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When Children Have Scars? - Gillette Children's Specialty Healthcare

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3 Mobile Outreach<br />

4 Teen Focus<br />

5 Transition to<br />

Adulthood<br />

8 Ask Us: Come to<br />

Burnsville or Minnetonka<br />

Robert Wood, M.D.,<br />

plastic surgeon and<br />

medical director of<br />

the Center for Craniofacial<br />

Services at<br />

<strong>Gillette</strong>, notes, “It<br />

takes approximately<br />

nine months to see<br />

how a scar will look.<br />

Then, depending on<br />

the severity of the<br />

scar, we might consider<br />

surgery.”<br />

Types of <strong>Scars</strong><br />

● Keloids are wide<br />

and extend beyond<br />

the original scar.<br />

● Hypertrophic scars<br />

are pink and raised.<br />

● Other scars might<br />

have an irregular<br />

contour.<br />

SPRING 2005<br />

VOLUME 13<br />

NUMBER 1<br />

A<br />

NEWSLETTER<br />

FOR GILLETTE<br />

PATIENTS &<br />

FAMILIES<br />

What Can Be Done<br />

<strong>When</strong> <strong>Children</strong> <strong>Have</strong> <strong>Scars</strong>?<br />

<strong>Scars</strong> are a fact of life for everyone. “We all<br />

have some kind of scar, whether it’s from<br />

chicken pox, a scraped knee or an appendectomy,”<br />

says Robert Wood, M.D., plastic<br />

surgeon and medical director of the Center for<br />

Craniofacial Services at <strong>Gillette</strong> <strong>Children</strong>’s<br />

<strong>Specialty</strong> <strong>Healthcare</strong>.<br />

How children handle scars often depends on<br />

the child’s age and how their parents react to<br />

the scarring. Constance McLeod, Ph.D, who is a<br />

psychologist at <strong>Gillette</strong> , explains that until about<br />

age 5, children often believe a scar is part of<br />

them and that everyone else has the same mark.<br />

“Older children, however, who might be struggling<br />

with body image and self-esteem issues,<br />

often are more concerned about the presence<br />

of a scar,” she says.<br />

<strong>When</strong> children or teenagers have serious scars,<br />

it’s only natural for parents to wonder what<br />

can be done about them. <strong>Scars</strong> resulting from<br />

surgery, birth defects or serious injuries can<br />

have a profound social and emotional impact<br />

— especially if they cause functional problems<br />

or occur in visible places, such as the face.<br />

“Plastic surgeons can make scars look as inconspicuous<br />

as possible so that from a conversational<br />

distance of four to six feet they’re hard<br />

to see,” says Wood. “But we can’t remove<br />

them completely. Anytime a scar is created, it<br />

never goes away.”<br />

Improving and Repairing <strong>Scars</strong><br />

Techniques for repairing or improving scars<br />

include laser treatment, dermabrasion and<br />

surgical revision. “<strong>Gillette</strong>’s long-pulse dye laser<br />

penetrates the skin and blood vessels better<br />

than traditional lasers and gives patients with<br />

scars better results,” Wood explains. Dermabrasion<br />

is a sanding technique that is used to<br />

resurface “lumpy” scars. It can be likened to<br />

using a spinning sandpaper wheel to achieve a<br />

smooth surface. Surgical revision for scar treatment<br />

involves removing a scar and reclosing<br />

the wound. It’s particularly effective with wide<br />

(keloid) scars.<br />

Wood recommends waiting for at least nine<br />

months after a scar forms to do any kind of<br />

surgical improvement. He explains that scars<br />

typically are raised, red and firm for eight weeks.<br />

After a year, they’re typically softer, whiter and<br />

flatter. “It takes approximately nine months to<br />

see how the scar will look,” Wood adds. “Until<br />

then, the scar is still maturing. At nine months,<br />

depending on the severity of the scar, we might<br />

consider surgery.”<br />

<strong>When</strong> <strong>Children</strong> <strong>Have</strong> <strong>Scars</strong> — continued on page 7


2<br />

WHAT’S HAPPENING<br />

for families?<br />

JUNE<br />

Plan to Attend the International Spina Bifida Conference<br />

Plan now to attend the Spina Bifida Association of America (SBAA) international<br />

conference June 26 – 29 in Minneapolis. Building Bridges to Advance Understanding<br />

features the latest information in orthopaedics, urology, neurosurgery and neuropsychology.<br />

