#LittleWarriorStrong Stories | Vol I

1 | Little Warrior 

LITTLE WARRIOR 

DEcember 2016 

#LittleWarriorStrong Stories | Vol 1 

INSPIRED BY WARRIORS - FOR WARRIORS

Little Warrior | 2 


Every single day, 43 precious 

children are diagnosed with 

cancer, at an average age of 

just six years old. 

The following pages contain real stories of some of these incredible children as told 

by their loved ones. Stories of great joy from a healing, extreme grief from a loss, and 

incredible inspiration from a continued fight. These children are precious, adored and 

so loved. At just a few years, months, and even weeks old, these children face battles 

every single day that many of us will never have to face even one time in our adult 

lives. They are #LittleWarriorStrong. 

As you read these stories, I encourage you to pray for these little ones. Pray for 

their comfort, their strength and their health. Pray for their doctors, their nurses and 

their caretakers. And even more, pray for their incredible parents, siblings and family 

members who are bodly walking this journey with them, day in and day out. 

Dedicated to: 

Little Warriors all over the world 

who inspire us everyday with their 

strength, courage and joy. 

I have no doubt that after reading just a few of these stories, your heart will be 

forever impacted. And when it is, take action. Write a note on the support page 

of a specific child that tugged at your heart (listed below each child’s story), make 

a donation to the Little Warrior mission or another organization that supports 

Pediatric Cancer, or simply spread awareness by sharing this magazine with those 

you know. 

tanya Rodriques 

FOUNDER



LUKE 

Age 2.5 | T-Cell Acute Lymphoblastic Leukemia 

Little Warrior Luke is 2.5 years old and was diagnosed with T-Cell 

Acute Lymphoblastic Leukemia on January 22, 2016, when he was 

just 18 months old. Currently, he is still in the “frontline” of hard 

chemotherapy treatments and still has about 4 months left. Following, 

Luke will continue to get maintenance chemo daily for the next 2.5 

years, until June 2019. 

Luke has had many complications along the way, with a blood clot, 

adrenal failure, and many neutropenic delays, but through it all he has 

maintained his happy, fun spirit! It has been and will be a long journey, 

but we his family is so thankful for all of the love and support from 

everyone! 

Follow Luke’s journey on Instagram at @lauren_modernmodesty



GRACIE 

Age 3 | Retinoblastoma 

Little Warror Gracie was diagnosed with retinoblastoma on May 

16, 2016. On June 1st, she had her eye removed, followed by six 

months of chemotherapy. As of November 9th, 2016 Gracie is 

cancer free! 

Gracie is a free spirit, wild child with a soul full of sunshine. From 

day one she said she was going to kick cancers butt and she did it! 

Her mom shares, “There were days that I just wanted to cry, and 

she (Gracie) would look at me with her beautiful smile and help 

me get through the tough days!” 

Follow Gracie’s journey on Facebook at 

facebook.com/graciesfightagainstretinoblastoma


AVA 

Age 2 | Medullablastoma 


OLIVIA 

Age 7 | Stage 2 Medullablastoma



LIBBY 

Age 3 | Langerhan’s Cell Hysticosis 

Little Warrior Libby was diagnosed with Langerhan’s Cell 

Hysticosis on December 4th, 2015. She is currently in treatment 

which includes chemotherapy, steroids, antibiotics and scans every 

three months. 

Libby just turned three and is a typical little girl! She loves to 

play dolls and dance, and loves Mickey Mouse. She just recently 

returned from her Make-A-Wish trip to Disney world! She is a 

true Little Warrior in every sense of the word!



NOAH 

Age 6 | Stage 4 Alveolar Rhabdomyosarcoma 

Little Warrior Noah was diagnosed with Stage 4 Alveolar 

Rhabdomyosarcoma in July 2015. His treatment was completed 

at Lurie Children’s Hospital in Chicago, IL and included a 54 

week protocol consisting of 20 rounds of chemotherapy and 32 

radiation treatments. It was grueling but he made it through and 

is now two months cancer-free! 

Noah loves science experiments, dogs and riding his dirt bike.



JULIANA 

Age 4 | Wilms Tumor Stage I 

Little Warrior Juliane was diagnosed with Wilms Tumor Stage 

1 right after her third birthday in November of 2015. It was at 

her three year wellness checkup where they found a mass in her 

stomach. Juliana went through 13 Rounds of chemotherapy and 

had her left kidney and tumor removed at CHLA. She did amazing 

and fought like a “ninja turtle”! She has had one clear scan since 

her port was removed and will receive reoccuring scans every 

three months for five years. 

She adores her big brother Gavin and all things boy, especially the 

Ninja Turtles. Juliana’s mom shares, “Juliana was our rainbow baby 

and is definitely a little warrior and our hero”.

LIZZIE 


AYLA 


Age 3 | Optic Pathway Glioma



MASON 

Age 3 | Stage 4 Rhabdomyosarcoma 

Little Warrior Mason was diagnosed with Stage 4 

Rhabdomyosarcoma in 2013. After a year of chemotherapy, 

combined with high dose radiation, he was in remission for 

11 months. He relapsed and continued a new combination 

of chemotherapy for an additional nine months. 

Thankfully, Mason’s MRI results have all been stable since his 

last treatment in July.!



BLAKE 

IN LOVING MEMORY 

Age 13 months | Acute Myeloid Leukemia 

Little Warrior Blake was diagnosed with AML (acute myeloid 

leukemia) at six months old. For seven months Blake and her 

family lived in the hospital as she endured intense chemotherapy 

rounds, radiation and a bone marrow transplant. Their family of 

three finally moved home after receiving the devastating news 

that Blake had relapsed. They spent the summer treasuring their 

beloved daughter and showering her with all the love in their 

breaking hearts. On August 15, 2016 Blake went to heaven. 

Blakes parents share, “We are so proud of our warrior girl and 

feel blessed to be her parents. Throughout her challenges and 

triumphs, she always smiled and spent each day discovering 

and learning. Blake gave her love freely and found joy in simple 

moments. She amazed us with her courage and resilience, and 

taught us a profound love that can only be felt between a parent 

and child. We will hold her dearly in our hearts until the sweet 

day we see her again.”



