A professional’s guide to end of life care in motor neurone disease (MND)

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Feedback form continued Were there any particular topics that were useful to you? Was there any information that you didn’t find useful or relevant? Are there any other MND-related topics you would like more information about? Would you be happy to help us improve our information by becoming an expert reviewer? Yes (please include your email address below) Do you have any experiences of working with people with MND you could share as an anonymous quote or case study for future resources? Yes (please include your email address below) Please return your completed form to: Education and information team MND Association PO Box 246 Northampton NN1 2PR Name: No No Email:
Acknowledgements Thank you to the following people for their valuable contributions to this booklet: Dr Emma Husbands, Consultant in Palliative Medicine, Gloucestershire Hospitals NHS Foundation Trust Katy Harrison, End of Life Care Facilitator, Cambridgeshire and Peterborough NHS Foundation Trust Gabrielle Tilley, Community Education and Development Manager, Great Western Hospitals NHS Foundation Trust Thank you also to staff from LOROS Hospice, Leicester, for their input. We are grateful to the following for their work on a previous version of this booklet: Dr David Oliver, Honorary Reader, Centre for Professional Practice, University of Kent, UK and Locum Consultant in Palliative Medicine, Wisdom Hospice, Rochester, UK If you’d like to help us by reviewing future versions of this or other resources, please email us on infofeedback@mndassociation.org Version 1.0 Published: 01/16 Next review: 01/18
Page 1 and 2: A professional’s guide to end of
Page 3: Contents 5 Talking about end of lif
Page 6 and 7: It is also important that the langu
Page 8 and 9: Medication cannot be used to hasten
Page 10 and 11: Advance Decision to Refuse Treatmen
Page 12 and 13: Many hospices have a community pall
Page 14 and 15: o o o o o Are appropriate medicatio
Page 16 and 17: However, the NHS Blood and Transpla
Page 18 and 19: If palliative care includes referra
Page 20 and 21: 20 Someone may have used an ADRT to
Page 22 and 23: 22 Regular analgesics should usuall
Page 24 and 25: Key points on care at end of life
Page 26 and 27: Preparing the family for end life W
Page 28 and 29: References 28 1 Bäumer D, Talbot K
Page 30 and 31: How the MND Association can support
Page 32 and 33: 32 Regional care development advise
Page 36: About us The MND Association was fo

A professional’s guide to end of life care in motor neurone disease (MND)

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