Winter Newsletter 07.qxd - Alzheimer's Association

Winter Newsletter 07.qxd - Alzheimer's Association Winter Newsletter 07.qxd - Alzheimer's Association

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Winter, 2007 Inside this issue: Chapter News 2 Winter Programs: 4 Memory Walk 6 Dear Stephanie 8 Save These Dates! 8 Support Groups 9 Recent Special 10 Events Memorials & 11 Tributes Research 1 2 ~ Our Mission ~ To eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. newscope Newsletter of the Hudson Valley/Rockland/Westchester, NY Chapter Published quarterly for our donors, volunteers, advocates, and friends in the Alzheimer’s community Building a Zenith Society By Claudine Larocque, Director, Principal Gifts, Alzheimer’s Association On Monday, Nov. 13, 2006, the Alzheimer's Association's Zenith Society hosted a special gathering of philanthropic and scientific leaders at the historic Waldorf-Astoria Hotel in downtown Manhattan. Members and guests heard from Association President and CEO Harry Johns and a panel of distinguished speakers on the state of Alzheimer research: Dr. Michael Wolfe, Associate Professor, Harvard Medical School and Brigham and Women's Hospital; Dr. Michael Hutton, Associate Professor, Mayo Clinic; Dr. Eric Siemers, Medical Advisor, Lilly Research Laboratories; with special remarks by Princess Yasmin Aga Khan, Honorary Vice Chair, National Board of Directors and General Chair,Alzheimer's Association Rita Hayworth Galas. ZENITH SOCIETY For sixteen years the Zenith program has represented the highest level of philanthropy and has set the bar on leadership giving at the Alzheimer's Association. As a group, Zenith members have played a direct and historic role in helping to create the leadership necessary for the Alzheimer research field to advance. Jerome H. Stone, founder and honorary chairman of the Association, conceived of the Zenith Program in 1990. He envisioned bringing together individuals from around the country who cared deeply about Alzheimer's disease and who had the means to turn this interest into action - by investing their philanthropic support in strategic and historically significant ways. With his leadership, Zenith members have collectively given over $36 million to the Association, creating the Zenith research grants program, which has grown to become one of the most distinguished awards in the scientific field, funding researchers from around the world. Perhaps most importantly, Zenith members have provided significant resources and attention to innovative areas of Alzheimer research at a time when others were not. Today, the Zenith members are a vibrant group of philanthropic leaders who are interested in the full mission of the Association: research - care - and prevention. Members are individuals and organizations that commit at least $1 million to the Alzheimer's Association. They are a diverse group of thoughtful, talented, and committed individuals who can more powerfully address the devastating impacts of Alzheimer's locally, nationally and globally through the Association and this program. THE ZANE/BENNETT ZENITH SOCIETY CHALLENGE The Zenith program has been issued an exciting leadership challenge by new members Sandy Zane and Ned Bennett. This husband and wife team has pledged $2 million to the Zenith program if the Alzheimer's Association can secure four new or renewing Zenith memberships. This is an outstanding opportunity for supporters considering the program to leverage their giving and help the Association secure $6 million in new monies towards our mission of a world without Alzheimer's. Don’t Miss the Public Policy Forum: March 18-20, 2007

<strong>Winter</strong>, 2007<br />

Inside this issue:<br />

Chapter News 2<br />

<strong>Winter</strong> Programs: 4<br />

Memory Walk 6<br />

Dear Stephanie 8<br />

Save These Dates! 8<br />

Support Groups 9<br />

Recent Special 10<br />

Events<br />

Memorials & 11<br />

Tributes<br />

Research 1 2<br />

~ Our Mission ~<br />

To eliminate<br />

Alzheimer’s disease<br />

through the<br />

advancement of<br />

research; to<br />

provide and<br />

enhance care and<br />

support for all<br />

affected; and to<br />

reduce the risk of<br />

dementia through<br />

the promotion of<br />

brain health.<br />

newscope<br />

<strong>Newsletter</strong> of the Hudson Valley/Rockland/Westchester, NY Chapter<br />

Published quarterly for our donors, volunteers, advocates, and friends in the Alzheimer’s community<br />

Building a Zenith Society<br />

By Claudine Larocque, Director, Principal Gifts, Alzheimer’s <strong>Association</strong><br />

On Monday, Nov. 13, 2006, the <strong>Alzheimer's</strong><br />

<strong>Association</strong>'s Zenith Society hosted a special<br />

gathering of philanthropic and scientific<br />

leaders at the historic Waldorf-Astoria Hotel<br />

in downtown Manhattan. Members and guests<br />

heard from <strong>Association</strong> President and CEO<br />

Harry Johns and a panel of distinguished<br />

speakers on the state of Alzheimer research:<br />

Dr. Michael Wolfe, Associate Professor,<br />

Harvard Medical School and Brigham and<br />

Women's Hospital; Dr. Michael Hutton,<br />

Associate Professor, Mayo Clinic; Dr. Eric<br />

Siemers, Medical Advisor, Lilly Research<br />

Laboratories; with special remarks by<br />

Princess Yasmin Aga Khan, Honorary Vice<br />

Chair, National Board of Directors and<br />

General Chair,<strong>Alzheimer's</strong> <strong>Association</strong> Rita<br />

Hayworth Galas.<br />

ZENITH SOCIETY<br />

For sixteen years the Zenith program has<br />

represented the highest level of philanthropy<br />

and has set the bar on leadership giving at the<br />

<strong>Alzheimer's</strong> <strong>Association</strong>. As a group, Zenith<br />

members have played a direct and historic role<br />

in helping to create the leadership necessary<br />

for the Alzheimer research field to advance.<br />

Jerome H. Stone, founder and honorary<br />

chairman of the <strong>Association</strong>, conceived of the<br />

Zenith Program in 1990. He envisioned<br />

bringing together individuals from around the<br />

country who cared deeply about <strong>Alzheimer's</strong><br />

disease and who had the means to turn this<br />

interest into action - by investing their<br />

philanthropic support in strategic and<br />

historically significant ways.<br />

With his leadership, Zenith members have<br />

collectively given over $36 million to the<br />

<strong>Association</strong>, creating the Zenith research<br />

grants program, which has grown to become<br />

one of the most distinguished awards in the<br />

scientific field, funding researchers from<br />

around the world. Perhaps most importantly,<br />

Zenith members have provided significant<br />

resources and attention to innovative areas<br />

of Alzheimer research at a time when<br />

others were not.<br />

Today, the Zenith members are a vibrant group<br />

of philanthropic leaders who are interested<br />

in the full mission of the <strong>Association</strong>:<br />

research - care - and prevention. Members are<br />

individuals and organizations that commit at<br />

least $1 million to the <strong>Alzheimer's</strong> <strong>Association</strong>.<br />

