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A professional’s guide to end of life care in motor neurone disease (MND)

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21 Bott J et al. Guidel<strong>in</strong>es for the physiotherapy management <strong>of</strong> the adult, medical, spontaneously<br />

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22 Cl<strong>in</strong>ical Knowledge Summaries. Palliative <strong>care</strong> - dyspnoea. 2015.<br />

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23 ‘Chapter 17: Pre-emptive prescrib<strong>in</strong>g <strong>in</strong> the community’ <strong>in</strong> Palliative Care Formulary.<br />

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24 British National Formulary. Hypnotics and anxiolytics<br />

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25 British National Formulary. Palliative <strong>care</strong>: symp<strong>to</strong>m control.<br />

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26 Brettschneider J1, Kurent J and Ludolph A. Drug therapy for pa<strong>in</strong> <strong>in</strong> amyotrophic lateral<br />

sclerosis or mo<strong>to</strong>r neuron <strong>disease</strong>. Cochrane Database Syst Rev. 2013 Jun 5;6:CD005226. doi:<br />

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27 Rafiq MK et al. Respira<strong>to</strong>ry management <strong>of</strong> mo<strong>to</strong>r <strong>neurone</strong> <strong>disease</strong>: a review <strong>of</strong> current practice<br />

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Twycross R and Wilcock A. Palliative Care Formulary. 4th Edition. 2011.<br />

31 Ashworth NL, Satkunam LE, Deforge D. Treatment for spasticity <strong>in</strong> amyotrophic lateral sclerosis/<br />

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32 Blatzheim K. Interdiscipl<strong>in</strong>ary palliative <strong>care</strong>, <strong>in</strong>clud<strong>in</strong>g massage, <strong>in</strong> treatment <strong>of</strong> amyotrophic<br />

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33 Candy B et al. Drug therapy for delirium <strong>in</strong> term<strong>in</strong>ally ill adult patients. Cochrane Database <strong>of</strong><br />

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35 NICE <strong>guide</strong>l<strong>in</strong>e NG31: Care <strong>of</strong> dy<strong>in</strong>g adults <strong>in</strong> the last days <strong>of</strong> <strong>life</strong>. January 2016.<br />

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37 Sabo B. Reflect<strong>in</strong>g on the concept <strong>of</strong> compassion fatigue. Onl<strong>in</strong>e J Issues Nurs. 2011; 16(1):1.<br />

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References<br />

Further read<strong>in</strong>g<br />

Difficult conversations: Mak<strong>in</strong>g it easier <strong>to</strong> talk about <strong>end</strong> <strong>of</strong> <strong>life</strong> with people affected by mo<strong>to</strong>r<br />

<strong>neurone</strong> <strong>disease</strong>. National Council for Palliative Care, with support from the <strong>MND</strong> Association. £5.<br />

ISBN 978-1-898915-94-2.<br />

End <strong>of</strong> <strong>life</strong> <strong>care</strong> <strong>in</strong> long term neurological conditions: a framework for implementation. National End<br />

<strong>of</strong> Life Care Programme 2010.<br />

Hussa<strong>in</strong> J et al. Triggers <strong>in</strong> advanced neurological conditions: prediction and management <strong>of</strong> the<br />

term<strong>in</strong>al phase. BMJ Supportive and Palliative Care. 2014; 4:30‐37.<br />

Mullick A, Mart<strong>in</strong> J and Sallnow L. An <strong>in</strong>troduction <strong>to</strong> advance <strong>care</strong> plann<strong>in</strong>g <strong>in</strong> practice. BMJ. 2013; 347:f6064.<br />

Oliver D (Edi<strong>to</strong>r). End <strong>of</strong> Life Care <strong>in</strong> Neurological Disease London. Spr<strong>in</strong>ger 2012.<br />

One chance <strong>to</strong> get it right: improv<strong>in</strong>g people’s experience <strong>of</strong> <strong>care</strong> <strong>in</strong> the last few days and hours <strong>of</strong> <strong>life</strong>.<br />

Leadership Alliance for the Care <strong>of</strong> Dy<strong>in</strong>g People. June 2014.<br />

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