2011 NBCC Conference Program - National Breast Cancer Coalition

ScheduleSaturday, April 30Day One:Sunday, May 1Day Two:Monday, May 2Day Three:Tuesday, May 3Day Four:10:00am – 6:00pmRegistration7:00am – 6:00pmRegistration7:00am – 6:00pmRegistration7:00am – 6:00pmNBCC Annual Lobby Day10:00am – 6:30pm11:00am – 12:30pm12:45pm – 1:45pmExhibit Hall, Silent Auction& Regency Foyer ExhibitsLobby Day BriefingFirst Time AttendeeOrientation7:00am – 6:30pm7:00am – 8:00am8:00am – 8:15amExhibit Hall, Silent Auction& Regency Foyer ExhibitsContinental BreakfastMoment of Silence;Announcements7:00am – 12:15pm7:00am – 8:00am7:00am – 8:00amExhibit Hall, Silent Auction& Regency Foyer ExhibitsContinental BreakfastProject LEAD®Networking Breakfast7:30am – 8:30am9:00am – 4:30pm4:30pm – 6:00pmLobby Day BriefingCongressional VisitsCongressional AwardsReception2:00pm – 3:00pm3:30pm – 3:45pm3:45pm – 5:15pm6:30pm – 9:30pmEmerging LeadersMeet-UpAnnual AdvocacyTraining Conference Opens;Moment of Silence;AnnouncementsPlenary Session:What’s New InBreast Cancer?Women with Balls®:Strike! Breast CancerAnnual AdvocateChallenge8:15am – 9:00am9:00am – 10:30am10:30am – 10:45am BreakPlenary Session:Breast Cancer Deadline2020®: How will We Makeit Happen?Plenary Session:The War on Cancer Failed.How will Breast CancerDeadline 2020® Succeed?10:45am – 12:15pm Workshop Session #112:15pm – 1:45pm1:45pm – 2:00pmAnnual MembershipMeeting LuncheonBreak2:00pm – 3:30pm Workshop Session #23:30pm – 3:45pm3:45pm – 5:15pmBreakPlenary Session:Changing the Conversationand the Outcomes:Models of Innovation8:00am – 8:15am8:15am – 10:00am10:00am – 10:15am BreakMoment of Silence;AnnouncementsPlenary Session:Getting the ConversationStarted: Preventionand Metastasis10:15am – 11:45am Plenary Session:Changing the Conversationon Breast CancerPublic Policy11:45am – 12:15pm Break11:45am – 12:15pm Meet the NBCCBoard of Directors12:15pm – 2:00pm2:00pm – 2:15pmAnnual AdvocacyConference LuncheonBreak2:15pm – 3:45pm Workshop Session #33:00pm – 6:00pm3:45pm – 4:00pm4:00pm – 6:00pmExhibit Hall, Silent Auction& Regency Foyer ExhibitsBreakLobby Day StateDelegation MeetingsLobby DayBriefingsMandatory for participation in NBCC’s Annual Lobby DaySaturday, April 30, 11:00am – 12:30pmWashington RoomTuesday, May 3, 7:30am – 8:30amRegency E/F RoomAll attendees planning to participate in NBCC’sAnnual Lobby Day on Capitol Hill must attend aLobby Day Briefing. Attend our Saturday or Tuesdaybriefing to receive the appropriate information onNBCC’s legislative priorities and lobbying strategies,to most effectively lobby your Member of Congress.7:00pm – 9:30pmAnnual ConferenceReception5

SpecialFirst-Time Attendee OrientationSaturday, April 30, 12:45pm – 1:45pm • Washington RoomLed by NBCC board members and veteran advocates,this session will help first-time attendees navigate theconference program and get the very most out of themany opportunities presented at the conference. Specialattention will be given to key plenary sessions, first-timeattendee workshops and special events, as well as aspecial welcome to our International attendees.Tuesday, May 3, 7:00am – 6:00pmLobbyYou’ll see why NBCC’s public policy advocacy is an important part of Breast Cancer Deadline 2020®when you and otheradvocates from your state put your newly learned skills into action.On Lobby Day, you will meet with Members of yourCongressional delegation to:• Lobby for NBCC’s top legislative priorities• Help shape the national breast cancer research agenda• Expand the influence of breast cancer advocates inresearch, health care and public policyEmerging Leaders Meet-UpSaturday, April 30, 2:00pm – 3:00pm • Tidewater RoomGather to celebrate the growing strength of NBCC’sEmerging Leaders programs (for young adults 18-35).Meet one another, get a brief introduction to the currentEmerging Leaders programs and learn how you can stayconnected both during the conference and beyond asyou add your skills and commitment to ending breastcancer by January 1, 2020.Women with Balls®:STRIKE! Breast Cancer6 th Annual Advocate ChallengeA party in the fast lane!Saturday, April 306:30pm – 9:30pmLucky Strike Lanes701 7 th Street NWWashington, DCA highlight of our Annual Advocacy Training Conference,this fundraiser is an excellent way to enlist your friends andfamily to support NBCC programs. And yes, there is still timeto sign up! Visit the Membership Booth in the Exhibit Hall by3:30pm on April 30 th to complete your registration!ENTRY FEEBowlers - Show us what you’ve got! Raise a minimum of$500. Bowl, eat, drink and compete for prizes.Cheerleaders - Raise a minimum of $250. We’ll spareyou the bowling. Eat, drink and compete for the BestCheerleader prize.Women With Balls ® T-shirt provided.Networking Breakfastfor Project LEAD® GraduatesMonday, May 2, 7:00am – 8:00am • Washington Room(For Project LEAD graduates only)Join your fellow LEAD graduates to meet and discuss thecoming year’s activities towards achieving Breast CancerDeadline 2020®. Bring your ideas on how to lead effortsto change the conversation in the scientific and researchworlds.Meet the NBCC Board of DirectorsMonday, May 2, 11:45am – 12:15pm • Washington Room AAttend this event to receive more information on theorganizations that make up NBCC’s Board of Directors, andhow your organization could potentially join the Board.Annual Conference ReceptionMonday, May 2, 7:00pm– 9:30pm • Regency BallroomCome ready to party and dance it up with old and newfriends. Music, cocktails and hors d’oeuvres providea fantastic setting to relax, enjoy and prepare for thefollowing day on Capitol Hill.Annual Silent AuctionSaturday, April 30 – Monday, May 2 • Potomac Room(available during exhibit hall hours)Join us in the Exhibit Hall for the Silent Auction: jewelry,travel, art, gift certificates and more! Proceeds supportNBCC programs.Luggage Drop Off7:00am – 10:00am • Tidewater RoomIf you need to have your luggage transported to theUnited Methodist Building (1 Maryland Avenue—entrance faces U.S. Capitol on First St.), take it to theTidewater Room of the Hyatt Regency Crystal City Hotelfor valet transport. You must transport your luggageyourself if you need your luggage before 12:30pm.Lobby Day Briefing(Required for any advocate participating in NBCC’s Lobby Day whomissed the Saturday, April 30, 11:00 am briefing)7:30am – 8:30am • Regency E/F RoomAttend this briefing to receive information about NBCC’slegislative priorities and our Lobby Day strategy.Buses Depart for Capitol Hill7:45am – 9:00am • Hyatt Lobby EntranceStarting at 7:45 am, buses will take Lobby Day participantsfrom the hotel to Capitol Hill. The Capitol Hill drop offlocation is the Lutheran Church of the Reformation*(see map in your welcome bag) located at 212 EastCapitol Street. NBCC has reserved the Parish Hall in theLutheran Church for the entire day, 8:30am – 4:30pm. Alight breakfast, lunch and refreshments will be availablethroughout the day. *Our use of space at Lutheran Church of theReformation does not indicate endorsement or sponsorship by the church.Congressional Visits9:00am – 4:30pm • Capitol HillNBCC advocates meet with Members of Congress!Luggage Transport12:30pm – 6:15pm • United Methodist BuildingIf you’ve taken your luggage to the NBCC valet service(Tidewater Room at the Hyatt Regency Crystal City Hotel),NBCC will transport your luggage to the United MethodistBuilding. All luggage must be picked up by 6:15pm.Congressional Awards Reception4:30pm – 6:00pm • Kennedy Caucus Room 325Russell Senate BuildingPlease join NBCC to honor members of Congress who worktirelessly with us in the mission to end breast cancer.Buses Return to Hyatt Hotel6:00pm (or immediately following reception)Buses will depart from Peace Circle located on the west sideof the U.S. Capitol.7

