Rehabilitation Gazette - Polio Place
Rehabilitation Gazette - Polio Place
Rehabilitation Gazette - Polio Place
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<strong>Rehabilitation</strong> <strong>Gazette</strong>178INTERNAnONN JOURNAL AND MPOUMAnON SERVICE FOB THE DISABLED
~ ~~~-<strong>Rehabilitation</strong> <strong>Gazette</strong>International Journal and Information Seruice for the DisabledVolume XX1 1978Rehobililulion <strong>Gazette</strong> iiorrnerly the"Toorney j Gazan.") ir publirhnd once a 2 Twenty Years in the Gare~te House. A special featureyear by a volunteer rlaH its aim ,rldrsach,bg Gini Laurie.ioinlom, and lodigniiy The diiablad~hroughouf the world 10 EducafionIEmployment. A Deaf Japanese Student InEdlton: Gini & Joe Laude IMrssouriIBook R-ewer:Donna McGwinniGraphics Designer: Ted Smllh IMts8outilAoristant Editon: Kern Mahon IOhhl.Judy Raymond IOhhlAmerica by Teliuji (Ted1 Tomikeluo. Affirmative ActionPrograms in the Bell System by Diane Schwiiiing. QuadEmpioyment in Britain A Feu care Historier by RogerJefcoate.Rightallagislatlon. Don't Be Left Without YourRIGHTS! Recent Publications on bur Relatingio B der~Free Education.Splnal Cord Injury Centem by Gini Laurie.Advlsera: Aian Arnold' IC~~III~,.~,Dr. Ronald H. Donsii' llnd!anol. ManonGreen= lCobm
Twenty Years In The<strong>Gazette</strong> Houseby Gini LaurieHappy 20th Blnhday, Gazelie!life exps~ienrar d ih sevecely disabled maderr. Fw them.This is the 20th year of the Gazene. the 20th year our it isa form of group fhe~apy hy mail, an Invaluable sourcehouse ha! haon the Guzclle House. It 15 a time for ceie- d idear. invontionr. and adaptations that have hesn triedbration. A lime lo look hack andrememberwith long-lime and found urshl by others. For many, it is almost anreaders. A time to recount with new readers. exciu.ve dub. For its nondirabled readerr. it is a sourceWhat is the Gozeee? How has it euolved over tho of reference maleHal and insight into the interests and"ears? HW iir it financed? Who are the writers? The staff? needs of disabled individualr.who maker it happen? HOW did it ~ t ~ f l How did il ifan? Diredy, the Gozetk began in 1958 arThe Gcaene marthead stater that It is an "international a linle n~wsi~lfer in a repiratow polio center. lndi~ecfly, itiournal and informatLon service for the disabled.'' It ir starled the "ear before I was born, when a oolio . eoidemic .much more than that to its readers. If is the embodiment in St. Louis ht the four children in my family. Two sistersand reflection of the imaginative. pradical. down-to-eanh died that summer. another rMer war mildly disabled, and2 REHABILITATION GAZETTE
~~~the expatienis of Toomey Pavilion. If was named the hiendr - nondirabled, Toomey .'alumni,..and dher dir.Toamrv~ Gorelle. in memory of the former director, Dr. abled individuals - vnlllntarr +hair -A;,-." - ",~ ,,,a,J Toomey. It war so popular that we rent it to the 17 graphic derigneir. forelgn correspondents, legal counsel.other respiratory polio centers in the United Slates. Then newsgathererr. proofreaders, typirir, and witerr.to the rerpiratory cenhis around the world. Then it The must exciting pan of the Goae== has been wachevolvedto include all yper of disabilitier.ing so many .. oeo~le . so . toward from the initial s+noer "1~ ~~~--~- -~The firri isrues were mimeographed nt the hoipifal. dx;eass or injury, seeing them gather their forcer andWhen thec>rculanon rtaned lo zoom, it had to be printed. cope, going back to work, or changlng work, or going onUnfortunately, that cost money - even doing it the to finish rcLoo1, qeliinq -. PhDr or MDr or MAr in enoinscr~~~~cheapert way, by offset, which reproduced my Yplng on ins, psychlami, modcine, psychology, or social work.an antique Underwood. As (he circulation mew, several manuma. , - acouinna , homes famills. +.asleiinn tillinn ......3 ,+ ,,unique ways of raising money were discovered. I made up! I1 has been like having a warldw,de family d in end^!herb vineganto sell. We had a rumlui of Siamese kittens The twenty years of !he Gozeffe miiror the historyso we exchanged them for a $25donafion to the <strong>Gazette</strong>. rehabilitation. If has recorded the changes in ~o~ialWe did the same with their faiherd rtud fees. 1 think it iy. It has ex~lained how to earn dirabilim , oavmPnt, ,~,~~~~must be fhe only publication in the world that war once disability and how to obtain SSI. I1 ha3 raponed therupponed by tax~deductibie cafr and rhld fees.amendments to the Vocational Rahabiiifatlon Acts andThe Gozelre was inornorated as a non~proht oiganlla- hacked the laothing of 503 and 504. If hai followed thedon with a board of budeer that tapped a few family movements of the disabled toward forming coalitions andfoundations for equipment such ar bpe~terr and ad^ achieving rights, both in this counhy and abroad.dressing machines. We stopped giving it away. except to It has been repomng deuelopmentr in housing andihose who could not afford It. We began to request a services for the dirabled since 1958 and in independentrmali donation bom the dlrabled and a rhghtly larger one ilving centers since 1972. This material on housing andhom the nondisabled. So we have continued. The back^ independent ilving is now compiled in my book. Housingbone of our support comer from a few very special non~ and Home Serulcer for the Dlrobied. which Harper &dirabled hiendr and from manv disabled individuals who Row oubhrhed in 1977haue become ruccsisful in their piofesslonr or burinesrer The twenty years of !he <strong>Gazette</strong> have been innovative.0' who are jurt extra generous. our regular funds come In 1960. il organlred the iirrt International Paralyzedfrom $3 donations from disabled Individuals and $5 Artists Show. then shared the names of the 70 particidonationsfrom libransr. hospitals, univeriitisr. rehabiiita- panti with the Kenny insfltute, which developed its own6on centers. doctors, therapists, rounselari, and nurses. annual show from this nucleus. Congreri war InfluencedThe secret of the GnrelM'r continuing independent lo pars the Taking Book legislation to include the dir~existence on a rhoes~ring is two~fald: no ialan~~ (except abled as well as the blind bscaure Ruby Heine, a dirabledoccarionai. pan~mej and no payments for afii~ler. our reader in Nebmrl
c-- -. ~~e . - -'Dunnl lile iU601 cur had L 5 D li ak. Slnk, ond DilnXlpn,,,ei in "83, io pr#po,e an i.l,,. I", rn~ill"~ "Ireaders around the country to exprarr their views to theircongrersmcn. and Mrs. cyrur 5. Eaton brought tho proposed~,II to the altention 01 influential congrorrmDn. itoublished one of the first uacler on sex and the disabledb,:, 1.1,- .,I , h.' ', 8 I" 3,'- P"P ..'I,. ,.,,, >,,,,. 8 . ~
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Dlrabledh y ~brll ~u*n ern. MD choriea l-~serAnn Adomr Jock Fuller ~r=k!k McGrnluSuinn Annbiechl Ben Gerron Donna McGwinn~ ~ stae. 1958.78 ~ ~ t t A~O" ~ A,"OM ~ j ~~id~~t..~ ~.,b=,, ~ ~ wernil h ~Proudly and gratefully, we list the disabled and nondir-Jmn BornekovE ~ienny GoldmolarAn,,o oood ~MorgoreiNomrRon ~ PSWY ~ ~abled naif members throughout the world who have BU~BI,,E~, JO A"" ~ ~ rmweM ~ dprichordi ~worked as valunteerr to givv the Gorene its unique char- Helen Bourne ~~ther Hammil Juonlto Fuotmacter. For various periods over the last 20 years, they DonsBrennon PooiH
~ ~Education/Employ mentA Deaf Japanese Student in Americaby Tetsuji (Ted) TornikowoAt the age of nine. I became ill with moningltir, whichtook my hearing. Arthnbr leH me with a deformed leg.Fmm 18 to 25 years of age I worked in a small decniccompany near Oraka ar an aaembier of TV and radioparti. Then, for a year, I attended the National inrbtuteEnglish IS a loreign language with me, so I had bauble notonly with the lecturer, but with reading textbooks andnotes. and in communication whh other people. Secondly,because I had not been prepared for college. I didnot know how to rrudu. Mavbe I had ar man" oroblemsCharLty Plate Association as a translater.more than any Amerlcan rtudenl. One of the mostI learned English by sell-education. My English fe* impaltant services is the provision of paid intemreterrbooks were Remderi Dige*, magdnes for disabled There interpreters translate whatthe teacher ir raying infopeople ItheRehabiiitotlon Gazetie war one of themi, and American sign language. Unfortunately. for me, I didn'treports of conlerrncer an education, iehahilitation, and have time to nanrlate the different words and sentenceswelfareof the disabled. One of the reports mentioned the from sign language to English to Japanese, so I sill didn'tname of the Center on Deafness at California State underrtand the leciuier~Unlver~v. Nonhridm. California ICSUNIAnother rervlce that is offered is notefakina. Since theI war acfive in the All Japanere Deal Asrociafion. deaf student must concentrate on the hand movements ofwhere the leaders were increarjngly concerned with the the interpreter, he can't look away long enough to takelack of services for the deaf in Jananere univer~itier. But notes. 50 other 3,udentr in the class are hired to do thispeople, both hearing and deaf: did not show much lor him. However, to make proper use of the noter, youattention to my Idea of establishing a campus rervlce lor must have understood the lecture. Stnce I didn't underthedeaf in colleges and univerriliei in Japan. So I wrote stand the lecture, the notes could not help me much.--a leher h the Center on Deafness at CSUN and told themabout my experience. in Japan and asked about the waythe deaf rtuden,s studied with the hearing rtudenW at y. n. ~about the piogram~Gradually I began to understand what the programoffered. 50 1 con~ulted with ~ r ~vrnn . Dan. ~r.. a goodAmerican fnend of mine who war living In Japan al thattime I have known him for a number of vearr and have adeep rerpeci far him. we dircur=d a long time and ourconclurion was that 1 should go to Northridge to studythere and ,"rife mu exoeriencer and rend them back to 8. .Japan in hoper af encouraging people to develop a !.program of higher education for the deaf in our callegerand universities in Japan. Happily, after further cone^rpandence with Dr. Joner. I war accepted by CSUN. Toexpterr my appreciation to Dr. Joner. I bmught him thonew third volume of Japanese Slgn Longuoge to which Iadded the English eqwualentr for each of the Japaneserign5 - a work of many months dona wiih weat-.-...,-3>~L,,""~.I entered CSUN in the fall of 1974 as a freshman. ~ e ~ fImmediately, I met with problems. In the first place.,""'!~~8~,t~c~~na,pru,~,~errr,3 ,jc,,,,Calrfnrnlo Sraie Uniueri#lv. Norlhndge Comrws..J~PO,,~S~ S Z U ~ ~ at ~ I Z ,ha10 REHABILII RTlON GALtTTEii1
Ar the weeks went by, I became more and moreconfused. If things had continued llke that, maybe Iwould have hoken down completely. But. fortunately,Campur Services far the Deal also provides counrelori,who are rkilled in the sen language and In dealing wIththe problems of dear rfudentr. When 1 began to realm Icouldn't follow the classioom lecturer. I wont to thecounselors for advice each day. For me, the ~ounrolingryrfem seemed like an oasis in the desert. Through rhatcounseling system. 1 was helped and war able to get my^reif back up on my feet and on the road again.Thus. a fourth service offered by Campur Services forthe Deal came to my rescue. This war the tutoringservice, There are 23 tutors in the program. A cellredteacher from the school lor the deaf at St. Augurtine.Florida, became my tutor. Each day I went to my tutorwlth the notes and we dircuss~d what the notefaker hadwrihen. If I met with a problem i couldit understand andmy tutor cot~ldn't help me, I went to my proferror andasked. The proferron were all glad lo help me. In thirway, I established methods of itudy.By the time mid~term tests arrived, I war able to goi alittle better ihan average grader. I think the fact fhat afarelgn deal student is able to gel goad resulk in the testsshows that the well organlred system developed atCSUN. conrfrting of tutors, counreloa, interpreters, andnotetakerr, works well!Now I am a senior and I hope to graduate in June,the program they like be*. If they wish to study withother deaf peoplo, they have Gailaudet College in Washington.D.C. If they wish to study with hearing people.and take advantage of the many different couirer offeredin a large liberal a* college. they have CSUN. If theywish to develop their technical and vocational rkLUr, theyhave the Rochester Institute of Technology or similarprograms in more than two dozen colleges and technicalinrtltute. around tho county.In Japan, there are no programs at all. Recently, soclalservices for the deaf in Japan have begun to develop andproduce some good reruitr. But the people who providerervicei are almost all hearing people. I think rhat unierideaf people can take pa* in the program as oducatorrand rehabilitation rpecin1irtr. we deaf peopi~ can'tbecome truly happy. How can we b~comerpecialisfr? It ironly education which make. this parnble. College irwhere the speciaiirts are trained and in the colleges noieivicrr for the deaf ars offered.1 feel that the furt danr in enabllshing higher educa-"on oppomnitiar for deaf people in Japan should beconcentrated on the liberal arts area. What needr to bedone ir to develop a program in exirling colleg~r lo helpprepare deaf students for university naining by havingthem study with h~aring nudentr.I feel that thir movement mast come from deal peoplethemrelver. We have 250.000 deaf people in Japan.Some brave deaf persons must begin by studying in awriting in English ir about one-tenth of my clarrmates. Inaddition to my weak English, l don? know mathematicrathi^ made my 01 ~tatisticr very hard. I still don'tknow most of American curiomr. This made my study 01very difficull. Conrequenily, I musl studythree timer more than Amencan students.I have haualled throughoul the United Stater to studydeaf education. Deaf people in America hava a choice ofthe door for many others to higher education.Address: Ted Tomikawa, c/o Charles Dirks. 9421Larraine Avenue. Northridge. California 91324.Editor: Congroluiatianr. Teeuji, lor your inclusion inthe 1977~78 edil:on 01 Who's Who Among Students InAmerican Unlv~rritier and Collegar, In the US. Joucees'1978 Outstanding Young Men of America, ond in The1978 College Regider!Affirmative Action Programsin the Bell Systemby Diane SchwiilingBsli System companies are cornmined to a long-standingpolicy of hiring and promoting qualified disabled people.No one ir diaiminatcd against because of mental orphysical handicaps. Of course. opportunities for disabledpeople, as wlth all employees, depend on job openingsand the needr of the bur,nerr.Tile approach la affirmative action programs in hiringthe d~sabled differs with each Bell Sydem company. Butone company in the fo,ehon, ir Michigan Bell, which ir inthe fourth year of its program. Dlck Sfone. gsneral per-19781VOLUME XXIronne1 superu.or, raid *he company has moved furtheralong each year. This year, more than 5 per con1 of allMichigan Bell new hirer wtll be dirabisd peoph.Michigan ell has detailed the exponencer of ib severelydisabled employeer in a 23-minute film called "EverydayChampionr." The film can be borrowed oi purchased bycontading the Michigan Boll Audiavlsual Department,1365 Cars Avenue. Room 1900. Detroit, Michigan48226. Atfention: B.A. Tyll. Purchase pdce is 5200. Aversion signed for the deaf is also available.1,
"One of the keystone to our promam is tho relationshipwe workodoutwith the State Vocational <strong>Rehabilitation</strong>Services IVRSI people." he raid. 'They provide us withdisabled applicants and help wain them both before andaeer employment." - .The arrangement Michigan Bell and the State VRS-." -.,-,i ,worked out war a new approach for the agency. As aresult. the VRS now has a placement reruice, with empioyeeras~ignod fulltime to large campanisr in the state.T - 4 ( . < . .Other agencher Michlgan Bell works with include theDivision of Blind Serv~cer, State Depamnent of Social -.,~-'k-.\'Servicer, and Goodwill lndushier in Delroii. , .Another Bell system ""if which ha5 mads notable,,,*,~\-. . .mosrerr In hiring the disabled is the Arkanrar Aroa of< X "'9,. y3\i :, ,,.,, -, :;.8, :, j :b , : :Southwestern Bell. Jayna Mann, aroa employment ruper- , +:, : 1, ,vsor, ambuter their success to an active recruiting :%.,program. Organizations they work wlth include Arkansas >Enterprises for tho Blind IAEB). the Fedoration lor the*' I~ l ~ rchoolr ~ d , lor tho blind and deaf in Rock, and A"" MCDO~~PI, the ~rrr b1,nd long dlrgoilrr upcrumi arehabillfason agencies throughout the sate. computer uhich ronuem ilghisinnlr to ~ ~ ~ ~,,d ~ on io~lricurb .]" to ,heir help ]" rerrulting "'h uh"h she riorer leiepilnne ""rnh~rr orld 1,~"" "lesthe company gets suggestitionr an adapting jobs to the work of Ann McDaniei, the Southwestern Bell operatorlimnaiions of rpedfic handicaps. Mann said. As an who lr testing the machins and who has been biind sinceexample, the company ir working with AEB and the birth. She went to AEB in 1974 for their college prepara~Masrachuretk Institute of Technology IMlTl to tat a tion program, but decided not to go to college. She begancomputer which allowr biind people to work ar Long working theswitchboard at AEB, whlch led to her presentDirtanre OperatorJ.jobThe modem Long Distance switchboard isn't really a "I thought 1 would have to do a lot of hard work gsftingswitchboard at all. Instead of using cords and bueerr. it is everybody to know me.'' she raid. "But everybody is soa computeraed console which signals the operator with nice, and the aniiude toward my heing blind is good. I'veflashing lightr. The computar dlrem cailr and provider made hiends with a lot ofthe other employees."billing information."Cu*omerr learned my opoator number hom stoner"An AEB employee heard about the work of an MlT in the newspapers and on radio and TV." she raid.technologin who war developing a computer to conve* "Sometimes when I answer a caU, the person will ask Iflight signals to Braille," Mann said. "AEB came to us and I'm the blind operator. And a couple of curtomerr haveoffered to put up lundr for the device if we would tes~ if. remembered my number and asked for me to place calkWe thought it would be a good thing for the company if It tor them again. because they thought I did a good jobworked out, and it could provide jobs for many blind before."people"FOI more information. contad Diane Schwillbg, RoomThe computer is itill heing evaluated, but it has been 1212, Southwestern Bell. 1010 Pine, St. Loui3, Misour:quite ruccerrfui so far. Thir ir in pa* due to the hard 63101.Quad Employment in BritainA Few Case Historiesby Roger JefcoateBALLETCHOREOGRAPHER. IRespirator user lor aver 25 nique of liturgical ballet idanring in church). She user ayears.) Elilabeth Tivlsfington Hlggino. 82 Patching Hall rip-operated environmental conhol whilst she is at homeLane, Chelmrford, Errex. England. Well known 10, her during the day and when she goer into horpitai evewsuperb painfingr ldone with the biurh held between her nisht Into her iron lung she also has a similar unit there.teeth), rho has recently pioneered with her own baiiet She recounted the story of har life in the autobiographicalgoup. the Chelmrford Dancers. She war a ballet dancer book. Slill Life, whlch was published by Mowbrays.before polb and now teach- with help from a high London. One of Britain's best known disabled people,fidrllty remofeiy contmlled tape recorder and a podable Ellrabeth and her team have fcequently appeared on fele~voice amplifier. She ir training dancers in the npw tach virion and hexstory har bsenleaiured on12 REHABILITATION GAZETTE*'
