The cost of Macmillan services - Macmillan Cancer

The reach ofMacmillan’s servicesfact sheet2012 edition, v1.0Questions about living with cancer?Call the Macmillan Support Line free on 0808 808 00 00 or visit macmillan.org.ukMacmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee.Registered company in England and Wales (2400969) and the Isle of Man (4694F). Registered office: 89 Albert Embankment, London SE1 7UQ.

What is this document for?When people support Macmillan they want to know that their donations make a difference to thelives of people affected by cancer. It’s vital we demonstrate the impact Macmillan makes. Givingpeople the facts and figures of how our donor’s money translates to more people helped (our reach)- as well as how much money we are able to leverage for people affected by cancer - helps us togain and keep supporters.The examples in this factsheet need to be:phrased appropriatelyfactually correctclear and not misleadingsomething that can be easily confirmed.Where might we use this information?stories in all Macmillan internal and external publications and mediaemails or letters to events participantspresentations to prospective legacy supportersmeetings with high-value / philanthropic donorscorporate charity of the year / partner pitchesdirect mail appeal packsmarketing campaignstrust or statutory body funding applications.Some of the information in this factsheet gives average reach figures for our indirect services, suchas our Macmillan Nurses. If you need to quote specific reach figures for specific posts or servicessuch as a specific Macmillan Nurse or a specific Macmillan Cancer Information & Support Service,you should contact the relevant local Macmillan Development Manager to discuss theappropriateness of doing this.1Questions about living with cancer?Call the Macmillan Support Line free on 0808 808 00 00 or visit macmillan.org.ukMacmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee.Registered company in England and Wales (2400969) and the Isle of Man (4694F). Registered office: 89 Albert Embankment, London SE1 7UQ.

2How to use this fact sheetPlease use the data as it appears on this document. Rounding up or down to the nearest 1,000,5,000, 10,000, 100,000 or 1,000,000 etc to make messages clearer is permitted. However, pleasetry and use an additional approximating word such as ‘approximately’ , ‘about’ , ‘over’, ‘more than’,‘less than’ or ‘under’ in these circumstances. Please note that some audiences, for examplecorporate partners, may prefer to see precise figures.Please be aware that there is overlap inherent across the service offering reach figures – this isbecause a person affected by cancer can often access more than one Macmillan service in a givenyear. Our overall reach in the headline figures take into account the overlap.Please remember: many of our audiences may not know what support our services offer. So justsaying that ‘our patient-facing Macmillan Nurses helped over 433,000 cancer patients in 2011’ is notenough. It is important that you also describe what is so special about our services. Therefore, if forspace reasons any of the stats that follow do not also describe the support provided, please useinformation from the supporting paragraph above it.A similar fact sheet to this one called “The cost of Macmillan’s services” is also available and maybe helpful to use alongside this fact sheet.For Macmillan staff only:A detailed Excel spreadsheet with detailed derivations of the stats in this fact sheet is available forMacmillan staff.We also hold data on the depth of reach (level of intervention) and data on how the reach breaksdown by type of person helped (person with a cancer diagnosis, carer, family/friend/colleague, etc).If you’d like to see the detailed spreadsheet, please contact Matthew Steele, Projects Manager, inthe Intelligence & Research team at Macmillan UK Office (msteele@macmillan.org.uk).Questions about living with cancer?Call the Macmillan Support Line free on 0808 808 00 00 or visit macmillan.org.ukMacmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee.Registered company in England and Wales (2400969) and the Isle of Man (4694F). Registered office: 89 Albert Embankment, London SE1 7UQ.

3ContentsTotal reach across all our services (HEADLINES) .................................................................. 4Healthcare services ................................................................................................................... 4All healthcare professionals ...................................................................................................... 4Nurses ...................................................................................................................................... 4AHPs ........................................................................................................................................ 5Macmillan ‘source of support’ Doctors ...................................................................................... 6Clinical buildings ....................................................................................................................... 6Financial support services ........................................................................................................ 6Macmillan benefits advisers (face-to-face) ............................................................................... 6Macmillan Support Line (the financial support element only) ................................................... 6Macmillan Grants ..................................................................................................................... 7Social, emotional and practical support .................................................................................. 7Social workers .......................................................................................................................... 7Emotional and practical support services ................................................................................. 7Self-help and support groups ................................................................................................... 8Information and support services ............................................................................................ 8Macmillan Cancer information and support centres ................................................................. 8Macmillan Mobile Information and Support Services ................................................................ 9Macmillan Support Line (0808 808 00 00) ................................................................................ 9Macmillan information resources .............................................................................................. 9Macmillan website (support sections) ..................................................................................... 10Learning and development for people affected by cancer ................................................... 10Questions about living with cancer?Call the Macmillan Support Line free on 0808 808 00 00 or visit macmillan.org.ukMacmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee.Registered company in England and Wales (2400969) and the Isle of Man (4694F). Registered office: 89 Albert Embankment, London SE1 7UQ.

