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1 | <strong>Little</strong> <strong>Warrior</strong><br />
LITTLE WARRIOR<br />
DEcember 2016<br />
#<strong>Little</strong><strong>Warrior</strong>Strong Stories | Vol 1<br />
INSPIRED BY WARRIORS - FOR WARRIORS
<strong>Little</strong> <strong>Warrior</strong> | 2<br />
3 | <strong>Little</strong> <strong>Warrior</strong><br />
Every single day, 43 precious children are<br />
diagnosed with cancer, at an average age of<br />
just six years old.<br />
The following pages contain real stories of some of these incredible children as told<br />
by their loved ones. Stories of great joy from a healing, extreme grief from a loss, and<br />
incredible inspiration from a continued fight. These children are precious, adored and<br />
so loved. At just a few years, months, and even weeks old, these children face battles<br />
every single day that many of us will never have to face even one time in our adult<br />
lives. They are #<strong>Little</strong><strong>Warrior</strong>Strong.<br />
As you read these stories, I encourage you to pray for these little ones. Pray for<br />
their comfort, their strength and their health. Pray for their doctors, their nurses and<br />
their caretakers. And even more, pray for their incredible parents, siblings and family<br />
members who are bodly walking this journey with them, day in and day out.<br />
I have no doubt that after reading just a few of these stories, your heart will be<br />
forever impacted. And when it is, take action. Write a note on the support page<br />
of a specific child that tugged at your heart (listed below each child’s story), make<br />
a donation to the <strong>Little</strong> <strong>Warrior</strong> mission or another organization that supports<br />
Pediatric Cancer, or simply spread awareness by sharing this magazine with those<br />
you know.<br />
Dedicated to:<br />
<strong>Little</strong> <strong>Warrior</strong>s all over the world<br />
who inspire us everyday with their<br />
strength, courage and joy.<br />
Children battling cancer are so strong, so brave, so fierce. They are - <strong>Little</strong> <strong>Warrior</strong>s.<br />
tanya Rodriques<br />
FOUNDER
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5 | <strong>Little</strong> <strong>Warrior</strong><br />
LUKE<br />
Age 2.5 | T-Cell Acute Lymphoblastic Leukemia<br />
<strong>Little</strong> <strong>Warrior</strong> Luke is 2.5 and was diagnosed with T-Cell Acute<br />
Lymphoblastic Leukemia on January 22, 2016, when he was just<br />
18 months old. Currently, he is still in the “frontline” of hard<br />
chemotherapy treatments and still has about 4 months left. Following,<br />
Luke will continue to get maintenance chemo daily for the next 2.5<br />
years, until June 2019.<br />
Luke has had many complications along the way, with a blood clot,<br />
adrenal failure, and many neutropenic delays, but through it all he has<br />
maintained his happy, fun spirit! It has been and will be a long journey,<br />
but we his family is so thankful for all of the love and support from<br />
everyone!<br />
Follow Luke’s journey on Instagram at @lauren_modernmodesty
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7 | <strong>Little</strong> <strong>Warrior</strong><br />
GRACIE<br />
Age 3 | Retinoblastoma<br />
<strong>Little</strong> Warror Gracie was diagnosed with retinoblastoma on May<br />
16, 2016. On June 1st she had her eye removed, followed by 6<br />
months of chemotherapy. As of November 9th, 2016 Gracie is<br />
cancer free!<br />
Gracie is a free spirit, wild child with a soul full of sunshine. From<br />
day one she said she was going to kick cancers butt and she did<br />
it! Her mom shares, “There were days that I just wanted to cry,<br />
and she (Gracie) would look at me with her beautiful smile and<br />
help me get through the tough days!”<br />
Follow Gracie’s journey on Facebook at facebook.com/graciesfightagainstretinoblastoma
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AVA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
9 | <strong>Little</strong> <strong>Warrior</strong><br />
OLIVIA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
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LIBBY<br />
Age 3 | Langerhan’s Cell Hysticosis<br />
<strong>Little</strong> <strong>Warrior</strong> Libby was diagnosed with Langerhan’s Cell<br />
Hysticosis on December 4th, 2015. She is currently in treatment<br />
which includes chemotherapy, steroids, antibiotics and scans every<br />
three months.<br />
Libby just turned 3 and is a typical little girl! She loves to play<br />
dolls and dance, and loves Mickey Mouse. She just recently<br />
returned from her Make-A-Wish trip to Disney world! She is a<br />
true <strong>Little</strong> <strong>Warrior</strong> in every sense of the word!
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NOAH<br />
Age 6 | Stage 4 Alveolar Rhabdomyosarcoma<br />
<strong>Little</strong> <strong>Warrior</strong> Noah was diagnosed with Stage 4 Alveolar<br />
Rhabdomyosarcoma in July 2015. His treatment was completed<br />
at Lurie Children’s Hospital in Chicago, IL and included a 54<br />
week protocol consisting of 20 rounds of chemotherapy and 32<br />
radiation treatments. It was grueling but he made it through and<br />
is now two months cancer-free!<br />
Noah loves science experiments, dogs and riding his dirt bike.
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15 | <strong>Little</strong> <strong>Warrior</strong><br />
JULIANA<br />
Age 4 | Wilms Tumor Stage I<br />
<strong>Little</strong> <strong>Warrior</strong> Juliane was diagnosed with Wilms Tumor Stage 1<br />
right after her third birthday in November of 2015. It was at her<br />
3 year wellness checkup where they found a mass in her stomach.<br />
Juliana went through 13 Rounds of chemotherapy and had her left<br />
kidney and tumor removed at CHLA. She did amazing and fought<br />
like a “ninja turtle”! She has had one clear scan since her port was<br />
removed and will receive reoccuring scans every 3 months for 5<br />
years.<br />
She adores her big brother Gavin and all things boy, especially the<br />
Ninja Turtles. Juliana’s mom shares, “Juliana was our rainbow baby<br />
and is definitely a little warrior and our hero”.
AYLA<br />
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Age 3 | Stage 4 Rhabdomyosarcoma<br />
17 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
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MASON<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
<strong>Little</strong> <strong>Warrior</strong> Mason was diagnosed with Stage 4<br />
Rhabdomyosarcoma in 2013. After a year of chemotherapy,<br />
combined with high dose radiation, he was in remission for<br />
11 months. He relapsed and continued a new combination<br />
of chemotherapy for an additional nine months. Thankfully,<br />
Mason’s MRI results have all been stable since his last<br />
treatment in July.!
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21 | <strong>Little</strong> <strong>Warrior</strong><br />
BLAKE<br />
Age 13 months | Acute Myeloid Leukemia<br />
<strong>Little</strong> <strong>Warrior</strong> Blake was diagnosed with AML (acute myeloid<br />
leukemia) at 6 months old. For seven months Blake and her<br />
family lived in the hospital as she endured intense chemotherapy<br />
rounds, radiation and a bone marrow transplant. Their family of<br />
three finally moved home after receiving the devastating news<br />
that Blake had relapsed. They spent the summer treasuring their<br />
beloved daughter and showering her with all the love in their<br />
breaking hearts. On August 15, 2016 Blake went to heaven.<br />
Blakes parents share, “We are so proud of our warrior girl and<br />
feel blessed to be her parents. Throughout her challenges and<br />
triumphs, she always smiled and spent each day discovering<br />
and learning. Blake gave her love freely and found joy in simple<br />
moments. She amazed us with her courage and resilience, and<br />
taught us a profound love that can only be felt between a parent<br />
and child. We will hold her dearly in our hearts until the sweet<br />
day we see her again.”