They are a diverse group of thoughtful,<br />

talented, and committed individuals who<br />

can more powerfully address the devastating<br />

impacts of <strong>Alzheimer's</strong> locally, nationally<br />

and globally through the <strong>Association</strong> and<br />

this program.<br />

THE ZANE/BENNETT ZENITH<br />

SOCIETY CHALLENGE<br />

The Zenith program has been issued an<br />

exciting leadership challenge by new<br />

members Sandy Zane and Ned Bennett.<br />

This husband and wife team has pledged $2<br />

million to the Zenith program if the<br />

<strong>Alzheimer's</strong> <strong>Association</strong> can secure four<br />

new or renewing Zenith memberships.<br />

This is an outstanding opportunity for<br />

supporters considering the program to<br />

leverage their giving and help the<br />

<strong>Association</strong> secure $6 million in new<br />

monies towards our mission of a world<br />

without <strong>Alzheimer's</strong>.<br />

Don’t Miss the<br />

Public Policy Forum:<br />

March 18-20, 2007


Page 2 newscope<br />

Board of Directors<br />

Rochelle S. Berger, Chair<br />

Bret Jacobowitz, First Vice Chair<br />

Charlotte Östman, Second Vice Chair<br />

Marian Crapanzano, Secretary<br />

John Levin,Treasurer<br />

Susan Bunce<br />

Maureen Coughlin<br />

Karen Ganis<br />

William J. Higgins, M.D.<br />

Debra Kagan-Birkeland<br />

Debbie Marks Kahn<br />

Melissa R. MacCaull<br />

James B. McEvoy<br />

Janet Newberg<br />

Steven A. Schurkman<br />

Andrew B. Sillin<br />

Jannette Swanson<br />

Marie Tarver<br />

Staff<br />

Elaine Sproat, President/CEO<br />

Meg Boyce, Director, Programs & Services<br />

Jennifer Scheuermann,Director,Finance & Operations<br />

Alison DaMore, Director of Development<br />

Poughkeepsie<br />

Gina Faustner, Program & Development Asst.<br />

Karen J. Gauvin, Communications Specialist<br />

Amy Kotash, Program & Development Asst.<br />

Pamela Perkins-Dwyer, Special Events Manager<br />

Alicia Terrana, Care Consultant<br />

Mary Varano, Bookkeeper<br />

Middletown<br />

Sarah E. Ruter, Care Consultant<br />

Janet Troia, Administrator, Regional Office<br />

New City<br />

Maria Paliotta,Administrator, Regional Office<br />

Camille Sharp, Care Consultant<br />

Barbara Webb, Care Consultant<br />

Patterson<br />

Stuart Greif, Program Development Specialist<br />

White Plains<br />

Ruth Ahearn,Assoc. Dir., Programs & Services<br />

Ellen Imbiano, Care Consultant<br />

Terry Kean, Special Events Manager<br />

Erva Randolph,Helpline Coord./Admin.Asst.<br />

©2007 <strong>Alzheimer's</strong> <strong>Association</strong>, Hudson Valley/ Rockland/<br />

Westchester, NY Chapter, Inc., except where specifically<br />

stated otherwise. All rights reserved. All material in<br />

newscope is offered as information to our readers. The<br />

Alzheimer’s <strong>Association</strong>, Hudson Valley/Rockland/<br />

Westchester, NY Chapter cannot warrant, endorse, or<br />

recommend any provider, program, or product.<br />

Chapter News<br />

Recently I had the opportunity to speak with<br />

a member of one of our early-stage support<br />

groups.“The word dementia sounds like ‘don’t<br />

mention it,’” he said. “That’s how many<br />

people feel about Alzheimer’s disease and<br />

related disorders.”<br />

It’s not hard to understand why. Alzheimer’s<br />

disease still carries a tremendous stigma. People<br />

are afraid that they or their loved one will be<br />

treated differently, that they will no longer be<br />

allowed to carry on their favorite activities or to<br />

enjoy their independence. Alzheimer’s is the last<br />

taboo,one that has outlived cancer and AIDS.<br />

Yet for attitudes to change, and to find an<br />

effective treatment or cure, those who care<br />

about Alzheimer’s need to speak out. We need<br />

to tell our stories ... to raise the consciousness of<br />

our friends and neighbors and legislators ...to<br />

make Alzheimer’s disease a national priority.<br />

We have two special opportunities in March to<br />

do just that, and possibly to influence funding<br />

for Alzheimer care and research as well.<br />

The first is on Tuesday, March 6, when our<br />

chapter will charter a bus and travel to Albany<br />

to meet with our state legislators. The goal of<br />

our state Advocacy Day is to put a personal<br />

face on Alzheimer’s and to share concerns<br />

related to living with or caring for someone<br />

with dementia. That’s why we need you to<br />

participate. The bus is FREE. It will leave from<br />

I have been diagnosed as having<br />

dementia or early stage Alzheimer’s<br />

disease. The word dementia is an<br />

awful word--it almost sounds like<br />

“don’t mention it.” And this is how<br />

many people feel about it--don’t<br />

mention it.<br />

It is really not contagious like so<br />

many other diseases which affect<br />

our bodies. It is a hidden<br />

deterioration of the brain, which<br />

no one can see! But,“they” can see<br />

the effects of it on how a person<br />

thinks and acts.<br />

So far, I really don’t see the effects<br />

Among Friends<br />

Don’t Mention It!<br />

Westchester and then<br />

travel up the New York<br />

State Thruway,<br />

stopping at exits 11,16,<br />

17, 18, and 19. For<br />

more information or to<br />

make a reservation,<br />

please call the chapter at<br />

1-800-872-0994.<br />

The second opportunity to make a difference<br />

is March 18-20, when the Alzheimer’s<br />

<strong>Association</strong> Public Policy Forum will be<br />

held in Washington,D.C.<br />

The Forum will give us the chance to learn<br />

about advocacy issues and to meet with our<br />

members of Congress . . . to tell them why<br />

Alzheimer’s is important to us and why we<br />

must increase federal funding--now!--for<br />

<strong>Alzheimer's</strong> research.<br />

To reduce the cost of attending the<br />

Public Policy Forum, this year’s Forum is<br />

a day shorter than previous events, there<br />

is a group registration discount, and our<br />

chapter is offering a $600 scholarship to<br />

an individual or couple who attend. For<br />

more information about the Forum, go<br />

to www.alz.org. To apply for the chapter<br />

scholarship, please contact the chapter at<br />

1-800-872-0994 by February 16.<br />

Elaine Sproat<br />

of this disease on my body or how<br />

I act. But others apparently do!!<br />

Actually, as I write this, I feel fine!<br />

Maybe I’m a little more tired than<br />

usual, but then again maybe not!<br />

Oh well! For now, I’ll go along<br />

with the diagnosis. And, certainly<br />

I’ll be taking my medicine faithfully,<br />

“just in case”! But, when you see<br />

me, don’t treat me any different<br />

than you used to. Be my friend!<br />

And certainly I’ll continue to be<br />

yours!! Thank you!<br />

A Member of One of the Chapter’s<br />

Early-Stage Support Groups


newscope<br />

Transitions<br />

The Alzheimer’s <strong>Association</strong>, Hudson Valley/Rockland/Westchester,<br />

NY Chapter welcomes a new staff member and a new Board<br />

member.<br />

Pamela Perkins-Dwyer joined the<br />

<strong>Association</strong> in late November as<br />

Special Events Manager in the<br />

Poughkeepsie office. Pamela came to<br />

us from the Poughkeepsie Journal,<br />

where she was National Sales<br />

Manager; previously she held positions<br />

as an advertising account executive at ABC, USA Today,The<br />

Los Angeles Times, and various consumer magazine<br />

companies. In addition to her experience in marketing and<br />

sales, she has created and participated in fundraising events, in<br />

a volunteer capacity, for organizations such as the Barrett Art<br />

Center, Jazz at Lincoln Center, the American Cancer Society,<br />

and the New York Region of the National Council of<br />

Negro Women.<br />

Andrew B. Sillin was elected to the<br />

Chapter’s Board of Directors in<br />

December. Andy was born and raised<br />

in Dutchess County and has lived in<br />

Ulster County for the past 30 years.<br />

Now on the brink of retirement, he<br />

has served as Associate Dean for<br />

Continuing Education at Dutchess<br />

Community College for almost as long. As an Alzheimer’s<br />

family member, he says, "I know of no better way to volunteer<br />

my time than to be a part of the <strong>Alzheimer's</strong> <strong>Association</strong>." He<br />

has previously served as President of SUNY's Career<br />

Development Organization, Chairman of the Board of the<br />

Dutchess Co. Chapter of the American Red Cross, a member<br />

of the Board of Osiris Country Club, a member of ERVK's<br />

Task Force on Racism, and a United Way Loaned Executive.<br />

Job Opportunity<br />

Chapter News<br />

Our chapter is growing, and we are seeking to fill a new position<br />

in our Poughkeepsie office! Responsibilities will include PR,<br />

media relations, and marketing activities throughout our<br />

chapter territory, as well as desktop publishing and design and<br />

web-site management. Experience with government<br />

relations or an interest in public policy would be a plus.<br />

If this sounds like your dream job, please send a letter of<br />

interest and your résumé to Elaine Sproat, Alzheimer’s<br />

<strong>Association</strong>, 2 Jefferson Plaza, Ste. 103, Poughkeepsie, NY<br />

