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1:00 p.m.–5:30 p.m. Integrated Neuroscience Session<br />
I14 Practical Approaches to Narrowing the Epilepsy Treatment Gap<br />
Coordinators: Gretchen L. Birbeck, MD, MPH, DTMH, FAAN, and Steven C. Schachter, MD, FAAN<br />
Program Description: The Epilepsy Treatment Gap, meaning the proportion of people with epilepsy who warrant treatment but are not receiving it, provides critical but often<br />
over-simplified insights into epilepsy care access. The “treatment gap” alone does not detail who is left behind or why. Individual characteristics certainly influence care<br />
seeking behaviors and the capacity to successfully access care and adhere but the treatment gap is also heavily impacted by macroeconomic factors, sociocultural beliefs,<br />
health systems, human resources limitations, and regulatory barriers. Importantly, although the treatment gap metric is most often applied in resource-limited setting, in<br />
reality gaping holes in epilepsy care are universal and include delayed diagnoses and inequitable access to advanced diagnostics or subspecialty providers. This session will<br />
help attendees develop practical approaches to narrowing the treatment gap by delineating a conceptual framework, suggesting approaches to developing interventions/<br />
activities and consideration of proxy outcomes that may be needed for intervention evaluations.<br />
Part I<br />
1:00 p.m.–3:00 p.m.<br />
1:00 p.m.–1:10 p.m. Introduction<br />
Steven C. Schachter, MD, FAAN, and Gretchen L. Birbeck, MD, MPH, DTMH, FAAN<br />
1:10 p.m.–1:45 p.m. Invited Speaker<br />
Cost Considerations Across the SES Spectrum<br />
John Langfitt, PhD, Rochester, NY<br />
1:45 p.m.–1:50 p.m. I14.001 Data Blitz<br />
Diagnostic Yield and Treatment Impact of Targeted Whole Exome Sequencing in<br />
Early Onset Epilepsy —Sarah Buerki, Eric Toyota, Ilaria Guella, Marna McKenzie,<br />
Dan Evans, Shelin Adam, Margot Van Allen, Cyrus Boelman, Gabriella Horvath,<br />
Clara Van Karnebeek, Patrice Eydoux, Linda Huh, Anita Datta, Kathy Selby, Aspasia<br />
Michoulas, Tanya Nelson, Mary Connolly, Matthew Farrer, Michelle Demos<br />
1:50 p.m.–1:55 p.m. I14.002 Data Blitz<br />
Characteristics and Resource Utilization of U.S. Emergency Department Visits<br />
(2008-2011) for Patients with Epilepsy and Convulsions —Allison Petrilla, Xiaoping<br />
Ning, Erin Sullivan, Jane Osterhaus, Andrew Mosso, Gregory Gilmet<br />
1:55 p.m.–2:05 p.m. Audience Q&A<br />
2:05 p.m.–2:40 p.m. Invited Speaker<br />
Suboptimal Quality; A “Gap” by Any Other Name is a Still a “Gap”<br />
Anne T. Berg, PhD, Dekalb, IL<br />
2:40 p.m.–2:45 p.m. I14.003 Data Blitz<br />
Medication Versus Management: Beyond Pills-to-Mouths Measures of Epilepsy<br />
Care —Erica McKenzie, Damber Nirola, Lhab Tshering, Sonam Deki, Bryan<br />
Patenaude, Sarah Clark, Sydney Cash, Ronald Thibert, Rodrigo Zepeda Garcia,<br />
Edward Leung, Alice Lam, Andrew Lim, Jo Mantia, Joseph Cohen, Andrew Cole,<br />
Farrah Mateen<br />
2:45 p.m.–2:50 p.m. I14.004 Data Blitz<br />
Use of a Digital Self-Management Platform for Improving Access in Epilepsy<br />
Patients —John Hixson<br />
2:50 p.m.–3:00 p.m. Audience Q&A<br />
Guided Poster Rounds<br />
I14.001 Diagnostic Yield and Treatment<br />
Impact of Targeted Whole Exome<br />
Sequencing in Early Onset Epilepsy —<br />
Sarah Buerki, Eric Toyota, Ilaria Guella, Marna<br />
McKenzie, Dan Evans, Shelin Adam, Margot<br />
Van Allen, Cyrus Boelman, Gabriella Horvath,<br />
Clara Van Karnebeek, Patrice Eydoux, Linda<br />
Huh, Anita Datta, Kathy Selby, Aspasia<br />
Michoulas, Tanya Nelson, Mary Connolly,<br />
Matthew Farrer, Michelle Demos<br />
I14.002 Characteristics and Resource<br />
Utilization of U.S. Emergency Department<br />
Visits (2008-2011) for Patients with<br />
Epilepsy and Convulsions —Allison Petrilla,<br />
Xiaoping Ning, Erin Sullivan, Jane Osterhaus,<br />
Andrew Mosso, Gregory Gilmet<br />
