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Semantic Web-Based Information Systems: State-of-the-Art ...

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E chelberg, Aden, & Thoben<br />

a patient’s electronic health care record (given suitable authorisation) and access<br />

to different subsystems (e.g., patient admission or laboratory information systems).<br />

Within <strong>the</strong> ARTEMIS network, fur<strong>the</strong>r services might be invoked dynamically, for<br />

example, in order to translate and map among different representations <strong>of</strong> health<br />

care information. In ARTEMIS, all participating health care organisations (peers)<br />

are coupled loosely via <strong>the</strong> ARTEMIS P2P network. Groups <strong>of</strong> participating organisations<br />

are coupled via so-called Super Peers, which are connected among each<br />

o<strong>the</strong>r. The project is carried out with partners from Turkey, Germany, Greece, and<br />

<strong>the</strong> United Kingdom.<br />

The Patient Identification Protocol<br />

While a number <strong>of</strong> projects currently are attempting to establish central electronic<br />

health record (EHR) archives for certain regions or countries, most clinical records<br />

are still kept and maintained at <strong>the</strong> place <strong>of</strong> <strong>the</strong>ir creation. This means that, given a<br />

patient with a disease requiring long-term treatment (such as diabetes), related clinical<br />

records may be located at one or more family doctors’ practices, several specialists,<br />

labs, and a number <strong>of</strong> hospitals. In particular, <strong>the</strong> patient may not even be aware <strong>of</strong><br />

all <strong>the</strong> locations where records relevant to a particular medical problem may be kept.<br />

Any protocol that attempts to make relevant clinical documents available in digital<br />

form needs to take this distributed nature <strong>of</strong> document storage into account. The<br />

advent <strong>of</strong> wide area networks such as <strong>the</strong> Internet, along with various VPN (virtual<br />

private network) technologies provides a solution to <strong>the</strong> underlying problem <strong>of</strong> a<br />

digital transport connection between document requestor and document provider,<br />

but it does not solve <strong>the</strong> problem <strong>of</strong> how to locate <strong>the</strong> relevant records.<br />

The task <strong>of</strong> locating relevant medical records is complicated by <strong>the</strong> fact that <strong>the</strong>re<br />

is no unique patient identifier that could be broadcast as a query in order to locate<br />

information pertaining to one patient. While countries such as Turkey, Norway, and<br />

Sweden maintain a national person identifier that commonly is used as <strong>the</strong> index key<br />

for medical records, no such unique identifier is available in most o<strong>the</strong>r countries<br />

ei<strong>the</strong>r for historic reasons or due to data protection regulations. This means that<br />

a query applicable to cross-border health care delivery only can be based on <strong>the</strong><br />

patient demographics that are commonly available, including <strong>the</strong> patient’s name,<br />

date and place <strong>of</strong> birth, sex, nationality, and postal address.<br />

It should be noted that <strong>the</strong> set <strong>of</strong> demographics available may depend on <strong>the</strong> location<br />

(i.e., a national patient identifier certainly would be included in any query within<br />

a country in which it is valid) and on <strong>the</strong> patient’s health condition (i.e., whe<strong>the</strong>r<br />

<strong>the</strong> patient is able to provide <strong>the</strong> doctor with additional information not contained<br />

in <strong>the</strong> passport or driver’s license, which may be <strong>the</strong> only source <strong>of</strong> information<br />

Copyright © 2007, Idea Group Inc. Copying or distributing in print or electronic forms without written permission <strong>of</strong><br />

Idea Group Inc. is prohibited.

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