Essentials of Genetic and Genomic Nursing - American Nurses ...
Essentials of Genetic and Genomic Nursing - American Nurses ...
Essentials of Genetic and Genomic Nursing - American Nurses ...
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Identifies ethical, ethnic/ancestral, cultural, religious, legal, fiscal, <strong>and</strong> societalissues related to genetic <strong>and</strong> genomic information <strong>and</strong> technologies.Specific Areas <strong>of</strong> KnowledgeCultural, ethnic, family values, traditions,health beliefs <strong>and</strong> religious perspectivesthat influence access <strong>and</strong>use <strong>of</strong> genetic/genomic information<strong>and</strong> services.The components <strong>of</strong> informeddecision-making including:• Types <strong>of</strong> information needed• Barriers to making an informeddecisionSources <strong>of</strong> genetic information.Capabilities <strong>and</strong> limitations <strong>of</strong> currentgenetic/genomic technologies.Ethical issues related to genetic/genomic information <strong>and</strong> technology(such as confidentiality, privacy, disclosure,duty to warn).Psychosocial issues <strong>and</strong> impact <strong>of</strong>genetic/genomic information on individual<strong>and</strong> the family (such as emotionaldistress, discrimination).Current state, federal, <strong>and</strong> militarypolicies that impact genetic/genomicprivacy, health, life, long term care<strong>and</strong> disability insurance, employment,<strong>and</strong> other forms <strong>of</strong> genetic discrimination.Clinical Performance IndicatorsDemonstrate the ability to assess cultural,language, family values, traditions,health beliefs <strong>and</strong> religious perspectivesthat influence access to <strong>and</strong>use <strong>of</strong> genetic/genomic information,technology, <strong>and</strong> services.Identify cultural, language, familyvalues, traditions, health beliefs <strong>and</strong>religious perspectives that impactaccess <strong>and</strong> use <strong>of</strong> genetic/genomicinformation, technology <strong>and</strong> services.Identify psychosocial issues <strong>and</strong>impact <strong>of</strong> genetic/genomic information,technology <strong>and</strong> services on individual<strong>and</strong> the family.Use ethical principles when deliberatinggenetic/genomic issues <strong>of</strong>decision-making, privacy, confidentiality,informed consent, disclosure,access, <strong>and</strong> personal impact.List action steps to address genetic/genomic ethical issues in practice,(e.g., discuss with nursing teamor supervisor, present to ethicscommittee).Describes the influence <strong>of</strong> insuranceor other methods <strong>of</strong> reimbursementfor services on access to genetic <strong>and</strong>genomic information <strong>and</strong>technologies.28 <strong>Essentials</strong> <strong>of</strong> <strong>Genetic</strong> <strong>and</strong> <strong>Genomic</strong> <strong>Nursing</strong>, 2nd Edition