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AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
23 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
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JUDE<br />
Age 4.5 | Leukemia<br />
<strong>Little</strong> <strong>Warrior</strong> Jude has been bravely battling Leukemia since<br />
he was just 18 months old. He has relapsed 3 times, had a<br />
bone marrow transplant and participated in two CAR T-cell<br />
immunotherapy trials. If this had happened more than 2-3 years<br />
ago, he would not be alive today, as the therapies that have saved<br />
his life and gotten him into remission were just developed in the<br />
past couple of years.<br />
Jude is positive, funny and brave and almost always has a smile or<br />
laugh. He likes to call himself a “gamer” and loves playing video<br />
games.
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ELLIE<br />
Age 7 Months | Neuroblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Ellie was diagnosed with stage 3 neuroblastoma at<br />
only 5 weeks old. She began treatment at St. Jude just one day<br />
after diagnosis and received a total of 8 rounds of chemotherapy.<br />
The tumor was massive in comparison to her tiny body and was<br />
compressing her spinal cord.<br />
When she was around two months old, she completely lost the<br />
ability to move her lower extremities. Her doctors and nurses<br />
believed that she would never move her legs again. Ellie received<br />
15 emergency proton radiation treatments with the hopes to<br />
quickly reduce the severe spinal compression.<br />
Ellie is now 7 months old and recent scans showed no evidence<br />
of disease! She can now move her legs and her neurologist has no<br />
doubt that she will walk. Throughout all of her treatment, Ellie was<br />
her normal, happy self and brought joy to everyone around her.<br />
She loves Elmo, her kitty Phyllis, eating, being outside, and Adele.<br />
Follow Ellie’s journey on Facebook at facebook.com/cheersforellie
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AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
29 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
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ELLIE<br />
Age 3 | Neuroblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Ellie was diagnosed at 10 months old, with what was thought to be<br />
stage 2 Neuroblastoma. It came as a complete shock, because she was so healthy<br />
and happy! After Ellie’s tumor was removed at 10 months of age, Ellie had scans<br />
periodically over the next 3 years. Ellie’s parents were reassured that she had a 95%<br />
chance of never needing further treatment.<br />
Shortly before Ellie’s 4th birthday an abnormality was discovered during her routine<br />
scans again, and again, they we were reassured that it wasn’t cancer. But Ellie’s<br />
mom followed her instincts as a mother, and sure enough, it was Neuroblastoma.<br />
They also made the startling discovery that Ellie had stage IV cancer as an infant,<br />
upon further review, and had just gone 3 years with no treatment while it was left<br />
to metastasize. Because Ellie was now 4 and not 10 months old, Ellie was suddenly<br />
ooking at a 50% chance of survival and some of the most aggressive treatment<br />
there is for pediatric cancer.<br />
In June of 2015, Ellie had just turned 4 and began treatment for Neuroblastoma.<br />
To date, she has completed 8 cycles of chemotherapy, 8 weeks of proton radiation,<br />
6 cycles of antibody therapy, and 5 of 7 vaccine shots as part of a clinical trial.<br />
And somehow, has made 17 trips to New York for treatment within the past year!<br />
And the best part of all of this is that she is thriving. You would never know the<br />
extensive amount of therapy she’s had.<br />
“We always remain cautiously optimistic, knowing the relapse rate hovers at 50%.<br />
But we do our very best to live each day to the fullest and consider ourselves very<br />
fortunate that we still have a battle to fight. Ellie has given us a new purpose/<br />
direction in life. There are very few positive things that come from being told<br />
your child has cancer, and having to come to terms with the very real possibility<br />
of planning their funeral. Your mind goes to some very dark, scary places. But if<br />
there’s one thing I’m grateful for, it’s being able to fully appreciate and love the<br />
smallest of things with our children,” shares Ellie’s mom.<br />
Follow Ellie’s journey on Facebook at facebook.com/elliesplace
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33 | <strong>Little</strong> <strong>Warrior</strong><br />
GABE<br />
Age 7 | Acute Lymphoblastic Leukemia<br />
<strong>Little</strong> <strong>Warrior</strong> Gabe was diagnosed with Acute Lymphoblastic<br />
Leukemia on December 22, 2015 and was admitted to the<br />
hospital to begin treatment. That Christmas, Gabe’s family spent<br />
Christmas in the hospital, but not just because of his treatment.<br />
On December 24th 2015, his baby sister decided that she wanted<br />
to join the craziness and made her grand entrance into the world.<br />
Additionally, his little brother Fabian had to see the doctor that<br />
day too for a double ear infection.<br />
Treatment for Gabe started and went well. Once Christmas break<br />
was over, Gabe was able to go back to school, where he learned<br />
that his health/fitness teacher had also battled ALL 23 years<br />
earlier. The two have become close and Gabe now affectionately<br />
calls him, Uncle Matt instead of Mr. Browne. Even their families<br />
have become friends.<br />
Gabe shares that Uncle Matt “has helped me find ways to cope<br />
with the many difficult times. He’s been so supportive of me and<br />
he gives me hope. When I look at Uncle Matt I know I’m going<br />
to be able to beat this cancer just like he did because we are<br />
warriors!”
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AMELIA<br />
Age 6 | Stage IV High Risk Neuroblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Amelia is a six year old girl fighting Stage IV Neuroblastoma. In<br />
October of 2014, Amelia was having lower left quadrant pain, misdiagnosed<br />
with pneumonia and treated with antibiotics. When the pain came back in<br />
January, they confirmed and removed a Glioneuroblastoma tumor that was<br />
resting on her spine and aorta. After being told that there was a 5% chance<br />
of her cancer returning, her six month MRI not only showed that the tumor<br />
had regrown, but also had spread to her spine, pelvis, shoulder and skull. She<br />
was then diagnosed with High Risk Stage IV Neuroblastoma.<br />
Amelia has been through five rounds of chemotherapy including several<br />
different chemo drugs, a stem cell harvest, two surgeries, admissions due to<br />
neutropenia, immunotherapy with Ironotecan and Temodar, a Bone Marrow<br />
Transplant, twelve rounds of radiation and has just completed six months of<br />
intense Immunotherapy.<br />
In addition, her central line has prevented her from the privilege of getting<br />
wet for more than a year, she’s been sedated numerous times for scans<br />
and procedures, she’s received a number of blood and platelet transfusions,<br />
weekly bandage changes, more shots and meds that any little girl should ever<br />
receive, vomiting, diarrhea, thrush, anxiety and pain.<br />
However, throughout this entire difficult journey, Amelia has maintained her<br />
strength and determination. She smiles every day, loves to play with her<br />
brothers, help and give things to other fellow cancer warriors and worries<br />
more about others than herself. She enjoys fashion and loves to learn, sing<br />
and dance. She also loves music and adores Jason Mraz. In fact, she listens to<br />
Mraz every day, as his music has truly played an important part in her healing<br />
process. Amelia wants to make a difference and is an inspiration!<br />
Follow Amelia’s journey on Facebook at facebook.com/ameliathebrave
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AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
37 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
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39 | <strong>Little</strong> <strong>Warrior</strong><br />
AEDEN<br />
Age 6 | Stage 3 Cancer Wilms Tumor<br />
<strong>Little</strong> <strong>Warrior</strong> Aaden was an energetic three year old who enjoyed playing<br />
with his two older brothers. On July 2nd, 2013, at his three year check<br />
up, his pediatrician noticed a lump on his right kidney. An ultra sound was<br />
ordered immediately and confirmed there was, in fact, a large mass. He was<br />
rushed to American Family Children’s Hospital in Madison. Shortly after<br />
he was admitted, there was an entire team of doctors in his room. He was<br />
carted off to have a CT Scan and he was diagnosed at that time with a<br />
Stage 3 Cancer Wilms Tumor. His amazing team of doctors scheduled him<br />
for surgery the following morning to remove the entire kidney and implant a<br />
port in his chest to receive chemotherapy.<br />
The surgery went according to plan, but unfortunately while removing his<br />
right kidney it was discovered to have ruptured. This drastically changed his<br />
treatment plan. Which was originally thought to have been 7 treatments<br />
of radiation and 25 weeks of chemo, now was to include 11 radiation<br />
treatments as well as 30 weeks of chemo. This was the most aggressive of<br />
the two plans discussed prior to surgery.<br />
Aeden spent the next 6 days in the hospital recovering from surgery. His<br />
family felt a strong sense of relief but the hardest part was yet to come.<br />
Treatment was set to begin right away where he endured 11 days of<br />
radiation treatments with chemotherapy simultaneously. Throughout his<br />
treatment, Aaden endured 10 hospitalizations due to high fever, 14 blood<br />
transfusions, 15 platelet transfusions, and daily Neupogen injections to keep<br />
his white blood cells at the proper level.<br />
Through all the fight and battle Aeden continued to find reasons to smile<br />
daily! He continues to show nothing but strength!
