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PDF Quilt Project Cover - Parkinson's Disease Foundation

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Creativity and Parkinson’s HistoryThe Creativity and Parkinson’s <strong>Project</strong>, led by the Parkinson’s<strong>Disease</strong> <strong>Foundation</strong> (<strong>PDF</strong>), seeks to explore, support and encouragethe therapeutic value of creativity in people living with Parkinson’s.Evidence suggests that creative activities — from painting to dancing,sculpting, singing and even exercise — may reduce, or eventemporarily relieve symptoms associated with Parkinson’s. This canbe truly liberating for people living daily with the physical limitationsbrought on by this debilitating disease.Launched at the first World Parkinson Congress (WPC) in 2006,the Creativity and Parkinson’s <strong>Project</strong> included a hugely popularexhibition that featured the artwork of 186 people with Parkinson’sdisease from 13 different countries. This exhibition included art ina variety of media, including among others, painting, poetry, sculpting,dancing, jewelry making and photography.To ensure that the value of creativity continued to be explored bythe Parkinson’s community, <strong>PDF</strong> launched in 2006 an online galleryfeaturing the works of the artists included at the first WPC.Today, the gallery has grown to include the artwork of nearly 300artists living with Parkinson’s. Their inspirational works can befound at www.pdf.org/en/creativity.As an extension of this initiative, <strong>PDF</strong> launched in 2009 theParkinson’s <strong>Quilt</strong> <strong>Project</strong>. The <strong>Quilt</strong> <strong>Project</strong> gave people all over theworld the chance to express their support of people living withParkinson’s, and to honor their loved ones who are no longer living,by creating a personalized quilt panel.“ ”My quilt panel ... was meant to be a symbol of hope for the futures of people with <strong>Parkinson's</strong>.Joanna SteichenThis book is dedicated as a memorial to Joanna Steichen, who passed away onJuly 25, 2010. She was a passionate supporter of the Parkinson’s <strong>Quilt</strong> <strong>Project</strong>and believer in the therapeutic value of creativity for people living with Parkinson’s.<strong>Quilt</strong> Planning CommitteeJean Burns | Sun Lakes, AZKay Mixson Jenkins | Springfield, GACharlene “Pokie” Pryor | Vandalia, ILJoanna Steichen | New York, NYLinda Webb | Williams, AZPeggy Willocks | Johnson City, TN<strong>PDF</strong> StaffMatthew DePaceElizabeth PollardIvy RookVolunteerBeth MurphyAdvisorsAnn LoebSharon Stone


“Park N Sons martini bar & lounge (always shaken, never stirred)Anyone who knows this disease is well aware of the fact that duringits relentless progression, you’ve got to find a way to take a littlesomething back to try to help yourself keep things in perspective.Symptomatic since I was 27, I have to look forward to living most ofmy life with this unwelcomed visitor, unless there is a cure found soon.My panel represents one of the lighthearted approaches I’ve takentowards dealing with PD’s obstacles. This thinking, combined withtons of love and support from my family and friends, helps me toget through it all. Within the faux stained glass in my panel, I’ve listedpeople, places, and things that have touched my life at some point.”Larry Schneider Jr.Block 1“I am 73 years old and was diagnosed with PD 18 months ago.My first reaction was despair, but after a few months I realized I wascontrolling it with medication, although it is progressing in small ways.I am an artist and I paint in my Virginia studio almost every day. I dovery detailed work. Among my initial fears was that I'd lose controlof my steady hand. I often joke with friends that if that happens,I'll just become an abstract expressionist.The cure will come; probably too late for me, but we must worktoward that goal by raising funds and consciousness. The <strong>Parkinson's</strong><strong>Quilt</strong> <strong>Project</strong> is a great way to do that and I am happy that I amable to contribute.”Alan RubinBlock 2Personal Statements“Although I have had Parkinson’s disease for over eight years now,I am still able to spend time in and enjoy my small garden.With this in mind, my panel depicts a simple garden theme.A secondary theme of the quilt panel is “every cloud has a silverlining.” The “cloud” of Parkinson’s disease has introduced me to my“silver lining.” This came about when I read in our local newspaperabout a group of people with Parkinson’s who got together once aweek for an art session under the guidance of Anne Atkin,herself a person with Parkinson’s.This session has become my “silver lining” and I spend many hoursevery week painting and drawing. I really enjoy creating colorfulimages with pastels, pencils, acrylic paints, etc., and it replaces negativethoughts with pleasant ones.”Heather EagerBlock 1“I was diagnosed with Parkinson’s almost six years ago at the age of44. As a single, independent career woman, the news was devastatingto me. It took a while, but I eventually learned that this is a life sentence,not a death sentence. I still live a full life. I work full-time as adesigner in the apparel industry and I have a full social life, even moreso now that I have met a whole new group of friends through mysupport group and volunteer work. My real passion is painting, andI have begun showing my work professionally in the last two years.This panel comes from lessons experienced in my journey with thisdisease. These lessons are gifts, and I chose a bouquet of tulips asthe symbol to represent them. Living with PD has opened me upto receiving spiritual gifts, something I would have avoided or overlookedbefore. This disease has shown me patience, but not merelyin dealing with a slower-paced life. I have been given the gift ofpatience with others, something I could never have learned withoutfirst experiencing my own physical and mental struggles. The othergift is charity. Forgiveness and understanding now occupy a onceempty corner of my heart, and have given me a much greatercapacity and desire to help others in any way I can. For these giftsI am grateful.”Beverly LavenderBlock 32


Block 1Linda FeinbergWilmette, IL, USASusan MurrayVoorhees, NJ, USAJudi JecmenJefferson City, MO, USADuk Kyung ChoSeoul, SOUTH KOREAJin Kyoung ChoaeSeoul, SOUTH KOREABarbara FeinbergWilmette, IL, USASharon StandishMarysville, WA, USALisa FoleyEdmond, OK, USAAns Muller & Jane GrayVancouver, BC, CANADASharon StandishMarysville, WA, USALois SchneiderWilmette, IL, USAHeather EagerBerwick, VIC, AUSTRALIALarry Schneider Jr.Gibbsboro, NJ, USAJudi JecmenJefferson City, MO, USAMary HuizingaSan Francisco, CA, USALenore LavertyMorden, MB, CANADA3


Block 2Kim Vitcenda CadeViroqua, WI, USAPatricia BissellParrish, FL, USAGreg GatesyGaylord, MI, USAAlan RubinDelaplane, VA, USAParkinson’s UK-Newcastle BranchNewcastle, UNITED KINGDOMWanda MiltonSouth Pasadena, CA, USAAlison PaoliniParadise, CA, USABismarck <strong>Parkinson's</strong> Support GroupBismarck, ND, USACheryl MajeskeQuinton, VA, USAAlison PaoliniParadise, CA, USAWanda MiltonSouth Pasadena, CA, USAAnnelies MasseyDuncan, BC, CANADALynette JacobsPrescott, AZ, USAEric SmithGlen Arm, MD, USATeam ParkinsonKingston, NJ, USAEdith SchwartzCorona, NY, USA4


Block 3Anne AtkinHallam, VIC, AUSTRALIA<strong>Parkinson's</strong> <strong>Disease</strong> <strong>Foundation</strong>New York, NY, USADiana SmyserSurprise, AZ, USABeverly LavenderToronto, ON, CANADAPatricia SherrickDelphos, OH, USABeverly LavenderToronto, ON, CANADAPatricia SherrickDelphos, OH, USA<strong>Parkinson's</strong> <strong>Disease</strong> <strong>Foundation</strong>New York, NY, USAPatricia YarnoldRochester Hills, MI, USAPatricia SherrickDelphos, OH, USABeverly LavenderToronto, ON, CANADAJoanna SteichenNew York, NY, USAPamela MoultonPort St. Lucie, FL, USABeverly LavenderToronto, ON, CANADACharlene SnyderGlen Mills, PA, USAPatricia SherrickDelphos, OH, USA5


“Diagnosed in 2007 at age 47, I decided that while some things mightbe more challenging now, I would try to spend more time enjoyingcreative pursuits. I find it brings peace when I am feeling anxiousand tremendous satisfaction! When I heard about the giant <strong>Quilt</strong><strong>Project</strong>, I felt that this would be a wonderful way to honor ourSupport Group: to say thank you to our families and for the closefriendships we have made within our group. Vancouver BroadwaySupport Group may not be able to go to Glasgow, but wewould like to be there in spirit through our collage! We hopePanel 2083 will be bound to the giant quilt, just as we are boundhere by friendship. Going to Glasgow this fall? Look for our panel.It was made with love.”Susan AllanBlock 6“When I first told my darling family that I had <strong>Parkinson's</strong>, the newswas met with hugs, lots of love, and questions. As time went by,I began to realize that many of the questions were actually musingsby each child and grandchild about not only the quality of my life,but about their lives also. When the <strong>Quilt</strong> <strong>Project</strong> was offered as away to spread the message about <strong>Parkinson's</strong> and a way to expressideas about this disease, I immediately thought about my family'squestions. Based on Mother Theresa's own thoughts about life,I asked members of my family to choose one of the sentiments thatmost closely reflected what life meant to them. This panelrepresents their answers, and I feel it reflects the joy and hope thatultimately colors all of our days.”Helen GerryBlock 6Personal Statements“My panel began as a general design for the Parkinson’s <strong>Quilt</strong>. It wasmeant to be a symbol of hope for the futures of people with <strong>Parkinson's</strong>.And it still is that. But as it grew, the theme of music took over.Acrobats became dancers; a piano and sheets of music appeared.I have always loved and needed music: piano, opera, folk, liturgical, Bach,Beethoven, the list never ends. But in the last ten years of coping withlate onset <strong>Parkinson's</strong>, I've discovered how important music can befor our daily functioning. Strong rhythms improve balance and movement,singing for breath and voice, melody for joy or sorrow, andchords or harmony for the power of companionship. The panel thenbecame part of a quilt block (block 4) dedicated to the power ofmusic for PD. Music for PD! PD for music!”Joanna SteichenBlock 4“My husband, Vernon McMurtry, suffers from Parkinson’s disease.The kaleidoscopes in this panel represent the uncertainty, anxiety,and fear that this diagnosis engenders. As the disease progresses,there are additional problems to cope with and new challengesto be met by both patient and caregiver. The restful blues andgreens incorporated in the panel represent the eventualacceptance of the disease as part of our lives. They also representour determination to enjoy every day to the fullest and toremain ever hopeful that a cure will be found very, very soon.Creativity helps us remain positive and happy people.Kathleen McMurtry ”Block 66