COMPUTER PROGRAMMER. 1A.e44. athetoid r~adic.1Britain's pioneer computer programmers and a fullmember, as well as an honorary momher, of the B~itirhComputer Socieh/. Ths firrf aihetoid ever to use elechonic=quipment, he doer it all with his rightfoot feeding an elechonic typeuriter with builbin wardriore which enabler him, in effect, to type at speeds wellabove 50 words per minute. Whoolchaired, he moveraround by pushing himself backwards with his right foot.His hobby ir amateur radio. Hir story is dercribed in achapter of the bmk, Despite Dlrobillrv, publirhed byEducational Explorm. Reading. He has done pro^grammer for the Ford Motor company.COMMUNlCRTlON COORDINAIOR/SPECIAL EDUCATlONADVISER. (Age 28. nonspeaking, athetoid SP~S~~C.) G~Y""Vernon. 23 Holderners Ddve, Shefield. South Yorkshire.England. He war one of tha first disabled students tograduate bom the unique British Open Univerrity (wheretho courser and tuition come through the radio. televirion.and some portal ssrvlceri. With help from hir wife, Gill.he runs the area teletype link service (deaf to hearingcommunication) and du,ing the day is special educationadviser to Rotherham local authority. Education of thedisabled person is ~lynn'r weat interen and the ~ightwterspeech ruhrtil"fe device enabler him to =any outthis work.OWNERiDEBlGNER EQUIPMENT COMPANY. (Aged 30, reverelyparalyied by an undiagnosed vkur conditionwhile auniverrity student.) Toby Churchill. Toby Churchili Limited. 20 Panton Street, Cambridge CB2 1HP.England. Bscaure Toby war leH without speech, wheelchaired,and Wth only control n his right hand, he andthree friends designed and built the 'Lightuniter.' the firrfbuly portable speech rubrlltute device. Holding 32characterr (up to half a sentence]. it ie%embler a light^weight manual typewriter with keys laid out in thestandard pattern. The all eleckonic control shows theurer'r marrage on a computer-like display. Toby runshis own company, which manufac,urer there and otherdevices for disabled people.INCOME TAX ACCOUNTANT (32 years old, disabled byamyotonia congenita.1 Roben Bowell. Copper Beech,Paw's Close. Yoke Bishop, BDlol. England. Roben ir awheelchair user, with weak finger and arm movement;he weighs lsrs than 40 lbr. Some yeanago he ref himreifup aian accountant ipecialiring in income lax affairs. Heuser an elecnonic typewriter with a multiple splintmounted witch assembly (where the carefully mountedmicroswitches are sot up in a three dimenrional senreprecisely to suit his residual ability]. He war the firstdisabled yroferrlonal to be given remote conhol equlp~men, by the Brliiih Government.-p --Rag., Jafmote, wrlio.brook, Swonboum. Rued, M""ley.Mlllon KPU~PI. BurXsMK17OJA. England. Ba ronsullanlm theBntirh Gou~mmea. UCPof Nsw York CIY. ond Ths S~orriu
Don't Be Left Without Your RIGHTS!Become informedlTl?e new laws and rsgulation. oHer to the disabled equaloooonunitv .. and civil riohts - auaranteer - rimiiar to thorepreviourly extended to minorities and wamen.The new law. and regulation5 guarantee that if you areotherwise qualified - for a job, collegs, welfare. or otheranivily or servlce - dirabiiity does not count.But laws and regulations must be enforced. Each ofyou can help make the agencies and institutions in yourcommunity aware of the prablemr of the disabled. Eachof you can become a watchdog to ensure that the lawsare enforced. And, each of you can be ready to file acomplaint if you see or experience dirrrim~naiion.Each dirabled individual is important to the eflecuve~nerr of the laws. Each of you should join with otherdisabled individuals to become more affedive. And everyorganization should join with other organhations toachleva strength through coalition.The American Coalition of Citiznr with DlabOitier(ACCDI has assumed tho major role in promoting equaloooonunltu ..and civil riohfs for cifizenr with dirabditiei.Last spring, ACCD led the rtinr that resulted in thosignature of the 504 regulations by HEWACCD informs its members on how lo achieve ri~htrThe 8-page fact sheet is especially helpful. Note thedeadline of June 2. 1978 for recipients of linancial arrir~lance from HEW to complete a self-evaluation process inconsultation with handicapped lndividuair and arganizationr.See paragraph 846Ici of the Regulations. Don'!contact your iomi onice for civii ~ i ~ and h offer t ~~on$ultani SBIYICBE.- The Onice of Civil Rightr. which has ~erponribility forenforcing the regulations, has speakers available forgroups around the couniry who can assure an audiLence of at least 15 or 20 persons. Contact DorothyDdiard, Office at Civil Rights. HEW, 330 lndepen~dence Auenue. SW. Washington. DC20201. Phone:202/245-64.90.. R,ghtr Hondbook for H.ndIcrpped Children ondAdults. Revired ednion. 100 pager. 12 from Co-ordinatiegCouncil for Handicapped Children, 407 SouthDearborn Street. Room 1090, Chicago, illinols60605..A Handbook on the Leg01 Rlghtr of HandicappedPeapie. Free lrom President's Cornminee on Employmenta1 the Handicapped. Washington. DC20210.The Eouaiirv Issue. a new oublication of the Minne-$5 lo ACCD, Room 817, 1346 Connecticut Avenue their righk under Minnesota law, to State DocumentrNW. Washington. DC 20036. Ask to stan with the Janu- Section. 140 Centennial Office Buildmg, St. Paul.my 1978 irsuo. 1i ha concire and dear statements on ~innrrota 55155.sections 501 (federal empioyment), 503 (anornative . ~ . ~ d~ i ~ ~ BY ~ ~~~~k ~ ~ G BOWS. n i ~ P~D, ~ ~action), and 504 idircriminat~on).exacutive d'rector. American Coalition d CitlnenrThe Deoarfmenlof Health. Educa~on. and Welfare hai unth Dirabilitizi. Clear and rlraiohlforward. Deiailrworked with ACCD on booklets to expiam the new laws the banierr that infnnga on rha rights of tho disabledon civil rights. Several other organ&ationr have published and what is being done and i-r not being done to elim~ouideliner. Send for all of there and watch for more:Inate thore banierr. $10.70, inciudina -. oostaa. - from- ill Amommodaling Progromr to People With Dis- Have. & Row, ~~bli~h~~;, 10 East 53rd Skeet,abiiilles. 121 Your Rlqhts As A Dlsabled Person. 131 New York. NY 10022.Your Re~oonslbjiilles to Dhobled Peironr or a HeolihCore or Saciol Service Admtnirnoloi. Free fromRecent Publications on LawsOffice of Publ~c Affairs. Huben H. Humphrey build^inq. 200 indeoendence ~venua. wlrrhinnton. . . DC Relating to Barrier-Free Education2501. (Your~ehm As A Dismbled Person will bedistributed in English. Spanish, and Braille through PUBLlC LAW 94142 ALL HANDICAPPED CHILDREN ACTlocal rocla1 security on1ces.iOF 1975. . . . Lo assvie ,hot ol hondlcopped rh;,dren hooe.Request the following free publicationr from Mr.auoiloble to (hem, vliihi" tho ,imp 0~Mdi apeccfied. . . a freeoppropnote sducolion ,hirh emphos
,BomerimeSrhooiFaeiliiiesfor Hondtcapp~d Stud=n*. Educa- TI,, c~II~~~~ ~ 9 . 10, j ~ studrn& ~ith ~,~~bilit!~~.tional ~ereorrh ssrvice. inc.. 1800 Nonh Kent Stroot. Arlins G ~ I I ~ ~ gpnne~. ~ b PtU ~ I ~ C ~ 55 ~ ~ wheeler ~ ~ S .ton. Virginia 22209. $7 89 pager. 1977. B~id wmmw of seaat. ~~~b,id~.. ~ ~ ~ 02138. ~ $30. ~ lsprcial ~ price h to ~ ~lwirlation and a raprint of tha Noh C-lqna Stat# BuiIdina $18.50 1 545 pager. 1976. A d~tailad and comp~~~Code. hpnsva directow of the iowaer and farililier of about 500co1leg.r. Lirb rourcer of financial aid.The Childran's Dnfenir Fund. 1520 Nam Hampshire Avenue.h'0036. Followmy publications arm he=: 7,. .',,.,h' . s:. ,..*,'" A",..! ," ,-om~,,r. s... rrc on0 roeHow lo Look Ac Your Sioleb Plons For Educohng Hondiropped : . 8 , 4 . : .. n . A, 4,' >I,,%Children. Zl mimeomanhed D~QSB 1975. Summary of lrgirla~ ,.h, I..,.. I 1111 l-:,i I . n . Wi.. -tion List 01 Slates' spsnal educathn deparimenii. Your R@hL.Under the Eduratton For All Hondlcapped Children Art. PL. Getting Thmogh Coilege With A Dlrob
Spinal Cord lnjury Centersby Gini LaurieAt long Ian, it ir being recognized again that reojonalcenters are the most effeciive and most economicalmeans 01 treating the psycholo~cal and phyriologicalproblems of catastrophic disabditiei lhsi require treatmentandby an array of ipecialinr.Befar* looking at the npw regiond rpinal cord injurycenters, glance back at the 1950's. Then, with thesuppo* of monies conhibufed by the Amencan pubk totho March of Dimes, a comprehensive system of 17regional respiratory and rehabilitation centerr for polio^myelitir pasenti was developed at teaching hospiialr ofmedical schooii. totaling over 500 beds.The centers demonrt,a,ed the ,remendo". value of anorganized network of centers. staffed by medical andparamedical rpeciaiinr.The team approach and the munificent flaw of monierenabled each cenfer to reintegrate as patients into theircommunitisi, to work with their families, to adapt theirhomer, to arrirt wi,h anendant care. to encourage educationaland vocacmnal rehab~blation, and to furnish acontinuing source of information and supportThe centerr were invaluable means of Improvingmedical management, evolving vocational and prychologicalrehabiiitation, uti1icing group therapy. and develLoping new equipmentIn the 1960's. after Salk and Sabin conquered polio^myelitis. the financial suppoll war channeled elrawhereand the center, were closed. It is hasic that the rise in thenumber of spinal cord injured did not coincide with thedecrease inthe number of polio patient3 for, if ii had. thecenterr would have been a natural hanrltion from polio tospinal cord injury (SCI]. It would not have been necarraryto "reinvent the wheel.'' to revive the center concept forSCI personsIn 1970, the US. Department of Health. Education,and Welfare Initiated the Regional Spinal Cord lnjuryResearch and Demonsiration Syrtem, which now includes11 regional systems or renters, Tho fir* center, theSouthwest Regional Syrtem for the Tieatmen1 ol SplnalCord lnjury in Phoenix, Arimnn, war established by Dr.John 5. Young. He developed a National Spinal Cordlnjury Data Research center to include "ariabias pertaining to SCI and to recnrd accurate, actual costs. Thenational data center has demonstatsd that the neatmentof parapiegir. andat. ryrtems center aved9.5% In the average iknmh of hospltaliration and anaveragecost of 18.8% ($6000 per care1 compared to thefragmented, ""systemized care thatis otherwise prevalentI6the annual cost of care was esbmated at $2.4 billion,bared on the average lifelime corir of a quadat $325.000to $400.0110 and of a paraplegic at $180.000 to$225.000. There cortr have risen, not only because ofinflation, but because SCI now live longer than previourlyand because the ratio of new paraplegics and quadri~pieglcr ir changing lo an increasing percentage of *uadti~pleglcr.Dr. Young estimates ,hat the 11 established regionalsystems are able to accept approximat~ly 750 nee SCIrefenals each year. He recommends that eventually thererhould be approximakly 100 Reguonal SCI Syrtemz Inthe United Stater. He ssfimcter that five new modalIYrtems could be erbblished over" "ear and that with .are rough ertimater." rays Dr Young. "theyruppon the need for development of a national networkof Regional SpmaI Cord Inlury Syrtems at the earliestpos~lble time. Not only can we afford this network. wecannot aHord anything else."Elmer Barieir, a C4-5 quadriplegic, who is Commirrioneiof Vocational Rshabililallan for the State ofMarrachuretfr, emphaske. that loss in human andmonetary terms ar a result of poor oc inappropriate careof SCI is a*onomical. He aduocater a system ~ ith theoveniding goal that "the injured perran rhould be able tohave a future ar a conhibuting member of rociecy andrhould be able to take his or her place back in thecommuniw !,om which he ar ah* came." He alsoadvacrfer the rlshtr of SCI to have quertions anweredhonestly, to have contact with other SCI as models. andto have funds immediately available for treatment andequipment.In the 1977 NPF Conuenbon Journml (901 ArcolaAvenue, Whaston. Maryland 20902). Bcriels compiled alist of basic functions and/or resourc=r that should be panof the SCI system:1 Prevention of iniurv . and oublic . awareness of SCI.2 t, :?,"c.< 3 e., m.., .: .*,I*? C < %> ,c 1 ".?I " lac, I,.* 1 I,,,: . I'lr i~,....lllllrl"..,,. ., ,,< ,,,,,,,?", $C :*. . ., , 0me a< :* nr,,
tatbn center providing medical care. social service.physical and occupational therapy. .ctiviti.r 01 dailyliving, urology, surgeiy. onhapedlu, nurimg, pry^chology, psychiatry, and adjustment to dliability.5. variour funding mechaniimr to pay for iervicer andequipment on a1ifetimepi.n6. Vocational rehabilitation services.7. Educational facilities.8. Transportation resources including ddver kainlng.9. Housing facilities for disabled and their families.10. Cantinulngfallow~up.11. Monitoting, documentation, and research on theperformance of the system.The proof of tho value of the team/cenfei approach isdemonstrated by the ruccerrlul careen of respiratorypoliomyelitis quadriplegics lindividualr dependent uponrespirators], who have attained higher degrees and whohave been successfully pursuing professional careers fortwenty years and mare as phyricianr. profesrorr, coun~relorr, piychologirb, lawyen, and engineerr, as well arthore in a wide variety of ofher occupation., includingthat of homemaker.The need for centers is demonstrated by the contrastbetween the "umber of theie poiiamy~lifis individualsliving independently and the number of vaumatlc quad^riplegicr who are shunted into nurung homer aitex initialhorpitaiiraiian because they have not had the benefit of!he team expertise of a SCI center. Neither the averagegeneral lhoipifai nor the auerag. rehabilltanon ho~pltal hasthe staff or ruificienf experience with SCI to offer thecreative cha8cer and guidance fhaf are now available inthe 11 regional SCI centers and that should bo availablein many more centerr.TWO excellent sources of material on SCI for bothlaymen and profersionals are the National ParaplegiaFoundation (NPFI and the Paralyzed Veterans of AmerlcaJPVA). Everyone whe ir concerned with SCI shouldsubscribe to the PVA publication. Pamplegla News. 935Coastline Drive, Seal Beach. California 90740 ($4 year].and rhould become a member of NPF and receive itspublicanon. Poiapleg8a Life, 333 North Michigan Avenue,Chicago, Illinois 60601. Both organizations will rend afree inooductory copy of their monfhly/bimonthly pubiicaiionrand the NPF will rend a lisk of bibliographies andother pubiicationr on SCI.For profesrionali. two organiranonr dfer ipecializedinformation. The Amencan Spinal lnju~ Arrociafion iscomposed of ip~clalty phyrlcianr interested in SCI clinicalcare and center deuelopment. The president ii Dr. PaulR. Meyer, Jr. Iaddresr below). The International MedicaiSociety of Paraplegia includer 600 phyricianr and otherhealth profeiibnalr involved in SCI. Dr. R. EdwardCarter (address below1 is a member of the Council, thegoverning body of ,he Society. The offfclai journal isPoroplegio. published by E. & S. Livingrtone. 43~45Annandale Street. Edinburgh EH7 4AT. Scotland.Sectlon 304lbl of the <strong>Rehabilitation</strong> Art of 1973authorizer gants to States and public or non-profitIP78,VOLUME XXIorganizations, not to exceed $250.000 per damonmation,for the pumose of paying pan or all of the coss forspecial pro/ectr and domonrtrationi land research andconnected therewith) for SCI individuals.Copier of the appiication and lnshuctions may beby writing to the Division of PIoject GrantsAdministration. Room 1427. MES Memorial Building.Warhington, DC 20201. Technical conrullation regardingprepamtion. piojecf development, and pro^gram details may be obtained from Mi, J. Paul Thomar.Exscutive secretary & Plqed Officer. Medical RarearchSiudier. Room 2328. ME5 Memorial Build8n4. Washington.DC 20201information about the SCI centers far veterans may beobtained from Emanuei Mannarino. M.D.. Director,Spini Cord Injury Service. Veterans AdministranonCentral Mfse. 810 Vermont Avenue. NW. WashingtonDC 20420marlled on the following pager.For both veteianr and civilianr, the existing SCiry*amr must be expanded ra thai all who are spinal cordinjured rece~ve acute care. rehabilitanon. and lifetimefollow~up at regional SCI centen.Regional Spinal Cord Injury SystemsI. kLRBAMA. Model Regional Spinal Cord Injury Cant-.univsrsity of Alabama in Burningham. univerrity Statla".Birmingham. Alabama 35294. Phono: 2051934~1450. Diremi:Samuel L Stover. MU.(11 NU^^., of SCI bedr and averasp dism: NO rpscinebeds for SCI: 120 bods for all fyp~r of inpatiant rehabiii~fation. Average: 20~30 paras: 20~30 quads Ruerag= coifprrdiam: $262. Room - $125, doctor = $12121 A~anmonts or facilities for indapendenf ihving praitire: No.I31 Recreatlonai iarilil>ei. Outdoor recrralionnl area including mhalf bark~fball roun(41 Dnverwaming: Yes.(51 Other iewics. and spc~ial iacilitias: Affiliated with Ldkesh~raHoip,tal, which is king developed into a vocaltonal rvalva~tion and training csntpiior xuaraly dirabled.!I ARIZONA Soufhuert Regional Sy-m for th~ Treaimant ofSpinal Injury. Good Samaritan Horpilai. 1033 E. McDoweIlRoad. P 0 Box2989. Phaanir. Rniona 85062 Phone% 6021257-2000 or 6021257.4533 Dirsdoi: David J E. Cherhsa,ME4 R S ILondl. D. Phyi Mod IEnsl. O PRM IAurtl.ill Number of SCI bad3 and average roe per diem: About 35bods for SCi, but can bo ~xpandod rinro m rlore arvciationwith 7W-bad gpneral horp#lai. In 3-4 year5 wiil have ombuilding and 100 beds. Avorage cort: S200 for room. board.nvrsing and physicianr. E*ba tor major rwgery or ,pioiratorvthnraau. Aueramo rtav: 120 davr for oarar: 140. . .. " . . .day. tor quads.(21 Aparlm~nts or fadides for indepandent iivlng practice No,but good anang*m.nt with "parby acc~~rible Holiday inn.
