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1 | <strong>Little</strong> <strong>Warrior</strong><br />

LITTLE WARRIOR<br />

DEcember 2016<br />

#<strong>Little</strong><strong>Warrior</strong>Strong Stories | Vol 1<br />

INSPIRED BY WARRIORS - FOR WARRIORS


<strong>Little</strong> <strong>Warrior</strong> | 2<br />

3 | <strong>Little</strong> <strong>Warrior</strong><br />

Every single day, 43 precious children are<br />

diagnosed with cancer, at an average age of<br />

just six years old.<br />

The following pages contain real stories of some of these incredible children as told<br />

by their loved ones. Stories of great joy from a healing, extreme grief from a loss, and<br />

incredible inspiration from a continued fight. These children are precious, adored and<br />

so loved. At just a few years, months, and even weeks old, these children face battles<br />

every single day that many of us will never have to face even one time in our adult<br />

lives. They are #<strong>Little</strong><strong>Warrior</strong>Strong.<br />

As you read these stories, I encourage you to pray for these little ones. Pray for<br />

their comfort, their strength and their health. Pray for their doctors, their nurses and<br />

their caretakers. And even more, pray for their incredible parents, siblings and family<br />

members who are bodly walking this journey with them, day in and day out.<br />

I have no doubt that after reading just a few of these stories, your heart will be<br />

forever impacted. And when it is, take action. Write a note on the support page<br />

of a specific child that tugged at your heart (listed below each child’s story), make<br />

a donation to the <strong>Little</strong> <strong>Warrior</strong> mission or another organization that supports<br />

Pediatric Cancer, or simply spread awareness by sharing this magazine with those<br />

you know.<br />

Dedicated to:<br />

<strong>Little</strong> <strong>Warrior</strong>s all over the world<br />

who inspire us everyday with their<br />

strength, courage and joy.<br />

Children battling cancer are so strong, so brave, so fierce. They are - <strong>Little</strong> <strong>Warrior</strong>s.<br />

tanya Rodriques<br />

FOUNDER


<strong>Little</strong> <strong>Warrior</strong> | 4<br />

5 | <strong>Little</strong> <strong>Warrior</strong><br />

LUKE<br />

Age 2.5 | T-Cell Acute Lymphoblastic Leukemia<br />

<strong>Little</strong> <strong>Warrior</strong> Luke is 2.5 and was diagnosed with T-Cell Acute<br />

Lymphoblastic Leukemia on January 22, 2016, when he was just<br />

18 months old. Currently, he is still in the “frontline” of hard<br />

chemotherapy treatments and still has about 4 months left. Following,<br />

Luke will continue to get maintenance chemo daily for the next 2.5<br />

years, until June 2019.<br />

Luke has had many complications along the way, with a blood clot,<br />

adrenal failure, and many neutropenic delays, but through it all he has<br />

maintained his happy, fun spirit! It has been and will be a long journey,<br />

but we his family is so thankful for all of the love and support from<br />

everyone!<br />

Follow Luke’s journey on Instagram at @lauren_modernmodesty


<strong>Little</strong> <strong>Warrior</strong> | 6<br />

7 | <strong>Little</strong> <strong>Warrior</strong><br />

GRACIE<br />

Age 3 | Retinoblastoma<br />

<strong>Little</strong> Warror Gracie was diagnosed with retinoblastoma on May<br />

16, 2016. On June 1st she had her eye removed, followed by 6<br />

months of chemotherapy. As of November 9th, 2016 Gracie is<br />

cancer free!<br />

Gracie is a free spirit, wild child with a soul full of sunshine. From<br />

day one she said she was going to kick cancers butt and she did<br />

it! Her mom shares, “There were days that I just wanted to cry,<br />

and she (Gracie) would look at me with her beautiful smile and<br />

help me get through the tough days!”<br />

Follow Gracie’s journey on Facebook at facebook.com/graciesfightagainstretinoblastoma


<strong>Little</strong> <strong>Warrior</strong> | 8<br />

AVA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

9 | <strong>Little</strong> <strong>Warrior</strong><br />

OLIVIA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 10<br />

11 | <strong>Little</strong> <strong>Warrior</strong><br />

LIBBY<br />

Age 3 | Langerhan’s Cell Hysticosis<br />

<strong>Little</strong> <strong>Warrior</strong> Libby was diagnosed with Langerhan’s Cell<br />

Hysticosis on December 4th, 2015. She is currently in treatment<br />

which includes chemotherapy, steroids, antibiotics and scans every<br />

three months.<br />

Libby just turned 3 and is a typical little girl! She loves to play<br />

dolls and dance, and loves Mickey Mouse. She just recently<br />

returned from her Make-A-Wish trip to Disney world! She is a<br />

true <strong>Little</strong> <strong>Warrior</strong> in every sense of the word!


<strong>Little</strong> <strong>Warrior</strong> | 12<br />

13 | <strong>Little</strong> <strong>Warrior</strong><br />

NOAH<br />

Age 6 | Stage 4 Alveolar Rhabdomyosarcoma<br />

<strong>Little</strong> <strong>Warrior</strong> Noah was diagnosed with Stage 4 Alveolar<br />

Rhabdomyosarcoma in July 2015. His treatment was completed<br />

at Lurie Children’s Hospital in Chicago, IL and included a 54<br />

week protocol consisting of 20 rounds of chemotherapy and 32<br />

radiation treatments. It was grueling but he made it through and<br />

is now two months cancer-free!<br />

Noah loves science experiments, dogs and riding his dirt bike.


<strong>Little</strong> <strong>Warrior</strong> | 14<br />

15 | <strong>Little</strong> <strong>Warrior</strong><br />

JULIANA<br />

Age 4 | Wilms Tumor Stage I<br />

<strong>Little</strong> <strong>Warrior</strong> Juliane was diagnosed with Wilms Tumor Stage 1<br />

right after her third birthday in November of 2015. It was at her<br />

3 year wellness checkup where they found a mass in her stomach.<br />

Juliana went through 13 Rounds of chemotherapy and had her left<br />

kidney and tumor removed at CHLA. She did amazing and fought<br />

like a “ninja turtle”! She has had one clear scan since her port was<br />

removed and will receive reoccuring scans every 3 months for 5<br />

years.<br />

She adores her big brother Gavin and all things boy, especially the<br />

Ninja Turtles. Juliana’s mom shares, “Juliana was our rainbow baby<br />

and is definitely a little warrior and our hero”.


AYLA<br />

<strong>Little</strong> <strong>Warrior</strong> | 16<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

17 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 18<br />

19 | <strong>Little</strong> <strong>Warrior</strong><br />

MASON<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

<strong>Little</strong> <strong>Warrior</strong> Mason was diagnosed with Stage 4<br />

Rhabdomyosarcoma in 2013. After a year of chemotherapy,<br />

combined with high dose radiation, he was in remission for<br />

11 months. He relapsed and continued a new combination<br />

of chemotherapy for an additional nine months. Thankfully,<br />

Mason’s MRI results have all been stable since his last<br />

treatment in July.!


<strong>Little</strong> <strong>Warrior</strong> | 20<br />

21 | <strong>Little</strong> <strong>Warrior</strong><br />

BLAKE<br />

Age 13 months | Acute Myeloid Leukemia<br />

<strong>Little</strong> <strong>Warrior</strong> Blake was diagnosed with AML (acute myeloid<br />

leukemia) at 6 months old. For seven months Blake and her<br />

family lived in the hospital as she endured intense chemotherapy<br />

rounds, radiation and a bone marrow transplant. Their family of<br />

three finally moved home after receiving the devastating news<br />

that Blake had relapsed. They spent the summer treasuring their<br />

beloved daughter and showering her with all the love in their<br />

breaking hearts. On August 15, 2016 Blake went to heaven.<br />

Blakes parents share, “We are so proud of our warrior girl and<br />

feel blessed to be her parents. Throughout her challenges and<br />

triumphs, she always smiled and spent each day discovering<br />

and learning. Blake gave her love freely and found joy in simple<br />

moments. She amazed us with her courage and resilience, and<br />

taught us a profound love that can only be felt between a parent<br />

and child. We will hold her dearly in our hearts until the sweet<br />

day we see her again.”