Center for NBCC Advocacy TrainingAdvocacy Development • Education and Training • Leadership in ActionThe Center for NBCC Advocacy Training offers premier, intensivetraining in the science of breast cancer to prepare breast canceractivists to work effectivly to achieve Breast Cancer Deadline2020® in the mission to eradicate breast cancer!Beginner or seasoned advocate, there are training programs foreveryone! Our highlights include:Project LEAD® Series• Project LEAD Introductory Workshop• Project LEAD Institute• Quality Care Project LEAD• Clinical Trials Project LEAD• International Project LEADPublic Policy, Advanced Science& Continuing Education• Team Leader Training• Emerging Leader Program• Advanced Topics at Scientific Conferences• LEADcasts• LEADgrads Online• Beyond Borders Breast Cancer ProgramNBCC’s organizational mandate is to train and develop a strong,knowledgeable, nationwide network of breast cancer advocates.Sign up for a course today to develop your advocacy skills, receiveeducation and training and take your advocacy into action.Visit the Center for NBCC Advocacy Training booth in the RegencyFoyer to learn how to get involved. Apply for the Project LEADInstitute taking place July 17 – 22, 2011! Deadline is May 20!PlenaryAll Plenary Sessions will take place in the Regency BallroomSaturday, April 30What’s New in Breast Cancer?3:45pm – 5:15pmHear the perspectives of the major stakeholders in research,industry, public policy and advocacy on advances in breastcancer in recent years.Moderator: Abigail Trafford, Former Health Editor, TheWashington PostPanelists: Frank Calzone, PhD, Amgen Inc.; Susan Love,MD, MBA, FACS, The Dr. Susan Love Foundation; Joy Simha,Young Survival Coalition; Danny Welch, PhD, University ofKansas Cancer CenterSunday, May 1Breast Cancer Deadline 2020®:How Will We Make It Happen?8:15am – 9:00amA discussion on the motivation and strategic plan of actionfor implementing NBCC’s Breast Cancer Deadline 2020®:An End to Breast Cancer by January 1, 2020.Speaker: Frances Visco, JD, President, NBCCThe War on Cancer Failed.How Will Breast Cancer Deadline2020® Succeed?9:00am – 10:30amA controversial session that will examine questions such as:What have been the barriers to ending breast cancer? Whyhas breast cancer been so difficult to study? Will BreastCancer Deadline 2020® succeed where other initiativeshave failed?Moderator: Merrill Goozner, MS, The Fiscal TimesPanelists: Sharon Begley, Journalist; Shirley Brown, MS,JD, Women of Color Breast Cancer Survivor’s Support Group;William Redd, PhD, Mount Sinai School of Medicine; DennisSlamon, MD, PhD, UCLA Jonsson Comprehensive CancerCenterSunday, May 1 (continued...)Changing the Conversation andthe Outcomes: Models of Innovation3:45pm – 5:15pmAn examination of innovation, how new ideas are bornand how impossible projects succeed in fields outside of cancer.Hear from innovation theorists, future-oriented science experts,and others on how to challenge the status quo and succeed.Moderator: Gary Schwitzer, HealthNewsReview.orgPanelists: Paul Davies, PhD, Arizona State University; JonMogford, PhD, DARPA Defense Sciences Office; Laura Nikolaides,MS, Director of Research and Quality Care, NBCCMonday, May 2Getting the Conversation Started:Prevention and Metastasis8:15am – 10:00amIn order to achieve Breast Cancer Deadline 2020®, NBCCis focusing resources and attention on: understanding howto prevent the disease from developing and understandingthe causes and prevention of metastasis. What is the status ofresearch in these domains? What needs to change to accelerateprogress? What is happening to create change?Moderator: Sandra Millon Underwood, RN, PhD, University ofWisconsin-MilwaukeePanelists: Leslie Bernstein, PhD, City of Hope; Julia Brody, PhD,Silent Spring Institute; Patricia Haugen, NBCC South DakotaField Coordinator; Peter P. Lee, MD, Stanford University; PatriciaSteeg, PhD, National Cancer Institute, National Institutes ofHealthChanging the Conversationon Breast Cancer Public Policy10:15am – 11:45amCurrently, there is a perceived lack of bipartisan conversationin Washington and across the country on important nationalissues such as health care. Is this lack of bipartisanship real, andif so, what factors have led us to this point? What can be doneto change this situation and move forward toward innovativesolutions to the problems facing our nation?Moderator: Shannon Brownlee, MS, New America FoundationPanelists: Michele Rakoff, CABCO; Dotty Lynch, Lynch Research;Gail Wilensky, PhD, Project HOPE; Maria Echaveste, JD, NVG, LLC

WorkshopsSunday, May 110:45am – 12:15pmSession #1:Workshops for "How to ChangeSystems Towards the Goal of EndingBreast Cancer in 2020"Systems Change TheoryLincoln RoomExamine the key components of research and politicalsystems. Learn about change theory, tipping points, howchange is best created and how to identify leverage factors.Moderator: Deb Aruta, SHARE, Young Survival CoalitionSpeaker: Kayla Kirsch, MS, Leapfrog ConsultingBreast Cancer Deadline 2020®LegislationJefferson RoomLearn about the role the federal government is being askedto play in meeting the goal of Breast Cancer Deadline2020®, hear the background and details of the legislation aswell as the next steps it will have to take in its journey tobecome a law.Moderator: Lisa Foster, NVG, LLCSpeaker: Dana Richter, JD, NBCCWorkshops for "Critical ThinkingSkills Around Breast Cancer Scienceand Research"Breast Cancer Treatment:New and Emerging TherapiesWashington Room BUnderstand the biologic mechanisms and explore theevidence substantiating the effectiveness of many classesof drugs and targeted therapies used in breast cancertreatment, with an emphasis on mechanisms active inprevention and recurrence.Moderator: Judi Hirshfield-Bartek, RN, MS, OCN, DanaFarber Cancer InstituteSpeakers: Sara Hurvitz, MD, Division of Hematology-Oncology, UCLA; Susan Troyan, MD, Dana Farber/Brighamand Women's HospitalObesity, Lifestyle Factorsand Breast CancerTidewater RoomA review of research pointing to obesity as a factor in inferioroutcomes for disease free and overall survival, particularly forwomen with hormone receptor positive breast cancer. Otherlifestyle issues such as exercise and diet will be discussed.Moderator: Ann Fonfa, Annie Appleseed ProjectSpeaker: Leslie Bernstein, PhD, City of HopeBreast Cancer is Not One Disease(First Time Attendees)Washington Room AWhat really distinguishes the different types of breast cancer?Come learn about the tumor biology of breast cancer andhow it affects research, prevention and treatment.Moderator: Sherry Goldman, RN, NP, MSN, Revlon/UCLABreast Cancer CenterSpeaker: Susan Love, MD, MBA, FACS, The Dr. Susan LoveResearch FoundationBreast Cancer Prophylactic Vaccine:An UpdateFairfax RoomAn effort galvanized by NBCC, the Artemis Project®, is taskedwith developing and implementing a strategic plan for apreventive breast cancer vaccine. Hear an update on theplanning process among scientists and advocates to have avaccine ready for clinical trials within five years.Moderator: Susie Brain, BSc, Breast Cancer ConnectionsSpeakers: Peter Lee, PhD, Stanford University; DebbieLaxague, RNC, Bossom Buddies Inc.Theories on Metastasis:Innovative Thinking (LEAD only)Arlington RoomA primary challenge with understanding breast cancermetastasis is being able to pinpoint which tumors willmetastasize. Come hear about several theories and conceptssurrounding metastasis, including tumor dormancy, cancerstem cells, and the role of circulating tumor cells in tumorself-seeding.Moderator: Sandy Walsh, California Breast CancerOrganizationsSpeakers: Musa Mayer, MS, MFA, AdvancedBC.org; PatriciaSteeg, PhD, National Cancer Institute, National Institutes ofHealthRethinking Methodology of BreastCancer Trials: How to Get theEvidence Faster (LEAD only)Prince William RoomWithout major changes in the design, analysis, anddissemination of results of clinical trials, the nation willcontinue to spend billions of dollars on research with littleimpact on extending lives and answering the right questionsto achieve NBCC’s Breast Cancer Deadline 2020®. Hear adiscussion of how clinical trials can be improved to get theright questions answered more quickly.Moderator: Deb Madden, Ann's Place: The Home of I CANSpeaker: Jason Conner, PhD, Berry ConsultantsTissue Bank Issues:A Tool for MaximizingResearch in Breast Cancer?Roosevelt RoomExplore how a biorepository of breast tissue andbiospecimens from women without breast cancer can helpresearchers identify and treat cancerous tissue. Hear aboutthe work on tissue banks at the Indiana University CancerCenter and about the role of advocates.Moderator: Virginia Mason, RN, BSN, Inflammatory BreastCancer Research FoundationSpeaker: Susan Clare, MD, PhD, Indiana UniversityHealth Care Reform:One Year LaterConference TheaterReceive an update on how the health care reform lawis benefitting breast cancer survivors, next steps in itsimplementation on the federal and state levels, andchallenges to the law. Learn about the progress being madetowards guaranteeing access to quality health care for all.Moderator: Michele Rakoff, California Breast CancerOrganizationsSpeaker: Andrea Palm, United States Department of Healthand Human ServicesNuts and Bolts of CongressKennedy RoomExplore the basics of how a bill moves through Congress,how the appropriations and budget process works, and howCongressional committees, subcommittees and staff officesare structured.Speakers: Jennifer Berzok, JD, NBCC Women’s HealthConsultant; Joanne Howes, NBCC Women’s HealthConsultantNBCCMembershipBenefitsJoin NBCC today! Just $35 entitles you toa year-long individual membership withNBCC. Benefits of membership include:• Support of advocacy to end breastcancer• Receipt of our Call to Action printnewsletter• Updates on breast cancer researchand legislation• Discounts on Annual ConferenceRegistration• Eligibility to apply for scholarshipsfor all NBCC advocate training events& courses• Email alerts on advocateopportunities• Partnerships with your statewide orlocal advocacy groupVisit the Membership table in the ExhibitHall to become a member today!11

