A professional’s guide to end of life care in motor neurone disease (MND)
1QrDn0Q
1QrDn0Q
You also want an ePaper? Increase the reach of your titles
YUMPU automatically turns print PDFs into web optimized ePapers that Google loves.
Contents<br />
5 Talk<strong>in</strong>g about <strong>end</strong> <strong>of</strong> <strong>life</strong><br />
9 Advance <strong>care</strong> plann<strong>in</strong>g<br />
13 Advance <strong>care</strong> plann<strong>in</strong>g checklist<br />
15 Putt<strong>in</strong>g affairs <strong>in</strong> order<br />
17 Involv<strong>in</strong>g palliative <strong>care</strong> services<br />
19 Car<strong>in</strong>g for a person with <strong>MND</strong> at <strong>end</strong> <strong>of</strong> <strong>life</strong><br />
25 Support<strong>in</strong>g family and <strong>care</strong>rs<br />
28 References<br />
30 How the <strong>MND</strong> Association can support you<br />
With <strong>MND</strong> you have <strong>to</strong> develop courage <strong>to</strong><br />
talk about th<strong>in</strong>gs and death is one <strong>of</strong> them.<br />
One pr<strong>of</strong>essional came and talked <strong>to</strong> me and<br />
my wife about death like she was talk<strong>in</strong>g about<br />
the price <strong>of</strong> pota<strong>to</strong>es. I really appreciated that.<br />
“I’m sure that may not be everybody’s cup <strong>of</strong> tea,<br />
but I wanted someone that I could just talk about<br />
death <strong>to</strong>, without cry<strong>in</strong>g, without gett<strong>in</strong>g upset.”<br />
A person with <strong>MND</strong><br />
3
Change language