4Total reach across all our services (HEADLINES)In 2011:Macmillan made 8.2 million interventions with people affected by cancerWe supported 4.9 million people affected by cancer in the UK through at least one of ourservices – an 11% increase on 2010o This 4.9 million includes:• 1.7 million people with a cancer diagnosis• 640,000 carers of people with cancer• 2.6 million other people affected by cancer (including family, friends,colleagues, and worried well)We secured a total of £210.6 million in benefits and grants for people affected by cancerThere are around 2 million people living with cancer in the UK (this is rising to around 4million by 2030), and so in 2011 we were reaching over three in four of the 2 millionpeople living with cancer through at least one of our services.If we also include our ‘force for change’ help - for example influencing free prescriptionsand influencing free hospital parking in many hospitals - we can say that we are reachingand improving the lives of everyone living with cancer in some way.However it’s important to remember that not everyone who has had cancer needs oursupport - for example people who were diagnosed with cancer many years ago who arenot experiencing late effects of cancer. So our next challenge will be to reach people inever more relevant and personalised ways, at the times that they really need us.Healthcare servicesAll healthcare professionalsNursesIn 2011, we reached 527,000 people through our all of our Macmillan healthcareprofessionals (Macmillan Nurses, Macmillan AHPs and Macmillan source of supportDoctors combined).Macmillan Nurses help people living with cancer and their families receive essentialmedical, practical and emotional support.Questions about living with cancer?Call the Macmillan Support Line free on 0808 808 00 00 or visit macmillan.org.ukMacmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee.Registered company in England and Wales (2400969) and the Isle of Man (4694F). Registered office: 89 Albert Embankment, London SE1 7UQ.

5In 2011, we reached over 433,000 cancer patients through our Macmillan Nurses. Inaddition to these patients, our Macmillan Nurses helped many more carers, familymembers and friends.In 2011, the average Macmillan Nurse helped 137 cancer patients across the whole year.AHPsAHPs are Allied Healthcare Professionals, who work alongside nurses and doctors toprovide a comprehensive range of cancer healthcare support, including rehabilitationsupport. Examples of AHPs are given below.In 2011, we reached over 85,800 cancer patients through our Macmillan AHPsIn 2011, the average Macmillan AHP helped 161 patients across the whole year.Example of AHPs include:lymphoedema specialists – lymphoedema is a condition that causes swelling of thelimbs, as a consequence of their cancer or its treatment. Our specialists providetherapy that includes massage, bandaging, exercises and skincare and supportspeople to self-manage their condition wherever possible.physiotherapists – by using special exercise or massage therapy, these specialistshelp people with cancer to maintain their independence, mobility and regain any lossof function as a result of their illness or its treatment.dietitians – they give dietary and nutritional advice and support people with cancer.During treatment some people experience a loss of appetite or nausea that mightresult in weight loss. Others may have long-term side effects as a result of surgery ortreatment and might need to change their diet.pharmacists – they prepare drugs and dispense medicines prescribed by doctors,oncologists or nurses for the treatment of cancer. They also provide information forpeople with cancer and their families so that they can self-manage their medicines.information radiographers – they work closely with clinical oncologists in the field ofradiotherapy. They provide support to people with cancer and make sure they haveall the information they need about their particular cancer type and its treatment.occupational therapists – they help people manage day-to-day activities, arrangingfor them to receive any special equipment they need to adapt to being back at homeafter cancer treatment. They also provide information and support to enable people toget back to work or education.speech and language therapists – they work with people who have speechdifficulties, or problems swallowing following cancer treatment.Questions about living with cancer?Call the Macmillan Support Line free on 0808 808 00 00 or visit macmillan.org.ukMacmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee.Registered company in England and Wales (2400969) and the Isle of Man (4694F). Registered office: 89 Albert Embankment, London SE1 7UQ.