12601. A complete job description is posted on our web site,<br />

www.alzhudsonvalley.org.<br />

“No Money, No Mission”<br />

Chapter Offers Tax Information<br />

for Caregivers<br />

Page 3<br />

Former National Alzheimer’s <strong>Association</strong> Board Chair Orien<br />

Reid used to say, “No money, no mission.” Both the<br />

Alzheimer’s <strong>Association</strong>, Hudson Valley/Rockland/Westchester,<br />

NY Chapter and our National headquarters in Chicago rely<br />

on the generosity of donors to carry out our shared mission<br />

of patient and family services, education, advocacy, and<br />

research. Until recently we were competing with each other<br />

for these vital funds. However, as of July 1, 2006, we changed<br />

the way we were doing business!<br />

You may have noticed that Alzheimer’s <strong>Association</strong> fundraising<br />

appeals now look different and that the enclosed remittance<br />

envelopes are addressed to a Post Office Box rather than to<br />

a chapter office. This is because, while we are still separate<br />

corporations with our own boards of directors, starting July<br />

1 we adopted a new "shared fundraising" program. By raising<br />

money together, we are reducing fundraising expenses while<br />

sharing revenues in a mutually agreed-upon way.<br />

These appeals are part of the <strong>Alzheimer's</strong> <strong>Association</strong>'s direct<br />

marketing program. The direct marketing program plays a<br />

vital role in donor acquisition and renewal and is expected to<br />

raise over $29 million to support our mission during the<br />

current fiscal year. However, we understand that not<br />

everyone likes to receive the premiums that some of these<br />

appeals contain, or more than one appeal each year. If you<br />

are receiving multiple mailings, or unwanted premiums, you<br />

need only let us know your preferences and we will code our<br />

database accordingly. Please be aware, however, that mailings<br />

of this sort are started far in advance of the actual mail date, so<br />

it may take up to three months for any changes to take effect.<br />

Please be aware also that not all solicitations bearing the<br />

words “Alzheimer’s” or “Alzheimer’s research” are from the<br />

Alzheimer’s <strong>Association</strong>. To be sure you are donating to the<br />

highly-regarded <strong>Alzheimer's</strong> <strong>Association</strong>, please look for the<br />

logo on the front of this newsletter!<br />

With tax season in full swing, you may be wondering how<br />

tax laws may affect people with Alzheimer’s disease or their<br />

care partners. Are the Costs of Caring for a Person with<br />

Alzheimer’s Disease Deductible? explains how taxpayers may be<br />

able to deduct long-term care costs, including the costs of<br />

nursing homes, assisted living facilities, respite care, adult day<br />

care, and other expenses.<br />

For a copy of the article, contact your local chapter office<br />

(see back page) or check the information on line at<br />

www.alz.org/documents/national/taxes.pdf.