Presentations focus on adult health, psychosocial and family issues, employment,<br />

sexuality, depression, latex allergy, self-determination and learning disabilities.<br />

<strong>Gillette</strong> is providing speakers for the conference and planning a course for primarycare<br />

providers — including physicians, physician assistants, nurse practitioners and<br />

physical therapists — on June 25. “<strong>Gillette</strong> has the largest spina bifida program in the<br />

region, so we’re excited to play such an active role in the conference,” says Kim<br />

Marben, program manager of <strong>Gillette</strong>’s Center for Spina Bifida.<br />

<strong>Gillette</strong> Speakers<br />

● Endocrinologist<br />

Kevin Sheridan, M.D.<br />

● Neurosurgeon<br />

Michael Partington, M.D.<br />

● Nurse practitioner<br />

Jennifer Wilhelmy<br />

● Orthotist<br />

Dave Kuenstler<br />

For more information about the conference, or to register, visit www.sbaa.org, and<br />

click on Annual Conference. For information about the <strong>Gillette</strong>-cosponsored course,<br />

contact Marben at 651-229-3878 or visit www.gillettechildrens.org.<br />

JULY<br />

Firefighters Carnival<br />

Calling All Families<br />

● Pediatric orthopaedists<br />

Steven Koop, M.D.<br />

Stephen Sundberg, M.D.<br />

● Physical therapist<br />

Laura Gueron<br />

● Psychologist<br />

Constance McLeod, Ph.D.<br />

● Social worker<br />

Carol Nelson<br />

● Urologists:<br />

Leo Fung, M.D.<br />

David Vandersteen, M.D.<br />

● Clinic manager<br />

Ronna Linroth<br />

Mark your calendars for the annual St. Paul Firefighters Carnival, scheduled for July 20<br />

from 10 a.m. until 1 p.m. on the hospital grounds at the St. Paul campus. The event is<br />

open to all <strong>Gillette</strong> patients. Contact Angie Treffert, child life specialist, at 651-726-2694.<br />

You’ve heard their stories on the KS95 for Kids radiothon. You’ve seen them on the<br />

news, or maybe you’ve even read about them in our publications. They’re <strong>Gillette</strong><br />

families that have agreed to join with us to help tell the community about themselves<br />

and the care that <strong>Gillette</strong> provides.<br />

We’re always looking to get to know new families. So whether you’ve just begun<br />

coming to <strong>Gillette</strong> or have been coming for years, we’d like to hear from you. If your<br />

family would like to share its story, please send your name, address, child’s name, age,<br />

gender and a brief description of the medical condition to: Molly Snyder, <strong>Gillette</strong><br />

<strong>Children</strong>’s <strong>Specialty</strong> <strong>Healthcare</strong>, 200 University Ave. E., St. Paul, MN 55101, or you can<br />

contact her at msnyder@gillettechildrens.com.<br />

This year marks the 20th anniversary of<br />

<strong>Gillette</strong>’s Mobile Outreach Clinic. It began as a<br />

one-man road trip by Dave Wilkie, now<br />

manager of Assistive Technology - Outreach<br />

Services. Annually, the statewide Mobile<br />

Outreach Clinic serves more than 1,500 children<br />

and adults who have disabilities.<br />

You’re Invited<br />

Come Help Us<br />

Celebrate 20 Years!<br />

<strong>Gillette</strong>’s Mobile Outreach Clinic and<br />

many outreach sites will celebrate<br />

the program’s 20th anniversary<br />

throughout 2005. The outreach staff<br />

looks forward to providing a bit of<br />

outreach history, and a lot of education<br />

and information about new<br />

products and services that can be<br />

provided through Mobile Outreach<br />

Clinics.<br />

Celebration Schedule<br />

Alexandria May 31<br />

Brainerd June 2<br />

Detroit Lakes July 13<br />

Bemidji July 14<br />

St. Cloud Sept. 9<br />

Owatonna Sept. 14<br />

Fergus Falls Nov. 2<br />

You’ll find information about<br />

open house times and locations at<br />

www.gillettechildrens.org. For<br />

more information about the Mobile<br />

Outreach Clinic, call 800-578-4266<br />

(toll-free).


