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Spinal Network News - December 2017

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Suzanne Reiser - Overcomes<br />

Guillain-Barré Syndrome<br />

(GBS) to Pay it Forward<br />

Suzanne Reiser started at the New Zealand <strong>Spinal</strong> Trust by<br />

chance and has become a valuable member of the team. Reiser,<br />

who is the sub-editor of the <strong>Spinal</strong> <strong>Network</strong> <strong>News</strong>, was asked<br />

to be a Patient & Family Support person in 2011 for a Japanese<br />

patient in the Burwood <strong>Spinal</strong> Unit who could not speak English.<br />

Reiser, having lived in Japan for 17 years, speaks Japanese fluently<br />

and, is a former patient of the Burwood <strong>Spinal</strong> Unit herself,<br />

so she was an obvious choice. She never looked back and has<br />

been part of the furniture at the NZST before resigning from<br />

her role this month.<br />

What advice do you have for people who have an SCI and are<br />

getting used to their new life?<br />

“It’s still possible to live a full and rewarding life—you only need<br />

to read the stories in the SNN to know that. I’d just say, stay<br />

strong and never give up; focus on what you can do, not on<br />

what you can’t. Show yourself the same patience, kindness, and<br />

compassion that you would show to a friend who was in your<br />

position. You’ll have good days and bad, and it’s okay to have<br />

times when you feel disheartened and frustrated—give yourself<br />

permission to be sad and grieve—for a little bit... as long as you<br />

pick yourself up and get going again.”<br />

Ian Walker - Remembers<br />

Steve Sumner’s Advice<br />

Ian Walker is a former football referee who had a chance<br />

encounter with one of New Zealand’s all-time sporting greats.<br />

The 54-year-old suffered a spinal cord injury in 2006, when a<br />

car collided with his bicycle. He was in the Burwood <strong>Spinal</strong><br />

Unit when former All Whites’ captain, Steve Sumner, dropped<br />

by for a chat. It was a meeting he would never forget. Sumner<br />

passed away in <strong>2017</strong>, gone way too soon at the age of 61 after<br />

suffering from prostate cancer.<br />

What is your quality of life like now and, do you remember<br />

what Steve said to you when you met?<br />

“I consider my quality of life very good. Sure, I use a wheelchair<br />

to get around, but there is still so much one can do. My mantra<br />

is “never allow what you cannot do, stop you from doing what<br />

you can do”. Steve commended me on my attitude toward my<br />

injury and rehabilitation and, he told me to focus on what had<br />

got me to the top of refereeing in New Zealand, saying that<br />

what I’d achieved had made a positive difference to football in<br />

Canterbury and NZ; that I had earned the respect of many<br />

in the game and I had their support. He also said, “the game<br />

wasn’t over and there was plenty of time to go”. He said that I<br />

still had plenty to offer others, and not just in football.”<br />

Alan Pullar - Celebrates 50<br />

Years in a Wheelchair<br />

Allan Pullar is a firm believer that you make your own luck in<br />

life. The 71-year-old, who suffered an SCI playing rugby at the<br />

age of 20, celebrates a special milestone in <strong>2017</strong> of 50 years<br />

in a wheelchair. It is no mean feat and he has lived a life less<br />

ordinary. His generation’s old-school values and determination<br />

have helped him live a fulfilling life. He has never made excuses<br />

and takes huge pride in making the most of his life every day.<br />

“I was never frightened to be seen in public in my wheelchair,<br />

and that is something that people in wheelchairs have to get<br />

over. I don’t care where I go. It has never worried me. I have<br />

always wanted to get on with my life and that has always been<br />

my attitude.”<br />

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