PAISLEE 

Age 5 | Juvenile Pilocytic Astrocytoma Hypothalamus 

HUDSON 

Age 4 | Metastatic Medulloblastoma



JUDE 

Age 4 | Leukemia 

Little Warrior Jude has been bravely battling Leukemia since 

he was just 18 months old. He has relapsed three times, had 

a bone marrow transplant and participated in two CAR T-cell 

immunotherapy trials. If this had happened more than two to 

three years ago, he would not be alive today, as the therapies 

that have saved his life and gotten him into remission were just 

developed in the past couple of years. 

Jude is positive, funny and brave and almost always has a smile or 

laugh. He likes to call himself a “gamer” and loves playing video 

games. 

Follow Jude’s journey at caringbridge.org/visit/judeanderson



ELLIE 

Age 7 Months | Neuroblastoma 

Little Warrior Ellie was diagnosed with Stage 3 Neuroblastoma 

at only five weeks old. She began treatment at St. Jude just 

one day after diagnosis and received a total of eight rounds of 

chemotherapy. The tumor was massive in comparison to her tiny 

body and was compressing her spinal cord. 

When she was around two months old, she completely lost the 

ability to move her lower extremities. Her doctors and nurses 

believed that she would never move her legs again. Ellie received 

15 emergency proton radiation treatments with the hopes to 

quickly reduce the severe spinal compression. 

Ellie is now seven months old and recent scans showed no 

evidence of disease! She can now move her legs and her 

neurologist has no doubt that she will walk. Throughout all of 

her treatment, Ellie was her normal, happy self and brought joy 

to everyone around her. She loves Elmo, her kitty Phyllis, eating, 

being outside, and Adele. 

Follow Ellie’s journey on Facebook at facebook.com/cheersforellie


EASTYN 

Retinoblastoma 


TAYLOR 

Age 6 | High Risk T-Cell ALL



ELLIE 

Age 3 | Neuroblastoma 

Little Warrior Ellie was diagnosed at 10 months old, with what was thought to be 

Stage 2 Neuroblastoma. It came as a complete shock, because she was so healthy 

and happy! After Ellie’s tumor was removed at 10 months of age, Ellie had scans 

periodically over the next three years. Ellie’s parents were reassured that she had a 

95% chance of never needing further treatment. 

Shortly before Ellie’s fourth birthday an abnormality was discovered during her 

routine scans again, and again, they we were reassured that it wasn’t cancer. 

But Ellie’s mom followed her instincts as a mother, and sure enough, it was 

Neuroblastoma. They also made the startling discovery that Ellie had stage IV cancer 

as an infant, upon further review, and had just gone three years with no treatment 

while it was left to metastasize. Because Ellie was now four and not 10 months 

old, Ellie was suddenly looking at a 50% chance of survival and some of the most 

aggressive treatment there is for pediatric cancer. 

In June of 2015, Ellie had just turned four and began treatment for Neuroblastoma. 

To date, she has completed eigh cycles of chemotherapy, eight weeks of proton 

radiation, six cycles of antibody therapy, and five of seven vaccine shots as part of 

a clinical trial. And somehow, has made 17 trips to New York for treatment within 

the past year! And the best part of all of this is that she is thriving. You would never 

know the extensive amount of therapy she’s had. 

“We always remain cautiously optimistic, knowing the relapse rate hovers at 50%. 

But we do our very best to live each day to the fullest and consider ourselves very 

fortunate that we still have a battle to fight. Ellie has given us a new purpose/ 

direction in life. There are very few positive things that come from being told 

your child has cancer, and having to come to terms with the very real possibility 

of planning their funeral. Your mind goes to some very dark, scary places. But if 

there’s one thing I’m grateful for, it’s being able to fully appreciate and love the 

smallest of things with our children,” shares Ellie’s mom. 

Follow Ellie’s journey on Facebook at facebook.com/elliesplace



GABE 

Age 7 | Acute Lymphoblastic Leukemia 

Little Warrior Gabe was diagnosed with Acute Lymphoblastic 

Leukemia on December 22, 2015 and was admitted to the hospital 

to begin treatment. That Christmas, Gabe’s family spent Christmas 

in the hospital, but not just because of his treatment. On December 

24th 2015, his baby sister decided that she wanted to join the 

craziness and made her grand entrance into the world. Additionally, 

his little brother Fabian had to see the doctor that day too for a 

double ear infection. 

Treatment for Gabe started and went well. Once Christmas break 

was over, Gabe was able to go back to school, where he learned that 

his health/fitness teacher had also battled ALL 23 years earlier. The 

two have become close and Gabe now affectionately calls him, Uncle 

Matt instead of Mr. Browne. Even their families have become friends. 

Gabe shares that Uncle Matt “has helped me find ways to cope with 

the many difficult times. He’s been so supportive of me and he gives 

me hope. When I look at Uncle Matt I know I’m going to be able to 

beat this cancer just like he did because we are warriors!”



AMELIA 

Age 6 | Stage IV High Risk Neuroblastoma 

Little Warrior Amelia is a six year old girl fighting Stage IV Neuroblastoma. In 

October of 2014, Amelia was having lower left quadrant pain, misdiagnosed 

with pneumonia and treated with antibiotics. When the pain came back in 

January, they confirmed and removed a Glioneuroblastoma tumor that was 

resting on her spine and aorta. After being told that there was a 5% chance 

of her cancer returning, her six month MRI not only showed that the tumor 

had regrown, but also had spread to her spine, pelvis, shoulder and skull. She 

was then diagnosed with High Risk Stage IV Neuroblastoma. 

Amelia has been through five rounds of chemotherapy including several 

different chemo drugs, a stem cell harvest, two surgeries, admissions due to 

neutropenia, immunotherapy with Ironotecan and Temodar, a Bone Marrow 

Transplant, twelve rounds of radiation and has just completed six months of 

intense Immunotherapy. 

In addition, her central line has prevented her from the privilege of getting 

wet for more than a year, she’s been sedated numerous times for scans 

and procedures, she’s received a number of blood and platelet transfusions, 

weekly bandage changes, more shots and meds that any little girl should ever 

receive, vomiting, diarrhea, thrush, anxiety and pain. 