On the Road<br />

In 1985, Dave Wilkie was a man with an idea — and a motorcycle.<br />

<strong>When</strong> a group home asked <strong>Gillette</strong> <strong>Children</strong>’s <strong>Specialty</strong><br />

<strong>Healthcare</strong> for help with assistive technology, Wilkie<br />

loaded his sidecar with tools and equipment and<br />

headed to Windom, Minn. Once there, he spent the day repairing<br />

braces and seating systems at <strong>Gillette</strong>’s first Mobile Outreach Clinic.<br />

Today, the Mobile Outreach Clinic is a statewide program that<br />

annually serves more than 1,500 children and adults. In 2004 alone,<br />

<strong>Gillette</strong> offered 150 clinics for 1,500 patients in 19 communities<br />

throughout greater Minnesota. Staff put nearly 40,000 miles on<br />

three Mobile Outreach Clinic vehicles — while saving families an<br />

estimated 380,000 miles in travel. “There are days when all three<br />

of our trucks are on the road, going to different places,” says Wilkie,<br />

now the manager of Assistive Technology – Outreach Services,<br />

“<strong>When</strong> we’re that busy, it’s a good sign that we’re meeting some<br />

significant needs.”<br />

On the Road<br />

In the early days, <strong>Gillette</strong> outreach clinics often were set up in<br />

church basements, VFW halls and hospital cafeterias. One doctor<br />

used a pool table as an exam table. Now we set up in local clinics,<br />

hospitals and therapy centers. In addition to providing assistivetechnology<br />

