Achieving good end of life care for people with dementia
Achieving good end of life care for people with dementia
Achieving good end of life care for people with dementia
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Education @ St Christopher’sHow toApplyPOST Complete and return this <strong>for</strong>m to: Education, St Christopher’s Hospice,51-59 Lawrie Park Road, London SE26 6DZFAX Complete and return this <strong>for</strong>m by fax to: 020 8776 5838ONLINE Complete our online booking <strong>for</strong>m at:www.stchristophers.org.uk/booking<strong>for</strong>mCourse <strong>Achieving</strong> <strong>good</strong> EoLCCost £90TitleSurnameFirst NameJob TitleOrganisationAddressTelephoneEmailPayment Please x your preferred payment method ChequeMade payable to St Christopher’s Hospice. Pleaseput the course name and course code on the back <strong>of</strong>the cheque Invoiceplease invoice the following (if different from above)NameAddressCodePostcodePr<strong>of</strong>ession (Please Highlight)Nurse / Doctor / AHP / Social Worker /Spiritual Care / Bereavement / Education /Senior Manager / Administrator / Care Assistant /OtherAre you employed by, or have anhonorary contract <strong>with</strong> one <strong>of</strong> thefollowing: (Please Highlight)NHS Hospital Trust / Local Authority / Private Sector /NHS Community or PCT / Indep<strong>end</strong>ent Hospice, VoluntaryOrg or Charity / University or Education FacilityDietary RequirementsWho is funding this course?Yourself / Organisation / Other (please specify)How did you hear about the course? BACS (details available on request) Credit CardI authorise St Christopher’s Hospice to deduct thecourse cost from my accountCard TypeAmountCardholder’s NameCard No.<strong>Achieving</strong> <strong>good</strong> <strong>end</strong> <strong>of</strong> <strong>life</strong><strong>care</strong> <strong>for</strong> <strong>people</strong> <strong>with</strong> <strong>dementia</strong>26 March 2012 Code ELCD031210 October 2012 Code ELCD10129.30-16.30St Christopher’s Hospice, London£90Security codeExpiry DateSignatureDateBooking Conditions The closing date <strong>for</strong> applications is 7 days prior to the course start date. No refund can be made afterthe closing date and where participants do not att<strong>end</strong> <strong>with</strong>out prior notice to Education administration. Your place on thecourse will be confirmed following receipt <strong>of</strong> your booking <strong>for</strong>m and fee. In the event <strong>of</strong> a booking being cancelled less than 2weeks be<strong>for</strong>e the course start date, 50% <strong>of</strong> the course fee will be charged. This <strong>for</strong>m can be photocopied <strong>for</strong> additionalapplicationsData Protection - In accordance <strong>with</strong> the Data Protection Act 1998, we are required to in<strong>for</strong>m you that your details will beretained and held on file <strong>for</strong> administrative purposes by St Christopher’s Hospice. Please be assured that we will not passthis in<strong>for</strong>mation on to any other organisation unless we have your prior consent.For more in<strong>for</strong>mation all St Christopher’s courses please visitwww.stchristophers.org.uk/education
<strong>Achieving</strong> <strong>good</strong> <strong>end</strong> <strong>of</strong> <strong>life</strong> <strong>care</strong><strong>for</strong> <strong>people</strong> <strong>with</strong> <strong>dementia</strong>FacilitatorsMin Stacpoole, Research Nurse, End <strong>of</strong> Life Care <strong>for</strong> People <strong>with</strong>Dementia, St Christopher’s HospiceMin managed a long stay ward <strong>for</strong> older <strong>people</strong> be<strong>for</strong>e coming to work atSt Christopher’s Hospice. She worked in the in-patient unit and then asa Clinical Nurse Specialist in Lambeth, Southwark, Lewisham, Bromleyand Croydon. She managed a caseload <strong>of</strong> palliative <strong>care</strong> patients inCroydon Care Homes <strong>for</strong> 3 years. From 2009, she worked <strong>for</strong> theModernisation Initiative’s End <strong>of</strong> Life Care Programme as NurseFacilitator <strong>for</strong> <strong>end</strong> <strong>of</strong> <strong>life</strong> <strong>care</strong> <strong>for</strong> <strong>people</strong> <strong>with</strong> <strong>dementia</strong>.Jessica