Spinal Network News - December 2017

ALL BLACK RYAN 

CROTTY VISITS THE NEW 

ZEALAND SPINAL TRUST 

WE LOOK BACK ON THE BEST 

STORIES OF 2017 

ALEX DALZELL ON NEVER GIVING UP 

SNN 

December 2017 Volume 20 Issue 3 ISSN 1175-4573 

SPINAL NETWORK NEWS 

Left to Right: Joshua Caldwell, Family & Peer Network Coordinator; Debz 

Edmonds, Family & Peer Network Manager; Ryan Crotty, All Black; 

Hans Wouters, CEO NZST; Brett Ladbrook, Family & Peer Network 

Coordinator 

| 1

CONTENTS 

EDITORIAL....................................................................................... 3 

HANS WOUTERS - FINDING FUTURES....................... 4 

NEVER GIVE UP - ALEX DALZELL’S STORY.................. 6 

ALL BLACK RYAN CROTTY VISITS 

THE BURWOOD SPINAL UNIT........................................... 10 

NEWS IN BRIEF................................................................................ 13 

THE BIG STEP FORWARD....................................................... 14 

LIBRARY UPDATES....................................................................... 18 

NZST AT THE RACES................................................................. 21 

BEST MOMENTS OF 2017...................................................... 23 

CONNECTING PEOPLE - BRETT LADBROOK.......... 31 

ACCESS APP - DISABILITY SERVICE................................. 32 

FUNDRAISER FOR THE NZSTFUN.ORG...................... 33 

CALLAGHAN INNOVATION................................................ 34 

FUNDERS AND SPONSORS.................................................. 35 

SPINAL NETWORK NEWS is published by the NZ 

Spinal Trust 

Send your contributions to: 

The Editor SPINAL NETWORK NEWS 

c/- New Zealand Spinal Trust, Private Bag 4708, 

Christchurch 8140 

Tel: (03) 383 7540 Fax: (03) 383 7500 

Email: peter.thornton@nzspinaltrust.org.nz 

Web: www.nzspinaltrust.org.nz 

DESIGN & LAYOUT: Melanie Evans 

COPY PROOFING: Suzanne Reiser 

DISCLAIMER: 

The views expressed in SPINAL NETWORK NEWS 

are those of its contributors. They do not necessarily 

represent the opinion of the members of the Editorial 

Committee or the policies of the New Zealand Spinal 

Trust. 

Patrons of the 

New Zealand 

Spinal Trust, 

Sir Tim Wallis 

(left) and Trevor 

Harrison (right). 

EDITORIAL TEAM 

PETER THORNTON 

Hi my name is Peter Thornton, I am so proud 

to be the editor of this great magazine. I believe 

it is a publication that has the power to change 

lives, but it is only as strong as the community 

who support it. I encourage anyone who is living 

with SCI to get in touch and share their story. 

We’d love to hear from you. To Suzanne, who 

is leaving us after this issue, thanks so much for 

all of the hours and effort you have put into 

making the SNN a great publication. We really 

appreciate it and will miss your contribution. 

BERNADETTE CASSIDY 

Hi, my name is Bernadette Cassidy. I am 

delighted to be a member of the editorial 

team. Sadly in this issue we farewell our proof 

reader – Suzanne Reiser. Suzanne has being a 

member of the SNN for nearly seven years. We 

appreciate her energy, commitment and high 

standards which have taken the magazine to the 

next level. Thank you Suzanne! 

CONTRIBUTING 

WRITERS 

Peter Thornton 

Hans Wouters 

Bernadette Cassidy 

Mike Brown 

Suzanne Reiser 

CCS Disability Action 

SUZANNE REISER 

Hi, my name is Suzanne Reiser, a former patient 

of the Burwood Spinal Unit where I spent 4½ 

months with Guillain-Barré Syndrome. I have 

been a volunteer Patient & Family Support 

worker at the BSU; and proof reader/sub-editor 

and editorial committee member for the SNN 

for the past seven years. It is with sadness that 

I inform readers that this is my last issue as I 

am retiring from my role with the SNN. I feel 

truly blessed and privileged to have been part 

of producing this fantastic magazine working 

alongside so many wonderful colleagues over 

the years (a special thank you to Bernadette 

Cassidy), and to read such inspiring life-stories 

every issue. I hope you will all continue to 

support the work of the NZST and to feel 

inspired, supported, and informed by the SNN 

going forward! With warmest wishes to you all, 

love from Suzanne oxo 

Callaghan Innovation 

Cheril Clarke 

Brett Ladbrook 

Wellington City Council 

Thundermaps 

Thanks to all who contributed 

images to this issue 

2 |

EDITORIAL 

THE LITTLE THINGS MAKE A WORLD OF DIFFERENCE 

It’s funny how a walk down 

memory lane can bring back a 

flurry of vivid memories, many, 

you never knew you had. When 

I was 21, as a young, naïve Kiwi 

with ragged dreadlocks (yes, 

dreadlocks), and like most Kiwis, I 

felt it was time to take off on my 

OE and see the world. My brother 

and sister were overseas at the time, so it was a perfect 

opportunity for the three of us to go over and find some 

trouble together in Europe. 

On our travels, I was offered a couple of semi-professional 

rugby contracts and ended up agreeing to play for Ashbourne 

RFC in County Meath, north of Dublin in Ireland. I was quick 

to learn that I was one of five Kiwi lads who had taken this 

path with the club and that all had met Irish women, married, 

and settled down in the local village. I bucked that trend, but 

my two years playing rugby there were a highlight of my time 

abroad where I was lucky to experience some of the best 

countries in the world. I enjoyed the rugby, but if I am honest, 

I stayed for the ‘craic’. I was back in Dublin recently for an 

All Whites tour in my other role with NZ Football. Walking 

the streets of St Stephen’s Green down by the River Liffey in 

this Dirty Ol’ Town stirred some strong emotions. This city 

I love had changed so much, and yet, it was so familiar. The 

many hazy nights out in Temple Bar all blur into one, but one 

particular memory came to mind clearer than most, because it 

was so hard and so touching all at the same time. 

In my first few weeks, when I was still getting settled, I lodged 

with the coach—in possibly the roughest and pokiest part of 

Dublin. We played rugby on a Sunday around the province of 

Leinster, so we’d have a light run on Saturday afternoon to be 

ready for the game. I got home from training and straight away 

knew something was wrong. At the time, the rugby club were 

still sorting out my working visa, so in that time I was working 

for cash with some contacts at the club. All of my possessions 

had been turned over and, the many locations in my room 

where I had stashed my £700 in savings, were empty—the Irish 

pound back in the day, was 3:1, so it was equal to NZD2,100. 

The coach’s brother, who had been a good mate during my first 

few weeks in Ireland—but, who I later found out, also had a 

chequered past of drugs and petty crime—had done a runner 

with everything I had. 

I remember walking the cold streets of Dublin that night 

with the final £20 note I had in my wallet, feeling very far 

from home. In two weeks’ time I was due to fly to Scotland 

for Christmas with the family but, in a moment, everything 

had come unstuck. Seven days later, everything had changed 

again. I had borrowed some cash to get through the week 

and was back at the club for our Saturday training. One of the 

aforementioned Kiwi lads, Ryan, (who was nicknamed ‘Rhubarb’ 

because he never stopped talking) approached me over a quiet 

pint of Guinness and handed me an envelope. With it, he said 

something I will never forget: “Don’t make a big deal about it 

because it is not a big deal to any of the lads.” I gratefully took 

the envelope and finished my pint. When I got a moment, I 

went to the bathroom and opened what the guys had given 

me. Inside was £700 exactly. I almost cried. Little did I know, 

but when Rhubarb had found out about my misfortune he had 

said to the boys, that is not how we do things around here. In 

a small club with fewer than 50 full members, they had rallied 

around throughout the week—some of them giving £50 each 

to this rough-looking Kiwi they had barely met. It was hugely 

humbling, and from that point I gave the club my all and made 

some lifelong friends. 

So, what is the point I hear you asking? It is this: the smallest 

gesture can make the biggest difference. In a culture like 

Ireland—similar in so many ways to New Zealand—being 

a warm, welcoming host and doing the right thing means 

everything. They treated me like family before they even knew 

me… and then, that is exactly what I became. It was the 

smallest gesture from a group of lads who didn’t think twice 

about putting forward some of their hard-earned money when 

they caught up for a quiet mid-week pint. They didn’t hesitate. 

It made the world of difference to me and reaffirmed all of the 

reasons why I had believed I would love Ireland. The old saying 

“the people make the place” is never more apt than it is on the 

Emerald Isle, or, more specifically, in Dublin. 