(continued...)WorkshopsBlogging, Tweeting and BeingLinked InArlington RoomCreating Advocacy Networksin Your CommunityConference Theater6th Annual AdvocateChallengeSaturday, April 306:30pm – 9:30pmNBCC thanks everyonewho is participating in thisyear’s Annual AdvocateBowling Challenge! Manyof you have contributedto make this fundraisera great success.But it’s not too late tosign up! Visit the NBCCMembership table insidethe Exhibit Hall by 3:30pmon April 30, to sign up as abowler or cheerleader! Youstill have the opportunity toregister for this event andjoin in the fun!Monday, May 22:15pm – 3:45pmSession #3:Workshops for "Developing the ToolsNeeded to Activate Advocates onBreast Cancer Deadline 2020®"Strategies for Effective LobbyingLincoln RoomGet advice from congressional staff, professional lobbyistsand experienced activists on ‘how to get your foot in thedoor’, handle difficult situations and effectively achievethe goal. Hear highlights of some of NBCC’s past legislativevictories, as well as its current legislative priorities. Explorehow the legislative process really works. (Attend “Nuts andBolts of Congress” prior).Moderator: Jennifer Berzok, JD, NBCC Women’s HealthConsultantSpeaker: TBDChanging the Conversationon Capitol HillWashington Room BFind out how to effectively discuss Breast Cancer Deadline2020® with your members of Congress and their staffs,respond to potential questions they may ask, and keep theconversation going once you have left Washington, DC.Moderator: Dana Richter, JD, NBCCSpeakers: Irene Bueno, JD, NVG, LLC; Marlene McCarthy,HLD, Rhode Island Breast Cancer CoalitionInfluencing the Process: Being anEffective Consumer RepresentativeJefferson RoomFind out about the essential role consumer representativesplay in our health care system, why the role is so vital and howto be an effective participant. Get first hand guidance andadvice from those who have served in this important role.Moderator: Beverly Canin, Breast Cancer OptionsSpeaker: Christine Bechtel, MA, National Partnership forWomen and Families; Joy Simha, Young Survival CoalitionWhether you’re blogging, tweeting or updating your statuson Facebook, being linked in helps affect change—as longas the message is on target. Social media is a catalyzing toolfor all ages and “techKnowledgy” levels that helps changethe conversation. Be part of the shifting conversation onlineabout breast cancer and help us spread the word—breastcancer ends January 1, 2020.Moderator: Courtney Bugler, Young Survival CoalitionSpeakers: Geoff Livingston, Zoetica; Alan Rosenblatt,MA, PhD, Center for American Progress; Gayle Sulik, PhD,University of AlbanyCreating Local Breast CancerDeadline 2020® Action PlansFairfax RoomAchieving the goal of Breast Cancer Deadline 2020®requires national and local action. Learn how to create anaction plan and winning strategies to engage people in yourcommunity in ways that will help us reach our goal.Moderator/Speaker: Kathleen Harris, Wisconsin BreastCancer CoalitionSpeaker: Vernal Branch, Virginia Breast Cancer FoundationChanging the Conversationin the Scientific CommunityWashington Room ADiscussing Breast Cancer Deadline 2020® within thescientific community—among researchers, clinicians,scientific policy makers presents a unique set of challengesfor advocates. But it is essential to be effective at changingthe conversation if we are to move towards accomplishingthe goal of ending breast cancer by 2020. Learn how toinitiate these key dialogues using an evidence-based,systems approach and an advocate perspective.Moderator: Alice Yaker, JD, SHARESpeakers: Molly Mead, EdD, MBA, Amherst College ; DianePalmieri, PhD, National Cancer InstituteChanging the Conversationin the MediaPrince William RoomThe media plays an important role in the way we perceiveimportant issues, including our beliefs, values and traditions.The general public’s perception about breast cancer is thatit’s something we need to dress up in pink every October.It’s time to reframe the debate. Learn the powerful role youcan play in reframing the conversation about breast cancerin the media.Moderator: Ivis Febus-Sampayo, Latina SHARESpeaker: Peggy Davies, Media RelationsBreast Cancer Deadline 2020® is a call to action andengagement by everyone dedicated to ending the disease.Learn how to organize and mobilize locally around thiscommon purpose. Gain knowledge, advocacy strategiesand organizing skills required to change the conversationand move individuals and groups to action towards the goalof ending breast cancer by January 1, 2020.Moderator: Sharon Ford Watkins, MSW, NBCCSpeakers: Christine Norton, MA, Minnesota Breast CancerCoalition; Kathy Zeitz, JD, Bossom Buddies Inc.From Campus to Congress:Learning to be Effective BreastCancer AdvocatesRoosevelt RoomLearn about two NBCC Emerging Leaders programs,the College Initiative and College Ambassadors, both ofwhich further the goals of Breast Cancer Deadline 2020®while giving college students a unique, challenging andmeaningful learning experience. Get a broad overview ofthese exciting programs with time to ask about the nuts andbolts as you are interested. Learn how you can start and/orparticipate in these programs on your campus.Moderator: Kathryn Johnson, NBCCSpeakers: Jessica Henderson, PhD, Western OregonUniversity; Shira Sternberg, NBCC Emerging LeaderRaising Change: Funding BreastCancer Deadline 2020®Kennedy RoomCombine your skills as a breast cancer advocate with thecompelling story of NBCC’s deadline to end breast cancer andhelp raise funding for the important Breast Cancer Deadline2020® programs. If you believe in Breast Cancer Deadline2020®, then you can be a fundraiser. We’ll give you the toolsand show you how.Moderator: Karen Poliseno, C.A.R.E. AdvocatesSpeaker: Chris Stacey, Sapphire Consulting17

BiosDeb Aruta is a breast cancer survivor and advocate. Shecurrently works as a Program and Advocacy Consultant atSHARE, Self Help for Women with Breast or Ovarian Cancer.She also collaborates, advocates and volunteers with theYoung Survival Coalition. She is a graduate of NBCC'sProject LEAD® Institute and Clinical Trials Project LEAD®.Kathleen Ball, RN is an 18-year breast cancer survivor anda past-president of the Breast Cancer Alliance of GreaterCincinnati (BCA). She represents BCA on NBCC’s Board ofDirectors. Kathleen is a Project LEAD® graduate, an NBCCTeam Leader, a consumer reviewer and mentor for theDepartment of Defense Breast Cancer Research Program,and an advocate advisor for the NIH-funded Breast Cancerand the Environment Research Center at the University ofCincinnati.Christine Bechtel, MA is the Vice President of the NationalPartnership for Women & Families, a non-profit consumeradvocacy organization based in Washington DC. She alsoserves on the federal Health IT Policy Committee. Bechtelwas previously Vice President of the eHealth Initiative (eHI),where she led the organization’s membership, public policyand government relations work. She has worked withthe American Health Quality Association and LouisianaHealth Care Review, now eQHealth Solutions, a MedicareQuality Improvement Organization (QIO). She was a SeniorResearch Advisor at AARP, and began her career as aLegislative Associate for United States Senator Barbara A.Mikulski (D-MD).Sharon Begley was the science