<strong>Little</strong> <strong>Warrior</strong> | 22<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

23 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 24<br />

25 | <strong>Little</strong> <strong>Warrior</strong><br />

JUDE<br />

Age 4.5 | Leukemia<br />

<strong>Little</strong> <strong>Warrior</strong> Jude has been bravely battling Leukemia since<br />

he was just 18 months old. He has relapsed 3 times, had a<br />

bone marrow transplant and participated in two CAR T-cell<br />

immunotherapy trials. If this had happened more than 2-3 years<br />

ago, he would not be alive today, as the therapies that have saved<br />

his life and gotten him into remission were just developed in the<br />

past couple of years.<br />

Jude is positive, funny and brave and almost always has a smile or<br />

laugh. He likes to call himself a “gamer” and loves playing video<br />

games.


<strong>Little</strong> <strong>Warrior</strong> | 26<br />

27 | <strong>Little</strong> <strong>Warrior</strong><br />

ELLIE<br />

Age 7 Months | Neuroblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Ellie was diagnosed with stage 3 neuroblastoma at<br />

only 5 weeks old. She began treatment at St. Jude just one day<br />

after diagnosis and received a total of 8 rounds of chemotherapy.<br />

The tumor was massive in comparison to her tiny body and was<br />

compressing her spinal cord.<br />

When she was around two months old, she completely lost the<br />

ability to move her lower extremities. Her doctors and nurses<br />

believed that she would never move her legs again. Ellie received<br />

15 emergency proton radiation treatments with the hopes to<br />

quickly reduce the severe spinal compression.<br />

Ellie is now 7 months old and recent scans showed no evidence<br />

of disease! She can now move her legs and her neurologist has no<br />

doubt that she will walk. Throughout all of her treatment, Ellie was<br />

her normal, happy self and brought joy to everyone around her.<br />

She loves Elmo, her kitty Phyllis, eating, being outside, and Adele.<br />

Follow Ellie’s journey on Facebook at facebook.com/cheersforellie


<strong>Little</strong> <strong>Warrior</strong> | 28<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

29 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 30<br />

31 | <strong>Little</strong> <strong>Warrior</strong><br />

ELLIE<br />

Age 3 | Neuroblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Ellie was diagnosed at 10 months old, with what was thought to be<br />

stage 2 Neuroblastoma. It came as a complete shock, because she was so healthy<br />

and happy! After Ellie’s tumor was removed at 10 months of age, Ellie had scans<br />

periodically over the next 3 years. Ellie’s parents were reassured that she had a 95%<br />

chance of never needing further treatment.<br />

Shortly before Ellie’s 4th birthday an abnormality was discovered during her routine<br />

scans again, and again, they we were reassured that it wasn’t cancer. But Ellie’s<br />

mom followed her instincts as a mother, and sure enough, it was Neuroblastoma.<br />

They also made the startling discovery that Ellie had stage IV cancer as an infant,<br />

upon further review, and had just gone 3 years with no treatment while it was left<br />

to metastasize. Because Ellie was now 4 and not 10 months old, Ellie was suddenly<br />

ooking at a 50% chance of survival and some of the most aggressive treatment<br />

there is for pediatric cancer.<br />

In June of 2015, Ellie had just turned 4 and began treatment for Neuroblastoma.<br />

To date, she has completed 8 cycles of chemotherapy, 8 weeks of proton radiation,<br />

6 cycles of antibody therapy, and 5 of 7 vaccine shots as part of a clinical trial.<br />

And somehow, has made 17 trips to New York for treatment within the past year!<br />

And the best part of all of this is that she is thriving. You would never know the<br />

extensive amount of therapy she’s had.<br />

“We always remain cautiously optimistic, knowing the relapse rate hovers at 50%.<br />

But we do our very best to live each day to the fullest and consider ourselves very<br />

fortunate that we still have a battle to fight. Ellie has given us a new purpose/<br />

direction in life. There are very few positive things that come from being told<br />

your child has cancer, and having to come to terms with the very real possibility<br />

of planning their funeral. Your mind goes to some very dark, scary places. But if<br />

there’s one thing I’m grateful for, it’s being able to fully appreciate and love the<br />

smallest of things with our children,” shares Ellie’s mom.<br />

Follow Ellie’s journey on Facebook at facebook.com/elliesplace


<strong>Little</strong> <strong>Warrior</strong> | 32<br />

33 | <strong>Little</strong> <strong>Warrior</strong><br />

GABE<br />

Age 7 | Acute Lymphoblastic Leukemia<br />

<strong>Little</strong> <strong>Warrior</strong> Gabe was diagnosed with Acute Lymphoblastic<br />

Leukemia on December 22, 2015 and was admitted to the<br />

hospital to begin treatment. That Christmas, Gabe’s family spent<br />

Christmas in the hospital, but not just because of his treatment.<br />

On December 24th 2015, his baby sister decided that she wanted<br />

to join the craziness and made her grand entrance into the world.<br />

Additionally, his little brother Fabian had to see the doctor that<br />

day too for a double ear infection.<br />

Treatment for Gabe started and went well. Once Christmas break<br />

was over, Gabe was able to go back to school, where he learned<br />

that his health/fitness teacher had also battled ALL 23 years<br />

earlier. The two have become close and Gabe now affectionately<br />

calls him, Uncle Matt instead of Mr. Browne. Even their families<br />

have become friends.<br />

Gabe shares that Uncle Matt “has helped me find ways to cope<br />

with the many difficult times. He’s been so supportive of me and<br />

he gives me hope. When I look at Uncle Matt I know I’m going<br />

to be able to beat this cancer just like he did because we are<br />

warriors!”


<strong>Little</strong> <strong>Warrior</strong> | 34<br />

35 | <strong>Little</strong> <strong>Warrior</strong><br />

AMELIA<br />

Age 6 | Stage IV High Risk Neuroblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Amelia is a six year old girl fighting Stage IV Neuroblastoma. In<br />

October of 2014, Amelia was having lower left quadrant pain, misdiagnosed<br />

with pneumonia and treated with antibiotics. When the pain came back in<br />

January, they confirmed and removed a Glioneuroblastoma tumor that was<br />

resting on her spine and aorta. After being told that there was a 5% chance<br />

of her cancer returning, her six month MRI not only showed that the tumor<br />

had regrown, but also had spread to her spine, pelvis, shoulder and skull. She<br />

was then diagnosed with High Risk Stage IV Neuroblastoma.<br />

Amelia has been through five rounds of chemotherapy including several<br />

different chemo drugs, a stem cell harvest, two surgeries, admissions due to<br />

neutropenia, immunotherapy with Ironotecan and Temodar, a Bone Marrow<br />

Transplant, twelve rounds of radiation and has just completed six months of<br />

intense Immunotherapy.<br />

In addition, her central line has prevented her from the privilege of getting<br />

wet for more than a year, she’s been sedated numerous times for scans<br />

and procedures, she’s received a number of blood and platelet transfusions,<br />

weekly bandage changes, more shots and meds that any little girl should ever<br />

receive, vomiting, diarrhea, thrush, anxiety and pain.<br />

However, throughout this entire difficult journey, Amelia has maintained her<br />

strength and determination. She smiles every day, loves to play with her<br />

brothers, help and give things to other fellow cancer warriors and worries<br />

more about others than herself. She enjoys fashion and loves to learn, sing<br />

and dance. She also loves music and adores Jason Mraz. In fact, she listens to<br />

