Table of Contents (PDF) - Rheumatology
Table of Contents (PDF) - Rheumatology
Table of Contents (PDF) - Rheumatology
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<strong>Rheumatology</strong><br />
Please update pub-date<br />
Volume 50 Number 1 January 2011<br />
CONTENTS<br />
EDITORIALS<br />
50th volume—60 years<br />
David G. I. Scott and Robert J. Moots 1<br />
Registries in chronic disease: coming your way soon?<br />
Stuart Bloom 4<br />
REVIEWS<br />
The Rochester Epidemiology Project: exploiting the capabilities for population-based research in<br />
rheumatic diseases<br />
Hilal Maradit Kremers, Elena Myasoedova, Cynthia S. Crowson, Guergana Savova, Sherine E. Gabriel 6<br />
and Eric L. Matteson<br />
The National Data Bank for rheumatic diseases: a multi-registry rheumatic disease data bank<br />
Frederick Wolfe and Kaleb Michaud 16<br />
Observational cohort studies: lessons learnt from the University <strong>of</strong> Toronto Psoriatic Arthritis Program<br />
Dafna D. Gladman and Vinod Chandran 25<br />
United Kingdom Primary Sjögren’s Syndrome Registry—a united effort to tackle an orphan<br />
rheumatic disease<br />
Wan-Fai Ng, Simon J. Bowman and Bridget Griffiths on behalf <strong>of</strong> the UKPSSR study group 32<br />
Using genetic and clinical data to understand response to disease-modifying anti-rheumatic drug<br />
therapy: data from the Brigham and Women’s Hospital Rheumatoid Arthritis Sequential Study<br />
Christine K. Iannaccone, Yvonne C. Lee, Jing Cui, Michelle L. Frits, Roberta J. Glass,<br />
40<br />
Robert M. Plenge, Daniel H. Solomon, Michael E. Weinblatt and Nancy A. Shadick<br />
The Lupus Family Registry and Repository<br />
Astrid Rasmussen, Sydney Sevier, Jennifer A. Kelly, Stuart B. Glenn, Teresa Aberle, Carisa M. Cooney,<br />
Anya Grether, Ellen James, Jared Ning, Joanne Tesiram, Jean Morrisey, Tiny Powe, Mark Drexel,<br />
Wes Daniel, Bahram Namjou, Joshua O. Ojwang, Kim L. Nguyen, Joshua W. Cavett, Jeannie L. Te,<br />
Judith A. James, R. Hal Sc<strong>of</strong>ield, Kathy Moser, Gary S. Gilkeson, Diane L. Kamen, Craig W. Carson,<br />
Ana I. Quintero-del-Rio, Maria del Carmen Ballesteros, Marilynn G. Punaro, David R. Karp,<br />
Daniel J. Wallace, Michael Weisman, Joan T. Merrill, Roberto Rivera, Michelle A. Petri,<br />
Daniel A. Albert, Luis R. Espinoza, Tammy O. Utset, Timothy S. Shaver, Eugene Arthur,<br />
Juan-Manuel Anaya, Gail R. Bruner and John B. Harley<br />
Registries in systemic sclerosis: a worldwide experience<br />
Felice Galluccio, Ulrich A. Walker, Svetlana Nihtyanova, Pia Moinzadeh, Nicholas Hunzelmann,<br />
Thomas Krieg, Virginia Steen, Murray Baron, Percival Sampaio-Barros, Cristiane Kayser, Peter Nash,<br />
Chris P. Denton, Alan Tyndall, Ulf Müller-Ladner and Marco Matucci-Cerinic<br />
DANBIO—powerful research database and electronic patient record<br />
Merete Lund Hetland 69<br />
BASIC SCIENCE<br />
The role <strong>of</strong> rheumatoid arthritis genetic susceptibility markers in the prediction <strong>of</strong> erosive disease<br />
in patients with early inflammatory polyarthritis: results from the Norfolk Arthritis Register<br />
Darren Plant, Wendy Thomson, Mark Lunt, Edward Flynn, Paul Martin, Steven Eyre, Tracey Farragher,<br />
Diane Bunn, Jane Worthington, Deborah Symmons and Anne Barton<br />
CLINICAL SCIENCE<br />
Safety and retention rate <strong>of</strong> <strong>of</strong>f-label uses <strong>of</strong> TNF antagonists in rheumatic conditions: data from<br />
the Spanish registry BIOBADASER 2.0<br />
Loreto Carmona, Miguel A. Descalzo, Dolores Ruiz-Montesinos, Francisco J. Manero-Ruiz,<br />
Eva Perez-Pampin and Juan J. Gomez-Reino on behalf <strong>of</strong> the BIOBADASER 2.0 Study Group<br />
HOT Hot Paper Paediatric <strong>Rheumatology</strong> Supplementary Data Open Access Paper<br />
PAPER<br />
Copyright ß British Society for <strong>Rheumatology</strong> 2011. Subscribing organisations are encouraged to copy and distribute this table <strong>of</strong> contents for internal, non-commercial purposes.<br />