131 Rorieatlonal fariiities: Unheated onen ak no01 Various ill Number of SCI beds and avoraga rod pzr dism 80.bdfacility on the rampvs of Swsdish Mndical Cants, and a 20.bed sub-acute "nit a suedish; pius use 01 intanrue ""itbed. d Siuodlrh Cost per diem: Pzno. This inrlud.~ room,151 Other rerum and rpeciallarilitirr: ,4nzona MP~~C~IE V ~ C U ~ ~lion System usoi both flxnd wing and helicopter airriah.board. nvrr1ns care, medlrationr, laboratory, therapy.phyricianr. ~ndiuidual aqugment rxna ~uerage say: 90Good Samaritan Horpilal has is o m air arnbulanca Coun~seloir from Arizona Department oi Vocational <strong>Rehabilitation</strong>day3 for par=; lOO~110 lor quad.;larrn~rly 60/40 ~ ara ouar quadratio about .qua1 no.work 4th local and outotilatr counralorr to kepp 121 Apanmenis or fariliiiai lor ind=pendemt llvlng practice: 23~p"B"mrgoi"g,unit arr.>riblr apartment hour* within a block of thehai~ilal. Used far familher, r~-e"al".,ioni, o"aaS.n,r, andIII CALIFORNIA Santa Clara Valley Madical Csntar, NormanB. Nelson R~habilliafion Fadlity. 751 South Bawom Aumua,San doso. Calilorn~a 95128. Phone: 408/279~5100. Dlrenor:Sheldon Benol. M.D.California Regional Spind Cord lnluni Cars SyrUm. Director:Glenn G. Reynolds, M.O. Phon~: 408/998-4554. Ext. 43.ill Numb- of SCI beds and average cost per diem: 70 beds.Cost per diam: $155 plus phyrician uiritr, thzrapisr billedA law in adjacent community available by releis rrf~rral.131 Recr~ationslaciliti=: Artiva ~~irosam to include rwimmin~.other indoor rporir, croflr, and programs in commun*y suchas ball garnos, and cultural and rerraational artivitiar.141 Diiver traming: Recipient of a special grant horn the C.1~ilornia State Departmant of Rehabilitallon in driver Vaining.(51 Ocher rervice~ and rporiol facililiai. Sp=iial dsu~lopm~nialPmiem funded by HEW for head iqury. psycho-iodal.vocational, uro1o.c. and skin pr*re.rurs riudie..1". COLORADO Rocky Mounfein Rwiond Sbnal lniuvCenter, Inc., Craig Horpilal. 3425 South Ciarkson. Englewaod.Colorado 80110. Phone: 303/761~3040. DUonor: Robed R.Jackson. M D.-.6nal training rite The units cost bohuesn $17 and $19 prrday.131 Racioatlonal lacilltier Fiw fulllima people in the dspan~men, US. bur and van lor went. away from horpit.1 -football and basketball gamss, concerts, downhill and crosscountry skiling. horie back ridmg. back packing and over.night camping, and kiyaking. Small rncrrational pool athoipllal. for team evenli use nearby Rfty meter pool.I41 Drivpr training: Steering and hand ronbol mnchanism forpr.ten,ng; us* local diivsii halning pmgnm for rprsi1,chand conhol fralning. Expect overyone who 15 a C-6 laifp"ler"ed ssgmen, rind dirlal to br able to d"". indepe".dsntlv and rofolv.151 Othor rawicss and special facilinni: Dr. Jackson raya."Ahuavr open to ldeas . . . builtMn flexib~liw . . . the popu~lahon we rerue ir haallhy auen haugh disabled. The result01 that is that we have taken down svelv haooin. a1 3ickne.s. .. "whno wecan and go on as bast ua can with th. burines ofliuing:'< A . ,, : V, ,n*.n.,i 4.n:1. 'I"., I*2. t.:. LC.., i Sl.I, P < . >I.(1) 1"'. 1.1 I'r
~ ~~ -131 Rsrreational Iariliti=r. Swimming pool, billiards, table tennis.I41 Driver (raining: Trainnng is auaGlable.151 Other services and special farllifisr When air banrpo?lallonis indlsaiod. Coast Guard helicopters are used.VII. MINNESOTA. Spinal Cord Injury Confor at Minn-la.Box 297 Mayo, Uniwemity of Mlnnerota Horpilals. Minneapolis.Mlnnexlia 55a55 Phon~ 6121373.8990 Director: Frednrick1. Kottka. M D.ill Number of SCI badr snd average cost psr diem 20 hdr.A~~~~~~ pOr diam ~orilar fixal yam 1977 - $314~12) A~anmontr or facilities far indemndent livlng pacficp: No,t~blc: ,~a.at,on ,i in the communiy, using as,,E"~ bur - shopping, athirtic ousntr. Plcnicr, nc.19 Oriuerbai"ing. Tmning and equip"!.", or* provided15) 0th~. r.nic..andrpmcial lad1,ll.s Kwam in Human sex^U~I~~V: Renal Funchon Lsborataiv, lollow~up after diwharga:consvitation on lo housing; anangemenis for rpecialadapta,lo,ir, lnr.rvic~ Training Programs pr0uld.d by SCItpam to dhs, hor~,talr and r~habilltalion agrncia. providingcar*.Vlll NEW YDRK. Splnal Card lnlury Canfar, New York Uni~Mzdicai Center. lnrlilure of Rehabilltallon Medicbe, 400East 311th Sweet. New York. NY 10016. Phone: 2121679~3200. Oirmiloi: Edward W. Lowman. MU.ill Numbor of SCi bed8 and, auorago cost per dism: Vuiabla"umber 01 bedr - vruallv 4050. Coil per diem: $225 iithe avrraoe rate and includes room. board, and all rohabilib141 Driwar naining: Audlable.151 Other remicar and special fadliti~r: Clase Eontad ir maintamedwith the rrfamng phuirlan, who 1s rent a completerepod including r~commrndrd rwimsn ol treatment andplans for~habilitation program. Diwhawplanning indudnremplaymml. mobiliiy, haudng, and post-disih'vge blfoiv~upIX TEXAS splnal cord center, ~oxar instiha for nehabilita~6on and Resoarch. 1333 Mavrsvnd Ausnuo. Houmn. Texas77025. Phone: 713l797~1440. Onrector R. Edwud Cartar.M.0111 ~~~b~~ 01 SCI beds and avwage copt per diem: 17 at TIRRmain huildina and 3% of 14 hdr at Annsxto TIRR. Cost oer/:*., *I4 I., .,,.,*-q 7n.Prd.r . ,,",.,".,a\" nr, ,>,r.: ~..A,..." r i . ..,.., ,, 1 ..,. , I,, .e* \,~ >~ et ?.RRrr .* "",:,,.>>,.
The Disabled in Protestant Churchesby Susan RayChurches. like all other institutions made uo of neoole. . . .-leaders. Not always 1 ray - but often. Many churches arecoming to do aU there things. As dirabled becomemore involved in all areas of lile. I wp will nlav . . aiargsr role in church life. too.There are already hundreds of disabled person. whoareactive lay church members. This adrle, however, willfocus on those who hold employed or ordained poslfionrin vanour denominationr; it ir not a representative~dmplo, only amoup of persons known to myself, to Gin,Laurie. and to Gozetfereaderr such as Mrs. Jean Legiedof Minnerota. This amc1s will also give a few randomexamples of churcher that are providing for the disabled,conrideringfir*the deaf, then the blind, and finaiiy thosein wheelchairs.THE DEAF Southern Baptists, to which I belong, have awell-established minirt~v with the deaf. Carter Bearden.Field Consultad for Deaf Minirmer of am Home MissionBoard, is a deaf man who ha9 obtained degrees bomNew Orleans Baptist seminary and Emory university.Led by the Home Mission Board, about 20 indivldualr orcoupla ssrve as mirnonaner lor tho deaf in half the rtaierof the nation. They preach. counsel. conduct weddingsand funerals, and train deaf Christians to be leaders intheir churchei. In seuaral stater, they hold religious campsor conferences for the deaf: the workers here in Norththe deaf.Over 600 Southern Baptist churches across the nationprovide at kan interpretation of the worship service or arign-language Bible study clari. Some airo offer lnter~p~eters or ~ig~-Ianguage ssrrionr of other church adivitier.In a few carer. the deaf people form almorl areparate congregation, providing mo* of their awnleadeirhlp.In 1973. the First Baptist Church in Danville, Ken-s"~." Roy. rerplator" poilo quad, hoe been dirobled since sheu~rlour, rhe doughterolo Boptlsr preacher. she horbeen ariiuein the church oil 01 her i,we in oddltlon to i~orhinp. she herdenoted 10 ymm to wriHng Southern BmIUl molanolr. Address:2208 chariot,. coun. ~oieigh. ~orih cainiino 27607.20lucky, had 25 Sunday School classes for 250 riudentrfrom the itate school for the deaf. Deaf members ofHaverhill Baptist Church in Wed Palm Beach, Florida.are part of the total church family but lead theii awnprogram of church acHvltier. A rather unique churchexists in Oregon. The Evangeiical Deal Church began inthe 194Q's ax an Interdenominational church to serve alldeaf in Portland After meeting in severalchurchei faellitiei, they purchared a imall building dawn^town. In 1975 the church decided to affiliate withSouthern Baptirti. Both the first and the present pastorare hearing, but the other church leaders are deaf.Lutherans also have a iubslanhal deaf ministry. TheDeofLulheran, a monthly newspaper. is published by thelnf~rnalionai Lutheran Deaf Arsociation and the Board forMlrrionr of the Lutheran Church~Misouri Synod. Arecent ~rrue told of Rev. Kiell Ornahr MGrk, a native ofNorway, who had iurt become the first deaf graduate ofConcordla Seminary in St. Louis. In June of 1977 he warinrfalled and ordahied to begin his duties as pastor. M6rkserved ar vicar in the metropolitan Washington D.C.Churches of the deaf as pa* of his theological education.The Deaf Lsheron. captioned filmstrips, and othermnteteriair far the deaf are available from Concol.diaPublishing House, 3558 South JeHerran Avenue, Sf.Louis. Missouri 63118. Information on how to begin adeaf ministry and on avaiiable materials is offered by theSouthern Baptist Home Miuion Board, 1350 SpringStreet. NW. Atlanta. Georgia 30309. Two bookleis ofSunday School lerrons with a simplified vocabulary mayREHABlLlTRllON GAZETTE
e ordered every three months from the Baptist SundaySchool Board: Sunday School Lerronr Simpiffred andSimpl!/ified Bible Study.THE BL~ND 'louthem Bapiirtr do not have a r~oclhc,denominationally oriented m~nir~y with the blind at thepresent flme, and some Baptists believe It is longoverdue." raid a North Carolina Baptist publication. Oneof tho= urging an oqanized emphasis, rimilsr to thatwith the deaf, is Rev. Jay Waugh, a blind evangelirt inBurlingion, Nonh Carolina. After graduating from Sourhern~ilptist seminary in Kentucky. ha founded theKinneh Memorial Baptist Church in Burlington, which he~artored for 17 year, before beginning full-time evangelisticwork.Along with encouraging churches to reek out the blindin their communities and provide hanrponanon andchastian materials, he rayr church- need to be taught tooffer acceptance and association. "Sighted people have away of keeping their distance - so do the blind." raysWaugh. "My personal desire is tosee that kind of minirirythat maker people in general aware that we who havero~called 'handcaps' are still very much people with thesame iongingr and de.rer as have our peers. We want tomake our conhlbutionr ar do our fellows. Bapti3fr areloring patentially great leaderr whore abililias arewasting away."The American Bible Society. 1865 B~oadway, NewYork, NY 10023. has Bible portions in braille and ontape or he whole Bible on records costs $38: inbraiue !t cork $129. Taped Sunday School lersons andother Christian materiair, most free, can be ordered fromchristian ducati ion far the Blind. Inc. Box 6399. Fortthe Bcaille ~ ditail Each contains Bible lerronr. Christiantraining matedal, and mirrlonaiy informafion The BrailleBapbrt lor adults comes in either braille grades 1-I/% or2; the Youth Braille Bopt., comer only in made 2.PERSONS IN WHEELCHAIRS. Many congregations andreligious arganirationr welcome and benefll from therervice a1 perronr in wheelchairs. Although banielbeechurch buildings are rtill few, mare are being made atleast partially arreri~bls.In 1956, the Ciuiadorr Chn~el was begun in FortWorth. Texas, as a unique church of and forthe disabled.(For more on this chapel, see the 1972 RehabilitlitionGa~ene.) Some churches supply homebound memberswlth taper of worship rervicor.The Lutheran Church~Mirrouii Synod has adopted arero1ution to "renew itr eflorti and pledge nr rerourcer toa more complete minishy wlth handicapped people, pro^vlding them with the oppormnity lo study Godlr Word, toexperience the fellowship of believ~n and the stewardshipof God~qiven . elk . and falenfi." The reroluiion rilocificallyencouraged congregations to "provide barrier-he= accD%%IPIB/VOLUME XXIand handicap parking." David Beere server ar a worker/pllest with the di5abled for the Lutheran MehopolifanMinistry Association in Cleveland. Last fall the south^Conler~nce of the United Methodist Churchsponsored three seminars in Florida to enable churchleaders in "mainrkeam" disabled penonr into theiractivities.Of course, with or without special prouirioni. manypeople in wheelchairs do hold po36on5 of leaderrhip inP~~terfant churches nnd organlrafians. For example:Larry Abbon and his wife are home missionarias underthe independent Baptist Mid-Mis~ionr agency working onuniversity campuses around Ankeny, Iowa. "A lot ofour work is both wlth Bible study groups and perional~~u~ael~ng. We help local church people and their partarsin their involvement on a number of campusor."Bob Bardwell ii director of the Ironwood Springs Chrlr~lian Ranch in routhem Minnesota. He became a pampiegic from a construction accident just aher completinghi3 reminary work. "I have always worked with youth andenjoyed it. We are here because we love p=ople. carewhere they spend eternity, what they do with their liver,how they get along wiih themrelver and their neighbors.''Goals include a reneat center for the handicapped.Until her recent death, Bobbie June Slatten, dirabledby rerpiratoy polio. served Anglicans throughout iheOklahoma diocese ar rocretam for the Sheoherd of theGood Mirrion.Hoyle Allred, wheelchaired by a riroke, continuer toserve capably ai Director of Arrociational Misrions inGaitonia. North Carolina. With his wife as driver, hehelps Baptist churches ofihe areato upgrade their church,,roqramr . . and lead3 them in mirrion work ,'There areday. when it seem. I may be in one of the most meanlng~ful land urefull periods of my ministry."Roben Lovering had polio in 1946 during his last yearat Nonhwertein Blble Schod In Minneapolis. Aher hisfsancee per5uadrd him to go through with their mamago,lhey sought mirrionmy appointment ar they had planned.but in vain. He finally found his place of service as acounrolor for file Chrisnan League for the Handicapped.He also worked far Unihd Cerebral Palsy of GreaterMinneapolis and the Minnesota Society for CrippledChildren and Adults, plus remodeling his own home.NOW living in phoenix. Lovenng has sot up a non~profitcorporation. hona Rehabilitatlvo Counseling Seruicos.Inc. The Baptist minister rayr. "In counreling or rehabilibtation work it always seemed ar though the positiveefiedr 01 my dirabillhi outweighed the negative."Dr. Helen Knubel, polio paraplegic since childhood.has served for 24 years as archivist for the LutheranCouncil in the USA. Since retirement. she has continuedto serve as a consultant, heiplng to initiate an oral historycollection of taped interviews with part and presentLutheran leaderr.Anita Watson, disabled wiih cerebral palsy. attendedSchauHler College of Religlour and Social Work. Inhiguedwith the idea of chaplaincy, she worked three11