Mraz every day, as his music has truly played an important part in her healing<br />

process. Amelia wants to make a difference and is an inspiration!<br />

Follow Amelia’s journey on Facebook at facebook.com/ameliathebrave


<strong>Little</strong> <strong>Warrior</strong> | 36<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

37 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 38<br />

39 | <strong>Little</strong> <strong>Warrior</strong><br />

AEDEN<br />

Age 6 | Stage 3 Cancer Wilms Tumor<br />

<strong>Little</strong> <strong>Warrior</strong> Aaden was an energetic three year old who enjoyed playing<br />

with his two older brothers. On July 2nd, 2013, at his three year check<br />

up, his pediatrician noticed a lump on his right kidney. An ultra sound was<br />

ordered immediately and confirmed there was, in fact, a large mass. He was<br />

rushed to American Family Children’s Hospital in Madison. Shortly after<br />

he was admitted, there was an entire team of doctors in his room. He was<br />

carted off to have a CT Scan and he was diagnosed at that time with a<br />

Stage 3 Cancer Wilms Tumor. His amazing team of doctors scheduled him<br />

for surgery the following morning to remove the entire kidney and implant a<br />

port in his chest to receive chemotherapy.<br />

The surgery went according to plan, but unfortunately while removing his<br />

right kidney it was discovered to have ruptured. This drastically changed his<br />

treatment plan. Which was originally thought to have been 7 treatments<br />

of radiation and 25 weeks of chemo, now was to include 11 radiation<br />

treatments as well as 30 weeks of chemo. This was the most aggressive of<br />

the two plans discussed prior to surgery.<br />

Aeden spent the next 6 days in the hospital recovering from surgery. His<br />

family felt a strong sense of relief but the hardest part was yet to come.<br />

Treatment was set to begin right away where he endured 11 days of<br />

radiation treatments with chemotherapy simultaneously. Throughout his<br />

treatment, Aaden endured 10 hospitalizations due to high fever, 14 blood<br />

transfusions, 15 platelet transfusions, and daily Neupogen injections to keep<br />

his white blood cells at the proper level.<br />

Through all the fight and battle Aeden continued to find reasons to smile<br />

daily! He continues to show nothing but strength!


<strong>Little</strong> <strong>Warrior</strong> | 40<br />

41 | <strong>Little</strong> <strong>Warrior</strong><br />

ETHAN<br />

Age | Rhabdomyosarcoma<br />

<strong>Little</strong> <strong>Warrior</strong> Ethan was diagnosed with Rhabdomyosarcoma at<br />

the age of six. He immediately started chemotherapy three times<br />

a week and daily radiation therapy for one year. He has lost total<br />

vision of his right eye and has had three eye surgeries to try<br />

and fix his vision, with no luck. It wasn’t until the 8th month of<br />

radiation therapy that his vision started to slowly come back. He<br />

now uses eyeglasses to help his vision improve.<br />

Ethan has had numerous procedures and complications and<br />

more hospital stays that one can imagine. Although he is still<br />

encountering side effects from the chemo and radiation, he is<br />

currently going on his 2nd month in remisión and hoping to stay<br />

healthy!<br />

Ethan has returned to school and loves it! He loves to make<br />

friends and helping others as much as possible.


<strong>Little</strong> <strong>Warrior</strong> | 42<br />

43 | <strong>Little</strong> <strong>Warrior</strong><br />

DARBEE<br />

Age 3 | Neuroblastoma<br />

In the fall of 2016, <strong>Little</strong> <strong>Warrior</strong> Darbee was taken to her local<br />

doctor because of a glow in her left eye. The doctor knew their was<br />

something in her eye but wasn’t quite sure what it was. Darbee was<br />

referred to an eye doctor who was currently out of town, so instead<br />

Darbee’s mom contacted her uncle, who informed her that this was<br />

an urgent matter.Two days later Darbee was seen by Dr. Hoffman at<br />

Primary Children’s Hospital in Salt Lake City, Utah where she was<br />

diagnosed with Retinoblastoma.<br />

The next couple of days were full of tests, doctor’s appointments and<br />

lots of traveling. It was discovered that Darbee was was stage D, with<br />

no sight in her left eye. The tumor was starting to send seeds into the<br />

eye and it was 1mm away from the optic nerve.<br />

On November 16th, Darbee had her left eye and optic nerve removed.<br />

After further testing they have diagnosed her cancer free!<br />

She was lucky and did not have to go through chemo and radiation.<br />

She will have to have cancer screening every 6 months and fittings for<br />

her prosthetic every 6 months until she stops growing, then it will just<br />

be every year. Darbee’s mom shares, “We are extremely lucky and, as it<br />

is her one year anniversary, we are feeling gratitude for everyone that<br />

helped during this last year.”


<strong>Little</strong> <strong>Warrior</strong> | 44<br />

45 | <strong>Little</strong> <strong>Warrior</strong><br />

KAELYN<br />

Age 20 months | Choroid Plexus Carcinoma<br />

<strong>Little</strong> <strong>Warrior</strong> Kaelyn was diagnosed with a brain tumor, Choroid<br />

Plexus Carcinoma, at just 4 months old. The tumor was surgically<br />

removed during an 11 hour surgery. Kaelyn received 6 months of<br />

chemotherapy at St. Jude Children’s Research Hospital in Memphis, TN.<br />

Kaelyn is now 9 months post-treatment and currently NED (no<br />

evidence of disease)! She currently has an MRI and lumbar puncture<br />

every 3 months to monitor her status.<br />

Now 20 months old, Kaelyn took her first steps a few weeks ago, is<br />

working on talking, eating food by mouth, and just being a regular<br />

toddler!<br />

Follow Kaelyn’s journey on Facebook at facebook.com/PrayersForKaelynHazelwood


<strong>Little</strong> <strong>Warrior</strong> | 46<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

47 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 48<br />

49 | <strong>Little</strong> <strong>Warrior</strong><br />

ABBIGAIL<br />

Age 19 | AML Leukemia<br />

<strong>Little</strong> <strong>Warrior</strong> Abbigail was diagnosed with AML Leukemia on<br />

September 1, 2015, at only four months old. She endured four<br />

month-long chemo treatments (including recovery) and was in<br />

remission until May 4, 2016.<br />

She endured two additional month-long treatments and two trips<br />

to the ICU before getting a bone marrow transplant from her<br />

older brother, Parker, in August of 2016.


<strong>Little</strong> <strong>Warrior</strong> | 50<br />

51 | <strong>Little</strong> <strong>Warrior</strong><br />

ALEXANDER<br />

Age 5 | Stage 3 Anaplastic Large Cell Lymphoma<br />

<strong>Little</strong> <strong>Warrior</strong> Alexander “Z” was diagnosed with Stage 3 Anaplastic<br />

Large Cell Lymphoma at only 3 years old. Unfortunately, Z was<br />

misdiagnosed for seven months, which resulted in him getting put on<br />

life-support for his biopsy due to his airway being compressed by a<br />

tumor - the cancer also devoured his T2 vertebra. He was in a lot of<br />

pain and the tumor was days away from closing his airway.<br />

During his incredible fight, Z endured: 78 pokes, 65 office visits, 52<br />

nights in the hospital, 39 scans - MRI, CT, Ultrasound, X-ray, PET, 35<br />

days of continuous fever, 35 days of inpatient chemo, 21 days+ of<br />

severe back pain and breathing problems, 8+ EKGs and Echos, 7 days<br />

in ICU, 7 sedations, 2 ER visits, 1 bronchoscopy, 1 surgery for port<br />

placement, 1 surgery for multiple biopsies,1 placement of chest tube<br />

for a collapsed lung, 1 spinal tap, 1 lumbar puncture and 1 ambulance<br />

ride... But today, the most important number of all… 4 months cancer<br />

free!<br />

Z is a strong little warrior, like so many of the sweet friends he has<br />

met along his journey! He loves to dance and play with his little<br />

brother, will be turning 5 in July and started Kindergarten in the Fall.