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41 | <strong>Little</strong> <strong>Warrior</strong><br />
ETHAN<br />
Age | Rhabdomyosarcoma<br />
<strong>Little</strong> <strong>Warrior</strong> Ethan was diagnosed with Rhabdomyosarcoma at<br />
the age of six. He immediately started chemotherapy three times<br />
a week and daily radiation therapy for one year. He has lost total<br />
vision of his right eye and has had three eye surgeries to try<br />
and fix his vision, with no luck. It wasn’t until the 8th month of<br />
radiation therapy that his vision started to slowly come back. He<br />
now uses eyeglasses to help his vision improve.<br />
Ethan has had numerous procedures and complications and<br />
more hospital stays that one can imagine. Although he is still<br />
encountering side effects from the chemo and radiation, he is<br />
currently going on his 2nd month in remisión and hoping to stay<br />
healthy!<br />
Ethan has returned to school and loves it! He loves to make<br />
friends and helping others as much as possible.
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43 | <strong>Little</strong> <strong>Warrior</strong><br />
DARBEE<br />
Age 3 | Neuroblastoma<br />
In the fall of 2016, <strong>Little</strong> <strong>Warrior</strong> Darbee was taken to her local<br />
doctor because of a glow in her left eye. The doctor knew their was<br />
something in her eye but wasn’t quite sure what it was. Darbee was<br />
referred to an eye doctor who was currently out of town, so instead<br />
Darbee’s mom contacted her uncle, who informed her that this was<br />
an urgent matter.Two days later Darbee was seen by Dr. Hoffman at<br />
Primary Children’s Hospital in Salt Lake City, Utah where she was<br />
diagnosed with Retinoblastoma.<br />
The next couple of days were full of tests, doctor’s appointments and<br />
lots of traveling. It was discovered that Darbee was was stage D, with<br />
no sight in her left eye. The tumor was starting to send seeds into the<br />
eye and it was 1mm away from the optic nerve.<br />
On November 16th, Darbee had her left eye and optic nerve removed.<br />
After further testing they have diagnosed her cancer free!<br />
She was lucky and did not have to go through chemo and radiation.<br />
She will have to have cancer screening every 6 months and fittings for<br />
her prosthetic every 6 months until she stops growing, then it will just<br />
be every year. Darbee’s mom shares, “We are extremely lucky and, as it<br />
is her one year anniversary, we are feeling gratitude for everyone that<br />
helped during this last year.”
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45 | <strong>Little</strong> <strong>Warrior</strong><br />
KAELYN<br />
Age 20 months | Choroid Plexus Carcinoma<br />
<strong>Little</strong> <strong>Warrior</strong> Kaelyn was diagnosed with a brain tumor, Choroid<br />
Plexus Carcinoma, at just 4 months old. The tumor was surgically<br />
removed during an 11 hour surgery. Kaelyn received 6 months of<br />
chemotherapy at St. Jude Children’s Research Hospital in Memphis, TN.<br />
Kaelyn is now 9 months post-treatment and currently NED (no<br />
evidence of disease)! She currently has an MRI and lumbar puncture<br />
every 3 months to monitor her status.<br />
Now 20 months old, Kaelyn took her first steps a few weeks ago, is<br />
working on talking, eating food by mouth, and just being a regular<br />
toddler!<br />
Follow Kaelyn’s journey on Facebook at facebook.com/PrayersForKaelynHazelwood
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AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
47 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
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49 | <strong>Little</strong> <strong>Warrior</strong><br />
ABBIGAIL<br />
Age 19 | AML Leukemia<br />
<strong>Little</strong> <strong>Warrior</strong> Abbigail was diagnosed with AML Leukemia on<br />
September 1, 2015, at only four months old. She endured four<br />
month-long chemo treatments (including recovery) and was in<br />
remission until May 4, 2016.<br />
She endured two additional month-long treatments and two trips<br />
to the ICU before getting a bone marrow transplant from her<br />
older brother, Parker, in August of 2016.
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51 | <strong>Little</strong> <strong>Warrior</strong><br />
ALEXANDER<br />
Age 5 | Stage 3 Anaplastic Large Cell Lymphoma<br />
<strong>Little</strong> <strong>Warrior</strong> Alexander “Z” was diagnosed with Stage 3 Anaplastic<br />
Large Cell Lymphoma at only 3 years old. Unfortunately, Z was<br />
misdiagnosed for seven months, which resulted in him getting put on<br />
life-support for his biopsy due to his airway being compressed by a<br />
tumor - the cancer also devoured his T2 vertebra. He was in a lot of<br />
pain and the tumor was days away from closing his airway.<br />
During his incredible fight, Z endured: 78 pokes, 65 office visits, 52<br />
nights in the hospital, 39 scans - MRI, CT, Ultrasound, X-ray, PET, 35<br />
days of continuous fever, 35 days of inpatient chemo, 21 days+ of<br />
severe back pain and breathing problems, 8+ EKGs and Echos, 7 days<br />
in ICU, 7 sedations, 2 ER visits, 1 bronchoscopy, 1 surgery for port<br />
placement, 1 surgery for multiple biopsies,1 placement of chest tube<br />
for a collapsed lung, 1 spinal tap, 1 lumbar puncture and 1 ambulance<br />
ride... But today, the most important number of all… 4 months cancer<br />
free!<br />
Z is a strong little warrior, like so many of the sweet friends he has<br />
met along his journey! He loves to dance and play with his little<br />
brother, will be turning 5 in July and started Kindergarten in the Fall.
