When Children Have Scars? - Gillette Children's Specialty Healthcare
When Children Have Scars? - Gillette Children's Specialty Healthcare
When Children Have Scars? - Gillette Children's Specialty Healthcare
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3 Mobile Outreach<br />
4 Teen Focus<br />
5 Transition to<br />
Adulthood<br />
8 Ask Us: Come to<br />
Burnsville or Minnetonka<br />
Robert Wood, M.D.,<br />
plastic surgeon and<br />
medical director of<br />
the Center for Craniofacial<br />
Services at<br />
<strong>Gillette</strong>, notes, “It<br />
takes approximately<br />
nine months to see<br />
how a scar will look.<br />
Then, depending on<br />
the severity of the<br />
scar, we might consider<br />
surgery.”<br />
Types of <strong>Scars</strong><br />
● Keloids are wide<br />
and extend beyond<br />
the original scar.<br />
● Hypertrophic scars<br />
are pink and raised.<br />
● Other scars might<br />
have an irregular<br />
contour.<br />
SPRING 2005<br />
VOLUME 13<br />
NUMBER 1<br />
A<br />
NEWSLETTER<br />
FOR GILLETTE<br />
PATIENTS &<br />
FAMILIES<br />
What Can Be Done<br />
<strong>When</strong> <strong>Children</strong> <strong>Have</strong> <strong>Scars</strong>?<br />
<strong>Scars</strong> are a fact of life for everyone. “We all<br />
have some kind of scar, whether it’s from<br />
chicken pox, a scraped knee or an appendectomy,”<br />
says Robert Wood, M.D., plastic<br />
surgeon and medical director of the Center for<br />
Craniofacial Services at <strong>Gillette</strong> <strong>Children</strong>’s<br />
<strong>Specialty</strong> <strong>Healthcare</strong>.<br />
How children handle scars often depends on<br />
the child’s age and how their parents react to<br />
the scarring. Constance McLeod, Ph.D, who is a<br />
psychologist at <strong>Gillette</strong> , explains that until about<br />
age 5, children often believe a scar is part of<br />
them and that everyone else has the same mark.<br />
“Older children, however, who might be struggling<br />
with body image and self-esteem issues,<br />
often are more concerned about the presence<br />
of a scar,” she says.<br />
<strong>When</strong> children or teenagers have serious scars,<br />
it’s only natural for parents to wonder what<br />
can be done about them. <strong>Scars</strong> resulting from<br />
surgery, birth defects or serious injuries can<br />
have a profound social and emotional impact<br />
— especially if they cause functional problems<br />
or occur in visible places, such as the face.<br />
“Plastic surgeons can make scars look as inconspicuous<br />
as possible so that from a conversational<br />
distance of four to six feet they’re hard<br />
to see,” says Wood. “But we can’t remove<br />
them completely. Anytime a scar is created, it<br />
never goes away.”<br />
Improving and Repairing <strong>Scars</strong><br />
Techniques for repairing or improving scars<br />
include laser treatment, dermabrasion and<br />
surgical revision. “<strong>Gillette</strong>’s long-pulse dye laser<br />
penetrates the skin and blood vessels better<br />
than traditional lasers and gives patients with<br />
scars better results,” Wood explains. Dermabrasion<br />
is a sanding technique that is used to<br />
resurface “lumpy” scars. It can be likened to<br />
using a spinning sandpaper wheel to achieve a<br />
smooth surface. Surgical revision for scar treatment<br />
involves removing a scar and reclosing<br />
the wound. It’s particularly effective with wide<br />
(keloid) scars.<br />
Wood recommends waiting for at least nine<br />
months after a scar forms to do any kind of<br />
surgical improvement. He explains that scars<br />
typically are raised, red and firm for eight weeks.<br />
After a year, they’re typically softer, whiter and<br />
flatter. “It takes approximately nine months to<br />
see how the scar will look,” Wood adds. “Until<br />
then, the scar is still maturing. At nine months,<br />
depending on the severity of the scar, we might<br />
consider surgery.”<br />
<strong>When</strong> <strong>Children</strong> <strong>Have</strong> <strong>Scars</strong> — continued on page 7
2<br />
WHAT’S HAPPENING<br />
for families?<br />
JUNE<br />
Plan to Attend the International Spina Bifida Conference<br />
