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1:00 p.m.–5:30 p.m. Integrated Neuroscience Session<br />

I14 Practical Approaches to Narrowing the Epilepsy Treatment Gap<br />

Coordinators: Gretchen L. Birbeck, MD, MPH, DTMH, FAAN, and Steven C. Schachter, MD, FAAN<br />

Program Description: The Epilepsy Treatment Gap, meaning the proportion of people with epilepsy who warrant treatment but are not receiving it, provides critical but often<br />

over-simplified insights into epilepsy care access. The “treatment gap” alone does not detail who is left behind or why. Individual characteristics certainly influence care<br />

seeking behaviors and the capacity to successfully access care and adhere but the treatment gap is also heavily impacted by macroeconomic factors, sociocultural beliefs,<br />

health systems, human resources limitations, and regulatory barriers. Importantly, although the treatment gap metric is most often applied in resource-limited setting, in<br />

reality gaping holes in epilepsy care are universal and include delayed diagnoses and inequitable access to advanced diagnostics or subspecialty providers. This session will<br />

help attendees develop practical approaches to narrowing the treatment gap by delineating a conceptual framework, suggesting approaches to developing interventions/<br />

activities and consideration of proxy outcomes that may be needed for intervention evaluations.<br />

Part I<br />

1:00 p.m.–3:00 p.m.<br />

1:00 p.m.–1:10 p.m. Introduction<br />

Steven C. Schachter, MD, FAAN, and Gretchen L. Birbeck, MD, MPH, DTMH, FAAN<br />

1:10 p.m.–1:45 p.m. Invited Speaker<br />

Cost Considerations Across the SES Spectrum<br />

John Langfitt, PhD, Rochester, NY<br />

1:45 p.m.–1:50 p.m. I14.001 Data Blitz<br />

Diagnostic Yield and Treatment Impact of Targeted Whole Exome Sequencing in<br />

Early Onset Epilepsy —Sarah Buerki, Eric Toyota, Ilaria Guella, Marna McKenzie,<br />

Dan Evans, Shelin Adam, Margot Van Allen, Cyrus Boelman, Gabriella Horvath,<br />

Clara Van Karnebeek, Patrice Eydoux, Linda Huh, Anita Datta, Kathy Selby, Aspasia<br />

Michoulas, Tanya Nelson, Mary Connolly, Matthew Farrer, Michelle Demos<br />

1:50 p.m.–1:55 p.m. I14.002 Data Blitz<br />

Characteristics and Resource Utilization of U.S. Emergency Department Visits<br />

(2008-2011) for Patients with Epilepsy and Convulsions —Allison Petrilla, Xiaoping<br />

Ning, Erin Sullivan, Jane Osterhaus, Andrew Mosso, Gregory Gilmet<br />

1:55 p.m.–2:05 p.m. Audience Q&A<br />

2:05 p.m.–2:40 p.m. Invited Speaker<br />

Suboptimal Quality; A “Gap” by Any Other Name is a Still a “Gap”<br />

Anne T. Berg, PhD, Dekalb, IL<br />

2:40 p.m.–2:45 p.m. I14.003 Data Blitz<br />

Medication Versus Management: Beyond Pills-to-Mouths Measures of Epilepsy<br />

Care —Erica McKenzie, Damber Nirola, Lhab Tshering, Sonam Deki, Bryan<br />

Patenaude, Sarah Clark, Sydney Cash, Ronald Thibert, Rodrigo Zepeda Garcia,<br />