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53 | <strong>Little</strong> <strong>Warrior</strong><br />
BEN<br />
Age 4 | Acute Lymphoblastic Leukemia (ALL)<br />
<strong>Little</strong> <strong>Warrior</strong> Ben was diagnosed on March 20, 2016 with<br />
standard risk Acute Lymphoblastic Leukemia (ALL). He just<br />
entered long-term maintenance and has been such a trooper,<br />
he has done remarkably well with treatment! He has been<br />
appropriately nicknamed “Brave Ben”!<br />
Ben loves race cars, is very smart and is starting to read. “We<br />
hope and pray for his forever remission and that he is able to live<br />
up to his full potential in life.” shares his mom.<br />
Follow Ben’s journey on Facebook at facebook.com/BelieveForBen
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55 | <strong>Little</strong> <strong>Warrior</strong><br />
BLAKE<br />
Age 2 | Hereditary Bilateral Retinoblastoma<br />
Blake Ryan Bratcher, Born on September 28, 2014. FIGHTER,<br />
Diagnosed with Hereditary Bilateral Retinoblastoma on January 8,<br />
2015. Left eye enucleated on October 9, 2015. January 28, 2016<br />
Blake got his ocular prosthesis. Currently still having monthly eye<br />
Exams Under Anesthesia.
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57 | <strong>Little</strong> <strong>Warrior</strong><br />
KATE<br />
Age 2 | Neuroblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Kate was diagnosed with Neuroblastoma at just 7<br />
months old, after months of seeking answers as to why she was<br />
not eating. It was discovered that a tumor in her abdomen and<br />
cancer in her bone marrow was the cause.<br />
Currently, at two years old, recent scans show good results for<br />
Kate. While her tumor is still present, there has been no change in<br />
its size or a display of active cells. Kate’s doctor is confident that<br />
she can be declared cancer free!<br />
Throughout it all, Kate has kept a fighting spirit and refuses to be<br />
slowed down. Kates mom writes, “We are so thankful for Kate’s<br />
health today. She is a strong, spunky, sassy, loving little girl!”
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AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
59 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
<strong>Little</strong> <strong>Warrior</strong> | 60<br />
61 | <strong>Little</strong> <strong>Warrior</strong><br />
EMMY<br />
Age 3 | NUT Midline Carcinoma<br />
<strong>Little</strong> <strong>Warrior</strong> Emmy was diagnosed with NUT Midline Carcinoma<br />
in 2015. Less than one year later, Emmy’s parents were given the<br />
devastating news that there was nothing more that they could<br />
do for their sweet girl. On March 2, 2016, Emmy passed away<br />
peacefully her moms arms.<br />
“Emmy was full of spunk. Had her mamas attitude to the t. She<br />
was perfect in so many ways. I will forever miss my baby girl.<br />
But I’m relieved she isn’t in anymore pain... The nasty C may<br />
have taken [Emmy] away but her spirit will live on forever in our<br />
hearts. There will never be a day that I don’t think about her,”<br />
writes Emmy’s mom.<br />
Emmy was a beautiful, bright-eyed tomboy. She was the middle<br />
of three children and loved Mickey Mouse and Strawberry<br />
Shortcake. She loved snuggling up with her blankets (as you see<br />
here, with one of her collection of 10!) and the color purple.<br />
Emmy is SO loved, and one of the very inspirations behind the<br />
<strong>Little</strong> <strong>Warrior</strong> shirt. She will always be a little warrior, but more<br />
importantly, a beautiful, precious little girl, who at just 3 years old,<br />
captured the hearts of many.
<strong>Little</strong> <strong>Warrior</strong> | 62<br />
63 | <strong>Little</strong> <strong>Warrior</strong><br />
WYATT<br />
Age 3 | Rhabdomyosarcoma<br />
<strong>Little</strong> <strong>Warrior</strong> Wyatt is 2 years old and has been fighting<br />
Rhabdomyosarcoma for over a year. During the course of his<br />
treatment, he had to have half of his leg muscle removed, but<br />
even then, this amazing little man has refused to slow down! His<br />
momma shares that, although he is on the last defense line of<br />
chemo, they are almost done with treatment!
<strong>Little</strong> <strong>Warrior</strong> | 64<br />
65 | <strong>Little</strong> <strong>Warrior</strong><br />
ADDIE<br />
Age 3 | Neuroblastoma<br />
L<strong>Little</strong> <strong>Warrior</strong> Addie was diagnosed with Pre-B Cell ALL in<br />
March of 2016 at three years old. She has been so brave through<br />
all of her treatments and has now made it through the more<br />
intense chemo and recently started maintenaince. She will be in<br />
treatment for Leukemia until May 2018.<br />
Addie lives in Alabama with her twin sister Lainey and big sister<br />
Lyla, who is six. She loves animals, baby dolls, riding her scooter,<br />
music and dancing, coloring and crafts. She’s a little comedian<br />
around the house and loves to make people laugh. Addie also<br />
goes by the nickname toughie. She’s very boisterous and hard<br />
headed but also extremely loving!<br />
Addie’s mom shares, “We have been very blessed throughout this<br />
journey. We have met so many wonderful people and our lives<br />
will be changed forever. Thank you for the support! Eight months<br />
down... two years to go!”<br />
Follow Addie’s journey on Facebook at facebook.com/addieshope
<strong>Little</strong> <strong>Warrior</strong> | 66<br />
HAYES<br />
67 | <strong>Little</strong> <strong>Warrior</strong><br />
Age 3 | Stage 4 Rhabdom<br />
BEAUX<br />
Age 3 | Stage 4 Rhabdomyosarcoma
<strong>Little</strong> <strong>Warrior</strong> | 68<br />
69 | <strong>Little</strong> <strong>Warrior</strong><br />
CARTER<br />
Age 5 | Neuroblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Carter, a.k.a Super Carter, was diagnosed with Acute<br />
Lymphoblastic Leukemia at the young age of four.<br />
On September 25, 2015, Carter had been fighting a week-long fever<br />
and started to become non-responsive. He was rushed to the local<br />
ER, where he was immediately taken for blood work. The blood work<br />
showed that his red blood cells were so low that he risked falling into<br />
a coma and he was sent by ambulance to Helen Devos Children’s<br />
Hospital in Grand Rapids, MI.<br />
Over the next two days, he received several blood transfusions to get<br />
his body healthy enough for a bone marrow aspiration. On September<br />
27, his bone marrow showed that it was full of 85% Leukemia cells. He<br />
received his first chemo that very same day and underwent surgery to<br />
have a port placed in his chest. He will have a total of 3 years and 4<br />
months of chemotherapy.<br />
Throughout all of the “pokies”, sedations, and pills, Carter is always<br />
smiling! He takes it all in stride and loves his doctors and nurses. When<br />
he grows up, he’d like to be a police officer and a pediatric oncology<br />
nurse. He says he wants to keep people safe, but also give kids their<br />
chemo so that he can tell them how to not be afraid. He loves police<br />
officers, superheroes, and making people laugh.<br />
Follow Carter’s journey at www.supercarter.com
<strong>Little</strong> <strong>Warrior</strong> | 70<br />
71 | <strong>Little</strong> <strong>Warrior</strong><br />
BEN<br />
Age 6 | Leukemia<br />
<strong>Little</strong> <strong>Warrior</strong> Ben was diagnosed with Leukemia when he was<br />
just three years old and has been in treatment ever since. He is<br />
one of 5 brothers and amazes those around him everyday. If all<br />
goes according to plan, he is expected to finish treatment in 2017.
