27.01.2016 Views

A professional’s guide to end of life care in motor neurone disease (MND)

1QrDn0Q

1QrDn0Q

SHOW MORE
SHOW LESS

Create successful ePaper yourself

Turn your PDF publications into a flip-book with our unique Google optimized e-Paper software.

References<br />

28<br />

1 Bäumer D, Talbot K and Turner MR. Advances <strong>in</strong> mo<strong>to</strong>r <strong>neurone</strong> <strong>disease</strong>. Journal <strong>of</strong> the Royal Society<br />

<strong>of</strong> Medic<strong>in</strong>e. 2014; 107:14.<br />

2 SEALS Registry (for background <strong>in</strong>formation on SEALS see Ab<strong>in</strong>hav K et al. Amyotrophic lateral sclerosis<br />

<strong>in</strong> South-East England: a population-based study. The South-East England register for amyotrophic lateral<br />

sclerosis (SEALS Registry). Neuroepidemiology. 2007; 29:44-8).<br />

3 Picker Institute Europe/<strong>MND</strong> Association. Choices and control when you have a <strong>life</strong>-shorten<strong>in</strong>g illness.<br />

2012. www.mndassociation.org/choicesandcontrol<br />

4 Gale C. Assist<strong>in</strong>g patients with mo<strong>to</strong>r <strong>neurone</strong> <strong>disease</strong> <strong>to</strong> make decisions about their <strong>care</strong>.<br />

Int J Palliat Nurs. 2015; 21(5)251-5.<br />

5 The Crown Prosecution Service. Assisted Suicide. [Accessed www.cps.gov.uk January 2016].<br />

6 British National Formulary. Prescrib<strong>in</strong>g <strong>in</strong> palliative <strong>care</strong>.<br />

[Accessed via search at www.medic<strong>in</strong>escomplete.com January 2016].<br />

7 End <strong>of</strong> <strong>life</strong> <strong>care</strong> <strong>in</strong> long term neurological conditions: a framework for implementation. National End<br />

<strong>of</strong> Life Care Programme: 2010.<br />

8 Goldste<strong>in</strong> LH and Abrahams S. Changes <strong>in</strong> cognition and behaviour <strong>in</strong> amyotrophic lateral sclerosis:<br />

nature <strong>of</strong> impairment and implications for assessment. Lancet Neurol. 2013; 12(4):368-80.<br />

9 Strong MJ et al. Consensus criteria for the diagnosis <strong>of</strong> fron<strong>to</strong>temporal cognitive and behavioural syndromes<br />

<strong>in</strong> amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis. 2009; 10:131-146.<br />

10 Mental Capacity Act 2005. [Accessed http://www.legislation.gov.uk/ukpga/2005/9/contents January 2016].<br />

11 GOV.UK. Make, register or <strong>end</strong> a last<strong>in</strong>g power <strong>of</strong> at<strong>to</strong>rney. [Accessed https://www.gov.uk/power-<strong>of</strong>at<strong>to</strong>rney/overview<br />

January 2016].<br />

12 NI Direct. Endur<strong>in</strong>g Power <strong>of</strong> At<strong>to</strong>rney. [Accessed www.nidirect.gov.uk January 2016].<br />

13 Veronese S et al. Specialist palliative <strong>care</strong> improves the quality <strong>of</strong> <strong>life</strong> <strong>in</strong> advanced neurodegenerative<br />

disorders: NE-PAL, a pilot randomised controlled study. BMJ Support Palliat Care. 2015 Jul 16. pii:<br />

bmjsp<strong>care</strong>-2014-000788.<br />

14 Auon SM et al. A 10-year literature review <strong>of</strong> family <strong>care</strong>giv<strong>in</strong>g for mo<strong>to</strong>r <strong>neurone</strong> <strong>disease</strong>: mov<strong>in</strong>g from<br />

<strong>care</strong>giver burden studies <strong>to</strong> palliative <strong>care</strong> <strong>in</strong>terventions. Palliat Med. 2013; 27(5):437-46.<br />

15 Ng L, Khan F. Multidiscipl<strong>in</strong>ary <strong>care</strong> for adults with amyotrophic lateral sclerosis or mo<strong>to</strong>r neuron<br />

<strong>disease</strong>. Cochrane Database <strong>of</strong> Systematic Reviews 2009, Issue 4.<br />

16 Talbot, K et al. Mo<strong>to</strong>r Neuron Disease: a practical manual. Oxford Care Manuals: 2010. P180.<br />

17 Neudert C et al. The course <strong>of</strong> the term<strong>in</strong>al phase <strong>in</strong> patients with amyotrophic lateral sclerosis.<br />

J Neurol. 2001; 248:612-616.<br />

18 Association for Palliative Medic<strong>in</strong>e <strong>of</strong> Great Brita<strong>in</strong> and Ireland. Withdrawal <strong>of</strong> Assisted Ventilation at<br />

the Request <strong>of</strong> a Patient with Mo<strong>to</strong>r Neurone Disease: Guidance for Pr<strong>of</strong>essionals. November 2015.<br />

19 Hardiman O et al. Cl<strong>in</strong>ical diagnosis and management <strong>of</strong> amyotrophic lateral sclerosis.<br />

Nat. Rev. Neurol. 2011; 7:639–649.<br />

20 British National Formulary. Prescrib<strong>in</strong>g <strong>in</strong> palliative <strong>care</strong>: pa<strong>in</strong>.<br />

[Accessed via search at www.medic<strong>in</strong>escomplete.com January 2016].

Hooray! Your file is uploaded and ready to be published.

Saved successfully!

Ooh no, something went wrong!