Page 4 newscope<br />

Alzheimer’s <strong>Association</strong> <strong>Winter</strong> Programs<br />

Understanding Memory Loss<br />

What: This program will cover general information about<br />

normal and abnormal memory loss, including the ten<br />

warning signs of Alzheimer’s disease, how to get a proper<br />

diagnosis, stages of the disease, related disorders, and<br />

medications currently available.<br />

�� Where: Suffern Free Library, 210 Lafayette Ave.,<br />

Suffern, NY<br />

When: Monday, March 19, 6 p.m. - 7:30 p.m.<br />

Info/Registration: <strong>Alzheimer's</strong> Assoc., 845-639-6776<br />

�� Where: Jeffersonville Public Library, Center &<br />

Jeffersonville Avenues, Jeffersonville, NY<br />

When: March 22, 2007, 6:00 p.m. - 7:30 p.m.<br />

Info/Registration: <strong>Alzheimer's</strong> Assoc., 845-794-3774<br />

�� Where: Fallsburg Library, 12 Railroad Plaza, South<br />

Fallsburg, NY.<br />

When: Thursday, April 5, 2007, 1 p.m. - 2:30 p.m.<br />

Info/Registration: Alzheimer’s Assoc.,845-794-3774.<br />

Getting Connected<br />

What: A special invitation for family caregivers and<br />

professionals to learn about chapter programs and services.<br />

�� Where: Ulster County Office for the Aging, 400<br />

Stockade Dr., Kingston, NY<br />

When: 12 p.m. - 2 p.m.,Wednesday, February 14<br />

(snow date:Wednesday, February 28)<br />

Info/Registration: Alzheimer’s Assoc., 845-340-8474<br />

�� Dutchess/Ulster Regional Office: Wednesday,<br />

March 14, 12 noon - 2 p.m.<br />

�� Orange/Sullivan Regional Office: Wednesday,<br />

March 21, 12 noon - 3 p.m.<br />

�� Rockland Regional Office: Wednesday,<br />

February 7, 12 noon - 1 p.m. and Wednesday,<br />

March 7, 12 noon - 1 p.m.<br />

�� Westchester Regional Office: Wednesday,<br />

March 28, 9:30 a.m. - 10:30 a.m.<br />

Info/Registration: Please call local offices (see back page)<br />

Other Programs<br />

Partnering with Your Doctor<br />

Where: Haverstraw King’s Daughters Public<br />

Library, 10 W. Ramapo Road, Garnerville, NY<br />

When: Monday, February 26, 1 p.m. - 3 p.m.<br />

Info/Registration: 845-639-6776<br />

Taking Control of Memory Impairment: An<br />

Education Program for Persons with Early<br />

Memory Loss and Their Care Partners<br />

What: Persons recently diagnosed with early stage memory<br />

loss and their care partners are invited to a 4-week seminar.<br />

Topics to be discussed will include the nature of memory/<br />

cognitive disorders, taking control of the "problem," memory<br />

enhancement, management of symptoms, issues such as<br />

driving, family issues, depression and anxiety, legal and<br />

financial planning, and supports and resources available.<br />

Where: Alzheimer’s <strong>Association</strong>, 785 Mamaroneck<br />

Ave., Building 4, Room 307,White Plains, NY.<br />

When: Days and time TBD.<br />

Info: For further information, please call Ellen<br />

Imbiano at the Alzheimer’s <strong>Association</strong>,914-428-1919.<br />

Alzheimer’s Disease: Across the Stages<br />

A series of three informational programs for family and<br />

professional caregivers that will be offered at varied times<br />

throughout our chapter territory:<br />

“An Orientation to AD” is suitable for the person with<br />

dementia as well as family members.The last program is a<br />

panel with representatives from various care communities.<br />

�� What: An Orientation to Alzheimer’s Disease—A<br />

Medical Introduction to Dementia, Diagnosis, &<br />

Treatment,with Dr.Jeffrey Escher,a well-known geriatrician<br />

and member of the Memory Evaluation Treatment<br />

Service at Burke Rehabilitation Hospital<br />

Where: Sunrise Senior Living,500 N.Columbus Ave.,<br />

Mt.Vernon, NY<br />

When: Tuesday, March 27, 6:30 p.m. – 8 p.m.<br />

Info/Registration: Alzheimer’s Assoc., 914-428-1919<br />

�� What: Living with Change As Alzheimer’s Progresses<br />

Where: Catskill Regional Medical Center,<br />

Adult Day Care Center<br />

When: Monday, February 5, 7 p.m. - 8 p.m.<br />

Info/Registration: Alzheimer’s Assoc., 845-794-3774<br />

� What: Living with Change As Alzheimer’s Progresses<br />

Where: Alzheimer’s <strong>Association</strong> White Plains Office<br />

When:Wednesday, February 28, 1 p.m. - 3 p.m.<br />

Info/Registration: Alzheimer’s Assoc., 914-428-1919<br />

� What: Exploring Future Care Options<br />

Where: Alzheimer’s <strong>Association</strong> White Plains Office<br />

When:Wednesday, March 28, 10:30 a.m. - noon<br />

Info/Registration: Alzheimer’s Assoc., 914-428-1919


newscope Page 5<br />

Alzheimer’s <strong>Association</strong> <strong>Winter</strong> Programs<br />

Caregiving Series<br />

The eight modules in our Caregiving Series, covering a full<br />

range of caregiver issues, will be offered at different times<br />

and in different locations throughout the year. Each<br />

program is 1-2 hours long. Caregivers may select whichever<br />

programs are of interest.<br />

Strategies for Safety in the Home<br />

Where: Alzheimer’s <strong>Association</strong>, 2 Jefferson Plaza,<br />

Ste. 103, Poughkeepsie, NY<br />

When: Wednesday, March 7, 4 p.m. - 6 p.m.<br />

Info/Registration: Alzheimer’s Assoc., 845-471-2655<br />

Managing Difficult Behaviors: Handling<br />

Resistance During Care<br />

Where: Sunrise Assisted Living of New City, 233<br />

N. Main St., New City, NY<br />

When: Thursday, February 22, 2 p.m. - 3:30 p.m.<br />

Info/Reservations: 845-639-6776<br />

Respite: Please call 845-639-6776 to reserve space<br />

Caring for the Caregiver<br />

Where: The Promenade at Blue Hill, 582 Veterans<br />

Memorial Dr., Pearl River, NY<br />

When: Tuesday, March 13, 1 p.m. - 3 p.m.<br />

Info/Reservations: 845-639-6776<br />

Respite: Please call 845-639-6776 to reserve space.<br />

Legal and Financial Planning, Concerns about<br />

Abuse, and Community Resources for Caregivers<br />

Speakers will include Robin P. Freimann, Attorney at Law;<br />

Susan Ferlauto, Pace University Law School Women's Justice<br />

Center; and Illese Forgang, LMSW, Geriatric Care Manager.<br />

Where: Larchmont Temple, 75 Larchmont Ave.,<br />

Larchmont, NY<br />

When: Thursday, April 19, 6 p.m. - 8:30 p.m.<br />

Info/Registration: Alzheimer’s Assoc., 914-428-1919<br />

Dementia Care Training Program<br />

This is a condensed version of the Dementia Care Specialist<br />

Program, taught by Meg Boyce, LMSW. Topics include<br />

General Information about <strong>Alzheimer's</strong> Disease and Related<br />

Disorders, The Art of Communication, Managing<br />

Challenging Behaviors, and Caring for the Caregiver.<br />

Where: Business Resource Center, Ulster County<br />

Community College,1 Development Ct.,Kingston,NY.<br />

When: Saturday, March 31, 9 a.m. to 1 p.m.<br />

Fee: $49, payable to Ulster County Community College<br />

Info/Registration: For info about the course,contact<br />

Meg Boyce, 1-800-872-0994. To register, contact<br />

Ulster County Community College, 339-2025.<br />

Social/Activities Programs<br />

The Thursday Club<br />

What: A bi-weekly Activity Program for early-stage<br />

individuals who need activities more than a support group.<br />

Sponsored by the <strong>Alzheimer's</strong> <strong>Association</strong> in cooperation<br />

with Morningside House Adult Day Services, the program<br />

is facilitated by Cathy Burke, Recreation Therapist, and is<br />

concurrent with a support group for caregivers facilitated<br />

by Lisa Goldberg, LMSW.<br />

Where: Morningside House Adult Day Services, 50<br />

Broadway, Hawthorne, NY.<br />

When: 2nd and 4th Thursdays, 10 a.m. - 11 a.m.<br />

Info/Reservations: Caregivers or individuals<br />

interested in this program should contact Ellen<br />

Imbiano at the Alzheimer’s Assoc., 914-428-1919.<br />

Early-Stage Demonstration Project<br />

What/When: Pottery Classes, dates TBD<br />

Where: Barrett Clayworks, 485 Main St.<br />

Poughkeepsie, NY<br />

Info/Reservations: For information, call Meg<br />

Boyce, 845-471-2655 or 1-800-872-0994<br />

Celebrations<br />

What: Individuals diagnosed with dementia and their primary<br />

caregivers are invited to attend Sunday Social Programs<br />

that offer fun, food, and an opportunity to maintain social<br />

contacts in a comfortable, non-judgmental atmosphere.<br />

Where: Burke Rehabilitation Center (Bldg. 7,<br />

Room G-41) 785 Mamaroneck Ave,White Plains, NY.<br />

When: Sundays, Mar. 25 and Apr. 22,12:30 p.m. - 3 p.m.<br />

Info/Reservations: The programs are free, but<br />

space is limited and reservations are required. For<br />

reservations, please call 914-428-1919.<br />

What: “Smell” the Roses and “Tempt” your Taste Buds!<br />

Chef Shawn Comfort will present a sweet program--an easy<br />

chocolate demonstration highlighting the benefits of dark<br />

chocolate and fruits in our diet. Also, Ag Educator Tara<br />

Berescik and student volunteers from the Tri-Valley Future<br />

Farmers of America will demonstrate flower arranging and help<br />

participants create “Roundy Moundies.” All caregivers and<br />

Alzheimer families will be able to leave with a flower<br />

arrangement! Refreshments will be served.<br />

Where: Cornell Coop. Ext., 64 Loomis Rd.,<br />

Liberty, NY<br />

When: Friday, February 23, at 7 pm.<br />

Info/Reservations: Please call 845-794-3774 or<br />

292-5250, ext. 122 to reserve your spot for this free<br />

program so we can can prepare needed materials.