Block 4Kay Mixson JenkinsSpringfield, GA, USAPeggy WillocksJohnson City, TN, USASharon StoneMorristown, NJ, USALinda WebbWilliams, AZ, USALarry Schneider Jr.Gibbsboro, NJ, USAJoanna SteichenNew York, NY, USADavanna SaariLanesville, IN, USACynthia CravenAsheboro, NC, USAParkinson’s <strong>Disease</strong> <strong>Foundation</strong>’s Music <strong>Quilt</strong>Aiko KawabeFlagstaff, AZ, USAAudrey Gray SannerDecatur, IL, USAMiriam PizarroMiami, FL, USANancy WoodSouth Deerfield, MA, USAParkies JamminSmithland, KY, USAElena TueroFreehold, NJ, USAClub CREATE- Struthers PD CenterGolden Valley, MN, USAKim Vitcenda CadeViroqua, WI, USA7


Block 5Eleanore HullPort Jefferson, NY, USALouise ColalilloDuluth, MN, USALois ColeDes Moines, IA, USAJanice CattonChatham, ON, CANADACarol BersanManchaca, TX, USAEleanore HullPort Jefferson, NY, USASandra ZanderKing Island, TAS, AUSTRALIAKatherine for PCC NeurowritersPhiladelphia, PA, USAKatherine for PCC NeurowritersPhiladelphia, PA, USALisa LongacherCastle Rock, CO, USAEleanore HullPort Jefferson, NY, USACarol CassidyCentennial, CO, USACynthia HoDudley, West Midlands, UNITED KINGDOMPatricia ColeElmira, NY, USAPatricia SherrickDelphos, OH, USAEleanore HullPort Jefferson, NY, USA8


Block 6Sharon StarkWellston (Hoxeyville), MI, USAEsther BassBedford, MA, USAPatricia MorrisIrvington, VA, USANancy RodriquenzWestminster, MA, USALinda SpencerSalisbury, NC, USAKathleen McMurtryBetty's Bay, Western Cape, SOUTH AFRICAMary E. BoothUrbandale, IA, USACaralyn TurnerLoveland, CO, USAMona AmpudiaLa Habra, CA, USAHelen GerryPolson, MT, USAGail PoynterRamona, CA, USAAudrey Gray SannerDecatur, IL, USASusan AllanMaple Ridge, BC, CANADASheryl AllenSan Jose, CA, USAJudie RenfrowTucson, AZ, USAPamela SmithMurfreesboro, TN, USA9


“I have a dream that in my lifetime there will be a cure for <strong>Parkinson's</strong>.I had a dream about my quilt panel. It was all puzzle pieces.The pieces are jumbled at the top of the panel and at the bottom,some puzzle pieces are fitting together, while some are still tryingto find their place. All it will take is one puzzle piece to fit just rightand we will have a breakthrough for a cure.I am an artist and a quilter. I have Parkinson’s. I also have creativityand that keeps me active and alive in mind, body, and spirit. A curefor Parkinson’s is my dream. I pray every day for that one piece ofthe puzzle that will make the difference.” Lynne StefanettiBlock 7“My panel is dedicated to my husband, Tom. Since the onset of hisdisease six years ago, we have been faced with many differentchallenges. This is best illustrated by my choice of the game ofScrabble. You have to figure things out to the best of your abilitywith what you are given. Sometimes that's an easy task andsometimes not.Over the course of his treatment, Tom has been blessed with manycaring people whose names are embroidered on the edges of thesquare. And, of course, there's me, his #1 supporter. Because ofthis group, Tom has been given the opportunity to undergo deepbrain stimulation surgery this coming May. This is just the beginningof finding a cure for this disease. It will take the courage of many,but together we will solve this puzzle.” Kathleen DiezBlock 9Personal Statements“<strong>Parkinson's</strong> had a profound effect on my father, George Lukens.The center of the panel is Dad sailing his restored dinghy on CapeCod. The panel remembers dad and all his lessons:• Measure twice, cut once.• Take care of your family and your home.• Feed the birds.• Be modest. (Few people know that dad worked with TravelersInsurance Company, Friedan Computers, and Western Union tocreate the beginnings of what we now know as the Internet.)• Ice cream is better from the ice cream truck.• Save everything — you never know when you'll need it.(Not a single piece of fabric was purchased for this project!)• Never walk if you can drive a tractor.• Any day fishing or boating is a good day.• Wash the windshield before you get on the highway, and alwayswave good-bye.”Pat LukensBlock 7“Three months before retiring at the age of 60, I was diagnosedwith Parkinson’s disease. I knew almost nothing about PD.After researching, reading, listening, and interacting with otherswith PD, I am still “puzzled” by the many ways PD changes thelives of millions, and we still do not have all the pieces of thepuzzle that will lead to a cure.Determined to participate in this project, I had a designidea, a pattern, a fabric selected, a 221 Featherweight sewingmachine (a quilters dream, I’m told) and NO QUILTING SKILLS!However, I knew someone who could instruct me!!With the help of my talented sister-in-law, Betty Connolly, the“Parkinson’s Puzzle” is my contribution to the PD <strong>Quilt</strong> <strong>Project</strong>.Black pieces represent the “unknown” while colored/designpieces represent the progress made as research continues to putthe pieces together to find a cure.”BlockGayla Doughty810


Block 7Rebecca BreedloveKingston Springs, TN, USAMichelle JacobowitzCanton, GA, USAMindy Kirsten AndersenEllensburg, WA, USASheryl WilsonAntioch, CA, USALynne StefanettiParadise, CA, USAKaren SampsellOak Ridge, TN, USAPat LukensMarlborough, MA, USAJune D'AnieriWesterville, OH, USAChristine RheaSevierville, TN, USAPatricia HuffmanBoone, NC, USAKatherine ArehartBunker Hill, WV, USACheryl RykkenFremont, WI, USALinda MackeCamano Island, WA, USAYvonne BlakeKatoomba, NSW, AUSTRALIAParis HarrisonGreenville, SC, USAIla PatloganFlossmoor, IL, USA11


Block 8Barbara BackusJohnson, VT, USAPatricia HealyCedar Rapids, IA, USAMary HjalmarsonCardiff By the Sea, CA, USARachel BrumerSeattle, WA, USAElizabeth Anne TraversePearland, TX, USAGayla DoughtyHurricane, WV, USAIrene NovichihinMount Angel, OR, USASuzanne GoldmanSebring, FL, USABethany ConventSt. Paul, MN, USALinda HabenstreitSpringfield, VA, USACarole and Jen HatkeItasca, IL, USAKathleen BroaddusMoweaqua, IL, USAGeorgia RancourtFairfield, ME, USABarbara DillTacoma, WA, USAJudi SechterMerrick, NY, USAMaralyn ClaycombScottsdale, AZ, USA12


Block 9Laura SangerHouston, TX, USALinda ArmstrongAurora, IN, USACindy EdisonSturgis, SD, USAElena TueroFreehold, NJ, USAJean HamiltonBellingham, WA, USAEleanor Flowers' ChildrenIndependence, MO, USARebecca PeytonManassas Park, VA, USAGracia ClarkBloomington, IN, USAMiriam PizarroMiami, FL, USAKaren DeGraafElizabeth, IN, USALynda RobsonRichmond, BC, CANADAValley Golden Living CenterSaint Marys, OH, USAJanice WisemanKareela, AUSTRALIAMelanie VotawBrooklyn, NY, USAMaria L. De Leon, M.D.Nacogdoches, TX, USAKathleen DiezAurora, CO, USA13


“My husband Augie D'Alonzo was diagnosed with <strong>Parkinson's</strong> overthirteen years ago. He is 68 years old, and we have been marriedfor the last 46 years. Calling him the "Mighty Oak" is a perfectdescription. He has never let this disease take over him physicallyand mentally, and has fought to live a normal life. With the supportof me, our five sons, their wives, our seven grand-children, and ourfaith, we are helping him live a full and active life. He is an inspirationto us all, especially our daughter-in-law, Patti, who had breast cancer.He showed her how to face adversity and fight it with a confidentattitude. The branches of Augie's oak tree might bend, but theywon't break. I designed this quilt panel with these thoughts in mind,and I hope the viewer sees that with a positive mind and supportof family that you can fight <strong>Parkinson's</strong>.”Rita D'AlonzoBlock 10“The <strong>Quilt</strong> program is a reflection in terms of folk art, of thekaleidoscope of experiences that came with Parkinson’s disease.There is the immediate shock of one’s physical shortcomings,followed by adaptation to a new form of life, necessitated by thechange. Prominent in my mind is the re-learning of tying a knot,or wearing a tie, doing up one’s shoelaces, buttoning one’s clothes,eating with only a spoon, and above all a new exercise regime.It can be done!”Sleem MajidullaBlock 12Personal Statements“This panel is a tribute to my dad. Accepting that Parkinson’s wasnow a permanent part of his life, our Abu (Dad) Haroon decidedto befriend his disease rather than view it as an enemy.Fondly naming it “Pinky D,” he founded the Pakistan Parkinson’sSociety — a small group to raise awareness and provide supportfor Parkinson’s patients in Pakistan. He has made his pink shirt asignature statement for seminars, workshops, and corporate events.The pink shirt represents confidence and dedication to his causewith the hope and inspiration he wants to see in all patients,families, and friends.”Shahzadi ShoaibBlock 12“This photograph is of one of my oil paintings and a writtenreflection that shows how art helps me to express and to copewith the emotional isolation caused by PD.My family and friends have no idea what I face on a daily basis.I hide my struggles as much as possible, in order to enjoy being afriend — just a friend — and not “a friend with PD.” As a result,I am happier when with people, but lonelier when alone. I tookthe advice of a wise friend who told me to learn to be happy withmy own company.I grew less dependent on TV and movies to drown out myloneliness, and started painting again, adjusting my style toaccommodate lost fine motor skills. The result is a body of workfar more compelling than my pre-PD paintings.” Marie Louise HagenBlock 1014


Block 10Margaret MagicBellingham, WA, USAJudith HendelmanForest Hills, NY, USAKaren DellElmhurst, IL, USAMildred CushmanHouston, TX, USASheila BoppMaineville, OH, USANiskaMontreal, QC, CANADANiskaMontreal, QC, CANADACarolyn WeimerCleveland, OH, USAShirley ClineChristiansburg, VA, USANiskaMontreal, QC, CANADANiskaMontreal, QC, CANADAMarie Louise HagenWashington, DC, USAHeather UrquhartSan Diego, CA, USASusan PageGraceville, AUSTRALIALinda WittigAmbridge, PA, USARita D'AlonzoPort Washington, NY, USA15


Block 11Dorothy WongHouston, TX, USACharlene VictorHouston, TX, USAAubrey CalvinHouston, TX, USAAnna PetritesHouston, TX, USARobert CurtisHouston, TX, USAMeg LauckHouston, TX, USAClarita BrownHouston, TX, USACarol FryHouston, TX, USAHouston Area Parkinson’s Society (HAPS) <strong>Quilt</strong> #1Michael DriscollHouston, TX, USAMike ChurchmanGalveston, TX, USAMyrna RodmanHouston, TX, USAEllis FreitagHouston, TX, USAPaquita DeLeonHouston, TX, USAWarren FranzHouston, TX, USABrenda LaryHouston, TX, USAMary WeyandHouston, TX, USA16