Barnes-Webb, Dementia and End <strong>of</strong> Life Clinical NurseSpecialist, Trinity HospiceJessica has a degree in Mental Health Nursing from Ox<strong>for</strong>d BrookesUniversity and initially worked as a staff nurse on an acute mental healthward <strong>for</strong> older adults. She then moved to London in 2006 and worked <strong>for</strong>4 years as a CPN in a mental health <strong>care</strong> <strong>of</strong> older <strong>people</strong> team. She alsoworked as a research nurse on clinical trials <strong>for</strong> anti-<strong>dementia</strong>medication and, enjoying working <strong>with</strong> <strong>people</strong> <strong>with</strong> <strong>dementia</strong>, decided tospecialise in this area. Jessica started work at Trinity Hospice as aDementia and <strong>end</strong> <strong>of</strong> <strong>life</strong> Clinical Nurse Specialist in March 2010. This isa new and developing post recognising the need <strong>for</strong> improved access topalliative <strong>care</strong> <strong>for</strong> <strong>people</strong> <strong>with</strong> <strong>dementia</strong>.Target audience: GP’s, District Nurses, Community Matrons, CPNs,Care Home nurses, Domiciliary Care Managers, Social Workers, AlliedHealth Pr<strong>of</strong>essionals, and other <strong>care</strong> workers who would like theopportunity to reflect on their work <strong>with</strong> <strong>people</strong> <strong>with</strong> <strong>dementia</strong>.Estimates suggest that by the <strong>end</strong> <strong>of</strong> the decade there could be up to amillion <strong>people</strong> living <strong>with</strong> <strong>dementia</strong> in the UK. All <strong>of</strong> us, especially healthand social <strong>care</strong> pr<strong>of</strong>essionals, need to understand the impact <strong>of</strong><strong>dementia</strong> on the lives <strong>of</strong> individuals and families.Research has found that <strong>end</strong> <strong>of</strong> <strong>life</strong> <strong>care</strong> <strong>for</strong> <strong>people</strong> <strong>with</strong> <strong>dementia</strong> is<strong>of</strong>ten poor and that they are <strong>of</strong>ten hospitalised inappropriately because<strong>of</strong> lack <strong>of</strong> planning and co-ordination. The primary <strong>care</strong> team, <strong>care</strong>home staff and social <strong>care</strong> pr<strong>of</strong>essionals play a key role in recognisingdisease progression and supporting the family to plan ahead and ensurethat the <strong>end</strong> <strong>of</strong> <strong>life</strong> <strong>care</strong> wishes <strong>of</strong> the person <strong>with</strong> <strong>dementia</strong> arerespected and the person dies peacefully and com<strong>for</strong>tably.End <strong>of</strong> <strong>life</strong> <strong>care</strong> <strong>for</strong> <strong>people</strong> <strong>with</strong> <strong>dementia</strong> does not usually needspecialist palliative <strong>care</strong> intervention. However, planning <strong>end</strong> <strong>of</strong> <strong>life</strong> <strong>care</strong><strong>for</strong> someone who lacks capacity to make their own decisions is differentfrom advance <strong>care</strong> planning <strong>with</strong> someone who is cognitively able;assessing pain and other physical symptoms is complicated when theperson cannot communicate their distress verbally; and supportingfamilies through the long dwindling <strong>end</strong> stages <strong>of</strong> <strong>dementia</strong> can bechallenging. This course is int<strong>end</strong>ed to help health and social <strong>care</strong>pr<strong>of</strong>essionals adapt their existing skills to achieve excellent <strong>end</strong> <strong>of</strong> <strong>life</strong><strong>care</strong> <strong>for</strong> <strong>people</strong> <strong>with</strong> <strong>dementia</strong> and their families.Topics will include:Dementia: diagnosis, epidemiology, national policyExperience <strong>of</strong> the person <strong>with</strong> <strong>dementia</strong>Understanding behavioural and psychological symptomsAssessing symptoms when someone cannot communicateverballyDisease progression and decision makingEnd <strong>of</strong> <strong>life</strong> <strong>care</strong>For more in<strong>for</strong>mation and booking <strong>for</strong>m visitwww.stchristophers.org.uk/education