<strong>Little</strong> <strong>Warrior</strong> | 72<br />
73 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
<strong>Little</strong> <strong>Warrior</strong> | 74<br />
75 | <strong>Little</strong> <strong>Warrior</strong><br />
ELIJAH<br />
Age 5 | Stage 4 Neuroblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Elijah is five years old and bravely battling Stage<br />
4 Neuroblastoma. In December of 2015, he was declared in<br />
remission, but just three short months later, this March, received<br />
the news that the cancer had returned.<br />
After more treatment, Elijah’s family again received a second<br />
relapse report this December (2016). He recently had surgery,<br />
in which the doctors believe all the cancer was removed. He will<br />
then move onto chemotherapy and radiation with the hopes that<br />
clear scans will follow!<br />
Elijah is very funny and quick witted. All the nurses love him and<br />
he is known for his amazing smile and for being a good patient.<br />
He loves to play his xbox and is a zombie shooting pro. He also<br />
loves Dinosaurs and was lucky enough to meet Chris Pratt from<br />
Jurassic World at the Ronald McDonald House during one of our<br />
stays.<br />
Elijah also enjoys wrestling with daddy and his brother, and playing<br />
Minecraft with his “sissy”.
<strong>Little</strong> <strong>Warrior</strong> | 76<br />
77 | <strong>Little</strong> <strong>Warrior</strong><br />
ALAYNA<br />
Age 3 | Neuroblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Alayna was diagnosed with Leukemia in January of 2016. After<br />
noticing some bruising on Alayna, her mom old, took her to the doctor and found<br />
out within 10 minutes that their sweet, beautiful, innocent little girl had Leukemia.<br />
Alayna’s mom shares that they try to find joy in even the worst of situations. Maybe<br />
it’s a dance party. Maybe it’s a good cup of coffee or a cute pair of comfy legging.<br />
Maybe it’s just a laugh in the middle of our hot mess. No matter how big or small,<br />
they choose joy.<br />
In the last nine months Alayna and her family have spent over 100 days in the<br />
hospital and have been to clinic more times than not. Chemo, fevers, medicine, and<br />
infection have all become a part of who they are, and a part their story. Alayna is<br />
currently in remission, but treatment for Leukemia has to continue on for 2 1/2<br />
years.<br />
“I always like to say I would have never chosen cancer for us or for anyone, but<br />
I also wouldn’t change it for the world. It’s made us stronger and more thankful.<br />
Perspective sometimes slaps you in the face. And on those days when I want to<br />
complain and think that my life is hard, the Lord reminds me that this is only my<br />
journey and not anyone else’s, and that there’s so many other people that are<br />
going through so many worse things than we are. They always say that the Lord<br />
won’t give you anything you can’t handle, but I don’t think that’s true. I think the<br />
Lord chooses to gives you what you can’t handle so that your only real option is to<br />
depend on Him. Our journey is our journey, and we’re learning from it even on the<br />
hardest of days, but I think the real reason that we have joy in the middle of this<br />
crazy storm is that we have a Hope that is far greater than cancer, death, or this<br />
world. No matter what happens, we know Laney will be okay and that the Lord<br />
will show up, and show off in the situation, and for that reason we just choose joy,”<br />
shares Alayna’s mom.<br />
Laney Bug’s favorite things are all things Disney, Baby Dolls, and any kind of candy!<br />
Follow Alayna’s journey on Facebook at Beautifully Complete: Prayers for Alayna Hope
<strong>Little</strong> <strong>Warrior</strong> | 78<br />
79 | <strong>Little</strong> <strong>Warrior</strong><br />
GRAYSON<br />
Age 2 | Bilateral Retinoblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Grayson was diagnosed with Bilateral<br />
Retinoblastoma, a rare form of eye cancer, when he was just two<br />
months old.<br />
Recently, Grayson received positive reports that he is all clear in<br />
both eyes! His doctor also shared how impressed they are with<br />
how well he is doing considering the amount of treatment he has<br />
gone through.<br />
As Grayson’s mom writes, “Just goes to show what strength,<br />
courage, determination, and faith will get you. We are so beyond<br />
happy with our little super hero.”<br />
Grayson is a happy, sweet little boy who loves his big sister Lyla,<br />
his puppy dog, Trooper, and keeping his mom and dad very busy!
<strong>Little</strong> <strong>Warrior</strong> | 80<br />
81 | <strong>Little</strong> <strong>Warrior</strong><br />
BENTLEY<br />
Age 3 | Langerhans Cell Histiocytosis<br />
<strong>Little</strong> <strong>Warrior</strong> Bentley’s journey started a year ago with an ear<br />
infection that didnt seem to be getting better. Four weekly visits<br />
to the doctor finally resulted in Bentley getting a MRI, where two<br />
tumors were discovered - one at the base of his neck and the<br />
second on his back bone, spreading to two of his ribs. Bentley<br />
spent a week in the hospital doing tests, labs, biopsy and a<br />
hickmen placement. Finally, the day before Thanksgiving, Bentley<br />
was diagnosed with Langerhans Cell Histiocytosis.<br />
His journey has been filled with ups and downs, from neutropenic<br />
fevers, dehydration, RSV, central line infection & replacements to<br />
MRI’s, chemo burn on the inside and so on. He is still fighting his<br />
fight and through it all he does it with his heartwarming smile.<br />
Bentley is the youngest of five children, loves to sing along to<br />
songs in the car, going for walks with his oldest sister and any and<br />
all types of cats.<br />
Follow Bentley’s journey on Facebook at Bentley’s Battle with Langerhans Cell Histiocytosis (L.C.H.)
<strong>Little</strong> <strong>Warrior</strong> | 82<br />
83 | <strong>Little</strong> <strong>Warrior</strong><br />
GEMMA<br />
Age 4 | Glioma Astrocytoma<br />
<strong>Little</strong> <strong>Warrior</strong> Gemma was diagnosed 2.5 years ago with an inoperable<br />
Glioma Astrocytoma tumor. Over the course of those years she has<br />
received, 1 biopsy surgery, which took away her ability to walk and left<br />
her left side incredibly weak, 1 year of weekly Chemo, 9 months of biweekly/monthly<br />
Avastin, 9 months of watch and wait, 2 eye surgeries<br />
and countless scans.<br />
However, recently Gemma had her port removed and was able to ring<br />
the bell for the end of treatment!<br />
Gemma’s mom writes, “It’s the end... at least for now, and that is good<br />
enough for us. God has been with us every single step of this journey.<br />
Through the highs and the lows... every single step. If you ever wonder<br />
how you would do when you are faced with a situation that just seems<br />
too tough...just look up and know how much God loves you.<br />
HE will get you through it all. We are so grateful for Gemma’s<br />
progress and her strength and we are looking forward to a happy<br />
and healthy 2017.”<br />
Gemma loves firetrucks, garbage trucks and the color red and is her<br />
family’s little warrior!
<strong>Little</strong> <strong>Warrior</strong> | 84<br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
85 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
<strong>Little</strong> <strong>Warrior</strong> | 86<br />
87 | <strong>Little</strong> <strong>Warrior</strong><br />
JAYDEN<br />
Age 4 | Retinoblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Jayden was diagnosed with Retinoblastoma, a rare<br />
eye cancer, at just 15 months old. He went through 6 rounds<br />
of chemotherapy, had his right eye removed and is rocking his<br />
prosthetic eye or as his family calls it, his “special eye”. He wears<br />
glasses to protect his good eye.<br />
He has been stable for 33 months and goes under anesthesia for<br />
eye exams and scans every 6 months to make sure the cancer<br />
is still gone. He has been brave through it all and continues to<br />
amaze those around him!<br />
Jayden loves to ride his bike, go hiking, play cars and do Legos. He<br />
also loves to do art projects and explore.<br />
In this photo, Jayden is wearing his shirt at the ocularist (eye<br />
maker) and is waiting for them to finish cleaning and polishing<br />
it. Jayden’s mom shares, “I think he is so brave and tough in this<br />
photo. He is beautiful with or without two eyes.”
