Kidney Care UK - 2018 Impact Report
As the UK’s leading kidney patient support charity, we are here to help and provide a much needed safety net for kidney patients and their families. Whilst we can’t cover all the work accomplished in 2018 in one publication, it is incredibly heartwarming to hear directly from those who have benefitted from our emotional, financial and practical support services or who are supporting the charity through fundraising efforts. As the UK’s leading kidney patient support charity, we are here to help and provide a much needed safety net for kidney patients and their families. Whilst we can’t cover all the work accomplished in 2018 in one publication, it is incredibly heartwarming to hear directly from those who have benefitted from our emotional, financial and practical support services or who are supporting the charity through fundraising efforts.
Supporting: Reliable information Supporting: Reliable information Keeping patients well informed It is so important to have access to high quality information. We make it easy for patients and their families to access the information they need and trust so they can make informed decisions about their care and treatment. “When I get my Kidney Matters magazine it always gives me a real boost.” Janet, Kidney Matters reader Working together for better patient information In 2017 we joined forces with the Renal Association to identify, develop and promote access to the best patient information available, and our partnership has gone from strength to strength. We now use a mixture of channels to ensure information is available however and wherever you want to find it; in printed leaflets, online, at your local renal unit or pushed through your letterbox. And we cover even more subjects than before, from medical matters (such as treatment and drug options) to Dialysis Away from Base (DAFB) to emotional wellbeing. We added over 150 pages of new content to our website on subjects including accessing benefits, travel insurance and mental health. And the number of site visits has nearly doubled as a result! Growing online support We continued to provide funding and support for the InfoKID information portal (for the parents of children with kidney disease) in partnership with the Royal College of Paediatrics and Child Health and the British Association of Paediatric Nephrology. The updated site received 186,553 visits over the year – up 37% on the year before. Giving kidney patients a voice We also launched Kidney Matters, a quarterly magazine designed to inform, educate and reassure patients and their families, using real life stories to encourage and inspire others. Our Facebook support group now has over 8,000 members Over 100 kidney units ordered 42,272 patient information leaflets More than 20,000 patients receive Kidney Matters every quarter 16 17
- Page 1 and 2: Improving lives every day Impact re
- Page 4: Overview: Why we’re needed Overvi
- Page 8: Supporting: Providing a safety net
- Page 12: Supporting: Peer-to-peer advocacy S
- Page 18: Supporting: Holiday and respite bre
- Page 22: Jake’s story: Giving something ba
- Page 26: Improving quality: Innovation and p
- Page 30: Campaigning: Shaping national polic
- Page 34: Campaigning: Challenging patient tr
- Page 38: Fundraising: Generously giving back
- Page 42: Fundraising: Thanks to every one of
Supporting: Reliable information<br />
Supporting: Reliable information<br />
Keeping patients<br />
well informed<br />
It is so important to have access to high quality information.<br />
We make it easy for patients and their families to access the<br />
information they need and trust so they can make informed<br />
decisions about their care and treatment.<br />
“When I get my <strong>Kidney</strong><br />
Matters magazine it always<br />
gives me a real boost.”<br />
Janet, <strong>Kidney</strong> Matters reader<br />
Working together for<br />
better patient information<br />
In 2017 we joined forces with the<br />
Renal Association to identify, develop<br />
and promote access to the best<br />
patient information available, and our<br />
partnership has gone from strength<br />
to strength. We now use a mixture<br />
of channels to ensure information is<br />
available however and wherever you<br />
want to find it; in printed leaflets, online,<br />
at your local renal unit or pushed<br />
through your letterbox. And we cover<br />
even more subjects than before, from<br />
medical matters (such as treatment<br />
and drug options) to Dialysis Away from<br />
Base (DAFB) to emotional wellbeing.<br />
We added over 150 pages of new<br />
content to our website on subjects<br />
including accessing benefits, travel<br />
insurance and mental health.<br />
And the number of site visits has<br />
nearly doubled as a result!<br />
Growing online support<br />
We continued to provide funding and<br />
support for the InfoKID information<br />
portal (for the parents of children with<br />
kidney disease) in partnership with the<br />
Royal College of Paediatrics and Child<br />
Health and the British Association of<br />
Paediatric Nephrology. The updated<br />
site received 186,553 visits over the<br />
year – up 37% on the year before.<br />
Giving kidney patients a voice<br />
We also launched <strong>Kidney</strong> Matters,<br />
a quarterly magazine designed<br />
to inform, educate and reassure<br />
patients and their families, using<br />
real life stories to encourage and<br />
inspire others.<br />
Our Facebook support group now has over<br />
8,000 members<br />
Over 100 kidney<br />
units ordered<br />
42,272<br />
patient information<br />
leaflets<br />
More than<br />
20,000<br />
patients receive <strong>Kidney</strong> Matters<br />
every quarter<br />
16<br />
17
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