Page 6<br />

Once again, friends of the <strong>Alzheimer's</strong><br />

<strong>Association</strong> made the 2006 Memory<br />

Walk a huge success! We are close to<br />

reaching our $350,000 goal, and pledges<br />

and matching gifts continue to come in!<br />

Thanks to our Sponsors:<br />

National Presenting Sponsor<br />

Genworth Financial<br />

National Corporate Sponsors<br />

Creative Memories<br />

Kindred Healthcare<br />

Silver Sponsors & Media Partners<br />

Atria Senior Living Group<br />

CRM: Compensation Risk Managers<br />

1-866-I Don't Know<br />

Ridgefield Crossings<br />

WPDH (101.5 FM/ 106.3 FM/ 106.1 FM)<br />

WRRV (92.7 FM/ 96.9 FM)<br />

Mix 97.7 (97.7 FM)<br />

The Wolf (94.3 FM/ 97.3 FM)<br />

WKNY (1490 AM)<br />

Radio Disney (1390 AM/ 1340 AM)<br />

Bronze Sponsors & Community Partners<br />

Ancient Order of Hibernians<br />

Burke Rehabilitation Hospital<br />

Classic Residence by Hyatt<br />

Crystal Run Healthcare<br />

Elant, Inc.<br />

Friedwald Center for Rehab. & Nursing<br />

Hebrew Hospital Home<br />

Kiwanis International<br />

Kiwanis - Circle K<br />

Kiwanis - Key Club<br />

Morningside House ADHCP<br />

Ortho-McNeil Neurologics, Inc.<br />

Senior Bridge<br />

The Seabury at Fieldhome<br />

The Wartburg Adult Care Community<br />

Willow Towers<br />

Copper Sponsors<br />

A&T Healthcare<br />

Edna Lillian Roker Social ADC<br />

Center<br />

Elant at Brandywine<br />

Elant at Fishkill Health Center<br />

Health Quest<br />

Hearthstone at The Esplanade, Palisades<br />

Hudson Valley Federal Credit Union<br />

Kingston Hospital<br />

Memory Walk ‘06 - A Huge Success!<br />

Makovic Designer Homes<br />

Northern Services Group<br />

Orange Regional Medical Center<br />

Pier Sixty<br />

Putnam Ridge Nursing Home<br />

St. Joseph's Nursing Home<br />

Schnurmacher Nursing Home<br />

Somers Manor Nursing Home<br />

Sunrise Senior Living of Westchester<br />

Sunrise Senior Living of New City<br />

The Fountains at Rivervue<br />

The Osborn<br />

The Promenade at Blue Hill<br />

The Woodlands<br />

TD Banknorth<br />

Valley View Ctr.for Nursing Care and Rehab.<br />

Thanks also to all our teams and<br />

individual walkers. We would especially<br />

like to recognize the outstanding efforts<br />

of the 42 Walkers who heard the call<br />

and who each raised more than $1,000!<br />

$10,000+<br />

Shelley Danziger,<br />

in memory of Yetta Heitner<br />

$7,500 - $9,999<br />

Joan & Alan Zale<br />

$5,000 - $7,499<br />

Peter Brent<br />

Alex Danziger<br />

Martin Olivieri, Jr.<br />

$2,500 - $4,999<br />

Marian Crapanzano<br />

Catie Lucas<br />

Kevin and Kristin Mulvey<br />

Deborah Niven<br />

Michael Sabatino<br />

Myrna Sameth<br />

Barbara Van Wie<br />

$1,000 - $2,499<br />

Shelly Berger<br />

Ken Carter<br />

Kris Charter<br />

Laurence & Denise DeGennaro<br />

Kenneth Folster<br />

Richard & Kathy Fraites<br />

John Gaffney<br />

Claire Hodgdon<br />

Sister Anne-Marie Kirmse<br />

Nicole Klammer<br />

newscope


newscope Page 7<br />

Thank You for Your Support<br />

Margaret Lachmann<br />

Regina Minena<br />

Edward Moore<br />

Dennis Murphy<br />

Nancy O'Connor<br />

Denise O'Neil<br />

Frances Pantaleo, Esq.<br />

Mary Anne Rathmann<br />

Helen Rossetti<br />

Benjamin Salomon<br />

Vicki Savitch<br />

Janet Scherf<br />

Stephanie Small<br />

Brian Stitzel<br />

Marianne Taylor<br />

Christine Tsaldaris<br />

Patricia Vetterman<br />

Louis Werbalowsky<br />

Claudia White<br />

Victor Zugibe, Inc.<br />

Learn how you can join this elite group<br />

of fundraisers next year, by raising<br />

$1,000 or more during Memory Walk<br />

2007. Contact your local Memory<br />

Walk Coordinator &/or watch for<br />

kick-off dates in future editions of<br />

newscope for more information!<br />

Congratulations also to our chapter's<br />

Top Fundraising Teams for Memory<br />

Walk 2006 (standings as of walk wrapup<br />

events):<br />

Dutchess County<br />

1st Place: Brent Financial Group<br />

Captain: Peter Brent<br />

2nd Place: Team Betty Folster<br />

Captains,Kenneth & Patti Folster & Joan Greene<br />

3rd Place: Memory Lane Walkers<br />

Captain, Karen Skelton<br />

Orange County<br />

1st Place: Valley View Center<br />

Captain, Ken Carter<br />

2nd Place: Orange Regional Medical Ctr.<br />

Captain, Frieda Napolitano<br />

3rd Place: Park Manor Nursing Home<br />

Captain, Kathy Mecca<br />

Putnam County<br />

1st Place: Ernie's Ts<br />

Captain, Christine Tsaldaris<br />

2nd Place: Mr. B's Buddies<br />

Captain, Patricia Vetterman<br />

3rd Place: Putnam County OFA: RSVP<br />

Captain, Sidney J. Gibson<br />

Rockland County<br />

1st Place: False Echoes<br />

Captains, Larry & Denise DeGennaro<br />

2nd Place: Sharp Memories<br />

Captain, Camille Sharp<br />

3rd Place: Olympus<br />

Captain, Kathleen Maier<br />

Sullivan County<br />

1st Place: The SC Chamber of Commerce<br />

Captain, Lisa Mills<br />

2nd Place: Community Bank of Sullivan Co.<br />

Captain,Alice Newell<br />

3rd Place: Clarice's Classics<br />

Captain, Marcia Fink<br />

Ulster County<br />

1st Place: Rotron Roadrunners<br />

Captain, Margaret Lachmann<br />

2nd Place: The Thompson House<br />

Captain, Susan Close<br />

3rd Place: Team A.E.K.<br />

Captains, Linda Lendvay & Flora Whitter<br />

Westchester County<br />

1st Place: Bronx/Westchester So. Kiwanis<br />

Captain, Sister Anne Marie Kirmse<br />

2nd Place: For All the Parents<br />

Captain, Nancy O’Connor<br />

3rd Place: Mary's Marchers<br />

Captain, Carmen Chetti<br />

Special Thanks to our committee<br />

chairs, site hosts, media friends,<br />

entertainers, and donors of<br />

refreshments, prizes and goodie<br />

bag items.<br />

And thank you to all of the dedicated<br />

Memory Walk Committee Members<br />

and Day of Event Volunteers!<br />

Committees are now forming for<br />

Memory Walk 2007! Please contact<br />

your local office of the <strong>Alzheimer's</strong><br />

<strong>Association</strong> to learn more about<br />

volunteer opportunities with the walk<br />

nearest you.