<strong>Little</strong> <strong>Warrior</strong> | 52<br />

53 | <strong>Little</strong> <strong>Warrior</strong><br />

BEN<br />

Age 4 | Acute Lymphoblastic Leukemia (ALL)<br />

<strong>Little</strong> <strong>Warrior</strong> Ben was diagnosed on March 20, 2016 with<br />

standard risk Acute Lymphoblastic Leukemia (ALL). He just<br />

entered long-term maintenance and has been such a trooper,<br />

he has done remarkably well with treatment! He has been<br />

appropriately nicknamed “Brave Ben”!<br />

Ben loves race cars, is very smart and is starting to read. “We<br />

hope and pray for his forever remission and that he is able to live<br />

up to his full potential in life.” shares his mom.<br />

Follow Ben’s journey on Facebook at facebook.com/BelieveForBen


<strong>Little</strong> <strong>Warrior</strong> | 54<br />

55 | <strong>Little</strong> <strong>Warrior</strong><br />

BLAKE<br />

Age 2 | Hereditary Bilateral Retinoblastoma<br />

Blake Ryan Bratcher, Born on September 28, 2014. FIGHTER,<br />

Diagnosed with Hereditary Bilateral Retinoblastoma on January 8,<br />

2015. Left eye enucleated on October 9, 2015. January 28, 2016<br />

Blake got his ocular prosthesis. Currently still having monthly eye<br />

Exams Under Anesthesia.


<strong>Little</strong> <strong>Warrior</strong> | 56<br />

57 | <strong>Little</strong> <strong>Warrior</strong><br />

KATE<br />

Age 2 | Neuroblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Kate was diagnosed with Neuroblastoma at just 7<br />

months old, after months of seeking answers as to why she was<br />

not eating. It was discovered that a tumor in her abdomen and<br />

cancer in her bone marrow was the cause.<br />

Currently, at two years old, recent scans show good results for<br />

Kate. While her tumor is still present, there has been no change in<br />

its size or a display of active cells. Kate’s doctor is confident that<br />

she can be declared cancer free!<br />

Throughout it all, Kate has kept a fighting spirit and refuses to be<br />

slowed down. Kates mom writes, “We are so thankful for Kate’s<br />

health today. She is a strong, spunky, sassy, loving little girl!”


<strong>Little</strong> <strong>Warrior</strong> | 58<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

59 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 60<br />

61 | <strong>Little</strong> <strong>Warrior</strong><br />

EMMY<br />

Age 3 | NUT Midline Carcinoma<br />

<strong>Little</strong> <strong>Warrior</strong> Emmy was diagnosed with NUT Midline Carcinoma<br />

in 2015. Less than one year later, Emmy’s parents were given the<br />

devastating news that there was nothing more that they could<br />

do for their sweet girl. On March 2, 2016, Emmy passed away<br />

peacefully her moms arms.<br />

“Emmy was full of spunk. Had her mamas attitude to the t. She<br />

was perfect in so many ways. I will forever miss my baby girl.<br />

But I’m relieved she isn’t in anymore pain... The nasty C may<br />

have taken [Emmy] away but her spirit will live on forever in our<br />

hearts. There will never be a day that I don’t think about her,”<br />

writes Emmy’s mom.<br />

Emmy was a beautiful, bright-eyed tomboy. She was the middle<br />

of three children and loved Mickey Mouse and Strawberry<br />

Shortcake. She loved snuggling up with her blankets (as you see<br />

here, with one of her collection of 10!) and the color purple.<br />

Emmy is SO loved, and one of the very inspirations behind the<br />

<strong>Little</strong> <strong>Warrior</strong> shirt. She will always be a little warrior, but more<br />

importantly, a beautiful, precious little girl, who at just 3 years old,<br />

captured the hearts of many.


<strong>Little</strong> <strong>Warrior</strong> | 62<br />

63 | <strong>Little</strong> <strong>Warrior</strong><br />

WYATT<br />

Age 3 | Rhabdomyosarcoma<br />

<strong>Little</strong> <strong>Warrior</strong> Wyatt is 2 years old and has been fighting<br />

Rhabdomyosarcoma for over a year. During the course of his<br />

treatment, he had to have half of his leg muscle removed, but<br />

even then, this amazing little man has refused to slow down! His<br />

momma shares that, although he is on the last defense line of<br />

chemo, they are almost done with treatment!


<strong>Little</strong> <strong>Warrior</strong> | 64<br />

65 | <strong>Little</strong> <strong>Warrior</strong><br />

ADDIE<br />

Age 3 | Neuroblastoma<br />

L<strong>Little</strong> <strong>Warrior</strong> Addie was diagnosed with Pre-B Cell ALL in<br />

March of 2016 at three years old. She has been so brave through<br />

all of her treatments and has now made it through the more<br />

intense chemo and recently started maintenaince. She will be in<br />

treatment for Leukemia until May 2018.<br />

Addie lives in Alabama with her twin sister Lainey and big sister<br />

Lyla, who is six. She loves animals, baby dolls, riding her scooter,<br />

music and dancing, coloring and crafts. She’s a little comedian<br />

around the house and loves to make people laugh. Addie also<br />

goes by the nickname toughie. She’s very boisterous and hard<br />

headed but also extremely loving!<br />

Addie’s mom shares, “We have been very blessed throughout this<br />

journey. We have met so many wonderful people and our lives<br />

will be changed forever. Thank you for the support! Eight months<br />

down... two years to go!”<br />

Follow Addie’s journey on Facebook at facebook.com/addieshope


<strong>Little</strong> <strong>Warrior</strong> | 66<br />

HAYES<br />

67 | <strong>Little</strong> <strong>Warrior</strong><br />

Age 3 | Stage 4 Rhabdom<br />

BEAUX<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 68<br />

69 | <strong>Little</strong> <strong>Warrior</strong><br />

CARTER<br />

Age 5 | Neuroblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Carter, a.k.a Super Carter, was diagnosed with Acute<br />

Lymphoblastic Leukemia at the young age of four.<br />

On September 25, 2015, Carter had been fighting a week-long fever<br />

and started to become non-responsive. He was rushed to the local<br />

ER, where he was immediately taken for blood work. The blood work<br />

showed that his red blood cells were so low that he risked falling into<br />

a coma and he was sent by ambulance to Helen Devos Children’s<br />

Hospital in Grand Rapids, MI.<br />

Over the next two days, he received several blood transfusions to get<br />

his body healthy enough for a bone marrow aspiration. On September<br />

27, his bone marrow showed that it was full of 85% Leukemia cells. He<br />

received his first chemo that very same day and underwent surgery to<br />

have a port placed in his chest. He will have a total of 3 years and 4<br />

months of chemotherapy.<br />

Throughout all of the “pokies”, sedations, and pills, Carter is always<br />

smiling! He takes it all in stride and loves his doctors and nurses. When<br />

he grows up, he’d like to be a police officer and a pediatric oncology<br />

nurse. He says he wants to keep people safe, but also give kids their<br />

chemo so that he can tell them how to not be afraid. He loves police<br />

officers, superheroes, and making people laugh.<br />

Follow Carter’s journey at www.supercarter.com


<strong>Little</strong> <strong>Warrior</strong> | 70<br />

71 | <strong>Little</strong> <strong>Warrior</strong><br />

BEN<br />

Age 6 | Leukemia<br />

<strong>Little</strong> <strong>Warrior</strong> Ben was diagnosed with Leukemia when he was<br />

just three years old and has been in treatment ever since. He is<br />

one of 5 brothers and amazes those around him everyday. If all<br />

goes according to plan, he is expected to finish treatment in 2017.