~ ~years at the Elyria Methodirt Home for tho Aged. Formore education in the field, she then went to theMeihodlrt Thealagicai School in Ohio and trained atRiverrideWMfe Crou iiulpjtti in Coiumbur. Ah lhr hrhtwoman graduate of the new school. she war ordained asa Methodist Elder in 1964. However, a chaplaincyooiilion lhar been hard to find. Meanwhile. she has filledin toy her pastor at Cove Church in ~~k~wdod. Ohio, andfor a fnend during recovery from surgery. She has helpedwith coun~lin~. weddinos, funerals. and has accededinvitations to preach all over Ohio, in Georgia and Florida- in fact coast to coart!I myself had respiratory polio in 1952 at age four. I ama Baptist preacher's daughter and have been active inchurch all my life. except for a couple of years akerhavino ~ollo. For seven "ears I have tauriht children atand could - even coping wjth a rwm iuli of childrenuntil 1 war hoarse. muddled, and exhaurtedi For tenyears. my vocation has been writing Southern Bapllifmaierial~ promoting rtawardrhlp and mission iuppon -audio-virualr, artider, and two bookr. l warkai home, byarrignment. using a ,ypemIter my father built with aminiature, remoie keyboard.CONCLUSION I believe all the people named abovewould agree that for a disabled person coniempiafing achurch-related vocation. the first considerations should berpirltual. Religous service should no more be thought ofas "sheltered employment" for tho disabled than as arefuge irom the world for the able~bodi~d. If God calls aperson, He will help in dealing with the physical limtfa~tionr, either working around them or living with them.conrrarp to some folks notion, a Chtiraan with adirabiiav is not automatically a "ruper~saint? Neither dothe disabled need a perrand faith in Christ solely becausethey are disabled: they need It as all men do.Let ma add one more note. If you are not inwlved in achurch but want to be, don't wait for someone to findyou. Cali rams churches. Look around for a Eongrega~fion that will meet your needs, make you feel a1 home.and la you be one of the family to tho fullest extent.by F large bathroom. Each room has four comfortable(firmi beds, four dressers, and two night stands. Thereare iwo snkr in each room, and in each balhroom thereare two toilets and one bathrub ~8th shover. Beamedceilings and panelled walls create a rurtlc and cozy atmorphere.There are no steps in any of tho buildings, and thedoorways are wide. The variour buildings are joined bylevel asphalt pathways IO~ket wide, good for wheelchairraces or just wheeling with a inend.The main lodge war completed In 1975. The diningroom has a large stone fireplace on one end. providingforur for an informal lounge area. Tha main lodge has 16sleeping roomr. 10 of urhich have private baths inrplra~tion Center can house 110 campers altogether. A balconysurrounds one edge of the lodge, dowing campor. towhe-I or walk dose to the neer.The downitairs area, serviced by an eievator. in usedby the Rehabilltation Department of the Chrirtian League.but during camp seJsionr, the nail activity is alsocentered here. The rehabilitatbn center has an evaluationkitchen where campers can receive some hints onindependent living.Swimming opponuntties are provided In the indoor0001 of the CLH Occuoational Home. which ir on theramr aneage. In the summer, a flatbed "open-air taxi"by tractor transpons camperr back and forth to the~ool. An outdoor ~ ool at tho cam~rite is in lhe ~roiectedplans far the future.One of the main purposes of the Chrlnien League forthe Handicapped ir to meet tho rplrihlal need. 01phyilcally handicapped people, and therefore the chapdis a focal ootnt of ths lodoe and of its olanned oromam. .The room is simple in dersgn and has panelled walls andrurtic chandelieri, A single antique rtained~glars windowis in the bont wall.The Chdstlan League for the Handicapped i$ anon~profit comaration supported by indiuiduaiand organi~zational gins and grants. Many indivtdualr have gjvcn ofRetreat/Conference Centerby Shirley Locker''it's a dream come hue!" wrote one camps. aner rhoanended the opening in 1977 of inrpiratlan Center. theretreat and conference center owned and operaled by theChristian League for the Handicapped in routheinWfrconrin.The Ba unltr d the camp were completed in 1975 -six coaager which have two large roomr for four jdned22New onlerence ond remot center in Walworth, WisconsinREHABlLllATlON GAZETTE
the" time and know-how lruch as the architect. whodonared his rervices, and the men who hauled and,assembled the local dons for the faeplacel, and hundrodiof people have eontrlbuad gilti ranging from $1 to$25,000.lnrpiration Center is located in southe~n Wisconsin inthe Geneva Laka area. The entrance is at the comer ofHighway 67 and County Road F, about one msle west oiWilliams Bay. The reneat center can he rented forretreats, seminars. conferences, and dinner meetings. Forfurther details, unite to Clark 5. Demproy. CampDirector. Box 98, W.lwonh. Wirconsin 53184.The Ministry and the Blindby Arthur L. JacksonAS. young person. I soon became aware that workingaooonunitier ..would be lerrfor me because d mu minimalvisual ability. Aher working for fan years at various occupationswith modest saiiriadon. I felt called to enter themlnirtrv. I enrolled at the Philadel~hia Collaoe 01 Biblemy move to Chicago in 1968, where I partored until I"err. Rather. 1 found warm amptam of my munreliogand outreach activity by ihore rural and urban Mennoniteswhom1 served.Although the ralwier ware modest. the sincere mannerin which I war received far exceeded thai of otherdenominations that were lea favorable towards quaiPiedminirterr who are blind.I acquired my MS. in rehabilltallon adminishation atSouthern Illinois Univarrlty and I am now employed as anlnibuctor 01 the oider blind at Black Hawk College inMoline, Illinoi..\.' " .".'
Housing and Home Services1978 Supplementby Gini LaurieThe Garetlefirrt publlrhed information on housing for the tedr and drrigneri. Contains a data bank. lnlormathn by maildisabled In 1958. In viriually cvs~y issue since then it has or phone 1716/464-26531.reported developments in housing and rorvlcos in theUnited starer and abroad. Tho Information thus accumu- B"h.00"latsd ir now available in a comprehensive collectLon in Anylir, onP~piece ~i~ll, waugh CO.. PO. BOX 12264.my book. Housing end Home Ssrvlces for the Disabled Jackronuille. Florida 32209.- rublifled. Guideliner and Expetiencer in IndependentUving - which Hwer & Row in 1977. Moldodfiberdas, rollbin shower. The Braun Coipontion. 1014Details. includ$ne the table 01 contentr. are at the 01 South Monsiello. Winamac. Indisna 46996.fhi. article. -C.I. .I. .I",.To keep readerr of the <strong>Gazette</strong> and of our book up-to-,, , rl .:r onp,..rc. .,.5'>*rnl..,,,.llh :. d. rr. .I * r,- ..r,(... lllll?. 111 .ella ll. ,,.rdate on what ir haonemno in the %el63 of hovsmo and,.>,..I I ,I LI 3 I,.. I \.. 4 . . I'I< I >. .,I;in", to keep us informed abbul whst a going on in theircommunities so that we can continue this supplement infuhrre irruer.Bamer Frer Environmentr, lnc . Suife 814, Wachovia Building,PO. Box 5W6. Fayeffeuille. Nonh Carolina 28305. ivcbitsc-Nrai and darign ronrulting firm for federal and rtaip agencier.national miganiationi, and piuate industry.CommunNy Ind~psndent Living, Inc.. PO. Box 991. Monroa.Georgia 30655. Nonprofit firm .ompond of diiabled and non~disabled social wiorke.9 and architeclr.Intertesa. Box 5688. Raleigh, Nmh Carallna 27607. Cunomtailoredhoma conrlruction and madihcationr. Phons conrulta~tionr. Aduirory ienirai O~rigns for deaines auarenasr.Building Codea/StnndardsAccearibln Aiihnecluie: An lllurlrnled Handbook Based onMinnerolo Buildhg Code Cha~rer 55. lllvrnoted and edited byHarold K~eusl and John Salmen. 1977 Sponrored by tho Ci$Council of M>nneapolir on tho Handicapped and the Adul~arycummitts* to me Mayor.Connedirut. EHeclivo October 1977, most public and privatebuilding8 must be accessible. Regulations include new orraoouated buildin.. apanm.ntr, mote1i and hotsli ~8th morathan four unilr. Public buildings inciuda bath State andmunicipal buildingr~NPW J ~ m. n.w ~ ~su~aan.s ~ ~ a.s . tar sz horn thpBarrisr Design Olflcics, Division ol Bullding and Conrmir6on.Box 1243. Trenton. Now JarrsyOR625.Solly Swanran Human Syrfmmr in Spacs. M89 171h Sbsat.San Francisco, California 94114. Derim consull~ng firm. Pmoconsuitahon on romplianc~ 4th ragulallonr and coder to bur!.nesr, indusrn, and rrhooli. con3buct and rpmodel homer fordlbled. Whw Ed Rhdi hamz was remodelled. walls wneopened or ramoved and his iron lung motorized so he couldmove through hqr enviranmPdBuilding D~rirm Arrmiator, PO. Box 11954. Columbia. SouthCarolina 29201. Group of managsmenf ipecialinr, arrhitecfi.and ~nginesm. Bamoi r~moval rsrvirer to public and pmateOW"*E.upam cmm for m. o.,c ~ . ~ ~ , t ~ ~ ~ t~ ~ u ~ ~ ~ ~ ~ ~ t ~ lDesign. Rorhertmc lnrfitul~ of T~chnology, College of Ane andApp1i.d Am. 1 Lomh Memorial Ddva. Rmhertcr, Nau Yark14623. ~rou~der rpscid inisria 01th. hearing~impairad LO archi- Uil,r.crrolRuildir', 'ompieir bo,h,"rthr dlioh1rd21REHABILITATION GAZETTE
Michigan Bonier Free Deslp. A Derlgn Monuol Bmed on theMchigan Can.lrublon Code By George. 5.lim. P E Or*.,from Tha Oflice of Disabled Sfudmt Servz~ei, 2211 Michigan/Union Buildmg. University of Micbgan. Ann Arbor. Michigan4R109. $8 IPayable to the U of Michganl. 180 pager. 1977.'ANSI. Pmpwsd: ANSl A 117.1 115771 Speci$colions forMeking Buifding. ond Foi,f,,,rr A~cerrib,. to on* Llroble byPhyriml!~ Handfcap~ed People. $3.25 from Syracuse Uniuerrily,School of Architod~~re. Research Omr~, 118 ClarendonStrael. Syracuse. New York 13210.Eleclnr door and window on~nsrr: ill Power Access Comora-HUDHOD Pmgroms. Request "HUD-214-3-PA from Director of NewSmicei. OHlce d Public AHair.. Room 9245. HUO. Warhing~tan. DC 20410.HOD Programs Tho, Con Help Tho Hmndfcapped. Raquertpubliciltlon "HUD-467-NNGOCP hom tha Mica of Indepan~dant Lwins far tho Disabled. Room 9106, Washington. DC20410.I... ,.;,>,. 'I,'! i'.,.n'~,! , .,'.,C,'. I' ' I, .ill.,.,,.,,, ,. 4 .(. , ,.%, ..: ,:~ :... .pt , ,' I~IK.,I 8."- ,.. . r.. I,.... I. ,. I,. ,., .., >.%.<
Trading Estate. Wetherby. West Yorksh're LS23 700. England.England's leading msnufaourrr of cannan hltch~n furniturr hasdzueloped a line of flsxibls kitchen cupboard. and worklops.Altracllvr brochure' (Interericd in sxporc ILddstion (Pa~sed) Relatlog to Independent LivingCalihrniii A8922 This important law, whlh barams effonivsJanuary 1978, removes disinrsnrivar by removing exmngrPrlrirlionr on inromr. AS p~rronal inom. incrrarss, the statepays a ~mall~r poltlon lor IYPPO~~ IOIY~CDI. such ar onendantcare and Medi~Cal. Boforz. 551 benslie were farminatsd whsndivabled raripiant earned VPOO ", more: llili ro3ult.d inIONiCDI.New York Slate S 6345. "Medicaid elwibl~ oenans who aro inL' . V L "L" l, "" ".'" ; .."Dlr n, nn., in.: .*I.. .,r I."1, ,wr...r ., ,,,.,,,. .u, .. , ...., I. . , .rv,-p,,,.,.l~ i *1. I -r 1 r I.,. . 9 ? f -5'< 8 1,. a -, ,,-
~Respite CareIDay Care Centers,' i."... I. ",\: i,. ,, ;, l.,II i.,,ll.%4 I. , . Jl,,,., , L,.i(l,,/ I. I.,< kc.. :1.,nal cord injured. Director. Ernori L craft.serulre. Innouatir.a vllpd Esry nx~divg a,sndPn rereivo Aa~ri Real Ertar*, Richard C. weir. 5oa Really. Montsukin driving and .rorting dishlad and nh2enr onHighway and Mlli Road. Wrnham~ton, Naul York 11977. Freeorrands Program by an ox. "attonal reohai rsgi~try of wheelchair accsrsihle homai. Tranr~actloni hanrlled thmugh licenisd brokers a, standard feeloffendsrr' vrganirationa new book from Harper & RowHousing and Home Servicesfor the DisabledGuidelines and Experiencesin Independent Livingby Gini Laurie, Editor/P"bflrher and Founder. "RehabjijlalionGosetie." with ronhlbuiions by Donno McGminn,Book Editor, end Joseph Sroll Laurie, Co~Edifor.Cerroons by RoberlE. Tanton, Jr.. An Editor. Prefmce byIsabel P. Rabinaull. PhD.. Superuhor. Research UBIIzalionLobomioni. fCD Rehobiiitation and Research Center.415 pages ond index. 131 illus. 9 cartoons. $20. Pubfjshrdin 1977HARPER & ROW, Publishers. fnc. Medfcol Deportment.2350 Virginio Auenue. Hogerslown, Morylond 21740.(Phone: 301-733-2700. Ark for Mrs. Toylor.)CONTENTS:Signposts to Barrier Free UvingAdaptations to Housins .K~rhcn AdaplatlonaBathroom 4dri,tation,lndooondent Livina -. I xoedonces hrDO". McGwinnAttendant Care by Donna McGwinnOrganized Home servicesCalifornia Attendant ProgramsTransitional P~o)ectsApartment Living ArrangementsLong-Term Residential FacilitiesMobile HomesHUD-Assisted P~oiectsPr#srctr In the U.S Thai Fadcd on FailedAilernallrrr lor #he Developmentally 1)isabledSlatiallcs. Le!tlrialiun. Standards. Codes. andStudiesCanadaInternaHonal Fx~edencesAppendicesAccessfbility Norms in Different CounfnesResources for Architects and Plnnneis
Booksby Donna McGwinn'The Body is the HeroBy Ronald J. Glarrai, M.D. Random Hour.. Inc.. 201East 50th Street. New York, NY 10022. 1976. $8.95.Do you eu.r think about you, body and all the wondrour.pumoseful tumult going on within it? Ever since my bodywar paralyzed I have been more aware of it than before.but I wan never ar awed and grateful for ti performanceuntil a&rI raad this baok. This is a magnificent.Impoflanthi infoimaffve wo& that everyone rhoirM read.~t takes a bit concenwation to get into and now ~ iththis book. but once you do you will find it exciting. Thesubject is the body's immune system, how you manage toprotect yourself hom constant external and internalanackr. There is ruipenrc and drama in the aory,especially in the rnyrterier of the bady nr explored bydonors who challenged prevailing medical ihsorier todiscover facts and cures that are responsible for manyGoeene readers being alhve today These doctors persistedwifh their expioringr despite ridicule and diatilbe fromtheir medical peers. Dozens of ,here fascinating humanstoner remind readers that the chinsr they take forgranted - mouing. breathing, seeing, hearing, life ikerelf- 810 pomible only because of their ever-vigilantimmune system and the dedicated effortr of doctorsand researcher, who care.Born on the Fourth of JulyBy Ron Kovic. McGraw~Hill Book Company, 1221Avenue of the Americas. New York. NY. 10020. 1976.$7.95. Quite a book. I read It In one nioht. A movir lrbaing made from It. A lot of people are talking about It. Ifir earthy and bnter and will make a larang lmprerr~on.Throuehout are the lllurions and ironies of ~ahioiirm asexpehnced by one born an the fourth of Juiy.Ron Kovic maker us think again about Vietnam andwhat a did to him and thousands &hem, to ourcountry, our innitutionr, our beliefs and, indasd. ourwhole way of l