columnist and scienceeditor of Newsweek from 2007 to April 2011, and is nowa contributing writer at the magazine, where she hascovered genetics, oncology, neuroscience, astronomy,physics, cosmology, science policy, and climate andother sciences. From 2002 to 2007 she was the sciencecolumnist at The Wall Street Journal, writing ScienceJournal. She is the author of the 2007 book, Train YourMind, Change Your Brain.Leslie Bernstein, PhD is Professor and Director of theDivision of Cancer Etiology within the Department ofPopulation Sciences and Dean for Faculty Affairs at theCity of Hope National Medical Center/Beckman ResearchInstitute. An internationally‐recognized epidemiologist,she has focused her research primarily on breast cancer,seeking to identify modifiable lifestyle factors that willreduce breast cancer incidence and extend breast cancersurvival, and to investigate the long‐term chronic diseasesequel of therapeutic regimens for breast cancer.Jennifer Berzok, JD is currently a government relationsconsultant to the National Breast Cancer Coalition (since2005). Prior to consulting for NBCC, Ms. Berzok was theGovernment Relations Director at the BiotechnologyIndustry Organization (BIO), and from 1998-2003 shewas the Deputy Director of Government Relationsat NBCC. Ms. Berzok has worked on Capitol Hill as aLegislative Assistant to Congressman Sherrod Brown (D-OH) handling energy and commerce issues. She receiveda BA from the University of Michigan and a JD in 1995from American University. Ms. Berzok is a member of theDC and MD Bars.Jean-Claude Bradley, PhD is an Associate Professorof Chemistry and an E-Learning Coordinator for theCollege of Arts and Sciences at Drexel University. Heleads the UsefulChem project, an initiative started inthe summer of 2005 to make the scientific process astransparent as possible. Dr. Bradley coined the termOpen Notebook Science to distinguish this approachfrom other more restricted forms of Open Science. Heteaches undergraduate organic chemistry courses withmost content freely available on public blogs, wikis,games and audio and video podcasts. Dr. Bradley hasa Ph.D. in organic chemistry and has published articlesand obtained patents in the areas of synthetic andmechanistic chemistry, gene therapy, nanotechnologyand scientific knowledge management.Amy Bonoff, BA, MBA is a 14-year breast cancersurvivor. She has been an active member of NBCC sincegraduating from the Project LEAD® Institute in 2007,and furthered her advocate training by completingQuality Care LEAD® and Clinical Trials LEAD® in 2008.She is currently a member of the Agency for HealthcareResearch and Quality’s (AHRQ) Effective HealthcareProgram Stakeholder Group, the Love/Avon Army ofWomen Scientific Advisory Committee, NCCN PatientAdvocate Breast Cancer Panel and the Technical PlanningCommittee for the 2011 Department of Defense Era ofHope Conference. She is also active in SHARE’s ProjectLEAD graduate program and the SHARE Hotline.Susie Brain, BSc is a patient advocate/survivor and agraduate of all three Project LEAD® courses. She hasreviewed grant proposals for DOD and Komen. She is anadvocate with the UCSF Breast Cancer SPORE. She serves onthe Stanford Cancer Center’s Scientific Review Committeeand the Cancer Center’s Survivorship Committee. Inaddition, she is a Helpline Volunteer and Chair of theSurvivorship and Advocacy Task Force at Breast CancerConnections in Palo Alto.Vernal Branch was diagnosed with breast cancer in 1995at age 45, and shortly thereafter began her advocacy withY-ME organization. She is a graduate of each NBCC ProjectLEAD® course and was an advocate mentor for the ProjectLEAD® Institute. She has been an Ad-Hoc member of theDOD Breast Cancer Research Program, a national recruiterfor NIEHS/Sister Study, and a member of NCI/Director’sConsumer Liaison Group. She has also served as an externaladvisor for Duke Cancer Institute, was on the VirginiaCommonwealth University IRB, Vice President of the Boardof Directors at Virginia Breast Cancer Foundation and ona special Joint Health Commission committee to fund thetwo Virginia NCI cancer centers.Julia Brody, PhD is Executive Director of Silent SpringInstitute and Adjunct Assistant professor at BrownUniversity School of Medicine. She conducts research onenvironmental pollution and breast cancer, exposuresto endocrine disruptors, and community engagementin science. Her work has been funded by the NationalScience Foundation and National Institutes of Health, andpublished in peer-reviewed journals such as EnvironmentalHealth Perspectives and Cancer. She serves on the USNational Advisory Environmental Health Sciences Council.Shirley H. Brown, MS, JD is a 17-year cancer survivor,retired educator, licensed educational psychologist, andbreast cancer activist. Ms. Brown is an active memberof the National Association of University Women, LosAngeles Branch, Women Aware, Inc., Jack & Jill of America,Association of California School Administrators, Councilof Black Administrators, and the NAACP. Ms. Brown is agraduate of NBCC’s Project LEAD®, Project LEAD® QualityCare, and Clinical Trials Project LEAD®. Ms. Brown is on theNBCC Board of Directors, where she represents the Womenof Color Breast Cancer Survivors’ Support Project.Irene Bueno, JD is co-founder and partner of NVG, LLC,and a graduate of the University of California, Berkeleyand the Hastings College of Law. Ms. Bueno’s expertise isin developing and implementing legislative, policy, andcommunications strategies. Ms. Bueno, a former officialin the Clinton Administration, was Special Assistant to thePresident in the White House Chief of Staff’s Office and onthe Domestic Policy Council. Prior to this, she was a DeputyAssistant Secretary for Legislation at the U.S. Dept. of Healthand Human Services. She served as a Legislative Assistantto Senator Alan Cranston (D-CA) and Congressman EdwardRoybal (D-CA). Ms. Bueno is a leader in the Asian PacificIslander American community sitting on numerous boardsand committees. She is a consultant on governmentrelations to NBCC.Courtney Bugler is the Executive Director of the AtlantaAffiliate of Young Survival Coalition. She is a graduate of allthree NBCC Project LEAD® courses and is a Team Leader forthe state of Georgia. Courtney is a member of the CancerSurvivor Leadership Council of Georgia, the advocacychair for the Georgia Patient Navigators Association and atrained hotline counselor for Y-Me. Courtney is a graduateof the Harold Freeman Patient Navigation Institute andreviews grants for both the DOD Congressionally DirectedResearch Program and Susan G. Komen for the Cure.SilentAuctionJoin us in the Exhibit Hall for theConference Silent Auction! Jewelry, travel,art, gift certificates and more are offered!And all proceeds support NBCC programs!BiddingSaturday:Sunday:Monday:CheckoutMonday:10:00am – 6:30pm7:00am – 6:30pm7:00am – 12:00pm3:00pm – 6:00pmFrank Calzone, PhD is Scientific Executive Director ofAmgen Hematology and Oncology Research. Dr. Calzonejoined Amgen in 1993 as a founding member of agenomics-based initiative to identify novel human proteintherapeutics. This program uncovered the central role ofosteoprotegerin and RANK signaling in regulating bonedensity. Since 1998 the research in Dr. Calzone’s laboratoryhas focused on the isolation of therapeutic antibodies totreat breast cancer and other malignancies.Beverly Canin is a Project LEAD® graduate and has been amember of NBCC since 2003. Ms. Canin is President of BreastCancer Options, a breast cancer survivor-driven support,education and advocacy organization serving six countiesin the Hudson Valley, NY. She is an active member of theNew York State Breast Cancer Network, as well as the NewYork State Breast Cancer Support and Education Network.She also serves on the New York State Department ofHealth, Health Research Science Board.19