Page 8 newscope<br />

Caregiving<br />

Dear Stephanie:<br />

You have written a lot about Support<br />

Groups. But I wonder why you don't write<br />

about the Internet Chat Rooms that deal<br />

with <strong>Alzheimer's</strong> disease.<br />

There is a Support Group near my home,<br />

but I wonder if I need to go to such a group.<br />

My husband was recently diagnosed and is<br />

in the very early stages of <strong>Alzheimer's</strong>.<br />

Anne in Armonk<br />

Dear Anne,<br />

I very strongly urge you to attend a<br />

Face-to-Face Support Group. While<br />

the Internet can provide a great deal of<br />

information, and is certainly a valuable<br />

resource for family members who for<br />

one reason or another cannot get to a<br />

Support Group meeting, there is<br />

nothing like being with one’s peers<br />

who are facing the same problems. I<br />

know that I could never have gotten<br />

through the ordeal of my mother's illness<br />

without the support and help of the<br />

friends I made at the Support Group.<br />

You will find new friends who are<br />

sympathetic and helpful in dealing with<br />

situations as they come up. Different<br />

caregivers are dealing with different<br />

stages of the disease, and they can be<br />

very helpful when new symptoms and<br />

problems arise. There is also the<br />

socialization factor. It is lovely to make<br />

friends with people who have the same<br />

problems you do. Many people end up<br />

socializing outside of the support group<br />

meetings, often with the family<br />

members they are caring for. One<br />

doesn't have to apologize or be<br />

apprehensive about less than perfect<br />

manners or behavior. I hope you know<br />

about the Sunday Socialization parties<br />

for caregivers and their loved ones.That<br />

is another opportunity to make friends.<br />

Face to face encounters, for me, are<br />

always preferable to telephone<br />

conversations or Internet mailings or<br />

chat rooms. Somehow, putting a face to<br />

a name is so much more meaningful.<br />

Stephanie Cohen<br />

welcomes questions<br />

relating to Alzheimer’s<br />

disease or<br />

caregiving. Please<br />

send your<br />

inquiries to “Ask<br />

Stephanie,” c/o the<br />

Alzheimer’s <strong>Association</strong>, 2 Jefferson<br />

Plaza, Ste. 103, Poughkeepsie, NY<br />

12601 or to info@alzhudsonvalley.org.<br />

By the way, if your husband is in the<br />

early stages of Alzheimer’s, you might<br />

very well consider an Early Stage<br />

Support Group for him. The men and<br />

women who are in these groups are<br />

very gratified to be with people who<br />

understand their problems, and<br />

socialize with them.<br />

Please try to attend a few Support<br />

Group meetings. There are meetings<br />

during the day, and at night. Since I do<br />

not drive at night, I attended during the<br />

day. I found great solace, and even<br />

enjoyed a laugh or two at these meetings.<br />

They also provided a chance for me to<br />

leave the house for a few hours off,<br />

which certainly couldn't happen when<br />

I was on the computer, and my mother<br />

kept asking why I was typing so much,and<br />

why I couldn't pay more attention to her<br />

I wish you and your dear husband well,<br />

and want to remind you to take good<br />

care of yourself. Caregivers are not<br />

effective if they are exhausted or ill. As<br />

always, please feel free to call us for any<br />

information, or help we can give. I am<br />

sure you know we do not charge for<br />

our services.<br />

Stephanie<br />

Thank You!<br />

Special thanks to the U.S. Administration<br />

on Aging, the New York State Office for<br />

the Aging, and Dutchess County Office<br />

for the Aging for partial funding of the<br />

Hudson Valley/Rockland/Westchester,<br />

NY Chapter’s fall educational conference.<br />

Save These Dates!<br />

The annual Spring Educational Conference<br />

sponsored by the Alzheimer’s <strong>Association</strong>,<br />

Hudson Valley/Rockland/Westchester,<br />

NY Chapter, will be held this year at the<br />

Holiday Inn, Suffern, on Friday, May<br />

11, 2007.<br />

The keynote speaker will be Dr.<br />

William Thies, Vice President for<br />

Medical and Scientific Relations at the<br />

National Alzheimer’s <strong>Association</strong>. Dr.<br />

Thies oversees the world’s largest private,<br />

nonprofit Alzheimer’s disease research<br />

grants program. He has also played a<br />

key role in launching Alzheimer’s &<br />

Dementia: The Journal of the Alzheimer’s<br />

<strong>Association</strong> and in establishing the Research<br />

Roundtable, a consortium of senior<br />

scientists from industry, academia and<br />

government who convene to explore<br />

common barriers to drug discovery.<br />

Conference brochures will be mailed<br />

in early April. To ensure you receive a<br />

brochure, please call the Chapter’s<br />

Rockland Regional Office, 845-639-<br />

6776, or call 1-800-872-0994.<br />

The Alzheimer’s <strong>Association</strong>’s Annual<br />

Adele Rohrlich Memorial Lecture<br />

will be held at 10:30 a.m. on Tuesday,<br />

May 15, 2007 at Hudson Valley<br />

Hospital Center in Cortlandt Manor, NY.<br />

The featured speaker, Teepa Snow,<br />

MS, OTR/L, FAOTA, a nationallyknown<br />

expert in geriatrics, dementia<br />

care, functional abilities and individual<br />

care. The topic of her talk will be<br />

“Positive Interactions: Understanding<br />

the Person with Dementia.”<br />

Later the same day, Ms. Snow will<br />

present a four-hour workshop,<br />

“Dementia Caregiving: Building Skills<br />

for Successful Hands-on Care,” for<br />

nursing assistants, nurses, recreation<br />

staff, and home health care staff.<br />

For further information, please call the<br />

Chapter’s Westchester Regional Office,<br />

914-428-1919, or call 1-800-872-0994.


newscope<br />

Alzheimer’s <strong>Association</strong> Support Groups<br />

Page 9<br />

All support groups are free and open to the public, but pre-registration is required. Since the number of<br />

groups offered has grown, we can no longer include detailed information about each group in the newsletter.<br />

For exact location, support group leader contact information, and general questions, or to confirm a group is<br />

meeting in case of inclement weather, please call your local chapter office (see back page).<br />

FAMILY SUPPORT<br />

GROUPS<br />

DUTCHESS COUNTY<br />

Beacon<br />

Fishkill Health Center<br />

3rd Wed., 3 p.m.<br />

Hopewell Junction<br />

Hopewell Reformed Church<br />

3rd Tues., 1 p.m.<br />

Poughkeepsie<br />

Alzheimer’s <strong>Association</strong><br />

1st Wed., 11 a.m.<br />

Rhinebeck<br />

The Thompson House<br />

2nd Mon., 6 p.m.<br />

ORANGE COUNTY<br />

** Goshen<br />

Valley View Center for<br />

Nursing & Rehabilitation<br />

Last Mon., 7 p.m.<br />

** Goshen<br />

Valley View Center for<br />

Nursing & Rehabilitation<br />

2nd Tues., 2-3:30pm<br />

** Middletown<br />

Webb Horton Pres. Church<br />

3rd Wed., 11 a.m.<br />

Newburgh<br />

Elant at Newburgh Conf. Rm.<br />

2nd Tues., 7 p.m.<br />

PUTNAM COUNTY<br />

Carmel<br />

The Plaza at Clover Lake<br />

2nd/4th Wed., 6:30-8 p.m.<br />

ROCKLAND COUNTY<br />

#### Haverstraw<br />

Action Partnership<br />

(CAPROC)<br />

1st Wednesday, 7-9 p.m.<br />

** Nanuet<br />

Meals on Wheels<br />

Weds., weekly, 1 p.m.<br />

New City<br />

Sunrise Senior Living<br />

2nd/4th Mon., 6:30-8 p.m.<br />

Palisades<br />

Esplanade<br />

2nd /4th Thursdays, 1 p.m.<br />

Pearl River<br />

Pearl River Meth. Church<br />

Last Tues., 7:30 p.m.<br />

SULLIVAN COUNTY<br />

Harris<br />

Catskill Regional Medical Ctr.<br />

1st Mon., 7 p.m.<br />

#### Harris<br />

Catskill Regional Medical Ctr.<br />

3rd Mon., 7 p.m.<br />

ULSTER COUNTY<br />

Ellenville<br />

Canal Lodge Adult Day Care<br />

4th Wed., 1 p.m.<br />

** Kingston<br />

Greenkill Ave. ADC<br />

2nd Tues., 3 p.m.<br />

Woodstock<br />

Christ Lutheran Church<br />

3rd Tues., 2 p.m.<br />

WESTCHESTER COUNTY<br />

Cortlandt Manor<br />

The Seabury at Fieldhome<br />

1st/3rd Wed., 10-11:30 a.m.<br />

Hawthorne<br />

Morningside House ADC<br />

2nd/4th Thurs., 10-11:15 a.m.<br />

## Mt. Kisco<br />

Call for information,<br />

914-428-1919<br />

Mount Vernon<br />

Sunrise Assisted Living<br />

Last Thursday, 6-7:30 p.m.<br />

Mount Vernon<br />

The Meadowview at Wartburg<br />

1st & 3rd Weds., 2-3:30 p.m.<br />

New: Port Chester<br />

1st/3rd Thurs., 10-11:30 a.m.<br />

Contact Ruth Ahearn,<br />

914-428-1919, for information.<br />

Rye<br />

The Osborn<br />

2nd/4th Tues, 2-3:30 p.m.<br />

Sleepy Hollow<br />

Phelps Memorial Hospital<br />

1st/3rd Th., 7:30-9 p.m.<br />

Somers<br />

Call Ruth Ahearn,<br />

914-428-1919 for info.<br />

Valhalla<br />

Westchester Meadows<br />

2nd/4th Tues., 4-5:30 p.m.<br />

White Plains<br />

Alzheimer’s <strong>Association</strong><br />

2nd/4th Mon., 10-11:30 a.m.<br />

White Plains<br />

Alzheimer’s <strong>Association</strong><br />

2nd/4th Wed., 6:30-8 p.m.<br />

Closed to newcomers due to size<br />

New, starting 2/19:White Plains<br />

Alzheimer’s <strong>Association</strong><br />

1st/3rd Mon., 6:30-8 p.m.<br />

* White Plains<br />

Alzheimer’s <strong>Association</strong><br />

1st/3rd Mon., 2:30-4 p.m.<br />

#### White Plains<br />

Call for information,<br />

914-428-1919.<br />

EARLY-STAGE GROUPS<br />

Note: pre-registration<br />

interviews are required. For<br />

an appointment, please call<br />

the staff member listed<br />

below.<br />

ORANGE COUNTY<br />

Sarah Ruter, 845-342-2247<br />

DUTCHESS COUNTY<br />

Meg Boyce, 845-471-2655<br />

ROCKLAND COUNTY<br />

Camille Sharp, 845-639-6776<br />

WESTCHESTER COUNTY<br />

Ellen Imbiano, 914-428-1919<br />

A Fond Farewell!<br />

Thank you to Carole and<br />

Clayton Hager for their<br />

commitment and dedication<br />

as support group leaders<br />

over the past five years.<br />

Their loyalty to their group<br />

made their decision to step<br />

back difficult. They will<br />

remain involved with the<br />

Chapter in other ways!<br />

Not Able<br />

to Attend a<br />

Support Group?<br />

Help is just a mouse click<br />

away at the Alzheimer’s<br />

<strong>Association</strong>’s message boards<br />

and chat room at www.alz.org.<br />

The forums for online<br />

conversation allow people<br />

to discuss issues and share<br />

thoughts and experiences.<br />

Among the 10 forums are<br />

groups for caregivers, health<br />

professionals, and people<br />

with memory loss.<br />

* Early Stage Caregivers ** Free respite is offered during the group (pre-registration is required).<br />