<strong>Little</strong> <strong>Warrior</strong> | 72<br />

73 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 74<br />

75 | <strong>Little</strong> <strong>Warrior</strong><br />

ELIJAH<br />

Age 5 | Stage 4 Neuroblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Elijah is five years old and bravely battling Stage<br />

4 Neuroblastoma. In December of 2015, he was declared in<br />

remission, but just three short months later, this March, received<br />

the news that the cancer had returned.<br />

After more treatment, Elijah’s family again received a second<br />

relapse report this December (2016). He recently had surgery,<br />

in which the doctors believe all the cancer was removed. He will<br />

then move onto chemotherapy and radiation with the hopes that<br />

clear scans will follow!<br />

Elijah is very funny and quick witted. All the nurses love him and<br />

he is known for his amazing smile and for being a good patient.<br />

He loves to play his xbox and is a zombie shooting pro. He also<br />

loves Dinosaurs and was lucky enough to meet Chris Pratt from<br />

Jurassic World at the Ronald McDonald House during one of our<br />

stays.<br />

Elijah also enjoys wrestling with daddy and his brother, and playing<br />

Minecraft with his “sissy”.


<strong>Little</strong> <strong>Warrior</strong> | 76<br />

77 | <strong>Little</strong> <strong>Warrior</strong><br />

ALAYNA<br />

Age 3 | Neuroblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Alayna was diagnosed with Leukemia in January of 2016. After<br />

noticing some bruising on Alayna, her mom old, took her to the doctor and found<br />

out within 10 minutes that their sweet, beautiful, innocent little girl had Leukemia.<br />

Alayna’s mom shares that they try to find joy in even the worst of situations. Maybe<br />

it’s a dance party. Maybe it’s a good cup of coffee or a cute pair of comfy legging.<br />

Maybe it’s just a laugh in the middle of our hot mess. No matter how big or small,<br />

they choose joy.<br />

In the last nine months Alayna and her family have spent over 100 days in the<br />

hospital and have been to clinic more times than not. Chemo, fevers, medicine, and<br />

infection have all become a part of who they are, and a part their story. Alayna is<br />

currently in remission, but treatment for Leukemia has to continue on for 2 1/2<br />

years.<br />

“I always like to say I would have never chosen cancer for us or for anyone, but<br />

I also wouldn’t change it for the world. It’s made us stronger and more thankful.<br />

Perspective sometimes slaps you in the face. And on those days when I want to<br />

complain and think that my life is hard, the Lord reminds me that this is only my<br />

journey and not anyone else’s, and that there’s so many other people that are<br />

going through so many worse things than we are. They always say that the Lord<br />

won’t give you anything you can’t handle, but I don’t think that’s true. I think the<br />

Lord chooses to gives you what you can’t handle so that your only real option is to<br />

depend on Him. Our journey is our journey, and we’re learning from it even on the<br />

hardest of days, but I think the real reason that we have joy in the middle of this<br />

crazy storm is that we have a Hope that is far greater than cancer, death, or this<br />

world. No matter what happens, we know Laney will be okay and that the Lord<br />

will show up, and show off in the situation, and for that reason we just choose joy,”<br />

shares Alayna’s mom.<br />

Laney Bug’s favorite things are all things Disney, Baby Dolls, and any kind of candy!<br />

Follow Alayna’s journey on Facebook at Beautifully Complete: Prayers for Alayna Hope


<strong>Little</strong> <strong>Warrior</strong> | 78<br />

79 | <strong>Little</strong> <strong>Warrior</strong><br />

GRAYSON<br />

Age 2 | Bilateral Retinoblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Grayson was diagnosed with Bilateral<br />

Retinoblastoma, a rare form of eye cancer, when he was just two<br />

months old.<br />

Recently, Grayson received positive reports that he is all clear in<br />

both eyes! His doctor also shared how impressed they are with<br />

how well he is doing considering the amount of treatment he has<br />

gone through.<br />

As Grayson’s mom writes, “Just goes to show what strength,<br />

courage, determination, and faith will get you. We are so beyond<br />

happy with our little super hero.”<br />

Grayson is a happy, sweet little boy who loves his big sister Lyla,<br />

his puppy dog, Trooper, and keeping his mom and dad very busy!


<strong>Little</strong> <strong>Warrior</strong> | 80<br />

81 | <strong>Little</strong> <strong>Warrior</strong><br />

BENTLEY<br />

Age 3 | Langerhans Cell Histiocytosis<br />

<strong>Little</strong> <strong>Warrior</strong> Bentley’s journey started a year ago with an ear<br />

infection that didnt seem to be getting better. Four weekly visits<br />

to the doctor finally resulted in Bentley getting a MRI, where two<br />

tumors were discovered - one at the base of his neck and the<br />

second on his back bone, spreading to two of his ribs. Bentley<br />

spent a week in the hospital doing tests, labs, biopsy and a<br />

hickmen placement. Finally, the day before Thanksgiving, Bentley<br />

was diagnosed with Langerhans Cell Histiocytosis.<br />

His journey has been filled with ups and downs, from neutropenic<br />

fevers, dehydration, RSV, central line infection & replacements to<br />

MRI’s, chemo burn on the inside and so on. He is still fighting his<br />

fight and through it all he does it with his heartwarming smile.<br />

Bentley is the youngest of five children, loves to sing along to<br />

songs in the car, going for walks with his oldest sister and any and<br />

all types of cats.<br />

Follow Bentley’s journey on Facebook at Bentley’s Battle with Langerhans Cell Histiocytosis (L.C.H.)


<strong>Little</strong> <strong>Warrior</strong> | 82<br />

83 | <strong>Little</strong> <strong>Warrior</strong><br />

GEMMA<br />

Age 4 | Glioma Astrocytoma<br />

<strong>Little</strong> <strong>Warrior</strong> Gemma was diagnosed 2.5 years ago with an inoperable<br />

Glioma Astrocytoma tumor. Over the course of those years she has<br />

received, 1 biopsy surgery, which took away her ability to walk and left<br />

her left side incredibly weak, 1 year of weekly Chemo, 9 months of biweekly/monthly<br />

Avastin, 9 months of watch and wait, 2 eye surgeries<br />

and countless scans.<br />

However, recently Gemma had her port removed and was able to ring<br />

the bell for the end of treatment!<br />

Gemma’s mom writes, “It’s the end... at least for now, and that is good<br />

enough for us. God has been with us every single step of this journey.<br />

Through the highs and the lows... every single step. If you ever wonder<br />

how you would do when you are faced with a situation that just seems<br />

too tough...just look up and know how much God loves you.<br />

HE will get you through it all. We are so grateful for Gemma’s<br />

progress and her strength and we are looking forward to a happy<br />

and healthy 2017.”<br />

Gemma loves firetrucks, garbage trucks and the color red and is her<br />

family’s little warrior!


<strong>Little</strong> <strong>Warrior</strong> | 84<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

85 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 86<br />

87 | <strong>Little</strong> <strong>Warrior</strong><br />

JAYDEN<br />

Age 4 | Retinoblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Jayden was diagnosed with Retinoblastoma, a rare<br />

eye cancer, at just 15 months old. He went through 6 rounds<br />

of chemotherapy, had his right eye removed and is rocking his<br />

prosthetic eye or as his family calls it, his “special eye”. He wears<br />

glasses to protect his good eye.<br />

He has been stable for 33 months and goes under anesthesia for<br />

eye exams and scans every 6 months to make sure the cancer<br />

is still gone. He has been brave through it all and continues to<br />

amaze those around him!<br />

Jayden loves to ride his bike, go hiking, play cars and do Legos. He<br />

also loves to do art projects and explore.<br />

In this photo, Jayden is wearing his shirt at the ocularist (eye<br />

maker) and is waiting for them to finish cleaning and polishing<br />

it. Jayden’s mom shares, “I think he is so brave and tough in this<br />

photo. He is beautiful with or without two eyes.”