There are parts of Ireland that are beautiful beyond compare, 

and then, there is Dublin. The capital is every bit the Dirty 

Ol’ Town, oozing character, charm, and history in its quaint 

streets and pubs that date back centuries, but the people bring 

this place to life and give it its soul. As I saunter up Grafton 

Street past the lines of street entertainers and the everyday 

hustle and bustle of the city’s busiest area, I smile because I 

love this place. I love its character; I love its people, and I love 

my memories from living here. I hope I have learned from 

my time here. It is 26 years ago since I was here as a laid-back 

rugby player living pay cheque to pay cheque without a care in 

the world. Twenty-six years since a group of good lads made 

a small gesture which made a world of difference. Later that 

night, I’m sitting across the table from my ol’ mate Rhubarb 

with a pint of Guinness. 

We have many stories to reminisce about, but he never 

mentions this one, and nor do I. Remember, it wasn’t a big 

deal. It is 26 years since some strangers showed me the 

meaning of friendship and the value of being a good person. I 

can’t help but reflect, and it is a challenge for all of us I guess— 

what small gestures have I made to others in my time to make 

a big difference in their lives? Not enough, I conclude. My 

walk down memory lane helps me realise that opportunities to 

make a difference are there every day, if we look for them. 

| 3

THE CEO’S COLUMN 

FINDING FUTURES 

It is tough at the top! So they 

say. The toughest part of my 

job is finding the time to spend 

one-on-one with the folk we 

are helping. However, hearing 

people’s stories is what keeps 

me connected with our “why” 

and motivates me to empower 

our team to do what they do. 

The powerful videos for our annual appeal, conceived 

and pulled together so brilliantly by our Community and 

Marketing Manager, Mike Brown, are still available to 

view on our Vimeo and YouTube channels. Watching 

ordinary people recalling their first personal encounter 

with an SCI is quite sobering and deeply impacting. 

I was wandering down the ward recently having a few 

chats, and met Bruce Vallance from Blenheim. One 

week before I met him, he had been riding a quad bike, 

crashed, and smashed his L1-L2 vertebrae and needed 

some hardware attached to his spine to shore it up. 

Bruce was discharged from the Spinal Unit about 10 

days after his accident. He walked out unaided; his spinal 

cord had escaped damage and he expected no lasting 

issues. Bruce and I thought this was incredible, as did his 

wife, Neroli. They were truly grateful for this favourable 

outcome. Bruce’s narrow “escape” made me reflect 

once again on the impartial nature of spinal cord injuries 

where, in an instant, your whole world can be flipped 

upside down. I am privileged to lead a remarkable team 

who help Kiwis along that unexpected fork in their road. 

Another fabulous group of organisations helping Kiwis 

with an SCI find their future is the Parafeds of NZ. In 

early November, we had the great pleasure to present 

Parafed Canterbury with a commemorative chalice 

in honour of their 50 years of service to the disabled 

community. We were also able to inform the guests 

about a Christchurch City Civic Award to be presented 

in recognition of 50 remarkable years serving the 

community and getting people with disabilities active. To 

recognise this outstanding organisation, we established 

a new award: The New Zealand Spinal Trust Phil 

Humphreys Most Valued Volunteer Award. Phil is well 

known for his many years of service in the Parafed world 

through his volunteering, and it is fitting that he should 

be honoured by this new award. It was presented for the 

first time at the 2017 Annual Parafed Canterbury Sports 

Awards evening to Alex McIntyre for services to sports 

development. 

Speaking of volunteering, this issue of the SNN is 

Suzanne Reiser’s last as sub-editor on our editorial team. 

The CEO spending World SCI day in a wheelchair. 

4 |

Wow! Suzanne has faithfully and diligently volunteered 

for seven years, and has contributed many hours of 

service to the community she loves. Our heartfelt 

thanks are with Suzanne, and we are glad to know she 

will not become a stranger in spite of leaving the team to 

pursue new challenges. 

Do you have a spinal cord injury or impairment? Have 

you ever wanted to tell a colleague or your boss, or 

even a family member, about the unseen effects that you 

experience in your day-to-day life, but didn’t know where 

to start? We have a new resource, launched on World 

SCI Day this year, called the Disability Iceberg. This 

information tool is the result of collaborative work with 

our friends at the Burwood Academy of Independent 

Living (BAIL), and is designed to assist you with starting 

that conversation. Our thanks go out to Melrose Chairs 

also, for providing us with Rua Pari’s brilliant graphic-art 

skills. You can get it for free on our website—just search 

for Iceberg in the search box. 

In the last edition, I was excited to interview Alan 

Pullar—NZ Rugby Foundation VIP No.1—and, for this 

edition, I have interviewed Alex Dalzell. As we talked, it 

dawned on me that the effects of Alex’s tetraplegia will 

preclude him from handling the printed version of the 

magazine. We are all about encouraging independence 

so, to that end, we will be making this edition and future 

issues of the SNN available in an electronic version. 

Simply go to our website www.nzst.org.nz, enter the 

Resources section and open Spinal Network News. 

Finally, I want to express my considerable gratitude to 

everyone who contributed to making our first ever 

annual appeal and our Pukekohe Charitable Race Day, 

both record-breaking events. Mike Brown led the 

appeal, and our Patron, Trevor (Gripper) Harrison, the 

race day. Both gentlemen worked their tails off and 

the results were extremely satisfying. Mike and Trevor 

gathered strong teams around them and motivated 

many to invest their time and skills to help us raise funds 

for our work. And, to the hundreds who donated, 

we say thank you. Thank you for donating and, thank 

you for helping New Zealanders with an SCI find their 

future. 

Here is something I intend to ponder over the summer 

holidays: the most powerful rehabilitation tool is your 

mind. Anyone interested in sharpening it up? 

Left to Right: Russ Simpson of Healthcare Rehabilitiation with Most Valued Volunteer Alex 

McIntyre (centre) and Hans Wouters at the 2017 Annual Parafed Canterbury Sports Awards. 

| 5

Never Give Up 

Alex Dalzell pauses for a moment. His eyes dart around 

the room and he flashes a cheeky smile as he considers 

the question. “How do I say it?,” he said, deep in 

thought. The question was: what advice would Dalzell 

offer to other people who have sustained a spinal cord 

impairment (SCI) and are at the start of their journey? It 

is a tough one. Dalzell, who is considered, honest, and 

eloquent during our hour-long conversation talking about 

his life as a tetraplegic, replies in good time. 

“I’d say to them: be positive and, don’t waste your 

opportunities.” Dalzell was asked to talk to a couple of 

young men (aged 15-16 years) but was reluctant at first, 

as he feared he would be too honest about how hard it is. 

It is bloody tough. He reconsidered though, as he wanted 

to make a difference, like others had for him back in the 

day. The students with an SCI were given the option 

of not going back to school, which stirred something in 

Dalzell. “They were told that, if you miss school, it is not 

a big deal. …I think it is a really big deal,” he said. “If I had 

stopped going to university after my injury, then I don’t 

think I would have ever gone back. I felt like I was over 

my spinal cord injury the day I left hospital, but I am still in 

the same headspace that I was then. If your teacher says: 

‘You don’t need to get to class.’… Get to class.” It was a 

stirring response from Dalzell and, a moment during our 

chat through his tough times and good times where he 

6 |

is the most animated. He feels passionately about this 

point. Recovery, rehabilitation, and living life to the full 

with an SCI, belong to the individual, and they need to 

own it. 

“The main advice I would give is, make the most of the 

small things… Take care of them,” continued Dalzell. “I 

was extremely lucky because I had people like the New 

Zealand Spinal Trust and the Rugby Foundation. Massive 

organisations that had been through it all before.” Dalzell 

had vivid memories of his time at Burwood Hospital in 

Christchurch. The place was vibrant and full of activity, 

and always much more like a recovery unit than a rest 

home. He said that the community of others in the same 

situation was a big factor in turning around his thinking. 

There was a common expectation that you’d all be at the 

gym every day. You were expected to be in the dining 

room having meals with everyone. They were important 

social times as Dalzell got his head around his new reality. 

“I don’t know if I have ever really dealt with it, which 

is interesting. When I was at Burwood, I always had 

people around me. I set my goals pretty early about 

what I wanted to do. My goal was to live the life that I 

would have lived apart from a wheelchair. To this day, I 

don’t know if I gave up on the goal of walking too early. 

I don’t know if I rehabbed a bit more or could have got 

there, I don’t know… but my goal was to achieve a life 

in a wheelchair that would be as close as it would have 

been without it. I have achieved some of my goals, 

but not all of them.” One of his goals was to graduate 

from university, which he did. A remarkable feat for 

a young man in a wheelchair at Canterbury’s Lincoln 

University. It took him six years to complete a four-year 

Agricultural Science degree, all the while overcoming his 

own limitations and challenges—a huge achievement. 

He graduated in 2011, soon after the earthquake which 

changed the course of the city and, the feeling was not 

what he expected. “I had this idea that it would be a 

pretty big achievement. But then, you lose purpose 

and you lose direction, and you don’t really know what 

you should be doing tomorrow. The future was pretty 

uncertain... I had achieved something I thought I’d be 

proud of, but in the end, it was a little bit hollow.” 