Plan now to attend the Spina Bifida Association of America (SBAA) international<br />
conference June 26 – 29 in Minneapolis. Building Bridges to Advance Understanding<br />
features the latest information in orthopaedics, urology, neurosurgery and neuropsychology.<br />
Presentations focus on adult health, psychosocial and family issues, employment,<br />
sexuality, depression, latex allergy, self-determination and learning disabilities.<br />
<strong>Gillette</strong> is providing speakers for the conference and planning a course for primarycare<br />
providers — including physicians, physician assistants, nurse practitioners and<br />
physical therapists — on June 25. “<strong>Gillette</strong> has the largest spina bifida program in the<br />
region, so we’re excited to play such an active role in the conference,” says Kim<br />
Marben, program manager of <strong>Gillette</strong>’s Center for Spina Bifida.<br />
<strong>Gillette</strong> Speakers<br />
● Endocrinologist<br />
Kevin Sheridan, M.D.<br />
● Neurosurgeon<br />
Michael Partington, M.D.<br />
● Nurse practitioner<br />
Jennifer Wilhelmy<br />
● Orthotist<br />
Dave Kuenstler<br />
For more information about the conference, or to register, visit www.sbaa.org, and<br />
click on Annual Conference. For information about the <strong>Gillette</strong>-cosponsored course,<br />
contact Marben at 651-229-3878 or visit www.gillettechildrens.org.<br />
JULY<br />
Firefighters Carnival<br />
Calling All Families<br />
● Pediatric orthopaedists<br />
Steven Koop, M.D.<br />
Stephen Sundberg, M.D.<br />
● Physical therapist<br />
Laura Gueron<br />
● Psychologist<br />
Constance McLeod, Ph.D.<br />
● Social worker<br />
Carol Nelson<br />
● Urologists:<br />
Leo Fung, M.D.<br />
David Vandersteen, M.D.<br />
● Clinic manager<br />
Ronna Linroth<br />
Mark your calendars for the annual St. Paul Firefighters Carnival, scheduled for July 20<br />
from 10 a.m. until 1 p.m. on the hospital grounds at the St. Paul campus. The event is<br />
open to all <strong>Gillette</strong> patients. Contact Angie Treffert, child life specialist, at 651-726-2694.<br />
You’ve heard their stories on the KS95 for Kids radiothon. You’ve seen them on the<br />
news, or maybe you’ve even read about them in our publications. They’re <strong>Gillette</strong><br />
families that have agreed to join with us to help tell the community about themselves<br />
and the care that <strong>Gillette</strong> provides.<br />
We’re always looking to get to know new families. So whether you’ve just begun<br />
coming to <strong>Gillette</strong> or have been coming for years, we’d like to hear from you. If your<br />
family would like to share its story, please send your name, address, child’s name, age,<br />
gender and a brief description of the medical condition to: Molly Snyder, <strong>Gillette</strong><br />
<strong>Children</strong>’s <strong>Specialty</strong> <strong>Healthcare</strong>, 200 University Ave. E., St. Paul, MN 55101, or you can<br />
contact her at msnyder@gillettechildrens.com.<br />
This year marks the 20th anniversary of<br />
<strong>Gillette</strong>’s Mobile Outreach Clinic. It began as a<br />
one-man road trip by Dave Wilkie, now<br />
manager of Assistive Technology - Outreach<br />
Services. Annually, the statewide Mobile<br />
Outreach Clinic serves more than 1,500 children<br />
and adults who have disabilities.<br />
You’re Invited<br />
Come Help Us<br />
Celebrate 20 Years!<br />
<strong>Gillette</strong>’s Mobile Outreach Clinic and<br />
many outreach sites will celebrate<br />
the program’s 20th anniversary<br />
throughout 2005. The outreach staff<br />
looks forward to providing a bit of<br />
outreach history, and a lot of education<br />
and information about new<br />
products and services that can be<br />
provided through Mobile Outreach<br />
Clinics.<br />
Celebration Schedule<br />
Alexandria May 31<br />
Brainerd June 2<br />
Detroit Lakes July 13<br />
Bemidji July 14<br />
St. Cloud Sept. 9<br />
Owatonna Sept. 14<br />
Fergus Falls Nov. 2<br />
You’ll find information about<br />
open house times and locations at<br />
www.gillettechildrens.org. For<br />
more information about the Mobile<br />
Outreach Clinic, call 800-578-4266<br />
(toll-free).