<strong>Little</strong> <strong>Warrior</strong> | 88<br />
89 | <strong>Little</strong> <strong>Warrior</strong><br />
ELIJAH<br />
Age | Retinoblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Elijah was diagnosed with Retinoblastoma at just<br />
seven weeks old. Due to the extent of the disease, his right eye<br />
was removed. 12 weeks later, tumors were discovered in his<br />
remaining eye. Since that time, Elijah and his family have been<br />
traveling from California to New York every 4-6 weeks for his<br />
care. They are still fighting to save his vision in his remaining eye.<br />
Elijah is the youngest of seven children who adore him and pray<br />
fervently for his healing and that he will retain his sight.
<strong>Little</strong> <strong>Warrior</strong> | 90<br />
91 | <strong>Little</strong> <strong>Warrior</strong><br />
ISLA<br />
Age 3 | Stage 4 High Risk Neuroblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Isla is a fierce, three year old fighting Stage 4 High<br />
Risk Neuroblastoma. In Febraury of 2016, Isla and her family<br />
received the wonderful news that her scans were clear! However,<br />
due to the high relapse rate of this type of Neuroblastoma, Isla<br />
has continued treatment in order to prevent relapse. She has had<br />
several scans since and all remain clear!<br />
She loves dancing, Brussels sprouts, christmas carols, cooking, her<br />
big brother, Elliot, and playing Mommy with her dolls. She aspires<br />
to be a doctor, a stand up comedian and “an old lady”!
<strong>Little</strong> <strong>Warrior</strong> | 92<br />
93 | <strong>Little</strong> <strong>Warrior</strong><br />
ISABEL<br />
Age 3 | Spinal Cord Tumor<br />
<strong>Little</strong> <strong>Warrior</strong> Isabel, also know as Izzy <strong>Warrior</strong> Princess, was<br />
diagnosed with a spinal cord tumor shortly before her first<br />
birthday. Because the tumor could not be safely removed, Isabel<br />
underwent 42 rounds of chemo over 14 months.<br />
Recently, a year after her life-saving transfusion and 10 months<br />
since her last chemo infusion, Isabel had her regular check up<br />
at clinic. Her oncologist (and everyone) is so pleased with how<br />
she’s doing and said the tumor looks stable! She will continue to<br />
be monitored and have scans and just had her first chemo-free<br />
Christmas!<br />
Isabel is a fighter and works hard everyday to get better. She<br />
loves music and wants to play hockey when she is able!<br />
Follow Isabel’s journey on Facebook at Izzy <strong>Warrior</strong> Princess
<strong>Little</strong> <strong>Warrior</strong> | 94<br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
95 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
<strong>Little</strong> <strong>Warrior</strong> | 96<br />
97 | <strong>Little</strong> <strong>Warrior</strong><br />
TALIA & ANTHONY<br />
Age 3 & 4 | Wilms Tumor & Ganglio Neuroblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> duo Talia and Anthony Pisano were diagnosed<br />
with unique cancers at just 11 months and 2 years old. Talia was<br />
diagnosed with Wilms cancer in 2014 and just 7 months later,<br />
right before his third birthday, Anthony was diagnosed with<br />
Ganglio Neuroblastoma. However, we are excited to share that<br />
they both are currently off treatment and have been cancer free<br />
for the entire year of 2016!<br />
They continue to havea frequent scans, and while their treatments<br />
have caused long-term side effects and complications, Talia and<br />
Anthony are both happy and doing well!<br />
Anthony loves Batman and Talia loves Princesses. They both love<br />
to play in the backyard, play with play dough and spend lots of<br />
time together. They argue like close siblings do, but they love<br />
each other! Talia and Anthony also have an older brother names<br />
Vincent, who is 10 years old.
<strong>Little</strong> <strong>Warrior</strong> | 98<br />
99 | <strong>Little</strong> <strong>Warrior</strong><br />
MASON<br />
Age 5 | Acute Lymphoblastic Leukemia<br />
On July 8, 2015, <strong>Little</strong> <strong>Warrior</strong> Mason was diagnosed with Acute<br />
Lymphoblastic Leukemia (ALL), a type of cancer in which the<br />
bone marrow makes too many immature white blood cells. He<br />
began his first round of treatment thereafter, in which it was<br />
found that he was extremely sensitive to, causing him to have<br />
high blood sugar, high blood pressure, and temporarily unable<br />
to produce insulin on his own. Mason was also diagnosed with<br />
Aspergillus - a serious fungal infection in his lungs, kidneys, head<br />
and spine.<br />
Mason lives in Hawaii and is a tudent at St. Michael’s Preschool<br />
in Waialua. He enjoys the beach, fishing and all things dinosaurs.<br />
When he and his big sister Taylor aren’t catching fish in their spare<br />
time, he is always having a good time with family and friends.<br />
Through it all, hasn’t lost this contagious smile!
<strong>Little</strong> <strong>Warrior</strong> | 100<br />
101 | <strong>Little</strong> <strong>Warrior</strong><br />
HAILEY<br />
Age 2 | Medulloblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Hailey was diagnosed with Medulloblastoma just<br />
two days after her first birthday. The tumor in her brain was<br />
removed within days and she started chemotherapy. In April of<br />
2016, Hailey began her final round of chemo, followed by a stem<br />
stell transplant.<br />
Her most recent MRI results were stable with No Evidence of<br />
Disease! She is 15 months cancer free.<br />
Hailey is so brave, loves Toy Story and bullying her big sister (as<br />
any good little sister should)!
<strong>Little</strong> <strong>Warrior</strong> | 102<br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
103 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
<strong>Little</strong> <strong>Warrior</strong> | 104<br />
105 | <strong>Little</strong> <strong>Warrior</strong><br />
TYLER<br />
Age 6 | Stage IV Neuroblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Tyler was diagnosed with Stage IV Neuroblastoma<br />
in August of 2015, at the age of five. His only symptoms were loss<br />
of appetite and stomach pains for two weeks, which eventually<br />
led to an ER visit because the pain was too great to sleep.<br />
Ultrasounds were conducted and showed a 13cm tumor in his<br />
abdomen. Further scans also showed a 6cm tumor in his chest.<br />
Tyler’s treatments took place at Kaiser Santa Clara in California,<br />
while his surgeries were at Memorial Sloan Kettering in New York<br />
City. Three surgeries, eight rounds of chemo, twelve sessions of<br />
radiation, five rounds of immunotherapy and 15 months later, Tyler<br />
is in remission!<br />
Since 50% of Neuroblastoma kids relapse the first year, Tyler will<br />
move on to a clinical trial of Neuroblastoma vaccine at Memorial<br />
Sloan Kettering to try to keep the monster away.
