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38International Patient Decision Aids Standards (IPDAS) Collaboration. A body thatdeveloped consensus standards for decision aids and now offers a variety ofmaterials, including guides to help organizations or individuals grade decisionaids against these standards. http://www.ipdas.ohri.ca.Mayo Clinic. The Mayo Clinic offers an extensive library of DAs, including a “DepressionGuide.” This guide includes an explanation of the various forms ofdepression, information on medications and their side effects, and personalstories of two women with depression. It also includes links to further information.http://www.mayoclinic.com.Mental Health Matters. This site provides extensive information about mental healthissues. http://www.mental-health-matters.com.Ottawa Health Research Institute, A-Z Inventory of Patient Decision Aids. An inventoryof more than 100 decision aids that meet IPDAS criteria. Also includesthe Ottawa Personal Decision Guide, designed to assist individuals in makingany health care or social decision. http://decisionaid.ohri.ca/AZinvent.php.Society for Medical Decision Making. Its mission is to improve health outcomesthrough the advancement of proactive systematic approaches to clinical decision-making and policy formation in health care by providing a scholarlyforum that connects and educates researchers, providers, policymakers, andthe public. http://www.smdm.org.WebMD. WebMD provides extensive free information on health care. A “DepressionCenter” includes information on medications, psychotherapy, “livingand managing,” consulting a doctor about depression, and links to otherresources. http://www.webmd.com.Shared Decision-Making in Mental Health Care:Practice, Research, and Future Directions
39Appendix BShared Decision-MakingMeeting ParticipantsPlanning CommitteeDavid Chambers, Ph.D.Chief, Dissemination andImplementation Research ProgramDivision of Services and InterventionResearchNational Institute of Mental HealthBethesda, MDPatricia E. Deegan, Ph.D.Pat Deegan Ph.D. & Associates LLCByfield, MARobert Drake, M.D., Ph.D.Professor of Psychiatry and ofCommunity and Family MedicineDartmouth Medical SchoolHanover, NHKen Thompson, M.D.Associate Director for Medical AffairsCenter for Mental Health ServicesSubstance Abuse and Mental HealthServices AdministrationRockville, MDCelia Wills, Ph.D., R.N.Associate ProfessorMichigan State University, Collegeof NursingEast Lansing, MIMeeting ParticipantsDan Abramson, Ph.D.Assistant Executive Director,State AdvocacyAmerican Psychological AssociationWashington, DCNeal Adams, M.D., Ph.D.Director of Special ProjectsCalifornia Institute of Mental HealthSacramento, CAPeter AshendenExecutive DirectorMental Health EmpowermentProject, Inc.Albany, NYSusan BergesonPresidentDepression and BipolarSupport AllianceChicago, ILShared Decision-Making in Mental Health Care: Practice, Research, and Future Directions
Page 4: iiContentsIntroduction ............
Page 11 and 12: 5outpatient commitment (Holmes-Rovn
Page 13 and 14: 7Advantages• Practitioners can be
Page 15: 9Section 2The Practice of SharedDec
Page 22 and 23: 16Section 3SDM ResearchCurrent rese
Page 24: 18Mental health care providers are
Page 27 and 28: 21want mental health treatment or d
Page 29: 23Some participants raised concerns
Page 37 and 38: 31Section 6ConclusionsShared decisi
Page 39 and 40: 33Fellowes, D., Wilkinson, S., & Mo
Page 41 and 42: 35Power, A. Kathryn. (July 10, 2007
Page 43: 37Appendix AResourcesThis list is p
Page 47 and 48: 41Annelle Primm, M.D., M.P.H.Direct
Page 49 and 50: 43Supplement 1Shared Decision-Makin
Page 51 and 52: 45IntroductionThe consumer-driven r
Page 53 and 54: 47Background: Definitions of SDM an
Page 55 and 56: 49• Freedom to live in the commun
Page 57 and 58: 51providers only (Wills & Homes-Rov
Page 59: 53SDM for Schizophrenia TreatmentBu
Page 63 and 64: 57I interact with my consumers; I f
Page 65 and 66: 59ReferencesAdams, J. R., & Drake,
Page 67 and 68: 61Elwyn, G., Edwards, A., Kinnersle
Page 69 and 70: 63Murray, E., Pollack, L., White, M
Page 71 and 72: 65Thistlethwaite, J., Evans, R., Ti
Page 73 and 74: 67AbstractShared decision-making is
Page 75 and 76: 69Confronting Critical Challenges:
Page 77 and 78: 71into treatment should still be in
Page 79 and 80: 73these approaches, people are more
Page 81 and 82: 75consumers to engage with their pr
Page 83 and 84: 77that were produced in the U.S., w
Page 85 and 86: 79a healing partnership and develop
Page 87 and 88: 81Shared Decision-Making in Mental
Page 89 and 90: 83However, peer support requires st
Page 91 and 92: 85ConclusionsImplementation of SDM
Page 93 and 94: 87Fellowes, D., Wilkinson, S., & Mo
Page 95 and 96:
89President’s Commission for the
Page 97 and 98:
91Supplement 3Aids to Assist Shared
Page 99 and 100:
93IntroductionSignificance of Share
Page 101 and 102:
95In recent years, a variety of tec
Page 103 and 104:
97• Provide balanced information,
Page 105 and 106:
99Form of Access or AdministrationC
Page 107 and 108:
101ences). Some of these Web-based
Page 109 and 110:
103video about shared decision-maki
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105clarify one’s own values and p
Page 113 and 114:
107potential results, than on quant
Page 115 and 116:
109Once again, however, it is worth
Page 117 and 118:
111who belong to minority groups or
Page 119 and 120:
113Hamann, J., Langer, B., Winkler,
Page 122:
U.S. DEPARTMENT OF HEALTH AND HUMAN
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