EAPC Atlas of Palliative Care in Europe 2019
Conclusion: PC health policies developed in recent years have promoted vigorous development across Europe. Preliminary data on the integration of PC into different fields are encouraging though inequalities between countries and sub-regions persist. Further comparative analysis exploring factors leading to uneven progress may inform strategies to provide PC for all people in need. Per land is de stand van zaken van de (kinder)palliatieve zorg weergegeven.
Conclusion: PC health policies developed in recent years have promoted vigorous development across Europe. Preliminary data on the integration of PC into different fields are encouraging though inequalities between countries and sub-regions persist. Further comparative analysis exploring factors leading to uneven progress may inform strategies to provide PC for all people in need.
Per land is de stand van zaken van de (kinder)palliatieve zorg weergegeven.
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Chapter 6. <strong>Palliative</strong> <strong>Care</strong> vitality<br />
and pr<strong>of</strong>essional activity<br />
EUROPEAN CONTEXT<br />
B<br />
TechnicaL data<br />
ON THE <strong>2019</strong> <strong>EAPC</strong><br />
SURVEY ON<br />
PALLIATIVE CARE<br />
VITALITY<br />
Population: 54 countries <strong>in</strong> the<br />
<strong>Europe</strong> WHO region and Liechtenste<strong>in</strong>.<br />
Survey Details<br />
Areas explored: 3 <strong>in</strong>dicators<br />
on the existence <strong>of</strong> National PC<br />
Associations, existence <strong>of</strong> the<br />
directories <strong>of</strong> PC services and<br />
number <strong>of</strong> publications on PC <strong>in</strong><br />
Scopus database .<br />
Questionnaire: on-l<strong>in</strong>e survey,<br />
10 questions.<br />
Participants: 92 key persons<br />
for <strong>Palliative</strong> <strong>Care</strong> development,<br />
nom<strong>in</strong>ated from National Associations<br />
or identified through previous<br />
publications.<br />
Coverage: 51/54 countries<br />
(94%): with two respondents<br />
29/51 countries (57%), with one<br />
respondent 20/51 (39%), other<br />
sources 2/51 (4%).<br />
Data collection: 12/2018 to<br />
3/<strong>2019</strong>.<br />
Project Management: ATLANTES<br />
Research Group, Institute for Culture<br />
and Society, University <strong>of</strong> Navarra,<br />
Pamplona (Navarra), Spa<strong>in</strong> .<br />
Scientific Advice: Julie L<strong>in</strong>g<br />
(CEO <strong>of</strong> the <strong>Europe</strong>an Association<br />
for <strong>Palliative</strong> <strong>Care</strong>).<br />
Promotor: <strong>Europe</strong>an Association<br />
for <strong>Palliative</strong> <strong>Care</strong> (<strong>EAPC</strong>).<br />
The <strong>Europe</strong>an Association for Pal-<br />
LIATIVE <strong>Care</strong> (<strong>EAPC</strong>), established <strong>in</strong><br />
1988, is a membership organisation<br />
that aims to advance, <strong>in</strong>fluence,<br />
promote and develop palliative<br />
care <strong>in</strong> <strong>Europe</strong>. S<strong>in</strong>ce its <strong>in</strong>ception,<br />
the <strong>EAPC</strong> has evolved <strong>in</strong>to the<br />
lead<strong>in</strong>g palliative care organisation<br />
<strong>in</strong> <strong>Europe</strong> provid<strong>in</strong>g a forum<br />
FOR all <strong>of</strong> those either work<strong>in</strong>g,<br />
OR with an <strong>in</strong>terest <strong>in</strong>, palliative<br />
care throughout <strong>Europe</strong> and<br />
BEYOND.<br />
Currently the <strong>EAPC</strong> has 59 member<br />
associations from 33 <strong>Europe</strong>an<br />
countries and also has <strong>in</strong>dividual<br />
members from 52 countries globally.<br />
Members are engaged <strong>in</strong> palliative care<br />
from a range <strong>of</strong> perspectives; specialist cl<strong>in</strong>ical<br />
practice, education, policy and research. The<br />
<strong>EAPC</strong> is respectful <strong>of</strong> the cultural and political<br />
diversities <strong>of</strong> our members across <strong>Europe</strong> but<br />
aims to ensure that as collective group that we<br />
speak with ‘one voice-one vision’ on matters<br />
important for the practice and development<br />
<strong>of</strong> palliative care.<br />
This chapter will show the degree <strong>of</strong> PC pr<strong>of</strong>essional<br />