<strong>Little</strong> <strong>Warrior</strong> | 88<br />

89 | <strong>Little</strong> <strong>Warrior</strong><br />

ELIJAH<br />

Age | Retinoblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Elijah was diagnosed with Retinoblastoma at just<br />

seven weeks old. Due to the extent of the disease, his right eye<br />

was removed. 12 weeks later, tumors were discovered in his<br />

remaining eye. Since that time, Elijah and his family have been<br />

traveling from California to New York every 4-6 weeks for his<br />

care. They are still fighting to save his vision in his remaining eye.<br />

Elijah is the youngest of seven children who adore him and pray<br />

fervently for his healing and that he will retain his sight.


<strong>Little</strong> <strong>Warrior</strong> | 90<br />

91 | <strong>Little</strong> <strong>Warrior</strong><br />

ISLA<br />

Age 3 | Stage 4 High Risk Neuroblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Isla is a fierce, three year old fighting Stage 4 High<br />

Risk Neuroblastoma. In Febraury of 2016, Isla and her family<br />

received the wonderful news that her scans were clear! However,<br />

due to the high relapse rate of this type of Neuroblastoma, Isla<br />

has continued treatment in order to prevent relapse. She has had<br />

several scans since and all remain clear!<br />

She loves dancing, Brussels sprouts, christmas carols, cooking, her<br />

big brother, Elliot, and playing Mommy with her dolls. She aspires<br />

to be a doctor, a stand up comedian and “an old lady”!


<strong>Little</strong> <strong>Warrior</strong> | 92<br />

93 | <strong>Little</strong> <strong>Warrior</strong><br />

ISABEL<br />

Age 3 | Spinal Cord Tumor<br />

<strong>Little</strong> <strong>Warrior</strong> Isabel, also know as Izzy <strong>Warrior</strong> Princess, was<br />

diagnosed with a spinal cord tumor shortly before her first<br />

birthday. Because the tumor could not be safely removed, Isabel<br />

underwent 42 rounds of chemo over 14 months.<br />

Recently, a year after her life-saving transfusion and 10 months<br />

since her last chemo infusion, Isabel had her regular check up<br />

at clinic. Her oncologist (and everyone) is so pleased with how<br />

she’s doing and said the tumor looks stable! She will continue to<br />

be monitored and have scans and just had her first chemo-free<br />

Christmas!<br />

Isabel is a fighter and works hard everyday to get better. She<br />

loves music and wants to play hockey when she is able!<br />

Follow Isabel’s journey on Facebook at Izzy <strong>Warrior</strong> Princess


<strong>Little</strong> <strong>Warrior</strong> | 94<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

95 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 96<br />

97 | <strong>Little</strong> <strong>Warrior</strong><br />

TALIA & ANTHONY<br />

Age 3 & 4 | Wilms Tumor & Ganglio Neuroblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> duo Talia and Anthony Pisano were diagnosed<br />

with unique cancers at just 11 months and 2 years old. Talia was<br />

diagnosed with Wilms cancer in 2014 and just 7 months later,<br />

right before his third birthday, Anthony was diagnosed with<br />

Ganglio Neuroblastoma. However, we are excited to share that<br />

they both are currently off treatment and have been cancer free<br />

for the entire year of 2016!<br />

They continue to havea frequent scans, and while their treatments<br />

have caused long-term side effects and complications, Talia and<br />

Anthony are both happy and doing well!<br />

Anthony loves Batman and Talia loves Princesses. They both love<br />

to play in the backyard, play with play dough and spend lots of<br />

time together. They argue like close siblings do, but they love<br />

each other! Talia and Anthony also have an older brother names<br />

Vincent, who is 10 years old.


<strong>Little</strong> <strong>Warrior</strong> | 98<br />

99 | <strong>Little</strong> <strong>Warrior</strong><br />

MASON<br />

Age 5 | Acute Lymphoblastic Leukemia<br />

On July 8, 2015, <strong>Little</strong> <strong>Warrior</strong> Mason was diagnosed with Acute<br />

Lymphoblastic Leukemia (ALL), a type of cancer in which the<br />

bone marrow makes too many immature white blood cells. He<br />

began his first round of treatment thereafter, in which it was<br />

found that he was extremely sensitive to, causing him to have<br />

high blood sugar, high blood pressure, and temporarily unable<br />

to produce insulin on his own. Mason was also diagnosed with<br />

Aspergillus - a serious fungal infection in his lungs, kidneys, head<br />

and spine.<br />

Mason lives in Hawaii and is a tudent at St. Michael’s Preschool<br />

in Waialua. He enjoys the beach, fishing and all things dinosaurs.<br />

When he and his big sister Taylor aren’t catching fish in their spare<br />

time, he is always having a good time with family and friends.<br />

Through it all, hasn’t lost this contagious smile!


<strong>Little</strong> <strong>Warrior</strong> | 100<br />

101 | <strong>Little</strong> <strong>Warrior</strong><br />

HAILEY<br />

Age 2 | Medulloblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Hailey was diagnosed with Medulloblastoma just<br />

two days after her first birthday. The tumor in her brain was<br />

removed within days and she started chemotherapy. In April of<br />

2016, Hailey began her final round of chemo, followed by a stem<br />

stell transplant.<br />

Her most recent MRI results were stable with No Evidence of<br />

Disease! She is 15 months cancer free.<br />

Hailey is so brave, loves Toy Story and bullying her big sister (as<br />

any good little sister should)!


<strong>Little</strong> <strong>Warrior</strong> | 102<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

103 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 104<br />

105 | <strong>Little</strong> <strong>Warrior</strong><br />

TYLER<br />

Age 6 | Stage IV Neuroblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Tyler was diagnosed with Stage IV Neuroblastoma<br />

in August of 2015, at the age of five. His only symptoms were loss<br />

of appetite and stomach pains for two weeks, which eventually<br />

led to an ER visit because the pain was too great to sleep.<br />

Ultrasounds were conducted and showed a 13cm tumor in his<br />

abdomen. Further scans also showed a 6cm tumor in his chest.<br />

Tyler’s treatments took place at Kaiser Santa Clara in California,<br />

while his surgeries were at Memorial Sloan Kettering in New York<br />

City. Three surgeries, eight rounds of chemo, twelve sessions of<br />

radiation, five rounds of immunotherapy and 15 months later, Tyler<br />

is in remission!<br />

Since 50% of Neuroblastoma kids relapse the first year, Tyler will<br />

move on to a clinical trial of Neuroblastoma vaccine at Memorial<br />

Sloan Kettering to try to keep the monster away.