## Adult Children Caregivers #### Spanish-speaking Group


Page 10 newscope<br />

8th Annual Golf Tournament<br />

Raises Over $67,000<br />

The <strong>Alzheimer's</strong> <strong>Association</strong>’s 2006 Golf Tournament provided<br />

a non-stop day of fun as golfers, sponsors and volunteers<br />

enjoyed a BBQ lunch, 18 holes of golf (Scramble Format),<br />

course refreshments, cocktails and hors d'oeuvres, and a buffet<br />

dinner.Tourney presentations,day of event raffles, top team and<br />

skill prizes, and a major raffle drawing rounded out the day.<br />

Held at the Hampshire Country Club in Mamaroneck, NY,<br />

the event generated vital funds for the Alzheimer’s<br />

<strong>Association</strong>, raising over $67,000 to support our full mission<br />

of research, education, advocacy, and support!<br />

From left to right: Fred Haffner, long -time tournament committee<br />

member/supporter, Ron and Donna Sylvestri,Tournament Co-chairs,<br />

& Tom Foldy, long-time tournament committee member/supporter.<br />

The tournament was hosted by the New York City District<br />

Council of Carpenters Relief and Charity Fund and was cochaired<br />

by Ronald Sylvestri, Senior Vice President of<br />

Hudson Valley Bank and Donna Sylvestri, President of<br />

Madison Home Management, founders of the tournament.<br />

The <strong>Alzheimer's</strong> <strong>Association</strong> wishes to thank the event's sponsors,<br />

chairpersons, committee members, and day-of-event<br />

volunteers for their dedication to making the event such a<br />

success. Special thanks also go to our major raffle donors,<br />

American Airlines, Ron & Donna Sylvestri, and Jim & Gail<br />

Vernon.<br />

Two Very Special Events<br />

Noah Scheuermann, born to<br />

Jennifer & Will Scheuermann<br />

September 29, 2006<br />

Recent Special Events<br />

Emerson Joseph (EJ) Skelton,<br />

born to Karen & John Skelton<br />

January 16, 2007<br />

Rockland Goes Italian<br />

Thank you to the Hon. John<br />

Murphy (Committee Chair and<br />

Rockland County legislator), Dr.<br />

Nunzio Pomara, and all the<br />

dedicated committee volunteers<br />

for making the Alzheimer’s<br />

<strong>Association</strong>’s first “Eat Italian”<br />

fundraiser last October a reality!<br />

Participating restaurants included Del Arte, Orangeburg -<br />

Heather’s Open Cucina, Nyack - Scoozi Restaurant,<br />

Garnerville - Gennaro’s Restaurant, Stony Point - La Terraza,<br />

New City - Pasta Cucina, Stony Point - Mia Cucina,<br />

Blauvelt - Caffe Dolce, Suffern - Mariella’s, New City - and<br />

Lanterna Tuscan Bistro, Nyack.<br />

Luminary Ceremony Is Tribute to<br />

Love and Courage<br />

Fifty people celebrated National Alzheimer’s Disease<br />

Awareness Month by gathering together during a crisp,<br />

beautiful fall evening at Mahopac Chamber of Commerce<br />

Park and lighting over 190 luminaries in honor of and in<br />

memory of friends and family members who have been<br />

affected by Alzheimer’s disease or a related illness.<br />

Many thanks to event visionary Richard Reynolds and the<br />

Putnam County Memory Walk Committee for making the<br />

Luminary Ceremony possible, to program participants<br />

Sheila Gayle, Michael Battenfeld, the Rev.Timothy Wiggins,<br />

Radovich & Dean Music, and The Plaza at Clover Lake, and<br />

to the Alzheimer’s <strong>Association</strong>’s Stuart Greif who wrote the<br />

moving dedication presented during the ceremony.<br />

Holiday Celebration with Elvis!!!<br />

We are grateful once again to<br />

Eric Bressi, a.k.a. Elvis, for<br />

entertaining at the Alzheimer’s<br />

<strong>Association</strong>’s December social<br />

event in Sullivan County.<br />

Thanks also to Bonnie Lewis<br />

of the Caregiver Resource<br />

Center for co-sponsoring<br />

our socialization programs.<br />

Pictured are Cynthia Niven<br />

and her mom Norma, who was<br />

celebrating her 86th birthday!


