Canadian Hemophilia Society Meeting the challenge

▪▪▪▪▪To keep the bleeding disorder community informed, we distributed three issues of our highly informative newsmagazineHemophilia Today.To increase knowledge, networking and peer support among people who suffer from rareinherited bleeding disorders, two Rare Bleeding Disorders Through the Lifespan regionalworkshops were held.To increase the understanding about the impact of ageing on people affected by aninherited bleeding disorder, the topic of ageing was addressed at Rendez-vous 2011 duringthe CHS Medical and Scientific Symposium and through a focus group. Also, a new columnon ageing, The Sage Page, now appears in Hemophilia Today and a Partners in Care cardwas developed for use with other specialists such as dentists and general practitioners.To enable parents to increase their skills and knowledge regarding raising a child with a bleeding disorder, two regionalParents Empowering Parents (PEP) workshops were delivered across Canada.To increase awareness and knowledge among women and health care providers about symptoms, diagnosis andtreatment of bleeding disorders such as von Willebrand disease, we developed a targeted outreach program entitledCODErouge | WHEN WOMEN BLEED TOO MUCH.2011 Annual Report11