The effectiveprevalencerate of severedisability basedon the screen<strong>in</strong>gtool is situated<strong>in</strong> the lowerestimates thatwere consideredfor <strong>Afghanistan</strong>by experts. Thisrate is close tothe previousestimates madeby differentsurveysSteps Forward:Allow Future Comparisons with Other Surveys and with Other Countries <strong>in</strong> the RegionEstablish<strong>in</strong>g a few benchmarks to def<strong>in</strong>e disability with<strong>in</strong> the Afghan context seems to be essential <strong>in</strong> orderto adequately monitor progress made <strong>in</strong> the future as well as assess how the country is do<strong>in</strong>g with regard toneighbour<strong>in</strong>g states <strong>in</strong> the region. A first step was taken <strong>in</strong> this direction dur<strong>in</strong>g the UNESCAP 4th Workshopfor Improv<strong>in</strong>g Disability Statistics and Measurement, held <strong>in</strong> Bangkok <strong>in</strong> June 2006. The ma<strong>in</strong> aim of this<strong>in</strong>itiative was to <strong>in</strong>troduce the pr<strong>in</strong>ciples and requirements for collect<strong>in</strong>g, produc<strong>in</strong>g, and dissem<strong>in</strong>at<strong>in</strong>gdisability statistics at the national and <strong>in</strong>ternational levels. A first step <strong>in</strong> this direction would be del<strong>in</strong>eat<strong>in</strong>gthe elements that def<strong>in</strong>e disability <strong>in</strong> <strong>Afghanistan</strong>, <strong>in</strong> l<strong>in</strong>e with regional standards 15 . This would allow reliablemonitor<strong>in</strong>g and <strong>in</strong>ter-country comparisons.Improv<strong>in</strong>g Knowledge about Afghans with DisabilityThe effective prevalence rate of severe disability based on the screen<strong>in</strong>g tool is situated <strong>in</strong> the lower estimatesthat were considered for <strong>Afghanistan</strong> by experts. This rate is close to the previous estimates made by differentsurveys. In a country where life expectancy at birth is amongst the lowest <strong>in</strong> the world, this may signify that aproportion of Afghans with disability are more prone to disease, illness, accident or even neglect. These figuresalso suggest a lack of knowledge and awareness regard<strong>in</strong>g shunned or hidden forms of disability wherestigma and discrim<strong>in</strong>ation make detection difficult. On the other hand, if the threshold to def<strong>in</strong>e disability isbased on the health set of 46 questions, then very severe disability rates 2.2% and severe disability rates10.8% of the whole Afghan population.The next step is to understand the liv<strong>in</strong>g conditions of persons with disability, by look<strong>in</strong>g more closely atthe proportion of those who benefit from health services, education, employment, <strong>in</strong>come and decent liv<strong>in</strong>gconditions. The follow<strong>in</strong>g sections will summarise this <strong>in</strong>formation accord<strong>in</strong>g to various fields: try to br<strong>in</strong>g <strong>in</strong>tolight what exists and what rema<strong>in</strong>s to be done.15For more <strong>in</strong>formation please visit the website: http://www.unescap.org/stat/meet/widsm4/<strong>in</strong>dex.asp14 Understand<strong>in</strong>g the Challenge Ahead
The Health PictureAccess, Costs, NeedsSECTION3S<strong>in</strong>ce the end of 2001, attempts have been made by the government to secure peace and stability, andto rehabilitate the devastated <strong>in</strong>frastructures. Despite these efforts, the national health <strong>in</strong>dicators rema<strong>in</strong>alarm<strong>in</strong>g. The maternal mortality rate is reported to be 1600 per 100,000 live births, the under-five mortalityrate is estimated at 172 per 1000 births and the <strong>in</strong>fant mortality rate is 115 per 1000 births 16 . Thesestatistics are the reflection of over twenty years of on-go<strong>in</strong>g conflict as well as political <strong>in</strong>stability.While general statistics are used to gauge the progress of the health sector <strong>in</strong> address<strong>in</strong>g the needs of thepopulation, very little is known regard<strong>in</strong>g the health status of one of the most vulnerable groups of Afghans,i.e., persons with disability. Knowledge regard<strong>in</strong>g the health <strong>in</strong>dicators of this population is very limited, evenmore so when it comes to their access to and use of health services. The 2005 National Disability Survey<strong>in</strong> <strong>Afghanistan</strong> is the first survey aim<strong>in</strong>g to provide <strong>in</strong>sight <strong>in</strong>to the health status and challenges faced byAfghans with disability.The M<strong>in</strong>istry of Public Health (MoPH) has been assigned the task of address<strong>in</strong>g the health needs of theAfghan population. In 2003, this m<strong>in</strong>istry established a health services delivery policy called the BasicPackage of Health Services (BPHS) which outl<strong>in</strong>ed seven areas of priority <strong>in</strong>: maternal and newborn health,child health and immunisation, public nutrition, communicable diseases (tuberculosis and malaria), mentalhealth, disabilities, and f<strong>in</strong>ally, the supply of essential drugs. They were grouped <strong>in</strong>to three tiers accord<strong>in</strong>g topriority. Due to lack of knowledge on the scope of the problems, lack of resources and <strong>in</strong>sufficient capacityto <strong>in</strong>tegrate services, both mental health and disabilities were associated with secondary tier <strong>in</strong>terventions.With the revision of the BPHS <strong>in</strong> 2004 and 2005, the provision of mental health and rehabilitative servicesfor disabled Afghans was elevated to first-tier <strong>in</strong>terventions. Despite this, comprehensive development ofservice-provision activities has been slow and is <strong>in</strong> need of guidance.Types of DifficultyIn general, persons with severe disability reported a number of difficulties <strong>in</strong> their ability:• To satisfy their daily self-care needs without any assistance or equipment (questions asked to childrenabove 8 years of age and adults);• To perform household chores (questions not asked to adult men);• To carry out tasks outside the house/<strong>in</strong> the field.While generalstatistics areused to gaugethe progress ofthe health sector<strong>in</strong> address<strong>in</strong>gthe needs of thepopulation, verylittle is knownregard<strong>in</strong>g thehealth status ofone of the mostvulnerable groupsof Afghans, i.e.,persons withdisabilityThis series of three major fields of activities gives a good overview of difficulties faced <strong>in</strong> everyday life byseverely disabled persons. Look<strong>in</strong>g at the ability to function <strong>in</strong> everyday life also helps understand what theimpact of disability might mean to a household as a unit. The fact that a person with disability may requireassistance <strong>in</strong> a variety of tasks implies the need for caretakers with<strong>in</strong> the household and/or the community.A large number of people rely on the other members of their family to fulfil their basic daily needs.Daily Self-Care NeedsOur results show that a majority of persons with disability need some k<strong>in</strong>d of assistance <strong>in</strong> everyday function<strong>in</strong>g.This proportion can range from a m<strong>in</strong>imum of 12.9% for go<strong>in</strong>g to the toilet and 13.4% for gett<strong>in</strong>g dressed,16UNDP (2004) op. cit.