.~ ~head shaved, to have friends shrink from her appearance.and to be frustrated in lher dcrirer to move or be held andlavedThe reader also feel5 Joni'schange in attitude and spiritas she turns her life over to chnst and accepts the beliefthat there ir numoss and meaning for her even thoushshe cannot move or take care of her ~hvricai needs. Her.d!d 9 p\ IN., , .. , ~ s . ~ ~ ~ ' ~ < ~ ~ C , ~ ~ . ~ . , ,.By Rnbin F Brancato. Alhed A Knopf, Inc, 201 East50th Street. New Yark. NY 10022. 1977. $7.95. If ishard to tell a story about life as a quad unler, you've beenone. lived with one, 01 me an empathetic, rkllled nave1irt.B I ii the ~ latter ~ and ~ presents ~ this ~ fart-moving. ~belieuable experience ofa high school football player whotackler hard enough to permanently injure his rpind cordand became a quad. One area a1 concern. and i~ ir alarge area, 13 untouched by the author, and that is peopleupon whom one depends, either family or staff, who areuncaring, hostile, or dangerourly inetficienf.Gary Madden goes through the variour stager ofadjustment to paralysis with the help of his parents,friends, girlfriend, and English teacher. His teacherPncouragDs him to write a joum.1 that charis hi* thoughtiin the horpltal and later in the rehabiiitation renter. In thisway she learns that. derpte his rehabilitation progress, hederpair. thai he will be nothing but a burden to those wholove him. At this crudai pmnt she mums him that manypeople need him. including herreifTravelSecurity in Transcienceby Andrea CoppaertWhen my hiend, DaleAnn, and 1 knew that tho time hadcome to leave our hometown in Michigan, we weio readyto go within 24 houri. We threw our clothes In knaprrckr.our knsorackr in Bia Blue fa van benowed frommy pa~omr that has space lor my wheelchak and a backupfo the car's ballcv for my respirator), loaded my Ironlunri into a renied U~Haul, found a driver on a bulletinboard to share the 1200-mile dnve. and rot out for unknownand random New O,leanr.The next huo weeks were an exh~leraiino ~truoolo forto move heavy machinery without injuring themselves.Our next challenge, now that a place to stay warresolved. war to replace our dopldod rtarh of money. Oftho hro of us. DaleAnn war the more Ikely to find animmediate job Sh. war inelwed with the top1esr dancingjobs on Bourbon street and we were rumrird when thefirs! joint she wed out in accepted her.Theaight+hour job neafed a dilemma for the two of us.We needed cash to hire helpers for ma, to rolleve Dde~Ann oi her full-lime responrbility. But the catch war thatwe needed helper, immediately so that she could be freeforolght hour3 to earn that money.We agreed that 1 should not stay alone in the tiny roomwe had rented Besides the monotony of it. there war nowau that I could contact the outride world for heio if Iboarding hause iokindy called "The Palace" where thatatcategoryDaleAnn swept ten years worth of cigarette buns inm a To keep me from going stir craw, we needed accerrlblecorner for a rent reduclion. Finally, with our last $50 we public places uith auflefr to plug my respirator info. (Hailranted a room on Carondeiet Sweet.of the French Quamr runs on European voltage: weEach move involved moving the iron lung (800 ibr, never knew If an outlet would carry the correct voltage for7 It. long. 3 fl. wide. end 5 11. tail). and there moving the respirator.) We needed an assortment of pan-timeescapader became our veriion of itred theater. We had helpers. The tianrienf on~the~road culture of the Frenchlearned a lot standing in motel parkmg lots at 3 am. (no Quarter was conducive to finding people to hang outmatter when ws set out we seem to arrive at 3 am.) with. I remembered the street people I'd met whUetrying to recrult he three to five characters it takes to working at a runaway center in my hometown. Wemove the iron lung from a trailer into a room.looked in tila phone book and, sure enough, there war aOn our first move we made the error 01 relectinq a oalr similar =enter in New Orleans. We were luckv to come in
security within nanil~ncy and I began to understand whymy rearanr on the road have been my mast recureperiods. The world forgets how immediate needscan be. but the road cuts through tho layerr of routineleaving neadi bare as it cub Ulrough mountains revealingthe layers of rock.Address: Andrea Cappaert, 839 Oakland. Ann Arbor,Michigan 48104.Wheelchairing Around Europeby Eileen Von AlbertI I& on May 29ih and returned on July 28. 1 landed inBrurrelr. rented a Polo W, and toured Belgium, Hol~land, West Germany (going through East Gamany toBerlin with a three-hour bur tour through Enit Borlinl,then ui. Hamburg to Denmark. Sweden. Noway, andEngland.I had a great ahendant rvith me. She is tall, blonde,strong, and ro amactive in face and manner that we hadall kinds of masculine help.We took the Gota Canal boat mp hom Stockholmto G~leburg. It lartsd three days and two nights. Irecommend it highly. Peopls make rerervationr a year inadvance but we were lucky and got one twelve days inadvance. Of courre, we had to take one of the higherpriceddeck cabins. My anendant swung me from mywheelchair outride the bulkhead of our door to my lowerbunk The bathroom war down the way. m I used thewaste basket.Another tour, by bur and ferry from Orlo to Bexgen. afew day. in Bergen, then by train to Orlo, war asdramatic a5 anything I've evor reen.We kepi the Polo far 6"s weeks, until wo reachedStockhalm. we used Avir rentals this time. We we.= ad^vir=d to mi Err0 rentals next time because they arecheaper and the Erro and OK motels have at least oneroom in each place lor wheelchair..Hers in Guadalajara, I have a new guest residence forthe wheelchaired and have some openings for both menand women. Ken has some rpace too, but ho lakes menonlv If anvone wanlr to stay here, call me for rererua~tio& at 21:38~22.Address: Eileen Van Albert. Apdo. 5-208, Guadalajara,Jalirco. Moxico.The Galloping Wheelchairby Selma Z. SackI did it! I finally did n! I rode in a publ~c bur feeling like anordinan/ commuter and not like n third~clasr citizen(something a handicapped person in a wheelchair is oftenrefened to)I haw multiple viororir and I am in a wheelchair. I still30refurofo be a shutAn. 1 don't have a car ro I have to relyon taxis to take me her.. there. and overywhe~e. I live inEl Caion and use the Yellow Cab Service for mv tranrI have oken raid to the.various cab dnuerr. "Too badthis Y~llow Cab doer not so all the wav down to SclnDiego as there are ra many interesting khingr I would liketo re= but my wheelchair holding me back." "Really"raid one drlvei. "Don't use a pair of wheel5 as an excuse.If you reauy want to go aiona you have to make a spacialeffon, bur it can be done."On Au.iu.t 23. 1977 1 called the Bur T~.anroodationpoint - 69th Street & Univonlty Avenue in San Diego at1:00 p.m. on the following dayOn August 24. 1977 at 11:45 am. I called the YellowCab Co., requening a cab to take me to the end of theline where 1 war to meet the Dial-A-Ride cab. Then theDial-A-Ride cab of La Mesa war going to take me to meetthe "Special But' with a wheelchair iiR.In ten minutes tho Yellow Cab war in hont of myhome. When I entered the cab I proceeded to give thedriver the fare (one yellow ticket worth 50 contrl. Thedriver wastold by his dispatcher where 1 war going. In tonminutes we arrived in La Mesa lo find the Did-A~Ride cabfor me to transfer. I took wo slaps while the driver5 heldme by my elbows. thus I war able to enter the awaitingcab earilv. Mu wheelchair war also kandrrrod to !heI, . * 11 , 1. a.a,,, ,..."I 8 , A I . a, I . " ha, ,,r I,,
stop the bur came to a halt near the curb. The same procsdurs aciuned. ihe driver premed the button. the stepsturned Into an elevator, and off 1 wont. I war fold to gostraight ahead for two blacks then i would come to theZoo entrance.When I got off the bur I war lucky to see a youngcouple walking in the same direction as i. He asked."Would you like a push'? "Yes." I answered. "ihak wouldbegreat." He then pushed me to the ennanco. I pafd myadmlirion, and rolled in.A park guide told me that I would be able to get on thesightseeing bus. Ai the bur depot i bought a ticket for$1.50 and had a rhart wait for the next bur. When thebur arrived i war surprised at seeing the steps as I hadexpected to see a ramp or im.311 elevator ar the guide hadtold me that 1 wouid not have any trouble gatting on. Twouniformed guides lifted me out of my chair and cantedme on to the bur and placed me in the first reat near awindow. My chair was folded andleft in the office at ,hedepot until my return. As i raw two oiher foldad wheei~chairs itanding there i felt my chair would be safe.The nde through the zoo war intererting. Many of theanimals were snoozing due to the heat of the day. Thatbur ride lasted about 40 minuter. When I got off the bw Ipaid a ~irlt to a nearby reruoom. It war clean and hadone iame stail for a wheelchair. I ate lunch at a nearbulunch stand that had table5 and chalrr oufdoorr. Awai*es bbiought my food over to the table. 1 ate slowly.looked about. relaxed, then I staried the trip back home.On ,he bur going home the fare war only 15 centr Iwas sumrired to see the driver talk into a phone to hisofflca dispatcher. Tho phone war ju* above the driveishead. After akin9 me if i wanted a cab. he relayed ,hemewage to the dispatcher. When fh. bur returned to69th Stroef and Unive~slty Avenue, I had a rhart wait often minutes before ihe Dial-A-Ride cab rhawed up.I must admit it was a very rhenuour day, but it warworlh it. Now that I have found that I can use tho bus Iintend to do so again and again.Address: Mrs. Seima 2. Sack. 1052 Redwood Avenue.Apt. 6. El Cajan. California 92020.Friends Around the WorldHow to pa. time? This queriion came to me when Icame back hom S.S.K.M. Hospital. Calcuna, afier athree months stay as a C5~6 spinal injured pa8enf to myhome town, Puraii.. with no clear idea about my future."All of a sudden I thought ,ha1 i will have to makerome anangemsnt for me. But that muat be done bymyself only. So 1 started communicating with people inthe line d rehabilitation In my counhy and abroad. Iwrote to Harper & Row Medical Book Department and,ha pubiirher rent my letiar to Mrs. Gini Laurle of theRehabliitation Guene. So i came to know aboutarrociatianr like Rehabilifaiion International, journals likeRehobililalion Gorelie, and disabled persons like Dr.Marao Nagai and Dr. Mary Verghere, who are rnll intheir proferrion and doing great works I" the line ofrehabilitation."At !ha midst of negative and remi&poritive replier ofmy lenors I received a positive reply hom one gentleman.whore address i had from an irrue of tho Gezene. Yes,he is Dr. Howard A. Rusk. MD, president. WorldR~habilitation Fund. He ohred me a f~llowship fromW.R.F. and. through Prof. M. Naiarajan. alranged a*aining programme far me in rehabiiilatlon medicin. atGovernment General Hospital, Madras, under Prof. T.K.Shanmugarundaram. Prof. S. Soundar Pandian. Prof.IS. Shanmugam, and Prof. K. Janardhanam. I shall beiinirhing my naining programme in October 1978."Afier this i want to move from on. end of my counmlo the other end, to meet people like me and theirfamilier who think that after a man ir dirabled thew is noother way out except for death. At thir era of science, Iknow now that thir doer not stand. "But for thero plans Iam in need of a vehicle and finance too. It wlU be a greatpleasure and I shall be thankful U any perion or anyassociation can help me in thir."Lastly, no doubt it is true my family and my hiendshad to suffer a great deal. Without them a war notporrible for me to keep my morale up and I would nothave come to this present physical condition of mine."But I shall be lacking if I do not rend my thank.through this Micle to the following a~~ociationr and parranalitier:Leprory Mission. Purulia: Harper & Row Pub-Ikherr; Rehabilitafion International: Spinal injuries Arroclbation of England: MI. Eugene J. Taylor; Mrs. Gini andMr. Joe Laurie: Prof. M. Natarajan; Dr. W.G. RamaRao; Mrs. Kamala V. Nimbkar: Principal, Madras MedicalCollege; Dr. V.C. dayram and hi$ famiy; Mr. Varudevanand hi5 famiiy, reipeded proie.rors of Department ofOnhopaedic Surgery. Physical Medicine and <strong>Rehabilitation</strong>,my hainee hiendr. staffs. and students of School ofPhyacal Medicine."Dr. Prodip Mumor Maffick, c/o Prof IS. Shonrnugarn,M.8. DOrth.. D. Phys Med ILondI. Deponmenl ofPhysical Medlclne ond Reh.bif:totion, GovernmentGeneral Hosplloi. Madras. 600 003. lndla."I have heard about the rahabiiilanng gazene and reen ifhom Dr. Mallick. I am a medical r,"deni. i mat with an31
accident which resulted in Vaumatic paraplegia. I wouldlike to have an eiemically powered wheelchair ham theU.S. Will any philanthropists or any social service dubs,like Lions or Rotary Clubs, help me to get it as it isimporrible for me to pay tho cost along with the imponand excise duties?" M. Siiniuason, BSc., (Mi, BSI,14. J.P. Eost Street. Kumbokonam 612 WI. indlo."Through Mrs. Ida Daly from Seattie, we came to knowabout G,ni Laufie'r book. Hou3ing and Hame serviceslor the Wsobled. and we were lucky to get a copy of it inNew Delhl. We have to compliment you forth* book. . .My husband and myself are about to join a training inRehabiiilatian work wIth all kinds of disabled people withthe goal later to rtan a now <strong>Rehabilitation</strong> centre rome~where in India." Mrs. Dotis Ngodup-Widdra, c/o Librni~of Tjbelan Works + Archiues. Ganchen Ky$hong,Dhorarnralo, Dist Kongro. H.P.. indh."I wonder if any American reader would care ta exchangsletters wiih me. 1 will be 52 this year and live in a bsdiilleiwith my budgerigar. I was disabled through a fall dawnrtalr,in 1966 so I wak with the aid of a nick. I mlirletterr ham the Stater. I used to hear from aunts in ElParo and Asheville and an ancestor of mine opened theBroadhurst Theane in New York." Miss C.W.M. brood^hursi. 20 Locksley Way. Nonh Sornercaler, near Louth,Linoinshire, LNIl 7QR. Engiond.whoiarr with the lniemational Arrociation of Mouth andFoot Paintin4 Artists . . . A Recreational Csnhe for theDisabled is Geing built in Edmonfon under the rponrorshipof the Associated Canadian Travellers . . . Finaily, agroup of some thirty Edmontoniani (half of them dlrabledltravelled to Japan lasf February in ceiponse to avisit made here by a group of Japanore some eighteenmonth. preuiour. They were very well received andenjoyed their visit tremendourly." Pierre Gotispy, 11910-87th Auenus. Edmonton. Aibencl. Conoda."The Rehabriifolion <strong>Gazette</strong> is an excellent, informativeresource for rehabilitafion. I would lhe you to rend acopy to friends in Bangladesh who are working on theonly project in that country to help haumatic paraplegicsand quadriplegics: Mr. Vuiene To~avior. Volunteer ServicesOuerseos. P.O. Box 406. Dacca, Bongiadesh." Jill Jones.1300 Oakland Road NE, "1414. Cedar Rapids, Iowa52402."I am an odhopa~dlcally disabled person and I am 28years old. i havo been practising the chartered accoun~"I have returned raioly from Manila and Hong Kong.Thank you very much indeed for giving the name3 andaddresses of Gorelle hiondr there. Your reolv warauditorium where hs was conducting a stage show by thedisabled . . . In Hong Kong. Colin Chan. Jenny Lung.and Lhelr ablebodied hiendr met me af the aimon andColin arranged everything far me and called for me at myhots1 every morning. He is really wonderful, a schoolteacher of 36, speaking goad English, driving an Aunin~ini with hand connol. having a lovely wife. Merlin, andlots of hiendr. He did his best for me . . . I vl~lted Mr. SiuChow Chiu in his horpital." Naoyuki Ishizoka. Konouzan-Jishudai. Futtsu, Chibo 299.16. Jopan."Since my reflremant from iho Canadian ParaplegicAssociation. I have kept busy at a number of thingswithout being tied down . . . The Asrociation inEdmonton is in good hands and I am happy I made thechange when I did. The Old Guard in CPA is moving on. . . My hiends in the respiratory polio group con ti nu^ tolive life ta the full. Garv McPherron is dill the executiv~rille:!". of ir. c,n>o ,n il', er :la,, S,,""' Ari,-,,,,on11. A'.,,,. ...I,., : , ..,. 0 .....I ..,I, I,,, ,.. ur, I,,Orlau I 7,': . , , o ,>,,s.r , r ?," >
