EAPC Atlas of Palliative Care in Europe 2019
Conclusion: PC health policies developed in recent years have promoted vigorous development across Europe. Preliminary data on the integration of PC into different fields are encouraging though inequalities between countries and sub-regions persist. Further comparative analysis exploring factors leading to uneven progress may inform strategies to provide PC for all people in need. Per land is de stand van zaken van de (kinder)palliatieve zorg weergegeven.
Conclusion: PC health policies developed in recent years have promoted vigorous development across Europe. Preliminary data on the integration of PC into different fields are encouraging though inequalities between countries and sub-regions persist. Further comparative analysis exploring factors leading to uneven progress may inform strategies to provide PC for all people in need.
Per land is de stand van zaken van de (kinder)palliatieve zorg weergegeven.
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EUROPEAN CONTEXT<br />
Chapter 6. <strong>Palliative</strong> <strong>Care</strong> vitality<br />
and pr<strong>of</strong>essional activity<br />
B<br />
<strong>EAPC</strong> held <strong>in</strong> Bern, Switzerland (<strong>in</strong>clud<strong>in</strong>g<br />
local committee, volunteers and <strong>in</strong>vited<br />
guests). The United K<strong>in</strong>gdom had the<br />
highest number <strong>of</strong> delegates (133), followed<br />
by the host<strong>in</strong>g country, Switzerland<br />
(130); and the Netherlands (112). Germany<br />
had 96 delegates, and was followed<br />
by Belgium (55), Sweden (34), Denmark<br />
(32), or Spa<strong>in</strong> (30). The use <strong>of</strong> this as an<br />
<strong>in</strong>dicator will be enhanced <strong>in</strong> future editions<br />
<strong>of</strong> the <strong>Atlas</strong> by seek<strong>in</strong>g the number<br />
<strong>of</strong> contributions per country to <strong>EAPC</strong> congresses<br />
(<strong>in</strong> the form <strong>of</strong> oral and posters<br />
presentations).<br />
Scientific publications<br />
on <strong>Palliative</strong> <strong>Care</strong><br />
<strong>in</strong> the last three years<br />
The Scopus database has registered nearly<br />
10000 scientific publications regard<strong>in</strong>g<br />
<strong>Palliative</strong> <strong>Care</strong> by <strong>Europe</strong>an countries<br />
<strong>in</strong> the period 2015-2018. Differences<br />
amongst countries are noticeable, and<br />
range from 2448 articles produced <strong>in</strong><br />
the United K<strong>in</strong>gdom to countries with less<br />
than 10 published articles, most <strong>of</strong> them<br />
perta<strong>in</strong><strong>in</strong>g to Central and Eastern <strong>Europe</strong>.<br />
Countries with a high scientific production<br />
<strong>of</strong> over 500 articles <strong>in</strong>clude Germany<br />
(1153), France (814), Italy (698), Netherlands<br />
(650) and Spa<strong>in</strong> (627).<br />
TIME LINE <strong>of</strong> NATIONAL ASSOCATIONS’ CREATION<br />
Denmark<br />
France<br />
United<br />
K<strong>in</strong>gdom Italy<br />
Luxembourg<br />
Spa<strong>in</strong><br />
Ireland<br />
1985 1986 1987 1988 1989 1990 1991 1992 1993 1994<br />
Switzerland<br />
Armenia<br />
Albania<br />
Poland<br />
Monaco<br />
Norway<br />
Republic<br />
<strong>of</strong> Moldova<br />
Austria<br />
Bosnia and<br />
Herzegov<strong>in</strong>a<br />
Iceland<br />
Latvia<br />
Romania<br />
Croatia<br />
Germany<br />
Greece<br />
Sweden<br />
Belgium<br />
F<strong>in</strong>land<br />
Hungary<br />
Lithuania<br />
Portugal<br />
1995<br />
1996<br />
Israel<br />