However, throughout this entire difficult journey, Amelia has maintained her 

strength and determination. She smiles every day, loves to play with her 

brothers, help and give things to other fellow cancer warriors and worries 

more about others than herself. She enjoys fashion and loves to learn, sing 

and dance. She also loves music and adores Jason Mraz. In fact, she listens to 

Mraz every day, as his music has truly played an important part in her healing 

process. Amelia wants to make a difference and is an inspiration! 

Follow Amelia’s journey on Facebook at facebook.com/ameliathebrave



LYLA



AEDEN 

Age 6 | Stage 3 Cancer Wilms Tumor 

Little Warrior Aaden was an energetic three year old who enjoyed playing 

with his two older brothers. On July 2nd, 2013, at his three year check 

up, his pediatrician noticed a lump on his right kidney. An ultra sound was 

ordered immediately and confirmed there was, in fact, a large mass. He was 

rushed to American Family Children’s Hospital in Madison. Shortly after 

he was admitted, there was an entire team of doctors in his room. He was 

carted off to have a CT Scan and he was diagnosed at that time with a 

Stage 3 Cancer Wilms Tumor. His amazing team of doctors scheduled him 

for surgery the following morning to remove the entire kidney and implant a 

port in his chest to receive chemotherapy. 

The surgery went according to plan, but unfortunately while removing his 

right kidney it was discovered to have ruptured. This drastically changed his 

treatment plan. Which was originally thought to have been 7 treatments 

of radiation and 25 weeks of chemo, now was to include 11 radiation 

treatments as well as 30 weeks of chemo. This was the most aggressive of 

the two plans discussed prior to surgery. 

Aeden spent the next six days in the hospital recovering from surgery. 

His family felt a strong sense of relief but the hardest part was yet to 

come. Treatment was set to begin right away where he endured 11 days 

of radiation treatments with chemotherapy simultaneously. Throughout his 

treatment, Aaden endured 10 hospitalizations due to high fever, 14 blood 

transfusions, 15 platelet transfusions, and daily Neupogen injections to keep 

his white blood cells at the proper level. 

Through all the fight and battle Aeden continued to find reasons to smile 

daily! He continues to show nothing but strength!



ETHAN 

Age 7 | Rhabdomyosarcoma 

Little Warrior Ethan was diagnosed with Rhabdomyosarcoma at 

the age of six. He immediately started chemotherapy three times 

a week and daily radiation therapy for one year. He has lost total 

vision of his right eye and has had three eye surgeries to try 

and fix his vision, with no luck. It wasn’t until the 8th month of 

radiation therapy that his vision started to slowly come back. He 

now uses eyeglasses to help his vision improve. 

Ethan has had numerous procedures and complications and 

more hospital stays that one can imagine. Although he is still 

encountering side effects from the chemo and radiation, he is 

currently going on his second month in remisión and hoping to 

stay healthy! 

Ethan has returned to school and loves it! He loves to make 

friends and helping others as much as possible.



DARBEE 


In the fall of 2016, Little Warrior Darbee was taken to her local 

doctor because of a glow in her left eye. The doctor knew their was 

something in her eye but wasn’t quite sure what it was. Darbee was 

referred to an eye doctor who was currently out of town, so instead 

Darbee’s mom contacted her uncle, who informed her that this was 

an urgent matter. Two days later Darbee was seen by Dr. Hoffman 

at Primary Children’s Hospital in Salt Lake City, Utah where she was 

diagnosed with Retinoblastoma. 

The next couple of days were full of tests, doctor’s appointments and 

lots of traveling. It was discovered that Darbee was was stage D, with 

no sight in her left eye. The tumor was starting to send seeds into the 

eye and it was 1mm away from the optic nerve. 

On November 16th, Darbee had her left eye and optic nerve removed. 

After further testing they have diagnosed her cancer free! 

She was lucky and did not have to go through chemo and radiation. 

She will have to have cancer screening every 6 months and fittings for 

her prosthetic every 6 months until she stops growing, then it will just 

be every year. Darbee’s mom shares, “We are extremely lucky and, as it 

is her one year anniversary, we are feeling gratitude for everyone that 

helped during this last year.”



KAELYN 

Age 20 months | Choroid Plexus Carcinoma 

Little Warrior Kaelyn was diagnosed with a brain tumor, Choroid 

Plexus Carcinoma, at just four months old. The tumor was surgically 

removed during an 11 hour surgery. Kaelyn received 6 months of 

chemotherapy at St. Jude Children’s Research Hospital in Memphis, TN. 

Kaelyn is now nine months post-treatment and currently NED (no 

evidence of disease)! She currently has an MRI and lumbar puncture 

every three months to monitor her status. 

Now 20 months old, Kaelyn took her first steps a few weeks ago, is 

working on talking, eating food by mouth, and just being a regular 

toddler! 

Follow Kaelyn’s journey on Facebook at facebook.com/prayersforkaelynhazelwood


NOLAN 


Age 5 | Bilateral Retinoblastoma 

CELIA 

Age 1 | Stage 4 Retinoblastoma



ABBIGAIL 

Age 19 Months | AML Leukemia 

Little Warrior Abbigail was diagnosed with AML Leukemia on 

September 1, 2015, at only four months old. She endured four 

month-long chemo treatments (including recovery) and was in 

remission until May 4, 2016. 

She endured two additional month-long treatments and two trips 

to the ICU before getting a bone marrow transplant from her 

older brother, Parker, in August of 2016. 

Follow Abbigail’s journey on Facebook at facebook.com/abbigailsedanisfight



ALEXANDER 

Age 5 | Stage 3 Anaplastic Large Cell Lymphoma 

Little Warrior Alexander “Z” was diagnosed with Stage 3 Anaplastic 

Large Cell Lymphoma at only three years old. Unfortunately, Z was 

misdiagnosed for seven months, which resulted in him getting put on 

life-support for his biopsy due to his airway being compressed by a 

tumor - the cancer also devoured his T2 vertebra. He was in a lot of 

pain and the tumor was days away from closing his airway. 