I14.003 Medication Versus<br />
Management: Beyond Pills-to-Mouths<br />
Measures of Epilepsy Care —Erica<br />
McKenzie, Damber Nirola, Lhab Tshering,<br />
Sonam Deki, Bryan Patenaude, Sarah Clark,<br />
Sydney Cash, Ronald Thibert, Rodrigo Zepeda<br />
Garcia, Edward Leung, Alice Lam, Andrew<br />
Lim, Jo Mantia, Joseph Cohen, Andrew Cole,<br />
Farrah Mateen<br />
3:00 p.m.–3:30 p.m.<br />
I14.004 Use of a Digital Self-<br />
Management Platform for Improving<br />
Access in Epilepsy Patients —John Hixson<br />
I14.005 Prediction of Incident Epilepsy<br />
After First Seizure in Children with HIV/<br />
AIDS in Botswana —David Bearden, Dennis<br />
Dlugos<br />
I14.006 Healthcare Resource<br />
Utilization Among Persons with Epilepsy<br />
Treated by Different Healthcare<br />
Providers —Sandra Helmers, Shaloo Gupta,<br />
Russell Knoth<br />
I14.007 Stigma Reduction Efforts:<br />
Evaluating a Multi-Faceted Intervention<br />
Aimed at Teachers in Zambia — Masharip<br />
Atadzhanov, Natalie Thornton, Elwyn<br />
Chomba, Edward Mbewe, Gretchen Birbeck<br />
I14.008 Epilepsy Prevalence, Treatment<br />
Gap, and Stigma in Western Kenya —<br />
Dilraj Sokhi, Monica Diaz, Anthony Ngugi,<br />
Tom Solomon, Eric Fevre, Ana-Claire Meyer<br />
I14.009 The Yield of EEG Studies in a<br />
Lower Income Country Epilepsy Referral<br />
Center —Janice Wong, Sydney Cash,<br />
Ronald Thibert, Esther Bui, Rodrigo Zepeda<br />
Garcia, Alice Lam, Edward Leung, Liesly Lee,<br />
Andrew Lim, Jo Mantia, Joseph Cohen, Erica<br />
McKenzie, Damber Nirola, Sonam Deki, Lhab<br />
Tshering, Tali Sorets, Sarah Clark, Bryan<br />
Patenaude, Andrew Cole, Farrah Mateen<br />
I14.010 Comparing Anti-Epileptic Drug<br />
Preferences Between Neurologists and<br />
Patients: Results from a National Survey<br />
and Discrete Choice Experiment —Alan<br />
Ettinger, Fulton Velez, John Carter<br />
I14.011 Factors Contributing to<br />
Diagnostic Delay in Psychogenic<br />
Non-Epileptic Spells —Jessie Grewal,<br />
Jacquelyne Cios<br />
Part II<br />
I14.012 Evaluation of the Prevalence<br />
of Pharmacogenetic Polymorphisms in<br />
Pediatric Neurology Patients with Whole<br />
Exome Sequencing —Shannon DiCarlo,<br />
Elizabeth Alter, M Brooke Bernhardt, Mindl<br />
Messinger, Angus Wilfong<br />
I14.013 The Impact of Comorbid HIV<br />
Infection on Epilepsy-Associated Stigma<br />
Among Zambian Adults —Masharip<br />
Atadzhanov, Melissa Elafros, Joseph<br />
Gardiner, Izukanji Sikazwe, Jason Okulicz,<br />
Nigel Paneth, Julius Mulenga, Alan Haworth,<br />
Elwyn Chomba, Edward Mbewe, Gretchen<br />
Birbeck\<br />
3:30 p.m.–5:30 p.m.<br />
3:30 p.m.–4:05 p.m. Invited Speaker<br />
Practical Approaches to Narrowing the Gap: Considerations from a Resource<br />
Limited, Tropical Setting<br />
Gretchen L. Birbeck, MD, MPH, DTMH, FAAN, Rochester, NY<br />
4:05 p.m.–4:10 p.m. I14.005 Data Blitz<br />
Prediction of Incident Epilepsy After First Seizure in Children with HIV/AIDS in<br />
Botswana —David Bearden, Dennis Dlugos<br />
4:10 p.m.–4:15 p.m. I14.006 Data Blitz<br />
Healthcare Resource Utilization Among Persons with Epilepsy Treated by Different<br />
Healthcare Providers —Sandra Helmers, Shaloo Gupta, Russell Knoth<br />
4:15 p.m.–4:25 p.m. Audience Q&A<br />
4:25 p.m.–5:00 p.m. Invited Speaker<br />
Stigma, a Wedge in the Gap?<br />
Nathalie Jette, MD, MSc, FRCPC, Calgary, AB, Canada<br />
5:00 p.m.–5:05 p.m. I14.007 Data Blitz<br />
Stigma Reduction Efforts: Evaluating a Multi-Faceted Intervention Aimed at<br />
Teachers in Zambia —Natalie Thornton, Elwyn Chomba, Masharip Atadzhanov,<br />
Edward Mbewe, Gretchen Birbeck<br />
5:05 p.m.–5:10 p.m. I14.008 Data Blitz<br />
Epilepsy Prevalence, Treatment Gap, and Stigma in Western Kenya —Dilraj Sokhi,<br />
Monica Diaz, Anthony Ngugi, Tom Solomon, Eric Fevre, Ana-Claire Meyer<br />
5:10 p.m.–5:20 p.m. Audience Q&A<br />
5:20 p.m.–5:30 p.m. Conclusion<br />
Thu · April 21<br />
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