services, some clinics offer appointments with <strong>Gillette</strong><br />

therapists and doctors who specialize in physical medicine and<br />

rehabilitation. “Access to this array of services relieves the travel<br />

burden for families, enhances communication among patient<br />

providers and allows us to train community professionals in the<br />

use of assistive technology,” says Wilkie.<br />

What Happens at a Mobile Outreach Clinic?<br />

Climb Aboard<br />

and Find Out!<br />

with the<br />

Mobile Outreach Clinic<br />

On the Road<br />

It’s a sunny day when <strong>Gillette</strong>’s mobile<br />

outreach truck pulls up to the back of the<br />

Owatonna Hospital. By 7:30 a.m., the truck<br />

is unloaded, and the clinic is in full swing in a two-room suite on<br />

the lower level of the hospital. In one corner, Dave Madden,<br />

orthotist, and Paul Lemke, seating specialist, have set up carts<br />

loaded with tools and equipment. The portable workshop —<br />

outfitted with drills, screwdrivers, jigsaws, hacksaws, a sewing<br />

machine, a compressor, and a specially designed router and<br />

for Over 20 Years!<br />

sanding tool for repairing and adjusting orthoses and seating<br />

systems — is a handyman’s dream.<br />

Across the room, Patti Bahr, supervisor of Rehabilitation-<br />

Engineering and Outreach, arranges augmentative communication<br />

devices — programmed voice boxes and other equipment<br />

that help patients communicate more effectively. Deborah Day,<br />

outreach coordinator, greets patients and families at the door.<br />

for Over 20 Years!<br />

A Beehive of Activity<br />

All morning, the clinic is abuzz. Patients are scheduled at half-hour<br />

intervals with Mark Gormley Jr., M.D., pediatric rehabilitation<br />

medicine physician. Karen Ostenso, a physical therapist, either<br />

works with Gormley or meets individually with patients who<br />

come to the clinic, often with their community therapists. “It<br />

gives me a chance to talk with patients and their therapists about<br />

everything from exercise to equipment,” she says.<br />

Jody Klemer, for<br />

example, arrives<br />

with her child’s<br />

therapist. Klemer<br />

is concerned that<br />

her 17-month-old<br />

daughter, Faith,<br />

has increased spasticity<br />

on her left<br />

side — the result of<br />

being born with<br />

some neurological<br />

problems. “<strong>When</strong><br />

Mobile Outreach —<br />

continued on page 7<br />

Mark Gormley Jr., M.D.,<br />

examines Faith at the<br />

Mobile Outreach Clinic<br />

in Owatonna, Minn.<br />

The illustration of<br />

the truck was drawn<br />

by <strong>Gillette</strong> patient,<br />

Michael Lehnke.<br />

for Over 20 Years!<br />

3


Teen Focus Joel Olson<br />

Joel created new<br />

signs and posted<br />

them on nature<br />

trails that he and<br />

his fellow Scouts<br />

helped to restore in<br />

Thief River Falls,<br />

Minn.<br />

committee. Because the project had to have a leadership component,<br />

he organized the local Boy Scout Troop and his friends<br />

and family to help with the physical labor. They began work on<br />

the project in the spring of 2003 and completed it that fall. It<br />

took more than 300 hours. Joel says, “We put decals on old<br />

traffic signs and posted them on fence posts. We cleaned trails<br />

and put a footbridge in place.”<br />

Joel also wrote a letter to the local newspaper, prompting the<br />

editor to write about the Scouts’ efforts. Lastly, Joel presented a<br />

final report to a committee of representatives from his community<br />

and the local Scouting district. The response to the project<br />

was, he says, “pretty wonderful.”<br />

At his Eagle Scout ceremony on March 13, 2004, Joel dedicated<br />

his badge to Duran Olson, Joel’s late father and Scout leader<br />

who died in 2002. United States Representative Colin Peterson<br />

arranged for a flag to be flown in Washington, D.C., in Joel’s<br />

honor, and the flag was subsequently awarded to Joel. In addition,<br />

the Minnesota House and Senate passed resolutions<br />

honoring Joel, and he received a letter from the President of the<br />

United States.<br />

Trail Project Leads<br />

Back to Nature!<br />

Joel Olson has had a couple of really good years. In 2004, his high-school<br />

classmates honored him by electing him homecoming king. That same year, he<br />

achieved the rank of Eagle Scout as part of Boy Scout Troop 59 in Thief River Falls,<br />

Minn.<br />

Joel, who started Scouting as a first grader and became a Boy Scout in fifth grade,<br />

knows that being a good citizen is an important part of Scouting. It wasn’t surprising,<br />

then, when he chose an Eagle Scout project that would give something back<br />

to his community. “I noticed that the environmental center at Thief River<br />

Elementary School had a problem,” he explains. “Motorized vehicles were using<br />

the nature trails.” Joel decided to raise community awareness of the environmental<br />

center and to restore the trails to their original purpose.<br />

It was a lengthy and involved project. Joel first had to gain approval, which meant<br />

developing a plan and presenting it to the school board, the head of the environmental<br />

center, his local troop committee, his Scoutmaster and the district Scouting<br />

Meet<br />

But best of all, thanks to Joel and his friends, people are now<br />

using the nature trails as intended.<br />

Eagle Scout Joel Olson — who earned<br />

38 merit badges as a Boy Scout — now is a<br />

junior assistant who helps lead his local troop.<br />

4<br />

Joel Olson<br />

Joel, who has cerebral palsy as the result of a stroke<br />

at 13 months of age, has been coming to <strong>Gillette</strong><br />

since he was 3 1/2 years old. As an adult, he’ll receive<br />

services at <strong>Gillette</strong> Lifetime <strong>Specialty</strong> <strong>Healthcare</strong><br />

Clinic in New Brighton. Following high-school<br />

graduation, Joel will be moving into an apartment<br />

on his own in Thief River Falls<br />

and attending Northland<br />

Community and Technical<br />

College. He then plans to<br />

attend a transtional<br />

program at Central Lake<br />

College in Brainerd<br />

before enrolling<br />

in a vocational<br />

technical<br />

school.


As parents, you want your teens and<br />

young adults with disabilities or<br />

complex medical conditions to live<br />

full and independent lives and to avoid serious<br />

health complications as they age. Teens<br />

and young adults with disabilities can<br />

receive the specialized health care they<br />

need at the <strong>Gillette</strong> Lifetime <strong>Specialty</strong><br />

<strong>Healthcare</strong> Clinic in New Brighton. To help<br />

patients make the transition to adult health<br />

care, we’ve developed a transition program<br />

for use with many of our patients and their<br />

families. Of course, people develop at different<br />

rates and have different abilities, but<br />

typically here’s how the program works.<br />

● Health-care providers and parents usually<br />

begin the transition process by talking<br />

with young children (around age 10)<br />

about their medical conditions and the<br />

care they need to stay healthy. For children,<br />

learning about their disability and<br />

what they can and cannot do is the first<br />

step.<br />

● At about age 14, patients receive a transition<br />

packet with information to help them<br />

begin setting goals regarding higher<br />

education, career plans and independent<br />

living. Patients also might learn how to<br />

make doctor appointments, take their<br />

medicines and care for special equipment<br />

and supplies.<br />

● Doctors talk with patients (about age 16<br />

and older) to find out if they’re ready to<br />

move to adult-care providers. The decision<br />

is usually based on medical stability, socialemotional<br />

readiness and the availability of<br />

specialty providers. Teens and young<br />

adults who are able, might begin taking<br />

Transition to Adulthood<br />

Ready! Set!<br />

Goals!<br />

Teens and young adults with disabilities can receive<br />

the specialized health care they need at the <strong>Gillette</strong><br />

Lifetime <strong>Specialty</strong> <strong>Healthcare</strong> Clinic in New Brighton.<br />

