facing life with a smile - Arkansas Children's Hospital

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CONTENTSPage 3Page 43 FACING LIFE WITH A SMILETrace Cranor was born with anincomplete unilateral cleft lip and palate.Cleft defects are more than just cosmetic,they can result in life-threateningbreathing and feeding difficulties.Fortunately, Trace and his parents hadaccess to treatment at the cleft lip andpalate center at ACH.Pictured: Trace Cranor now faces lifewith a smile on his face.4 DIABETES ON THE RISEAfter much recent focus on diabetes inthe news, we talked with ACH chief ofendocrinology about diabetes and whatis happening in diabetes research andtreatment at ACH.Pictured: Arkansas Children's HospitalResearch Institute researchers ClaireCarle, Annick DeLoose, Kathy Boyle, RRT,Clay Bunn, Ph.D., Jennifer Kimbrough,John Fowlkes, M.D. and Yu (Macy) Guan,M.D., are working on issues related todiabetes prevention and management.9 NEW “ANGELS”ACH recently put two new “Angels” inflight. These new helicopters fly all overArkansas and surrounding states to pickup the most critically ill children andinfants and bring them back to ACH.ARKANSAS CHILDREN’S HOSPITALBOARD OF DIRECTORSJohn Bale Jr., ChairmanJonathan Bates, M.D., President & CEOHarry C. Erwin III, Vice ChairmanPat McClelland, SecretaryDorsey Jackson, TreasurerSam Smith, M.D., Chief of StaffBarbara Moore, Past ChairmanSusan AdamJane ArthursTom BaxterWilliam ClarkHaskell DickinsonM. Edward DrillingDebra Fiser, M.D.J. French HillJudge Marion HumphreyBen HussmanMichael JoshuaDiane MackeyDan NabholzTrudie Kibbe Reed, Ed.D.Skip RutherfordMark SaviersMichael Schmitz, M.D.Philip SchmidtRobert L. ShultsWitt Stephens, Jr.Bonnie Taylor, M.D.Rett TuckerCharles B. Whiteside IIII. Dodd Wilson, M.D.ACH RESEARCH INSTITUTEMark Saviers, ChairmanWesley Burks, M.D., PresidentJonathan Bates, M.D., Vice-Chairman forFinance & Admin.Debra Fiser, M.D., Vice-Chairman for ResearchJames Gaston, Secretary/TreasurerKanwaljeet "Sunny" Anand, M.B.B.S., D.PhilLaDonna BornhoftRon ClarkKathy CounceM. Edward DrillingTommy HillmanRobert Porter, M.D.Roger Rank, Ph.D.E. Albert Reece, M.D., Ph.D., M.B.A.Robert ShultsI. Dodd Wilson, M.D.Page 9Pictured: ACH’s new “Angels” can reachany area in Arkansas within an hour.President and Chief Executive Officer: Jonathan Bates, M.D.Medical Director: Bonnie Taylor, M.D.President, Arkansas Children’s Hospital Research Institute: Wesley Burks, M.D.President, Arkansas Children’s Hospital Foundation: John E. BelEditor: Chris McCreightDesign: Lori Howard Barlow, The Graphic Design Shop, Inc.Photographer: Kelley CooperContributors: Alyssa Anderson, Melanie Carlton, Terri DavidsonTHE ACHIEVERis published by Arkansas Children Hospital Foundation for friends of ACH.800 Marshall Street, Slot 661, Little Rock, AR 72202-3591.(501) 364-1476 • FAX (501) 364-3644 • TDD (hearing imparired) 364-1184www. archildrens.orgACH FOUNDATIONJonathan Bates, M.D., ChairmanJohn Bel, PresidentCharles B. Whiteside III, Vice ChairmanJackie BarkerGregory E. BarnesTom BaxterFrances BuchananChad CarlsonJames CobbRobert G. CressDon EdmondsonHarry C. Erwin IIIRobin GeorgeMartin G. GilbertMelody GilleranBarnett GraceHugh M. HallAnne HickmanRoss HoneaDiane MackeyJim McClellandRebecca McDowellJulia Peck MobleyBobby J. NeillJeffrey NolanSara M. RichardsonVicki SaviersSue Trotter
PATIENTS & FAMILIES WE HAVE KNOWNToddler FindsFlawless SmileTrace Cranorbefore and(left) after hiscleft surgery.at Arkansas Children’s Hospital■ By Terri DavidsonTrace Cranor can steal your heart with a flash of hisbig, blue eyes and charming grin. Before surgery atArkansas Children’s Hospital, however, he and his familyfound little to smile about.Sandy and Tracey Cranor anxiously awaited the birthof their child with hopes for a healthy, happy baby. Theywere concerned about birth defects because both theirmothers were born with cleft lips, but were told the problemis not hereditary. Sandy’s ultrasounds also showed nosigns of a problem, so when their son was born, theysimply weren’t prepared for the first sight of his brokenlittle smile.“When I saw my baby for the first time, it felt like hehad this big hole in his face,” Sandy says. “I was soscared for him.”Trace was born with a condition known as incompleteunilateral cleft lip and palate, which means his top lip andthe roof of his mouth did not close correctly in the seventhand tenth weeks of development. Cleft defects arethe fourth most common birth defect in the United States.More than cosmetic, cleft deformities can result in lifethreateningbreathing and feeding difficulties.Fortunately, Trace was able to breathe on his own, butthe hole in the top of his mouth made it impossible forhim to nurse with a conventional bottle. He took hours toconsume just a few ounces of formula. Instead of growing,Trace quickly lost weight, dropping well below 6 lbs.within days of his birth.Surgery was the only option for closing Trace’s lip andsoft palate, but Sandy worried about the results. One ofhis grandmothers had cleft surgery as a toddler, but shewas left with scars that medical techniques of that timecouldn’t repair.“People can be cruel,” Sandy says. “My mother and myhusband’s mother have both lived with cleft lips all oftheir lives, so I knew what my baby would have to dealwith.”Three weeks after his birth, Trace came to ArkansasChildren’s Hospital, which has the state’s largest cleft lipand palate center. According to the program’s medicaldirector, Dr. Robin Dyleski, Trace was like many of herpatients on their first visit — significantly underweightwith anxious parents. One of her first steps is to providefamilies with a special bottle to make nursing easier.For Trace and his mother, that simple tool made aninstant difference, allowing him to finish an entire bottleof formula in just 15 minutes. Ten days later, he hadgained 4 lbs.“The first time we saw Dr. Dyleski, she saved both ofour lives,” Sandy says.Over the following weeks, Trace continued to grow,and Dr. Dyleski monitored his development andaddressed his parents’ concerns about the upcoming surgery.During this time, they learned that cleft defectsactually can be genetic.In May 2001, Trace had his first surgery with the secondfollowing in November. Each operation took justunder three hours, and Trace stayed in the hospital lessthan a day.Today, Sandy is proud to see that the “Cupid’s bow”in Trace’s top lip meets perfectly, and his nose looks justlike his sister Madison’s. As Trace continues to grow, Dr.Dyleski will watch for any signs of uneven growtharound his mouth that would require additional surgery.Speech pathologists and other pediatric specialists at ACHwill be ready to address other problems that could arise.“I hear from people all the time who can’t believe heever had a problem,” says Sandy. “Dr. Dylesk’s last wordsto me at our first visit were, ‘I will make your baby beautiful.’And that’s exactly what she did.”3
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