(continued...)BiosSusan Clare, MD, PhD is a laboratory researcher, breastcancer surgeon and tissue banker. Dr. Clare’s laboratory isfocused on two areas of research: 1) drug delivery systemsusing nanoparticles, and 2) the molecular changes in thehealthy human breast as a function of menstrual phase,pregnancy and lactation, and involution and menopause.Her clinical practice is located at the Indiana UniversityHospital and the Wishard (Marion County) Hospital.Jason Connor, PhD is uniquely trained as a biomedicalengineer and a Bayesian biostatistician. He has coauthoredover 50 papers in clinical journals. He recently finished a6-year appointment as an Associate Editor of The AmericanJournal of Gastroenterology and he is an Assistant Professorof Medical Education at the University of Central Florida. Dr.Connor was a Visiting Assistant Professor at Johns HopkinsUniversity Bloomberg School of Public Health in 2010 andwill be there again in 2011 teaching a week-long course inBayesian adaptive design.Paul Davies, PhD is a theoretical physicist, cosmologist,astrobiologist and author. He is Director of the BeyondCenter for Fundamental Concepts in Science and Co-Director of the Cosmology Initiative, both at ArizonaState University. In addition, he is principal investigator atthe Arizona State University Physical Sciences-OncologyCenter whose foremost aim is to rigorously question thecentral tenets of cancer biology and to innovate paradigmshifting tactics that challenge the barriers of contemporarycancer research and treatments. In addition to his research,Davies is a passionate science communicator, and speaksworld-wide to academic, public and media audiences.His 28 popular books have been translated into over 20languages, and are notable for presenting complex ideasin accessible terms.Margaret “Peggy” Davies, BA is a senior publicist forMedia Relations in Minneapolis, MN. A public relationsprofessional for 30+ years, she has directed severalcampaigns recognized by the Minnesota Public RelationsSociety, the Chicago Press Club and the Public RelationsSociety of America. She has placed thousands of storieslocally, nationally and internationally. Peggy is an activeboard member of the Breast Cancer Awareness Associationof Minnesota and volunteers for the Minnesota BreastCancer Coalition, an NBCC board organization.Ivis Febus-Sampayo is Director of the Latina SHAREProgram at SHARE, a self help organization for women withbreast or ovarian cancer. She is a 17-year plus breast cancersurvivor and advocate, is co-founder of the National LatinaBreast Cancer Network meetings, a Board member of theIntercultural Cancer Council, and a member of variouscommunity committees including: Hispanic Federation,Bronx Community Cancer Coalition, and Redes en Accionadvisory council. She is a recipient of NBCC’s advocate ofthe year award, the American Cancer Society’s Hope Award,and the AARP’s 50 th Anniversary – 50 people who make asocial impact award. She has been a presenter at variousconferences, including the Latinas Contra Cancer Summitand the Intercultural Cancer Symposium.Talk withBREAST CANCER DEADLINE 2020 ®Research AdvocatesStop by the Research and Quality tablein the Regency Foyer to meet andtalk to research advocates involved inthe Breast Cancer Deadline 2020®initiatives, including work on the ArtemisProject® and the Strategic Summits.Ann Fonfa, BPS was diagnosed with breast cancer at44, and founded the Annie Appleseed Project to sharebreast cancer information with everyone. Ms. Fonfa is agraduate of Food as Medicine, CancerGuides, Workshopon Evidence-based Healthcare, and is also a graduate ofProject LEAD®. She has reviewed for DOD, CBCRP, AVONand HII.org. Ann attends many scientific meetings andgathers and disseminates information to support therights of consumers to make fully informed decisionsabout natural and conventional therapies.Sharon Ford Watkins, MSW is Field Director at theNational Breast Cancer Coalition where she directs andmanages national public policy advocacy efforts. She hasmore than 25 years experience managing health care andother social service advocacy programs at the local, state,and national levels. Ms. Ford Watkins received her master’sin social work from the University of Pittsburgh andcompleted postgraduate studies in a National Instituteof Mental Health fellowship program specializing in drugand alcohol addictions.Lisa Foster, MA is a senior advisor at NVG, LLC and bringsover a decade of Capitol Hill experience to the firm. Ms.Foster is an expert in health care policy, Social Security,housing, aging and environmental issues. Ms. Foster mostrecently served as the senior health policy advisor toSenator Jack Reed on the Senate Health, Education, Laborand Pensions Committee, working on a number of majorhealth initiatives including FDA reform, public health,children’s health, health IT, and mental health parity. Ms.Foster is an honors graduate of the University of Californiaat Santa Cruz and has a Master’s degree in EconomicPolicy from American University in Washington DC.Lisa Ginther, BA is an associate of the lobbying firmMBI-Gluck Shaw which is currently the largest in NJ.She provides contract services to clients including thelargest international theme park company, a naturalgas pipeline provider and the Advocates for NJ History.Lisa began public employment at the NJ Departmentof Transportation while attending college. In 1997, Lisajoined the administration of Governor Christine ToddWhitman, working in the offices of appointments andthen personnel.Sherry Goldman RN, NP, MSN began her career in thearea of OB/GYN over 30 years ago. In 1993 she became theNurse Practitioner of the UCLA Breast Center. At that time,she became involved in breast cancer advocacy. In 2001she was diagnosed with breast cancer. She has continuedher advocacy work on the Board of NBCC, is an author,a teacher, and a mentor. Her goal in life is to see breastcancer eradicated by 2020.Anne Grant represents SHARE on the NBCC Board, andis a graduate of the Project LEAD® Institute, ClinicalTrials Project LEAD® and Quality Care Project LEAD®.She has peer-reviewed for the American Cancer Societyand the New York State HSRB Breast Cancer ResearchGrants. Ms. Grant has moderated numerous workshopsat NBCC’s Advocacy Training Conference and co-chaireda symposium at DOD Era of Hope. For15 years she hasvolunteered at SHARE in NYC and is a member of SHARELEADERS.Kathleen Harris is a 17-year breast cancer survivor and isfounding member and past president of Wisconsin BreastCancer Coalition. She is NBCC’s Lead Field Coordinator forWisconsin and is a graduate of Project LEAD® and ClinicalTrials Project LEAD®. She has served on Department ofDefense peer review panels and has been a Symposium Co-Chair for the Era of Hope. Ms. Harris has been a presenter/speaker regarding important breast cancer issues atconferences locally, nationally and internationally.Pat Haugen, BA is a 14-year inflammatory breast cancersurvivor and is the NBCC Field Coordinator for SouthDakota. She has IRB experience and has served onNational Quality Forum Steering Committees. Ms. Haugenis a member of the DOD Breast Cancer Research ProgramIntegration Panel, currently serving as Chair. She is retiredfrom an information technology industry career and hasexperience as a board member in higher education andlong-term care. She is a graduate of all NBCC Project LEAD®courses.Jessica Henderson, PhD is a Professor of CommunityHealth at Western Oregon University. For the pastseven years, Dr. Henderson has led a group of studentbreast cancer advocates to the NBCC Advocacy TrainingConference and Lobby Day as part of an internshipprogram at Western Oregon University. Last year a formalevaluation of the students' perceptions and impact ofthe Western Oregon University internship program wasconducted, results of which were published in the Journalof Cancer Education this year.Judi Hirshfield-Bartek, RN, MS, OCN has been on theboard of the National Breast Cancer Coalition since 1992and presently represents the Dr. Susan Love ResearchFoundation. She serves on several NBCC task forces and isa graduate of Quality Care Project LEAD®. She is a memberof the Breast Cancer Deadline 2020® Prevention SummitPlanning Committee. Ms. Hirshfield-Bartek has workedfor many years as a Clinical Nurse Specialist in BreastOncology, presently working at the Dana Farber CancerInstitute. She is past president of the Boston Chapter ofthe Oncology Nursing Society.21