vitality across <strong>Europe</strong> by exam<strong>in</strong><strong>in</strong>g the<br />
existence <strong>of</strong> National PC associations, directories<br />
<strong>of</strong> PC services, and attendance at the last<br />
<strong>EAPC</strong> congress per country. A new addition to<br />
the <strong>Atlas</strong> is the <strong>in</strong>clusion <strong>of</strong> the number <strong>of</strong> publications<br />
<strong>in</strong> the Scopus database on <strong>Palliative</strong><br />
<strong>Care</strong> <strong>in</strong> the last three years. Future editions will<br />
<strong>in</strong>clude, further <strong>in</strong>dicators <strong>in</strong>clud<strong>in</strong>g contribution<br />
to congresses (<strong>in</strong> the form <strong>of</strong> oral communications<br />
and posters), the degree <strong>of</strong> <strong>in</strong>volvement<br />
<strong>in</strong> <strong>EAPC</strong> Task forces or reference groups,<br />
or other contributions to the <strong>EAPC</strong>.<br />
Eduardo Garralda, Natalia Arias, Carlos Centeno, Julie L<strong>in</strong>g.<br />
member associations throughout <strong>Europe</strong>.<br />
To date, 44/51 countries have a national association<br />
for PC. S<strong>in</strong>ce 1985 when the first was<br />
established <strong>in</strong> the United K<strong>in</strong>gdom, the number<br />
<strong>of</strong> associations has consistently grown. In the<br />
period 1985-1995, there were associations<br />
<strong>in</strong> Italy, France, Denmark, Luxembourg, Germany,<br />
Spa<strong>in</strong>, Portugal, Belgium, Croatia, F<strong>in</strong>land,<br />
Hungary and Lithuania. Between 1996<br />
and 2005, a further 15 were established with<br />
16 more added <strong>in</strong>clud<strong>in</strong>g countries <strong>in</strong> Central<br />
and Eastern <strong>Europe</strong>an. A second national association<br />
has been established <strong>in</strong> 24 countries;<br />
some specifically relat<strong>in</strong>g to PC for children<br />
(Germany, Norway, the Netherlands, Switzerland,<br />
Latvia and Ukra<strong>in</strong>e), and <strong>in</strong> others PC<br />
nurs<strong>in</strong>g national associations have been established<br />
(United K<strong>in</strong>gdom, Portugal, Poland, and<br />
Moldova).<br />
Directories <strong>of</strong> PC Services<br />
The development <strong>of</strong> National Directories for<br />
PC services are important <strong>in</strong> identify<strong>in</strong>g the<br />
number <strong>of</strong> services and the type <strong>of</strong> PC specialised<br />
services available <strong>in</strong> each country, the sett<strong>in</strong>g<br />
and the geographical context <strong>of</strong> the provision<br />
<strong>of</strong> PC. Nearly half <strong>of</strong> all <strong>Europe</strong>an countries<br />
have a directory (25/51). Many <strong>of</strong> these<br />
are available onl<strong>in</strong>e and have been developed<br />
or updated <strong>in</strong> the last ten years (19/25). Up<br />
until 2008, Austria, France, Germany, Hungary,<br />
Norway, Poland and Spa<strong>in</strong> had all developed<br />
a directory <strong>of</strong> exist<strong>in</strong>g PC services. Although<br />
useful, some countries po<strong>in</strong>t out the challenge<br />
<strong>of</strong> ma<strong>in</strong>ta<strong>in</strong><strong>in</strong>g the <strong>in</strong>formation. Some directories<br />
are <strong>in</strong>complete and only present certa<strong>in</strong><br />
services (United K<strong>in</strong>gdom) or are outdated with<br />
the accuracy <strong>of</strong> data left to providers (Sweden).<br />
Others do not reflect the the quality <strong>of</strong> the PC<br />
services (Spa<strong>in</strong>).<br />
National PC Associations<br />
across <strong>Europe</strong><br />
Over the past three decades, PC pr<strong>of</strong>essionals<br />
have established National PC<br />
Attendance to the latest<br />
<strong>EAPC</strong> congress<br />
The <strong>EAPC</strong> ma<strong>in</strong> congress attracts almost<br />
3000 delegates. 1180 participants attended<br />
the 10th World Research Congress <strong>of</strong> the<br />
<strong>EAPC</strong> <strong>Atlas</strong> <strong>of</strong> <strong>Palliative</strong> <strong>Care</strong> <strong>in</strong> <strong>Europe</strong><br />
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