newscope<br />

Memorials<br />

May Ackermann<br />

Samuel Acquaro, Sr.<br />

Kathryn Agnew<br />

Michael Amoroso<br />

Ivy Anders<br />

Antoinette Armbruster<br />

Rose Arrons<br />

Mannie Asen<br />

John Auld<br />

John Baccalore<br />

Shahan Baer<br />

Isabelle M. Baker<br />

Ceasar Barbieri<br />

Dick Bennison<br />

Dorothy A. Bevins<br />

Camille Biancardi<br />

Theodore Bicos<br />

Walter Bischak<br />

Ted Boniface<br />

Kathleen Branigan<br />

Marjorie Braun<br />

Shirley Breiman<br />

Fred Brenner<br />

Dorothy Myrah Breuninger<br />

Ted Brown<br />

Roger Burns<br />

Karolyn Caddle<br />

Angelina Calligaro<br />

Lillian Campanella<br />

Robert Campbell<br />

Vincent Capone<br />

Louis Carollo<br />

Frances Casterella<br />

Evelyn Catalano<br />

Anthony Colavito<br />

Dr. Nancy Ann Condro<br />

Paul Connell<br />

Marjorie Cuomo<br />

Michael "Mickey" Dahowski<br />

Ann De Noble<br />

Caye Devlin<br />

John Diamond<br />

Jeanette Dobson<br />

Kathleen Elizabeth<br />

Theresa Dolce<br />

Mrs. Drennen<br />

Virginia D'Siena<br />

George Durham<br />

Emma J. Dutcher<br />

Theresa Falanga<br />

James P. Fanning<br />

Dorothy Feeney<br />

Margurite Ferrara<br />

Ralph Ferrusi<br />

Lucille Field<br />

Anita Fiocco<br />

Theresa Flanga<br />

Florence Fenichel<br />

Aranka Fogel<br />

Betty Owen Folster<br />

Ruth I. Foster<br />

Nicholas Franco<br />

Felicia Gabryszewski<br />

Robert Gage<br />

Virginia Galati<br />

Vivian Geitz<br />

William J. Gerbe<br />

Israel Goldstein<br />

Barbara Ann Grasso<br />

Nelson Greenberg<br />

Wilson Guilianelli<br />

Theresa Hafner<br />

Florence Halperin<br />

Winifred Hamill<br />

Douglas Harris, Sr.<br />

Minnie Harris<br />

Dorothy Harvey<br />

Yetta Heitner<br />

Marion Holt<br />

Floyd "Sonny" Hornbeck<br />

Signe Jacobson<br />

Rose A. Kay<br />

Mildred Keegan<br />

Ann Keller<br />

Edwin Kennedy<br />

Arminda Kerner<br />

Beatrice Kirschenbaum<br />

Anna Marie Kirtio<br />

Fannie Labarbera<br />

William P. Lane<br />

Fran Lewis<br />

Dasha Lifton<br />

May Lipson<br />

Ruth Luman<br />

Erminia Macchia<br />

Alfred Malecki<br />

Ana Mayas<br />

Genevieve McCabe<br />

Alex McNeil<br />

Dorothy Medovich<br />

Joseph Meehan<br />

George Mekss<br />

Hilda Menshen<br />

Mary Mileo<br />

Grace Miracolo<br />

Joseph Montano<br />

Marie Moretti<br />

A. S. Morrow, Jr.<br />

Serafino "Sal" Mucci<br />

Anita Muitz<br />

Caroline C. Mulvey<br />

Gertrude Nadel<br />

Francesco "Frank" Nitti<br />

Beatrice Obermeyer<br />

Richard G. O'Dell<br />

Kathleen O'Hare Branigan<br />

Anna Olivieri<br />

Ann Ondich<br />

Hugo Pasquarelli<br />

Betty Payne<br />

Florence "Flo" Pendergast<br />

Frances Perrin<br />

Concetta Picciano<br />

Lena Poritzky<br />

Theresa Preece<br />

Lena Puppolo<br />

Edwin Purcell<br />

Mrs. Quigley<br />

Genevieve K. Reim<br />

Cecelia Rescigno-House<br />

Velma Ricci<br />

Adelaide Rider<br />

Theodore Rivlin<br />

Ernestina Rodriguez<br />

Mildred Rosi<br />

Margaret Russo-Jones<br />

Frank Sabella<br />

Edna Sanzari<br />

Betty Schneider<br />

Bud Schreiber<br />

Sara Sergio<br />

Harry Sharp<br />

Rose Siciliano<br />

Margaret Simonetti<br />

Marion Sloan<br />

Viloet Spinola<br />

Lillian Spree<br />

Elliot Stahl<br />

Dorothy Stein<br />

Blanche Stone<br />

Mildred Stutzbach<br />

Elliot Sugarman<br />

Kenneth Sutherland<br />

Walter Szulwach<br />

Marie J.Tangredi<br />

Harold Thurston<br />

Harold Todd<br />

Josephine Turturro<br />

Peter Coffin Vincent<br />

Lucy Wallace<br />

Helen Walls<br />

Helen Waraniuk<br />

Mr. Leslie Waters<br />

Pauline Weber<br />

Mr.Wolkin<br />

Mildred Wrege<br />

Bernadette Yandoli<br />

Alexander Yiannakou<br />

John Zoccolillo<br />

Page 11<br />

We are grateful for all the memorials and tributes given to the Alzheimer’s <strong>Association</strong>. These gifts honor friends and loved<br />

ones while helping us meet needs for education, family support, advocacy, and research. Listed below are individuals honored from<br />

7/1/06 to 9/30/06.<br />

Memorials and Tributes<br />

Tributes<br />

Arthur Abbadusky<br />

<strong>Alzheimer's</strong> <strong>Association</strong><br />

Silver Anniversary<br />

Charles Beagan<br />

Viola T. Birdsall<br />

Charles & Nancy Clarvit,<br />

on their 25th anniversary<br />

& Nancy's 50th birthday<br />

Patricia Collins<br />

Dr. Andrew Decker<br />

Doris Dezarn<br />

Arnold Feidelman<br />

Beth Ann Fleming & Dave<br />

Marris, on their wedding<br />

Jerome Franklin<br />

Mathilda Fuzo<br />

Richard Gans, Esq.<br />

Jay & Elenor Glat, on their<br />

50th anniversary<br />

Abe Gold,<br />

on his 75th birthday<br />

Save the date!<br />

Ellen Greenfield<br />

Emil Greif,<br />

on his 90th birthday<br />

Stuart Greif<br />

Rita & Dick Haas<br />

Edith Hershey<br />

Jeff Kaufman<br />

Alan Kenig<br />

Dolly S. Marks<br />

Jose Matta<br />

Phyllis McGuire<br />

Norma Ormland<br />

Cathy Patterson<br />

John Segalini<br />

Eleaner Senft<br />

The Regulars<br />

Louis L.Vessecchia<br />

Robert Weisman<br />

Victor & Helen Welch<br />

Dominic Yannocone<br />

Esther Zitzerman<br />

The Chapter’s annual black tie benefit,“A Night<br />

of Wine & Roses,” will be held at The<br />

Grandview, the newest addition to<br />

Poughkeepsie’s waterfront, on Saturday, April 28.<br />

This very special event will honor Charles S.<br />

North, President & CEO of the Poughkeepsie Area<br />

Chamber of Commerce, and Elaine Sproat,<br />

President & CEO of the Alzheimer’s <strong>Association</strong>,<br />

Hudson Valley/Rockland/Westchester, NY Chapter.<br />

To make early reservations, place an advertisement<br />

or personal tribute in the event’s Souvenir<br />

Journal, or donate an item for the evening’s<br />

auction, please contact Pamela Perkins-Dwyer,<br />

Special Events Manager, at 845-471-2655, 1-<br />

800-972-0994, or Pamela.Dwyer@alz.org.


Hudson Valley/Rockland/Westchester, NY Chapter<br />

Administrative Office<br />

2 Jefferson Plaza, Ste. 103<br />

Poughkeepsie, NY 12601-4060<br />

Administrative Office and<br />

Dutchess/Ulster Regional Office<br />

D: 845-471-2655 U: 845-340-8474<br />

Orange/Sullivan Regional Office<br />

O: 845-342-2247 S: 845-794-3774<br />

Rockland Regional Office<br />

845-639-6776<br />

Westchester Regional Office<br />

914-428-1919<br />

Putnam Point of Service<br />

845-878-9890<br />

www.alz.org (national web site)<br />

www.alzhudsonvalley.org (chapter web site)<br />

info@alzhudsonvalley.org<br />

1-800-872-0994<br />

1-800-272-3900 (24-hour Helpline)<br />

Research - New Alzheimer Gene Discovered<br />

In a study published recently in Nature<br />

Genetics, an international team of<br />

researchers identified a gene called<br />

SORL1 as strongly associated with risk<br />

for the most common type of<br />

<strong>Alzheimer's</strong> (late onset sporadic disease)<br />

in populations of several ethnic groups.<br />

The researchers looked at 29 different<br />

"variations" in small sections of the<br />

SORL1 gene in a total of about 6,000<br />

people from nine different distinct<br />

ethnic or geographic groups. They<br />

identified two regions on the gene, each<br />

of which contains several of these<br />

variations, that showed strong association<br />

with increased risk of <strong>Alzheimer's</strong> in six<br />

of the nine different populations.<br />

Researchers believe the diseasepromoting<br />

variants of SORL1 act by<br />

suppressing the gene's activity.According<br />

to the researchers, SORL1 provides the<br />

genetic blueprint for proteins that act<br />

like "traffic cops," moving the amyloid<br />

precursor protein (APP) to different<br />

places in the brain cell. In one place in<br />

the cell, APP is broken down into the<br />

toxic beta amyloid that forms the<br />

plaques found in <strong>Alzheimer's</strong>. In other<br />

places in the cell it is broken down into<br />

innocuous pieces. SORL1 proteins favor<br />

the "good" pathway (innocuous<br />

breakdown). When SORL1 produces<br />

too little protein, this deficiency<br />

channels more APP into the toxic<br />

pathway, which generates more beta<br />

amyloid.<br />

This study contains the first evidence<br />

that genes that control the movement of<br />

the APP around brain cells can<br />

contribute to <strong>Alzheimer's</strong> risk.<br />

Next steps for this area of research<br />

include further confirmation of these<br />

findings by other scientists in different<br />

populations, identification of the specific<br />

variation or variations of the gene that<br />

alter the processing of APP, and<br />

evaluation of this gene as a target for<br />

therapy and a possible aid to diagnosis.<br />

It is unlikely that this discovery will<br />

Non-Profit Org.<br />

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Poughkeepsie, NY<br />

Permit No. 51<br />

generate a genetic test that will be<br />

available to physicians or consumers.<br />

"Teasing out" the specific impact of one<br />

gene is very difficult as <strong>Alzheimer's</strong><br />

involves multiple genes, not just a single<br />

"yes or no" gene trigger. Additionally,<br />

there are environmental/lifestyle risk<br />

factors, and there may be other genes,<br />

and also environmental elements, that<br />

affect the expression of SORL1.<br />

Nevertheless, this study is a significant<br />

advancement to our knowledge about<br />

the cause of <strong>Alzheimer's</strong> disease, and<br />

SORL1 is the first gene strongly<br />

associated with late onset <strong>Alzheimer's</strong> in<br />

many years. Only one gene, called<br />

APOE, has been firmly identified as a<br />

risk factor for late- onset Alzheimer’s<br />

disease.<br />

The <strong>Alzheimer's</strong> <strong>Association</strong> is one of<br />

the funders of this important research,<br />

along with the National Institute on<br />

Aging, the Canadian Institutes of Health<br />

Research, and several others.

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