Block 12GlaxoSmithKline StaffKarachi, PAKISTANShahzadi ShoaibKarachi, PAKISTANRayyan BasheerKarachi, PAKISTANRaniyah BasheerKarachi, PAKISTANTalat HashmiKarachi, PAKISTANGlaxoSmithKline StaffKarachi, PAKISTANSamina QureshiKarachi, PAKISTANShahla ShareefKarachi, PAKISTANPakistan Parkinson’s Society <strong>Quilt</strong>Tashi ShaikhKarachi, PAKISTANShahzadi ShoaibKarachi, PAKISTANGlaxoSmithKline StaffKarachi, PAKISTANSalika AnwerKarachi, PAKISTANNilofar-Nighat ZebaKarachi, PAKISTANAyesha SamadKarachi, PAKISTANSleem MajidullaKarachi, PAKISTANGlaxoSmithKline StaffKarachi, PAKISTAN17


“I created this block to symbolize things that have been important inmy life. Some of them changed with my diagnosis of Parkinson’s asmy physical abilities did. Some, like family and friends, are central tomy life regardless. Now I find release and comfort in creating —whether with quilts, music, art or poetry. I feel that as long as I canfind beauty in the world and a way to share it then I have lived well;life may change because of Parkinson’s but it goes on and we keepgoing, too, just at a different pace! One day there will be a cure.”Linda Webb“This square represents me and my dreams. I believe in the grassrootsmovement where great things can be accomplished by takingsmall steps. The Margaret Mead quote is one that I live by:“Never doubt that a small group of thoughtful, committed citizenscan change the world. Indeed, it is the only thing that ever has.”The PD Tulip initiative was grassroots and look where we are today!One person CAN make a difference.” Jean BurnsBlock 14 Block 14Personal Statements“Besides being a work of art, a quilt is a jigsaw puzzle of memories.A flannel square from a baby's blanket, a piece of corduroy froma grandson's outgrown jacket, and a ribbon of taffeta from agranddaughter's prom dress all blend together into a rainbow of color.Each special event brings smiles to our faces and warmth to our hearts.For those with <strong>Parkinson's</strong> disease, ordinary events becomeprecious. We remember friends and family around the world whohave made our lives special, in spite of the challenges we face.The mountains in my panel represent these challenges, and theleaping stag symbolizes the spirit and determination found in ourhearts. My contribution to this quilt was made possible by thecreativity and cooperation of others. Many thanks to Joanne Forkeywhose quilting talent saved the day!”Lois BallardBlock 13“The Things I Have Loved and Lost to Parkinson’s <strong>Disease</strong>I have always loved high heeled shoes. I think that they “finish” anoutfit, any outfit. In fact, you could be wearing a burlap bag tiedin the middle with a piece of jute string, but if you wore the rightpair of high heeled boots — say leopard-skinned over the kneeStuart Weitzmans … well, honey, you looked high-maintenance!Well, Parkinson’s disease took all that away from me. I always hadtrouble walking and chewing gum at the same time — but nowforget it. Balance is out the window. But, oh, those shoes!They gave me such joy! And you know, they still do. The lips atthe lower right are me kissing them goodbye for my feet butthanking them for their contribution to me. They are my muse inthe art of living with PD — with flair.”Christina LaGanaBlock 1518


Block 13Barbara LichtigPlattsburgh, NY, USAJanet BoothPlattsburgh, NY, USAMary Lou BeauharnoisPlattsburgh, NY, USAPatricia WoodPlattsburgh, NY, USAHelga PetropoulosCadyville, NY, USAJudy RussellPlattsburgh, NY, USALora BarshowPlattsburgh, NY, USALadies of the Lake <strong>Quilt</strong>ersPlattsburgh, NY, USAPlattsburgh, New York Parkinson’s Awareness <strong>Quilt</strong>Kate DelsignorePlattsburgh, NY, USACarol Solari-RuscoePeru, NY, USANiki GemmillChazy, NY, USACarol CrowningshieldPort Kent, NY, USABarbara WagnerPlattsburgh, NY, USAMary GagnierPlattsburgh, NY, USALois BallardPeru, NY, USAJohn RussellPlattsburgh, NY, USA19


Block 14Flagstaff Support GroupWilliams, AZ, USAMarcia WienerGreen Valley, AZ, USA<strong>Quilt</strong> <strong>Project</strong> CommitteeNew York, NY, USALinda WebbWilliams, AZ, USAMartha OberBath, NY, USAJean BurnsSun Lakes, AZ, USAJean BurnsSun Lakes, AZ, USALSVT GlobalTucson, AZ, USAArizona Parkinson’s Awareness <strong>Quilt</strong>Linda WebbWilliams, AZ, USAPDPlan4LifeSun Lakes, AZ, USAJean BurnsSun Lakes, AZ, USAShirley & Becky FarleyTucson, AZ, USASharon KhaTucson, AZ, USALinda WebbWilliams, AZ, USAWendy GlassAustin, TX, USALinda WebbWilliams, AZ, USA20


Block 15Christine LaGanaColumbia, MD, USAMeryl LeesCowra, NSW, AUSTRALIADanish PD AssociationCopenhagen K, DENMARKDanish PD AssociationCopenhagen K, DENMARKDanish PD AssociationCopenhagen K, DENMARKPenny TeemWilliford, AR, USAKaren LeesCowra, NSW, AUSTRALIADanish PD AssociationCopenhagen K, DENMARKMarion DolanBuffalo, NY, USAMichele Lee BakerRanburne, AL, USADiane M. CampionWhitefish Bay, WI, USALorna WhiteDubbo, NSW, AUSTRALIAMichele Lee BakerRanburne, AL, USADiane M. CampionWhitefish Bay, WI, USAJacqueline Michal BarzelyKibbutz Revivim, ISRAELChristine LaGanaColumbia, MD, USA21


“My quilt panel is in memory of my Dad, Howard L. Reiter. We foundout Dad had <strong>Parkinson's</strong> in 1993. He and Mom did pretty wellwhile taking care of one another, but then we found out Mom hadbladder cancer. Mom died 17 months later. I took care of Dad forseven years. It is the hardest job I have ever had but I would do itagain in a heartbeat.The three segments represent the things I think of when I think ofDad. He was a chef for 60+ years. After he “retired,” he startedsharing his cooking talents with his students at the local college.Family meant a great deal to Dad. He treasured the babysitting timeafter school with his grandson, who is now 30. We often wonderedwho was taking care of whom. Dad's military career was somethinghe was very proud of, serving five years in Asia during WWII.”Catherine ReiterBlock 16“Our quilt panel was made in honor of patients, caregivers, doctors,nurses, chemists and pharmacists around the world who are livingproof that there is hope in combating this disease called <strong>Parkinson's</strong>.With our panel design we want people to know that the state ofTexas, our town of Nacogdoches, and our support group are 100percent behind all the organizations who are working diligently tofind new medications and new treatments to provide a better lifefor Parkinson’s patients.The tulip is not only a beautiful flower — it is strong, it withstandsthe elements, and though lying dormant for a season, it alwaysreturns more beautiful and stronger than ever. We dedicate ourpanel to Parkinson’s "tulips" everywhere.Texas is called The Lone Star State. We show this on the panel, butalso state the opposite for anyone coping with <strong>Parkinson's</strong> disease.YOU ARE NOT ALONE!”Nacogdoches PD Support GroupBlock 17“Submitting this quilt panel as one of many, makes me realize howglad I am to be sharing in the PD <strong>Quilt</strong> project.In spite of many changes that PD has brought into my life, quiltingstill has the ability to bring me to a quiet place of creative tranquility.It is that feeling of hope I wish to share with others.It is important to define myself as to what I can do, rather thanspend time being troubled over what I have lost. <strong>Quilt</strong>ing helps tosupply that need, and keeps me feeling alive and useful in the faceof the disease.I spent much time thinking through various ideas, with many changesof mind. In the end, I chose a very peaceful background evoking“nature,” “serenity,” and “tranquility.” To complete the theme, anappliqué of three quilted leaves was added symbolizing springtime,hope and rebirth.”Elly HermanBlock 18“Here is my quilt square, made with love and care for all thoseafflicted with this hideous disease.Perhaps our expressions on fabric will allow others to see, to heal,and to understand what PD is. My quilt square is not perfect, butneither is life! If the edges of the yellow fabric are not straight,or if the black fabric is not equal, it’s no big deal. I am not aprofessional quilter but I did my best; this is my work. In this quiltare pieces of my skin suit of my inline team as well as photos ofthe race I put on every year for <strong>PDF</strong>.Why a quilt square? Simple! With words, through threads andfabric we can express to the world our thoughts and feelings ofhow <strong>Parkinson's</strong> disease affects us all. I'm an inline skater. Skating,racing is my passion in life, expressed by putting on a skate race withnet proceeds donated to <strong>PDF</strong>. My brother was diagnosed eightyears ago and his life has changed in many ways since then. Puttingon the skate race is how I'm helping to find a cure. My name isAudrey Winthrop of racebrake.com. I'm the team captain, inlineskater racer of the Beach Bladers Inline Skate Team, Sunset Beach,CA, as well as the race director of the <strong>Parkinson's</strong> Open Inline skaterace at El Dorado Park in Long Beach, CA.”BlockAudrey Winthrop17Personal Statements22


Block 16Sue MangiapaneEncinitas, CA, USADonna CahalaneAnchorage, AK, USAArlene BrodskyMontauk, NY, USAOxford PD Support GroupOxford, OH, USAMichelle JacobowitzCanton, GA, USAKathleen Hyland FritzHoney Brook, PA, USALeanne HolveckNewark, DE, USAJulia HuestisLowell, MA, USALydia ShaternikMontauk, NY, USAMarilyn MollHudson, FL, USAChyleen PauesickKansas City, KS, USAJen, Lauren & Dottie KeeneMechanicsburg, PA, USALynn BennettPalm Bay, FL, USACatherine ReiterAltoona, WI, USAMichael & Cathy CollinsHalfmoon Bay, BC, CANADALaurence GreenfieldNorthfield, IL, USA23


Block 17Karen SmithRidgecrest, CA, USAJeanne Armstrong & Jeannine ShadeState College, PA, USAGail PfeifferSparks, NV, USAJudith JacksonFrostproof, FL, USAMarilyn Van LentenWest Chester, PA, USADiane DurkeeNaples, FL, USAArthur & Patricia BierleValley Center, CA, USANacogdoches PD Support GroupNacogdoches, TX, USADavis Phinney <strong>Foundation</strong>Boulder, CO, USAM.F. KaneTucson, AZ, USAJoan EngelWestbury, NY, USAMarlene LishWesterville, OH, USALaurie BrownMenlo Park, CA, USAWilliam HolmanJeffersonville, IN, USAAudrey WinthropSunset Beach, CA, USAColumbia PD Support GroupColumbia, SC, USA24