fancy proferrion for the last folrr years . . . I would %e iolhave a friendship through the post wlth other dtabledpersons who are auditors or CPA'." TAP. Varodakuni.Chonered Arcounml. 107~A. Lake V!em Road. WestMombelam. Modrai 600033. fndio."Jurt to let you know that my book, Atlantic Rendezuous,can be obtained through a regular outlet in the UnitedSfatas: Fowler. Dick & Walter, The Borton Store. 15-25South Main Stroot. Wilk=r-Bans, Pennryivania 18703."Bill Murray, Bollure. The Glen. Ramley, hle of Man,British bles."After 22 yean, tan of us pod-polio hiends still continuoto correspond regularly through two separate RoundRobin leners. Each lener maker the rounds every three orfour months. bringing news. mapshofr, and clippings ofmutual insrest to all of those panicipating. It ii a goodway to keep in touch with old friends, with the hartamoun, of effort"My personal involvement in the two Round Robinlenerr riemr from the fact that. while In my early twenties.I spent many months on two respiratory polio wards:Colorado General Hospital in Denver (1952-541, andRancho Los Amigo. Hospital in Downoy. California11954-55) Many of my Mends. both at CGH and atRancho. indicated an interest in conerponding afl~r theirreleire. Thus, when I returned to my home in Wyomingin June, 1955.1 spearheaded an effort to organize RoundRobin 1enrrs.While nether group, today. can boast of having all ofIts orisinal members, all gaps 1ef1 by those no longerpan~ctpating have been quickly filled by others - friendsfrom adjoining wards, out-patients, and valun,eer workers.among them - each eager to help keep the lhnerrOowlng. The members of the Denver-bared Round Rahingroup are Norman Winchester, Boulder: Mri. Richard(Carol) Jenren, Columbia. Maryiand; Mrr. Roben(Helena) Ritrhlin. Denuor; Mrs. Ban [Donna] Pekar,Denver: Mrs. Barbara Pickeft. Long",ont, Colorado.Thore from Rancho days are Mrs. Donald (Carol) Dorr,South Gate; Mir. Mary Jane Robinson. Long Beach:Mxs. Wiihsm (Ruth) Van Omting ivolunteer). PicaRivera: and Mrs. M.K. (Dairy) Lawimore (voluntoer).ventura''With me exceplion, all of those panicipating in theretwo Round Robin leitars rs.ide at home. The& relearefrom lhnitutionai care came dvilng the 1950's througha special program rpaniorod by the March ot Dimesfa return post-polior to home rurroundlngs wheneverpossible."For the most pan, our Round Robin participants havebeen to livs nsar~normal liver among familymembers and friends. Lalfers. therefore, are genaallyfilled with news of latest family activities. such as reporrrof weekend or holiday get-tagstherr. or maybe ward of anewly -rived grandchild! Our letters have kept our longdistance friendships going although most of ur have not1978,YOLUME XXIseen each other since our days together in tho respiratoryall, the parson having wrinan lirrt remover hidher oldleeer and replacer if with an updated one. Then. once*gain, he/rhe rends the Round Robin on itr way."For the tend us, Round Robin correspondence hasproved to be an excellent way to keep in touch. Othorwise,we'd probably write but once a year - and in end^shipr ,educed to such infrequent corrrrpondence roo"wither and are last."Anyone wishing to discuss ivnher the rublea ofRound Robin letters. unlte to ma: Mrs. Edward G.Leonard. JI.. P.O. Box 681. Douciar, Wyoming 82633.',Thank you for putting in the notice about my pen paldub. ~riendrhlp's Door, in the '76 Ga~eiie. I received so- from people who live ovenear!Monne Gaba. 2671 Emory Driue East, Apt. L, WealPalm Beoch. Florida 33406."I feel so fortunate that 1 had been in Rehab Nursing for anumber of years before I had a below the kneeamputation. I would like to tly to ba of some help m01 the ampuieer who think they can't do things . . .1 would love to hear from any amputees (in New Jersey,erpeciallyl with questionr." Louke B Quinn, R.N., 15Venloro Driue. Momsfown. New Jersey 07960."ARer years of having my physical symptoms mirdiagnosedby neuralogirts ar hewer' and being rent offfor psychiatric conrulfationr. I learned that I have had aram disease since birth: dyrfonia murculorum daiormanr(z~ehen~oppenheim disease). If bogan to show at age 16when I became unable lo conhol my nghf leg duringwalking. I went fa college and majored in prycholow.then to a school for occupstional therapy . . . Ail thiswhile my bizarre gait and other symptamr increared and Iraw many neurologists until I met wlth several =I theUniversity of Pennsylvania who made the DMD diag~norir. Subsequently. I went to the Neurological inrtitutsat Columbia University and then to St. Barnabas in theBronx to canrult with Dr. Irving S. Cooper, a superspecialist in DMD. If anyone wisher to know more ofDMD, they may wrte to me.'' Selmo Ephmss. 15 JuniperDriue. Doylerlolun. Pennrylvnnia 18901."Recently, our respsatory polo group in the SanFernando Valley formed a <strong>Polio</strong> Survivors Foundation.One 01 our goals is to awaken the Unlsd Stater to the33
need for lmmuniration aminst - . oolio . .. I am an uoride~n .* .. 3% ..,I I, k r. , 8 I. Ihr uondrd.i 1r- ,,I.cln~ q ..I li I! ro.qn .ne jrmr " ?ut, ul.. Zr ror '191111, 0,. !. I),,? 1,
Drir8,lg rinyiiinc !hour$ W Sunny Weingorlen uirl o LPSp""liur p""u'e respirator .lh a molh tube The ""ii will runone, 2* hours on one
~average of 35 hours pex week throughouf 1977. The LP31s the first truly ponoble positive volume ventilator everperfected. It can run over twenty-four hours on onecharged auto baney. and can prodvie a tidal volume of3000 c.c it har an internal emergency baiiey which willrun the unit for about one hour. The breath rate control isconvenieniiy located on fho front conhol panel. Unlikethe Bantam and Managhan 170C. the LP3 has a veynatural, smooth, breathing pattern. I have vred fhlr unitexclurively on reveral two- and three-day b-ips, and havefound 11 very adaptable. A Bennan face mark ir neededfor sleeping overnight along with a Bennell CarcadeHumidifier, which alimlnster severe dyness in the mouthand throat area. The adificial nose supplier adequatehumidification for davrime use. The Sean Diehard 12 voltn.,,
an imn lung auailable lor your Ruby Heine. 2885 ShoronDrive. Omoho. Nebrorkm 68112.>.Ta:>,%,,P "..my ,..,:I ..'-a,.r .>.,*,:,,,:I., 8.. LI., ,.,I '..T...,D. ,.' .'.'.' .." , "*r-:.IY.;,,8,-" . . < > ' I,, ,.l~~~nllI.$>.I1,tIb ?",. :.* f, 7i ,.V',. 3' .,>, , ,,.,,".., I .'. ,@$
polio Is quite different from that which rarulir from lung "Everybody's lungr change and d~ieriorst~ ar they getdileas such as ~hronic hronchins. ~ h laner o is in the your 40.~ you breathe youlungs. the former in the mechanism - the lever power could in your 20i. If you have impailment of thewhich aperates the lungs.murclei, the normal changes duo to age cause irouble."Thelungi oi a polio are errentially normal. They only "That is why, though the number of people havingbecame abnormal as a result of unnecessary negled or polio is going dawn. at tho ram= time fhe numbermisuse of tiDarment used for the respiratory dinicuitie. of needing breathing aid at night is rising.chronic bronchltir. Oxygen. which ir used to treat "You can stave OH the necessity of seeking assistancerespiratory dmeaier originating in the lungr, is harmful wth breathins at niqht by a variety of hickr. Tha mostproduce. a certain rtimuiur to breathing: lake it away andthe carbon dioxiderirar still further."There are two sorts of murcler and nerves which~ -"The only way of measuring the efliciency of yourbreathing is to measure the carbon dio~de in the arterialblood.The extrinsic muicler are not wired in to the aummaficcents and ceare to function while you sleep."if a rignAcani number of the intrinsic muscles are notworking, you can breathe by day by all rorls of trick sucharfrog breathing, hut you will need a bit of help at night.Without help you may have difliculty in gening off forleep, you ell wake up and not he able to gel hack torleep and have a had night followed by dr0wrine.r andlack of concentration by day.. .. . .than to anyone else of the same age. . . . The effect ofobesity on breathing probiemr is prolound."<strong>Polio</strong> ir still endemic in Africa. South Aka, the FarEast. and round the Medltenanean. Even the WorldHealth Organization returns undenate the true situationand the travel agencies have a ve~ted interest in suppressingthe Sgures and will not advire bavellerr to heimmunired, Another good rearon to go on plugging theneed for immunization."Miscellaneous Readers' Ideas..*Anhur Heper hiex ond ernocLI poptr wrih iifs i~~ovil,n~~-kIH,, hu~~ewr~twr 8s or, ,,!,lzv St,s,jtl
Trained as a mechanical engineer in Guadalajara, throwing aside; we would pull aver to the ride ofMexico. he moved to California in 1975 with his btide. the road and, while she went into the bushes. I wouldFlor He is employed by the Nouromurcular Engineering open the car door, llft mysell to the floor, pull down my~epartment. Rancho Lor Amigor Hospital, 500 Hut. brimhe$. and pee over ,he ridge I war unprepared for the7601 East lmoeiial Hiahwav. - .. Downev. California 90242. renip of iiberationl Only those with a long history ofAs liaison enginoor, ha designed a prototypo house in mirerable propriety could understand.which paliantr and outpatiants may see and test equip^ "L~~s~, traveling alone. I grew bolder. . . . I pull over tomerit. ~h~ house ir the for his ilromam. . - PIO~~C~ the ride d theroad. slide forward in the seat. press a two^Tllrerhold Rehabiiitaiion Engineering Service, in which he cup plartlc mearuting cup to my bonom, pee, and dumpdesigns equipment according to individual needs.It o", tho car window. over ,he years f have pissod aiongAnhur'r dsrk, shown in the accomoanvina . . -~ ohata~ the highways of many scenic stater, along the curbs ofgraphs, illu~hates his abilay to engineer his environment leafy ruburbr. and in the parking lots of some of our finestto meet his needs The desk is Ukhaped His filer for supermarketr.larger papen are located in the Ian wing of the "U." He "1 still feel a liwo uneasy about such primitive 'bas61er and extracts papers with his mouthitick by using a behavior. But bancaliy, it maker me happy. It kelr a lotcampIiko stopping punishing myrelf." Eleanor Smith. AtlantaThe typewriter is located in the center section, on a <strong>Rehabilitation</strong> Center. 1599 Memorial Drive. S.E.. At-Lay Susan, which he ievo1ver with hi5 mouthst,ck. His lanta. Georgia 30317.portable desk is "parked" on the ilght wing of the "U."beride the teleohone. He user the roll for wrltinq and EASY-FEED The device conrirfs of a plate, which rOtaleSsketching and the inride for storage.heely on astand clamped toa table. The food 1s piacedatNde that his V-shaped mouthrtick makes it easy for the edge of the plate, which the user turns around withhim (a talk while holding it in his mouth. His mouihsnck his mouth. 15.50 pounds. Nelulan Aids Ltd. 2Aholder a anached to hir whaalchair, which he guides and C~nlvoy Sneet, London WlP58E. England.recliner with his chin.SAAB ADAPTATIONS FOR DlSRBLED. Especially designedhand canfrois and a seat which slider out and pivots areavailable hom SAAB~SCANIA of AMERICA. Saab Drive.Orange, Connecticut 06477 and Scancar. Ltd.. 860Progress Avenue, Scarborough. Ontario, Canada.PlSSlNC CROSS COUNTRY. "I was too young when 1 gotpolio - three yeair old - to remember how I learned tocope with not being able to get to a bathroom whenever Ineeded to Undoubtedly. I wet mrelf a few iimer.learned to hold on for a iong time in spite of dircomfod,learned maduaily to be very good at planning ahead.worried a lot . . ."Very liffle changed in that regard until I war in my latehvenner. I went on a longcrosr~canada ramping trip with*friend through the Westor" provinces. If wasa long waybetween renice rtationr. We developed a habit ofARTHRITIS BOORLEIS Contact your local Arthrltir Foun~dation chapter for booklets such as these: Seif~HeipDevices for Arihrillc Porlenrr. Living More ComforioblyWtth Arthnlir. Home Core Programs in Ailhrills.TOCLET PAPER SUBSTITUTE My brother adapted a iimplehousehold cleaning gadget, ap1arnc rponge on a straight,pbrtic handle, that I can use with my aiihritic hands. Heused a "Scrub Pal" mad= by Hl-KO Products Co., bed^ford Heights. Ohio44146. He bent the handle by heatingit over an eieciric stave burner, then attached with Epoxycement an 8" sftip of thin wood (such as an old ruler) tomake a cross-shaped handle. For further information.rend a relf&addrerred. .amped envelope to Lawence d.Meinen. Route 3, Box 268, Chippewa Falls, Wisconsin54729.LNDEPENDENCEFACTORY. "We are an all voluntaer.nonprofi, organization which maker and designs selfhelpdevices. Send us your special problems. There ir nocharge because we learn by rolving problems. . . . Wehave a price list of the devices we make and soil and wehave put many of our ideas into three manuals. Tnled.HOU TO ~ oke ft Cheop, Volumer I and II are $150each plur 30 cents portage. Volume Ill is $2.50 plur 30cenlr portage." Fred D. Canoll, The IndependenceFactory. Box 597. Middletown. Ohio 45042.59