To get an idea of what Dalzell has gone through, we, of 

course, have to go back to the date of his injury and get a 

full rundown of where he has been. Dalzell grew up on 

a farm in the rural area of Lees Valley near Oxford which 

is about an hou’s drive inland from Christchurch. There 

were only nine families. Dalzell and his older brother, 

Stewart, and younger sister, Alicia, were three of six kids 

in the area, so it wasn’t surprising that he grew up mostly 

with his family. He described his childhood as “pretty 

cool” in his laid-back manner. He would work in the 

mornings and then play all afternoon—hunting and fishing 

and hanging outside for hours on end. “I always loved 

farming and doing work growing up. Was always doing 

things that I shouldn’t have been.” 

Dalzell was schooled by correspondence until high 

school, when he went to Christchurch Boys’ High School 

and boarded in a hostel called Adam’s House, for third 

and fourth form (Years 9 and 10 in today’s parlance). “I 

went from a school of five, to living with 100 boys, and 

going to school with 1,000 others. It was a pretty big 

change to get my head around. I didn’t adjust too well 

to that change. It was pretty hard. It was a different 

world, and the hardest thing about it was, there was 

no alone time. Even if you wanted to do something by 

yourself, you couldn’t.” After fourth form, he moved 

from boarding school into a private home with family 

friends. He enjoyed school and did well all the way to the 

completion of seventh form (Year 13). In his final year, he 

also made the First XV as an open-side flanker. “I really 

enjoyed playing First XV rugby. We won the national 

championship, which was the first time we had done 

that in a long time.” Dalzell played with future All Blacks, 

Owen Franks, Colin Slade, and future Crusaders’ rep, Tim 

Bateman—around half a dozen guys who would go on to 

play rugby professionally, including some handy Japanese 

and Korean rugby reps. 

“I’d say to them: be positive and don’t waste 

your opportunities”. 

After school, he found university to be very different to 

school and loved the newfound freedom. He had an 

awesome time flatting with a group of seven guys. While 

at university, he played club rugby for High School Old 

Boys in the Colts Division and, the year after, he played 

for Oxford with his older brother. The club rugby final 

that year would prove a day that would change his life 

forever. “There were a lot of people around. It was 

just one of those days where it all went wrong,” he said. 

Dalzell remembers the day like a man who has seen it 

play over in his head a million times. “My head was saying 

that everything is fine, but my body wouldn’t move. I 

remember thinking why won’t they let me up. Another 

one of my big standout memories was that we were 

losing.” 

Dalzell remembers there was no malice in the tackle 

which broke his neck. He stood up from a ruck but didn’t 

get up fast enough and was hit hard and then everyone 

piled on. It was something that he had done many times 

before and had been fine. An innocuous moment that 

went horribly wrong. “The scariest thing about the whole 

thing was, I woke up and I was surrounded by people 

but I couldn’t talk. It was only for a couple of minutes 

but it felt like a lifetime.” Lying prone in the mud, Dalzell 

could hear a bell ringing. He remembers seeing other 

players running towards him and he knew that he wasn’t 

breathing and drifted off to sleep. Then, everything 

started moving slowly. A whole heap of people that he 

had hurt in the past flashed before his eyes. “A lot of the 

time, I didn’t know that I had hurt them. It was pretty 

weird. I don’t know where those thoughts came from. 

It is crazy and doesn’t make any sense.” He also had so 

many special memories come up of his family and friends 

and can remember all of those moments so clearly now. 

| 7

The way the tackle had unfolded, his head was trapped 

underneath his body and his neck was fully dislocated. 

There were medical staff on site and they treated it with 

plenty of precaution as a spinal injury. His father was 

pushier and did not appreciate how long it was taking— 

around eight minutes went by without any help. In the 

end, a pregnant lady ran across the field to his assistance. 

“I had turned blue and Dad got to the point where he 

turned me over. I sat on my back and took my mouthguard 

out. I was able to start breathing again. Then, 

when the physio came over, I started coughing up blood 

and that is when I started hearing things and seeing things. 

It was a warm feeling and then I was in a daze wondering 

why nothing would move. He was asked to wiggle his 

toes and feet… I thought they had wiggled. I must be 

alright.” 

In fact, he wasn’t alright. Dalzell was taken to 

Christchurch Hospital by helicopter and admitted to the 

Intensive Care Unit. He had a complete fracture of his 

C4 vertebrae and he wasn’t ventilated so he was lucky 

to survive. Dalzell didn’t feel lucky. His life, as he knew it, 

was over. And, to be frank, his journey since has been a 

battle in every sense of the word. Rehabilitation and pain, 

followed by more surgery and pain. But he has never 

given up. 

“I was too young to be going through all of that 

stuff… I felt like there was too much emphasis on 

me. Mentally, I was afraid the family would sell the 

farm to look after me. It was all a huge burden.” 

So, how has he managed to stay positive through all 

the trials and tribulations? How has he won the mental 

battle? He has thought about it a lot, but doesn’t know 

how to answer that question. The worst days were 

around the time when he was graduating from university. 

He remembers one day in hospital three weeks after the 

accident when he asked his brother to take him outside 

because he was pretty unwell and wasn’t breathing well. 

The prospect of being ventilated full-time was being 

mooted. “It was a nice night; I remember being under 

the stars and thinking to myself: ‘I don’t know if I can do 

this’… that was the lowest moment; but then, in time, 

I realised I wasn’t going to be ventilated and it was OK.” 

Like a true good friend, his older brother, Stewart, (22 

at the time) just sat and listened. “I was too young to be 

going through all of that stuff… I felt like there was too 

much emphasis on me. Mentally, I was afraid the family 

would sell the farm to look after me. It was all a huge 

burden.” 

But the beauty of the human spirit is an amazing thing. 

Dalzell found a way. There were other trials to come; 

namely, surviving the 2011 earthquake in Christchurch— 

which was no mean feat in a wheelchair—and then the 

general challenge of getting his head around his new life. 

After graduating, he met with BDO owner Phillip Roth, 

who he had known for a long time and, soon after, he 

began working for the company as a Business Advisory 

Support. “I love the work because it is so varied.” Dalzell 

enjoys working in agriculture and putting his degree to 

good use. Most of the work is primary sector-based. It is 

not accounting; it is business advisory. There is a group of 

five, which has become 10, and we do a lot of background 

work on projects—looking at what big multi-trusts are 

doing, or what big farms are doing. His role is to get the 

information from the background that is the foundation. 

He works from home for about 5-6 hours per week, 

as he struggles to do any work while in his wheelchair 

because he gets dizzy and suffers from pain. In bed, he 

can be on his computer for hours on end with his head 

supported. He loves reading books by the dozen— 

anything, from how the world is going to end, to the 

Financial Times. “It is great that I still have the ability 

to work and I really enjoy it. The commitment works 

well for me and for them.” Even though he enjoys the 

challenge and is mentally stimulated, life is not easy for 

Dalzell. For the past 12 months he has been recovering 

from surgery. He doesn’t do a lot at night-time as he gets 

quite cold, so he has to be in bed otherwise he doesn’t 

sleep. He lives with four flatmates but he doesn’t see 

them all that much because he stays down his end of the 

house. He needs his end of the house to be warm— 

around 23 or 24 degrees compared to the cold in the 

rest of the house. 

The completely separate issue of pain is debilitating. He 

suffers pain in his shoulder and thumbs—he shouldn’t be 

able to feel his thumbs, but he does in phantom pain— 

and feels coldness in his legs. “That pain holds me back 

from doing a lot of things. The being-in-the-chair bit is 

easy… it is what it means for managing your body and 

sleep and keeping well—because I don’t want to end up 

in hospital all the time. So I am pretty cautious about that 

and it is something that I am still figuring out. “I am trying 

to get back to somewhat of a normal life and I hope to 

mix with the guys more, but it is slow progress. I don’t 

get to do the night-time things others do, but I hope to 

get it back.” Dalzell also has goals of being in the chair 

a lot longer and being able to work in his chair, and this 

is something he is determined to work towards. He is 

chipping away at achieving his goals. 

So, back to that advice for others in the same position. 

“I come from a position of what is your worst-case 

scenario and then building from it. I have always been 

quite pessimistic. I have always pointed out reasons why 

things won’t work, rather than why they will. Don’t get 

me wrong; I am a positive person; it has just been hard…” 

No doubt about that. Dalzell’s life has been a long and 

winding road of ups and downs. He is a young man with 

old-school values and, he has taken every opportunity 

presented to him to improve his life. Some might say it, 

but Alex Dalzell has overcome it all, and lives the mantra 

of never giving up every day. 

