Semantic Web-Based Information Systems: State-of-the-Art ...
Semantic Web-Based Information Systems: State-of-the-Art ...
Semantic Web-Based Information Systems: State-of-the-Art ...
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E chelberg, Aden, & Thoben<br />
a patient’s electronic health care record (given suitable authorisation) and access<br />
to different subsystems (e.g., patient admission or laboratory information systems).<br />
Within <strong>the</strong> ARTEMIS network, fur<strong>the</strong>r services might be invoked dynamically, for<br />
example, in order to translate and map among different representations <strong>of</strong> health<br />
care information. In ARTEMIS, all participating health care organisations (peers)<br />
are coupled loosely via <strong>the</strong> ARTEMIS P2P network. Groups <strong>of</strong> participating organisations<br />
are coupled via so-called Super Peers, which are connected among each<br />
o<strong>the</strong>r. The project is carried out with partners from Turkey, Germany, Greece, and<br />
<strong>the</strong> United Kingdom.<br />
The Patient Identification Protocol<br />
While a number <strong>of</strong> projects currently are attempting to establish central electronic<br />
health record (EHR) archives for certain regions or countries, most clinical records<br />
are still kept and maintained at <strong>the</strong> place <strong>of</strong> <strong>the</strong>ir creation. This means that, given a<br />
patient with a disease requiring long-term treatment (such as diabetes), related clinical<br />
records may be located at one or more family doctors’ practices, several specialists,<br />
labs, and a number <strong>of</strong> hospitals. In particular, <strong>the</strong> patient may not even be aware <strong>of</strong><br />
all <strong>the</strong> locations where records relevant to a particular medical problem may be kept.<br />
Any protocol that attempts to make relevant clinical documents available in digital<br />
form needs to take this distributed nature <strong>of</strong> document storage into account. The<br />
advent <strong>of</strong> wide area networks such as <strong>the</strong> Internet, along with various VPN (virtual<br />
private network) technologies provides a solution to <strong>the</strong> underlying problem <strong>of</strong> a<br />
digital transport connection between document requestor and document provider,<br />
but it does not solve <strong>the</strong> problem <strong>of</strong> how to locate <strong>the</strong> relevant records.<br />
The task <strong>of</strong> locating relevant medical records is complicated by <strong>the</strong> fact that <strong>the</strong>re<br />
is no unique patient identifier that could be broadcast as a query in order to locate<br />
information pertaining to one patient. While countries such as Turkey, Norway, and<br />
Sweden maintain a national person identifier that commonly is used as <strong>the</strong> index key<br />
for medical records, no such unique identifier is available in most o<strong>the</strong>r countries<br />
ei<strong>the</strong>r for historic reasons or due to data protection regulations. This means that<br />
a query applicable to cross-border health care delivery only can be based on <strong>the</strong><br />
patient demographics that are commonly available, including <strong>the</strong> patient’s name,<br />
date and place <strong>of</strong> birth, sex, nationality, and postal address.<br />
It should be noted that <strong>the</strong> set <strong>of</strong> demographics available may depend on <strong>the</strong> location<br />
(i.e., a national patient identifier certainly would be included in any query within<br />
a country in which it is valid) and on <strong>the</strong> patient’s health condition (i.e., whe<strong>the</strong>r<br />
<strong>the</strong> patient is able to provide <strong>the</strong> doctor with additional information not contained<br />
in <strong>the</strong> passport or driver’s license, which may be <strong>the</strong> only source <strong>of</strong> information<br />
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