~~~~ ~~ ~~ ~ ~ -SWEDISH SUSPENSION ARM5 ''The accident happenedIn June 1977 in northern Ontario. Ieuck a moose whichlanded on the roof of my car. Tho roof fell in on me andbroke my neck. . . . I spent two monihr in TorontoGeneral Harpital . . . I war flown to my home town.Pinrburgh, and entered Harmarvilie <strong>Rehabilitation</strong> Confer(Box 11460. Guyr Run Road. Pinrburgh, Pennsylvania152381 for eight modhsof work."The person who helped me the most war an occupaiionaltherapist from South Abica. Min Chrirta Meyer. --Chriita came to Harmarvill~ fo ~a-author a book aboutquads. . . . She started my therapy on Swedish Surpen- 1sion Arms As I progressed. Chnrfa thought of new thingsto help ma achieve mdependence. . . ."Before fho accident I war a senior prychology major atWest Virginia Uniuenity. While at Harmarville, I was ableto contvnue my degee work by completing an indepen~dent study project under ,he rup.rvi.on of a proferrorhom WVU. With the help of the social service direciar, , ,my personal rocial worker, and vocational counselor, Ie--formulated a study about the changes of anitudor andvalues of patients at Harmarvtlie. The ~roferror homWVU came to Harmarviile to ree me and mads theIrepon. I received six hour, of credit for the study.:,: hlilorr, o i;ovlilrllr qicld ,llld l!lr Su,~d#rh Siiapenilvn,,Since I left Ha,maiviile I have been living in awith hro other men. One cooks and the other doer thedishes. Nurrer come in the morninn - in exarcire ma and~help get me ready for ichool and in the evening for it has not bean easy to learn to ark for help orpeciallygeneral health care.from shangers. But I am learning that there is no need"I had hoped to return to WW, but the campus 13 not that cannot be met, if I open my mouth and ark" Tenyaccessible. I ananged to finish my rtudier at the University Moore, 3254 South Park Road. Bethel Park.of Pittsburgh but my degree will be granted by WW. . . . vania 15102.1(L '~'*AMER-IND INOlAN SIGN SYSTEM. Madge Skelly, PhD, aproferror of speech pathology at St. Louis Univeniw anda conruitanl at the VA Haipltal and the State Hospital,has achieved international recognition as the creator of aspecial method of communlcation. The method is basedon the Indian Sign rysiem which Dr. Skelly, now 75 yearsold, learned as a child from her grandfather. a member ofthe Onondaga hibe Indian Hand Talk is a sgnal system.bared on action, which was created to provlde a universalcommunication mode among the many tribes who didnot share a common language. it was well developedlong before Columbus anivad and early Ewopeanuoyagors communicated with the nasver by this means.While no more than 10 per cent of the sign languagesdeveloped for the deaf can be guerrad, 90 per cent of thelndian Signs are guerrable Amer~lnd ir used by thosewho have Impaired rpeech or who have lost ihek speechthrough *oker or removal of their vocal apparatus or40Communicationwho have failed to devoloo . meerh . and lanquace - - becauseof retardation.Additional information may be obtained from: ill anlllurtrafad book by Dr. Skelly which will probably bepubllrhrd in June 1978 by the University Park P~err. 233Redwood Sh.ee,, Baltimaro. Maryland 21202: 12) LearningResouices Service. VA Hospital. St. Louis, Mirrourl63125, ha8 two series of videotapes - a videodictionaryand orientation: and (3) for proferrionalr. Dr. Skellyofferr five-day workrhopr. contact her at ExecutiveHousp. 20-D. 4466 West Pine Boulevard. St. Louis,Mlrrouri 63108.VOlCE~ACTlVAiED TELEPHONE. "1 finally have the nohands telephone of my dreams. The <strong>Gazette</strong> told mewhom to call to get special telephone equipment but therewere many detouri between my first call and my finalgoal - a phone activated by voice command at nightREHA3ILITATION GAZETTE
from my lron lung or by touch button during noisy days.At first, the telephone company rent a series of brightyoung men who had nelther the experience nor the time.Finally, the project Supervirlng Engineer, Robert L. Glyn,heard about my request and came Lo see ma. He workedout a rpecial de#gn and provldsd the equipment. whichhas given me greater independence and racurity Theoperator3 show such genuine int.re* that they makeDailir seem like a warm home town.Mr. Glyn told me, "St. Louis handler devices for blindand disabled people. We'll send this new design in to Sf.Louis. If they think there's a need for it elrewhere, they'llpublish if in a book so that anyone in the Bell Syrtem willhave acceu to the information. The book is updatedeverv , five usarr. . In the meantime. . anvane . interested canget in touch with +he Southwestern Bell Telephone. 500South Ervay, Dallas. Texas 75201. If no one reemr toknow what vou're talkina about. a 3 for Mr. Glvn and tellhim lron Lung Joanne rent you.? Alta Jsanne Drake.3737 Purdue Street. Dallas. Texas 75225.A TREASURE OF BOOK5 AND BOOKLETS The Trace Researchand Development Center For the Severely ComrnunicafivelyHandicapped. University of Wirconiin-Madison. 922 ERB. 1500 Johnson D~iue. Madison, Wirconsin 53706, has an exciting and valuable list af aidsand techniques. Many of the publications, such as the listof commeicial switches, are useful for all types of dirabilities.1nrerfece Siuit~h Profile ond Annol.ted Llsl of Corn-merciol Switchen. 1976. $125 The switches listedinclude push. sliding or trolley, pneumatic. breath, zeropressure. proximity, motion-detecting, eyo~controlled.and optical. Other onnolr include joyrtlckr, wobblerfirk.air plllowi, and squeeze bulbs.Annototed Bibliography of Communicolion Aids. A1974 rummay of aids in ihe U.S. Canada. and abyosd.%? SO01 its ~ ~ tworkshop i ~ ~ series d and they are publiried ina 228-page book. Tltlod. Non-Vacol CommunicadonTechniques and Aids for the Seuerelv PhyricolY Hondi~capped, it is edited by G~egg C. Vandeihridrn and KateGrilley. A major professional heMre on the rubien ofcommunicaiion, it is available for $12.50 from UniverityPark Press. 233 Redwood Sheet, Baltimore. Maryland21202.PHONlC MiRROR HANDIYOICL. A ponable, hand-heldbattery-operated electronic speech synthorizer that simuhtirthe human voice. It can produce complete SenfDncDsand artkulde almost every word in the English language~ith innections and tonal variousare designed to msei the range of learning ability.Information from HC Electronics Inc, a rubridlay of theAmencan Hospital Supply Corporation, 1740 RidgeAvenue. Euanrton. lllinoir 60204.LKOMI Z. An ele&onic communicator which allows personswho cannot speak or wnfe to exprerr their thoughtsresringthe keys on the keyboard of a battery-operated2:cp. it looks like and ir about the same sire as astandard pocket calculator. Manufactured in the Noihor~landr, it isdisfributed by PrentkeRomich Company, RD 2.Box 191. Shrove, Ohio 44676.MORSE CODE CONVERTED TO VCDEO A1 ROS, an electonic media producer at the unive~sry of washingtonChild Development and Mental Retardation center,Seahle. Washington 98195, created a special devica for ayoung man drrabled by cerebral palsy. His device convenrMorse code into leiterr at a rate of 8.4 wards per minuteand displays them an a "Idea monitor.DlCTAflDN MACHINE FOR MOUTHSTICK-USERS. SonyDictation Machine VK35 war designed for the severelydisabled. The control unit, which ir actuated by volce andby a magnetic mouthstick, accept. any standard tapecaretto. The dlctating/sansmibing unit may be operatedmanually by touching the unit with the magnetic end ofthe mouth*ick. contact your neare* sony dealer orwnte Burinerr P.oduc,r Division. Sony corporation ofAmerica. 9 Wel 57 Sfreef, New York, NY 10019..-z . " . plugged into a wall outlet ahead of any elecrric appliance,- will operate that appliance by a remote conholrwitch from8 dinance of up to 50' from the appliance. Data-Link.': %--~>.Box 1145. 1282 Faydto Street. El Cajon, California.r,.o,,,,e D,OXI ll,l,i tiiC "I.,! .!,).. tll,O CiF~fed her vo,reait,uotad 92022 and Hammacher Schlemmer. 147 East 57thphor8e Street, New Yark. NY 10022.
Potpourriby Gini LaurieNow York Stale Advocate for the Dis~ohlad, Rwm3712, 2 World Center,Neu York. NY 10047. 212~938~0186Toll hoe number for re* of Naw YorkState: 800.522~4369 iaxcept Nassau.Suffolk. mnd W~nrh~nsrl?,",ring H~~PI; Cilirenr Amon Guide.By Elma Gderal and Llnda Horn. 52.95h m B.con Pros.. 25 Bsaron Shod.Boston. Marrachurefti02108.Tho 15th Annual Sister Konny IndfuloArt Show for Disablsd Ararii will be heldfmm Oclobar 8~22. 1978. Two cofe~rompandlm ol Isdual and *tats Isgislationon haniers, curb cub, license plates.and pollins place. $15 homMkhigancanter for a Barn=, ~raa ~nvi~o~manf.6879 Heather HsathLane. WritBioomlidd. Michigan 48033R.p.7 .I,, c*r..t,r.< .,>M'',,,.,,:nr.a rn.'",>l.'. .'I J... !L,, T.. .3. , .* .,-k.!< ' ,, &I>"@ I,,, S??,?,,.'~..,V,.C,, b.,.. ...lull I\..* Yr,.or Geneva.Peolrle . . . iu8l like vou. About handi-Dlrobhlier Comprohenri"eanno,.tedbibliography and additional sources ofin1ormaiion 14npagoi. $3 hom Sups*intendant of Documentr. US. GovernmentPrintinn office. Warhinoion. DCEorlp Yem. By Moriquo Comwdl.MCSP. a phyrlotherapist and mother ofNio small children. For tho dirabledmother or lathrimdtheu ch~ld hambirth lo nurisryrywhool 52.50. FromDliabled Llving Foundation, 346Kenringion High Snoot. London W148NS. England.Cl0thl"~Adopt Your Own. A Clothing BrochureFor Peo~h Wrth SmcialNeedr. ExcsIlentsource of idea. and furthwrder-36 pa gar^BomerFiee Meelins: A guide forpmf~ss#anal Asroclatlonr. By MarthaRoss Redden et d, this valuable guide. ..arrhitedure. roria1 wo*. and urbanplanning. The planning and deign areperfomanre-bared rathrr thsn prouriptive The emphorir 01th. book ir ondev=laping a ph$laiophird approach fothe mlegraNon ai both physically dir~aMed and msntally ratarded perroni.278pagaa. $22. 1977. Doiudm.Hutchinson &Ross, Inc. Bax699.523Sarah Sheet. Shoudrburg. Pennsylvania18360BllndBrailled papar curency. MorlDulch andSwiir paper monry is markad withBraille idsn6fication mark or dotr NoUS. papsr cun~nsy hw Bralllp dotsbecame it is ieltthatthspapPr wouldnor hold upunder constant uro. Whydon', we "re heavierpsp.dThe National Rni"i% Pig"mn",ttFaundotion, fnc.. Suite 932.393Seventh Avenue. Nzu Yo*. NY lOWlumri ail who have RP lo onfaethrioundabon and arrirt with research.rludonli can puticipate in botany1aboratod.s.CD9ld.e"A Romdeder's Gurdr For Porenuof Chit.dien with Menlo,. Phyricol. or EmotionofDivision of con(inuing Educauan, PO.Box 2967. Univernty. Alabamo 35486.Maka ~hsck payable to Univarrity ofAlabama.Codldona. NadonalCoolrt!on B",fd,"ing. A Rapon on aFewibUityStudy to Deuelop a National Modelfor Ciarr~Dirabilitu Communicat#on andcoop.ranon By Frank G BOW.. PhD.66pag,g~s. 1978. $4 from Amoncancoalition o! carens mith ~i~abiliti~~,1346 Connrcticut Avenue. NW.Washingion. DC 20036.Coalltlon.. suteUnited Handicapped Fodsration. 1951Uniuerri~ Avenue. St. Paul. Mlnn~wta55104. In October 1977. UHF initialedan ,",eresting buying pian For anannual fee, members may purchasepmloipiion drugs. sya glaiior. hearingads, and renlori' InsurancP at a rsducadcart. A promam is available st many oltha local ho.p!tdr that will accppt Medi-REHABlLiTATlON GAZETTE
~ -rare paymentr ar hll paymsnt. b add!.tion, over 100 retag *ores oflor a5-20%diwount to rnarnbprs.consume. lnlorm.t,o"value to whe~lchair-"$en, rhould bemad by all medical .qu,pment manvfac~tureii and dirmbuloiiconsumer Wanon," Lou Yo", Rightsand How To Enforce Them. A GuidaforUaerr of Msdicsl Deuicei. By BalindaBoon and Susan Schnpiro. 2lpagss $5horn Dirabilily Rights Center, Inc..The Bert of Helolul Hmls. 86-aaoeDeafDeaf coUew hid~nts are aliglble for.summer program in camputer Drogramm,ng oH.red by IEM in CaiiIo,"ia.S:eezh ond~?mc ,
made a ~ ki a quad. and heriubroque", i.dchmg -=Dr.Epil~P~Y: The inrl.tble Wound. Avail-&la lree Irom Epilepsy Ariociafian ofnhio. 5310~~~iMain, Columbus.Ohiu, 43213.GeneralThe 1978 lnternalional Dimbled Expoir .rh.dulad for August 10.12 at th.O'Hare ExpoCenfer in Chkago. The1977 Expo war ahended hy 9137 pro^feiiionalr, dirahlad individuir, rndexhlbitorl. 150 manu1acturar. w=rerepror~nfad The 1978 Expo will againbe sponsored by !ha Paralyzed v.n.anr01 America. CasPnor and wrllfenDanwrlpli 01 the conlrrencor ais availahla.lniarmatbn available horn WA/Expo. Box 1337, Hinar. Illinois 60141.Grantrmanrhlp center Nowr ReprintsLO15 West Olympic Boulavard. LasA~~.I~~. caiifornic 9no15. prwromPlanning And Propara1 Wnang 75cant.. HOW IQ Obtain Funding *omLoco1 Gooernmen*. 75 rentscompslinon, denVi"8 consumers thebpnpfi, 01 a hap markt, and *uppr.umginnovation and improvomanf In thed.~i~", ronmrtion. and ra1. of wheelrhalrr.Mandelrtam. MCSP. DIP. Soc Sc.ill"mat.d by farhion dcxgn.rM,r.~renda ~aylor. ~erober a ivid~ rangeappliancpr, clothing, methods, andgadget3 1.75 pound5 hom DiiabledLiving Foundation. 346 Kenringlonnigh Frrrr-t. Land",, Wi4 BN5.England.Adults' "dri-pants", urinals, insp-inpods, ai arc avallabla h m PiperBrace. 809 Wyandone. Kansar City,Miiroun 64105 ~rar cafalog/pdce lirl.Ever wonder about the Naiional hgani~~ationi that solicit your SS7 The Nationallnlormsnon Burnu. 419 Park Avsn"..South. New Yoik. NY, 10016will sendYOU ,he .sting list d ~hilanthmpicorga"*ationl, if you reque*i, on. post-~ardRs@sh.thn of Nordic ProjscLs RelalingtoDisobiliiy. 1977. By the Nordic Cornrmtteeon Dirabdity, Fack. 5~16125.BROMMA, Sweden. Exciting andvaluable call.dia". Free! Covers manydlrabilifisr rnd many phases 01 ropinsland 20.857Naiional Health Plannlng lnformsnonCenter. Lung-Term Cars Component,P 0. Box 3,. Rorkvlllo. Maryland20850.Rohabilitalion lnlmahonal. 432 PorkAuanua Samh. New YoT~. NY 10016would like lo hava disabled individuals~aniripate in a runay dthe r#habil#ta-6on procar6 and the involv~mant of thedisabledAccordingto HEW. 16 million chlldrrnunder 14 years ol age have not beenvasrinafed against polio. CU"."~ r.c~omm~ndationi for"~ccinafing childran*oinr, polio a,. th... .hots at hum.four, and 18 months olage. At fiveVoarr - o boaster.phvliral di.abl,,,es as well as those whoare blind or deal 2.50 pounds hom~ i ~ ~ Living b l Foundation. ~ d X6Krnrlngton High street. London W14ENS. England.lncontlosncefomntinencr; A Guide !o the under^.l."d,ng and Manosemenlolo veryC," com#!oint. BV ""hvuTh. California Depanment 01 Rshabililotionhas hodine ielaphones inSanamcnto rnd Lo3 Angder 10,individusli who wish information aboutiu vervices, Sacramento: 916~322~5066(call collacll 800952%544 TTY. LorAnqeler 213~620~3353 (call callrctlNatio~,ai Center on Educational M daand Materials for the Handcspped. TheOhio Stair Univeri8tu. Colurnbw. Ohio43210. Frea catalog iis$r audto~viiualmaterials and publications in spanal~ducationThe Dimenrhns of Need. By PaulineFaughnan. 1nt~.ertlng ana1yrii of therlud~d from a~lornobllo licanre fees.The law is noireWoachus, hut at time 01renewal a vehiilr may b. r.appnir.d.~xcludlng ihr cast lor rnodiflcatlonr.REHABILITATION GAZETIE
~ ~,The National center lo* Law and theHandiraoaed ir davrlooins hottar StateMinn-ta SF922 impores a $10 lrne onnondirabind individusli who park inspace5 reerued forthe dirablcd.. . : if.,. I,' ... dl,r.., ,,,.' 1 'I. ,21:., ....'iion ofEvaluation and Rosearch. D~pariman, ofiabar. Room C3315, 200 ConililulionAvenua. NW. Warhmglon. OC 20210.con.e,on: the Sistrrr d Ihh Lamb dGod have a new address 1516 PanlrhAvenue. Owenrboro. Kenturky42301.Addltl0". the!, will ronsidertham wxlhla,. "orafionsand bath the dirab1.d andA.rociation lor Ssxual Adjvsm~nt inDliahllty [ASAD) rarulted from a workrho0held iii 1975. The project included,ha publication 0,a newileller. optionr.that i"il"d~d OpLions'Rerovire GuideLo Seruol Adjustment in DiaobiiilyCornpilad by Barry J. Rabin, PhD Fa*. .,.