8 |

AUCKLAND ASB Showgrounds 

Tuesday February 27th 

Extended opening hours: 9am -7.30pm 

HAMILTON 

Claudelands Event Centre 

Thursday March 1st | 9am - 3pm 

PALMERSTON NORTH 

Central Energy Trust Arena 

Friday March 2nd | 9am -3pm 

CHRISTCHURCH 

Pioneer Recreation & Sports Centre 

Monday March 5th | 9am - 2pm 

DUNEDIN 

Edgar Stadium 

Tuesday March 6th | 9am - 1pm 

Register at any show for your chance to 

WIN AN iPAD! 

showyourability 

3am.net.nz 

| 9

Ryan Crotty presenting cheque to Andrew Hall, Chair of the NZST. 

RYAN CROTTY 

VISITS NEW ZEALAND 

SPINAL TRUST AND DONATES 

MAN-OF-THE-MATCH PRIZE 

When former All Blacks’ coach Graham Henry first 

pitched the mantra: “Better people make better All 

Blacks”, he surely had good fellas like Ryan Crotty in 

mind. 

The 29-year-old, who has played 31 tests for New 

Zealand since making his debut in 2013, has become 

an integral part of the All Blacks’ side as they continue 

to dominate world rugby. He also led the Crusaders to 

their first Super Rugby title in nine years, this year, as 

the men from the Garden City broke their long stretch 

without a title with an emphatic performance against 

the Lions in Johannesburg. As Crotty has grown as a 

10 |

ugby player, so too has he matured as a person, 

personifying that mantra. He is still the down-to-earth 

man he has always been, and handles the pressures 

and expectations of being an All Black in his stride. 

Earlier this year, Crotty—a regular visitor to the 

Burwood Spinal Unit to see the patients and spend 

time with the staff—donated half of his man-ofthe-match 

prize from the Super Rugby final to the 

NZ Spinal Trust National Appeal. NZST CEO, Hans 

Wouters, and Chairman of the Board Andrew Hall 

presented Crotty with a big cheque as a memento at 

a well-attended function in Christchurch. 

“The New Zealand Spinal Trust is aligned with the 

Crusaders as one of our charities,” said Crotty. 

“Obviously there is some risk with rugby. Spinal 

injuries are prone to happen to rugby players. For 

me personally, I have been in here a few times, and I 

have seen the great job that the NZST does. It was 

really a no-brainer for me. I appreciate the welcome 

here today. I feel proud to be able to donate to you 

guys.” Wouters said Crotty’s donation will specifically 

be put towards the Peer Support Community-based 

Programme. 

“When people who suffer a SCI leave 

hospital and go home, they can go into 

a bit of a downer and go into a difficult 

place, and that is when peer support 

becomes very important,” said Wouters. 

“The New Zealand Spinal Trust, through 

our National Appeal, builds that Peer 

Support Programme to help people find 

their new future. It is massive for them 

to lift their heads up and find some new 

hope.” Chairman of the Board, Hall, was 

also on hand to receive the donation from 

Crotty. “If you are ever doing anything in 

New Zealand and you want to get a crowd, get an 

All Black along. We are very thankful to Ryan for his 

donation. Many of our team here watch you and the 

team here a lot in Christchurch, and we look forward to 

a nice new, covered stadium. But we are blown away by 

your generosity.” 

The Crusaders were once again the toast of New 

Zealand rugby when they showed plenty of character 

to claim the Super Rugby title for the first time in nine 

years, with a 25-17 win over the Lions. Crotty was 

a deserved man-of-the-match, but he said lifting the 

trophy—which he brought into the NZST—was far 

more rewarding. 

“The elation of winning the competition as a team is far 

more important or special than any individual accolade 

that you would ever get. It was far more satisfying 

winning the game with the boys. To be singled out; I 

was happy because it had meant that I had done my job. 

It wasn’t anything special; I did what I needed to do to 

make the team successful. It was nice to finally get my 

“ It is just awesome to be able to connect with people who are doing it a 

bit tough. It is easy to think that you are just a rugby player and you go 

and kick a ball around with your mates. It is pretty awesome to be able to 

brighten people;s days just by coming in and having a chat. As a player it 

is quite fulfilling and rewarding to be able to do that.” 

hands on the trophy because we have been waiting nine 

years.” 

Crotty is, in every sense, your everyday hero. He is 

an ideal role model, and boasts talent in spades, both 

on and off the field. It is little wonder he is a popular 

member of any team he is part of and also a welcomed 

visitor to the NZST when he finds time in his busy 

schedule. 

“It is just awesome to be able to connect with people 

who are doing it a bit tough. It is easy to think that you 

are just a rugby player and you go and kick a ball around 

with your mates. It is pretty awesome to be able to 

brighten people’s days just by coming in and having a 

chat. As a player, it is quite fulfilling and rewarding to be 

able to do that. I have been on a few hospital visits in the 

last few weeks (we do them with the All Blacks as well), 

and it is a great way to give back to all our fans—the 

New Zealand Spinal Trust is included in that. It is nice to 

be able to brighten someone’s day if you can.” 

| 11

N 

FEATURING 

YOUR WORLD 

WITHIN REACH. 

12 | 

Email: sales@tilite.co.nz I Phone: 0508 845 483 I www.permobil.com.au

IN BRIE 

NEWS IN BRIEF 

NATIONAL APPEAL A HUGE SUCCESS 

Thanks to all who made our first National Appeal a huge 

success. With your help we reached 200,000 people, 

raised $27,000 after costs, and showed New Zealand 

that a bright future is possible despite the effects of a 

spinal cord injury or impairment. The funds raised will 

be used to extend the reach of peer support in New 

Zealand. 

GET BEHIND PEOPLE RAISING MONEY FOR THE NZST 

Russell Simpson is taking on the Hillary Tenzing Everest Marathon 29 May, 2018. 

$1,525.00 - Amount Donated (as at 1 December 2017) 

$20,000.00 - Goal Amount 

21 Donors 

His Story... What inspired him to fundraise? 

I am GM of a large home, community and nursing support provider that offers services 

to a number of clients who have spinal cord impairments. I feel incredibly fortunate to 

still have the use of my hands and legs and I want to dedicate my dream of completing 

the Hillary Tenzing Mt Everest Marathon to improve the lives of those affected by spinal 

cord injury or impairment. I am also excited to represent our company in support of the 

NZ Spinal Trust whose values align so well with our own. 

You can make a difference today in the lives of Kiwis living with a spinal cord injury or 

impairment (SCI) by supporting my fundraiser. 

Donate here; http://fundraise.nzspinaltrust.org.nz/campaigns/hillary-tenzing-everestmarathon-may-29th-2018/ 

As we were going to print, Cheryl Robertson was getting ready to ride the Clutha 

Gold Trail, her page is still active... 

$1,140.00 - Amount Donated (as at 1 December 2017) 

$1,500.00 - Goal Amount 

25 Donors 

Her Story... What inspired her to fundraise? 

A bad car accident left me with a spinal cord injury. I want to give back to help others 

experiencing the trauma I went through. I have recovered enough to be able to ride a 

tricycle and have set a huge goal (for me) to ride from Millers Flat to Lawrence along the 

Clutha Gold Trail. I’m raising money to help New Zealanders find a bright new future 

despite living with the effects of a spinal cord injury. 

I will have to train hard for this, which is good because one of my personal goals is to 

get my weight below 100kg before the end of the year also. I set off on the ride on 

December 9th. 

Please support my training and big ride by making a donation. Thank you! Cheryl. 

www.nzstfun.org.nz 

| 13

Physio Samantha Henry with Steve Caines 

THE BIG STEP FORWARD 

By Cheril Clarke 

“The ReWalk NZ system changes lives,” said Shanon 

Arnold, of Mobility Solutions Centre in Dunedin. Arnold 

is talking about an amazing exoskeleton development 

which supports the legs and lower torso of a person 

living with paraplegia or other conditions which render 

the legs unusable or nearly so. 

The exoskeleton consists of two narrow, light-weight 

splints attached to the outside of each leg; a power pack, 

worn as a back pack; and a computerised controller, 

worn like a wristwatch. The controller can make the 

exoskeleton and the attached legs walk forward, stand, 

sit, or climb stairs. This machine provides greater access 

to the world as the user walks upright and, as most 

equipment is designed for a person standing upright— 

even the kitchen sink—its usefulness is not hard to 

imagine. Added to that is the psychological benefit 

of conversing face-to-face with able-bodied people. 

There are also major health benefits for the user. The 

ReWalk provides more support and is much easier 

on the body than the present system of walking using 

callipers and crutches. “Walking with callipers puts a 

lot of strain on the body and can wear out joints and 

muscles,” said Arnold, “whereas the ReWalk provides 

more support and decreases medical costs such as 

long-term pain medication, because the user is stretching 

muscles and increasing bone density.” 

Arnold immediately recognised the advantages of 

this Israeli-designed machine over existing mobility 

devices when he saw it demonstrated two years ago. 

He purchased two machines and set up a training 

programme for interested physiotherapists. The next 

stage was to find suitable people to trial the machine. 

