney Citizen is a quarterly informational magazine that provides articles, Q & A’s, dedicated topic supplements, and patient profiles. You can download the latest issue on https://www.dpcedcenter.org/news-events/the-kidney-citizen/ The Kidney Citizen is a quarterly informational magazine that provides articles, Q & A’s, dedicated topic supplements, and patient profiles. You can download the latest issue on https://www.dpcedcenter.org/news-events/the-kidney-citizen/
12 Tips toCope withChronicDiseaseBy Rachel Fintzy Woods,MA, MFTSo many aspects of life are beyondour control. When the challenges ofmanaging an illness such as chronickidney disease are added to our plate, wecan feel overwhelmed. Emotions such asanger, confusion, fear and sadness arecommon and natural, especially at theoutset of our journey with illness. It canseem as if our world has been turnedupside down.but also uplifting. We acknowledge andmanage our situation rather than denyingor attempting to flee reality.Some ways in which we can effectivelycope with troubling news or times:brainstorm and write down anything andeverything that comes to mind—don’t edityourself. Next, assess the pros and cons ofthe possibilities you’ve listed, then pareyour list down to two or three options.From here, choose what seems best to youoverall, and begin to break your actionsteps down into manageable chunks. Youcan always reevaluate your plan downthe line, but for now, making a choicecan settle down the mental whirlwind ofindecision and second-guessing yourself.8Yet we do have some say in how we dealwith the cards we’ve been dealt, includingour medical condition and life itself. Wealone are responsible for our actions andour attitudes—the word “responsibility”refers to our ability to respond, afterall. We can expand our repertoire ofcoping skills. We can learn to manage ourdistressing feelings and to effectively dealwith our day in, day out circumstances.As we do so, over time we can grow inpatience, resilience and self-compassion—all of which will benefit us and thosearound us.Choosing constructive coping mechanismsmeans that we’re taking care of ouremotional and physical well-being. Weaccept our present situation and makehealthy choices. We modify how weperceive our situation, our future and theworld in ways that are not only bearableyourself about thesituation. Avoid jumping to1.Educateconclusions. Stick with the facts.As compelling as it may feel to surf theInternet for information, much of whatis out there is inaccurate or based ontheories or opinions—some of whichcan scare the wits out of you. If you havequestions about your medical condition,consult an expert such as your personaldoctor and specialists to whom you’vebeen referred, so you can get advice that’stailored to your specific situation.2.Look at all your options.However daunting the situation,you probably have somereasonable alternatives. At first, just3.Practice good self-care. Moderateand healthy meals, as well assufficient sleep and exerciseseveral days a week (as you are able) willsupport your immune system, help toregulate your emotions and increase yourability to mentally focus. If we don’t takecare of our bodies, we increase the chancesof catching infections, becoming moody,or feeling cognitively dull or confused.Do your best to avoid short-term “fixes”such as too much alcohol, illegal drugs
(or prescription drugs for unintendedpurposes), compulsive eating or excessivesleep—none of which help in the long runand may compound your problems.4.Prioritize social connections.Supportive friends and family canbe important sources of comfort,feedback and distraction. None of us is anisland. We all need at least one person tosupport and cheer us on. Also, catching upon what’s going on in other people’s livescan give you a better perspective of yourown situation while strengthening yourbond to others.5. of a specific religion, a benevolentTake time to pray and meditate.Whether you believe in the Godforce in the universe, nature, or someother Higher Power, a support group,or just that there’s something biggerand more powerful than you, take timeto connect with this power. It can be atremendous relief to remember that youneedn’t (and can’t) have all the answers.Turn your problems over to this power,request that the right answers be revealedto you at the appropriate time, sit inthe silence and have faith that you’ll beprovided with the wisdom to do what’snecessary.6.Remember what’s mostimportant to you. What areyour priorities? Does how youspend your time reflect your values? Fora week or so, keep track of your activitiesand how much time you devote to yourpursuits. You may discover that you’vewasted time doing things that reallydon’t matter to you. For instance, do youreally need to spend hours perusing eBay,binge-watching TV or debating the latestpolitical debacle? Remember that none ofus gets more than 24 hours in a day. Useyour time wisely.7.Balance your musts and yourwants. Maintain a healthy balancebetween activities you must do andactivities you want to do. We all need timeto regain our strength and energy—thusthe term recreation (re-creation). Onlydoing things you have to do can wear youdown and lead to a sense of “what’s thepoint.” That being said, only doing thingsyou want to do can be self-indulgent.Ideally, do at least one item from both listsevery day.8.Maintain important routines.When we’re dealing withuncertainty and change, stickingwith some familiar and honored routinescan grant us some inner peace and a senseof control. If you enjoy reading the morningpaper while sipping your tea, keep this up.If you eagerly anticipate taking an eveningbath (if you do not have a catheter),continue this practice. Retaining a familiarschedule can be calming and centering.Build your dialysis routine into a schedulethat includes some of your personalcalming and “want to do” activities, even ifit is doing them while on dialysis.9. robots. Our feelings of physical,Remember that some days willbe better than others. We are notmental and emotional well-being ebb andflow. Pace yourself accordingly. On dayswhen you’re particularly rundown or in afunk, don’t expect yourself to accomplishthe same amount as you accomplishedyesterday, when you were feeling better.10. feelings. Are there friends,Have safe people and