On the Road<br />
In 1985, Dave Wilkie was a man with an idea — and a motorcycle.<br />
<strong>When</strong> a group home asked <strong>Gillette</strong> <strong>Children</strong>’s <strong>Specialty</strong><br />
<strong>Healthcare</strong> for help with assistive technology, Wilkie<br />
loaded his sidecar with tools and equipment and<br />
headed to Windom, Minn. Once there, he spent the day repairing<br />
braces and seating systems at <strong>Gillette</strong>’s first Mobile Outreach Clinic.<br />
Today, the Mobile Outreach Clinic is a statewide program that<br />
annually serves more than 1,500 children and adults. In 2004 alone,<br />
<strong>Gillette</strong> offered 150 clinics for 1,500 patients in 19 communities<br />
throughout greater Minnesota. Staff put nearly 40,000 miles on<br />
three Mobile Outreach Clinic vehicles — while saving families an<br />
estimated 380,000 miles in travel. “There are days when all three<br />
of our trucks are on the road, going to different places,” says Wilkie,<br />
now the manager of Assistive Technology – Outreach Services,<br />
“<strong>When</strong> we’re that busy, it’s a good sign that we’re meeting some<br />
significant needs.”<br />
On the Road<br />
In the early days, <strong>Gillette</strong> outreach clinics often were set up in<br />
church basements, VFW halls and hospital cafeterias. One doctor<br />
used a pool table as an exam table. Now we set up in local clinics,<br />
hospitals and therapy centers. In addition to providing assistivetechnology<br />
services, some clinics offer appointments with <strong>Gillette</strong><br />
therapists and doctors who specialize in physical medicine and<br />
rehabilitation. “Access to this array of services relieves the travel<br />
burden for families, enhances communication among patient<br />
providers and allows us to train community professionals in the<br />
use of assistive technology,” says Wilkie.<br />
What Happens at a Mobile Outreach Clinic?<br />
Climb Aboard<br />
and Find Out!<br />
with the<br />
Mobile Outreach Clinic<br />
On the Road<br />
It’s a sunny day when <strong>Gillette</strong>’s mobile<br />
outreach truck pulls up to the back of the<br />
Owatonna Hospital. By 7:30 a.m., the truck<br />
is unloaded, and the clinic is in full swing in a two-room suite on<br />
the lower level of the hospital. In one corner, Dave Madden,<br />
orthotist, and Paul Lemke, seating specialist, have set up carts<br />
loaded with tools and equipment. The portable workshop —<br />
outfitted with drills, screwdrivers, jigsaws, hacksaws, a sewing<br />
machine, a compressor, and a specially designed router and<br />
for Over 20 Years!<br />
sanding tool for repairing and adjusting orthoses and seating<br />
systems — is a handyman’s dream.<br />
Across the room, Patti Bahr, supervisor of Rehabilitation-<br />
Engineering and Outreach, arranges augmentative communication<br />
devices — programmed voice boxes and other equipment<br />
that help patients communicate more effectively. Deborah Day,<br />
outreach coordinator, greets patients and families at the door.<br />
for Over 20 Years!<br />
A Beehive of Activity<br />
All morning, the clinic is abuzz. Patients are scheduled at half-hour<br />
intervals with Mark Gormley Jr., M.D., pediatric rehabilitation<br />
medicine physician. Karen Ostenso, a physical therapist, either<br />
works with Gormley or meets individually with patients who<br />
come to the clinic, often with their community therapists. “It<br />
gives me a chance to talk with patients and their therapists about<br />
everything from exercise to equipment,” she says.<br />
Jody Klemer, for<br />
example, arrives<br />
with her child’s<br />
therapist. Klemer<br />
is concerned that<br />
her 17-month-old<br />
daughter, Faith,<br />
has increased spasticity<br />
on her left<br />
side — the result of<br />
being born with<br />
some neurological<br />
problems. “<strong>When</strong><br />
Mobile Outreach —<br />
continued on page 7<br />
Mark Gormley Jr., M.D.,<br />
examines Faith at the<br />
Mobile Outreach Clinic<br />
in Owatonna, Minn.<br />
The illustration of<br />
the truck was drawn<br />
by <strong>Gillette</strong> patient,<br />
Michael Lehnke.<br />
for Over 20 Years!<br />
3
Teen Focus Joel Olson<br />
Joel created new<br />
signs and posted<br />
them on nature<br />
trails that he and<br />
his fellow Scouts<br />
helped to restore in<br />
Thief River Falls,<br />
Minn.<br />
committee. Because the project had to have a leadership component,<br />