Suzie Mudge, Director of Neuro Rehab Results in 

Auckland, was one of three physiotherapists who 

accepted the training offered by Arnold at the Mobility 

Solutions Centre in Dunedin. After completing training 

14 |

on the use of the ReWalk for mobilising patients, 

Mudge presented the idea to one of her paraplegia 

patients, Steve Caines. Caines had been in rehabilitation 

training with Suzie at Neuro Rehab Results since a major 

accident in 2005 left him paralysed from the chest 

down. Having toiled for years to master the use of 

callipers, Caines could immediately see the improvement 

ReWalk could make to his life and was keen to 

try out this amazing new machine. Mudge knew 

Caines had the right motivation, physical fitness, 

and perseverance. Caines proved an excellent 

choice. Mudge had worked with him from soon 

after his accident. He was then 35-years-old and 

determined that he would get back on his legs. 

“It has been his focus for 12 years,” said Mudge. 

“We first met Caines seeing him pushing determinedly 

through Western Reserve, Orewa, with his callipers and 

crutches. He told us with great enthusiasm about the 

ReWalk and the difference it was going to make to 

getting him walking. “Caines introduced us to Shanon 

Arnold and two of his physios: Suzie and Samantha. 

Hearing about the difference the exoskeleton was 

making in his life, I decided this was a story that needed 

to be told. We learned that Caines is the most advanced 

trialist of this system in NZ. 

Caines’ first progress towards walking after the accident 

was to master the use of callipers and crutches. This 

was an immensely challenging goal, but Caines, being 

a very determined young man, always knew he would 

walk upright again. “It took two gritty years to master 

callipers and crutches, and that was only inside the 

Rehab unit,” said Caines. Caines lives in Orewa and, 

over the past nine years, a familiar sight is the gutsy 

Caines goading his paralysed legs to perform miracles as 

he labours through Western Reserve on callipers and 

crutches. Caines has won the admiration and friendship 

of dozens of other users of the park in the years he has 

been walking there. 

Physio, Samantha Henry, said: “The severity of Steve’s 

injuries would have seen most patients resorting to a 

wheelchair full-time.” His friends, medics, and physios, 

know it would take more than that to knock Steve out. 

Steve made up his mind he was going to walk again and 

that was that. “Few patients with that level of injury 

would persevere with callipers and crutches as it is so 

“The severity of Steve’s injuries would have seen 

most patients resorting to a wheelchair full-time.” 

challenging.” Over the past 12 years, Caines has pushed 

and slogged with the determination and commitment of 

a top athlete. Rain, hail, or shine, he’s out there training 

on his callipers. 

However, during the past 18 months, Caines has been 

gradually transitioning to the ReWalk system, which 

has revolutionised the way that he walks. He is hugely 

grateful to Arnold, as the ReWalk has taken him places 

he never thought possible after the accident. It has 

given him hope for a new life walking and taking part in 

activities that he thought might remain out of reach, but 

now he has the means. It will eventually give him more 

independence. Henry still accompanies Caines when 

he is walking with the ReWalk, but his progress is 

such that he will soon be going solo. This will then pose 

another problem: the need to own, or have permanent 

access to, a machine. Funding for this will be the subject 

of many discussions down the track. 

Although walking daily on the ReWalk accompanied 

by Henry, Caines also continues training daily with his 

callipers. He uses them in conjunction with his mobility 

scooter or car for trips to the local shopping centre or 

hardware store. He shops frequently for the bits and 

| 15

pieces he uses for his many engineering and building projects. At the present time, 

this system (callipers and mobility scooter) is independent of any assistance, but it is 

very limited. Caines’ goal is to achieve much greater independence as soon as possible 

using the far easier ReWalk. Caines was an engineer before his accident, and he 

has adapted to building, renovating, and fixing things around his home from his wellequipped 

workshop. The exoskeleton not only helps him to walk, but will also simplify 

using his lathe, drill press, and other equipment in his workshop—equipment needing an 

upright body position. 

Getting places is an important adjunct to the use of either callipers or the ReWalk. 

Caines’ mobility scooter is being adjusted so that he can soon ride it wearing the 

exoskeleton. Another useful development available in New Zealand, is a swivel seat 

for the car, with the necessary precision measurements to allow the user to access 

and drive the car whilst wearing the ReWalk. This could be a great step forward 

into independence once Caines goes solo. The newest version of the ReWalk has 

eliminated the backpack, which carries the computer system and batteries. The new, 

much smaller pack, attaches to the belt at the waist, and will make using the machine in 

conjunction with other transport easier. 

Transitioning from callipers to the completely different technique for operating the 

ReWalk has required a lot of training; Caines has had to learn how to use his body 

differently to control the exoskeleton. It is very different to walking with callipers. 

There is a trigger mechanism attached to the waistband of the ReWalk. Caines 

must lean forward to start the machine with torso pressure. He must also control the 

communicator, with which he can direct the machine to walk, stand, sit, or climb stairs. 

Caines is learning to adapt these four commands to a wide variety of situations. 

We walked with him and his physio, Henry, for an hour-and-a-quarter, from his home to 

Orewa Beach; across pedestrian crossings; and up and down curbs. We could see that 

despite the focus needed to work with the machine, the whole process was much less 

exhausting than the callipers. Caines goal for the week was to walk 100m in six minutes. 

He slashed it to 100m in five minutes, and that time will be constantly improving. When 

asked to compare walking with callipers and walking with the exoskeleton, Caines said: 

“To walk 300m on callipers takes 40 minutes and is exhausting. To walk 300m on the 

ReWalk takes 14 minutes and it’s much easier. The maximum distance I can walk 

with callipers is 600m, but with the exoskeleton, I can walk 3km and I’m improving.” 

Improving is an important word in Caines’ vocabulary. 

Where to from here? Arnold said: “This machine changes lives, and already, more 

advanced models are available. It could eventually cost less than the present system 

where patients are permanently wheelchair-bound. Potential ReWalk clients 

have long-term medical costs. So, it would be advantageous—financially, physically, 

and psychologically—for clients to own a ReWalk. Studies are starting to show 

large savings in long-term health costs, not to mention a better quality of life for 

users.” Funding is going to be the next big discussion question. Once trained on the 

exoskeleton, it will be essential for a client to have permanent use of a machine if we are 

going to see those health and cost improvements and benefits. At the current price of 

$115,000 plus GST per machine, how are we going to get this revolution started? 

16 |

| 17

NEW ADDITIONS DECEMBER 2017 

CHECK OUT THESE GREAT BOOKS! 

These items, and much more, are available to borrow for free! Not a member? It’s free to join; just phone the 

library on: 03 383 9484 (Ext. 99484) or email us at: abclibrary@nzspinaltrust.org.nz 

OVERCOMING ADVERSITY: HOW ENERGY TAPPING TRANSFORMS YOUR LIEFE’S WORST 

EXPERIENCES, BY CAROLINE E SAKAI, 2017 

Caroline Sakai shares a treasure-trove of clinical examples of how Thought Field Therapy (TFT), 

an Energy Psychology technique, can help people with issues related to trauma, pain, fears, phobias, 

relationship challenges, and many other issues. 

TFT involves tapping on specific series of acupressure points that are prescribed by the TFT 

practitioner in accordance with the problems being addressed. TFT has been confirmed to be 

effective in relieving varieties of problems, including physical and emotional pains, anxieties, phobias, 

self-image and relationship issues, and even severe post traumatic stress disorders (PTSDs). 

COLLABORATIVE AND INDIGENOUS MENTAL HEALTH THERAPY: TATAIHONO – 

STORIES OF MAORI HEALING AND PSYCHIATRY BY WIREMU NIANIA, ALLISTER BUSH 

AND DAVID EPSTON, 2017 

This book explores a collaboration between traditional Maori healing and clinical psychiatry. It 

demonstrates how bicultural partnership frameworks can augment mental health treatment by 

balancing local imperatives with sound and careful psychiatric care. With a forward by Sir Mason 

Durie, this book is essential reading for psychologists, social psychiatrists, and students interested 

in bicultural studies. 

PROMOTING EMOTIONAL RESILIENCE: COGNITIVE-EFFECTIVE STRESS MANAGEMENT 

TRAINING BY RONALD E. SMITH AND JAMES C. ASCOUGH, 2016 

This book re-examines the philosophical foundations of rehabilitation, expanding the concept of 

movement beyond the physical body. Drawing from disability studies, sociology, anthropology, 

philosophy, cultural studies, and bioethics, the book: 

Explores the limitations of biomedicine as the organizing framework of rehabilitation, evaluates 

new directions to diversify contemporary rehabilitation practice and establishes the parameters 

for a reconfigured ethics of rehabilitation. 