During his incredible fight, Z endured: 78 pokes, 65 office visits, 52 

nights in the hospital, 39 scans - MRI, CT, Ultrasound, X-ray, PET, 35 

days of continuous fever, 35 days of inpatient chemo, 21 days+ of 

severe back pain and breathing problems, 8+ EKGs and Echos, 7 days 

in ICU, 7 sedations, 2 ER visits, 1 bronchoscopy, 1 surgery for port 

placement, 1 surgery for multiple biopsies,1 placement of chest tube 

for a collapsed lung, 1 spinal tap, 1 lumbar puncture and 1 ambulance 

ride... But today, the most important number of all… 4 months cancer 

free! 

Z is a strong little warrior, like so many of the sweet friends he has 

met along his journey! He loves to dance and play with his little 

brother, will be turning 5 in July and started Kindergarten in the Fall.



BEN 

Age 4 | Acute Lymphoblastic Leukemia (ALL) 

Little Warrior Ben was diagnosed on March 20, 2016 with 

standard risk Acute Lymphoblastic Leukemia (ALL). He just 

entered long-term maintenance and has been such a trooper, 

he has done remarkably well with treatment! He has been 

appropriately nicknamed “Brave Ben”! 

Ben loves race cars, is very smart and is starting to read. “We 

hope and pray for his forever remission and that he is able to live 

up to his full potential in life.” shares his mom. 

Follow Ben’s journey on Facebook at facebook.com/believeforben



BLAKE 

Age 2 | Hereditary Bilateral Retinoblastoma 

Little Warrior Blake was born on September 28, 2014. He was 

diagnosed with Hereditary Bilateral Retinoblastoma on January 8, 

2015 at just two years old. 

Blake had is left eye enucleated on October 9, 2015 and received 

his ocular prosthesis in January of 2016. He is currently still 

having monthly eye Exams Under Anesthesia.



KATE 


Little Warrior Kate was diagnosed with Neuroblastoma at just 

seven months old, after months of seeking answers as to why she 

was not eating. It was discovered that a tumor in her abdomen 

and cancer in her bone marrow was the cause. 

Currently, at two years old, recent scans show good results for 

Kate. While her tumor is still present, there has been no change in 

its size or a display of active cells. Kate’s doctor is confident that 

she can be declared cancer free! 

Throughout it all, Kate has kept a fighting spirit and refuses to be 

slowed down. Kates mom writes, “We are so thankful for Kate’s 

health today. She is a strong, spunky, sassy, loving little girl!”


59 | Little Warrior



EMMY 


December 18, 2012 - March 2, 2016 

Little Warrior Emmy was diagnosed with NUT Midline Carcinoma 

in 2015. Less than one year later, Emmy’s parents were given the 

devastating news that there was nothing more that they could 

do for their sweet girl. On March 2, 2016, Emmy passed away 

peacefully her moms arms. 

“Emmy was full of spunk. Had her mamas attitude to the t. She 

was perfect in so many ways. I will forever miss my baby girl. 

But I’m relieved she isn’t in anymore pain... The nasty C may 

have taken [Emmy] away but her spirit will live on forever in our 

hearts. There will never be a day that I don’t think about her,” 

writes Emmy’s mom. 

Emmy was a beautiful, bright-eyed tomboy. She was the middle 

of three children and loved Mickey Mouse and Strawberry 

Shortcake. She loved snuggling up with her blankets (as you see 

here, with one of her collection of 10!) and the color purple. 

Emmy is SO loved, and one of the very inspirations behind the 

Little Warrior shirt. She will always be a little warrior, but more 

importantly, a beautiful, precious little girl, who at just three years 

old, captured the hearts of many.



WYATT 

Age 2 | Rhabdomyosarcoma 

Little Warrior Wyatt is two years old and has been fighting 

Rhabdomyosarcoma for over a year. During the course of his 

treatment, he had to have half of his leg muscle removed, but 

even then, this amazing little man has refused to slow down! His 

momma shares that, although he is on the last defense line of 

chemo, they are almost done with treatment!



ADDIE 


LLittle Warrior Addie was diagnosed with Pre-B Cell ALL in 

March of 2016 at three years old. She has been so brave through 

all of her treatments and has now made it through the more 

intense chemo and recently started maintenaince. She will be in 

treatment for Leukemia until May 2018. 

Addie lives in Alabama with her twin sister Lainey and big sister 

Lyla, who is six. She loves animals, baby dolls, riding her scooter, 

music and dancing, coloring and crafts. She’s a little comedian 

around the house and loves to make people laugh. Addie also 

goes by the nickname toughie. She’s very boisterous and hard 

headed but also extremely loving! 

Addie’s mom shares, “We have been very blessed throughout this 

journey. We have met so many wonderful people and our lives 

will be changed forever. Thank you for the support! Eight months 

down... two years to go!” 

Follow Addie’s journey on Facebook at facebook.com/addieshope


HAYES 



March 12, 2015 - December 3, 2016 

BEAUX 

Age 2 | Stage 4 High Risk Neuroblastoma



CARTER 


Little Warrior Carter, a.k.a Super Carter, was diagnosed with Acute 

Lymphoblastic Leukemia at the young age of four. 

On September 25, 2015, Carter had been fighting a week-long fever 

and started to become non-responsive. He was rushed to the local 

ER, where he was immediately taken for blood work. The blood work 

showed that his red blood cells were so low that he risked falling into 

a coma and he was sent by ambulance to Helen Devos Children’s 

Hospital in Grand Rapids, MI. 

Over the next two days, he received several blood transfusions to get 

his body healthy enough for a bone marrow aspiration. On September 

27, his bone marrow showed that it was full of 85% Leukemia cells. He 

received his first chemo that very same day and underwent surgery to 

have a port placed in his chest. He will have a total of three years and 

four months of chemotherapy. 

Throughout all of the “pokies”, sedations, and pills, Carter is always 

smiling! He takes it all in stride and loves his doctors and nurses. When 

he grows up, he’d like to be a police officer and a pediatric oncology 

nurse. He says he wants to keep people safe, but also give kids their 

chemo so that he can tell them how to not be afraid. He loves police 

officers, superheroes, and making people laugh. 

Follow Carter’s journey at www.supercarter.com



BEN 


Little Warrior Ben was diagnosed with Leukemia when he was 

just three years old and has been in treatment ever since. He is 

one of five brothers and amazes those around him everyday. If all 

goes according to plan, he is expected to finish treatment in 2017.