Block 18Marian LickoElgin, IL, USABarbara FordStevensville, MI, USAElly HermanSharon, MA, USABerrien County Support GroupStevensville, MI, USAColleen BradyCharles Town, WV, USAStacey Mellus-WhitingWoodside, NY, USANicky BlakeneyTaylorsville, MS, USALinda KammannShelby Township, MI, USASandy LaipplyBucyrus, OH, USAMegan LaymanMartinsburg, WV, USASheryl BoydElyria, OH, USAJoyce FisherHarpers Ferry, WV, USAYvonne KozlowskiValparaiso, IN, USACarol HalpernLa Grange, IL, USANJ Chapter APDANew Brunswick, NJ, USAMary Lou PalmerWaverly, NY, USA25


“Paisley printsDenimFlannelMany different types of fabrics and prints joined together, as aremany hearts in a fervent wish to find a cure for Parkinson’s.Through the Parkinson’s <strong>Quilt</strong> <strong>Project</strong>, hands across the world weavetheir magic to commemorate loved ones suffering from this disease.Pray for those afflictedDonate your time and talentFind a cure”Jean GraffiusBlock 19“Vince was diagnosed with <strong>Parkinson's</strong> disease in 2002. In designingmy panel, I wanted to convey our hopes that with <strong>Parkinson's</strong>disease research we will win the fight against this insidious disease.The dictionary refers to HOPE as "to desire with expectation offulfillment." A RAINBOW is referred to as an "illusion." We believethat with <strong>Parkinson's</strong> disease research our RAINBOW will not bean illusion but rather a reality. Many thanks go to my sister Jean andniece Laura for their support in creating my panel.”Beth MurphyBlock 19Personal Statements“My quilt panel is in honor my husband and soul mate, Ted, who wasdiagnosed with Parkinson’s disease in 1999. He has never given upand works very hard to maintain his health and positive outlook.We have been through endless doctor visits, physical therapy,medicine changes and disappointments. We have discovered thatendless is not the same as hopeless. Keeping a positive outlook isessential. Ted has a "never give up" attitude which has carried himthrough the day-to-day challenges of living with <strong>Parkinson's</strong> disease.He is my rock. Our family is very supportive and accepts that welive day-by-day.We are very blessed. We have good friends, a wonderful, understandingfamily, and the spiritual foundation that we draw on intimes of disappointment and pain. What else could you ask for?A CURE FOR PARKINSON’S DISEASE.”Evelyn KingBlock 20“Our brother, Bert, was diagnosed with Parkinson’s in 2005.In typical Bert fashion, he’s chosen to ignore the disease as muchas possible. Being a scientist, he has volunteered for researchprojects, feeling that if he can help doctors develop treatmentsor find a cure, he will. I remember him telling us that he hadvolunteered for a study of depression in Parkinson’s patients.He was turned down; he just didn’t meet the criteria for the study.He had Parkinson’s, but he wasn’t depressed!Bert attended public school In Rhode Island, graduated fromDennison University and received his doctorate in geology fromJohns Hopkins University. Our square shows Bert engaged in theprofession that he loves so much, and which has taken him all overthe world. He is surrounded and supported by his wife and childrenand some of the places and activities that he enjoys so much.It was embroidered by his siblings: Kathy, Becca, Ann and Woody.Bert Swan’s SiblingsBlock 21”26


Block 19Christine MarteCypress, TX, USARosemary RunyanElgin, IL, USAMarguerite PychaChicago, IL, USAMelinda RutledgeHoover, AL, USAClub CREATE- Struthers PD CenterGolden Valley, MN, USAThe Stewart FamilyMount Airy, MD, USACarol MooreFairbanks, AK, USAGary CrutchfieldSouth Boston, VA, USAJo Ann Van KesselColumbia, MD, USABeth MurphyNew York, NY, USABarbara AlveyCloudcroft, NM, USAIssy MoskowitzAtlanta, GA, USAPD Fdn. of the HeartlandLeawood, KS, USALouise KuklisNew Rochelle, NY, USADebbie MurphyWoodbury, MN, USAJean GraffiusSan Jose, CA, USA27


Block 20Christie KernRacine, WI, USADonna HamillUnderhill, VT, USAMary BridgesEast Boothbay, ME, USAKay SieckOmaha, NE, USALea Ahmed JussilainenStockholm, SWEDENLinda PiggConcord, NC, USAEvelyn KingSellersburg, IN, USALinda JonesChandler, AZ, USAMary Ann Sharrer & Patricia SnyderColchester, CT, USAJennifer WellsFort Collins, CO, USASharon DemintRiverside, CA, USAJamey Hadden & Pat BakerAstoria/Victor, NY, USANirmala KrishnanCopley, OH, USAMadeleine O'MaraMerrimack, NH, USADiana Garmus & Nancy GreenleeSacramento, CA, USADenise BrigodePerrysburg, OH, USA28


Block 21Wilma LazaridisRowville, VIC, AUSTRALIAThe Esplanade Senior CenterWhite Plains, NY, USABert Swan's SiblingsCarmel, NY, USAThe Esplanade Senior CenterWhite Plains, NY, USAThe Esplanade Senior CenterWhite Plains, NY, USAPat BanksDevine, TX, USAThe Esplanade Senior CenterWhite Plains, NY, USALoretta RamosSacramento, CA, USABernadette StephensNew Boston, NH, USAThe Esplanade Senior CenterWhite Plains, NY, USASusan SimpsonBend, OR, USADonna EllisSun Valley, CA, USABrenda BroussardGueydan, LA, USADina HarrisWellfleet, MA, USAThe Esplanade Senior CenterWhite Plains, NY, USAJoyce HartleyRichmond, VA, USA29


Block 22Andrea BursawNewbury, MA, USAAmbika RajanReading, Berkshire, UNITED KINGDOMDeborah HickersonEsparto, CA, USAHarry HershfieldBohemia, NY, USAJoyce HamptonRanson, WV, USAShari Price KerseyFairview, NC, USAMarilyn Mahan & Holly Mahan-RoweMonroe, LA, USAAngela WintersEssexville, MI, USANancy Moss-Racusin, Ph.D.North Haven, CT, USAPaula StocksVilonia, AR, USARachel SmithTallahassee, FL, USAHeartSprings/Denise MorrisFargo, ND, USAMichael Tomich & Ward TomichGrand Rapids, MI, USACheryl FrairDayton, NV, USARock Steady BoxingIndianapolis, IN, USACarol BlannNew York, NY, USA31


Block 23Shady Hill School Grade 2ECambridge, MA, USACarolyn WeaverFreeland, MI, USASarah JensenInternational Falls, MN, USAJanice SmithPhiladelphia, PA, USALouise LauDodge City, KS, USAShady Hill School Grade 2ECambridge, MA, USACarol SwiskPiedmont, OH, USA<strong>Parkinson's</strong> New ZealandAOTEAROA, NEW ZEALAND<strong>Parkinson's</strong> New ZealandAOTEAROA, NEW ZEALANDCarol SwiskPiedmont, OH, USAShady Hill School Grade 2ECambridge, MA, USACarol MeenenGurley, AL, USAWisconsin Chapter APDAMadison, WI, USARebecca SurmeierEmporia, KS, USACarol SwiskPiedmont, OH, USAWisconsin APDA CaregiversMadison, WI, USA32


“In 1967, my great-grandmother, Big Mama, introduced me toquilting. Inspired by the Double-Wedding-Ring quilt Big Mama madefor my wedding in 1975, I created this original pieced-appliquédesign. It blends an old traditional pattern, bits of old fabric scraps,machine quilting, and a bit of machine embroidery. This small quiltis much like our lives — the past with the present, old with new.Loved ones we’ve lost are still with us, sometimes in things we canactually touch as well as those intangible, yet very real, ways— memories, feelings and lessons.”Big Mama’s LegacyBlock 25“It began with a tremor in my left hand, an almost imperceptibleflutter that could have been attributed to weariness, but thatpersisted. So I chose to depict hands in my quilt panel, hands thatare necessary for everyday functioning, hands that reach to becomforted, that comfort my caregiver, that reach for an end to thislurking evil. All the while, hope flutters like a butterfly, lightly, teasingly,beautifully hovering hope. The butterflies on this panel representhope. This is not a very professionally quilted panel. I preferred toleave it in a primitive form, as I have learned through coping withParkinson’s disease that sometimes perfection is not the goal.Accepting what I can do and presenting it as my best is the mostI can offer. All of the materials in this panel are remnants of previousprojects. We take what we have and make the most of it.”Peggy TittBlock 25Personal Statements“My first memory associated with Parkinson’s disease was as a youngchild visiting my grandmother in the nursing home. Due to a heavytremor, she struggled to even bring a mug of coffee to her lips.In the past, my grandmother was a talented quilter, but alwaysinsisted that her quilts were made to be used, not hung for display.Therefore my brother and I always had lovely quilts on our bedsgrowing up, but few have remained intact over the years. I nowwork at a Movement Disorders Clinic and help organize a supportgroup for individuals and caregivers dealing with Parkinson’s disease.My quilt piece is dedicated to the wonderful people I’ve met in ourgroup and to my grandmother, Marcella Martin. She was a fabulouswife, mother and grandmother.”Erika GergerichBlock 27“When my husband was diagnosed with PD five years ago, it reallyknocked us for a loop. I have to force myself sometimes to getquilting again. I enjoy making quilts, machine embroidery and allthings related. Due to stress or fatigue, I have trouble making adecision on what to make or getting the energy to do whateverit is I want to do.I find that quilting helps me to just “go somewhere else” andforget the hassles of PD for a while.As a caregiver, PD has slowed down my productivity, my energy,and my creativity, but like my husband, I’ll be darned if it’s goingto stop me from creating gifts for the family or anyone who seesmy work. We decided when he was diagnosed that we would notlet PD control our lives and we have worked to stay a step aheadwhenever we can.”Sharon PatnoeBlock 2734


Block 25Peggy WillocksJohnson City, TN, USASherry WinterYonkers, NY, USALisa ScuderaNew York, NY, USASandra CostiOlympia, WA, USAVirginia KorolyHuntersville, NC, USASusan SawyerAlbany, NY, USAPamela WarfordFort Worth, TX, USABig Mama's LegacyLubbock, TX, USASandi DickGreat Falls, MT, USAPaige HarperSt. Petersburg, FL, USADorothy RhodenEvans, GA, USAMary HjalmarsonCardiff By the Sea, CA, USASusan W. SmithNew Orleans, LA, USAPeggy TittVictoria, TX, USAErin TylerClearwater, FL, USADeborah ReidJacksonville, FL, USA35


Block 26HAPSHouston, TX, USALis CrawfordFriendswood, TX, USASusan FreitagHouston, TX, USAEmilia HerediaHouston, TX, USAMartha SteinThe Woodland, TX, USAHAPSHouston, TX, USAAlejandro AlvarezKaty, TX, USAMax EldenHouston, TX, USAHouston Area Parkinson’s Society (HAPS) <strong>Quilt</strong> #2HAPSHouston, TX, USAStan RodmanHouston, TX, USAHAPSHouston, TX, USAAnne PribylHouston, TX, USAGeorgene BrandonHouston, TX, USARoscoe JonesPearland, TX, USARobert SteinThe Woodlands, TX, USAHAPSHouston, TX, USA36