EXPLAIN PAIN SUPERCHARGED: THE CLINICIAN’S MANUAL BY LORIMER MOSELEY AND 

DAVID BUTLER, 2017 

Explain Pain Supercharged is for all health professionals treating pain. In this brand new book, 

Moseley & Butler apply their unique style to take the neuroimmune science of pain further and 

deeper. 

WE CAN GO ANYWHERE: MY ADVENTURES’ ON DADDY’S CHAIR BY GLEN DICK, 2016 

In this beautiful example of a child’s innocence we are taught that a little imagination can take us 

a long way. What the rest of the world sees as a limitation becomes a great source of adventure 

and freedom. Little Elaina shows her dad there is much more to him than meets the eye, and in 

the process proves that love knows no limitations. 

18 |

JOURNALS 

Dynamics in Human Health: http://journalofhealth.co.nz/ Vol. 4 Issue 2, June 2017 

Physical Medicine and Rehabilitation Clinics of North America Vol. 28 no.3, August 2017 

This issue: Pelvic Pain 

Topics in Spinal Cord Injury Rehabilitation Vol. 23 issue 3, Summer 2017 

This issue: New Dimensions in Health and Well-Being After SCI 

Topics in Spinal Cord Injury Rehabilitation Vol. 24 issue 4, Fall 2017 

This issue: Non-traumatic Spinal Cord Dysfunction and Injury 

MAGAZINES 

Accord Winter 2017 

Fish and Game New Zealand Issue 28, August 2017 

Forward Magazine No. 141, October 2017 

New Mobility Vol.28 no.288, October 2017 

This issue: Redefining Independence 

Nadia: Lifestyle Magazine October/November 2017 

Spinal Network News Vol.20 no.2, August 2017 

Vol.20 no.3, December 2017 

Sports n’ Spokes Vol.43 no.5 September 2017 

All the above items are available from the Allan Bean Centre Library (Temporary) Room 7, Portacom A, Burwood 

Hospital. Membership is free. Contact Bernadette Cassidy for information at bernadette.cassidy@nzspinaltrust.org.nz 

or, 03 383 9484. 

Library Hours: Monday to Friday, 1:00pm - 4:30pm 

QUALITY RENTAL 

VEHICLES FOR 

PEOPLE LIVING 

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• FREEDOM 

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• FAMILY OUTINGS 

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0800 864 2529 

www.freedommobility.co.nz 

| 19

20 |

NZST AT 

THE RACES 

The New Zealand Spinal Trust enjoyed a great 

day out at the Charity Race Day in September in 

Auckland. A number of the team came up from 

Christchurch to be part of a day that featured 

plenty of action both on and off the track. There 

were eight races in all and also a Moon Hopper 

Race and Free Wheelin Frenzy 150 where the 

Wheel Blacks took on a host of New Zealand 

Celebrities. The Celebrities included Sam Spratt, 

one of New Zealand’s Top Female Jockeys, Dwayne 

Sweeney, the 2017 Barbarian representative and 

captain of Waikato’s Mitre 10 squad. Former All 

Black Zac Guilford, who is currently a member of 

the Waikato rugby squad, Nic Mayhew ex Blues 

and current Brumbies and North Harbour plyer, 

Charmaine Smith, a member of the Women's 

Black Ferns squad who won the 2017 Women’s 

Rugby World Cup and TAB Trackside presenter 

Darryl Anderson were all part of the action. Here 

are some of the best images from the day out in 

Auckland. 

| 21

22 |

Top stories from 2017 

It has been a year to behold for the New Zealand Spinal Trust and the SNN. We have been touched by many, many 

great stories from around New Zealand of people overcoming incredible adversity to achieve extraordinary things. 

We look back on 10 of the most inspiring stories from 2017 and the advice they have offered to the SCI community. 

Gavin Bisset - Overcomes 

the Odds to Help Others 

Gavin Bisset knows what it is like to sustain a spinal cord injury 

(SCI) and have to start again. The 37-year-old, who is the 

Team Manager of the ACC Serious Injury Service at North 

Harbour, was fortunate to survive an accident in 2006, and is 

now helping to turn around the lives of others impacted by 

an SCI. His life-changing back injury helps him to empathise 

with his clients who are in the same positon. “You realise they 

obviously didn’t plan for it to happen in their lives; they were 

going about their business one day, and then they don’t get to 

go home for three months, or whatever it is,” he said. “I have a 

better understanding of what they are going through, and also, 

I know that their recovery can be just as hard on the people 

around them as it is on the person who is injured, because at 

least they have a little bit of control over what they are doing. 

The people around them often feel worse. My injury and 

recovery have given me a deeper awareness of what people 

are struggling with day-to-day with their injury.” 

What advice do you have to offer to others who have 

sustained an SCI? 

“The one certainty is, the more willing you are to put effort 

into your rehabilitation, the more likely it is that you will get 

something out of it. In those early days, as soon as you are able 

to start doing that rehab, the more you do, then the more you 

will benefit from it.” 

Debra Lampshire - ACC 

Supreme Award Winner, 

Attitude Awards 

Debra Lampshire started hearing voices at six years-old. She 

was eventually committed to Kingseat Psychiatric Hospital 

at 17, and remained there for 18 years. On her release, 

Lampshire took her medication and went between boarding 

houses and other psychiatric facilities. She never believed she 

would be able to live independently. One day, she met a visitor 

to one of the boarding houses who talked about restoring 

cars. She started thinking about restoring herself. Lampshire 

believes her life is a case in point in perseverance. “I used 

mental health services for over 30 years; I was institutionalised 

for 18 of those 30, and eventually was able to overcome the 

anxiety and madness which had plagued me for decades,” she 

said. 

| 23

Suzanne Reiser - Overcomes 

Guillain-Barré Syndrome 

(GBS) to Pay it Forward 

Suzanne Reiser started at the New Zealand Spinal Trust by 

chance and has become a valuable member of the team. Reiser, 

who is the sub-editor of the Spinal Network News, was asked 

to be a Patient & Family Support person in 2011 for a Japanese 

patient in the Burwood Spinal Unit who could not speak English. 

Reiser, having lived in Japan for 17 years, speaks Japanese fluently 

and, is a former patient of the Burwood Spinal Unit herself, 

so she was an obvious choice. She never looked back and has 

been part of the furniture at the NZST before resigning from 

her role this month. 

What advice do you have for people who have an SCI and are 

getting used to their new life? 

“It’s still possible to live a full and rewarding life—you only need 

to read the stories in the SNN to know that. I’d just say, stay 

strong and never give up; focus on what you can do, not on 

what you can’t. Show yourself the same patience, kindness, and 

compassion that you would show to a friend who was in your 

position. You’ll have good days and bad, and it’s okay to have 

times when you feel disheartened and frustrated—give yourself 

permission to be sad and grieve—for a little bit... as long as you 

pick yourself up and get going again.” 

Ian Walker - Remembers 

Steve Sumner’s Advice 

Ian Walker is a former football referee who had a chance 

encounter with one of New Zealand’s all-time sporting greats. 

The 54-year-old suffered a spinal cord injury in 2006, when a 

car collided with his bicycle. He was in the Burwood Spinal 

Unit when former All Whites’ captain, Steve Sumner, dropped 

by for a chat. It was a meeting he would never forget. Sumner 

passed away in 2017, gone way too soon at the age of 61 after 

suffering from prostate cancer. 

What is your quality of life like now and, do you remember 

what Steve said to you when you met? 

“I consider my quality of life very good. Sure, I use a wheelchair 

to get around, but there is still so much one can do. My mantra 

is “never allow what you cannot do, stop you from doing what 

you can do”. Steve commended me on my attitude toward my 

injury and rehabilitation and, he told me to focus on what had 

got me to the top of refereeing in New Zealand, saying that 

what I’d achieved had made a positive difference to football in 

Canterbury and NZ; that I had earned the respect of many 

in the game and I had their support. He also said, “the game 

wasn’t over and there was plenty of time to go”. He said that I 

still had plenty to offer others, and not just in football.” 

Alan Pullar - Celebrates 50 

Years in a Wheelchair 

Allan Pullar is a firm believer that you make your own luck in 

life. The 71-year-old, who suffered an SCI playing rugby at the 

age of 20, celebrates a special milestone in 2017 of 50 years 

in a wheelchair. It is no mean feat and he has lived a life less 

ordinary. His generation’s old-school values and determination 

have helped him live a fulfilling life. He has never made excuses 

and takes huge pride in making the most of his life every day. 

“I was never frightened to be seen in public in my wheelchair, 

and that is something that people in wheelchairs have to get 

over. I don’t care where I go. It has never worried me. I have 

always wanted to get on with my life and that has always been 

my attitude.” 