HANNAH 

Age 2 | AML Leukemia 


ELLIE 

Age 5 | Non-Hodgkin Lymphoma



ELIJAH 

Age 5 | Stage 4 Neuroblastoma 

Little Warrior Elijah is five years old and bravely battling Stage 

4 Neuroblastoma. In December of 2015, he was declared in 

remission, but just three short months later, this March, received 

the news that the cancer had returned. 

After more treatment, Elijah’s family again received a second 

relapse report this December (2016). He recently had surgery, 

in which the doctors believe all the cancer was removed. He will 

then move onto chemotherapy and radiation with the hopes that 

clear scans will follow! 

Elijah is very funny and quick witted. All the nurses love him and 

he is known for his amazing smile and for being a good patient. 

He loves to play his xbox and is a zombie shooting pro. He also 

loves Dinosaurs and was lucky enough to meet Chris Pratt from 

Jurassic World at the Ronald McDonald House during one of our 

stays. 

Elijah also enjoys wrestling with daddy and his brother, and playing 

Minecraft with his “sissy”.



GRAYSON 


Little Warrior Grayson was diagnosed with Bilateral 

Retinoblastoma, a rare form of eye cancer, when he was just two 

months old. 

Recently, Grayson received positive reports that he is all clear in 

both eyes! His doctor also shared how impressed they are with 

how well he is doing considering the amount of treatment he has 

gone through. 

As Grayson’s mom writes, “Just goes to show what strength, 

courage, determination, and faith will get you. We are so beyond 

happy with our little super hero.” 

Grayson is a happy, sweet little boy who loves his big sister Lyla, 

his puppy dog, Trooper, and keeping his mom and dad very busy!



ALAYNA 


Little Warrior Alayna was diagnosed with Leukemia in January of 2016. After 

noticing some bruising on Alayna, her mom old, took her to the doctor and found 

out within 10 minutes that their sweet, beautiful, innocent little girl had Leukemia. 

Alayna’s mom shares that they try to find joy in even the worst of situations. Maybe 

it’s a dance party. Maybe it’s a good cup of coffee or a cute pair of comfy legging. 

Maybe it’s just a laugh in the middle of our hot mess. No matter how big or small, 

they choose joy. 

In the last nine months Alayna and her family have spent over 100 days in the 

hospital and have been to clinic more times than not. Chemo, fevers, medicine, and 

infection have all become a part of who they are, and a part their story. Alayna is 

currently in remission, but treatment for Leukemia has to continue on for two and a 

half years. 

“I always like to say I would have never chosen cancer for us or for anyone, but 

I also wouldn’t change it for the world. It’s made us stronger and more thankful. 

Perspective sometimes slaps you in the face. And on those days when I want to 

complain and think that my life is hard, the Lord reminds me that this is only my 

journey and not anyone else’s, and that there’s so many other people that are 

going through so many worse things than we are. They always say that the Lord 

won’t give you anything you can’t handle, but I don’t think that’s true. I think the 

Lord chooses to gives you what you can’t handle so that your only real option is to 

depend on Him. Our journey is our journey, and we’re learning from it even on the 

hardest of days, but I think the real reason that we have joy in the middle of this 

crazy storm is that we have a Hope that is far greater than cancer, death, or this 

world. No matter what happens, we know Laney will be okay and that the Lord 

will show up, and show off in the situation, and for that reason we just choose joy,” 

shares Alayna’s mom. 

Laney Bug’s favorite things are all things Disney, Baby Dolls, and any kind of candy! 

Follow Alayna’s journey on Facebook at Beautifully Complete: Prayers for Alayna Hope



BENTLEY 

Age 3 | Langerhans Cell Histiocytosis 

Little Warrior Bentley’s journey started a year ago with an ear 

infection that didnt seem to be getting better. Four weekly visits 

to the doctor finally resulted in Bentley getting a MRI, where two 

tumors were discovered - one at the base of his neck and the 

second on his back bone, spreading to two of his ribs. Bentley 

spent a week in the hospital doing tests, labs, biopsy and a 

hickmen placement. Finally, the day before Thanksgiving, Bentley 

was diagnosed with Langerhans Cell Histiocytosis. 

His journey has been filled with ups and downs, from neutropenic 

fevers, dehydration, RSV, central line infection & replacements to 

MRI’s, chemo burn on the inside and so on. He is still fighting his 

fight and through it all he does it with his heartwarming smile. 

Bentley is the youngest of five children, loves to sing along to 

songs in the car, going for walks with his oldest sister and any and 

all types of cats. 

Follow Bentley’s journey on Facebook at Bentley’s Battle with Langerhans Cell Histiocytosis (L.C.H.)



GEMMA 

Age 4 | Glioma Astrocytoma 

Little Warrior Gemma was diagnosed two and a half years ago with 

an inoperable Glioma Astrocytoma tumor. Over the course of those 

years she has received, 1 biopsy surgery, which took away her ability to 

walk and left her left side incredibly weak, 1 year of weekly chemo, 9 

months of bi-weekly/monthly Avastin, 9 months of watch and wait, 

2 eye surgeries and countless scans. 

However, recently Gemma had her port removed and was able to ring 

the bell for the end of treatment! 

Gemma’s mom writes, “It’s the end... at least for now, and that is good 

enough for us. God has been with us every single step of this journey. 

Through the highs and the lows... every single step. If you ever wonder 

how you would do when you are faced with a situation that just seems 

too tough...just look up and know how much God loves you. 

HE will get you through it all. We are so grateful for Gemma’s 

progress and her strength and we are looking forward to a happy 

and healthy 2017.” 

Gemma loves firetrucks, garbage trucks and the color red and is her 

family’s little warrior! 

Follow Gemma’s journey on Facebook at facebook.com/gogemmago


ANDREW 

Age 3 | Rhabdomyosarcoma Stage IV 


TAYLOR 

Age 5 | Neuroblastoma



JAYDEN 


Little Warrior Jayden was diagnosed with Retinoblastoma, a rare 

eye cancer, at just 15 months old. He went through six rounds 

of chemotherapy, had his right eye removed and is rocking his 

prosthetic eye or as his family calls it, his “special eye”. He wears 

glasses to protect his good eye. 