<strong>Little</strong> <strong>Warrior</strong> | 106<br />
107 | <strong>Little</strong> <strong>Warrior</strong><br />
SPENCER<br />
Age 18 months | Bilateral Retinoblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Spencer was diagnosed with Bilateral<br />
Retinoblastoma in November of 2015, at just six months old. He<br />
is currently 18 months old and travels from Kansas to Memorial<br />
Sloan Kettering Cancer Center in New York City every 4-6 weeks<br />
for treatment.<br />
Spencer went through three rounds of intra-arterial<br />
chemotherapy and one round of laser. The tumor was declared<br />
calcified/dead. However, in May of 2016, two new tumors were<br />
discovered, this time in his left eye. Because of their size, laser<br />
treatment was done.<br />
Spencer is still fighting. He recently had growth on one of the<br />
tumors in his left eye, in which was followed by more laser work.<br />
However, at his last exam, the results showed no new growth!<br />
Follow Spencer’s journey on Facebook at facebook.com/eyefightforspencer
<strong>Little</strong> <strong>Warrior</strong> | 108<br />
109 | <strong>Little</strong> <strong>Warrior</strong><br />
ASHER<br />
Age 3 | Retinoblastoma<br />
When <strong>Little</strong> <strong>Warrior</strong> Asher was just four months old, his mom<br />
noticed the indicative Retinoblastoma “glow” in his right eye while<br />
taking a photo with a flash on her phone. Being a Registered<br />
Nurse herself, she knew right away that it was cancer.<br />
Asher is now two years old and has been bravely fighting<br />
Retinoblastoma ever since. Last year he completed 6 months of<br />
chemotherapy and was put under anesthesia 25 times for eye<br />
exams with laser therapy.<br />
Most recently, Asher’s scans have come back showing active<br />
growth. However, his parents are relieved and thankful that with<br />
laser treatments, they are keeping these recurrences at bay. As his<br />
mom writes, “Asher’s case of Retinoblastoma has been a stubborn<br />
little beast, but we are still confident that Asher will take this<br />
beast down!”<br />
Asher is fighting and happy! He loves cookies, trains, his big sisters,<br />
hopping on people’s back’s and yelling “Go!” and trying to ride his<br />
cats.
<strong>Little</strong> <strong>Warrior</strong> | 110<br />
111 | <strong>Little</strong> <strong>Warrior</strong><br />
ZOË<br />
Age 2 | Atypical Teratoid Rhabdoid Tumor.<br />
<strong>Little</strong> <strong>Warrior</strong> Zoë is wo years old and battling a unique brain tumor. Her fight<br />
started when she was just 15 months old and her doctors spoke one word - cancer!<br />
At the time her family lived in Honolulu, Hawaii where her father was stationed<br />
with the US Army. Because Zoë was/is so young and her case so unique, her family<br />
requested to be moved closer to family and to be seen at a specialty children’s<br />
hospital - in the military this is called “compassion reassignment.” This was criticaly<br />
for them, as Zoë’s mom was well into her third pregnancy and expecting twin boys!<br />
“Not only was compassionate reassignment a blessing, so was the unit my husband<br />
was attached to. They have been more than understanding and willing to help<br />
us out in ways I didn’t even know were possibilities for us. Zoë’s father is able to<br />
be with her at the hospital while I am home with our other children. Having the<br />
flexibility and opportunity to be there for your sick child is a must, and I feel a<br />
huge part of this being available to us is due to Zoë’s father serving in the United<br />
States Army” shares Zoë’s mom.<br />
With their arrival at Vanderbilt Children’s Hospital in Tennessee, Zoë’s doctors<br />
literally worked around the clock on her very unique case. Her diagnosis has<br />
changed at least three times since September 2015. In October her tumor was<br />
diagnosed as a brain tumor: “ATRT” Atypical Teratoid Rhabdoid Tumor.<br />
Zoë underwent six rounds of chemotherapy where she was admitted to the<br />
hospital, and each round lasted two to three weeks. Zoë was also seen at St. Louis<br />
Children’s Hospital, were she underwent 26 radiation treatments called Proton<br />
Therapy. Even though Zoë will still be recovering and has check ups every three<br />
months for the first year, she has been officially declared in remission.<br />
“Zoë is a beautiful ray of sunshine in this dark storm and when we hear the words<br />
“‘cancer free’ the skies will clear and a perfect rainbow will appear showing us the<br />
promise for a better tomorrow,” shares Zoë’s mom. “Though Zoë be but little, she<br />
is fierce!“<br />
Follow Zoë’s journey on Facebook at facebook.com/fightingforzoe
<strong>Little</strong> <strong>Warrior</strong> | 112<br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
113 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
<strong>Little</strong> <strong>Warrior</strong> | 114<br />
115 | <strong>Little</strong> <strong>Warrior</strong><br />
MASON<br />
Age 3 | Pre B Acute Lymphoblastic Leukemia<br />
<strong>Little</strong> <strong>Warrior</strong> Mason was diagnosed with Pre B Acute<br />
Lymphoblastic Leukemia at age 2 on December 26, 2015. The first<br />
part of his treatment journey included several hospital stays and a<br />
few scary moments but otherwise he sailed right through.<br />
Currently, Mason struggles with some on and off walking issues<br />
associated with his chemotherapy and a few daily med side effects<br />
as well, but all-in-all is doing really well! He is now three years old<br />
and will be in treatment until March 2019.<br />
He loves his older brother and sister and doesn’t like to be apart<br />
from them! He loves all things dinosaur and sharks, Paw Patrol<br />
and PJ Mask! He is a boy through and through!<br />
Mason’s mom shares, “We are thankful for our family as well<br />
as our wonderful church family who have walked with us hand<br />
in hand through some of the most difficult and even easier<br />
moments! Our gracious Lord has shown us his love, peace and<br />
comfort throughout our journey and we can’t wait to see all he<br />
will do in and through Mason’s life!”
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LIAM<br />
Age 3 | Bilateral Retinoblastoma<br />
<strong>Little</strong> Warior Liam was diagnosed with Stage IV High Risk<br />
Neuroblastoma when he was 21 months old. Following diagnosis,<br />
he spent 8 months in and out of the hospital doing 5 rounds of<br />
chemotherapy, surgery, stem cell transplant, radiation, and one<br />
round of immunotherapy.<br />
In January of 2016, Liam and his family received wonderful news<br />
that he was declared NED. However, shortly after that summer,<br />
Liam relapsed. MRIs showed the tumors were back. This time in the<br />
base of his brain, right ear, and left ear. Neuroblastoma is incredibly<br />
hard to beat when it’s throughout the body. And, once it goes to<br />
the central nervous system it’s nearly impossible to beat. Liam<br />
passed away on October 8, 2016.<br />
Liam amazed all that followed his story. He had a contagious smile<br />
and handled all the tough treatments better than anyone could<br />
imagine. As Liam’s mom writes, “Liam is our light and was a light to<br />
so many and always let his light shine.”
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SOFIA<br />
Age 7 | Acute Lymphoblastic Leukemia<br />
<strong>Little</strong> <strong>Warrior</strong> Sofia was diagnosed with Acute Lymphoblastic<br />
Leukemia in January of 2016 at the age of 7.<br />
In the months since, Sofia has continually astonished those<br />
around her with her courage and adaptability. Sofia’s mom shares,<br />
“Everyday I look at her and wonder how such a tiny little girl can<br />
possibly withstand all the endless appointments, needles, tests,<br />
chemos, medications and hospital stays without even complaining<br />
much at all. Our favorite quote that seems to sum up Sofia is<br />
‘Though she be but little, she is fierce.’”<br />
Sofia loves arts and crafts, has an impressive stuffed penguin<br />
collection and loves designing new outfits for her dolls. She enjoys<br />
playing with friends, watching movies, spending time with her<br />
family and hopes to be a fashion designer when she grows up.
