Little_Warrior_Anniversary_Book

Little Warrior | 124
125 | Little Warrior
ALICE
Age 4 | Stage IV High Risk Neuroblastoma
Little Warrior Alice was diagnosed with Neuroblastoma one month after her 3rd
birthday. She went through the standard treatment: chemotherapy, surgery, stem
cell transplant, proton radiation, immunotherapy and more proton radiation. Along
the way, a spot was discovered on her skull that was missed on the previous scans.
Immunotherapy took care of that spot and Alice was declared no evidence of
disease in May 2015.
Alice is currently enrolled in a clinical trial where she will take medication twice a
day for two years in the hopes of preventing relapse. During Alice’s treatment, she
has been treated at 7 different hospitals for various stages of her treatment. She
has been away from our home state for a total of 6 months and has spent over 190
days in the hospital.
“The thing that inspires me is that through all of this, she makes the best of the
situation. Through the worst parts of treatment, she never asked “why me” or
complained. Yes, she would let us know when she hurt and yes she would cry and
ask to not have her port accessed, but she never complained. We built tents in
our room during periods of isolation, she’s led parades through the halls of the
hospital, and gone on scavenger hunts around the floor. She’s also kept her sense
of humor.’” shares Alice’s mom.
If you ask Alice what it means to have cancer, she will tell you that it’s lots of
doctors and hospitals and is super boring. She doesn’t talk about the pain. Alice and
her mom were talking one day when out of the blue she asked if her best friend
had cancer. Her mom told her no and asked why. She explained how that was good
because she never wanted her friend to have cancer.
Alice loves her baby dolls and she wants to be a mommy when she grows up.
Follow Alice’s journey on Facebook at facebook.com/alicesavengers