Block 27Sandy WoodsFayetteville, AR, USAErika GergerichFayetteville, AR, USAGillian WoodsFayetteville, AR, USAAnn RobertsFayetteville, AR, USAJudy MarinoFayetteville, AR, USASharon PatnoeFayetteville, AR, USAAnn RobertsFayetteville, AR, USASandy WoodsFayetteville, AR, USASandy WoodsFayetteville, AR, USAAnn RobertsFayetteville, AR, USAJerry PatnoeFayetteville, AR, USAJudy MarinoFayetteville, AR, USAFayetteville, Arkansas Senior Health PD Support Group <strong>Quilt</strong>Judy MarinoFayetteville, AR, USASandy WoodsFayetteville, AR, USASandy WoodsFayetteville, AR, USASandy WoodsFayetteville, AR, USA37


“My panel is a tribute to my faith, family and friends who haveaccompanied me through my life’s journey of joy and sorrow,grief and anger, and now Parkinson’s. Parkinson’s is slowly stealingmy strength, thoughts, and words. However, my faith, family, andfriends will accompany me on this journey too as they always haveand always will: turning despair into hope, anger into acceptance,and grief into a quiet joy. I am truly blessed.”Judy MurphyBlock 29“Each piece of a quilt has its own color, pattern, texture and designwith unique beauty and charm. But when the individual pieces of aquilt are sewn together, they become one magnificent work of art.Just as the pieces of a quilt have unique beauty, the people in mylife have unique personalities, talents and skills. Their presenceblesses me in countless ways.Who are the people in the patchwork of my life? They are those Iam close to, as well as those I meet in passing. I give thanks for allof you who touch my life in some way. I enfold you in prayer andhold you in a special place in my heart. You are an important partof the fabric of my life — a tapestry of love.”Joan SzczepanksiBlock 30Personal Statements“I decided to do this quilt panel as a person diagnosed with PD 13years ago, because it is the right thing to do. I am not qualified todo research, but I can take part in Parkinson’s studies and I canmake a quilt panel with the help of my husband, family and friends,and especially with hands-on help from my sister, June Metts.I dedicate this panel to the Lanier Village Estates PD supportgroup, both past and present.I chose the autumn leaves pattern because it reminded me thatPD is a disease that comes to you in the autumn years of your life.It is no respecter of persons. We come from all walks of life withdifferent and varied symptoms. We are each like a leaf on anautumn tree; each using his or her own talent, working togetheras a whole, to one day soon find a cure.”Ruth PearceBlock 30“My quilt square represents the things that PD has given me, ratherthan what is has taken away.The ukulele on the left side is my bell-weather. My neurologistalways asks me if I’m still able to play and sing, and if so, he knowsI’m doing okay! The buttons, the drawing, the crochet anddecorations represent my crafting hobbies that have become somuch more important to me since being diagnosed. Suddenly,I have this incredible urge to create, to express myself. So, I bead,carve, draw, crochet, write poetry and play music. I've done thesethings before, but never with so much joy.Finally, the two tulips in the middle represent the wonderfulfriends I’ve found through PD, whom I probably never wouldhave met otherwise. Their support and that of my family andcoworkers has been an absolute revelation to me; an inspiringand humbling experience.”Marian BumalaBlock 2938


Block 28Portuguese PD AssociationLisbon, PORTUGALPortuguese Parkinson’s <strong>Disease</strong> Association <strong>Quilt</strong>39


Block 29Virginia McNeilVandalia, IL, USARodeo MomVandalia, IL, USACharlene PryorVandalia, IL, USAPatty Garcia-GrandonConcepcion, CHILEPatientsLikeMe <strong>Quilt</strong>Judy MurphyVine Grove, KY, USASusan HamlinLos Gatos, CA, USACathleen PalminiStevens Point, WI, USAPatty MeehanRichmond TWP, MI, USAMarian BumalaLa Honda, CA, USAVictor LopezConroe, TX, USAElaine SulzbergerPalo Alto, CA, USACharlene PryorVandalia, IL, USACharlene PryorVandalia, IL, USAPeter Monday LuleNairobi, KENYADonna AvolioHouston, TX, USACharlene PryorVandalia, IL, USA40


Block 30Joan SzczepanskiBay City, MI, USARoslyn HelfenWestfield, NJ, USAWendi LevinePalm Beach Gardens, FL, USAMargaret WheelerLansdale, PA, USAMary GoebelCincinnati, OH, USAPamela ChristnerNewbury Park, CA, USASusan DietrichActon, CA, USARuth PearceGainsville, GA, USAEllen HogueSaratoga, CA, USAPatsy BrownEl Dorado Hills, CA, USAKristi LeFevreRound Lake Beach, IL, USAPatricia BerkeleyKeysville, VA, USAKathleen Reardon-NobletJamestown, RI, USADebra SteinmannAtlanta, GA, USAPauline DehnOakley, CA, USATerrie PrescottOrlando, FL, USA41


“For her amazing and selfless heart. For the way she takes care ofeveryone around her. For the example and inspiration she is.For the many days she fell in love. For her joyful, playful spirit.How motherhood made her shine and being a grandma makes herglow. For her insistence that homemade and handmade is alwaysbest. For her ability to cook for 100 and make it look like a walk inthe park. Because she distinguishes between white, off white and“whipping cream” white. Because she believes ice cream is a frozenglass of milk. For her faith and her ability to see good in everyone.For her endless determination.In honor of my mother, whose battle with Parkinson’s began20 years ago.She is the bravest woman I know.”Jill SewardBlock 33“I am very passionate about skiing. Because it gives me such atremendous sense of freedom, skiing is one of my best means ofdealing with PD. I also write poetry, a strange unexpected gift.I woke up one morning after a nightmare in which I was drowning(a PD dream) and a voice started dictating words and phrases.I had no background in poetry, but decided to follow the voice.Since July 2009, I’ve written more than 600 poems. Very recently,I started art classes in drawing and oil painting. Again, I am surprisedat the results so far and am very much enjoying them. PD seemsto have spurred my creative side and, for me, this feels like a gift.”Marlene McNewBlock 33Personal Statements“<strong>Parkinson's</strong> disease came tiptoeing into our lives and our awarenessa couple of years ago, although it had probably taken up residencesomewhat earlier. My husband had always struggled with stiffness,so when that condition worsened, we simply attributed it to naturalprogression or (is it remotely possible?) that age was taking its toll.We now know that PD is the culprit, and that we need to adjustand adapt to new demands. I only became aware of the <strong>PDF</strong> <strong>Quilt</strong><strong>Project</strong> within a month of the final acceptance date, so I chose toadapt some of my UFOs (in quilter terms that's UnFinishedObjects) in order to complete a panel in time for submission.It seems to me that "adapting" to new or challenging situationsmay be the best solution for all of us whether we deal with PD inour lives or not.”Sharon CopelandBlock 32“This panel is in honor of my husband Alan and depicts our happymemories of past vacations spent hiking in France. Alan and Iwere never very athletic — about the only form of exercise wewere both good at was walking. We loved to hike the open-spacetrails near our home in California. Then we learned about theChemin de St. Jacques, the 1,000-mile medieval pilgrimage trailthrough France and Spain to Santiago de Compostela.When Alan was 60, we set off to walk the trail from Le Puy-en-Velay.In two-week segments over three summers, we covered 350 milesof the trail. Then Alan began to have pain in his legs and had togive up hiking, and at age 70 he was diagnosed with <strong>Parkinson's</strong>.Five years later, some days he can still go out for a walk, but otherdays he struggles to walk at all. PD has made the memories of thesewonderful vacations all the more precious to us.”Amy Van VoorhisBlock 3142


Block 31Allison BlakleyNorthbrook, IL, USASally WebbAberdeen, SD, USABeth DeLucoPlantsville, CT, USASusan WingCarol Stream, IL, USAMary HallBoulder, CO, USABarb BenseLong Prairie, MN, USARuth NielsenCoupeville, WA, USABeverlee A. LanningRoswell, NM, USAHarriett PotenzaWestern Springs, IL, USASusan ChaseBowdoinham, ME, USAKim PopePipersville, PA, USASandra Martinez FiolMiami, FL, USAAmy Van VoorhisWalnut Creek, CA, USANan LittleSeattle, WA, USADiane TunisRockville, MD, USALinda PrestonDelanco, NJ, USA43


Block 32Sharon CopelandAlbuquerque, NM, USABrian Grant <strong>Foundation</strong>Portland, OR, USACentral IL PD Support GroupEast Peoria, IL, USACatherine RodriguezSan Diego, CA, USAMary GreenMishicot, WI, USASharon Gaffor & Diane JohansenElgin, IL, USAEllington, CT PD GroupEllington, CT, USANancy PrestonWest Valley, NY, USAAnnette CorradoPort St. Lucie, FL, USALynn ClementRoyal Oak, MI, USAMargaret JonesMechanicsville, MD, USAMarjorie E. AndersonSeattle, WA, USAKaren NorthropNew York, NY, USAAnn Lew KirschnerWellington, FL, USABarbara AllenClifton Park, NY, USAPatricia YoungDeland, FL, USA44


Block 33Susan FrangelloNew Port Richey, FL, USAJoanne AbrahamsWhite Plains, NY, USADorothy TannerCamden, TN, USAPaula EiseleWest Chester, OH, USABroomfield Support GroupBroomfield, CO, USAD. Sharon CreeganMorrisville, PA, USATammy McPhersonKittanning, PA, USACaroline TannerBerkeley, CA, USATerry GuerraSan Jose, CA, USANancy CichyElmhurst, IL, USARhoda E. PillsburyRockford, IL, USALinda RuskFolsom, CA, USALillian Lockhart JubiakWest Palm Beach, FL, USANorthamptonshire Support GroupNorthampton, UNITED KINGDOMJill SewardOakdale, MN, USAMarlene McNewSan Jose, CA, USA45


