DIABETES ACTION PLAN 2010

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DIABETES ACTION PLAN 2010 QUALITY CARE FOR DIABETES IN SCOTLAND Over the next three years, we expect to see improvements for people with diabetes arising from long term conditions work generally and, in particular, implementation of the principles of self management as set out in Gaun Yersel’ (www.ltcas.org.uk/self_man_gaun.html), the self management strategy for Scotland, and the actions on self management in the Long Term Conditions Action Plan (www.sehd.scot.nhs.uk/mels/CEL2009_23.pdf) (June 2009). We will encourage the diabetes community to share their experience by contributing to the generic self management programmes associated with long term conditions while at the same time supporting diabetes-specific work on self management. Self management cannot be supported by the NHS alone. The third sector provides support to people with long term conditions and has a key part to play in supporting self management strategies. People with diabetes need to be able to find local sources of support to help them manage. The Scottish Government’s self management work includes an initiative, Access to Local Information to Support Self Management (ALISS). This innovative project is developing an electronic means for people to contribute and support each other in their communities. This can include, for instance, sharing details of support groups, self management programmes, patient education provision, emotional support, carer and family support and telehealth resources. The ALISS methodology will have clear benefits for people with diabetes, given the degree to which they have to manage their own condition. 21
DIABETES ACTION PLAN 2010 QUALITY CARE FOR DIABETES IN SCOTLAND Information for people living with diabetes Access to relevant and timely information is essential to support people with diabetes to manage their condition successfully. This Action Plan is committed to ensuring that this happens. Attention should be paid to the level of understanding of each person with diabetes, in particular whether they have adjusted to their diagnosis. Literacy and numeracy are especially important in self managing the technical aspects of monitoring and understanding the medicines used in diabetes. People with poor literacy levels generally have poorer health status and are 1.5 to 3 times more likely to experience poor health outcomes, as they have less knowledge of self management and health-promoting behaviours. We need to see a consistent approach to the development of high quality patient information across NHS Boards. This approach can involve partner organisations like Diabetes UK Scotland and the Juvenile Diabetes Research Foundation. Key priorities are: • making information available to patients and their families and carers in language they can understand; • the need to develop links with NHS Inform; • developing links with NHS Carer Information Strategies; • the development of the My Diabetes My Way website to become a key resource for people with diabetes; and • a particular focus on meeting the needs of those communities and individuals who have traditionally found it harder to engage with health services. Actions we will take: The Scottish Diabetes Group will support initiatives to improve self management: • SDG, will work with the diabetes MCNs, local patient representatives and relevant voluntary sector organisations to identify and promote appropriate self management tools for diabetes (responsibility: SDG/MCNs) • SDG, through its Diabetes Care Focus Group, will monitor and review provision of information for people living with diabetes, including local and national annual overviews • SDG, with NHS Health Scotland and other agencies, will improve the information available, for example on cardiovascular disease, on www.mydiabetesmyway.scot.nhs.uk, and increase use of the website by people with diabetes • SCI-DC will work to increase the availability of web-based access by people with diabetes to their own diabetes clinical data. Information should be available in formats to meet different educational and language needs, and in formats for those with sensory and other disabilities. Quality Healthcare Indicators: person-centred; effective; safe. 22
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