24 |

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| 25 

www.mortonperry.co.nz 0800 238-523 advice@mortonperry.co.nz

Java Katzur - Cycles Length 

of NZ to Raise Awareness of 

SCI 

Witnessing the accident that left Gareth Lynch a 

tetraplegic on 16 September 2016, had a profound 

effect on Java Katzur, who we first discovered after 

$2,525 mysteriously appeared in the New Zealand Spinal 

Trust’s bank account. Katzur’s empathy prompted her 

to cycle the length of New Zealand to raise awareness 

of spinal cord injury. “I wanted to make people more 

aware of the effect an accident like this has on the 

people around the injured person.” It was an incredible 

way to do just that, particularly when you consider Java 

had hardly ever ridden a bike, and didn’t even own one. 

As for Gareth, what helped him get to where he is today? 

“Your life will always be what you make of it. If you 

continue to set goals and work to achieve those goals, 

you will blow yourself away. I mean, the first few weeks 

in a chair, I thought I’d never be able to lift my arms. I 

thought I’d be that weak forever. Setting little goals and 

taking note of when you achieve them, will help you get 

back on track.” 

Neelusha Jennings - Takes 

on Her Biggest Mission 

Neelusha Jennings is taking on what she describes as her 

biggest challenge yet. The 32-year-old from Lower Hutt, 

who has lived with a disability since the age of 16 when 

she lost 70 percent of her sight due to a brain injury, 

has not let that disability put barriers on her life and has 

accomplished many remarkable things. In 2017, she 

challenged the way our society view and include people 

with a disability and the impact it has. “At the moment, 

we’re in a situation where disabled people tend to be 

isolated and segregated from wider society. I believe this 

is why disabled people are not achieving. They do not 

have the same access to grow and develop, which only 

comes from having relationships in the community.” 

What advice do you have to offer to others who have a 

disability and are looking to achieve? 

Dreaming is the first step. I’m a big dreamer; I love to 

think about cool missions; I love to think about cool 

things I’d like to do, and just believing I can do them and 

not letting people hold me back. And there will be 

“Dreaming is the first step. I’m a big dreamer; I love to 

think about cool missions; I love to think about cool 

things I’d like to do, and just believing I can do them and 

not letting people hold me back.” 

naysayers. There have been so many people who tried 

to hold me back from so many of the missions I’ve done, 

and what that means is, that I could’ve lost a lot of faith 

in myself. You have to believe in yourself 100 percent. 

Even when you are scared just keep believing. 

26 |

Joseph De Thierry - Makes 

the Most of His Second 

Chance at Life 

The 44-year-old from Auckland fell from a 1.5m wall 

in September 2015 and, moments later, he was rushed 

off to Middlemore Hospital in an ambulance with a 

serious spinal cord injury. De Thierry has a four-year-old 

daughter, Honey Dew, who was two when the accident 

happened. He remembers lying in a hospital bed staring 

at the ceiling, and all he could think about was his little 

girl. De Thierry was big into CrossFit before his injury. 

He has now found CrossFit adaptive exercise with a 

coach at Les Mills, Michael Hynard, who he finds very 

inspiring. “When I first got to train again, I shed a tear,” 

he says. He loves everything about CrossFit. 

“My life is different, yeah, I know that. But my life is 

probably 10 times better than it was before, because 

what I’ve been through with my injury has made me so 

much stronger and made me look at life differently. You 

can either feel sorry for yourself and think, ‘I can’t do 

this; I can’t do that.’ Or, you could look at the flipside 

and say, ‘Yeah, my life is different since my accident, but 

there are so many new challenges out there and you 

don’t know what you can do now.’ I am excited about 

the future. Yes, I am nervous and a bit scared, but, at the 

end of the day, that is normal because it is all new. It will 

be ok.” 

Quentin Smith - Marks 

Milestone with Adventure 

Quentin is T12 paraplegic after he broke his back in 

2008 in a paragliding accident. “While I still get out and 

about regularly, there is no question that adventure has 

been harder to come by than before and, combined 

with a young daughter, the more significant adventures 

have been few and far between. Nine years on from my 

injury, I was faced with the somewhat daunting prospect 

of turning 40. I decided pretty early on that I wanted to 

mark the occasion with an adventure—the preferable 

kind being a river journey. Campfires; good people; wild 

places; and enough excitement and challenge, were the 

criteria. “I was anxious leading up to this trip, more so 

that I had been for quite a while. I kept telling myself 

“It was also a timely and refreshing reminder that 

pushing beyond your comfort zone and seeking out 

the road less-travelled, is abundantly rewarding and 

nourishing.” 

that we had all the right people, planning, and gear. But 

the nerves continued, valid or not. 

From the back of Mt. Aspiring to the West Coast and 

the Tasman Sea, it was truly a mountains-to-the-sea 

experience. It was exactly the adventure I sought to 

mark coming across the big 40, and it somehow made 

the age-passing much less significant. It was also a timely 

and refreshing reminder that pushing beyond your 

comfort zone and seeking out the road less-travelled, is 

abundantly rewarding and nourishing.” 

| 27

Paul J. Curry - A Lucky Break 

Sums Up a Life Less Ordinary 

Paul J. Curry is a firm believer that everything happens 

for a reason. At the age of 19, Curry was heading down 

the wrong side of the tracks before he joined the Navy 

in 1967. But, his fledgling career was cut short by a 

horrific accident. 

He writes: “A 400-pound weight dropping 10 feet, 

becomes half-a-ton per square-inch by the time it 

lands—and it landed on me.” Curry was talking about a 

bomb, which dropped from the deck above and landed 

on him, pinning him in a helpless position. He was lucky 

to be alive and lucky to survive such a devastating blow. 

It was a moment that would change his life forever. 

Curry was transferred to Middlemore Hospital, and 

his parents got the news that every parent dreads— 

via telegram back in those days—that their son was 

paralysed. 

Devastated by the doctor’s assessment, his father insisted 

nonetheless, that he would be the one to break the 

news to his boy—such was the quality of his character. 

Curry’s grandmother believed that his accident saved 

him from a life of crime. She might be right. Now, many 

years on from that fateful day, Curry has described the 

moments that have made his life, a life-less-ordinary. 

His book, fittingly titled A Lucky Break, is a great read. 

It takes you right into the heart and mind of Curry, 

through his journey in life with a spinal cord impairment. 

It is as real as it is funny, and engaging from the first page 

to the last. 

Curry said writing this book was a hugely cathartic 

experience: “I’m still surprised that a wayward kid from a 

state-housing background could have such a wonderfully 

satisfying and successful life.” 

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| 29

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CONNECTING PEOPLE 

Brett Ladbrook 

As many of you will be aware, earlier this year I caught up 

with the crew at Highlands Motorsport Park in Cromwell 

to see if they would entertain the idea of putting handcontrols 

in one of their U-Drive race cars. With some 

help from Vehicle Adaptions in Belfast Christchurch, they 

fitted up their Ford Mustang V8 with the controls. 

I was lucky enough to have the first ‘para’ test drive and 

then a second blast while they filmed an article for ONE 

News. 

Now this thing is seriously wild. Fully stripped out, full 

race roll-cage, race seats, big brakes, semi- slick tyres and 

of course a rowdy exhaust, to help the 5 litre V8 breathe. 

On the 18th of November I organised a group of 13 

people to Cromwell, we hired the Mustang for the day to 

give everyone an opportunity to drive. 

With the generous help of sponsorship from Melrose 

Kiwi Concept Chairs, and a great discount from 

Highlands Motorsport Park, it made for an affordable fun 

day. 

First driver was on the track at 9am and the last had their 

turn at 4pm. 

People came from as far away as Blenheim, Canterbury, 

Otago and Southland. 

For most people this was their first experience on a 

race track and for some the first time in a V8. It was 

entertaining to see everyone from the start of the drive 

with a slight look of nerves on their faces to the excited 

smile at the end of their laps. Everyone really enjoyed it 

and those smiles didn’t go away for quite some time. 

Thanks to the super crew at Highlands, Melrose 

Wheelchairs and all the people that come with their 

support people to make the day an absolute success. 

| 31

ACCESS AWARE APP - DISABILITY SERVICE 

CCS Disability Action, the Wellington City Council, and 

Thundermaps, have signed a partnership agreement which 

cements a collaboration to revolutionise the reporting and 

enforcement of mobility-parking abuse. The revolutionary 

Access Aware app will connect people who encounter 

mobility-parking misuse directly with the Wellington City 

Council’s Parking Enforcement Teams. 

This initiative will prove life-changing for Wellington residents 

with access issues. “Our research shows that levels of parking 

abuse have not improved in ten years, with abuse rates still 

unacceptably high, despite increases in fines and attempts to 

grow awareness of the problem. Using a mobility-parking 

space without a permit, even “for just a minute”, can block a 

disabled person’s opportunity to live life freely,” explained CCS 

Disability Action Chief Executive, David Matthews. 

Users can make a report of any parking misuse they observe. 

These parking misuse reports can be shared with the 

Wellington City Council’s Parking Enforcement Team so that 

they can monitor the use and abuse of carparks. “Misuse of 

mobility carparks in New Zealand is a big issue, and a real 

concern for those with disabilities who have a genuine need for 

these parking spaces,’’ said the Council’s Transport Strategy and 

Operations Portfolio Leader, Councillor Chris Calvi-Freeman. 