he organized the local Boy Scout Troop and his friends<br />
and family to help with the physical labor. They began work on<br />
the project in the spring of 2003 and completed it that fall. It<br />
took more than 300 hours. Joel says, “We put decals on old<br />
traffic signs and posted them on fence posts. We cleaned trails<br />
and put a footbridge in place.”<br />
Joel also wrote a letter to the local newspaper, prompting the<br />
editor to write about the Scouts’ efforts. Lastly, Joel presented a<br />
final report to a committee of representatives from his community<br />
and the local Scouting district. The response to the project<br />
was, he says, “pretty wonderful.”<br />
At his Eagle Scout ceremony on March 13, 2004, Joel dedicated<br />
his badge to Duran Olson, Joel’s late father and Scout leader<br />
who died in 2002. United States Representative Colin Peterson<br />
arranged for a flag to be flown in Washington, D.C., in Joel’s<br />
honor, and the flag was subsequently awarded to Joel. In addition,<br />
the Minnesota House and Senate passed resolutions<br />
honoring Joel, and he received a letter from the President of the<br />
United States.<br />
Trail Project Leads<br />
Back to Nature!<br />
Joel Olson has had a couple of really good years. In 2004, his high-school<br />
classmates honored him by electing him homecoming king. That same year, he<br />
achieved the rank of Eagle Scout as part of Boy Scout Troop 59 in Thief River Falls,<br />
Minn.<br />
Joel, who started Scouting as a first grader and became a Boy Scout in fifth grade,<br />
knows that being a good citizen is an important part of Scouting. It wasn’t surprising,<br />
then, when he chose an Eagle Scout project that would give something back<br />
to his community. “I noticed that the environmental center at Thief River<br />
Elementary School had a problem,” he explains. “Motorized vehicles were using<br />
the nature trails.” Joel decided to raise community awareness of the environmental<br />
center and to restore the trails to their original purpose.<br />
It was a lengthy and involved project. Joel first had to gain approval, which meant<br />
developing a plan and presenting it to the school board, the head of the environmental<br />
center, his local troop committee, his Scoutmaster and the district Scouting<br />
Meet<br />
But best of all, thanks to Joel and his friends, people are now<br />
using the nature trails as intended.<br />
Eagle Scout Joel Olson — who earned<br />
38 merit badges as a Boy Scout — now is a<br />
junior assistant who helps lead his local troop.<br />
4<br />
Joel Olson<br />
Joel, who has cerebral palsy as the result of a stroke<br />
at 13 months of age, has been coming to <strong>Gillette</strong><br />
since he was 3 1/2 years old. As an adult, he’ll receive<br />
services at <strong>Gillette</strong> Lifetime <strong>Specialty</strong> <strong>Healthcare</strong><br />
Clinic in New Brighton. Following high-school<br />
graduation, Joel will be moving into an apartment<br />
on his own in Thief River Falls<br />
and attending Northland<br />
Community and Technical<br />
College. He then plans to<br />
attend a transtional<br />
program at Central Lake<br />
College in Brainerd<br />
before enrolling<br />
in a vocational<br />
technical<br />
school.
As parents, you want your teens and<br />
young adults with disabilities or<br />
complex medical conditions to live<br />
full and independent lives and to avoid serious<br />
health complications as they age. Teens<br />
and young adults with disabilities can<br />
receive the specialized health care they<br />
need at the <strong>Gillette</strong> Lifetime <strong>Specialty</strong><br />
<strong>Healthcare</strong> Clinic in New Brighton. To help<br />
patients make the transition to adult health<br />
care, we’ve developed a transition program<br />
for use with many of our patients and their<br />
families. Of course, people develop at different<br />
rates and have different abilities, but<br />
typically here’s how the program works.<br />
● Health-care providers and parents usually<br />
begin the transition process by talking<br />
with young children (around age 10)<br />
about their medical conditions and the<br />
care they need to stay healthy. For children,<br />
learning about their disability and<br />
what they can and cannot do is the first<br />
step.<br />
● At about age 14, patients receive a transition<br />
packet with information to help them<br />