phonecallr. I1 you reie,vean oraldaiiron, ark to haw it wittan. If youare notlfled that you have beon overpbid, ark ,he saia15.curity DiMnirtomcp 10. a woiuer ofrroovment . .heraura you weis not at fault and itwould be a hardrhi~toiopay. 11 youwars not 0v.rpaid oi if the amaunt is",rung, ark 10. a r=conridsrafion ofErerciler ondr.ffmre Arii"itie.forQYO*IPIP~,C PPISO~I. $5.95 ixom NowEngland Chapter. Paralyzed Veterans ofAmerica. West Roxbvry VA Hor~lal.Wprl Roxbury, Morrachur~ttr02132.spinal cod n V U I for~atiena~ ~and Their Fomirter. $2.50 from ihsDepanmonl of Public Relations. Nonh~ueriem M~monal Hospital, 250 EastSuparior Sneet. Chicago. lllinoii 60611.Employment O~ponunili~rfor theSpinal Cod lnjvred Person. Praparingyovrr~ll to Go to Work. Editsd byThomas R Shuorler and Richard JMcCauley. $I hom National ParaplegiaFoundation. 333 N. Michigan Av.""~.Chicago, lll!noii60601. 23 pager.1977. This pamphlet rhould be rrquiradraadmg for ipna1 cord injured and a11whodeal with them. Awealth ofinformalion and rewUrcPr. Ageatbargain!How toToke CoreofYovr Skin. ByJ~mas Smilthamp. Excsllsnt S-~agasummary of daily routine25 and curhionl.m*trprrer. and 0th~~equipman, "%edfor provention of prssrure rare.. $1ham National Paraoleaia . - Foundahon333 N0"h Michisan Au.""~, Chicago.lllinoii 60601. Ark for list of NPFZ otherPhyriml Medicine and R~hobililnlionApproaches in Splnol Cord injury.Edihd by John G. Cull and Richard E.Hardy vanrty ofprof~srional ronhib~utorr roverpsychothsrapsutir, uaalional.end other asports oi SCI. $15.50from Charles C Thomas, Publiihrr,301~327 E Lawanca Ausnue. 5p6ngfield,lllinolr 62717.sports andRerreationRadio camp, run by thMinn.rotasocirty for crippled child.^" andAdults, o11s.i a week in the rumm~, ofinipnr. study for a "ham" licsns. or .nupgrad* la a higher i1aii. Informalionham Courage HANOI-HAM iystsm.3915 Golden Valley Road. GoldenValley, Mmnaiola 55422.Wheelchair Square Dancing lnrhudionr.Availabla on a 30~minufo carrmffe lor $3horn Colorado Whaaleir. 525 MeadowlarkDriue. Lakcuoad. Colorado 80226.peo~le all aver the world - NowLealand. Pupria Rice, Canada, and allover this covntry. . . I hawe de"*lop%dsome new gam.r. We haus one ,ha,blind children really ioua . . The RS,us, B'YS us tax-rxemCilstur so wa ranOutward Bound School. Dunng thervmmrr monfhr. lo~dav rovrror unll"< . 8. car,, v.+ , ,..,... :..,, ,', 8, ,,a. ,.,>, ,,. :,,,'W :,,... '"'I 1 ,,., ,,np ,,..,,, 1," . t . ; . , . 8,. .. , , I I.,rourr. Brarhur.r from Ray Ulorh.Prollcl centre Dire
v -..- ilenI. nmn, -w.,, ." Ni ...-.=,. Fsik N nn Hemniiialtsrii~~ rn4 Trrnrnlrnfrtimn Visits and Exchanoar - . &? D~ors~t Snept.England/Canada, and Ea,~tCoarf lnc. 505 Northem Bouleuaid. Graat London WIH 3FN. Engiand in lor ma^Requesthorn Barbara and Judd Jacob Neck. Nzw Ynik 11021 tion onnavelandsxrhangssfordisablad.mn. Flying Wheels Tours. Box 382.Owatonna. Minnesota 55060. Judd, a Acres Trouel Aiiporm. 20 ~agei. Lists New English lravel service run by andquad, has arrangemantr for '78 world accerrtbiilly fraiarer of Wort terminal. for disablad parsons: LibPny Travelwide tours by air and crii~~14ueonaround the world FTP~ ham c ~ ~ ~ seruire. ~ ~ 8SI D ~ilor I Coun, ~ ane~oad.Elizabrlh 21. Infnrmation ConSer. Dapl 619-F. Eoiing, London. WIS. England.Pueblo, Colorado 81001.Arm88 Lo the World A travel guide forVeteransIhedirabl~d. By Louisa Wsirr h7 95. DisabledCamperr Club. 28. Coot.Chatham Square Praia. 40 8roadway. Road. Berleyhrnth. Kent. DA 74PR." , ~ ~ ~ ~ ~ ~ ~ ~ ~ ~23rd noor. NEW Yoii. NY 10013. England.Piorident'r Commieas on Employment;y,";H' WE'hinmon' DCDimly.. WoridWidd for the iroueling Mobility IntomaUonal. A. Lumley. Erq..Pohenl. Nalionai A.railalron of Pailants Thc Cenhal Burpau for Educai#onalChina's Peregrinating <strong>Polio</strong> Priestby Ron DicksonUnlike the blind man on the corner who sang the BealeSheet Bluer. the newr man on the corner in Malflnez,California, didn't sing much. And his problem war cere~bra1 palsy. Or so Bob Ronald rurpectr. lookingbackon hischildhood from a few decades and thcee continenti later.aHer a heao . of exaerience . wlh the halt and the lame.At the time, though. Bob was only aware ,ha, the newrdealer war different, as a schoolmate wlth a flail foot wardffferent. or as a dog wlth floppy ears may be dlfforant*om the run~ofMhe~kennel mun: Only ar one mew up. itseems, did one learn to discriminate, pity, or be.mbanarrrd by the handicapped.When Bob mew up. he had decided lo study for thepriesthood. a decision motivated in pa* by a desire tohelp people. although he never dreamt that it would be aparticular kind d help for aparflcularmoup of people in aparticular remote part of the world.The area came first. when the Jesuit$ rent him toTaiwan. Cllina. Here he senled dawn for a two-yearintensive program of marierlng the language.Hsr studies were half through and he couid cany on arimple conversalion in Chinere - talk about the louryweather, for example - when, in the steamy summer of1958. Bobtook a wee& vacation. One lazy morning. hewoke up with a sore back. Tho roreneii perrisked for acouple of days.Then his leg buckled under hlm - maybe he'd stained1978/VOLUME XXIa muscle That nlght after dinner. he couldn't get up.They discovered it was polio altar they got him to thohospital, where he stayed for a month. For thoroughtreatment. the Jesuits had him ilown back to the US.If war in San Francisco. California, not far hom home.that therapy started on his affected murclzr land inSan Jore thaf it continued) - both legs, both arms. oneshoulder, back. abdomen. chert and assorted mhor rpotr.And It war in San Jore that tho March of Dimer took overand whisked him OH to Warm Springs, Georgia, for thefull presidential treatment.Over a year later, he got back toTaiwan and picked upwhere he'd left of!. with modifications: a wheelchair and aremodeled room for sleeping quarleri. There was moreChinese study, then a transfer to the Phiiippiner fortheological lraininq.In the Phiiippiner, there war a major change in hisawareness and his life when he met a Sister Baerlr fromBelgium She helped the sick and especially the phy~icallydsrahled, running a sort of one~woman counreillng andrci>abilitatitlon service. Though he himself wnr in a wheelchar.Bob for the lirrl time realired how much thedisabled needed: physical rehabilitation. help wilh pry^rhological, rpiniual. uocaiional, housing. and otherproblems - prabiemr that seemed to have beenautomahcaily laken care d for h~m. fsirrer Baeni'acriuitier. incidentally, have since expanded to includea7
ihoushg for the disabled in and near Manila, including aprojected "House Without Stepr," where thelr familler willlive wlrh the handicapped in a communiy of conayui.1Realizing that his awn disability would be a bigadvantage in rehiditation work (the disabled would feelthat he'd been that route himreil, understood ,hearproblemr, and really knew what he war calking aboutwhen he gave praclical adulcsi. Bob datermined tobecome a rehabilitation counre11or.He needed training. in techniques and goals Butwhere? He flew back to the US., hilowing up corre~rpondence and queries.In California, he talked to a school official who,sdvlrir>g that "there's no better place for you than iheUniversity of ~rizona." picked up the telephone and putthrough a call to his old classmate in Tucson: in threeminutes. Bob war admlned to Amona's rehabilltationcaunrelling pragam.Acouple of yeais later. he war back in Taiwan. pumnghir naming to use as a lulltime rehabilitation counrelior atVeterans General Horpltal (such oxka~Ordornary employment8s poisibie in the Order ot Jesuits). This horpital.with the best staff and equipment in the country forrehabiiiialion purposes, war less than iive minuter away,via powered wheelchair, from Bob's holne and church.Ar the years wheeled by. Bnb realized he war servinglargely an eld~rly clientele - rhoke uichms. lor the mostpar,. But he war not reaching many young adults whoseneeds - vocational. reiideni~al, prychologicrl, social -were oreater. Where had all the notentill flowerr ofsociety gone?The answer lay. in PM, in the f.miiy~oriented Chinesesocial structure: la". ra to roeak, in the back bedroom ofthe home. where tho disablsd person war cared for.sheltered from the shocks of normal life, and the publicview. To lemn how to help hlm, one had to learn moreabout the 3ocial context. A piamcal approach fa understandingsome of his problems war to take nduclntage ofthe huipital rituation: Bob war to run survey5 amongpatients. abi.~bodled. and horpitai psrsonn~l ol ail agesand rexer to discover what blocks. what opsn,ngr, whatdetours existed on the road to rehabilitation in . lradltionthousands of years old, a tradition lllat was beingassaulted by werisrn Lev8 and buhble~gum cuitvre.In 1972 came a chance to roe how other counb-isr weredoing, when Bob flew to the 12th World Congress of re^habilitation international, meeting that year in Sydney,Australia. He got Down Under a week emlyfor an arroclbated raminar on vocatbnai rehabilitation in Adelaide. Andhe flew over the Outback and beyond later, reaching theIndian Ocean at Pe*h and caning. en route, a mitical eyeupon Australia'. rehabilitation facilitier.HIS reaction to Auriralia?,-A good place to b. rick."But the same war not hue of other placer. Beforegoing back to Taiwan. Bob made the Grand and NotsoGrand Tour of Aria. viaitlng the Philippines lagaini,Malaysia. Indonesia. Vietnam. Cambodia. Thailand.18Japan: rieeping in cities lhke Singapore. Kuala Lumpur.Jakarta. Saigon. Phnom Penh. Bangkok in hostels,lhn$eli. monarterier. homer of friends of acquaintancesmade in Australia; riding it, planes. wins, buses linciud~ing one fascinating 16~houride through ihe Indonesiancounirysidel. taxis: tollowing an international network ofchurch and rei,abilitation people that spread to relatives.friends, assooated vocations, i"Now, when you get toBangkok, call $his number and ask for Eric: hlr brotherin~lawir an orthopedic surgeon ~8th the dghf connections,might even put you up far the nigh,. wouldcertainly invite you to dinner. . . ."I And surviving adventuresiike bemy off~loaded aker midnlghf in a strangetown in. rbange land, where there war nobody to meethim and nobody woke English or understandableChinese.Every counhy, it seemed, had a showcase rehabilitalionhosptlal, with tramed personnel and gleaming equip^ment. One hospital. And teeming milllonr of people.,many of whom had never seen a doctor or even a ciy.Arla war not a good place fo be sick, unless you lived inthe ilght place and knew the right people. The problemswere lust Do great, but everywhere Bob met dsdlcafaddoctorr. thorapirtr, nuirer. caunrellorr, and ofher healthworkers f#ghfing against pestilence, apathy, and over^population.He returned. refreshed and with new idear, newfriendi, and new armciationr. to his own probirms inTaiwan. il war only when he liad me, Sister Baanr In thePhilippiner that he had become aware that the dxrabledneeded help: now. he reaiaed, what they really neededwar a cilallce to help fl?emsel"ei.Togive them this chance, one step would be to lam aclub or organization, run on very informal liner, whereyoung aduilr could meet, roc~aiirc. develop ipltconLdsnce, have contact with the outride worid, even getleads and advice on getting ,obi and developing a life,perhaps a home. independenl of the ovorprotedivefamily The goal would not be to disrupt the familyREHABILITATION GAZETTE
3rt.m. but to help the &kd p m k m a a then, shandd on the bl& Dakota plains, there w eduolvd memha of tha tamfly rsfhet than s burden dkmalpr - M the b e of the atas d C bXOpermn DeHmdI*." wb.% Cht- ngma is DudBed, whhw 8vq Skier was dwbled in me uray orba.ad upon a bkW tthd tbanslebs roughly as "help anotha. there war n g h m - Bke a boat hb are-d~Lvfelf to a bDtfm Ute" IsporaUDn ma strapP), wwar Manhattan. and the bl nnoIdgn*t of autumn =&a-in 1973, wW a full4mo abl&+h?d &cbx The in NnaEndand, sod- wee s u m - Uke the bmeChinerp m e hss the &W bvw Bob wanted He when Bob ohow ahad to Washinaton U C forvlmsd hn own pcb noi as &Ming but ~nabUng him to acromm"i*"o., at ; Wm,onhurst WablWlmom, 3ddh+Others help th.melaesfled ntm.wdl ol ''Hobon Ftonnld, hum Taiuan." and uprThaae dayr. Bob d a d to s l around, wth a urrnwl u~tis 'IlrUu. W lhml n Farhrv Pad - kvcxt h 0 d exha d#mands rm bL time He worked sut an rilww "mnsPmontuntha~ drimmd b mifernif Utm alter- WhpnBab aM bwktoTdwan. Gpe@m&Handitqnated rn drlvlng Bobwhdwvm he needed to =ww llnchins shead, on outdw, whpelchaks, enthuOne Mt, roming home lee ffum a meeilng, the wde wm, and a carp* of fatadation *is &t d thewas dnv~ng H ww ha lmt &va When rho pulled latts ern hdp lphnane a new h- bm (8ab ha$ foundaround a eunrem the mad, she was cothmed with two the gmund floor ol a buibJmg new vnder conrrmchon.IBtd of headUsMr be- d m on her at haJh d She whrrh can be m a to rut and whW, ~s handilywas k W Imlantly when a huck. -ng on the nave. RUdle.> wll bL3 Ill p IY.nr Oylsmashed ulto Bob's carAlrad,, lllrvv 0th- cine. haw dtnooa, "ushoolrAnd Bob? - bdth kg &MU& a hand smashed, that are rpit.uflng in,,, ,nds,,enbn, yrouth ,I r H,i"d,"Wemsl hllurie TheefoUowad &ht drrary mntha ar a branch, for example, nas w@@d 15 uharlcharrsmfkpatkot in the hosplhl whore ha wrkd But ha knew tha AI>O nvrd fhet.cl>, and br h&d 3 -1e fmd jokstaff. end even from hhbd he~ould ham other$, keep in Reioro tile fyploun se-0 r d y qul under war lhlrtouch uMh hl. job and with Cwz&on DaHandrcap, and wm. Operanon DaHsndicap stad wwzthlngunprecegatsoma $taw4 wrlr dmedented a-p out fo. the handicapped, many dwhomHe had- hoplm O get back to the Statas fdr more bad never rpent a Wht oumde d heme a hmpha)8th. then, when ha was =I-d irom the ho@d Bu-uerechartsled and a padr of Cub Soouis enl4tedhfe was a chance to kave edkv and gst home to to he+ uMh taglw two and saounglng filevDod andLMfmnia in ameto haw Chrm- wXh hlr moth= amng P*, and over 2W hbtd to& OK on theirBut there uas an unexpedd (though not ""wdcome)--deby The Wvemmenr announcad fhai Bob waa one of The campgmlmd, U turned out. was near a d t wthe few who had b n denied to WEB~UB the mual Hou cam^ Some off dvty 4d~ez= wandered ovato 6w whatRen Hou Xhr ("God Man. God We&
. , ,. ,,. .In eddlllion lo ihe I P ~ ~ ~ N NI, .: ".&ailable Back lsslles ~ = ~ ~ ~ ~ ~ f ~ = ~ ~ ~ d ~ d ~ ~ e ~ ~ d l ~llsbd below. onthe cent@" Iint :-.' ',:$: 1I ' *iobmlniw htghudumuon. wnhs or emplwment, nulauofbahdj ,.-..*om- m,, $3fmm2brdiabM rprarpralin&msl. endexrrrmrharn mammdihe wor(dxrW@mn$5bm**.w"-disbkd m.I..1 :. t.7 .iI ._ - .'. .,. .. .. . . . . . .. .. .Lln~~mmsnlE.ynnrr~d oud, W r l ,973 Vol M. -s8(.m.,dMN.r- r'8-r , rm,?.av, *mmq u,r nnll*dla bbiwapt,d.n V.M.!el* naxe onn.o.mMvrnMvrn. *m Lhr .~.dul.nnu.mmw, D.rnrn"nica,on.