6Macmillan ‘source of support’ DoctorsWe no longer fund ‘source of support’ Macmillan Doctors. However, as a result ofhistorical fundraising and service development activity we have developed a number ofMacmillan Doctors across the UK who continue to support cancer patients and theirfamilies, diagnosing and treating cancer, as well as managing pain and symptoms.These ‘source of support’ Macmillan Doctors reached an estimated 7,800 cancer patientsin 2011.Please note that we do currently, however, fund Macmillan GPs – these GPs carry outstrategic and quality improvement roles, providing leadership and influencingimprovements to cancer services in primary care.Clinical buildingsMacmillan knows that the design of cancer care buildings can have an impact on the waypeople feel and respond to treatment. Macmillan helps to fund the design, constructionand furnishing of cancer care centres. We also provide furniture, decoration and fittingsto create a relaxing and healing environment. Types of clinical building include palliativecare units, chemotherapy suites and general cancer care centres.In 2011, we helped over 67,000 cancer patients who were treated within our Macmillanclinical buildings across the UK.Financial support servicesMacmillan benefits advisers (face-to-face)Macmillan benefits advisers work in a variety of settings (eg in a Citizens Advice Bureau,a Macmillan information and support centre, a local council, or a hospital setting)providing essential welfare benefits advice and casework support to people affected bycancer. They can work as single posts, or in larger teams to provide support across awider area. A Macmillan benefits adviser can offer specialist advice on entitlements tobenefits, tax credits and grants. They can also provide assistance with claims andrepresentation at reviews and appeals.In 2011, our national network of face-to-face Macmillan benefits advisers reached around95,000 people affected cancer, identifying around £160m in benefits for people affectedby cancer.Macmillan Support Line (the financial support element only)Questions about living with cancer?Call the Macmillan Support Line free on 0808 808 00 00 or visit macmillan.org.ukMacmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee.Registered company in England and Wales (2400969) and the Isle of Man (4694F). Registered office: 89 Albert Embankment, London SE1 7UQ.

It’s always preferable to talk about our Macmillan Support Line phone service as a singleservice. However, if you only need to talk about the service delivering financial support, pleaseuse the figures below:Our Macmillan Support Line has a specialist team of phone-based Macmillan benefitsadvice experts who offer specialist advice to help ease money worries for people affectedby cancer, including providing information on benefits, tax credits, grants and loans.In 2011, our Macmillan Support Line benefits advice experts reached 22,765 peopleaffected by cancer across the UK, identifying around £40m in benefits7Macmillan GrantsMacmillan Grants help people on low incomes with cancer to meet costs that can arisefrom the condition and its treatment. A Macmillan grant is a one-off payment for adults,young people or children with cancer, to cover a wide range of practical needs. This caninclude things such as heating bills, extra clothing, or a much needed break.In 2011, 31,716 people received Macmillan Grants, totalling £10.6m.In 2011, an average of 610 people received a Macmillan Grant every week.Social, emotional and practical supportSocial workersMacmillan social workers (alongside a smaller number of Macmillan family supportworkers) work with community and social services agencies to help people manage thesocial and practical problems of living with cancer.In 2011, we reached around 21,400 people through Macmillan social workersEmotional and practical support servicesMacmillan offers a broad range of emotional and practical support schemes - such asbefriending schemes, bereavement schemes, carers services, counsellors, children andfamily services and volunteer-led practical and emotional support schemes. Theschemes often contain volunteers and provide face-to-face support to help peopleaffected by cancer with their daily needs.A Macmillan befriending service offers emotional, social or practical support bymatching a trained ‘befriender’ to someone affected by cancer.Questions about living with cancer?Call the Macmillan Support Line free on 0808 808 00 00 or visit macmillan.org.ukMacmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee.Registered company in England and Wales (2400969) and the Isle of Man (4694F). Registered office: 89 Albert Embankment, London SE1 7UQ.