begin setting goals regarding higher<br />
education, career plans and independent<br />
living. Patients also might learn how to<br />
make doctor appointments, take their<br />
medicines and care for special equipment<br />
and supplies.<br />
● Doctors talk with patients (about age 16<br />
and older) to find out if they’re ready to<br />
move to adult-care providers. The decision<br />
is usually based on medical stability, socialemotional<br />
readiness and the availability of<br />
specialty providers. Teens and young<br />
adults who are able, might begin taking<br />
Transition to Adulthood<br />
Ready! Set!<br />
Goals!<br />
Teens and young adults with disabilities can receive<br />
the specialized health care they need at the <strong>Gillette</strong><br />
Lifetime <strong>Specialty</strong> <strong>Healthcare</strong> Clinic in New Brighton.<br />
responsibility for making their health-care<br />
appointments, taking their medicines,<br />
caring for special equipment and supplies<br />
and seeking out needed resources. They’ll<br />
also make decisions about higher education,<br />
health insurance and independent<br />
living.<br />
Transition Resources<br />
As part of the transition, patients will receive<br />
our new transition manual, Make Your Move!<br />
A Transition Guide for Teens. The guide is<br />
designed to help teens learn about themselves<br />
and their health history and medical<br />
needs. It also has information about legal<br />
coming-of-age issues, adult specialty health<br />
care, community-based living, disability services,<br />
and postsecondary education and<br />
employment.<br />
In addition, Jennifer Wilhelmy, an adult nurse<br />
practitioner who treats adults, staffs a transitional<br />
clinic in St. Paul from 12:30 to 3:30 p.m.<br />
on the second and fourth Friday of each<br />
month. The clinic’s main focus is patients,<br />
16 and older, who:<br />
● <strong>Have</strong> physical medicine and<br />
rehabilitation needs<br />
● Need baclofen pump refills<br />
● Require transition summary visits<br />
before moving to the New Brighton Clinic<br />
In addition, the clinic is available to patients,<br />
age 14 to 16, who want to meet adult-care<br />
providers and learn more about adult care.<br />
If you have questions about transition<br />
planning, call Wilhelmy at 651-634-1936.<br />
For appointments, call 651-229-3944.<br />
?<br />
Check It<br />
Out!<br />
Tips for Teens!<br />
Are you prepared<br />
for the responsibilities<br />
of adulthood?<br />
Maybe you’re ready in some<br />
areas, but not in others. That’s<br />
OK. Being a teenager is about<br />
learning and practicing the skills<br />
you’ll need for adulthood. Now is<br />
the best time to talk about your<br />
changing health-care needs with<br />
your family and health-care<br />
providers. This checklist is a<br />
good start.<br />
Understanding Your Disability<br />
and Health-Care Needs<br />
Do you —<br />
✔<br />
✔<br />
✔<br />
✔<br />
✔<br />
✔<br />
Understand your disability<br />
and how it affects your body<br />
and mind?<br />
Know which medicines and<br />
treatments you need to stay<br />
healthy?<br />
Know about the services<br />
that help you with your daily<br />
or personal care?<br />
<strong>Have</strong> information about the<br />
specialists who provide<br />
your care?<br />
Know about the medical<br />
equipment and supplies you<br />
need to stay healthy and<br />
independent?<br />
Keep a file of your medical<br />
records, reports and health<br />
information?<br />
You’ll find additional checklists<br />
and information designed to help<br />
you learn more about yourself,<br />
your health history and medical<br />
needs in Make Your Move!<br />
A Transition Guide for Teens.<br />
5
Summer’s<br />
Coming<br />
Sign Up for<br />
Camp NOW!<br />
2005 Muscular Dystrophy Association<br />
Summer Camp<br />
A variety of activities for kids with<br />
neuromuscular diseases<br />
Ages 6 to 21 — June 4 – 11<br />
Contact: 952-841-0533 or<br />
minneapolisservices@mdausa.org<br />
Camp OZ<br />
Camp Idhuhapi in Loretto, Minn., for kids with epilepsy<br />
Ages 9 to 17 — June 19 – 24<br />
Contact: Epilepsy Foundation of Minnesota,<br />
651-287-2302 or 800-779-0777 or jewst@efmn.org<br />
Camp Odayin<br />
Residential and day camp near Crosslake, Minn.,<br />
for children with heart disease<br />
Ages 8 to 17 — Throughout the summer<br />
Contact: 651-351-9185 or www.campodayin.org<br />
Friendship Ventures<br />
Resident camps for children with developmental,<br />