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Predicting arthritis outcomes—what can be learned from the Leiden Early Arthritis Clinic?<br />
Diederik P. C. de Rooy, Michael P. M. van der Linden, Rachel Knevel, Tom W. J. Huizinga and<br />
Annette H. M. van der Helm-van Mil<br />
Associations <strong>of</strong> disease activity and treatments with mortality in men with rheumatoid arthritis:<br />
results from the VARA registry<br />
Ted R. Mikuls, Brian T. Fay, Kaleb Michaud, Harlan Sayles, Ge<strong>of</strong>frey M. Thiele, Liron Caplan,<br />
Dannette Johnson, John S. Richards, Gail S. Kerr, Grant W. Cannon and Andreas Reimold<br />
General characteristics <strong>of</strong> an early arthritis cohort in Argentina<br />
Josefina Marcos, Christian Waimann, Fernando Dal Pra, Jimena Hogrefe, Soledad Retamozo,<br />
Francisco Caeiro, Luciana Casalla, Mariana Benegas, Oscar Rillo, Alberto Spindler, Horacio Berman,<br />
Alberto Berman, Anastasia Secco, Rodrigo García Salinas, Antonio Catalán Pellet, Federico Ceccato,<br />
Sergio Paira, Juan C. Marcos, José A. Maldonado Cocco and Gustavo Citera on behalf <strong>of</strong><br />
CONAART (Consorcio Argentino de Artritis Temprana — Argentine Consortium for Early Arthritis)<br />
Changes in disease characteristics and response rates among patients in the United Kingdom<br />
starting anti-tumour necrosis factor therapy for rheumatoid arthritis between 2001 and 2008<br />
Kimme L. Hyrich, Kath D. Watson, Mark Lunt and Deborah P. M. Symmons on behalf <strong>of</strong> the<br />
British Society for <strong>Rheumatology</strong> Biologics Register (BSRBR)<br />
Anti-TNF therapy is associated with an increased risk <strong>of</strong> serious infections in patients with rheumatoid<br />
arthritis especially in the first 6 months <strong>of</strong> treatment: updated results from the British Society for<br />
<strong>Rheumatology</strong> Biologics Register with special emphasis on risks in the elderly<br />
James B. Galloway, Kimme L. Hyrich, Louise K. Mercer, William G. Dixon, Bo Fu,<br />
Andrew P. Ustianowski, Kath D. Watson, Mark Lunt, BSRBR Control Centre Consortium and<br />
Deborah P. M. Symmons on behalf <strong>of</strong> the British Society for <strong>Rheumatology</strong> Biologics Register<br />
Usefulness <strong>of</strong> a centralized system <strong>of</strong> data collection for the development <strong>of</strong> an international<br />
multicentre registry <strong>of</strong> spondyloarthritis<br />
Ruxandra Schiotis, Pilar Font, Alejandro Escudero, Pedro Zarco, Raquel Almodovar, Jordi Gratacós,<br />
Juan Mulero, Xavier Juanola, Carlos Montilla, Estefanía Moreno, Rafael Ariza Ariza and<br />
Eduardo Collantes-Estevez on behalf <strong>of</strong> REGISPONSER working group<br />
A national registry for juvenile dermatomyositis and other paediatric idiopathic inflammatory myopathies:<br />
10 years’ experience; the Juvenile Dermatomyositis National (UK and Ireland) Cohort Biomarker<br />
Study and Repository for Idiopathic Inflammatory Myopathies<br />
Neil Martin, Petra Krol, Sally Smith, Kevin Murray, Clarissa A. Pilkington, Joyce E. Davidson and<br />
Lucy R. Wedderburn on behalf <strong>of</strong> the Juvenile Dermatomyositis Research Group<br />
Detection and evaluation <strong>of</strong> a drug safety signal concerning pancreatic cancer: lessons from a joint<br />
approach <strong>of</strong> three European biologics registers<br />
Anja Strangfeld, Kimme Hyrich, Johan Askling, Elizabeth Arkema, Rebecca Davies, Joachim Listing, 146<br />
Martin Neovius, Julia Simard, Deborah Symmons, Kath Watson and Angela Zink<br />
How well do patient reports reflect adverse drug reactions reported by rheumatologists? Agreement <strong>of</strong><br />
physician- and patient-reported adverse events in patients with rheumatoid arthritis observed in the<br />
German biologics register<br />
Lotta Gäwert, Franka Hierse, Angela Zink and Anja Strangfeld 152<br />
Late-onset systemic sclerosis—a systematic survey <strong>of</strong> the EULAR scleroderma trials and research<br />
group database<br />
Thomas Hügle, Philipp Schuetz, Thomas Daikeler, Alan Tyndall, Marco Matucci-Cerinic,<br />
161<br />