(continued...)BiosSuzanne Hicks, MSW diagnosed with melanoma in 2001and breast cancer in 2003, is active nationally with NBCC,the Scientific Advisory Committee for the Love/AvonArmy of Women, as a consumer reviewer for the DODBreast Cancer Research Program, and as a breast cancerstory reviewer for HealthNewsReview.org. In New YorkState she is a member of the Health Research ScienceBoard and CRAAB! Suzanne has attended NBCC's ProjectLEAD® Institute and Clinical Trials Project LEAD® training,is Clinical Assistant Professor of Psychiatry at AlbanyMedical College, and devotes time to both advocacy andart, with a studio in Albany, NY.Joanne Howes is a frequent advisor to both corporateand nonprofit clients in the areas of lobbying strategies,coalition building, and strategic planning. She hasdone ground breaking work in the area of women’shealth including breast cancer, domestic violence, andwomen’s health research. Ms. Howes oversees projectsas a strategic advisor for the National Breast CancerCoalition, Family Violence Prevention Fund and theNational Partnership for Women and Families. Prior toforming Bass and Howes, Joanne served as legislativedirector for Senator Barbara Mikulski (D-MD), and was alobbyist for Planned Parenthood Federation of America.Stephen D. Hursting, MPH, PhD is Professor andChair of the Department of Nutritional Sciences at theUniversity of Texas, Austin and Professor of MolecularCarcinogenesis at the UT-MD Anderson Cancer Center.He earned his PhD in nutritional biochemistry andMPH in nutritional epidemiology from the University ofNorth Carolina, and completed postdoctoral training inmolecular carcinogenesis and cancer prevention at theNCI. Dr. Hursting’s research interests center on diet-geneinteractions relevant to cancer prevention. His researchprogram focuses on mechanism-based nutrition andcancer prevention studies in genetically engineeredmice; the obesity and carcinogenesis relationship; andtranslational nutrition and chemoprevention studieslinking his preclinical research with complementaryclinical or epidemiologic studies.Sara A. Hurvitz, MD is an Assistant Professor ofMedicine specializing in breast cancer treatment.She earned her MD from the University of SouthernCalifornia and completed her residency and fellowshiptraining at UCLA. Dr. Hurvitz is Director of the BreastOncology Program at UCLA and Medical Director of theClinical Research Unit for the Jonsson ComprehensiveCancer Center. She is lead investigator on over 20 breastcancer trials and her research has been presentedinternationally and published in multiple peer-reviewedjournals.Kathryn Johnson is the Field Organization Managerat the National Breast Cancer Coalition. She helpeddevelop and currently staffs the Emerging LeadersProgram for young adult advocates in the 18-35 yearold range. A long-time grassroots advocate for a varietyof justice causes, Ms. Johnson previously served as theExecutive Director of the Methodist Federation for SocialAction, and before that, directed the Asia Pacific Centerfor Justice and Peace.Kayla Kirsch BA, MS has worked with organizationsfor over 20 years as an organizational developmentconsultant. She is President and Founder of LeapfrogConsulting, and a long-time Senior Consultant for TheGrove Consultants International, which pioneered visualthinking and graphic facilitation. Her clients range fromNational Breast Cancer Coalition to the Ford Foundationto community health clinics. Ms. Kirsch is a seasonedworkshop leader who teaches workshops such as GraphicFacilitation, Team Performance, Strategic Visioning, andEffective Meetings.Debbie Laxague RN is a nurse and patient advocate.She is a Project LEAD®, Quality Care Project LEAD®,and Clinical Trials Project LEAD® graduate whoclosely monitors breast cancer news. She chairs arural northern California county group that assistspeople touched by breast cancer, and co-facilitatessupport groups and retreats. She is a member of thePlanning Committee for NBCC's Artemis Project®. Shehas reviewed proposals for DOD programmatic reviewand AVON, served as an advocate on the CaliforniaBreast Cancer Research Program, and is a member ofthe Love/Avon Army of Women Scientific AdvisoryCommittee.The National Breast Cancer Coalition wants to showthe country—and the world—the breadth and diversityof the breast cancer advocacy community that standsbehind Breast Cancer Deadline 2020®.Join our growinglist of organizationsthat have officiallyendorsedBreast CancerDeadline 2020®.Peter P. Lee, MD is an Associate Professor of Medicineat Stanford and a member of the Stanford HematologyCancer Center. His research focuses on the biology ofimmune responses in breast cancer patients, with anemphasis on harnessing the immune response to eradicatemetastasis and prevent relapse. His team is activelystudying the mechanisms underlying these defects,with the goal of developing strategies to correct suchdefects as a novel therapy for breast cancer. His teamis also applying mathematical modeling to understandimmunological parameters that a prophylactic vaccinewould need to achieve to be protective against breastcancer development.Take yourcommitment onestep further anddisplay our BreastCancer Deadline2020® widget onyour website.We’ll return thegesture of supportby linking from theBreast CancerDeadline 2020®website to yourhome page.Join the voices of all those who are saying,“We stand behind Breast Cancer Deadline 2020®.Together we will end breast cancerby January 1, 2020.”Visit BreastCancerDeadline2020.org/EndorsementKaren Lewkowitz, BSN, RN (retired) is the FieldCoordinator for Arizona, a Project LEAD® Graduate andhas been a DOD Peer Review Participant, California, BCRPPeer Review Participant, member of the Sister StudyScientific Advisory Board, and an alternate delegate forthe NBCC Board. For the past 15 years, she has servedand continues to serve on a variety of state basedadvocacy boards and provider organizations promotingbreast cancer public policy. Karen was recently named asthe Advocacy Chair for Arizona’s Comprehensive CancerControl Coalition.23

(continued...)BiosGeoff Livingston co-founded Zoetica, a social enterprisethat provides communication consulting, training, andstrategy to help organizations affect change. Prior tofounding Zoetica, he created a social media boutique,Livingston Communications. Dubbed a “local bloggingguru” by the Washington Post, Geoff’s award-winningbook on new media, Now is Gone, has been cited by theWall Street Journal as a valuable resource. His professionalexperiences include work with United Way of America,Save Darfur, Environmental Defense Fund, Live Earth,ChildFund International, and the Philanthropy 2.0Project. He has worked as a public relations strategist inthe Washington, D.C. region for more than 17 years.Susan M. Love, MD, MBA, FACS has dedicated herprofessional life to the eradication of breast cancer. AsPresident of the Dr. Susan Love Research Foundation, sheoversees a $4 million research program on breast cancercause and prevention. She is Clinical Professor of Surgeryat UCLA’s David Geffen School of Medicine and is wellknown to women worldwide through her books and theFoundation website. The fifth edition of Dr. Susan Love’sBreast Book was released October 2010. Her most recentproject, the Love/Avon Army of Women, partners womenand scientists to accelerate basic translational research.She received her MD from SUNY Downstate Medical Centerin NY and did her surgical training at Boston’s Beth IsraelHospital. She founded Boston’s Faulkner Breast Center andthe Revlon UCLA Breast Center in LA. She has an MBA fromUCLA’s Anderson School.Debra Madden a 4-year breast cancer survivor and longterm survivor of Hodgkin’s lymphoma, is a graduate ofthe Project LEAD® Institute and Clinical Trials ProjectLEAD®. She serves on NBCC’s Breast Cancer Deadline2020® Metastasis Summit Committee, is an FDA PatientRepresentative, and is a member of the Love/Avon Army ofWomen’s Scientific Review Committee, and ECOG’s PatientRepresentative and Breast Committees. She is also the HITProject Manager\Clinical Applications Systems Analyst fora multidisciplinary neurology practice in Connecticut.Virginia Mason, RN, BSN was diagnosed with inflammatorybreast cancer in 1994 at the age of 41, and beganvolunteering with the Inflammatory Breast Cancer ResearchFoundation in 1999, taking on the role of Executive Directorin 2003. She serves as co-investigator for the organization’saward winning BioBank and Clinical Data Base. In additionto her work with the Inflammatory Breast Cancer ResearchFoundation, she serves as the Consumer Representativeon the Oncologic Drug Advisory Committee for the FDAand has DOD Breast Cancer Research Program experienceas both a consumer reviewer for Peer Review and as anad hoc consumer for the Integration Panel. A 2002 ProjectLEAD® Institute