physical or multiple disabilities<br />
● Camp Eden Wood in Eden Prairie, Minn.<br />
● Camp Friendship near Annandale, Minn.<br />
Ages 5 to 18 — Throughout the summer<br />
Contact: 952-852-0101 or fv@friendshipventures.org<br />
or www.friendshipventures.org<br />
St. Paul Parks and Recreation<br />
Adaptive recreation program for St. Paul residents<br />
of all ages at recreation centers and community<br />
education sites throughout the city<br />
Contact: 651-266-6451 or 651-266-6378 (TTY)<br />
Courage Center<br />
Accessible residential camping for children and adults<br />
with physical disabilities or speech/language/hearing<br />
impairments<br />
● Camp Courage, Maple Lake, Minn.<br />
● Courage North, Lake George, Minn.<br />
Contact: 763-520-0504 or camping@courage.org<br />
Resources Worth Noting<br />
● Wilderness Inquiry offers a Guide to Universal<br />
Access at Recreation Areas Throughout Minnesota.<br />
For a copy of a guide or to find out about accessible<br />
trips, contact Wilderness Inquiry at<br />
www.wildernessinquiry.org or 612-676-9400.<br />
● Freedom Tent by Eureka!, developed with Blue Sky<br />
Designs, is specifically for people with physical disabilities.<br />
The adapted tent is easy for one person in a<br />
seated position to set up. It features a zipperless<br />
door and a vestibule with room for two wheelchairs,<br />
pets and other recreation gear. For more information,<br />
contact Johnson Outdoors Inc., at 800-572-8822<br />
or www.eurekatent.com.<br />
6<br />
FOCUS ON OUR STAFF & HOSPITAL<br />
Good Night<br />
New Clinic Helps<br />
<strong>Children</strong> Sleep Well<br />
Getting a good night’s sleep can be difficult<br />
for some children with disabilities. In<br />
fact, sleep problems affect at least a third of children who have cerebral<br />
palsy, epilepsy, brain injuries or spina bifida. That’s why <strong>Gillette</strong> <strong>Children</strong>’s<br />
<strong>Specialty</strong> <strong>Healthcare</strong> added a pediatric sleep-disorders clinic with sleep<br />
specialist John Garcia, M.D. Garcia is a graduate of the University of Iowa<br />
School of Medicine. He completed his pediatric residency and a fellowship<br />
in behavioral/developmental pediatrics at Riley Hospital for <strong>Children</strong><br />
in Indianapolis, Ind. He completed a sleep training program at the<br />
Minnesota Regional Sleep Disorders Center in Minneapolis.<br />
Using a combination of behavioral management and medications, Garcia<br />
will work with <strong>Gillette</strong> patients who have disabilities and associated<br />
sleep disorders. These disorders include obstructive sleep apnea, sleep<br />
walking, circadian rhythm disorders and restless legs syndrome.<br />
Garcia is available for appointments at <strong>Gillette</strong> clinics in St. Paul and<br />
Burnsville, Minn. For more information, contact Scheduling at<br />
651-290-8707 or toll-free at 800-719-4040.<br />
In addition to Garcia, these are the other <strong>Gillette</strong> doctors at the<br />
Burnsville Clinic:<br />
● James Gage, M.D.<br />
pediatric orthopaedist<br />
● Mark Gormley Jr., M.D.<br />
pediatric rehabilitation<br />
medicine physician<br />
● Shalene Kennedy, M.D.<br />
pediatric psychiatrist<br />
● Betty Ong, M.D.<br />
pediatric neurologist<br />
● Michael Partington, M.D.<br />
pediatric neurosurgeon<br />
Scheduling Appointments?<br />
We’re Here to Help!<br />
● Joseph Petronio, M.D.<br />
pediatric neurosurgeon<br />
● Deborah Quanbeck, M.D.<br />
pediatric orthopaedist<br />
● Stephen Sundberg, M.D.<br />
pediatric orthopaedist<br />
● Beverly Wical, M.D.<br />
pediatric neurologist<br />
● Robert Wood, M.D.<br />
plastic surgeon<br />
<strong>Gillette</strong> <strong>Children</strong>’s <strong>Specialty</strong> <strong>Healthcare</strong> has changed the way we schedule<br />
patients. Our new system will mean that you’re able to schedule appointments<br />
even more quickly and efficiently. Our goal is always to answer<br />
the phone within four rings. If you’re on hold longer than five minutes,<br />
please let us know by pressing the pound key.<br />
<strong>When</strong> you need to schedule an appointment, call Scheduling at<br />
651-290-8707 or toll-free at 800-719-4040. Our schedulers are available<br />
Monday through Friday from 7 a.m. to 7:30 p.m. If you have any difficulties<br />
or concerns about scheduling an appointment, please call Lynn Simons,<br />
scheduling manager, at 651-325-2107.