“This photograph of one of my oil paintings and the words adaptedfrom "Walden" remind me that life has much to offer, despite livingwith PD.My mother died when I was 19; she was only 47. Although she wasproud of my accomplishments at Cornell, she was concerned thatI was working too hard. She suggested that I move to San Franciscoand sell my paintings on the street. She wanted me to be happy;she wanted me to be free.I didn't take her advice, but I got her point. I continue to feel herlove and support 33 years later.PD has been a curse, but also a gift. It forced me to slow down,and reminds me to make the most of every day — so that when Icome to die, I do not "discover that I had not lived."”“There will always be a close connection between Parkinson’s andquilting for me. I made one of my first quilts for my Grandpa, whowas just moving in to a nursing home due to advanced Parkinson’s.I wanted to make something for him that would make him feel morecomfortable and know that he was loved and special. I thought aquilt would be just the thing.Since I didn’t have a clue on what to do, I ended up making myGrandpa more of a quilt sandwich. The quilt was made from onepiece of fabric on the top, a piece of flannel for the back, and justsimply sewn together. The top fabric had these old fashion bathingbeauties on it, which was perfect for my Grandpa. My Grandpa wastucked in with “his ladies” for every nap for the next two years.My Grandpa loved “his ladies.””Linda HanafeeMarie Louise Hagen Block 35Block 34Personal Statements“This square is dedicated to people with Parkinson’s, as well as thescientists who search for the cure.For many people living with Parkinson’s, engaging in creative activityhelps to suspend PD symptoms. Although the symptomatic relief istemporary (usually lasting only during the creative activity), I believethat researchers will someday be able to replicate that unknownpower to perhaps suspend the symptoms indefinitely. Throughdiligent and creative research, I believe there will be an end to PD.The subtle message in this quilt square is found in the lettering ofthe message: “Be creative: Stop the symptoms, find a cure.” Thereare three letters in red which are outline-stitched in black thread…Y O U. The key to creativity is “YOU”; whether you are a patient ora scientist/researcher, be actively engaged in the creative process— both to help relieve the symptoms and ultimately to find a cure.”Sharon StoneBlock 35“Our journey with PD started 10 years ago, though my John wasn'tdiagnosed until just last year — and then all the questions andsymptoms fell into place and we had something to call it:Parkinson’s disease.We knew several people who had PD, but had very little knowledgeabout the disease. Now we know more, but as we talk with friendsabout how PD is actually affecting John's lifestyle, we want tocommunicate more clearly and widely what this disease does to abody. When this opportunity came to me, I thought "Why not?"I've been secretary to my local quilt guild for five years, but in spiteof everyone's attempt to get me to be a “quilter,” I continue to bemostly a “quilt appreciator." I have never designed or made a quiltproject, but in honor of my John, and our desire to increaseeducation and research for combating this disease, here is my quiltsquare. I thought of our 37 married years, and our life here on theCentral Coast of California when I designed my square. Mountains,and Yosemite in particular is a place for personal renewal and peacefor my John, as the ocean is for me, so both had to be included inthis block. The sandy beaches, the fruitful central valley, and thehistoric foothills are in between.”Harriet ClarkBlock 3646


Block 34Sandee NisenfeldChurchville, PA, USAJared BoNatick, MA, USAClaire McCannBradley, OK, USACarol GoodwinMissouri City, TX, USAPatricia D. MurrayTrumbull, CT, USABonnie MillerSwain, NY, USADiane CrandellGarfield, AR, USAGenevieve YuenNew York, NY, USAMarie Louise HagenWashington, DC, USAJoann KeyesMaple City, MI, USAHendricks County Senior ServicesClayton, IN, USALonnie MemmerFremont, OH, USABetty PercyPalm Beach Gardens, FL, USARichard H. CollinsWestfield, WI, USAJoan EmersonBiddeford, ME, USAHelen Alison SwarbrickToowoomba, Queensland, AUSTRALIA47


Block 35Linda MasonMcMinnville, OR, USAMary Lou PalmerWaverly, NY, USASharon StoneMorristown, NJ, USABrenda ThomasCrofton, MD, USAKathryn PaigeAllendale, NJ, USAVirginia SchwingeWest Caldwell, NJ, USADonna PeacockMount Vernon, IL, USASandra HartnettWoodstock, IL, USALynda ConklinVallejo, CA, USACarol BlueSpring Hill, FL, USAColleen RyanVanceburg, KY, USAJeannette PuckettHudson, FL, USAJanice RamseyTaylor, MI, USAJean NeapolitanHatboro, PA, USAJanice RamseyTaylor, MI, USALinda HanafeeBerkeley, CA, USA48


Block 36Jean BarfootFultondale, AL ,USAMarguerite PychaChicago, IL ,USACindy FoxWest Chester, PA ,USAJill NauCharles Town, WV ,USAAmy ScottBrooklyn, NY ,USAMichigan Parkinson <strong>Foundation</strong>Scottville, MI ,USAAnn Marie KonopkaKendall Park, NJ, USAHarriet ClarkSan Juan Bautista, CA, USATrudy SchneiderAurora, CO ,USAMargit PinterMetuchen, NJ, USAMelinda TilleyOak Ridge, TN, USAEvie RuiterPipestone, MN, USADebra Lou YoungNew Albany, IN, USABarbara PischingSuisun City, CA, USAEllen DewsburySt. Augustine, FL, USAMaryLou WalesAbington, MA, USA49


“As a person with Parkinson’s (PWP), I felt a strong desire toparticipate in the quilt project but had no idea as to what designI could make. Fortunately, my friend, who is also a PWP, listened tome and said to start off the design with “penguins” because wesometimes walk like them! I liked this and immediately envisionedtwo penguins standing on ice and snow in the Arctic and lookingskyward at the Northern Lights and seeing “Hope.” These last fewmonths, I have had difficulty with my PD meds and have tremorsmost of the time, making it quite difficult to sew. My sister steppedin and did most of the sewing and we had a great time.”Cheryl ByrneBlock 37“My quilt panel displays my beaded jewelry pieces and somecrocheted items that I have made over the course of the past year.I have always enjoyed crafting of all sorts, but I now find that keepingbusy by making these items helps with my symptoms of PD. I alsofind that I have a sense of calm when creating.This also gives me a sense of individuality. I still am Sherry, and not“Sherry that has PD.”I have now started to make my own beads with clay. I find this, alongwith the beaded jewelry and crocheted items, to be very therapeutic.”Sherry SlutzBlock 39Personal Statements“Parkinson’s slowly and painstakingly crept in and stole my father, ourfamily’s golden patriarch. Technically my father died from complicationsof a stroke. I can’t help thinking that a blood clot had developedfrom all the bruising and black and blues he had sustained from hiscountless falls from his unpredictable and undependable body.My Dad was a vibrant, hard working, loving family man. He was the“American Dream”! One of eight children of Italian immigrants, a firstgeneration American, a World War II veteran, P.O.W., a man who didn’thave a high school degree. But he managed to move his family out ofthe city to the suburbs, to a house with a backyard and pool. He builton weekends while others were resting for the next week. He workedhard to support his family, most of his life working two jobs.It was heartbreaking to see this strong man develop a shuffling,stooped walk, see his hands tremble and shake as he ate, lose hisbooming rich voice and see the onset of dementia and confusion.This quilt is dedicated to this amazing man. It was sponsored by hiswife, children, and their spouses, grandchildren and great grandchildren.It was designed, stitched and sewn together with love, respect andadoration. Enjoy our father’s story and the retelling of his life’s journey.”Charles Lucania Memorial <strong>Quilt</strong>Block 38“My husband was first diagnosed with Parkinson’s about 10 yearsago when he was 55. Major life changes were in order. His way oflooking at life did not change, however. While he is no longer ableto play his beloved guitar, instead he has become anenthusiastic fan and collector of music. Though he is no longerable to enjoy the dynamic of playing basketball with our two sons,they now gather in our living room and enthusiastically cheer ourlocal team — the Golden State Warriors. Yes, Parkinson’s candevastate and bring sadness to a family. My husband chose totransfer his passion to other aspects of his life. His chief creativeoutlet is photography. In particular, California’s rugged coastlinekeeps beckoning him back. Then there is a photo of me in a miniskirt — but that’s another quilt, and another story for another time.Linda SiquigBlock 37”50


Block 37Catherine ReiterAltoona, WI, USAPatricia AlcaroRumson, NJ, USABetty HoustonAustin, AR, USAMargaret DurazoYuma, AZ, USASusan KanessFlourtown, PA, USALois GwinnButternut, WI, USAJanet ShinkleLiberty, MO, USAJulia HuestisLowell, MA, USAAna CaneiraNewark, NJ, USALinda SiquigSan Jose, CA, USAJackie KreutzerColumbus, OH, USARachael SchneiderEast Brunswick, NJ, USACynthia CravenAsheboro, NC, USACheryl ByrneAuburn, CA, USAAudrey WinthropSunset Beach, CA, USAVirginia SchwingeWest Caldwell, NJ, USA51


Block 38Clinton FamilyApex, NC, USALina LucaniaMelville, NY, USATragakis FamilyFort Gordon, GA, USALinda VietriDelray Beach, FL, USAVietri FamilyLondon, UNITED KINGDOMClinton FamilyApex, NC, USATragakis FamilyFort Gordon, GA, USAJackie & Joe BlantonAlexandria, VA, USACharles Lucania Memorial <strong>Quilt</strong>Lina LucaniaMelville, NY, USAPhelan FamilyAlto Loma, CA, USAVietri FamilyLondon, UNITED KINGDOMJackie & Joe BlantonAlexandria, VA, USALaura & Ron DePaceNewburgh, NY, USAMark & Lisa DePaceNewburgh, NY, USALinda VietriDelray Beach, FL, USAPhelan FamilyAlto Loma, CA, USA52


Block 39Peggy WillocksJohnson City, TN, USACislyn SmithMadison, WI, USABetty HigginsPresque Isle, ME, USASue MangiapaneEncinitas, CA, USAJack and Carol PallyStaten Island, NY, USAMarlene GatesyGaylord, MI, USAKim Vitcenda CadeViroqua, WI, USAKaren VaughanBrooklyn, NY, USAAndree JannetteWest Chester, PA, USASue MangiapaneEncinitas, CA, USACharlie and Jean CondonGrundy, VA, USAHeidi BissellMadison, WI, USASherry SlutzPhiladelphia, PA, USAVicki LoarGlendale, AZ, USAMichael MostranskyWantagh, NY, USAElizabeth FogartyErie, PA, USA53


Kathryn Vaandrager& Debra VanthulSheldon, IA, USACongrex UK LtdGlasgow, Scotland, UNITED KINGDOMPeggy WillocksJohnson City, TN, USANorman Dean InskeepGrand Junction, CO, USABlock 40Kim Vitcenda CadeViroqua, WI, USALinda BellSupply, NC, USATerri Vanden Bosch & Karen VisRock Valley, IA, USALarry Schneider, Jr.Gibbsboro, NJ, USAKim Vitcenda CadeViroqua, WI, USAPaul J. SchroderDenver, CO, USAJoyce LevineJerusalem, ISRAELLorna WoorCambridge, UNITED KINGDOMAlison Patricia BrowningLlandudno Junction, UNITED KINGDOMBarbara CissneGarland, TX, USAApril CurfmanGresham, OR, USAKatherine CastleGainesville, FL, USA54


Block 41Kim Vitcenda CadeViroqua, WI, USALynne StefanettiParadise, CA, USAStephanie CassellHartlepool, UNITED KINGDOMNan LittleSeattle, WA, USAAncret ShiptonNar Nar Goon, VIC, AUSTRALIAElaine SulzbergerPalo Alto, CA, USAWilliam RiceLimerick, IRELANDRita ThomsonInnerleithen, SCOTLANDHayley Carpenter for PANWashington, DC, USAThelma BalbesCarlsbad, CA, USAElaine SulzbergerPalo Alto, CA, USAJackie Hunt-ChristensenMinneapolis, MN, USAJane Asher for Parkinson’s UKLondon, UNITED KINGDOMGert McMullinAtlanta, GA, USAGeorge HanksWesterlo, BELGIUMKathleen BloseHartford, UNITED KINGDOM55