responsibility for making their health-care<br />

appointments, taking their medicines,<br />

caring for special equipment and supplies<br />

and seeking out needed resources. They’ll<br />

also make decisions about higher education,<br />

health insurance and independent<br />

living.<br />

Transition Resources<br />

As part of the transition, patients will receive<br />

our new transition manual, Make Your Move!<br />

A Transition Guide for Teens. The guide is<br />

designed to help teens learn about themselves<br />

and their health history and medical<br />

needs. It also has information about legal<br />

coming-of-age issues, adult specialty health<br />

care, community-based living, disability services,<br />

and postsecondary education and<br />

employment.<br />

In addition, Jennifer Wilhelmy, an adult nurse<br />

practitioner who treats adults, staffs a transitional<br />

clinic in St. Paul from 12:30 to 3:30 p.m.<br />

on the second and fourth Friday of each<br />

month. The clinic’s main focus is patients,<br />

16 and older, who:<br />

● <strong>Have</strong> physical medicine and<br />

rehabilitation needs<br />

● Need baclofen pump refills<br />

● Require transition summary visits<br />

before moving to the New Brighton Clinic<br />

In addition, the clinic is available to patients,<br />

age 14 to 16, who want to meet adult-care<br />

providers and learn more about adult care.<br />

If you have questions about transition<br />

planning, call Wilhelmy at 651-634-1936.<br />

For appointments, call 651-229-3944.<br />

?<br />

Check It<br />

Out!<br />

Tips for Teens!<br />

Are you prepared<br />

for the responsibilities<br />

of adulthood?<br />

Maybe you’re ready in some<br />

areas, but not in others. That’s<br />

OK. Being a teenager is about<br />

learning and practicing the skills<br />

you’ll need for adulthood. Now is<br />

the best time to talk about your<br />

changing health-care needs with<br />

your family and health-care<br />

providers. This checklist is a<br />

good start.<br />

Understanding Your Disability<br />

and Health-Care Needs<br />

Do you —<br />

✔<br />

✔<br />

✔<br />

✔<br />

✔<br />

✔<br />

Understand your disability<br />

and how it affects your body<br />

and mind?<br />

Know which medicines and<br />

treatments you need to stay<br />

healthy?<br />

Know about the services<br />

that help you with your daily<br />

or personal care?<br />

<strong>Have</strong> information about the<br />

specialists who provide<br />

your care?<br />

Know about the medical<br />

equipment and supplies you<br />

need to stay healthy and<br />

independent?<br />

Keep a file of your medical<br />

records, reports and health<br />

information?<br />

You’ll find additional checklists<br />

and information designed to help<br />

you learn more about yourself,<br />

your health history and medical<br />

needs in Make Your Move!<br />

A Transition Guide for Teens.<br />

5


Summer’s<br />

Coming<br />

Sign Up for<br />

Camp NOW!<br />

2005 Muscular Dystrophy Association<br />

Summer Camp<br />

A variety of activities for kids with<br />

neuromuscular diseases<br />

Ages 6 to 21 — June 4 – 11<br />

Contact: 952-841-0533 or<br />

minneapolisservices@mdausa.org<br />

Camp OZ<br />

Camp Idhuhapi in Loretto, Minn., for kids with epilepsy<br />

Ages 9 to 17 — June 19 – 24<br />

Contact: Epilepsy Foundation of Minnesota,<br />

651-287-2302 or 800-779-0777 or jewst@efmn.org<br />

Camp Odayin<br />

Residential and day camp near Crosslake, Minn.,<br />

for children with heart disease<br />

Ages 8 to 17 — Throughout the summer<br />

Contact: 651-351-9185 or www.campodayin.org<br />

Friendship Ventures<br />

Resident camps for children with developmental,<br />

physical or multiple disabilities<br />

● Camp Eden Wood in Eden Prairie, Minn.<br />

● Camp Friendship near Annandale, Minn.<br />

Ages 5 to 18 — Throughout the summer<br />

Contact: 952-852-0101 or fv@friendshipventures.org<br />

or www.friendshipventures.org<br />

St. Paul Parks and Recreation<br />

Adaptive recreation program for St. Paul residents<br />