Schuler Shoes in<br />
Woodbury is located<br />
at 10150 Hudson Road.<br />
The phone number is<br />
651-731-8700.<br />
Depending on demand,<br />
other Schuler locations<br />
might also stock this<br />
shoe for us.<br />
<strong>When</strong> <strong>Children</strong> <strong>Have</strong> <strong>Scars</strong> — continued from page 1<br />
Beyond surgery, pressure therapy — using<br />
silicone sheeting, gel or tape for seven or<br />
eight weeks — can help. “The theory is that<br />
microscopic pressure decreases scar formation,”<br />
says Wood, “and most plastic surgeons<br />
think it helps.” Moisturizing and massage<br />
also can help realign collagen fibers, making<br />
skin appear smoother. Wood explains that<br />
vitamin E and cocoa butter, which have little<br />
scientific backing, are used less and less, but<br />
sunblock, which keeps scars from becoming<br />
hyperpigmented or darkened, is a must.<br />
Decisions about whether to intervene surgically<br />
should be made in consultation with a<br />
plastic surgeon. Wood states that it’s usually<br />
obvious when surgical intervention will<br />
help. “My job is to assess risks and benefits,”<br />
he adds. “There’s rarely a time when we hem<br />
and haw and wonder whether or not to<br />
intervene. It’s usually clear if we can help a<br />
patient.”<br />
A Good Fit!<br />
<strong>Gillette</strong> Partners With Schuler Shoes<br />
<strong>Gillette</strong> <strong>Children</strong>’s <strong>Specialty</strong> <strong>Healthcare</strong><br />
patients who wear ankle-foot orthoses<br />
(AFOs) can now get customized shoes at<br />
a Twin Cities retailer. Schuler Shoes,<br />
which specializes in comfortable<br />
shoes for hard-to-fit feet, is stocking<br />
Answer2 athletic shoes at its Woodbury, Minn.<br />
store. The shoes fit around patients’ lower-limb<br />
braces and retail for approximately $60 (kids) and<br />
$80 (adults).<br />
<strong>Gillette</strong> tested several styles of shoes on our<br />
patients before asking Schuler to carry the<br />
Answer2 model, which have wider and deeper<br />
insoles. “We asked Schuler to work with us<br />
because of their expertise in shoe fittings,” Linda<br />
Valeri, Assistive Technology – Clinic Services<br />
manager, says. “Depending on demand, other<br />
Schuler locations might also stock this shoe for us.”<br />
Mobile Outreach — continued from page 3<br />
Janet Lacher, the mother of a <strong>Gillette</strong> patient, purchased<br />
Answer2 shoes for her son. “<strong>When</strong> my son<br />
received his leg brace, we went to a local department<br />
store to find shoes that would work with the<br />
brace, but they couldn’t accommodate us,” she<br />
says. “I was so relieved when <strong>Gillette</strong> informed us<br />
that Schuler Shoes<br />
had what we needed.<br />
And my son loves the<br />
fact that the shoes<br />
have blinking lights on the bottom.”<br />
my son loves the fact<br />
that the shoes have<br />
blinking lights<br />
Leslie Butler, Schuler’s merchandise manager, says<br />
beginning a partnership with <strong>Gillette</strong> is consistent<br />
with the shoe company’s mission. “We pride ourselves<br />
in building community partnerships,” she<br />
says. “We think it’s valuable to give <strong>Gillette</strong> patients<br />
and families easier access to a product that can<br />
improve their health and well-being.”<br />
she was an infant, the doctor said she might have significant limitations,” Klemer<br />
says. “But she’s done so well, and we hope to continue that progress.” After an<br />
evaluation with Gormley and Ostenso, she is fitted with leg braces. At subsequent<br />
clinics, she’ll receive a stander and a specially equipped stroller.<br />
Following her appointment with Gormley, Zahra Ma Moud, 15, has an augmentative<br />
communications consultation with Bahr and a local speech therapist.<br />
Zahra’s mother, Faduma Ali, and her translator also are on hand. Bahr explains,<br />
“Augmentative communication devices provide tools for language and literacy,<br />
not just talking. Selecting the right system takes some time.”<br />