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AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
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REESE<br />
Age 3 | Stage 4 Rhabdomyosarcoma
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BEN<br />
Age 13 Months | Stage IV Extrarenal Malignant Rhabdoid tumor<br />
<strong>Little</strong> <strong>Warrior</strong> Ben was born on April 3, 2015 and was a cheerful,<br />
cuddly baby, the light of his parents lives. He loved playing with his<br />
two older sisters, Hannah and Rebecca, and they adored him right<br />
back.<br />
Ben was diagnosed with Stage IV Extrarenal Malignant Rhabdoid<br />
Tumor at 10 months old, and unfortunately passed away after just<br />
3.5 months of treatment, at 13 months 9 days old.<br />
Ben was never able to wear his <strong>Little</strong> <strong>Warrior</strong> shirt as he passed<br />
away before he was able to grow into it.
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125 | <strong>Little</strong> <strong>Warrior</strong><br />
ALICE<br />
Age 4 | Stage IV High Risk Neuroblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Alice was diagnosed with Neuroblastoma one month after her 3rd<br />
birthday. She went through the standard treatment: chemotherapy, surgery, stem<br />
cell transplant, proton radiation, immunotherapy and more proton radiation. Along<br />
the way, a spot was discovered on her skull that was missed on the previous scans.<br />
Immunotherapy took care of that spot and Alice was declared no evidence of<br />
disease in May 2015.<br />
Alice is currently enrolled in a clinical trial where she will take medication twice a<br />
day for two years in the hopes of preventing relapse. During Alice’s treatment, she<br />
has been treated at 7 different hospitals for various stages of her treatment. She<br />
has been away from our home state for a total of 6 months and has spent over 190<br />
days in the hospital.<br />
“The thing that inspires me is that through all of this, she makes the best of the<br />
situation. Through the worst parts of treatment, she never asked “why me” or<br />
complained. Yes, she would let us know when she hurt and yes she would cry and<br />
ask to not have her port accessed, but she never complained. We built tents in<br />
our room during periods of isolation, she’s led parades through the halls of the<br />
hospital, and gone on scavenger hunts around the floor. She’s also kept her sense<br />
of humor.’” shares Alice’s mom.<br />
If you ask Alice what it means to have cancer, she will tell you that it’s lots of<br />
doctors and hospitals and is super boring. She doesn’t talk about the pain. Alice and<br />
her mom were talking one day when out of the blue she asked if her best friend<br />
had cancer. Her mom told her no and asked why. She explained how that was good<br />
because she never wanted her friend to have cancer.<br />
Alice loves her baby dolls and she wants to be a mommy when she grows up.<br />
Follow Alice’s journey on Facebook at facebook.com/alicesavengers
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AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
127 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
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ELLIS<br />
Age 17 months | Bilateral Retinoblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Ellis was diagnosed with Bilateral Retinoblastoma<br />
in September 2015 when he was just 3.5 months old. After<br />
discovering a glow in Ellis’ eye, he was taken to an opthamologist<br />
and upon leaving the clinic, received the devestating call with his<br />
diagnosis and instructions to be at St. Jude on Sunday (just two<br />
days away) to beding treatment.<br />
Ellis completed 6 rounds of chemotherapy, laser therapy, countless<br />
EUA’s (exams under anesthesia) and, as of today, has had clear<br />
exams with no treatment needed for 20 weeks! He will continue<br />
to have exams every 5-6 weeks for a while and space them out as<br />
time goes on.<br />
Ellis has two older siblings, brother - Patton 6, and sister - Paige 5,<br />
who adore him and love him so, so much. As his mom shares, “He<br />
is such a strong boy, and amazes us every single day!”
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LANDEN<br />
Age | Pre B Cell Acute Lymphoblastic Leukemia<br />
In August 2016 <strong>Little</strong> <strong>Warrior</strong> Landen went to the local<br />
emergency room for what the doctor’s were convinced was a<br />
case of appendicitis. After being transferred to Doernbecher’s<br />
Children’s hospital, Landen was diagnosed with Pre B Cell Acute<br />
Lymphoblastic Leukemia and began treatment immediately.<br />
Within the first few weeks of treatment Landen suffered<br />
compression fractures to the L1-L3 vertebrae of his spine and<br />
was put in a full back brace that he will continue to wear until<br />
spring 2017. Landen reached remission after 6 weeks of treatment<br />
and continues to fight every single day!
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AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
133 | <strong>Little</strong> <strong>Warrior</strong><br />
AYLA<br />
Age 3 | Stage 4 Rhabdomyosarcoma
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HENRY<br />
Age 3 | B Cell ALL<br />
On Sunday, February 1, 2015 <strong>Little</strong> <strong>Warrior</strong> Henry began running a fever. After<br />
initially chalking it up to teething or maybe the flu, he was taken to his pediatrician<br />
where he tested positive for the flu. Henry’s doctor also noticed some bruising on<br />
him and decidid to run his blood, due to the nature of the bruising.<br />
Henry got medicine for the flu and returned home, but soon after received a call<br />
that his platelet count was low. They were told to go to University of Minnesota<br />
Children’s emergency room. After being sent home with the possibility that it may<br />
be a platelet disorder, it was discovered that there were some oddities in his results.<br />
Henry was admitted that day and through a series of further tests, was officially<br />
diagnosed with B Cell ALL on February 4th, 2015.<br />
Since, Henry has been in surgery to place a port to deliver<br />
medications more effectively. He has begun chemo and numerous tests and is on<br />
the road to recovery.<br />
There have been many ups and downs since Henry’s diagnosis. Some ER visits, colds,<br />
ear infections, low counts, etc. A normal routine with someone who has cancer.<br />
Henry is a very happy boy. He loves cars, construction vehicles, building blocks,<br />
legos and reading. He has a vast imagination and can play for hours on his own, as<br />
he is an only child right now. Henry is social and loves to befriend people. He smiles<br />
a lot and has curiosity like I have never seen.<br />
“Faith, love and support is really important when facing any challenge,” shares<br />
Henry’s mom “Enjoying the love that Henry has is so beautiful to watch. He is<br />
caring and has an old soul. I could not be more proud of Henry and love he has.<br />
My heart is a part of him and I live and breath for his success and happiness.”
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GAGE<br />
Age 4 | Retinoblastoma<br />
<strong>Little</strong> <strong>Warrior</strong> Gage was diagnosed with Retinoblastoma at just<br />
2.5 years old. He had a grade E tumor with hundreds of seeds in<br />
his right eye.<br />
Due to the size of his tumor, over 75% of his eye and complete<br />
loss of vision, his right eye was enucleated. In the last year he has<br />
been put under anesthesia over 20 times for surgery and exams,<br />
even though this is very risky for him because of his malignant<br />
hyperthermia, which means he’s allergic to anesthesia.<br />
However, nothing can slow him down. He is currently cancer free<br />
and loving life with his 2 brothers and sister and his dog.
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SERENITY<br />
Age 3 | Stage 4 Rhabdomyosarcoma<br />
139 | <strong>Little</strong> <strong>Warrior</strong><br />
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ensure that these stories are as accurate and as up-to-date as possible. If you have concerns with any of the<br />
information stated, please contact us directly at hellolittlewarrior@gmail.com.
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