Teenage and Young Adult Cancer Service - Library - University ...

Teenage and Young AdultCancer ServiceCancer ServicesInformation for PatientsC iUniversity Hospitals of LeicesterNHS Trust

IntroductionHaving a diagnosis of cancer can be a devastating experience atany age, but in your teenage and younger adult years it can seemespecially frightening and make you feel quite vulnerable.The Teenage and Young Adult Cancer Service provides specialistcare and emotional support to teenagers and young adults (14-24years) who have been diagnosed with cancer. We also providesupport for the families of young people referred to the service.Aims of the Teenage and Young Adult (TYA) serviceOur aim is to provide services for teenagers and young adults(TYAs) with cancer and to ensure that we achieve the best possibleoutcomes for you.Our team consists of a Macmillan TYA Clinical Nurse Specialist; CLICSargent Young Persons’ Social Worker and a Teenage Cancer TrustYouth Support Coordinator.Services outside Leicester and NottinghamAll patients under the age of 19 years diagnosed with cancer will betreated at the principal treatment centres (Leicester and Nottingham).Patients over the age of 19 years and under 25 years of age canchoose to be treated at either the Principal Treatment Centre or attheir local hospital if it has the facilities for their cancer treatments.Please talk with your consultant or clinical nurse specialist about youroptions.Multidisciplinary TeamAt diagnosis your treatment plan will be discussed at a TYAMultidisciplinary Team (MDT) meeting, held every Friday, where yourtreatment and your needs will be discussed. You will also be allocateda Key Worker, usually a clinical nurse specialist (CNS) who will be apoint of contact and responsible for coordinating your care.2

Other supportThe team also runs a monthly support group and organised eventsThere is an established youth group for ages 14-24 that meets atCoping with Cancer (a local charity). The group provides peersupport and networking opportunities to young people withcancer from across the region.Organised activities to date include: a trip to Alton Towers, quadbiking, archery, pizza nights and complementary therapy sessions.Events, activities and days out are supported by paediatric andadult health care teams – for further information please contactthe TYA team.Social groups andpeer supportEmotional supportEmploymenteducation issuesLong-term follow upcareReferral to otherspecialist teams,e.g. PsychologyThe TYA SpecialistTeam can help withFinancial supportand adviceInformation aboutdiagnosis, treatment& side effectsHolidays, breaks andplanning special daysPractical advice:e.g. Wigs or disabilityequipmentFertility andsexual healthMembers of the TYA team and contact informationTeenage and Young Adult Cancer Service OfficeTel: 0116 258 6905Macmillan TYA Clinical Nurse SpecialistTel: 07956 338 421CLIC Sargent Young Persons’ Social WorkerTel: 07717 871 431Teenage Cancer Trust Youth Support CoordinatorTel: 07432 100 2993

Useful websiteswww.nhs.uk/young-cancer-carewww.teenagecancertrust.orgwww.macmillan.org.ukwww.clicsargent.org.ukwww.leicestershospitals.nhs.uk/cancerinfoIf you would like this information in anotherlanguage or format, please contact theservice equality manager on 0116 250 2959TYA Patient Information Group Service Guide for Patients Edition 2: March 2013 Review: March 2015(Moody)3136270KR CAN183-0313