KIDNEY CITIZEN Issue 11
The Kidney Citizen is a quarterly informational magazine that provides articles, Q & A’s, dedicated topic supplements, and patient profiles. You can download the latest issue on https://www.dpcedcenter.org/news-events/the-kidney-citizen/ The Kidney Citizen is a quarterly informational magazine that provides articles, Q & A’s, dedicated topic supplements, and patient profiles. You can download the latest issue on https://www.dpcedcenter.org/news-events/the-kidney-citizen/
issue number 11Board Membersand Advisory CouncilBoard MembersNancy Scott, PresidentJulie Crandall, Vice PresidentDiane Brisbane, SecretaryMike Guffey, TreasurerDonnie AndersonMerida BourjollyAndrew ConklingDanny IniguezAdrian MillerPius MurrayJack ReynoldsMaria RobinsonTracy WoodsonAdvisory CouncilKathryn Aebel-Groesch, LCSWSandra Amaral, MD, MHSAkhtar Ashfaq, MDKerri Cavanaugh, MD, MHSDebbie Cote, MSN, RN, CNN, NE-BCSteven Curtiss, MDElizabeth Jones, LCSWDavid L. Mahoney, MDRajnish Mehrotra, MDCheryl Neal, MDStacy Ogbeide, PsyD, MS, ABPPJessianna Saville, MS, RDN, CSR, LD, CLTVelma P. Scantlebury, MD, FACSJoanne Smith, RNJoan Thomas, MPA, CEM, ABCP, MEPSteve Wilson, MS, CSPPresident’sMessageIthink 2020 is a year of hope, new beginnings and challengesthat are not to be ignored. We need to continue to advocatefor ourselves, both politically and for our healthand well-being. It is helpful to know what bills arein Congress that can affect us, as well as, what wedo or do not do that can impact our quality of life.We need to be active and lifelong learners in botharenas.Many of us may feel overwhelmed by kidneydisease and the stressors and pain that it brings.You may be wondering how to find the energy tobe more involved when you are in pain, stressedand preoccupied with your health. Stress, whichcan be a part of both positive and negative events,can deplete a great deal of our energy. Decreasingstress is necessary. In this issue, you will learn about the “SpoonTheory” that looks at our energy level in another way. We also canreframe how we think about events—by focusing on the facts andnot catastrophizing the what ifs and what we can or cannot do.Our energy level does not increase or decrease our self-worth.If you are living with pain on a regular basis, you may findthat it is affecting both your physical and mental health. Painmanagement may be an important topic to explore to add toyour quality of life. Besides medication, you may find counselingand self-management steps to be helpful. Although we mayalways live with pain, we may find some ways to provide somerelief. The DPC Education Center also has a new online courseon “Understanding Pain and Effective Ways to Live with It.” Iencourage everyone to check it out!Kidney disease may affect our lives, but it does not define us.Throughout this newsletter, you will read articles that offer tipsand suggestions to live your life well. In addition to new bookletsfor teens with kidney disease, our new online program willcontinue to add new courses. Also, we will have monthly patienteducation webinars. Please explore our resources and watch forthe announcements of our monthly webinars—we have a lot moreto come. What an exciting year for the DPC Education Center!Sincerely,Nancy L. ScottDPC Education CenterBoard President
Advancing CareCoordination forDialysis Patients:An Update3
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Advancing Care
Coordination for
Dialysis Patients:
An Update
3
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