Edward Leung, Alice Lam, Andrew Lim, Jo Mantia, Joseph Cohen, Andrew Cole,<br />

Farrah Mateen<br />

2:45 p.m.–2:50 p.m. I14.004 Data Blitz<br />

Use of a Digital Self-Management Platform for Improving Access in Epilepsy<br />

Patients —John Hixson<br />

2:50 p.m.–3:00 p.m. Audience Q&A<br />

Guided Poster Rounds<br />

I14.001 Diagnostic Yield and Treatment<br />

Impact of Targeted Whole Exome<br />

Sequencing in Early Onset Epilepsy —<br />

Sarah Buerki, Eric Toyota, Ilaria Guella, Marna<br />

McKenzie, Dan Evans, Shelin Adam, Margot<br />

Van Allen, Cyrus Boelman, Gabriella Horvath,<br />

Clara Van Karnebeek, Patrice Eydoux, Linda<br />

Huh, Anita Datta, Kathy Selby, Aspasia<br />

Michoulas, Tanya Nelson, Mary Connolly,<br />

Matthew Farrer, Michelle Demos<br />

I14.002 Characteristics and Resource<br />

Utilization of U.S. Emergency Department<br />

Visits (2008-2011) for Patients with<br />

Epilepsy and Convulsions —Allison Petrilla,<br />

Xiaoping Ning, Erin Sullivan, Jane Osterhaus,<br />

Andrew Mosso, Gregory Gilmet<br />

I14.003 Medication Versus<br />

Management: Beyond Pills-to-Mouths<br />

Measures of Epilepsy Care —Erica<br />

McKenzie, Damber Nirola, Lhab Tshering,<br />

Sonam Deki, Bryan Patenaude, Sarah Clark,<br />

Sydney Cash, Ronald Thibert, Rodrigo Zepeda<br />

Garcia, Edward Leung, Alice Lam, Andrew<br />

Lim, Jo Mantia, Joseph Cohen, Andrew Cole,<br />

Farrah Mateen<br />

3:00 p.m.–3:30 p.m.<br />

I14.004 Use of a Digital Self-<br />

Management Platform for Improving<br />

Access in Epilepsy Patients —John Hixson<br />

I14.005 Prediction of Incident Epilepsy<br />

After First Seizure in Children with HIV/<br />

AIDS in Botswana —David Bearden, Dennis<br />

Dlugos<br />

I14.006 Healthcare Resource<br />

Utilization Among Persons with Epilepsy<br />

Treated by Different Healthcare<br />

Providers —Sandra Helmers, Shaloo Gupta,<br />

Russell Knoth<br />

I14.007 Stigma Reduction Efforts:<br />

Evaluating a Multi-Faceted Intervention<br />

Aimed at Teachers in Zambia — Masharip<br />

Atadzhanov, Natalie Thornton, Elwyn<br />

Chomba, Edward Mbewe, Gretchen Birbeck<br />

I14.008 Epilepsy Prevalence, Treatment<br />

Gap, and Stigma in Western Kenya —<br />

Dilraj Sokhi, Monica Diaz, Anthony Ngugi,<br />

Tom Solomon, Eric Fevre, Ana-Claire Meyer<br />

I14.009 The Yield of EEG Studies in a<br />

Lower Income Country Epilepsy Referral<br />

Center —Janice Wong, Sydney Cash,<br />

Ronald Thibert, Esther Bui, Rodrigo Zepeda<br />

Garcia, Alice Lam, Edward Leung, Liesly Lee,<br />

Andrew Lim, Jo Mantia, Joseph Cohen, Erica<br />

McKenzie, Damber Nirola, Sonam Deki, Lhab<br />

Tshering, Tali Sorets, Sarah Clark, Bryan<br />

Patenaude, Andrew Cole, Farrah Mateen<br />

I14.010 Comparing Anti-Epileptic Drug<br />

Preferences Between Neurologists and<br />

Patients: Results from a National Survey<br />

and Discrete Choice Experiment —Alan<br />

Ettinger, Fulton Velez, John Carter<br />

I14.011 Factors Contributing to<br />

Diagnostic Delay in Psychogenic<br />

Non-Epileptic Spells —Jessie Grewal,<br />

Jacquelyne Cios<br />

Part II<br />

I14.012 Evaluation of the Prevalence<br />

of Pharmacogenetic Polymorphisms in<br />

Pediatric Neurology Patients with Whole<br />

Exome Sequencing —Shannon DiCarlo,<br />

Elizabeth Alter, M Brooke Bernhardt, Mindl<br />

Messinger, Angus Wilfong<br />

I14.013 The Impact of Comorbid HIV<br />

Infection on Epilepsy-Associated Stigma<br />

Among Zambian Adults —Masharip<br />

Atadzhanov, Melissa Elafros, Joseph<br />

Gardiner, Izukanji Sikazwe, Jason Okulicz,<br />

Nigel Paneth, Julius Mulenga, Alan Haworth,<br />

Elwyn Chomba, Edward Mbewe, Gretchen<br />

Birbeck\<br />

3:30 p.m.–5:30 p.m.<br />

3:30 p.m.–4:05 p.m. Invited Speaker<br />

Practical Approaches to Narrowing the Gap: Considerations from a Resource<br />

Limited, Tropical Setting<br />

Gretchen L. Birbeck, MD, MPH, DTMH, FAAN, Rochester, NY<br />

4:05 p.m.–4:10 p.m. I14.005 Data Blitz<br />

Prediction of Incident Epilepsy After First Seizure in Children with HIV/AIDS in<br />

Botswana —David Bearden, Dennis Dlugos<br />

4:10 p.m.–4:15 p.m. I14.006 Data Blitz<br />

Healthcare Resource Utilization Among Persons with Epilepsy Treated by Different<br />

Healthcare Providers —Sandra Helmers, Shaloo Gupta, Russell Knoth<br />

4:15 p.m.–4:25 p.m. Audience Q&A<br />

4:25 p.m.–5:00 p.m. Invited Speaker<br />

Stigma, a Wedge in the Gap?<br />

Nathalie Jette, MD, MSc, FRCPC, Calgary, AB, Canada<br />

5:00 p.m.–5:05 p.m. I14.007 Data Blitz<br />

Stigma Reduction Efforts: Evaluating a Multi-Faceted Intervention Aimed at<br />

Teachers in Zambia —Natalie Thornton, Elwyn Chomba, Masharip Atadzhanov,<br />

Edward Mbewe, Gretchen Birbeck<br />

5:05 p.m.–5:10 p.m. I14.008 Data Blitz<br />

Epilepsy Prevalence, Treatment Gap, and Stigma in Western Kenya —Dilraj Sokhi,<br />

Monica Diaz, Anthony Ngugi, Tom Solomon, Eric Fevre, Ana-Claire Meyer<br />

5:10 p.m.–5:20 p.m. Audience Q&A<br />

5:20 p.m.–5:30 p.m. Conclusion<br />

Thu · April 21<br />

Fast and easy registration · AAN.com/view/AM16 147

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