He has been stable for 33 months and goes under anesthesia for 

eye exams and scans every six months to make sure the cancer 

is still gone. He has been brave through it all and continues to 

amaze those around him! 

Jayden loves to ride his bike, go hiking, play cars and do Legos. He 

also loves to do art projects and explore. 

In this photo, Jayden is wearing his shirt at the ocularist (eye 

maker) and is waiting for them to finish cleaning and polishing 

it. Jayden’s mom shares, “I think he is so brave and tough in this 

photo. He is beautiful with or without two eyes.”



ELIJAH 

Age | Retinoblastoma 

Little Warrior Elijah was diagnosed with Retinoblastoma at just 

seven weeks old. Due to the extent of the disease, his right eye 

was removed. 12 weeks later, tumors were discovered in his 

remaining eye. Since that time, Elijah and his family have been 

traveling from California to New York every 4-6 weeks for his 

care. They are still fighting to save his vision in his remaining eye. 

Elijah is the youngest of seven children who adore him and pray 

fervently for his healing and that he will retain his sight.



ISLA 

Age 3 | Stage 4 High Risk Neuroblastoma 

Little Warrior Isla is a fierce, three year old fighting Stage 4 High 

Risk Neuroblastoma. In Febraury of 2016, Isla and her family 

received the wonderful news that her scans were clear! However, 

due to the high relapse rate of this type of Neuroblastoma, Isla 

has continued treatment in order to prevent relapse. She has had 

several scans since and all remain clear! 

She loves dancing, Brussels sprouts, christmas carols, cooking, her 

big brother, Elliot, and playing Mommy with her dolls. She aspires 

to be a doctor, a stand up comedian and “an old lady”!



ISABEL 

Age 3 | Spinal Cord Tumor 

Little Warrior Isabel, also know as Izzy Warrior Princess, was 

diagnosed with a spinal cord tumor shortly before her first 

birthday. Because the tumor could not be safely removed, Isabel 

underwent 42 rounds of chemo over 14 months. 

Recently, a year after her life-saving transfusion and 10 months 

since her last chemo infusion, Isabel had her regular check up 

at clinic. Her oncologist (and everyone) is so pleased with how 

she’s doing and said the tumor looks stable! She will continue to 

be monitored and have scans and just had her first chemo-free 

Christmas! 

Isabel is a fighter and works hard everyday to get better. She 

loves music and wants to play hockey when she is able! 

Follow Isabel’s journey on Facebook at Izzy Warrior Princess


SADIE 


ELIANA 

Pre B-Cell ALL



TALIA & ANTHONY 

Age 3 & 4 | Wilms Tumor & Ganglio Neuroblastoma 

Little Warrior duo Talia and Anthony Pisano were diagnosed 

with unique cancers at just 11 months and two years old. Talia 

was diagnosed with Wilms cancer in 2014 and just 7 months 

later, right before his third birthday, Anthony was diagnosed with 

Ganglio Neuroblastoma. However, we are excited to share that 

they both are currently off treatment and have been cancer free 

for the entire year of 2016! 

They continue to havea frequent scans, and while their treatments 

have caused long-term side effects and complications, Talia and 

Anthony are both happy and doing well! 

Anthony loves Batman and Talia loves Princesses. They both love 

to play in the backyard, play with play dough and spend lots of 

time together. They argue like close siblings do, but they love 

each other! Talia and Anthony also have an older brother names 

Vincent, who is 10 years old.



MASON 


On July 8, 2015, Little Warrior Mason was diagnosed with Acute 

Lymphoblastic Leukemia (ALL), a type of cancer in which the 

bone marrow makes too many immature white blood cells. He 

began his first round of treatment thereafter, in which it was 

found that he was extremely sensitive to, causing him to have 

high blood sugar, high blood pressure, and temporarily unable 

to produce insulin on his own. Mason was also diagnosed with 

Aspergillus - a serious fungal infection in his lungs, kidneys, head 

and spine. 

Mason lives in Hawaii and is a tudent at St. Michael’s Preschool 

in Waialua. He enjoys the beach, fishing and all things dinosaurs. 

When he and his big sister Taylor aren’t catching fish in their spare 

time, he is always having a good time with family and friends. 

Through it all, hasn’t lost this contagious smile!



HAILEY 

Age 2 | Medulloblastoma 

Little Warrior Hailey was diagnosed with Medulloblastoma just 

two days after her first birthday. The tumor in her brain was 

removed within days and she started chemotherapy. In April of 

2016, Hailey began her final round of chemo, followed by a stem 

stell transplant. 

Her most recent MRI results were stable with No Evidence of 

Disease! She is 15 months cancer free. 

Hailey is so brave, loves Toy Story and bullying her big sister (as 

any good little sister should)!


ACE 

Age 1 | Ewing’s Sarcoma 


JAECEE 

AGE 4 | Burkitt’s Lymphoma Stage 3



TYLER 

Age 6 | Stage IV Neuroblastoma 

Little Warrior Tyler was diagnosed with Stage IV Neuroblastoma 

in August of 2015, at the age of five. His only symptoms were loss 

of appetite and stomach pains for two weeks, which eventually 

led to an ER visit because the pain was too great to sleep. 

Ultrasounds were conducted and showed a 13cm tumor in his 

abdomen. Further scans also showed a 6cm tumor in his chest. 

Tyler’s treatments took place at Kaiser Santa Clara in California, 

while his surgeries were at Memorial Sloan Kettering in New York 

City. Three surgeries, eight rounds of chemo, twelve sessions of 

radiation, five rounds of immunotherapy and 15 months later, 

Tyler is in remission! 

Since 50% of Neuroblastoma kids relapse the first year, Tyler will 

move on to a clinical trial of Neuroblastoma vaccine at Memorial 

Sloan Kettering to try to keep the monster away.



SPENCER 

Age 18 Months | Bilateral Retinoblastoma 

Little Warrior Spencer was diagnosed with Bilateral 

Retinoblastoma in November of 2015, at just six months old. He 

is currently 18 months old and travels from Kansas to Memorial 

Sloan Kettering Cancer Center in New York City every four to six 

weeks for treatment. 

Spencer went through three rounds of intra-arterial 

chemotherapy and one round of laser. The tumor was declared 

calcified/dead. However, in May of 2016, two new tumors were 

discovered, this time in his left eye. Because of their size, laser 

treatment was done. 

