16:38 Rachael Brown 23, Terene Stevens 41, Simon Purcell
16:38 Rachael Brown 23, Terene Stevens 41, Simon Purcell
16:38 Rachael Brown 23, Terene Stevens 41, Simon Purcell
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Martyn<br />
Haydney, 44<br />
Camborne,<br />
Cambs.<br />
When Martin's daughter, Charlina was 8 months old doctors diagnosed her<br />
with Microcephaly and Cerebellum Hypoplasia, which means she has a<br />
small head and an under developed brain. This has had a huge impact on<br />
her life, and the family, as it means Charlina has severe development<br />
delay, cannot talk or walk and is totally reliant for help with all her personal<br />
care and needs. She also suffers from Cerebral Palsy and has a genetic<br />
condition, Cask Mutation, that at the time of diagnosis was so rare she was<br />
the only 7th person to be diagnosed worldwide.<br />
Make-A-Wish<br />
Tony Frobisher,<br />
44<br />
Worchester,<br />
West<br />
Midlands<br />
My wife Rini (who is Indonesian) and I had our daughters in 2006 after<br />
trying unsuccessfully to have children for 7 years. We were successful with<br />
the first cycle of IVF and my wife became pregnant with triplets. In April<br />
2006, Rini had our three girls, Jewel, Louisa and Milla in Liverpool. She had<br />
been transferred to Liverpool Women's Hospital from Worcester where we<br />
live, due to the triplets extreme prematurity. They were born at 24 weeks.<br />
Jewel sadly passed away after a couple of weeks. Louisa and Milla fought<br />
and survived against the odds, countless setbacks, eye operations, a heart<br />
operation, seizures and many other serious setbacks. They were in<br />
Liverpool for 5 months before being strong enough to be transferred home<br />
to Worcester. After a further month they came home, both still on oxygen. It<br />
became apparent that Louisa was doing better than Milla. Eventually, Milla<br />
was diagnosed with severe spastic quadriplegia cerebral palsy,<br />
compounded by severe global development delay, gastric reflux and<br />
asthma. Louisa was confirmed as being blind in her left eye and partially<br />
sighted in her right; as a result of retinopathy of prematurity and two<br />
operations to save her eyesight in Liverpool. Milla's cerebral palsy has left<br />
her wheelchair bound, unable to walk, talk, sit or be fed normally. She has<br />
a gastrostomy (stomach tube) and receives all her nutrition / medicines via<br />
the tube. Her condition is very challenging, including very disturbed sleep<br />
patterns.<br />
Make-A-Wish<br />
30
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