of all ages at recreation centers and community<br />

education sites throughout the city<br />

Contact: 651-266-6451 or 651-266-6378 (TTY)<br />

Courage Center<br />

Accessible residential camping for children and adults<br />

with physical disabilities or speech/language/hearing<br />

impairments<br />

● Camp Courage, Maple Lake, Minn.<br />

● Courage North, Lake George, Minn.<br />

Contact: 763-520-0504 or camping@courage.org<br />

Resources Worth Noting<br />

● Wilderness Inquiry offers a Guide to Universal<br />

Access at Recreation Areas Throughout Minnesota.<br />

For a copy of a guide or to find out about accessible<br />

trips, contact Wilderness Inquiry at<br />

www.wildernessinquiry.org or 612-676-9400.<br />

● Freedom Tent by Eureka!, developed with Blue Sky<br />

Designs, is specifically for people with physical disabilities.<br />

The adapted tent is easy for one person in a<br />

seated position to set up. It features a zipperless<br />

door and a vestibule with room for two wheelchairs,<br />

pets and other recreation gear. For more information,<br />

contact Johnson Outdoors Inc., at 800-572-8822<br />

or www.eurekatent.com.<br />

6<br />

FOCUS ON OUR STAFF & HOSPITAL<br />

Good Night<br />

New Clinic Helps<br />

<strong>Children</strong> Sleep Well<br />

Getting a good night’s sleep can be difficult<br />

for some children with disabilities. In<br />

fact, sleep problems affect at least a third of children who have cerebral<br />

palsy, epilepsy, brain injuries or spina bifida. That’s why <strong>Gillette</strong> <strong>Children</strong>’s<br />

<strong>Specialty</strong> <strong>Healthcare</strong> added a pediatric sleep-disorders clinic with sleep<br />

specialist John Garcia, M.D. Garcia is a graduate of the University of Iowa<br />

School of Medicine. He completed his pediatric residency and a fellowship<br />

in behavioral/developmental pediatrics at Riley Hospital for <strong>Children</strong><br />

in Indianapolis, Ind. He completed a sleep training program at the<br />

Minnesota Regional Sleep Disorders Center in Minneapolis.<br />

Using a combination of behavioral management and medications, Garcia<br />

will work with <strong>Gillette</strong> patients who have disabilities and associated<br />

sleep disorders. These disorders include obstructive sleep apnea, sleep<br />

walking, circadian rhythm disorders and restless legs syndrome.<br />

Garcia is available for appointments at <strong>Gillette</strong> clinics in St. Paul and<br />

Burnsville, Minn. For more information, contact Scheduling at<br />

651-290-8707 or toll-free at 800-719-4040.<br />

In addition to Garcia, these are the other <strong>Gillette</strong> doctors at the<br />

Burnsville Clinic:<br />

● James Gage, M.D.<br />

pediatric orthopaedist<br />

● Mark Gormley Jr., M.D.<br />

pediatric rehabilitation<br />

medicine physician<br />

● Shalene Kennedy, M.D.<br />

pediatric psychiatrist<br />

● Betty Ong, M.D.<br />

pediatric neurologist<br />

● Michael Partington, M.D.<br />

pediatric neurosurgeon<br />

Scheduling Appointments?<br />

We’re Here to Help!<br />

● Joseph Petronio, M.D.<br />

pediatric neurosurgeon<br />

● Deborah Quanbeck, M.D.<br />

pediatric orthopaedist<br />

● Stephen Sundberg, M.D.<br />

pediatric orthopaedist<br />

● Beverly Wical, M.D.<br />

pediatric neurologist<br />

● Robert Wood, M.D.<br />

plastic surgeon<br />

<strong>Gillette</strong> <strong>Children</strong>’s <strong>Specialty</strong> <strong>Healthcare</strong> has changed the way we schedule<br />

patients. Our new system will mean that you’re able to schedule appointments<br />

even more quickly and efficiently. Our goal is always to answer<br />

the phone within four rings. If you’re on hold longer than five minutes,<br />

please let us know by pressing the pound key.<br />

<strong>When</strong> you need to schedule an appointment, call Scheduling at<br />

651-290-8707 or toll-free at 800-719-4040. Our schedulers are available<br />

Monday through Friday from 7 a.m. to 7:30 p.m. If you have any difficulties<br />

or concerns about scheduling an appointment, please call Lynn Simons,<br />

scheduling manager, at 651-325-2107.