Spencer is still fighting. He recently had growth on one of the 

tumors in his left eye, in which was followed by more laser work. 

However, at his last exam, the results showed no new growth! 

Follow Spencer’s journey on Facebook at facebook.com/eyefightforspencer



ASHER 


When Little Warrior Asher was just four months old, his mom 

noticed the indicative Retinoblastoma “glow” in his right eye while 

taking a photo with a flash on her phone. Being a Registered Nurse 

herself, she knew right away that it was cancer. 

Asher is now two years old and has been bravely fighting 

Retinoblastoma ever since. Last year he completed 6 months of 

chemotherapy and was put under anesthesia 25 times for eye exams 

with laser therapy. 

Most recently, Asher’s scans have come back showing active growth. 

However, his parents are relieved and thankful that with laser 

treatments, they are keeping these recurrences at bay. As his mom 

writes, “Asher’s case of Retinoblastoma has been a stubborn little 

beast, but we are still confident that Asher will take this beast down!” 

Asher is fighting and happy! He loves cookies, trains, his big sisters, 

hopping on people’s back’s and yelling “Go!” and trying to ride his 

cats.



ZOË 

Age 2 | Atypical Teratoid Rhabdoid Tumor. 

Little Warrior Zoë is wo years old and battling a unique brain tumor. Her fight 

started when she was just 15 months old and her doctors spoke one word - cancer! 

At the time her family lived in Honolulu, Hawaii where her father was stationed 

with the US Army. Because Zoë was/is so young and her case so unique, her family 

requested to be moved closer to family and to be seen at a specialty children’s 

hospital - in the military this is called “compassion reassignment.” This was criticaly 

for them, as Zoë’s mom was well into her third pregnancy and expecting twin boys! 

“Not only was compassionate reassignment a blessing, so was the unit my husband 

was attached to. They have been more than understanding and willing to help 

us out in ways I didn’t even know were possibilities for us. Zoë’s father is able to 

be with her at the hospital while I am home with our other children. Having the 

flexibility and opportunity to be there for your sick child is a must, and I feel a 

huge part of this being available to us is due to Zoë’s father serving in the United 

States Army” shares Zoë’s mom. 

With their arrival at Vanderbilt Children’s Hospital in Tennessee, Zoë’s doctors 

literally worked around the clock on her very unique case. Her diagnosis has 

changed at least three times since September 2015. In October her tumor was 

diagnosed as a brain tumor: “ATRT” Atypical Teratoid Rhabdoid Tumor. 

Zoë underwent six rounds of chemotherapy where she was admitted to the 

hospital, and each round lasted two to three weeks. Zoë was also seen at St. Louis 

Children’s Hospital, were she underwent 26 radiation treatments called Proton 

Therapy. Even though Zoë will still be recovering and has check ups every three 

months for the first year, she has been officially declared in remission. 

“Zoë is a beautiful ray of sunshine in this dark storm and when we hear the words 

“‘cancer free’ the skies will clear and a perfect rainbow will appear showing us the 

promise for a better tomorrow,” shares Zoë’s mom. “Though Zoë be but little, she 

is fierce!“ 

Follow Zoë’s journey on Facebook at facebook.com/fightingforzoe


MATTHEW 



VINCENT 

Age 4 | High Risk ALL



MASON 

Age 3 | Pre B Acute Lymphoblastic Leukemia 

Little Warrior Mason was diagnosed with Pre B Acute 

Lymphoblastic Leukemia at age two on December 26, 2015. The 

first part of his treatment journey included several hospital stays 

and a few scary moments but otherwise he sailed right through. 

Currently, Mason struggles with some on and off walking issues 

associated with his chemotherapy and a few daily med side effects 

as well, but all-in-all is doing really well! He is now three years old 

and will be in treatment until March 2019. 

He loves his older brother and sister and doesn’t like to be apart 

from them! He loves all things dinosaur and sharks, Paw Patrol 

and PJ Mask! He is a boy through and through! 

Mason’s mom shares, “We are thankful for our family as well 

as our wonderful church family who have walked with us hand 

in hand through some of the most difficult and even easier 

moments! Our gracious Lord has shown us his love, peace and 

comfort throughout our journey and we can’t wait to see all he 

will do in and through Mason’s life!”



LIAM 


Little Warior Liam was diagnosed with Stage IV High Risk 

Neuroblastoma when he was 21 months old. Following diagnosis, 

he spent 8 months in and out of the hospital doing 5 rounds of 

chemotherapy, surgery, stem cell transplant, radiation, and one 

round of immunotherapy. 

In January of 2016, Liam and his family received wonderful news 

that he was declared NED. However, shortly after that summer, 

Liam relapsed. MRIs showed the tumors were back. This time in the 

base of his brain, right ear, and left ear. Neuroblastoma is incredibly 

hard to beat when it’s throughout the body. And, once it goes to 

the central nervous system it’s nearly impossible to beat. Liam 

passed away on October 8, 2016. 

Liam amazed all that followed his story. He had a contagious smile 

and handled all the tough treatments better than anyone could 

imagine. As Liam’s mom writes, “Liam is our light and was a light to 

so many and always let his light shine.”


MAVERICK 

Age 4 | Ewing’s Sarcoma 


GABBY 

Age 7 | Rhabdomyosarcoma Stage IV



SOFIA 


Little Warrior Sofia was diagnosed with Acute Lymphoblastic 

Leukemia in January of 2016 at the age of seven. 

In the months since, Sofia has continually astonished those 

around her with her courage and adaptability. Sofia’s mom shares, 

“Everyday I look at her and wonder how such a tiny little girl can 

possibly withstand all the endless appointments, needles, tests, 

chemos, medications and hospital stays without even complaining 

much at all. Our favorite quote that seems to sum up Sofia is 

‘Though she be but little, she is fierce.’” 

Sofia loves arts and crafts, has an impressive stuffed penguin 

collection and loves designing new outfits for her dolls. She enjoys 

playing with friends, watching movies, spending time with her 

family and hopes to be a fashion designer when she grows up.