8A Macmillan bereavement scheme involves supporting someone affected by cancerso they can grieve and helping them cope with the loss of a loved one.A Macmillan carers service provides support to unpaid carers looking after someoneaffected by cancer, including practical help, information and signposting to otherservices and emotional support.A Macmillan counsellor provides psychological and emotional counselling support topeople affected by cancer including patients, carers and relatives, includingbereavement support.A Macmillan children & family service supports the carers, children and families ofpeople living with cancer, including bereavement support and help to access practicaland financial support.A Macmillan volunteer-led scheme helps people affected by cancer with theiremotional & practical support needs, with volunteers helping out with basic needssuch as driving someone to hospital, looking after someone’s garden, or doing theshopping for someone who struggles to cope alone.In 2011, we reached around 8,500 people through our emotional & practical supportschemes (excluding self-help & support groups – see below).Self-help and support groupsMeeting other people with similar experiences can be invaluable when you’re affected bycancer. Self-help and support groups offer the chance for people to talk to others whoreally understand how they are feeling.In 2011, the self-help and support groups (who have had Macmillan funding) reachedover 16,000 people affected by cancer.Information and support servicesWhen you’re affected by cancer, having the right kind of information and support, at the righttime, is essential. That’s what Macmillan provides. We offer up-to-date cancer informationwritten by specialists to help people make informed choices about their treatment and care andto take away some of the fear. We offer practical advice and solutions for the everydayproblems that can arise from living with cancer. We also offer vital emotional support –somewhere to turn when people affected by cancer need to chat or share their experiences.Macmillan Cancer information and support centresA visit to a cancer information and support centre provides people affected by cancerwith the chance to ask questions and talk through their concerns with specialist staff andtrained volunteers. Macmillan information professionals working in these centres answerquestions and talk to people affected by cancer about their concerns. The centres holdQuestions about living with cancer?Call the Macmillan Support Line free on 0808 808 00 00 or visit macmillan.org.ukMacmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee.Registered company in England and Wales (2400969) and the Isle of Man (4694F). Registered office: 89 Albert Embankment, London SE1 7UQ.

ooklets and leaflets about cancer and information on financial support. Many centreshave benefits advisers available to help and some offer complementary therapies too.Macmillan also funds the design, construction and furnishing of hospital and communitybasedcancer information and support centres.In 2011, we reached 305,850 people through our UK network of Macmillan informationand support centres9Macmillan Mobile Information and Support ServicesOur Macmillan Mobile Information and Support Services tour the UK throughout the year,offering free, confidential information and support to people in their communities. Anyoneis welcome, whether they have a cancer diagnosis, are visiting on behalf of a friend orrelative, or are worried about cancer. The services are staffed by Macmillan cancerinformation and support specialists who can offer a wide range of information andsupport tailored to a person’s individual needs.In 2011, our four Macmillan Mobile Information and Support Services reached a total of51,271 people affected by cancer across England.We do not currently have a Mobile Information and Support Service in Scotland, Wales orNorthern Ireland. Please check if it would be relevant to use this information in any localisedactivity in the Celtic Nations.Macmillan Support Line (0808 808 00 00)Our support line is staffed by cancer support specialists. They are here for everyoneaffected by cancer, whatever they need. They can answer questions about cancer typesand treatments, provide practical and financial support to help people live with cancer,and are there if someone just wants to talk.In 2011, we responded to a total of 132,354 phone call, emails and letters via theMacmillan Support Line, that’s an average of over 2,500 per week.Macmillan information resourcesMacmillan produces a wide range of publications in a range of formats specifically forpeople with cancer, their family and friends, and we make these available free of chargefor people affected by cancer and the professionals and volunteers who work with them.In 2011, we reached 3.1 million people affected by cancer through our Macmillaninformation resources.Questions about living with cancer?Call the Macmillan Support Line free on 0808 808 00 00 or visit macmillan.org.ukMacmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee.Registered company in England and Wales (2400969) and the Isle of Man (4694F). Registered office: 89 Albert Embankment, London SE1 7UQ.

10Macmillan website (support sections)Our website features high-quality cancer information, an online community where peoplecan chat and support each other, and information on how Macmillan and otherorganisations can provide emotional, practical and financial support.In 2011, the ‘source of support’ sections of our website helped 3.9 million peopleaffected by cancer in the UKLearning and development for people affected by cancerMacmillan is committed to providing people affected by cancer with the tools they wantand need. As well as helping people living with cancer, we also help carers, families,communities and professionals. To do this we offer a comprehensive range of courses,workshops and learning toolkits.In 2011, we reached 2,890 people affected by cancer through our learning anddevelopment courses aimed at people affected by cancer. We reached many thousandsmore professionals through courses aimed at professional audiences.Questions about living with cancer?Call the Macmillan Support Line free on 0808 808 00 00 or visit macmillan.org.ukMacmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). A company limited by guarantee.Registered company in England and Wales (2400969) and the Isle of Man (4694F). Registered office: 89 Albert Embankment, London SE1 7UQ.