People Behind the Parkinson’s <strong>Quilt</strong>Canterbury Parkinson’sSupport GroupBlock 24Ruth Pearce | Block 30HeartSpringsDenise MorrisBlock 22Curt Van Tassellwith the panel ofJo Ann Van KesselBlock 19Betty Houston | Block 37Gary Crutchfield | Block 19 Elena Tuero | Block 9 Diane McGraw | Block 24 Lois Cole | Block 5 Jean Graffius &Laura Kamian with thepanel of Beth MurphyBlock 1956


“The true power of the Parkinson’s <strong>Quilt</strong> <strong>Project</strong> comes from the more than 600 individuals who have createdthe pieces. When the quilt is displayed, it will radiate the contributions of those around the world touched byParkinson’s. It will also remind the world that we need increased awareness and funds to find a cure.”Robin ElliottExecutive Director, Parkinson’s <strong>Disease</strong> <strong>Foundation</strong>Michael MostranskyBlock 39Jean Graffius | Block 19 Rita D'Alonzo | Block 10 Cathleen Palmini | Block 29 The Stewart FamilyBlock 19Brenda LockhartColombo and LillianLockhart JubiakBlock 33Ellington, CT PD GroupBlock 32Helen Alison SwarbrickBlock 34Niska | Block 10Tashi Shaikh,Asima Haroon, andHaroon BasheerBlock 1257


AAbrahams, Joanne, 45Ahmed Jussilainen, Lea, 28Alcaro, Patricia, 51Allan, Susan, 6, 9Allen, Barbara, 44Allen, Sheryl, 9Alvarez, Alejandro, 36Alvey, Barbara, 27Ampudia, Mona, 9Andersen, Mindy Kirsten, 11Anderson, Marjorie E., 44Anwer, Salika, 17Arehart, Katherine, 11Armstrong, Jeanne, 24Armstrong, Linda, 13Asher, Jane, 55Atkin, Anne, 5Avolio, Donna, 40BBackus, Barbara, 12Baker, Michele Lee, 21Baker, Pat, 28Balbes, Thelma, 55Ballard, Lois, 18, 19Banks, Pat, 29Barfoot, Jean, 49Barshow, Lora, 19Barzely, Jacqueline Michal, 21Basheer, Haroon, 55Basheer, Raniyah, 17Basheer, Rayyan, 17Bass, Esther, 9Beauharnois, Mary Lou, 19Bell, Linda, 54Bennett, Lynn, 23Bense, Barb, 43Berkeley, Patricia, 41Berrien County Support Group, 25Bersan, Carol, 8Bert Swan's Siblings, 26, 29Bethany Convent, 12Bierle, Arthur, 24Bierle, Patricia, 24Big Mama's Legacy, 34, 35Bismarck <strong>Parkinson's</strong>Support Group, 4Bissell, Heidi, 53Bissell, Patricia, 4Blake, Yvonne, 11Blakeney, Nicky, 25Blakley, Allison, 43Blann, Carol, 31Blanton, Jackie, 52Blanton, Joe, 52Blose, Kathleen, 55Blue, Carol, 48Bo, Jared, 47Booth, Janet, 19Booth, Mary, 9Bopp, Sheila, 15Boyd, Sheryl, 25Brady, Colleen, 25Brandon, Georgene, 36Breedlove, Rebecca, 11Brian Grant <strong>Foundation</strong>, 44Bridges, Mary, 28Brigode, Denise, 28Broaddus, Kathleen, 12Brodsky, Arlene, 23Broomfield Support Group, 45Broussard, Brenda, 29Brown, Clarita, 16Brown, Laurie, 24Brown, Patsy, 41Browning, Alison Patricia, 54Brumer, Rachel, 12Bumala, Marian, 38, 40Burns, Jean, 18, 20Bursaw, Andrea, 31Byrne, Cheryl, 50, 51CCahalane, Donna, 23Calvin, Aubrey, 16Campion, Diane M., 21Caneira, Ana, 51Canterbury <strong>Parkinson's</strong> SupportGroup, 33, 56Carpenter, Hayley, 55Cassell, Stephanie, 55Cassidy, Carol, 8Castle, Katherine, 54Catton, Janice, 8Central IL PD Support Group, 44Charles Lucania Memorial<strong>Quilt</strong>, 50, 52Chase, Susan, 43Cho, Duk Kyung, 3Choae, Jin Kyoung, 3Christner, Pamela, 41Churchman, Mike, 16Cichy, Nancy, 45Cissne, Barbara, 54Clark, Gracia, 13Clark, Harriet, 46, 49Claycomb, Maralyn, 12Clement, Lynn, 44Cline, Shirley, 15Clinton Family, 52Club CREATE- StruthersPD Center, 7, 27Colalillo, Louise, 8Cole, Lois, 8, 56Cole, Patricia, 8Collins, Cathy, 23Collins, Michael, 23Collins, Richard H., 47Colombo, Brenda Lockhart, 57Columbia PD Support Group, 24Condon, Charlie, 53Condon, Jean, 53Congrex UK Ltd, 54Conklin, Lynda, 48Connolly, Betty, 33Copeland, Sharon, 42, 44Corrado, Annette, 44Costi, Sandra, 35Craine, Cindy, 30, 33Crandell, Diane, 47Craven, Cynthia, 7, 51Crawford, Lis, 36Creegan, D. Sharon, 45Crowningshield, Carol, 19Crutchfield, Gary, 27, 56Cure <strong>Parkinson's</strong> Trust, The, 33Curfman, April, 54Curtis, Robert, 16Cushman, Mildred, 15DD'Alonzo, Rita, 14, 15, 57D'Anieri, June, 11Danish PD Association, 21Davis Phinney <strong>Foundation</strong>, 24De Leon, Maria L., M.D., 13DeGraaf, Karen, 13Dehn, Pauline, 41DeLeon, Paquita, 16Dell, Karen, 15Delsignore, Kate, 19DeLuco, Beth, 43Demint, Sharon, 28DePace, Mark, 52DePace, Laura, 52DePace, Lisa, 52DePace, Ron, 52Dewsbury, Ellen, 49Dick, Sandi, 35Dietrich, Susan, 41Diez, Kathleen, 10, 13Dill, Barbara, 12Dolan, Marion, 21Doughty, Gayla, 10, 1258


Driscoll, Michael, 16Durazo, Margaret, 51Durkee, Diane, 24EEager, Heather, 2, 3Edison, Cindy, 13Eisele, Paula, 45Elden, Max, 36Eleanor Flowers' Children, 13Ellington, CT PD Group, 44, 57Ellis, Donna, 29Emerson, Joan, 47Engel, Joan, 24Esplanade Senior Center, The, 29FFarley, Becky, 20Farley, Shirley, 20Feinberg, Barbara, 3Feinberg, Linda, 3Fiol, Sandra Martinez, 43Fisher, Joyce, 25Flagstaff Support Group, 20Fogarty, Elizabeth, 53Foley, Lisa, 3Ford, Barbara, 25Fox, Cindy, 49Frair, Cheryl, 31Frangello, Susan, 45Franz, Warren, 16Freitag, Ellis, 16Freitag, Susan, 36Fritz, Kathleen Hyland, 23Fry, Carol, 16GGaffor, Sharon, 44Gagnier, Mary, 19Garcia-Grandon, Patty, 40Garmus, Diana, 28Gatesy, Greg, 4Gatesy, Marlene, 53Gemmill, Niki, 19Gergerich, Erika, 34, 37Gerry, Helen, 6, 9Glass, Wendy, 20GlaxoSmithKline Staff, 17Goebel, Mary, 41Goldman, Suzanne, 12Goodwin, Carol, 47Graffius, Jean, 26, 27, 56, 57Gray, Jane, 3Green, Mary, 44Greenfield, Laurence, 23Greenlee, Nancy, 28Guerra, Terry, 45Gwinn, Lois, 51HHabenstreit, Linda, 12Hadden, Jamey, 28Hagen, Marie Louise, 14, 15, 46, 47Hall, Mary, 43Halpern, Carol, 25Hamill, Donna, 28Hamilton, Jean, 13Hamlin, Susan, 40Hampton, Joyce, 31Hanafee, Linda, 46, 48Hanks, George, 55Haroon, Asima, 57Harper, Paige, 35Harris, Dina, 29Harrison, Paris, 11Hartley, Joyce, 29Hartnett, Sandra, 48Hashmi, Talat, 17Hatke, Carole, 12Hatke, Jen, 12Healy, Patricia, 12HeartSprings, 31, 56Helfen, Roslyn, 41Hendelman, Judith, 15Hendricks CountySenior Services, 47Heredia, Emilia, 36Herman, Elly, 22, 25Hershfield, Harry, 31Hickerson, Deborah, 31Higgins, Betty, 53Hilbrecht, Sharron, 33Hjalmarson, Mary, 12, 35Ho, Cynthia, 8Hogue, Ellen, 41Holman, William, 24Holveck, Leanne, 23Houston Area <strong>Parkinson's</strong>Society (HAPS), 36Houston, Betty, 51, 56Huestis, Julia, 23, 51Huffman, Patricia, 11Huseman, Katherine, 8Huizinga, Mary, 3Hull, Eleanore, 8Hunt-Christensen, Jackie, 55IInskeep, Norman Dean, 54JJackson, Judith, 24Jacobowitz, Michelle, 11, 23Jacobs, Lynette, 4Jannette, Andree, 53Jecmen, Judi, 3Jenkins, Kay Mixson, 7Jensen, Sarah, 32Johansen, Diane, 44Jones, Linda, 28Jones, Margaret, 44Jones, Roscoe, 36Jubiak, Lillian Lockhart, 45, 57KKamian, Laura, 56Kammann, Linda, 25Kane, M.F., 24Kaness, Susan, 51Kawabe, Aiko, 7Keene, Dottie, 23Keene, Jen, 23Keene, Lauren, 23Kern, Christie, 28Kersey, Shari Price, 31Keyes, Joann, 47Kha, Sharon, 20Kidd, Mary, 33King, Evelyn, 26, 28Kirschner, Ann Lew, 44Konopka, Ann Marie, 49Koroly, Virginia, 35Kozlowski, Yvonne, 25Kreutzer, Jackie, 51Krishnan, Nirmala, 28Kuklis, Louise, 27LLadies of the Lake <strong>Quilt</strong>ers, 19LaGana, Christine, 18, 21Laipply, Sandy, 25Lanning, Beverlee A., 43Lary, Brenda, 16Lau, Louise, 32Lauck, Meg, 16Lavender, Beverly, 2, 5Laverty, Lenore, 3Layman, Megan, 25Lazaridis, Wilma, 29Lees, Karen, 21Lees, Meryl, 21LeFevre, Kristi, 41Levine, Joyce, 54Levine, Wendi, 41Lichtig, Barbara, 1959


