Essentials of Genetic and Genomic Nursing - American Nurses ...

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Identifies credible, accurate, appropriate, and current genetic and genomicinformation, resources, services, and/or technologies specific to given clients.Specific Areas of KnowledgeResources for healthcare professionalsand lay public about: disease susceptibility;genetic/genomic conditions,treatment, and prognosis (e.g.,nursing literature, evidence-basedwebsites sites such as the NationalHuman Genome Research Institutehttp://www.genome.gov/ and theCenters for Disease Control NationalOffice of Public Health Genomicshttp://www.cdc.gov/genomics/).Resources for referral within one’scommunity.Roles of genetic/genomic healthcareprofessionals.Interprofessional resources that contributeto evidence based care ofclients needing genetic/genomicresources or services (i.e., EGAPP;AHRQ).Clinical Performance IndicatorsEvaluate strengths, limitations, andbest use of genetic and/or genomicresource for a client or group ofclients.Discuss the ways in which nurses canmeet the educational, psychosocialand resource needs of clients andfamilies affected by a genetic orgenomic condition.Discuss the ways in which nurses canmeet the knowledge, psychosocialand resource needs of clients andfamilies affected by genetic/genomictechnology.Identify resources available to assistclients seeking genetic and genomicinformation or services including thetypes of services available.Develop a list of contacts for a genetic/genomic referral resource in one’scommunity or within one’s respectivehealthcare setting.Evaluate sources of evidence andclinical practice guidelines for a clientwhose care involves genetic and/orgenomic healthcare. Use continuousquality improvement initiatives toupdate practice guidelines asnecessary.Essential Nursing Competencies and Curricula Guidelines for Genetics and Genomics 27
Identifies ethical, ethnic/ancestral, cultural, religious, legal, fiscal, and societalissues related to genetic and genomic information and technologies.Specific Areas of KnowledgeCultural, ethnic, family values, traditions,health beliefs and religious perspectivesthat influence access anduse of genetic/genomic informationand services.The components of informeddecision-making including:• Types of information needed• Barriers to making an informeddecisionSources of genetic information.Capabilities and limitations of currentgenetic/genomic technologies.Ethical issues related to genetic/genomic information and technology(such as confidentiality, privacy, disclosure,duty to warn).Psychosocial issues and impact ofgenetic/genomic information on individualand the family (such as emotionaldistress, discrimination).Current state, federal, and militarypolicies that impact genetic/genomicprivacy, health, life, long term careand disability insurance, employment,and other forms of genetic discrimination.Clinical Performance IndicatorsDemonstrate the ability to assess cultural,language, family values, traditions,health beliefs and religious perspectivesthat influence access to anduse of genetic/genomic information,technology, and services.Identify cultural, language, familyvalues, traditions, health beliefs andreligious perspectives that impactaccess and use of genetic/genomicinformation, technology and services.Identify psychosocial issues andimpact of genetic/genomic information,technology and services on individualand the family.Use ethical principles when deliberatinggenetic/genomic issues ofdecision-making, privacy, confidentiality,informed consent, disclosure,access, and personal impact.List action steps to address genetic/genomic ethical issues in practice,(e.g., discuss with nursing teamor supervisor, present to ethicscommittee).Describes the influence of insuranceor other methods of reimbursementfor services on access to genetic andgenomic information andtechnologies.28 Essentials of Genetic and Genomic Nursing, 2nd Edition
Page 5 and 6: Appendix A. Resources to Support th
Page 7: CONTRIBUTORS, CONSENSUS PANEL,AND E
Page 10: Endorsing OrganizationsAcademy of M
Page 14 and 15: • Genomics - Study of all the gen
Page 16 and 17: ESSENTIAL COMPETENCIESProfessional
Page 18: Provision of Education, Care, and S
Page 21 and 22: Outcome IndicatorsDomain: Professio
Page 23 and 24: Demonstrate in practice the importa
Page 25 and 26: Demonstrates ability to elicit a mi
Page 27 and 28: Conducts comprehensive health and p
Page 29 and 30: Assesses clients’ knowledge, perc
Page 31: Domain: Professional PracticeEssent
Page 35 and 36: Domain: Professional PracticeEssent
Page 37 and 38: Provides clients with credible, acc
Page 39 and 40: Collaborates with insurance provide
Page 42: IMPLEMENTATION STRATEGIESPractice a
Page 46 and 47: REFERENCES CITED IN TEXTAll URLs we
Page 48: 21. Danz, S. (2004). Integrating Ge
Page 51 and 52: Books and MonographsResourcePublish
Page 53 and 54: Genetic Issues forPerinatal Nurses
Page 55 and 56: International Society ofNurses in G
Page 57 and 58: University of California,San Franci
Page 59 and 60: Consumer/Client: General Informatio
Page 61 and 62: Consumer/Client: Support and Advoca
Page 63: The Genetics and PublicPolicy Cente
Page 66 and 67: Genome ResearchResourceContactBLAST
Page 68 and 69: Health Professional Practice and Ed
Page 70 and 71: Physician’s DatabaseQuery (PDQ®)
Page 72 and 73: News Sites Specializing in Genetics
Page 74 and 75: Professional Organizations: Nursing
Page 76 and 77: Risk AssessmentResourceHarvard Cent
Page 78 and 79: United States Government AgenciesRe
Page 80: ESSENTIALS OF GENETIC AND GENOMIC N

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