<strong>Little</strong> <strong>Warrior</strong> | 106<br />

107 | <strong>Little</strong> <strong>Warrior</strong><br />

SPENCER<br />

Age 18 months | Bilateral Retinoblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Spencer was diagnosed with Bilateral<br />

Retinoblastoma in November of 2015, at just six months old. He<br />

is currently 18 months old and travels from Kansas to Memorial<br />

Sloan Kettering Cancer Center in New York City every 4-6 weeks<br />

for treatment.<br />

Spencer went through three rounds of intra-arterial<br />

chemotherapy and one round of laser. The tumor was declared<br />

calcified/dead. However, in May of 2016, two new tumors were<br />

discovered, this time in his left eye. Because of their size, laser<br />

treatment was done.<br />

Spencer is still fighting. He recently had growth on one of the<br />

tumors in his left eye, in which was followed by more laser work.<br />

However, at his last exam, the results showed no new growth!<br />

Follow Spencer’s journey on Facebook at facebook.com/eyefightforspencer


<strong>Little</strong> <strong>Warrior</strong> | 108<br />

109 | <strong>Little</strong> <strong>Warrior</strong><br />

ASHER<br />

Age 3 | Retinoblastoma<br />

When <strong>Little</strong> <strong>Warrior</strong> Asher was just four months old, his mom<br />

noticed the indicative Retinoblastoma “glow” in his right eye while<br />

taking a photo with a flash on her phone. Being a Registered<br />

Nurse herself, she knew right away that it was cancer.<br />

Asher is now two years old and has been bravely fighting<br />

Retinoblastoma ever since. Last year he completed 6 months of<br />

chemotherapy and was put under anesthesia 25 times for eye<br />

exams with laser therapy.<br />

Most recently, Asher’s scans have come back showing active<br />

growth. However, his parents are relieved and thankful that with<br />

laser treatments, they are keeping these recurrences at bay. As his<br />

mom writes, “Asher’s case of Retinoblastoma has been a stubborn<br />

little beast, but we are still confident that Asher will take this<br />

beast down!”<br />

Asher is fighting and happy! He loves cookies, trains, his big sisters,<br />

hopping on people’s back’s and yelling “Go!” and trying to ride his<br />

cats.


<strong>Little</strong> <strong>Warrior</strong> | 110<br />

111 | <strong>Little</strong> <strong>Warrior</strong><br />

ZOË<br />

Age 2 | Atypical Teratoid Rhabdoid Tumor.<br />

<strong>Little</strong> <strong>Warrior</strong> Zoë is wo years old and battling a unique brain tumor. Her fight<br />

started when she was just 15 months old and her doctors spoke one word - cancer!<br />

At the time her family lived in Honolulu, Hawaii where her father was stationed<br />

with the US Army. Because Zoë was/is so young and her case so unique, her family<br />

requested to be moved closer to family and to be seen at a specialty children’s<br />

hospital - in the military this is called “compassion reassignment.” This was criticaly<br />

for them, as Zoë’s mom was well into her third pregnancy and expecting twin boys!<br />

“Not only was compassionate reassignment a blessing, so was the unit my husband<br />

was attached to. They have been more than understanding and willing to help<br />

us out in ways I didn’t even know were possibilities for us. Zoë’s father is able to<br />

be with her at the hospital while I am home with our other children. Having the<br />

flexibility and opportunity to be there for your sick child is a must, and I feel a<br />

huge part of this being available to us is due to Zoë’s father serving in the United<br />

States Army” shares Zoë’s mom.<br />

With their arrival at Vanderbilt Children’s Hospital in Tennessee, Zoë’s doctors<br />

literally worked around the clock on her very unique case. Her diagnosis has<br />

changed at least three times since September 2015. In October her tumor was<br />

diagnosed as a brain tumor: “ATRT” Atypical Teratoid Rhabdoid Tumor.<br />

Zoë underwent six rounds of chemotherapy where she was admitted to the<br />

hospital, and each round lasted two to three weeks. Zoë was also seen at St. Louis<br />

Children’s Hospital, were she underwent 26 radiation treatments called Proton<br />

Therapy. Even though Zoë will still be recovering and has check ups every three<br />

months for the first year, she has been officially declared in remission.<br />

“Zoë is a beautiful ray of sunshine in this dark storm and when we hear the words<br />

“‘cancer free’ the skies will clear and a perfect rainbow will appear showing us the<br />

promise for a better tomorrow,” shares Zoë’s mom. “Though Zoë be but little, she<br />

is fierce!“<br />

Follow Zoë’s journey on Facebook at facebook.com/fightingforzoe


<strong>Little</strong> <strong>Warrior</strong> | 112<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

113 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


<strong>Little</strong> <strong>Warrior</strong> | 114<br />

115 | <strong>Little</strong> <strong>Warrior</strong><br />

MASON<br />

Age 3 | Pre B Acute Lymphoblastic Leukemia<br />

<strong>Little</strong> <strong>Warrior</strong> Mason was diagnosed with Pre B Acute<br />

Lymphoblastic Leukemia at age 2 on December 26, 2015. The first<br />

part of his treatment journey included several hospital stays and a<br />

few scary moments but otherwise he sailed right through.<br />

Currently, Mason struggles with some on and off walking issues<br />

associated with his chemotherapy and a few daily med side effects<br />

as well, but all-in-all is doing really well! He is now three years old<br />

and will be in treatment until March 2019.<br />

He loves his older brother and sister and doesn’t like to be apart<br />

from them! He loves all things dinosaur and sharks, Paw Patrol<br />

and PJ Mask! He is a boy through and through!<br />

Mason’s mom shares, “We are thankful for our family as well<br />

as our wonderful church family who have walked with us hand<br />

in hand through some of the most difficult and even easier<br />

moments! Our gracious Lord has shown us his love, peace and<br />

comfort throughout our journey and we can’t wait to see all he<br />

will do in and through Mason’s life!”


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117 | <strong>Little</strong> <strong>Warrior</strong><br />

LIAM<br />

Age 3 | Bilateral Retinoblastoma<br />

<strong>Little</strong> Warior Liam was diagnosed with Stage IV High Risk<br />

Neuroblastoma when he was 21 months old. Following diagnosis,<br />

he spent 8 months in and out of the hospital doing 5 rounds of<br />

chemotherapy, surgery, stem cell transplant, radiation, and one<br />

round of immunotherapy.<br />

In January of 2016, Liam and his family received wonderful news<br />

that he was declared NED. However, shortly after that summer,<br />

Liam relapsed. MRIs showed the tumors were back. This time in the<br />

base of his brain, right ear, and left ear. Neuroblastoma is incredibly<br />

hard to beat when it’s throughout the body. And, once it goes to<br />

the central nervous system it’s nearly impossible to beat. Liam<br />

passed away on October 8, 2016.<br />

Liam amazed all that followed his story. He had a contagious smile<br />

and handled all the tough treatments better than anyone could<br />

imagine. As Liam’s mom writes, “Liam is our light and was a light to<br />

so many and always let his light shine.”


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119 | <strong>Little</strong> <strong>Warrior</strong><br />

SOFIA<br />

Age 7 | Acute Lymphoblastic Leukemia<br />

<strong>Little</strong> <strong>Warrior</strong> Sofia was diagnosed with Acute Lymphoblastic<br />

Leukemia in January of 2016 at the age of 7.<br />

In the months since, Sofia has continually astonished those<br />

around her with her courage and adaptability. Sofia’s mom shares,<br />

“Everyday I look at her and wonder how such a tiny little girl can<br />

possibly withstand all the endless appointments, needles, tests,<br />

chemos, medications and hospital stays without even complaining<br />

much at all. Our favorite quote that seems to sum up Sofia is<br />

‘Though she be but little, she is fierce.’”<br />

Sofia loves arts and crafts, has an impressive stuffed penguin<br />

collection and loves designing new outfits for her dolls. She enjoys<br />

playing with friends, watching movies, spending time with her<br />

family and hopes to be a fashion designer when she grows up.


<strong>Little</strong> <strong>Warrior</strong> | 120<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

121 | <strong>Little</strong> <strong>Warrior</strong><br />

REESE<br />

Age 3 | Stage 4 Rhabdomyosarcoma


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123 | <strong>Little</strong> <strong>Warrior</strong><br />

BEN<br />

Age 13 Months | Stage IV Extrarenal Malignant Rhabdoid tumor<br />

<strong>Little</strong> <strong>Warrior</strong> Ben was born on April 3, 2015 and was a cheerful,<br />

cuddly baby, the light of his parents lives. He loved playing with his<br />

two older sisters, Hannah and Rebecca, and they adored him right<br />

back.<br />

Ben was diagnosed with Stage IV Extrarenal Malignant Rhabdoid<br />

Tumor at 10 months old, and unfortunately passed away after just<br />

3.5 months of treatment, at 13 months 9 days old.<br />

Ben was never able to wear his <strong>Little</strong> <strong>Warrior</strong> shirt as he passed<br />

away before he was able to grow into it.