Meanwhile, patients arrive in a steady stream. A young man stops by to have his<br />
protective helmet adjusted. A little boy and his mother come in to pick up the<br />
boy’s new braces. “We fit braces to new prescriptions and repair a lot of straps,”<br />
Madden explains. Using a hydraulic lift, Lemke gently sets a patient into her new<br />
wheelchair. The chair will help her sit straighter and relieve pressure that can<br />
lead to pressure sores.<br />
By 11 a.m., the staff has seen 10 patients — and the day is only half over.<br />
Around 3 p.m., they pack up and head home. Day, who is on the road 18 to 20<br />
times a year, says, “Families are so busy, and they’re always so appreciative that<br />
we come to their communities. The clinics let us provide proactive care to<br />
patients who might not be served if we didn’t come to them.”<br />
7
Frequently Called Numbers<br />
Main number 651-291-2848<br />
–Burnsville Clinic 952-223-3400<br />
–Duluth Clinic 218-728-6160<br />
–Minnetonka Clinic 952-936-0977<br />
–New Brighton Clinic 651-636-9443<br />
–Outpatient Clinic – St. Paul 651-229-3890<br />
Admitting 651-229-2148<br />
Adult Inpatient Unit<br />
Assistive Technology –<br />
651-726-2840<br />
Clinic Services 651-229-3800<br />
Child and Family Services 651-229-3855<br />
Family Resource Center<br />
Pediatric Medical Trauma Unit<br />
651-229-3938<br />
(4-South) 651-229-3825<br />
Postsurgical Unit 651-229-3820<br />
Preregistration<br />
Rehabilitation<br />
651-229-3852<br />
and Neurology Unit (4-North) 651-726-2613<br />
Rehabilitation Therapies 651-229-3900<br />
To schedule an appointment 651-290-8707<br />
Toll-free numbers<br />
Burnsville Clinic 866-881-7386<br />
Main hospital and clinics 800-719-4040<br />
Duluth Clinic 800-903-7111<br />
Minnetonka Clinic 800-277-1250<br />
New Brighton Clinic 800-578-4266<br />
SPRING 2005<br />
VOLUME 13<br />
NUMBER 1<br />
A<br />
NEWSLETTER<br />
FOR GILLETTE<br />
PATIENTS &<br />
FAMILIES<br />
Family Focus provides support and information for<br />
families of patients at <strong>Gillette</strong> <strong>Children</strong>’s <strong>Specialty</strong><br />
<strong>Healthcare</strong>, a regional health center for children,<br />
adolescents and young adults who have disabilities.<br />
Editorial Advisory Committee:<br />
Laurie Porter, Coordinator, Family Resource Center<br />
Adrienne Barnwell, Ph.D., Psychologist<br />
Deetta Barnhardt, Social Worker<br />
Marketing Communications Staff:<br />
Lonnie Bell, Editor/Writer<br />
Marilynn Reid, Graphic Designer<br />
Anna Bittner, Photographer<br />
Lynne Kuechle, Writer<br />
Angela Lindell, Writer<br />
Beverly Smith-Patterson, Writer<br />
To join our editorial advisory committee,<br />
please call Lonnie Bell at 651-229-1772.<br />
You don’t want to<br />
receive Family Focus?<br />
To remove your name<br />
from our list —<br />
Call 651-229-1721<br />
Just<br />
ASK<br />
WE LIKE<br />
TO HELP<br />
200 University Avenue East<br />
Saint Paul, Minnesota 55101<br />
www.gillettechildrens.org<br />
Lynn Simons<br />
Scheduling Manager<br />
?<br />
ASK ASK US US! US US!<br />
QUESTION Coming to St. Paul isn’t always easy for my family, and it’s<br />
difficult to park my extended van in the hospital ramp. Do you have any<br />
suggestions?<br />
ANSWER If you live in or near the south or southwest metro area, you<br />
might consider scheduling appointments at the Burnsville or Minnetonka<br />
Clinic, where a team of health-care professionals offers specialty outpatient<br />
services five days a week. Both clinics are conveniently located and there’s<br />
ample free, surface-lot parking. In addition, we offer a wide range of services,<br />
including assistive technology, casting, radiography, rehabilitation therapy<br />
and social work. At Burnsville, we also offer specialized services for children<br />
and teens with cerebral palsy and a sleep clinic (see story on page 6).<br />
To make appointments, call Scheduling at 651-290-8707 or 800-719-4040<br />
(toll-free).<br />
Nonprofit<br />
Organization<br />
U.S. Postage<br />
P A I D<br />
Waconia, MN<br />
Permit No. 65