2006<br />
2005 2004 2003 2002 2001 2000 1999 1998 1997<br />
2007<br />
Czech<br />
Republic<br />
Estonia<br />
Georgia<br />
Netherlands<br />
Slovenia<br />
Ukra<strong>in</strong>e<br />
Liechtenste<strong>in</strong> Kazakhstan<br />
Russia<br />
Turkey<br />
Bulgaria<br />
Slovakia<br />
Tajikistan<br />
Kyrgyztan<br />
Macedonia<br />
2008 2009 2010 2011 2011 2013 2014 2015 2016 2017<br />
Some key notes on PC pr<strong>of</strong>essional activity<br />
Belgium. Besides the existence <strong>of</strong><br />
the National Associations, there<br />
are 50 PC networks across Belgium<br />
that raise awareness with the general<br />
public on PC-related issues, provide<br />
cont<strong>in</strong>u<strong>in</strong>g education for PC<br />
providers, and aim to bridge communication<br />
among PC providers <strong>in</strong><br />
diverse regions.<br />
Germany. The German Association<br />
for <strong>Palliative</strong> Medic<strong>in</strong>e (DGFP) holds<br />
biannual congresses, celebrates PC<br />
Day organised by the DGFP, organises<br />
meet<strong>in</strong>gs <strong>of</strong> work<strong>in</strong>g groups<br />
(education, ethics, research, children,physiotherapy),<br />
publishes<br />
the journal Zeitschrift für Palliativmediz<strong>in</strong>,<br />
lobbies governmental<br />
m<strong>in</strong>istries and bodies with <strong>in</strong>fluence<br />
on matters concern<strong>in</strong>g PC,<br />
death and dy<strong>in</strong>g, and works as an<br />
umbrella organisation for <strong>in</strong>patient<br />
hospices and hospice volunteers.<br />
There is also a an association<br />
for specialist PC at home (Bundesarbeitsgeme<strong>in</strong>schaft<br />
SAPV) and<br />
two PC associations for children<br />
(Bundesverband K<strong>in</strong>derhospiz and<br />
Deutscher K<strong>in</strong>derhospizvere<strong>in</strong>).<br />
Italy. The Italian Society for <strong>Palliative</strong><br />
<strong>Care</strong> (SICP) welcomes PC pr<strong>of</strong>essionals<br />
regardless <strong>of</strong> their discipl<strong>in</strong>e<br />
or pr<strong>of</strong>essional background,<br />
<strong>in</strong>clud<strong>in</strong>g psychosocial fields. A second<br />
organisation, the <strong>Palliative</strong> <strong>Care</strong><br />
Federation is a Federation <strong>of</strong> NGOs<br />
<strong>in</strong>volved <strong>in</strong> provid<strong>in</strong>g PC and works<br />
closely with the SICP.<br />
Netherlands. There are a number <strong>of</strong><br />
very active pr<strong>of</strong>essional PC organisations<br />
<strong>in</strong> the Netherlands (PZNL),<br />
the National Center for PC<br />
(AGORA ) with focus on patients and<br />
caregivers, the Platform <strong>of</strong> regional<br />
PC Networks (FIBULA), the Netherlands<br />
Comprehensive Cancer<br />
Organisation (IKNL), a Foundation<br />
for PC at home (Sticht<strong>in</strong>g PaTz), an<br />
Expertise PC centre for Children<br />
(Pharos), the Dutch Centre <strong>of</strong> Expertise<br />
on Health Disparities, the Volunteers<br />
for <strong>Palliative</strong> and Term<strong>in</strong>al<br />
<strong>Care</strong> (VPTZ ), the Dutch Association<br />
<strong>of</strong> Hospice <strong>Care</strong> (AHzN), University<br />
centres <strong>of</strong> Expertise for PC, seven<br />
expert centres based <strong>in</strong> Dutch academic<br />
university hospitals, enrolled<br />
<strong>in</strong> the PalZon platform.<br />
<strong>EAPC</strong> <strong>Atlas</strong> <strong>of</strong> <strong>Palliative</strong> <strong>Care</strong> <strong>in</strong> <strong>Europe</strong><br />
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