A Critical Examination of State Agency Investigations into ...

A Critical Examination of State Agency Investigations into ... A Critical Examination of State Agency Investigations into ...

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clinical director role, psychiatrist - over medication dangers.” The minutes cited JonathanCarey as an example, noting an “11 year old child with autism withheld food as abehavior management; leaving him in his room for 36 hours (unsubstantiated); lack ofclothing; no food.”OMRDD’s former Deputy Commissioner for Quality Assurance, Dr. JanAbelseth, reported that the initial survey team substantiated the majority of the Careys’allegations. She recalled that the planned ignoring was one of the problems withJonathan’s behavior plan and further told the Inspector General’s Office that Jonathan’splan was “not planned ignore, that’s neglect.” She added, “You use planned ignoring allthe time….Think about as a parent, you ignore behaviors because you don’t want toreinforce it by giving it attention. But the planned ignoring, when you are actuallyrefusing to give people basic services, is when it becomes abuse.” Trent stated to theInspector General’s Office, “I think the techniques that Anderson School [used] clearlymet the definition of abuse. What they were doing was abusive; whether they intended itto be, or not, is beside the point…you can’t do that stuff.” She referred to the behaviormanagement procedures used with Jonathan Carey as “appalling.” When informed bythe Inspector General that a proposed behavior plan did not get approval from the familyand that the techniques did not seem to be properly vetted, former OMRDDCommissioner Maul indicated that, “Some [behavioral] programs should not be offeredup for approval anyhow….You seem to be talking about a situation that totally removesall dignity and all rights from an individual.”E-mail correspondence from the November 9-10, 2004, survey team indicates thatthe team identified, among other problems, systemic flaws in behavior plans, inadequate126

staff training, and a lack of coordination at the Anderson School. It was noted in the e-mail that the surveyor “did not find any gross negligence or failure at the school,however, there does appear to be some significant flaws that if left unchecked could leadto serious problems for individual students.”Description of Statement of DeficienciesThe Statement of Deficiencies identified a number of violations of rights set forthin 14 NYCRR § 633.4. All individuals in facilities certified by OMRDD are entitled tothese rights, as outlined earlier in this report, with any limitations being “on an individualbasis, for a specific period of time, and for clinical purposes only.” According to theregulation, “The rights… are intended to establish the living and/or program environmentthat protects individuals and contributes to providing an environment in keeping with thecommunity at large, to the extent possible, given the degree of the disabilities of thoseindividuals.” The following violations were identified by OMRDD:• The Anderson School presented completed treatment plans toparents/guardians for review, not providing them with the opportunity toparticipate in the development of the plans and with little or noopportunity to object to plans (§ 633.4(a)(4)(viii)(a)).• The Anderson School violated the right to “services, including assistanceand guidance, from staff who are trained to administer servicesadequately, skillfully, safely, and humanely, with full respect for theindividual’s dignity and integrity” (§ 633.4(a)(4)(ix)). The lack of clarityand guidance in treatment plans, and specifically the failure to specify atime limit for forcing Jonathan to remain in his room were criticized inthis finding.• The Anderson School violated the right to “a balanced and nutritious diet,served at appropriate times and in as normal a manner as possible, andwhich is not altered or totally denied for behavior management ordisciplinary purposes” (§ 633.4(a)(4)(xvii)). According to the Statementof Deficiencies, the behavior plan for Jonathan made his access to meals at127

staff training, and a lack <strong>of</strong> coordination at the Anderson School. It was noted in the e-mail that the surveyor “did not find any gross negligence or failure at the school,however, there does appear to be some significant flaws that if left unchecked could leadto serious problems for individual students.”Description <strong>of</strong> <strong>State</strong>ment <strong>of</strong> DeficienciesThe <strong>State</strong>ment <strong>of</strong> Deficiencies identified a number <strong>of</strong> violations <strong>of</strong> rights set forthin 14 NYCRR § 633.4. All individuals in facilities certified by OMRDD are entitled tothese rights, as outlined earlier in this report, with any limitations being “on an individualbasis, for a specific period <strong>of</strong> time, and for clinical purposes only.” According to theregulation, “The rights… are intended to establish the living and/or program environmentthat protects individuals and contributes to providing an environment in keeping with thecommunity at large, to the extent possible, given the degree <strong>of</strong> the disabilities <strong>of</strong> thoseindividuals.” The following violations were identified by OMRDD:• The Anderson School presented completed treatment plans toparents/guardians for review, not providing them with the opportunity toparticipate in the development <strong>of</strong> the plans and with little or noopportunity to object to plans (§ 633.4(a)(4)(viii)(a)).• The Anderson School violated the right to “services, including assistanceand guidance, from staff who are trained to administer servicesadequately, skillfully, safely, and humanely, with full respect for theindividual’s dignity and integrity” (§ 633.4(a)(4)(ix)). The lack <strong>of</strong> clarityand guidance in treatment plans, and specifically the failure to specify atime limit for forcing Jonathan to remain in his room were criticized inthis finding.• The Anderson School violated the right to “a balanced and nutritious diet,served at appropriate times and in as normal a manner as possible, andwhich is not altered or totally denied for behavior management ordisciplinary purposes” (§ 633.4(a)(4)(xvii)). According to the <strong>State</strong>ment<strong>of</strong> Deficiencies, the behavior plan for Jonathan made his access to meals at127

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