Schuler Shoes in<br />

Woodbury is located<br />

at 10150 Hudson Road.<br />

The phone number is<br />

651-731-8700.<br />

Depending on demand,<br />

other Schuler locations<br />

might also stock this<br />

shoe for us.<br />

<strong>When</strong> <strong>Children</strong> <strong>Have</strong> <strong>Scars</strong> — continued from page 1<br />

Beyond surgery, pressure therapy — using<br />

silicone sheeting, gel or tape for seven or<br />

eight weeks — can help. “The theory is that<br />

microscopic pressure decreases scar formation,”<br />

says Wood, “and most plastic surgeons<br />

think it helps.” Moisturizing and massage<br />

also can help realign collagen fibers, making<br />

skin appear smoother. Wood explains that<br />

vitamin E and cocoa butter, which have little<br />

scientific backing, are used less and less, but<br />

sunblock, which keeps scars from becoming<br />

hyperpigmented or darkened, is a must.<br />

Decisions about whether to intervene surgically<br />

should be made in consultation with a<br />

plastic surgeon. Wood states that it’s usually<br />

obvious when surgical intervention will<br />

help. “My job is to assess risks and benefits,”<br />

he adds. “There’s rarely a time when we hem<br />

and haw and wonder whether or not to<br />

intervene. It’s usually clear if we can help a<br />

patient.”<br />

A Good Fit!<br />

<strong>Gillette</strong> Partners With Schuler Shoes<br />

<strong>Gillette</strong> <strong>Children</strong>’s <strong>Specialty</strong> <strong>Healthcare</strong><br />

patients who wear ankle-foot orthoses<br />

(AFOs) can now get customized shoes at<br />

a Twin Cities retailer. Schuler Shoes,<br />

which specializes in comfortable<br />

shoes for hard-to-fit feet, is stocking<br />

Answer2 athletic shoes at its Woodbury, Minn.<br />

store. The shoes fit around patients’ lower-limb<br />

braces and retail for approximately $60 (kids) and<br />

$80 (adults).<br />

<strong>Gillette</strong> tested several styles of shoes on our<br />

patients before asking Schuler to carry the<br />

Answer2 model, which have wider and deeper<br />

insoles. “We asked Schuler to work with us<br />

because of their expertise in shoe fittings,” Linda<br />

Valeri, Assistive Technology – Clinic Services<br />

manager, says. “Depending on demand, other<br />

Schuler locations might also stock this shoe for us.”<br />

Mobile Outreach — continued from page 3<br />

Janet Lacher, the mother of a <strong>Gillette</strong> patient, purchased<br />

Answer2 shoes for her son. “<strong>When</strong> my son<br />

received his leg brace, we went to a local department<br />

store to find shoes that would work with the<br />

brace, but they couldn’t accommodate us,” she<br />

says. “I was so relieved when <strong>Gillette</strong> informed us<br />

that Schuler Shoes<br />

had what we needed.<br />

And my son loves the<br />

fact that the shoes<br />

have blinking lights on the bottom.”<br />

my son loves the fact<br />

that the shoes have<br />

blinking lights<br />

Leslie Butler, Schuler’s merchandise manager, says<br />

beginning a partnership with <strong>Gillette</strong> is consistent<br />

with the shoe company’s mission. “We pride ourselves<br />

in building community partnerships,” she<br />

says. “We think it’s valuable to give <strong>Gillette</strong> patients<br />

and families easier access to a product that can<br />

improve their health and well-being.”<br />

she was an infant, the doctor said she might have significant limitations,” Klemer<br />

says. “But she’s done so well, and we hope to continue that progress.” After an<br />

evaluation with Gormley and Ostenso, she is fitted with leg braces. At subsequent<br />

clinics, she’ll receive a stander and a specially equipped stroller.<br />

Following her appointment with Gormley, Zahra Ma Moud, 15, has an augmentative<br />

communications consultation with Bahr and a local speech therapist.<br />

Zahra’s mother, Faduma Ali, and her translator also are on hand. Bahr explains,<br />

“Augmentative communication devices provide tools for language and literacy,<br />

not just talking. Selecting the right system takes some time.”<br />

Meanwhile, patients arrive in a steady stream. A young man stops by to have his<br />

protective helmet adjusted. A little boy and his mother come in to pick up the<br />

boy’s new braces. “We fit braces to new prescriptions and repair a lot of straps,”<br />