graduate, she serves as a Team Leader on theBreast Cancer Deadline 2020® Artemis Project® for NBCC.Carol Matyka, MA is involved in many NBCC efforts, includinggrassroots political advocacy, development of quality careguidelines and measurements and patient recruitment intoclinical trials. She has been a faculty member of NBCC’s QualityCare Project LEAD®. She has served on review panels for theDepartment of Defense Breast Cancer Research Program andCalifornia Breast Cancer Research Program and as a consumeradvisor on several breast cancer research grant proposals. Sheis also founding member of CARE Advocates at Tufts MedicalCenter, a patient advocacy group that promotes consumerinvolvement in designing and developing programs for breastcancer patients and their families.Musa Mayer, MFA, MS, is a 22-year breast cancer survivor,advocate, Project LEAD® graduate and instructor, andauthor of many books and articles on the breast cancerexperience, breast cancer medicine, science and advocacy.Serving on FDA advisory committees, developing anonline course in evidence-based healthcare for advocates,and working with researchers studying brain metastasishave been some of her long-term commitments. Throughher website, AdvancedBC.org and the BCMETS.org online,community, Musa focuses daily on helping women withmetastatic breast cancer and their families understandtreatment options and emerging research.Marlene McCarthy, HLD is co-founder and volunteerChair of the Rhode Island Breast Cancer Coalition(RIBCC). The RIBCC operates a toll-free Helpline forindividuals seeking support and a multi-media BreastCancer Resource Center. Ms. McCarthy received anhonorary Doctor of Humane Letters from the Universityof Rhode Island in 2001, for breast cancer advocacylocally, nationally, and internationally. She serves onthe Executive Committee and Board of Directors for theNational Breast Cancer Coalition.Molly Mead, MBA, EdD is the founding Director ofAmherst College’s Center for Community Engagement inMA. Previously, Dr. Mead was the Lincoln Filene Professorin the Department of Urban and Environmental Policyand a founding Director of the Jonathan M. Tisch Collegeof Citizenship and Public Service at Tufts University, andtaught graduate courses in leadership, gender and publicpolicy, and public speaking, and has written numerousbooks and articles on gender and philanthropy. Dr. Mead,who has been the educational facilitator of Project LEAD®since its inception in 1995, received an BA degree inhistory and government from Cornell University, an MBAfrom Simmons College, and an EdD from the University ofMassachusetts.Shirley A. Mertz, JD, MA is a 20-year breast cancersurvivor. A graduate of all three Project LEAD® courses,she is a planning committee member for NBCC’s BreastCancer Deadline 2020® Metastasis Summit. An advocatefor health care for all, she serves as an NBCC Team Leaderand Ambassador for the American Cancer Society.To support the eradication of Breast Cancer, she is aCDMRP reviewer, a patient advocate for the Universityof Chicago Breast Cancer SPORE and an advocate for theTranslational Breast Cancer Research Consortium.Jon Mogford, PhD is the Deputy Director of the DefenseSciences Office of the Defense Advanced Research ProjectsAgency (DARPA). As the DOD’s primary innovation engine,DARPA undertakes projects that are finite in duration butcreate lasting revolutionary change. Dr. Mogford receivedhis PhD in medical sciences (physiology) from the Texas A&MHealth Science Center, did postdoctoral work at the Universityof Chicago, and served as a Research Assistant Professor atNorthwestern University. His research background includesstudies on the role of growth factors, age, and ischemia/hypoxia on dermal wound healing/scarring and on thecontrol of cell phenotype and microvascular function.Laura Nikolaides, MS is the Director of Research andQuality Care Programs for the National Breast CancerCoalition (NBCC). She coordinates NBCC's Breast CancerDeadline 2020® program work, including the Preventionand Metastasis Summits and the Artemis Project®. She hasrepresented the NBCC membership and the consumeradvocate perspective in national conference plenary andpanel presentations, as an ad hoc programmatic reviewer forthe DOD BCRP, on MSNBC, NPR, and ABC News, and currentlyserves on the Interagency Breast Cancer and EnvironmentalResearch Coordinating Committee. She holds a Masterof Science degree from Cornell University in NutritionalBiochemistry, and a Bachelor of Science degree from GeorgeWashington University in Environmental Studies andBiology. Laura was diagnosed with locally advanced breastcancer in 2007.Christine Norton, MA is a 20-year breast cancer survivorand co-founder of the Minnesota Breast Cancer Coalition.She is also a Board Member of NBCC and serves as theMinnesota Field Coordinator and Team Leader for NBCC.A graduate of Project LEAD®, Ms. Norton has done peerreviewsfor the DOD Breast Cancer Research Program,NCI, The Avon Foundation, and the University ofMinnesota. In 2011, she began as an advocate reviewerfor HealthNewsReview.org.Andrea Palm is Health and Human Services AssistantSecretary for Legislation (Acting) (since January 2009)and has worked on the HELP Committee. As health policyadvisor to then-Sen. Hillary Clinton, she handled Clinton'shealth committee work as well as her health agenda morebroadly. Palm's work focused on the implementation ofMedicare Part D and legislation on health IT.Diane Palmieri, PhD received her PhD in Pathologyfrom the University of North Carolina. She conductedpostdoctoral research as a Cancer Research Training AwardFellow in the Laboratory of Pathology, NCI. Presently, Dr.Palmieri is a Staff Scientist in the Women's Cancers Section,Laboratory of Molecular Pharmacology, NCI. Her researchfocuses on breast cancer brain metastasis. Dr. Palmieriis a Co-PI on a DOD Center of Excellence Award entitled,Studies Directed toward Eradication of Brain Metastasisof Breast Cancer. Recently, she received a grant from theInflammatory Breast Cancer Research Foundation todevelop mouse models of IBC brain metastasis. In additionto her research, Dr. Palmieri is a faculty member of theNational Breast Cancer Coalition's Project LEAD® advocatescience training program.Karen Poliseno is an 11-year breast cancer survivor andan enthusiastic member of NBCC since attending her firstadvocacy training conference in 2002. She is a ProjectLEAD® graduate and NBCC Team Leader for Massachusettssince 2005. Karen is a key member of C.A.R.E Advocates,a hospital-based advocacy group at Tufts Medical Center,currently serving as liaison to hospital staff. Karen is also aneffective fundraiser for NBCC’s “Women with Balls” bowlingevent.Michele Rakoff is a more than 22-year breast cancersurvivor and has been an activist for over 20 years. Sheis the Executive Director of the Breast Cancer Care &Research Fund in Los Angeles, CA. She is Vice Presidentof the California Breast Cancer Organizations which sherepresents on the National Breast Cancer Coalition Board.She has an advocate seat on the California Breast CancerResearch Program’s (CBCRP) Advisory Council, is a memberof a CBCRP Data Safety Monitoring Board and an advocateon a grant investigating breast cancer survival and ethnic/racial diversity. She has been a peer-reviewer for the DODBreast Cancer Research Program, sits on the CaliforniaCancer Registry’s Teachers Study Scientific Task Force andis a scientific advisory member of the Love/Avon Army ofWomen Scientific Advisory Committee.25