REESE 

Age 7 | B Cell ALL Leukemia



BEN 


April 3, 2015 - May 12, 2016 

Little Warrior Ben was born on April 3, 2015 and was a cheerful, 

cuddly baby, the light of his parents lives. He loved playing with his 

two older sisters, Hannah and Rebecca, and they adored him right 

back. 

Ben was diagnosed with Stage IV Extrarenal Malignant Rhabdoid 

Tumor at 10 months old, and unfortunately passed away after just 

three and a half months of treatment, at 13 months 9 days old. 

Ben was never able to wear his Little Warrior shirt as he passed 

away before he was able to grow into it.



ALICE 

Age 4 | Stage IV High Risk Neuroblastoma 

Little Warrior Alice was diagnosed with Neuroblastoma one month after her third 

birthday. She went through the standard treatment: chemotherapy, surgery, stem 

cell transplant, proton radiation, immunotherapy and more proton radiation. Along 

the way, a spot was discovered on her skull that was missed on the previous scans. 

Immunotherapy took care of that spot and Alice was declared no evidence of 

disease in May 2015. 

Alice is currently enrolled in a clinical trial where she will take medication twice a 

day for two years in the hopes of preventing relapse. During Alice’s treatment, she 

has been treated at seven different hospitals for various stages of her treatment. 

She has been away from our home state for a total of six months and has spent 

over 190 days in the hospital. 

“The thing that inspires me is that through all of this, she makes the best of the 

situation. Through the worst parts of treatment, she never asked “why me” or 

complained. Yes, she would let us know when she hurt and yes she would cry and 

ask to not have her port accessed, but she never complained. We built tents in 

our room during periods of isolation, she’s led parades through the halls of the 

hospital, and gone on scavenger hunts around the floor. She’s also kept her sense 

of humor.’” shares Alice’s mom. 

If you ask Alice what it means to have cancer, she will tell you that it’s lots of 

doctors and hospitals and is super boring. She doesn’t talk about the pain. Alice and 

her mom were talking one day when out of the blue she asked if her best friend 

had cancer. Her mom told her no and asked why. She explained how that was good 

because she never wanted her friend to have cancer. 

Alice loves her baby dolls and she wants to be a mommy when she grows up. 

Follow Alice’s journey on Facebook at facebook.com/alicesavengers


129 | Little Warrior



ELLIS 

Age 17 months | Bilateral Retinoblastoma 

Little Warrior Ellis was diagnosed with Bilateral Retinoblastoma 

in September 2015 when he was just three and a half months 

old. After discovering a glow in Ellis’ eye, he was taken to an 

opthamologist and upon leaving the clinic, received the devestating 

call with his diagnosis and instructions to be at St. Jude on Sunday 

(just two days away) to beding treatment. 

Ellis completed six rounds of chemotherapy, laser therapy, 

countless EUA’s (exams under anesthesia) and, as of today, has 

had clear exams with no treatment needed for 20 weeks! He will 

continue to have exams every five to six weeks for a while and 

space them out as time goes on. 

Ellis has two older siblings a brother (Patton, six) and sister (Paige, 

five)who adore him and love him so, so much. As his mom shares, 

“He is such a strong boy, and amazes us every single day!”



LANDEN 

Age | Pre B Cell Acute Lymphoblastic Leukemia 

In August 2016 Little Warrior Landen went to the local 

emergency room for what the doctor’s were convinced was a 

case of appendicitis. After being transferred to Doernbecher’s 

Children’s hospital, Landen was diagnosed with Pre B Cell Acute 

Lymphoblastic Leukemia and began treatment immediately. 

Within the first few weeks of treatment Landen suffered 

compression fractures to the L1-L3 vertebrae of his spine and 

was put in a full back brace that he will continue to wear until 

spring 2017. Landen reached remission after 6 weeks of treatment 

and continues to fight every single day!



JONATHAN 

Retinoblastoma 

LANEY 


January 18, 2013 - November 29, 2016



HENRY 

Age 3 | B Cell ALL 

On Sunday, February 1, 2015 Little Warrior Henry began running a fever. After 

initially chalking it up to teething or maybe the flu, he was taken to his pediatrician 

where he tested positive for the flu. Henry’s doctor also noticed some bruising on 

him and decidid to run his blood, due to the nature of the bruising. 

Henry got medicine for the flu and returned home, but soon after received a call 

that his platelet count was low. They were told to go to University of Minnesota 

Children’s emergency room. After being sent home with the possibility that it may 

be a platelet disorder, it was discovered that there were some oddities in his results. 

Henry was admitted that day and through a series of further tests, was officially 

diagnosed with B Cell ALL on February 4th, 2015. 

Since, Henry has been in surgery to place a port to deliver 

medications more effectively. He has begun chemo and numerous tests and is on 

the road to recovery. 

There have been many ups and downs since Henry’s diagnosis. Some ER visits, colds, 

ear infections, low counts, etc. A normal routine with someone who has cancer. 

Henry is a very happy boy. He loves cars, construction vehicles, building blocks, 

legos and reading. He has a vast imagination and can play for hours on his own, as 

he is an only child right now. Henry is social and loves to befriend people. He smiles 

a lot and has curiosity like I have never seen. 

“Faith, love and support is really important when facing any challenge,” shares 

Henry’s mom “Enjoying the love that Henry has is so beautiful to watch. He is 

caring and has an old soul. I could not be more proud of Henry and love he has. 

My heart is a part of him and I live and breath for his success and happiness.”



GAGE 


Little Warrior Gage was diagnosed with Retinoblastoma at just 

two and a half years old. He had a grade E tumor with hundreds 

of seeds in his right eye. 

Due to the size of his tumor, over 75% of his eye and complete 

loss of vision, his right eye was enucleated. In the last year he has 

been put under anesthesia over 20 times for surgery and exams, 

even though this is very risky for him because of his malignant 

hyperthermia, which means he’s allergic to anesthesia. 

However, nothing can slow him down. He is currently cancer free 

and loving life with his two brothers and sister and his dog.


SERENITY 

Neuroblastoma 


We greatly respect the privacy and requests of these children and their families and have made every effort 

possible to ensure that these stories are as accurate and as up-to-date as possible. If you have concerns with 

any of the information stated, please contact us directly at hellolittlewarrior@gmail.com.


littlewarrior.org 

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#LittleWarriorStrong Stories | Vol I

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