placeswhere you can express yourfamily members, a therapist, a pastor or asupport group where you feel comfortablesharing what you’re going through?Verbalizing your experience can enableyou to come up with the best solutions foryou and can offer you the opportunity tocome to terms with what you’re feeling.Another option is to keep a journal. Evenif you don’t review your writing, theprocess of handwriting, which takes sometime, gives you the chance to sit withyour experience. Sometimes ideas andrealizations will pop into your mind thatmight have otherwise escaped you.11. manually with your handsTurn your attention to thephysical. Doing somethingor body, like kneading bread, knitting,sewing on a button, cleaning out a closetor washing the dishes can be a goodtemporary distraction. Focusing on aphysical activity can ground you in thepresent moment, instead of mulling overthe future, regretting the past or living ina fantasy land.12.Help someone else. Whenwe’re dealing with a personalcrisis, it can be easy to becomea bit self-involved. As an antidote, thinkabout who you might be able to assist.It doesn’t have to be a huge gesture inorder to lighten his/her load and brightenhis/her day. Talking to others at thedialysis center, calling a friend or sendingsomeone a card can also help to shift yourenergy away from your own concerns.Ideally, experiment with these suggestionsat a time when things are going smoothlyin your life. This way, you’ll havefamiliarized yourself with the strategiesbefore the next difficult time occurs.However, even if you’re currently goingthrough a rough patch and haven’tyet tried out these ideas, you can stillimplement them. We are all works inprogress. The truth is that we never get toa place where life is just smooth sailingfrom that point on. And thank goodness,because if this were the case, we probablywould eventually become bored and ceaseto grow. So you can look at your challengesas a golden opportunity to build yourstrength and wisdom.Rachel Fintzy Woods is a licensed Marriage and Family Therapist in Santa Monica, California.Rachel counsels in the areas of relationships, the mind/body connection, emotion regulation, stressmanagement, mindfulness, emotional eating, compulsive behaviors, self-compassion and effectiveself-care. Trained in both clinical psychology and theater arts, Rachel works with people to uncover anddevelop their unique creative gifts and find personal fulfillment. For 18 years, Rachel conducted clinicalresearch studies at University of California, Los Angeles in the areas of mind/body medicine and theinteraction of psychological well-being, social support, traumatic injury and substance use. You can readmore about Rachel on her website: www.rachelfintzy.com.9
- Page 1 and 2: issue number 11Reflectionsfrom 45 Y
- Page 3 and 4: Advancing CareCoordination forDialy
- Page 5 and 6: A First Step TowardIntegrated Care:
- Page 7: to make sure everyone got treatment
- Page 11 and 12: Prasad agrees. That’s why both ch
- Page 13 and 14: By Gloria Rohrer,DPC Patient Ambass
- Page 15 and 16: while the other does not. Sepsis ca
- Page 17 and 18: BranlayerEndosperm1. BulgurIs wheat
- Page 19 and 20: Capa desalvadoEndosperma1. BulgurEs
- Page 21 and 22: make sure not to schedule multiplee
- Page 23 and 24: There are multiple injection therap
12 Tips to
Cope with
Chronic
Disease
By Rachel Fintzy Woods,
MA, MFT
So many aspects of life are beyond
our control. When the challenges of
managing an illness such as chronic
kidney disease are added to our plate, we
can feel overwhelmed. Emotions such as
anger, confusion, fear and sadness are
common and natural, especially at the
outset of our journey with illness. It can
seem as if our world has been turned
upside down.
but also uplifting. We acknowledge and
manage our situation rather than denying
or attempting to flee reality.
Some ways in which we can effectively
cope with troubling news or times:
brainstorm and write down anything and
everything that comes to mind—don’t edit
yourself. Next, assess the pros and cons of
the possibilities you’ve listed, then pare
your list down to two or three options.
From here, choose what seems best to you
overall, and begin to break your action
steps down into manageable chunks. You
can always reevaluate your plan down
the line, but for now, making a choice
can settle down the mental whirlwind of
indecision and second-guessing yourself.
8
Yet we do have some say in how we deal
with the cards we’ve been dealt, including
our medical condition and life itself. We
alone are responsible for our actions and
our attitudes—the word “responsibility”
refers to our ability to respond, after
all. We can expand our repertoire of
coping skills. We can learn to manage our
distressing feelings and to effectively deal
with our day in, day out circumstances.
As we do so, over time we can grow in
patience, resilience and self-compassion—
all of which will benefit us and those
around us.
Choosing constructive coping mechanisms
means that we’re taking care of our
emotional and physical well-being. We
accept our present situation and make
healthy choices. We modify how we
perceive our situation, our future and the
world in ways that are not only bearable
yourself about the
situation. Avoid jumping to
1.Educate
conclusions. Stick with the facts.
As compelling as it may feel to surf the
Internet for information, much of what
is out there is inaccurate or based on
theories or opinions—some of which
can scare the wits out of you. If you have
questions about your medical condition,
consult an expert such as your personal
doctor and specialists to whom you’ve
been referred, so you can get advice that’s
tailored to your specific situation.
2.
Look at all your options.
However daunting the situation,
you probably have some
reasonable alternatives. At first, just
3.
Practice good self-care. Moderate
and healthy meals, as well as
sufficient sleep and exercise
several days a week (as you are able) will
support your immune system, help to
regulate your emotions and increase your
ability to mentally focus. If we don’t take
care of our bodies, we increase the chances
of catching infections, becoming moody,
or feeling cognitively dull or confused.
Do your best to avoid short-term “fixes”
such as too much alcohol, illegal drugs
Change language