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Essentials of Genetic and Genomic Nursing - American Nurses ...

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Demonstrate in practice the importance <strong>of</strong> tailoring genetic <strong>and</strong> genomic information<strong>and</strong> services to clients based on their culture, religion, knowledge level,literacy, <strong>and</strong> preferred language.Specific Areas <strong>of</strong> KnowledgeCultural, social, ethnic <strong>and</strong> religiousperspectives <strong>and</strong> literacy that mayinfluence client’s access <strong>and</strong>/or abilityto use genetic <strong>and</strong> genomic information<strong>and</strong> services.Economic <strong>and</strong> health disparities relatedto genetics <strong>and</strong> genomics.Clinical Performance IndicatorsIncorporate client’s cultural, social,ethnic <strong>and</strong> religious perspective <strong>and</strong>literacy level when delivering genetic<strong>and</strong> genomic care.Integrate knowledge from psychology,history, politics, sociology <strong>and</strong> culturewhen delivering genetic <strong>and</strong>genomic care.Advocate for the rights <strong>of</strong> all clients for autonomous, informed genetic- <strong>and</strong>genomic- related decision-making <strong>and</strong> voluntary action.Specific Areas <strong>of</strong> KnowledgePotential benefits, risks <strong>and</strong> limitations<strong>of</strong> genetic/genomic testing <strong>and</strong>accessing genetic/genomic information.Ethical, legal <strong>and</strong> social issues surroundingaccess to <strong>and</strong> use <strong>of</strong> genetic<strong>and</strong> genomic information.Impact <strong>of</strong> genetic <strong>and</strong> genomic informationon individuals, familymembers, communities <strong>and</strong>/orpopulations.Components <strong>of</strong> informed decisionmakingincluding:• Types <strong>of</strong> information needed• Barriers to making an informeddecision• Autonomous decision-making asappropriateClinical Performance IndicatorsEnsure privacy when discussinggenetic <strong>and</strong> genomic information.Maintain confidentiality when recordinggenetic <strong>and</strong> genomic information.Demonstrate awareness <strong>of</strong> the potentialimpact <strong>of</strong> genetic/genomic informationon the individual <strong>and</strong> otherfamily members.Respond appropriately to inquiriesabout genetic <strong>and</strong> genomic healthcareconcerns.18 <strong>Essentials</strong> <strong>of</strong> <strong>Genetic</strong> <strong>and</strong> <strong>Genomic</strong> <strong>Nursing</strong>, 2nd Edition

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