Madden explains. Using a hydraulic lift, Lemke gently sets a patient into her new<br />

wheelchair. The chair will help her sit straighter and relieve pressure that can<br />

lead to pressure sores.<br />

By 11 a.m., the staff has seen 10 patients — and the day is only half over.<br />

Around 3 p.m., they pack up and head home. Day, who is on the road 18 to 20<br />

times a year, says, “Families are so busy, and they’re always so appreciative that<br />

we come to their communities. The clinics let us provide proactive care to<br />

patients who might not be served if we didn’t come to them.”<br />

7


Frequently Called Numbers<br />

Main number 651-291-2848<br />

–Burnsville Clinic 952-223-3400<br />

–Duluth Clinic 218-728-6160<br />

–Minnetonka Clinic 952-936-0977<br />

–New Brighton Clinic 651-636-9443<br />

–Outpatient Clinic – St. Paul 651-229-3890<br />

Admitting 651-229-2148<br />

Adult Inpatient Unit<br />

Assistive Technology –<br />

651-726-2840<br />

Clinic Services 651-229-3800<br />

Child and Family Services 651-229-3855<br />

Family Resource Center<br />

Pediatric Medical Trauma Unit<br />

651-229-3938<br />

(4-South) 651-229-3825<br />

Postsurgical Unit 651-229-3820<br />

Preregistration<br />

Rehabilitation<br />

651-229-3852<br />

and Neurology Unit (4-North) 651-726-2613<br />

Rehabilitation Therapies 651-229-3900<br />

To schedule an appointment 651-290-8707<br />

Toll-free numbers<br />

Burnsville Clinic 866-881-7386<br />

Main hospital and clinics 800-719-4040<br />

Duluth Clinic 800-903-7111<br />

Minnetonka Clinic 800-277-1250<br />

New Brighton Clinic 800-578-4266<br />

SPRING 2005<br />

VOLUME 13<br />

NUMBER 1<br />

A<br />

NEWSLETTER<br />

FOR GILLETTE<br />

PATIENTS &<br />

FAMILIES<br />

Family Focus provides support and information for<br />

families of patients at <strong>Gillette</strong> <strong>Children</strong>’s <strong>Specialty</strong><br />

<strong>Healthcare</strong>, a regional health center for children,<br />

adolescents and young adults who have disabilities.<br />

Editorial Advisory Committee:<br />

Laurie Porter, Coordinator, Family Resource Center<br />

Adrienne Barnwell, Ph.D., Psychologist<br />

Deetta Barnhardt, Social Worker<br />

Marketing Communications Staff:<br />

Lonnie Bell, Editor/Writer<br />

Marilynn Reid, Graphic Designer<br />

Anna Bittner, Photographer<br />

Lynne Kuechle, Writer<br />

Angela Lindell, Writer<br />

Beverly Smith-Patterson, Writer<br />

To join our editorial advisory committee,<br />

please call Lonnie Bell at 651-229-1772.<br />

You don’t want to<br />

receive Family Focus?<br />

To remove your name<br />

from our list —<br />

Call 651-229-1721<br />

Just<br />

ASK<br />

WE LIKE<br />

TO HELP<br />

200 University Avenue East<br />

Saint Paul, Minnesota 55101<br />

www.gillettechildrens.org<br />

Lynn Simons<br />

Scheduling Manager<br />

?<br />

ASK ASK US US! US US!<br />

QUESTION Coming to St. Paul isn’t always easy for my family, and it’s<br />

difficult to park my extended van in the hospital ramp. Do you have any<br />

suggestions?<br />

ANSWER If you live in or near the south or southwest metro area, you<br />

might consider scheduling appointments at the Burnsville or Minnetonka<br />

Clinic, where a team of health-care professionals offers specialty outpatient<br />

services five days a week. Both clinics are conveniently located and there’s<br />

ample free, surface-lot parking. In addition, we offer a wide range of services,<br />

including assistive technology, casting, radiography, rehabilitation therapy<br />

and social work. At Burnsville, we also offer specialized services for children<br />

and teens with cerebral palsy and a sleep clinic (see story on page 6).<br />

To make appointments, call Scheduling at 651-290-8707 or 800-719-4040<br />

(toll-free).<br />

Nonprofit<br />

Organization<br />

U.S. Postage<br />

P A I D<br />

Waconia, MN<br />

Permit No. 65

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