Ulrich A. Walker, Jacob M. van Laar and EUSTAR members<br />
Health-related quality <strong>of</strong> life and continuation rate on first-line anti-tumour necrosis factor therapy<br />
among rheumatoid arthritis patients from the Australian <strong>Rheumatology</strong> Association Database<br />
Margaret P. Staples, Lyn March, Marissa Lassere, Chris Reid and Rachelle Buchbinder 166<br />
An evaluation <strong>of</strong> the strengths and weaknesses <strong>of</strong> a register <strong>of</strong> newly diagnosed rheumatoid arthritis,<br />
1986—2010<br />
Adam Young, Josh Dixey, Peter Williams, Peter Prouse, Nigel Cox, Patrick Kiely, Richard Williams 176<br />
and David Walsh<br />
Registries in rheumatological and musculoskeletal conditions. Paediatric Behçet’s disease: an<br />
international cohort study <strong>of</strong> 110 patients. One-year follow-up data<br />
Isabelle Koné-Paut, Martha Darce-Bello, Farahd Shahram, Marco Gattorno, Rolando Cimaz,<br />
Seza Ozen, Luca Cantarini, Ilknur Tugal-Tutktun, Samir Assaad-Khalil, Michael H<strong>of</strong>er, Jasmin<br />
Kuemmerle-Deschner, Saida Benamour, Souleymane Al Mayouf, Christine Pajot, Jordi Anton,<br />
Albert Faye, Wafa Bono, Susan Nielsen, Alexia Letierce, Tu-Anh Tran and the PED-BD International<br />
Expert Committee<br />
Duration <strong>of</strong> etanercept treatment and reasons for discontinuation in a cohort <strong>of</strong> juvenile idiopathic<br />
arthritis patients<br />
Taunton R. Southwood, Helen E. Foster, Joyce E. Davidson, Kimme L. Hyrich, Catherine B. Cotter,<br />
Lucy R. Wedderburn, Richard G. Hull, Helen E. Venning, Joy K. Rahman and Carole L. Cummins on<br />
behalf <strong>of</strong> the British Society for Adolescent and Paediatric <strong>Rheumatology</strong> Biologics and New Drugs<br />
Register<br />
www.rheumatology.oxfordjournals.org<br />
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Long-term effectiveness and safety <strong>of</strong> TNF-blocking agents in daily clinical practice: results from the<br />
Dutch Rheumatoid Arthritis Monitoring register<br />
Wietske Kievit, Jaap Fransen, Eddy M. M. Adang, Alfons A. den Broeder, Hein J. Bernelot Moens,<br />
Henk Visser, Mart A. F. van de Laar and Piet L. C. M. van Riel<br />
Ten years with biologics: to whom do data on effectiveness and safety apply?<br />
Julia F. Simard, Elizabeth V. Arkema, Anders Sundström, Pierre Geborek, Tore Saxne, Eva Baecklund,<br />
Lars Coster, Christina Dackhammar, Lennart Jacobsson, Nils Feltelius, Staffan Lindblad, Solbritt<br />
Rantapää-Dahlqvist, Lars Klareskog, Ronald F. van Vollenhoven, Martin Neovius and Johan Askling<br />
Complete control <strong>of</strong> disease activity and remission induced by treatment with etanercept in juvenile<br />
idiopathic arthritis<br />
Vera Papsdorf and Gerd Horneff 214<br />
Registries in rheumatoid arthritis and autoimmune diseases: data from the French registries<br />
Xavier Mariette, Jacques-Eric Gottenberg, Philippe Ravaud and Bernard Combe 222<br />
Report on malignancies in the German juvenile idiopathic arthritis registry<br />
Gerd Horneff, Ivan Foeldvari, Kirsten Minden, Dagmar Moebius and Toni Hospach 230<br />
Translational research network and patient registry for auto-inflammatory diseases<br />
Elke Lainka, Maria Bielak, Volker Hilger, Oliver Basu, Ulrich Neudorf, Helmut Wittkowski,<br />
Dirk Holzinger, Johannes Roth, Tim Niehues and Dirk Foell<br />
LETTER TO THE EDITOR<br />
Do new biologics meet the unmet medical need in rheumatoid arthritis? Safety and efficacy <strong>of</strong> abatacept<br />
following B-cell depletion<br />
Ulrich A. Walker, Delphine S. Courvoisier, Jean Dudler, Daniel Aeberli, Johannes von Kempis,<br />
Almut Scherer and Axel Finckh on behalf <strong>of</strong> the Swiss Clinical Quality Management Programme in<br />
Rheumatic Diseases<br />
<strong>Rheumatology</strong> is a member <strong>of</strong> the Committee on<br />
Publication Ethics and is committed to the highest<br />
ethical standards in journal publishing<br />
www.rheumatology.oxfordjournals.org<br />
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