Licko, Marian, 25Lish, Marlene, 24Little, Nan, 43, 55Loar, Vicki, 53Longacher, Lisa, 8Lopez, Victor, 40LSVT Global, 20Lucania, Lina, 52Lukens, Pat, 10, 11Lule, Peter Monday, 40MMacke, Linda, 11Magic, Margaret, 15Mahan, Marilyn, 31Mahan-Rowe, Holly, 31Majeske, Cheryl, 4Majidulla, Sleem, 14, 17Mangiapane, Sue, 23, 53Marino, Judy, 37Marquet, Jennifer, 33Marte, Christine, 27Mason, Linda, 48Massey, Annelies, 4McCann, Claire, 47McGraw, Diane, 33, 56McMullin, Gert, 55McMurtry, Kathleen, 6, 9McNeil, Virginia, 40McNew, Marlene, 42, 45McPherson, Tammy, 45Meehan, Patty, 40Meenen, Carol, 32Mellus-Whiting, Stacey, 25Memmer, Lonnie, 47Michigan Parkinson <strong>Foundation</strong>, 49Miller, Bonnie, 47Milton, Wanda, 4Moll, Marilyn, 23Monahan, Dianne, 30Moore, Carol, 27Morris, Denise, 31, 56Morris, Patricia, 9Moskowitz, Issy, 27Moss-Racusin, Nancy, Ph.D., 30, 32Mostransky, Michael, 53, 57Moulton, Pamela, 5Movers & Shakers (Inc.), 33Muller, Ans, 3Murphy, Beth, 26, 27, 56Murphy, Debbie, 27Murphy, Judy, 38, 40Murray, Patricia D., 47Murray, Susan, 3NNacogdoches PD SupportGroup, 22, 24Nau, Jill, 49Neapolitan, Jean, 48Nielsen, Ruth, 43Nisenfeld, Sandee, 47Niska, 15, 57NJ Chapter APDA, 25Northamptonshire SupportGroup, 45Northrop, Karen, 44Novichihin, Irene, 12OOber, Martha, 20O'Mara, Madeleine, 28Oxford PD Support Group, 23PPage, Susan, 15Paige, Kathryn, 48Pally, Carol, 53Pally, Jack, 53Palmer, Mary Lou, 25, 48Palmini, Cathleen, 40, 57Paolini, Alison, 4Parkies Jammin, 7Parkinson’s Action Network, 55<strong>Parkinson's</strong> <strong>Disease</strong> <strong>Foundation</strong>, 5<strong>Parkinson's</strong> New Zealand, 30, 32<strong>Parkinson's</strong> <strong>Quilt</strong> <strong>Project</strong>Committee, 20Parkinson’s UK, 55Parkinson’s UK-NewcastleBranch, 4Patlogan, Ila, 11Patnoe, Jerry, 37Patnoe, Sharon, 34, 37Pauesick, Chyleen, 23PCC Neurowriters, 8PD Fdn. of the Heartland, 27PDPlan4Life, 20Peacock, Donna, 48Pearce, Ruth, 38, 41, 56Percy, Betty, 47Petrites, Anna, 16Petropoulos, Helga, 19Peyton, Rebecca, 13Pfeiffer, Gail, 24Phelan Family, 52Pigg, Linda, 28Pigtails, Pirate Ships& <strong>Parkinson's</strong>, 33Pillsbury, Rhoda, 45Pinter, Margit, 49Pisching, Barbara, 49Pizarro, Miriam, 7, 13Pope, Kim, 43Portuguese PD Association, 39Potenza, Harriett, 43Poynter, Gail, 9Prescott, Terrie, 41Preston, Linda, 43Preston, Nancy, 44Pribyl, Anne, 36Pryor, Charlene, 40Puckett, Jeannette, 48Pycha, Marguerite, 27, 49QQureshi, Samina, 17RRaes, Yvonne, 33Rajan, Ambika, 31Ramos, Loretta, 29Ramsey, Janice, 48Rancourt, Georgia, 12Reardon-Noblet, Kathleen, 41Reid, Deborah, 35Reiter, Catherine, 22, 23, 51Renfrow, Judie, 9Rhea, Christine, 11Rhoden, Dorothy, 35Rice, William, 55Roberts, Ann, 37Robson, Lynda, 13Rock Steady Boxing, 31Rodeo Mom, 40Rodman, Myrna, 16Rodman, Stan, 36Rodriguez, Catherine, 44Rodriquenz, Nancy, 9Rubin, Alan, 2, 4Ruiter, Evie, 49Runyan, Rosemary, 27Rusk, Linda, 45Russell, John, 19Russell, Judy, 19Rutledge, Melinda, 27Ryan, Colleen, 48Rykken, Cheryl, 11SSaari, Davanna, 7Samad, Ayesha, 17Sampsell, Karen, 11Sanger, Laura, 1360


Sanner, Audrey Gray, 7, 9Sawyer, Susan, 35Schneider Jr., Larry, 2, 3, 7, 54Schneider, Lois, 3Schneider, Rachael, 51Schneider, Trudy, 49Schroder, Paul J., 54Schwartz, Edith, 4Schwinge, Virginia, 48, 51Scott, Amy, 49Scudera, Lisa, 35Sechter, Judi, 12Seward, Jill, 42, 45Shade, Jeannine, 24Shady Hill School Grade 2E, 30, 32Shaikh, Tashi, 17, 57Shareef, Shahla, 17Sharrer, Mary Ann, 28Shaternik, Lydia, 23Sherrick, Patricia, 5, 8Shinkle, Janet, 51Shipton, Ancret, 55Shoaib, Shahzadi, 14, 17Sieck, Kay, 28Simpson, Susan, 29Siquig, Linda, 50, 51Slutz, Sherry, 50, 53Smith, Cislyn, 53Smith, Eric, 4Smith, Janice, 32Smith, Karen, 24Smith, Pamela, 9Smith, Rachel, 31Smith, Susan W., 35Smyser, Diana, 5Snyder, Charlene, 5Snyder, Patricia, 28Solari-Ruscoe, Carol, 19Spencer, Linda, 9Standish, Sharon, 3Stark, Sharon, 9Stefanetti, Lynne, 10, 11, 55Steichen, Joanna, 5, 6, 7Stein, Martha, 36Stein, Robert, 36Steinmann, Debra, 41Stephens, Bernadette, 29Stewart Family, The, 27, 57Stocks, Paula, 31Stone, Sharon, 7, 46, 48Sulzberger, Elaine, 40, 55Surmeier, Rebecca, 32Swarbrick, Helen Alison, 47, 57Swisk, Carol, 32Szczepanski, Joan, 38, 41TTanner, Caroline, 45Tanner, Dorothy, 45Team Parkinson, 4Teem, Penny, 21Thomas, Brenda, 48Thomson, Rita 55Tilley, Melinda, 49Titt, Peggy, 34, 35Tomich, Michael, 31Tomich, Ward, 31Tragakis Family, 52Traverse, Elizabeth Anne, 12Tuero, Elena, 7, 13, 56Tunis, Diane, 43Turner, Caralyn, 9Tyler, Erin, 35UUrbina de Breen, Marlene, 33Urquhart, Heather, 15VVaandrager, Kathryn, 54Valley Golden Living Center, 13Van Kessel, Jo Ann, 27, 56Van Lenten, Marilyn, 24Van Tassell, Curt, 54Van Voorhis, Amy, 42, 43Vanden Bosch, Terri, 54Vanthul, Debra, 54Vaughan, Karen, 53Victor, Charlene, 16Vietri Family, 52Vietri, Linda, 52Vis, Karen, 54Vitcenda Cade, Kim, 4, 7, 53, 54, 55Votaw, Melanie, 13WWagner, Barbara, 19Wales, MaryLou, 49Walker, Tammy, 33Warford, Pamela, 35Weaver, Carolyn, 32Webb, Linda, 7, 18, 20Webb, Sally, 43Weimer, Carolyn, 15Wells, Jennifer, 28Weyand, Mary, 16Wheeler, Margaret, 41White, Lorna, 21Wiener, Marcia, 20Willocks, Peggy, 7, 35, 53, 54Wilson, Sheryl, 11Wing, Susan, 43Winter, Sherry, 35Winters, Angela, 31Winthrop, Audrey, 22, 24, 51Wisconsin APDA Caregivers, 32Wisconsin Chapter – APDA, 32Wiseman, Janice, 13Wittig, Linda, 15Wong, Dorothy, 16Wood, Nancy, 7Wood, Patricia, 19Woodard, Pamela, 33Woods, Gillian, 37Woods, Sandy, 37Woor, Lorna, 54YYarnold, Patricia, 5Young, Debra Lou, 49Young, Patricia, 44Yuen, Genevieve, 47ZZander, Sandra, 8Zeba, Nilofar-Nighat, 1761


Bring The Parkinson’s <strong>Quilt</strong> to Your CommunityIn 2011, the Parkinson’s <strong>Disease</strong> <strong>Foundation</strong> (<strong>PDF</strong>) willmake sections of the Parkinson’s <strong>Quilt</strong> <strong>Project</strong> availablefor rent to communities all over the world. Displayingthe <strong>Quilt</strong> offers a unique opportunity to raise awarenessof Parkinson’s and educate others about the disease. Anyindividual, organization or company may apply to rent asection of the <strong>Quilt</strong>. Specific panels can be requested.Rental fees will vary. Most of the proceeds raised bythese fees will support the maintenance of the project;any remaining funds will support <strong>PDF</strong>’s researchefforts to explore the therapeutic value of creativityin Parkinson’s.For more information or to apply to rent sections ofthe Parkinson’s <strong>Quilt</strong>, visit www.pdf.org/en/quilt oremail quilt@pdf.org.


© 2010 Parkinson’s <strong>Disease</strong> <strong>Foundation</strong>


Thimble SponsorAnonymousFriends of the Parkinson’s <strong>Quilt</strong> <strong>Project</strong>Biotechnology Industry OrganizationBroadridge Financial SolutionsFocus On A Cure <strong>Foundation</strong>Frances GrandlundMary Duke Biddle <strong>Foundation</strong>Schering PloughSue SmithBenefactorsConrad W. De FiebreThomas P. RacobaldoRonald RashidToshibaWinters Brothers RecyclingAmerican AirlinesAveryCrayolaFedExHewlett Packard- HPGifts in KindLogitechNikonSamsonite LuggageToshibaUncle Bob’s Self StorageFabric DonorsA. Schneller Sons, Inc.ALB International FabricsHS CompanyPierre Frey<strong>PDF</strong> would like to thank The Names <strong>Project</strong> <strong>Foundation</strong> - AIDS Memorial <strong>Quilt</strong> for their timeand the advisory role they played in helping to launch the Parkinson’s <strong>Quilt</strong> <strong>Project</strong>.Parkinson’s <strong>Disease</strong> <strong>Foundation</strong>1359 Broadway, Suite 1509, New York, NY 10018(212) 923-4700 / (800) 457-6676 | www.pdf.org

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