(continued...)BiosWilliam H. Redd, PhD is Vice Chairman of OncologicalSciences and Director of Cancer Prevention andControl at Mount Sinai School of Medicine. A pioneerin the study of psychological and behavioral factorsin cancer, he published the first report on the use ofbehavioral interventions to reduce adverse side effectsof cancer chemotherapy. His current research focuseson cognitive behavioral factors in control of cancerrelatedfatigue and the dissemination of evidencebasedsupportive care interventions to clinicians. Hereceived the 2010 Distinguished Research MentorAward from the Society of Behavioral Medicine and isa member of the DOD Breast Cancer Research ProgramIntegration Panel.Dana Richter, JD is Director of Government Relationsfor the National Breast Cancer Coalition. Prior to hercurrent position, Ms. Richter was a Senior LegislativeAssistant for Representative Frank LoBiondo (NJ-02)with responsibility for issues including health care,the environment and education. She has a Bachelorof Arts degree and a law degree from the University ofAlabama.Alan Rosenblatt, MA, PhD is the Associate Director forOnline Advocacy at the Center for American Progress.He is a frequent speaker and author on digital media,advocacy, and politics, including social networking,blogging, grassroots, and mobile advocacy strategies.Dr. Rosenblatt is the founder of the Internet AdvocacyCenter and the Internet Advocacy Roundtable. He isan adjunct professor at Georgetown, Johns Hopkins,and American Universities, where he teaches Mediaand Politics in the Digital Age, Internet Politics,Digital Political Strategies, and Internet AdvocacyCommunications; is a blogger at the Huffington Post,TechPresident.com and DrDigiPol.com; and a formerfellow at George Washington University's Institute forPolitics, Democracy, & the Internet.Neeraja Sathyamoorthy, PhD received six years ofpostdoctoral training at the University of Wisconsin andbegan working with the National Cancer Institute in1987. Her research experience has been in enzymology,immunology and cancer biology. Dr. Sathyamoorthybecame a Grants Administrator in 1999 as a ProgramDirector in the Tumor Biology & Metastasis Branch at theDivision of Cancer Biology, National Cancer Institute.She is committed to supporting research to betterunderstand the biology of breast cancer and is the NCIProgram Contact for two initiatives: I) Understandingthe Biology of ER-negative breast cancer in racial andethnic groups; and II) Environmental Influences duringWindows of Susceptibility in breast cancer risk.Helen Schiff, MLS became a volunteer at SHARE, a breastand ovarian cancer advocacy and support organizationafter being diagnosed with DCIS in 1989. She is a ProjectLEAD® graduate and a patient representative for the FDA.Last November she represented NBCC at the NCI ConsensusConference on DCIS. Ms. Schiff has reviewed grants for theDepartment of Defense and New York State. Presently,she is the coordinator of SHARE Leaders, a group ofProject LEAD® graduates which meets monthly to discussimportant issues for breast cancer advocacy.Gary Schwitzer has specialized in health care journalismfor 37 years. He is Publisher of HealthNewsReview.org – anaward-winning site that grades health news. He has taughthealth journalism and media ethics at the University ofMinnesota. Gary worked in television news for 15 years – inMilwaukee, Dallas and CNN. He was founding editor-in-chiefof MayoClinic.com. The Kaiser Family Foundation publishedhis 2009 report, The State of U.S. Health Journalism. In 2010the Association of Health Care Journalists published hisCovering Medical Research: A Guide for Reporting on Studies.Steve Shak, MD has served as Chief Medical Officer atGenomic Health since December 2000. From July 1996 toOctober 2000, Dr. Shak served in various roles in MedicalAffairs at Genentech, Inc., most recently as Senior Directorand Staff Clinical Scientist. From November 1989 to July1996, he served as a Director of Discovery Research atGenentech, where he was responsible for PulmonaryResearch, Immunology and Pathology. He led the clinicalteam that gained approval for Herceptin®, a targetedbiologic treatment for breast cancer. He also initiatedthe cancer clinical trials of the anti-angiogenesis agent,anti-VEGF (Avastin®). In addition, Dr. Shak discoveredPulmozyme®, a mucus-dissolving enzyme that is approvedworldwide for the treatment of the genetic disease cysticfibrosis. Prior to joining Genentech, he was an AssistantProfessor of Medicine and Pharmacology at New YorkUniversity School of Medicine.Joy Simha is one of the three Co-Founders of the YoungSurvival Coalition and currently serves on their Board ofDirectors. She represents the YSC on the Board of Directorsof the National Breast Cancer Coalition and serves onthe Executive Committee of NBCC. She was an ad hocreviewer for the Department of Defense Peer ReviewedBreast Cancer Research Program and currently sits on itsIntegration Panel. In 2010, she was appointed to the CDC’sPanel on Breast Cancer in Young Women. She has served asa consumer advocate for various Cochrane CollaborationSystematic Reviews, as a consumer advocate for AHRQ, andas a panel member on the IOM Evidence CommunicationInnovation Collaborative. Her background is in video,media production and writing and she currently resides inNew Jersey with her husband and two children.Dennis Slamon, MD, PhD is Professor of Medicine, Chiefof the Division of Hematology/Oncology and ExecutiveVice Chair for Research within the Dept. of Medicine atUCLA. He is also the Director of Clinical/TranslationalResearch at the Jonsson Comprehensive Cancer Centerand the Director of Revlon/UCLA Women’s CancerResearch Program. Dr. Slamon received his MD fromthe University of Chicago, and his PhD in cell biologyin 1975. Dr. Slamon’s papers have been published innumerous peer-reviewed medical journals. He has beenhonored by many organizations for his contributions toresearch, including by NBCC. He was instrumental in theidentification of the HER2/neu oncogene and the resultingtreatment, trastuzumab (Herceptin®), hailed as the firsttriumph in an emerging wave of targeted therapies. Hiswork continues to impact the breast and ovarian cancerfields with its innovative research.Jean R. Slutsky, PA, MSPH has directed the Center forOutcomes and Evidence (COE), Agency for HealthcareResearch and Quality (AHRQ) at HHS since 2003. Previouslyshe served as acting director of the Center for Practiceand Technology Assessment at AHRQ. Recently, shehas implemented a comparative effectiveness researchprogram that includes evidence synthesis, generation,translation and implementation. Ms. Slutsky oversees theEvidence-based Practice Center program; TechnologyAssessment Program; extramural and intramural researchportfolios for translating research into practice, outcomesand effectiveness research, and cost-effectivenessanalyses; and the National Guideline, Quality Measures,and Quality Tools Clearinghouses. She is a member of theeditorial board of Implementation Science and has servedas project director of the U.S. Preventive Services TaskForce. Ms. Slutsky received her BS at the University of Iowa,an MSPH from the University of North Carolina, and trainedas a Physician Assistant at USC.Chris Stacey is the President of Sapphire Consultingin Washington, DC and has worked in the fundraisingand marketing field for nearly twenty years. Shehas experience in both the non-profit and for-profitsectors including extensive work with corporate andindividual donors, as well as with private foundationsand government. She managed foundation fundraisingfor Children’s Hospital in Washington, DC, helped launchwellness and workplace giving programs, advisedorganizations about board and volunteer development,and trained non-profit staff in fundraising best practices.She is a graduate of Yale University with degrees inEnvironmental Studies and American Studies. She is theVice President of the Sitar Arts Center board, is on theboard of the Palisades Community Fund and is a memberof Leadership Greater Washington and the Associationof Fundraising Professionals.Patricia Steeg, PhD has studied breast cancer metastasisfor 20+ years. She is the author of over 150 scientific paperson the subject. She is a Past President of the MetastasisResearch Society. Dr. Steeg is currently the Chief, Women’sCancers Section, Laboratory of Molecular Pharmacology,NCI. Dr. Steeg discovered the first metastasis suppressorgene and now also works on brain metastasis of breastcancer. Dr. Steeg has been awarded the Brinker Awardfor Basic Research from the Komen Foundation, and isDeputy Editor of the journal Clinical Cancer Research. Sheis a former member and chair of the Integration Panel ofthe DOD BCRP. She is a Core Faculty Member of NBCC’sProject LEAD®.27

Conference Sponsors(as of 4/7/11)UnderwritersAmgenAVON Foundation for WomenGenentech, Inc.The Joyce & Irving Goldman Family FoundationLilly USA, LLCBenefactorsBristol-Myers SquibbEntertainment Industry FoundationGenomic HealthVirginia Clinton Kelley FundDonorsAvalon Consulting Group, Inc.Beaconfire ConsultingCelgene CorporationNVG, LLC1101 17 th Street, NW, Suite 1300, Washington, DC 20036P 202.296.7477 | F 202.265.6854 | BreastCancerDeadline2020.org