<strong>Little</strong> <strong>Warrior</strong> | 124<br />

125 | <strong>Little</strong> <strong>Warrior</strong><br />

ALICE<br />

Age 4 | Stage IV High Risk Neuroblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Alice was diagnosed with Neuroblastoma one month after her 3rd<br />

birthday. She went through the standard treatment: chemotherapy, surgery, stem<br />

cell transplant, proton radiation, immunotherapy and more proton radiation. Along<br />

the way, a spot was discovered on her skull that was missed on the previous scans.<br />

Immunotherapy took care of that spot and Alice was declared no evidence of<br />

disease in May 2015.<br />

Alice is currently enrolled in a clinical trial where she will take medication twice a<br />

day for two years in the hopes of preventing relapse. During Alice’s treatment, she<br />

has been treated at 7 different hospitals for various stages of her treatment. She<br />

has been away from our home state for a total of 6 months and has spent over 190<br />

days in the hospital.<br />

“The thing that inspires me is that through all of this, she makes the best of the<br />

situation. Through the worst parts of treatment, she never asked “why me” or<br />

complained. Yes, she would let us know when she hurt and yes she would cry and<br />

ask to not have her port accessed, but she never complained. We built tents in<br />

our room during periods of isolation, she’s led parades through the halls of the<br />

hospital, and gone on scavenger hunts around the floor. She’s also kept her sense<br />

of humor.’” shares Alice’s mom.<br />

If you ask Alice what it means to have cancer, she will tell you that it’s lots of<br />

doctors and hospitals and is super boring. She doesn’t talk about the pain. Alice and<br />

her mom were talking one day when out of the blue she asked if her best friend<br />

had cancer. Her mom told her no and asked why. She explained how that was good<br />

because she never wanted her friend to have cancer.<br />

Alice loves her baby dolls and she wants to be a mommy when she grows up.<br />

Follow Alice’s journey on Facebook at facebook.com/alicesavengers


<strong>Little</strong> <strong>Warrior</strong> | 126<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

127 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


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129 | <strong>Little</strong> <strong>Warrior</strong><br />

ELLIS<br />

Age 17 months | Bilateral Retinoblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Ellis was diagnosed with Bilateral Retinoblastoma<br />

in September 2015 when he was just 3.5 months old. After<br />

discovering a glow in Ellis’ eye, he was taken to an opthamologist<br />

and upon leaving the clinic, received the devestating call with his<br />

diagnosis and instructions to be at St. Jude on Sunday (just two<br />

days away) to beding treatment.<br />

Ellis completed 6 rounds of chemotherapy, laser therapy, countless<br />

EUA’s (exams under anesthesia) and, as of today, has had clear<br />

exams with no treatment needed for 20 weeks! He will continue<br />

to have exams every 5-6 weeks for a while and space them out as<br />

time goes on.<br />

Ellis has two older siblings, brother - Patton 6, and sister - Paige 5,<br />

who adore him and love him so, so much. As his mom shares, “He<br />

is such a strong boy, and amazes us every single day!”


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131 | <strong>Little</strong> <strong>Warrior</strong><br />

LANDEN<br />

Age | Pre B Cell Acute Lymphoblastic Leukemia<br />

In August 2016 <strong>Little</strong> <strong>Warrior</strong> Landen went to the local<br />

emergency room for what the doctor’s were convinced was a<br />

case of appendicitis. After being transferred to Doernbecher’s<br />

Children’s hospital, Landen was diagnosed with Pre B Cell Acute<br />

Lymphoblastic Leukemia and began treatment immediately.<br />

Within the first few weeks of treatment Landen suffered<br />

compression fractures to the L1-L3 vertebrae of his spine and<br />

was put in a full back brace that he will continue to wear until<br />

spring 2017. Landen reached remission after 6 weeks of treatment<br />

and continues to fight every single day!


<strong>Little</strong> <strong>Warrior</strong> | 132<br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

133 | <strong>Little</strong> <strong>Warrior</strong><br />

AYLA<br />

Age 3 | Stage 4 Rhabdomyosarcoma


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135 | <strong>Little</strong> <strong>Warrior</strong><br />

HENRY<br />

Age 3 | B Cell ALL<br />

On Sunday, February 1, 2015 <strong>Little</strong> <strong>Warrior</strong> Henry began running a fever. After<br />

initially chalking it up to teething or maybe the flu, he was taken to his pediatrician<br />

where he tested positive for the flu. Henry’s doctor also noticed some bruising on<br />

him and decidid to run his blood, due to the nature of the bruising.<br />

Henry got medicine for the flu and returned home, but soon after received a call<br />

that his platelet count was low. They were told to go to University of Minnesota<br />

Children’s emergency room. After being sent home with the possibility that it may<br />

be a platelet disorder, it was discovered that there were some oddities in his results.<br />

Henry was admitted that day and through a series of further tests, was officially<br />

diagnosed with B Cell ALL on February 4th, 2015.<br />

Since, Henry has been in surgery to place a port to deliver<br />

medications more effectively. He has begun chemo and numerous tests and is on<br />

the road to recovery.<br />

There have been many ups and downs since Henry’s diagnosis. Some ER visits, colds,<br />

ear infections, low counts, etc. A normal routine with someone who has cancer.<br />

Henry is a very happy boy. He loves cars, construction vehicles, building blocks,<br />

legos and reading. He has a vast imagination and can play for hours on his own, as<br />

he is an only child right now. Henry is social and loves to befriend people. He smiles<br />

a lot and has curiosity like I have never seen.<br />

“Faith, love and support is really important when facing any challenge,” shares<br />

Henry’s mom “Enjoying the love that Henry has is so beautiful to watch. He is<br />

caring and has an old soul. I could not be more proud of Henry and love he has.<br />

My heart is a part of him and I live and breath for his success and happiness.”


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137 | <strong>Little</strong> <strong>Warrior</strong><br />

GAGE<br />

Age 4 | Retinoblastoma<br />

<strong>Little</strong> <strong>Warrior</strong> Gage was diagnosed with Retinoblastoma at just<br />

2.5 years old. He had a grade E tumor with hundreds of seeds in<br />

his right eye.<br />

Due to the size of his tumor, over 75% of his eye and complete<br />

loss of vision, his right eye was enucleated. In the last year he has<br />

been put under anesthesia over 20 times for surgery and exams,<br />

even though this is very risky for him because of his malignant<br />

hyperthermia, which means he’s allergic to anesthesia.<br />

However, nothing can slow him down. He is currently cancer free<br />

and loving life with his 2 brothers and sister and his dog.


<strong>Little</strong> <strong>Warrior</strong> | 138<br />

SERENITY<br />

Age 3 | Stage 4 Rhabdomyosarcoma<br />

139 | <strong>Little</strong> <strong>Warrior</strong><br />

We greatly respect the privacy and requests of these children and their families and have made every effort to<br />

ensure that these stories are as accurate and as up-to-date as possible. If you have concerns with any of the<br />

information stated, please contact us directly at hellolittlewarrior@gmail.com.


<strong>Little</strong> <strong>Warrior</strong> | 140<br />

littlewarrior.org<br />

JOIN the <strong>Little</strong> <strong>Warrior</strong> mission at littlewarrior.org/give | hellolittlewarrior@gmail.com

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