Family Medicine

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World Book of Family Medicine – European Edition 2015 6. Thomas P., et al., Networks for research in primary health care. British Medical Journal, 2001. 322(7286): p. 588-590. 7. Van Weel C., Sparks B., Caring for people's health around the world: a family physician in every community. Family Medicine, 2007. 37: p. 616-7. 8. Brekke M, Carelli F, Zarbailov N, Javashvili G, Wilm S, Timonen M, Tandeter H. Undergraduate medical education in general practice/family medicine throughout Europe - a descriptive study. BMC Med Educ. 2013 Dec 1;13:157. 296
World Book of Family Medicine – European Edition 2015 Robert Glendenning r.glendenning@sheffield.ac.uk 97 - A European Observatory for Primary Care Development Robert Glendenning, Research and Development Manager (retired), Academic Unit of Primary Medical Care, The University of Sheffield An observatory is a location used for observing terrestrial or celestial events. Also, it could be seen as a place where professionals, academics and citizens meet to consider new information about primary care/family medicine and share data that could lead to the development of policy and practice in this field. Public access to health information/data is greater than ever and in other fields there are examples of the involvement of citizens in helping to catalogue data (see The Galaxy Zoo)(1). In the health context, the Coulter Study in 2005 clearly demonstrated a desire from citizens to be involved in the development of primary care (2). In this current ‘age of data’, GPs/Family Physicians have access to a large amount of information. However, this data is not analysed nor measured in a routine way. Typically, when used, it is for limited purposes and small projects. At the same time, companies such as Google are exploring ways of gathering lifestyle data automatically and systematically from individuals for public and commercial use. Therefore it seems pertinent and timely for healthcare professionals, academics and citizens to give consideration to the establishment of processes and structures that would place these stakeholders in the forefront of this data revolution about lifestyle and primary care and the development of both policy and practice that could flow from such collaboration. The concept of a European Observatory for Primary Care Development was developed some years ago(3). What should it look like? A good example was found in Ireland; the Heartwatch Programme (4). You need one (or several) goals, you name the parameters needed to screen and collect information and perhaps additional parameters typically known to family physicians, e.g. the Family Apgar. You then have to ensure privacy, involve the public in the collection and ‘datamining’ of the information, and report back to the individual patient as well as the general public. A European Observatory might sit atop of a collection of National Observatories accessing data from local observatories, cities, counties, depending on geographical and demographical parameters. A purposive sample could be determined as a starting point and data collected. A local observatory can report back to the individual patient and other stakeholders using all media resources. A National Observatory can search for trends. When new policies are implemented, one can measure the impact or its absence. Some trends only show up after 20 years, e.g. the effect of the onset of legalised abortion and the decline of crime and crime-related diseases (5) needed some time and shrewd researchers could see a difference between causality and a plausible relationship. So, what benefits would a European (and why not later, a Global) Observatory provide? Perhaps as a starting point one might investigate ‘what already exists’. One example is to be found at: 297
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