“With this project, we hope to begin solving the problem 

of mobility-parking abuse and make it easier for those with 

disabilities to find carparks.” 

By downloading and using the Access Aware app on their 

smartphone or tablet, users can make a real difference to the 

disabled community by actively creating social change. “We 

believe that the data collected on parking abuse can influence 

the ways councils provide mobility carparks and enforce them. 

Eventually, we hope that this data can be used to advocate for a 

successful change to legislation so that both private and public 

mobility carparks are enforced equally and consistently across 

the board,” said Mr Matthews. 

This is a bold vision, but a wholly worthwhile one totally in 

line with CCS Disability Action’s organisational values and 

commitments to disabled people and the creation of more 

inclusive communities. The app was launched in Christchurch 

on 1 October and has already had 288 downloads and 116 

reports made. In 2018, CCS Disability Action will roll out this 

technology successively to their membership, networks, and 

via their Mobility Parking-Permit-holders’ database, as well as 

across the councils and businesses of Aotearoa-New Zealand. 

The Access Aware app also allows users to see the locations 

of known mobility-carpark locations on a map in real time so 

they can find a carpark when they need it. They can also add 

locations and descriptions of carparks not already mapped. 

The purpose of Access Aware is to drive change, not just 

for mobility-carpark locations, but also for other accessibility 

issues that our communities face. Currently, there is no single 

place where you can easily access reliable data for accessibilityrelated 

information New Zealand-wide. Access Aware aims to 

change that with world-first technology offering pre-mapped 

locations and information that will make accessing carparking, 

communities, walkways, businesses, utilities, public toilets, and 

accommodation simple and easy. The app won’t just provide 

information, it will also allow users to upload reports and to 

map relevant information themselves. 

Access Aware has the potential to be very useful for all 

disabled people, their families and whanau. Access Aware 

can significantly improve everyday access issues that prevent 

many people from fully participating in their communities. It’s 

free; it’s easy to use, and it could help change the accessibility 

landscape of New Zealand. 

People interested in taking part in the pilot are invited to 

download the free app on Google Play or Apple store by 

searching for “Access Aware”. 

For more information visit: www.ccsDisabilityAction.org.nz/ 

AccessAware 

32 |

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| 33

CALLAGHAN INNOVATION 

People with tetraplegia will soon be using virtual reality to 

master their powerful new wheelchairs without colliding 

with any real hazards. The VR Wheelchair Trainer is the 

invention of a Christchurch collaboration set up by Callaghan 

Innovation with clinical researchers at the Burwood Academy 

of Independent Living (BAIL) and, game developer, Stickmen 

Media. As MTech Games gets set to commercialise the system, 

the team is also closing in on a solution to the virtual motion 

sickness problem plaguing virtual reality users everywhere. 

The Challenge 

One of the huge challenges for a person learning to live 

with tetraplegia is navigating their world in a powerful new 

wheelchair. After a serious spinal cord injury, people spend 

between six weeks and nine months in a hospital rehabilitation 

unit mastering the skills they need to get back into their homes 

and lives. 

Dr Jo Nunnerley, Academy Director at BAIL, says people with 

tetraplegia have limited arm and hand movement but have to 

learn to control powerful wheelchairs that often weigh more 

than 150kg. “We’ve had people who’ve run into and damaged 

doors and walls, and they can be worried about running over 

the cat or the toddler,” said Nunnerley. “People find it hard to 

get around their own homes at first, let alone having to deal 

with public transport, shopping centres, and airports, often 

while feeling exposed and vulnerable.” 

The Solution 

Like a flight simulator for wheelchair pilots, the VR Wheelchair 

Trainer re-creates, in virtual reality, the living space of a 

person using a wheelchair so they can practise without risk. 

When game designer, Stickmen Media, showed one of the 

early Oculus Rift developer kits to Callaghan Innovation 

Distinguished Engineer, Marcus King—a virtual healthcare 

expert—he took it to BAIL, where he and Jo’s team 

brainstormed the idea of a virtual wheelchair practice zone. 

“Virtual reality is proven to have huge advantages in training 

people,” said King. “We can simplify the environment so 

they can master the basic tasks before we introduce virtual 

distractions like people and noise, and then virtual hazards like 

tight spaces, pets, or toddlers.” 

Callaghan Innovation organised co-funding and commissioned 

Stickmen Media to virtualise a part of a real hospital 

rehabilitation unit. The team piloted the game-based system 

with five experienced wheelchair users and seven therapists. 

“In New Zealand, our big advantage is that we’re small and 

nimble so we can get an idea to proof of concept fast. In 

the United States, it usually takes them two years just to get 

ethics approval, and the clinicians and the engineers are far 

less connected, while hospitals are far more averse to litigation 

risk.” 

When Brook and Margaret Waters of Stickmen Media put 

up their hands to commercialise the prototype, Callaghan 

Innovation helped create a new entity: MTech Games Limited, 

and transferred the intellectual property to it. 

The VR Wheelchair Trainer collects data on a user’s progress 

for their therapist, making the training process more effective. 

In the future, it could even adjust the environment to suit a 

user’s personality, once it works out whether they learn better 

by nurturing things or conquering them. “We put people’s 

fears right in front of them in a constructive way and they 

overcome them,” said Brook Waters, who is now CEO of 

MTech Games. “We can, for instance, give them a bunch of 

callous teenagers on a bus to contend with. But a lot of people 

who end up with severe spinal cord injuries are young, risktaking 

men so, as you can imagine, we are getting rather more 

requests for zombies and, one chap wants a cannon.” 

The Result 

The team is now perfecting a prototype designed to give 

people with tetraplegia better wheelchair navigation skills, in 

less time, with no risk. “I was surprised at how good it was,” 

said wheelchair user and pilot participant, Johnny Bourke, who 

is Deputy Academy Director at BAIL. “Powerful wheelchairs 

are tricky. I have 12 years’ experience but my leg is in a cast 

right now after I had an altercation with the sofa while chasing 

my children. Back when I started, I always remember how 

narrow the doors and turning spaces were; what it was like to 

have people staring at you. I think training in the virtual world 

before taking on the real one, will help people a lot.” 

MTech Games is now planning the first clinical trial after King 

called his contact at the world’s biggest wheelchair research 

facility, the University of Pittsburgh’s Human Engineering 

Research Laboratories (HERL), funded by the U.S. Department 

of Veterans’ Affairs. The company’s next step is to virtualise 

the homes that people with tetraplegia will return to and, 

environments like public transport, shopping centres, and 

airports. It sees the VR Wheelchair Trainer as the foundation 

for a whole suite of applications for people with disabilities— 

virtually-designed home modifications; wheelchairs adjusted 

for individual users before they are prescribed; detectors for 

impairments like hemispheric visual neglect; and training tools 

for those who will live or work with people using wheelchairs.” 

What’s Next? 

The team has developed a protocol to reduce virtual motion 

sickness by up to half in just five days, and is testing it to get it 

to a clinically workable level. “The nausea caused by the sense 

of sliding through the environment is a problem afflicting the 

whole industry, but wheelchair movement makes it worse,” 

said King. “The problem can’t be overcome by teleporting, as it 

is in a game, and the consequences of vomiting can be serious 

for someone who is paralysed. That was the stimulus for us to 

tackle this.” 

Story Credit: https://www.callaghaninnovation.govt.nz 

34 |

Thank you to our 

FUNDERS & SPONSORS 

THE NEW ZEALAND SPINAL TRUST APPRECIATES THE GENEROUS SUPPORT OF THE FOLLOWING 

FUNDERS OF THE ORGANISATION. WITHOUT THEIR KIND SUPPORT, THE TRUST WOULD NOT BE ABLE 

TO DELIVER THE VARIETY OF SERVICES TO ASSIST CLIENTS TO LIVE INDEPENDENT LIVES RIGHT NOW. 

NZ COMMUNITY TRUST 

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RATA FOUNDATION 

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INFINITY FOUNDATION 

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FOUNDATION 

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THE SOUTHERN TRUST 

CANTERBURY DISTRICT 

HEALTH BOARD 

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HARCOURTS 

FOUNDATION 

UMBRELLAR 

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COUNTIES RACING CLUB 

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REHABILITIATION 

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CHARITABLE TRUST 

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SIR JOHN LOGAN CAMPBELL 

RESIDUARY ESTATE 

ARE YOU A MEMBER? 

It’s easy to join the New Zealand Spinal Trust and it only costs $30 a year. 

Your membership fee helps with the printing of the Spinal Network News magazine and supports the work we do 

assisting people with spinal cord impairment find their future. 

Go to our website home page and click the green Membership Button www.nzst.org.nz 

| 35

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Spinal Network News - December 2017

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